Re: (unknown)

[Guest guest]

Yeah, we had a lot of wind but if I kept the grill

closed it stayed hot enough.

Sharon

--- Terry Long <pawpawto3@...> wrote:

> Sharon, O love to Bar-B-Qing so much when we

> lived

> back in the Midwest I would go out into the snow to

> fire up the grill. As long as the wind wasn't blow

> hard you could find me firing up the grill & if the

> wind wouldn't blow out the fire I would be

> Bar-B-Qing

> then. Out here I don;t have to worry about the snow.

> Terry

> --- Sharon Zeis <szeis_1@...> wrote:

> > And being Texan I was out grilling chicken when it

> > was

> > 40 the other day. I planned to grill that chicken

> > and

> > a little cold weather won't stop me. The crawfish

> > were

> > wet anyway,right?

> > Sharon

> > --- Jannewilms42@... wrote:

> > > We got our share of rain..Do yall want to know

> > just

> > > how cajun I am?? Well we

> > > boiled crawfish in the RAIN the other night just

> > me

> > > and the hubby..Yep in the

> > > damn rain..That's how bad we wanted them..Don't

> > > worry to the ones who doesn't

> > > like em I ate plenty for everyone!!!! Hey Terry

> > are

> > > ya watching the race??

> > > Bet ya are..

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Yeah she's doing OK. We take our meds. together. She

has autoimmune hemolytic anemia. I like saying that

it's a lot of big words that mean her body destroys

it's own red blood cells. She's the sweetest thing in

the world and since I had to quit working I've had

more time to spend with my pets. Thanks for asking

about her.

Sharon

--- diane214@... wrote:

> When I used to eat red meat I used to go out and

> grill steak on the

> barbecue in 30 degree weather....... It just didn't

> taste the same in

> the broiler..... LOL...

>

> Sharon: Thats a shame about your poor little

> dog...Is he doing ok??? I

> hope so.

>

> Angel Hugs,

> Diane

>

> May Rainbow Dreams Color Your World With Love, Hope,

> Peace & Unity

>

>

>

>

__________________________________________________

[Guest guest]

To add to Geoff's input:

It sounds like Kelli is very new to the whole arthritis scene...even

though she's been in pain for a while. Whether you realize it or not

Kelli, you've joined a group that is predominately composed of people

who use the antibiotic therapy to " cure " (or as some would say...VERY

long term remission...hee) arthritis versus using the drugs your doctor

prescribed to " control " the symptoms of the RA you have. We are a small,

but growing number of believers that the current medical establishment's

knowledge is hopelessly outdated. Many of us, including myself, believe

that arthritis in NOT an immune-related disease (I work in a hospital

and have to constantly remind people of this!), rather that we suffer

from bacterial or infectious cause. The bacteria we have can come from

many sources. Just look at the wide component of diseases on this

group....rheumatoid arthritis, psoriatic arthritis, lyme disease, MS,

lupus, and on and on. And most of us are continually getting better with

the support, knowledge and encouragement of each other.

Now that you know what you have and probably feel a bit scared and a bit

relieved to actually have a name for it, take the time to educate

yourself and choose your options wisely. As you now know, living

pain-free is a luxury that most of us will never take for granted again.

While I have been lucky enough to never have been on any of the

medications your doctor prescribed, I know some people have found that

they need them to get to a better place. Make sure you learn about the

known side effects of each and every medication. Most arthritis meds are

very hard on the body (especially your liver and kidneys) and end up

doing more harm than good.

As Geoff mentioned, the medications currently out there that we label as

DMARDs, won't help you over the long haul. If they did, we'd all be on

them. So, take some time to read the stories and information at

www.rheumatic.org and www.roadback.org and know that you do have more

options that what you have already learned from your doctor.

Take good care and keep us updated on your progress!

deano

On Sunday, March 3, 2002, at 10:56 PM, Geoff wrote:

>>> I repeat that I live in SLC, UT, it has been very cold the entire time

> that I have been ill. I would like to know what I can expect during the

> summer months? Does the swelling increase due to the heat and then

> lead to

> increased pain or discomfort? Kelli <<

>

> Depends. For some people there is more swelling and pain the summer, but

> more stiffness in the winter. Everybody is different. Best thing you can

> probably do for you is to trash the Rx the doctor gave you, get on the

> AP

> and use herbs to control the swelling, pain & inflammation until you

> beat

> the disease with the antibiotics. The Rx the MD gave you is guaranteed

> to

> fail, he knows that; it just makes failure more palatable.

>

> I don't know about you, but palatably failure is not an acceptable

> solution

> to me, especially when compared to victory.

>

>

> Geoff

> soli Deo gloria

>

> http://www.healingyou.org/ NonRx herbals, homeopathics & supplements

> http://www.800-800-cruise.com/ Cruises, tours, resorts & luxury trains

>

>

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Living in the Phoenix Metro area for the last 21

years, I have seen several of those. At least once

every summer. You get a big twenty to thirty minute

down pour. The ground is so dey & hard the water just

runs off. Causing the streets & normaly dry river beds

to flood. Our winter rain falls are the one's that

soak into the ground. But we haven't seen that this

year.

Terry

--- ACE <arken@...> wrote:

> I've seen some very fast & furious flash floods--- &

> it comes so quickly that

> it catches people unawares....... people camping out

> it dried out river

> bottoms in Yum & in New Mexico--N.M. get the real

> furious one rain- snow-

> hail- thunder- lightnening- floods..... It is just

> so fascinating to watch

> from afar(away from the dried out riverbeds......all

> in what seems a matter

> of seconds or minutes & then whoosh it's gone!! &

> the sun is out & shininng

> brightly.....When I was a kid we went thru one of

> these in July!!! It WAS

> amazing!!

> arlene

>

> Terry Long wrote:

>

> > It's bone dry in southern AZ, Our winters is

> when

> > we normal get the bulk of our rain. It's also dry

> in

> > northern Az. They didn't get there normal snow

> fall.

> > All the ski resorts are crying. The only snow they

> > have had is man-made. We are already having brush

> > fires in southern Az it's so dry.

> > Terry

> > --- Jannewilms42@... wrote:

> > > Terry did ya ever get some rain?? We sure got

> plenty

> > > of it.

> > >

> >

> > __________________________________________________

> >

[Guest guest]

Arlene, I guess that I am lucky. The few close

friends has stuck by us through my battle with the

dragon. Anyone who doesn't want to take the time to

find anything about this battle with the dragon to

heck with them. They weren't real friends if that's

the way they feel. It's time's like this when you find

out who your true friends are.

Terry

--- ACE <arken@...> wrote:

> I also woke up feeling poorly-- ached everywhere &

> felt like my abdomin had

> been used as a punching bag......it was awful. We

> were expecting friends

> over in early to mid day--but about 11AM I couldn't

> tolerate it any longer &

> took one of my pain meds & went back to

> bed.......Ken asked if he should call

> them up & cancel our day- I told him just let me

> know when they call & when

> they'll be here & I'll get up & be just fine---about

> 1 1/2 hr later they

> called.... & I made it thru the afternoon & early eve

> just fine.... we don't

> get much company(most people still believe I'm

> contagious- but they are

> learning little by little- the longer I live) I

> don't need the ones who

> choose not to learn or get a little knowledge about

> HepC.... they evidently

> were'nt true friends anyhow!!

> arlene

>

> Terry Long wrote:

>

> > Good morning everyone. I hope & pray that things

> are

> > going well with you all. I was lazy this morning,

> I

> > didn't get up until 9:30. So I didn't make it to

> > church, guess I needed the sleep.

> > Just catching up with my E-mails & waiting for

> the

> > race to start 1:00 our time.

> > Terry

> >

> > __________________________________________________

> >

[Guest guest]

They sure are and they got warmed up quick too! LOL

[Guest guest]

I watched most of the race..I just wish our guys would have done better..At least no one got hurt!!

[Guest guest]

Yes Diane you gotta have a butane burner and BIG pot to put em in..

[Guest guest]

Hey find out how much a ticket would cost and of course a TRUSTWORTHY giude!!

[Guest guest]

Arlene like I to;d ya before my WONDERFUL EX told my kids I had aids and they couldn't hug me anymore or get close to me..I too lost what I thought were freinds..Evidently they weren't..Oh well it is their loss to have turned their backs on such a good person..Yep that's me pattin my own back!!!!

[Guest guest]

Terry-- you were the only person on list that I received any posts from &

they came thru real quick!!

arlene

Terry Long wrote:

> I everyone, what's going on with . Today I have

> gotten mail from Sunday, Monday & a few from today.

> But postings to the group I sent out today three hours

> ago & some I sent out yesterday still hasn't gone

> through. I miss hearing from all of you.

> Terry

>

> __________________________________________________

>

[Guest guest]

terry--at least you got some sleep I was up & down(in & outta bed -as I'd

think of things I needed to do--- & having that merciless itching...I was

mainly just trying not to disturb Ken- what with all my contortions(trying to

scratch- back- neck- feet- etc.

I fianlly managed to doze off about noon today for about a 1/2 hour- very

lite sleep as I could hear everything-- but finally got a little rest for my

eyes-- then I got up with a kink in my neck!! That was replaced by pain in

lower back from sweeping the floor....You know how it is-- I've just got to

get house a little clean before Lois comes over to clean my house on Sat.

Going to fish mkt @ the coast on Fri- for another seafood feast-- After she

gets done with the cleaning..figured it was the least we could do...as she

won't accept any money for this cleaning!!

arlene

Terry Long wrote:

> Good morning everyone. I hope all is well with you.

> Things are going well here. I don't remember doing it.

> Suzy said this morning if I was in pain. Said I was

> moaning & groaning in my sleep. Saying that I sounded

> like a sick cow.

> Terry

>

> __________________________________________________

>

[Guest guest]

Man o' man Jan!! the ex of yours is really somethin' else..sure wish

he'd come up this way & cross the rode(not in crosswalk) I'd

hit passing gear & then tell cops I accidently missed the brake pedal

as I was so flustered!??<g>

arlene

Jannewilms42@... wrote:

Arlene like

I to;d ya before my WONDERFUL EX told my kids I had aids and they couldn't

hug me anymore or get close to me..I too lost what I thought were freinds..Evidently

they weren't..Oh well it is their loss to have turned their backs on such

a good person..Yep that's me pattin my own back!!!!

[Guest guest]

Hi Kelli and all,

I have to agree with Geoff. Please research the Prednisone, Methotrexate

before you start. These meds are very difficult to remove from your

treatment once you start. The flares post

MTX and Pred. are much worse when you start to taper.

I know it is very difficult to stare the pain, fatigue, stiffness, swelling

etc. in the face and NOT grab onto the recommendations of the

Rheumatologist. Been there done that. I can tell you that the Prednisone

will work, but at a huge price. It will cause your body to go through

accelerated aging. Your bones will become brittle, your entire body ages.

Your carbohydrate metabolism will be affected and you will put on a good

fifty pounds, no matter how carefully you manage your diet. And the fluid,

upper body, neck, chest, abdomen. You will feel better initially until you

see and feel what happens to your body from the drug. This starts to happen

within two months of taking the drug.

As for Methotrexate, it may or may not work. You won't know until you try it

for a good year. It is a chemotherapy drug used in small doses to suppress

your immune system. It can also suppress your red cell growth making you

anaemic.

So please research these drugs before you start. Talk to people currently

taking them. Research the AP therapy and talk to those involved in that

therapy.

Kim

rheumatic Re: (unknown)

> >> I repeat that I live in SLC, UT, it has been very cold the entire time

> that I have been ill. I would like to know what I can expect during the

> summer months? Does the swelling increase due to the heat and then lead

to

> increased pain or discomfort? Kelli <<

>

> Depends. For some people there is more swelling and pain the summer, but

> more stiffness in the winter. Everybody is different. Best thing you can

> probably do for you is to trash the Rx the doctor gave you, get on the AP

> and use herbs to control the swelling, pain & inflammation until you beat

> the disease with the antibiotics. The Rx the MD gave you is guaranteed to

> fail, he knows that; it just makes failure more palatable.

>

> I don't know about you, but palatably failure is not an acceptable

solution

> to me, especially when compared to victory.

>

>

> Geoff

> soli Deo gloria

>

> http://www.healingyou.org/ NonRx herbals, homeopathics & supplements

> http://www.800-800-cruise.com/ Cruises, tours, resorts & luxury trains

>

>

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

on 3/4/02 4:13 PM, Kim Gallant, at kimgal@..., wrote:

> So please research these drugs before you start. Talk to people currently

> taking them. Research the AP therapy and talk to those involved in that

> therapy.

Kim, have you started AP? How is it going so far?

I have read that minocycline can increase bone density, or was it decrease

bone loss: anyway, it was a positive benefit with regard to bone density.

This should be good news for folks who have had to use corticosteroids.

Jean

[Guest guest]

> I have read that minocycline can increase bone density, or was it decrease

> bone loss: anyway, it was a positive benefit with regard to bone density.

> This should be good news for folks who have had to use corticosteroids.

Oh yes, that bears reposting! A big concern of mine since osteoporosis is

in my family history. Liz G. ( and PS you were right on both counts

; )

http://www.nia.nih.gov/news/pr/1996/12%2D09.htm

excerpt:(full article is at the link above)

" Minocycline -- Promising Treatment for Osteoporosis

Minocycline, an antibiotic related to tetracycline, has been shown to

increase bone mineral density, improve bone strength and formation, and slow

bone resorption in old laboratory animals with surgically-induced menopause.

As a result of these promising effects, the National Institutes of Health

(NIH) is funding a clinical trial of the drug in women to begin in January.

The laboratory results underlying the clinical trial were obtained by Dr. C.

Tony Liang, et al., of the National Institute on Aging (NIA) and are

published in the December 1996 journal, Bone.

" Lack of estrogen in postmenopausal women leads to decreased bone formation

and more bone resorption, resulting in a net loss of bone, " says NIA

scientist, Dr. Liang, who conducted the study. " Our results in animals

suggest that an inexpensive antibiotic, minocycline, may not only prevent

bone loss, but may increase bone mineral density beyond that of

premenopausal bone mineral density. The next step would be to test the drug

in humans. "

[Guest guest]

on 3/5/02 3:01 PM, TALIA ORTIZ, at taliao@..., wrote:

> H

> I am on Minocin and also I have mild ostheoporosis. I am interested in

> knowing where you found the information about minocycline and its

> benefits in bone density.

> Talia

http://www.nih.gov/news/pr/dec96/nia-09.htm

[Guest guest]

I little of both. We had about a foot of snow

Saturday, it was below 0 yesterday morning, and about

3 above this morning. I think the low last night was

supposed to be pretty cold, but I'm not sure what it

was. It's supposed to warm up in the next couple of

days. -dz-

--- Terry Long <pawpawto3@...> wrote:

> Where as everyone been today. Dz, Dennis & Diane

> are

> you all snowed in or freezing.

> Terry

>

> __________________________________________________

>

[Guest guest]

Hi

Yes, I began AP two weeks ago. Minocycline 100mg, twice a day and Zithromax

500mg three days per week, Monday, Wednesday and Friday.

Pierre from the list provided me with various AP protocols, which I

researched and discussed with my GP and Rheumatologist.

Prednisone did work wonders, but the side effects were too great to continue

at 50mg daily doses. I am still on 5mg per day and hope to taper slowly over

the next three or four months.

Methotrexate was a bust. At the end I was taking 30mg Injected, weekly. The

day after was awful.

Nausea, fatigue, flu like symptoms. The extra fatigue sometimes even lasted

two days.

As I work full time running a very busy Nuclear Medicine department I could

not afford the time away from work. Plus I did not WANT to be away, so I

would slug it out and drive my staff nuts.

I came across AP quite by accident. A sinus infection last December required

a session of Zithromax. The remission lasted three weeks. I had not felt so

well in five years. I convinced my GP to give me a second round of

Zithromax at the end of January, to see what would happen.

The result was the same. Remission. I went on three business trips by

airplane, working eighteen hour days for three weeks. I made it through with

no flare.

I planned the start of the intensive AP to begin at the end of my business

trips and extra overtime.

The first ten days were great. I have been extremely active. I made it back

to the gym for a light work out last Thursday for the first time in over a

year. Friday and Sunday I went hiking with my husband and our dogs. Saturday

we baby sat our nieces until the wee hours, followed by a family gathering

on Sunday. Six months ago any one of the afor mentioned activities would

have knocked me on my butt. Now, I was pretty tired on Monday, but I did

have the day off from work and did spend a good part of the day resting.

I know that my road back will not always be like the first two weeks. I

also know that I will push myself to the extreme as that is my personality.

My goal is to eliminate the prednisone, methotrexate and oxycontin drug

regime. I can only keep focusing on my goal.

Kim

Re: rheumatic Re: (unknown)

> on 3/4/02 4:13 PM, Kim Gallant, at kimgal@..., wrote:

>

> > So please research these drugs before you start. Talk to people

currently

> > taking them. Research the AP therapy and talk to those involved in that

> > therapy.

>

> Kim, have you started AP? How is it going so far?

>

> I have read that minocycline can increase bone density, or was it decrease

> bone loss: anyway, it was a positive benefit with regard to bone density.

> This should be good news for folks who have had to use corticosteroids.

>

> Jean

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

You are right Jan, It is their loss. It's times like

this when you find out who your friends are.

Terry

--- Jannewilms42@... wrote:

> Arlene like I to;d ya before my WONDERFUL EX told my

> kids I had aids and they

> couldn't hug me anymore or get close to me..I too

> lost what I thought were

> freinds..Evidently they weren't..Oh well it is their

> loss to have turned

> their backs on such a good person..Yep that's me

> pattin my own back!!!!

>

__________________________________________________

[Guest guest]

Been at work

[ ] (unknown)

> Where as everyone been today. Dz, Dennis & Diane are

> you all snowed in or freezing.

> Terry

>

> __________________________________________________

>

[Guest guest]

Yeah,it's pretty weird. They were down for

maintenance yesterday and everythings screwed up

today. Maybe you'll get this by next week.

Sharon

--- Terry Long <pawpawto3@...> wrote:

> I everyone, what's going on with . Today I

> have

> gotten mail from Sunday, Monday & a few from today.

> But postings to the group I sent out today three

> hours

> ago & some I sent out yesterday still hasn't gone

> through. I miss hearing from all of you.

> Terry

>

> __________________________________________________

>

[Guest guest]

Hi Kim, I had a similar experience. My symptoms began while I was pregnant. I had Group Strep B so I was put on an antibiotic drip while my labor was induced. I was in remission for 3 or 4 weeks after that. I wish I knew what antibiotic they used on me. That was 4 years ago. I have asked doctors and nurses at the hospital what they think the drip was, but I can't get any answers.

Take care,

Kimmie

Re: rheumatic Re: (unknown)> on 3/4/02 4:13 PM, Kim Gallant, at kimgal@..., wrote:>> > So please research these drugs before you start. Talk to peoplecurrently> > taking them. Research the AP therapy and talk to those involved in that> > therapy.>> Kim, have you started AP? How is it going so far?>> I have read that minocycline can increase bone density, or was it decrease> bone loss: anyway, it was a positive benefit with regard to bone density.> This should be good news for folks who have had to use corticosteroids.>> Jean>>>> To unsubscribe, email: rheumatic-unsubscribeegroups>>>

[Guest guest]

Hi Terry

Sometimes has trouble. Sometimes it is just regular maintenance. They

seem to have been having some trouble yesterday. My step daughter called us

because she couldn't get to games. We tried to inform her that there

are plenty of other game sites on the web, but she didn't know how to get

them. She only knows how to get to . Seems that is the only place

that the Grand kids showed her how to get to.

[ ] (unknown)

> I everyone, what's going on with . Today I have

> gotten mail from Sunday, Monday & a few from today.

> But postings to the group I sent out today three hours

> ago & some I sent out yesterday still hasn't gone

> through. I miss hearing from all of you.

> Terry

>

> __________________________________________________

>

[Guest guest]

I'm still getting emails from Mon & here it Thurs

Wonder if was hacked again??

imaganeer wrote:

> That happens every once in a while. One of our group,

> I think Sandy, mentioned that there was some

> maintenance. Other than that, I think sometimes a

> server goes down and mail is rerouted along another

> path and you start getting mail out of sequence.

> -dz-

>

> --- Terry Long <pawpawto3@...> wrote:

> > I everyone, what's going on with . Today I

> > have

> > gotten mail from Sunday, Monday & a few from today.

> > But postings to the group I sent out today three

> > hours

> > ago & some I sent out yesterday still hasn't gone

> > through. I miss hearing from all of you.

> > Terry

> >

> > __________________________________________________

> >