Re: (unknown)

January 9, 2000

HI :

Steve still has OCD but it is very manageable and at a sub-clinical level.

He controls it with the CBT techniques, in particular exposure and response

prevention.

Unfortunately for him he has a couple of comorbidities, in particular major

depressive disorder, which seems to require that he keep on an SSRI for

antidepressant purposes. He managed to titrate his Paxil down to 13.3 mg

but then found he had to up it to 15 and then 20 mg to keep the MDD at bay.

The dosage of 20 mg of Paxil for him has never really affected his OCD

symptoms. He had to be on at least 60 mg to get a response for OCD.

Luckily it works quite nicely for the MDD though.

In his case he has a family history on both sides of MDD and it seems that

he has this either as another primary diagnosis or even that he had MDD

before OCD and having MDD increased his vulnerability to developing OCD.

If he did not have the MDD I think he would be coping with OCD med-free.

In fact his psychiatrist has told him (and us) that he may in future not

need any meds for the MDD. Right now when puberty is active we are

sticking with the Paxil.

Good luck with Joe coming off his meds. I have spoken to several

knowledgeable OCD docs who have treated many kids who are now doing well

living med-free, after all CBT only is the first line treatment for

children with mild or moderate OCD. Take care, aloha, Kathy (H)

kathyh@...

At 09:05 AM 01/09/2000 -0600, you wrote:

From: " Ron and Simurdiak " <jax@...>

Kathy H. - I remember your talking about how your son used to be on a lot

more medication than he is currently taking for OCD. I have been hopeful

that this summer we might find that same success with Joe. Question - If

Steve is still quite symptomatic, are you finding that you can still stay

at this low dose? I'm wondering if anyone has been successful with lowering

or coming off meds.

January 9, 2000

Daer Patti:

Your symptoms are multi-factorial, meaning that many conditions exist

together.

I constsntly hear of people having their thyroid destroyed...which kind of

closes the door on any rational approach, unless some cells have managed to

maintain activity. In that instance, sometimes a north pole field of a

magnet may induce greater growth of the thyroid tissues when a product

Thyrodine could bring back some form of normal function, probably in

conjunction with natural progesterone.

Your symptoms also suggest intestinal toxicity, low blood sugar and most

likely estrogen dominance.

You may wish to consider consulting with a naturopathic doctor who could

investigate all these potential problems. I don't consider blood tests for

thyroid function to have any validity whatever. And dependence on synthetic

hormones or pig derived leave much to be desired.

In your case, pig [Armour} may be your best bet, until your thyroid could be

assessed for regenerative possibilities by a competent naturopath.

best wishes,

Earl

January 10, 2000

Be sure and drink as much water as you can that will help with the side

effects and get ready for a bumpy ride some days can be good and others

really bad so you really appreciate the good days on this treatment when you

get them. Hang in there and good luck.

Winne

January 10, 2000

Dear Jessie,

Welcome to the List! My name is , and I was diagnosed with HCV on

10/13/98. I failed Intron A treatment and went off of it in Nov. I'm

currently awaiting my Genotype result. I will more then likely go on the

Combo even if I am 1a. Those headaches are a killer! I was taking so much

Ibuprofin it was ridiculous. Not to mention hard on my liver. Now, I've

learned to live with them. I don't get as many, now that I'm off treatment,

but every once in awhile I get hit with a major one. Do you live in Chino,

CA? I noticed your email address and was just curious. I live in San Diego.

Prior to that I lived in Whittier. Good luck to you.

Love,

Bren

January 11, 2000

I went throught the combo...if anyone wants to ask anything about it...you

can e-mail me. I'll try to answer any questions about my experience with the

therapy.

Amy

January 11, 2000

I went throught the combo...if anyone wants to ask anything about it...you

can e-mail me. I'll try to answer any questions about my experience with the

therapy.

Amy

January 13, 2000

Matty: Have you put a mattress cover over the plastic cover? I leave a crack

in the window open at night for some fresh air! Good Luck

Mogdrmom

January 15, 2000

Try using bay (laurel) oil. Taping a whole bayleaf to the lid of the

container or adding to the flour helps keep them out.

January 28, 2000

DTT=discrete trail training

NET=natural environment training

[ ] (unknown)

From: " TERESA WATERS " <tlwaters@...>

I DON'T MEAN TO SOUND STUPID, BUT WHAT DOES DTT, ANDNET STAND FOR? I'M NEW

ON THE LIST, AND I'M NOT UP ON THE LINGO.

TERESA

----------------------------------------------------------------------------

Please click above to support our sponsor

----------------------------------------------------------------------------

January 31, 2000

Matty,

Yep, I do. Especially, when my blood sugar level gets

too low, or I don't take my meds. If both happen than

it's time for that person to run and hide and get out

of my way until I've cooled off, otherwise they are

likely to get to see me get mad and take it on them

verbally.

Mona

--- Matty O'Shea <mattyoshea@...> wrote:

> Anyone have trouble with inexplicable anger? I seem

> to be overly angry at people for no reason. Seems

> to

> be connected with when I don't feel well (often).

> But

> am so used to being in pain, I don't always see a

> connection. Matty

> __________________________________________________

>

February 15, 2000

And I volunteer for the moaning and groaning in waltz time! Bunny

February 19, 2000

I had my mercury fillings removed several years ago due to an episode of

hair loss. It stopped the hair loss (at the time, anyway) and I am

convinced that there is a connection between my fillings and my

hypothyroidism.

If anyone knows how to clear up the aftereffects of mercury poisoning,

please post.

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

February 19, 2000

Very interesting. My mother is going to undergo this amalgam removal soon

for similar health reasons - her doctor recommended it.

Sandy

>From: ltldab1@...

>

>Thought you folks might enjoy this post, and maybe find a possible answer

>to our chronic illness problems

>

>On Wed, 9 Feb 2000 15:58:26 EST LmcCoc@... writes:

>> Hi ...YAY!!!! You are getting that junk out of your mouth!!!

>> YAY!!! I

>> felt so much better after I did...I had it all done at one

>> time...there's

>> been some controversy or questions, i should say, about having it

>> done that

>> way but I think it was the best for me...anyway, GOOD LUCK! with it

>> and let

>> us all know how it goes and how you're feeling...here's a copy of my

>>

>> story....

>>

>> Subj: My story: Mercury vs. Multiple Sclerosis

>> Date: 2/3/00

>> LISTSERV@...

>>

>> Hello all,

>>

>> Now that I have acces to be able to post...Here's a summary of my

>> story:

>>

>> In 1982 I, suddenly had a bad pain in my left eye and went blind in

>> that eye;

>> the opthalmologist (graduate of s Hopkins) diagnosed it as

>> retrobuldar

>> neuritis. He told me it could be Multple Sclerosis. I rejected that

>> diagnosis. Steroids were my only option of treatment, which I also

>> rejected.

>> After approx. 2 months of complete blindness, in that eye, pain had

>> subsided

>> as the inflammation subsided, but nerve damage was not correctable

>> (so they

>> said) After using visualization techniques, it started to clear up.

>> (I read

>> many books on these techniques, and other books, like Norman

>> Cousins,

>> " Anatomy of an Illness. " ) The doctors were amazed that I gained

>> sight back.

>> (My theory was, if my brain could tell my hand, for instance, to

>> pick

>> something up, and it would respond, then why couldn't my brain tell

>> my body,

>> internally, to do things, as well. So, I used visualization

>> techniques to

>> tell my brain to send things to blast away the scarred tissue on my

>> optic

>> nerve, so the electrical impulses which allowed me to see, could get

>>

>> transmitted down the nerve, once more. This did indeed work and

>> although I

>> doubt I will ever get full vision back in that eye (I don't do those

>>

>> techniques anymore) I can see out of my left eye, although it is

>> like looking

>> through a screen, there are holes in my vision field, and colors

>> don't look

>> the same anymore.

>>

>> The following year, the double vision abruptly interrupted my life

>> and spinal

>> taps, MRI's, and a barrage of nuerological tests " confirmed " the

>> diagnosis of

>> MS. This time I endured the steroids (and the side effects.) The

>> spinal fluid

>> did not show MS, but the " confirmation " was made by the double

>> vision and the

>> plaque or scarring on my brain shown by the MRI's. The steroids, it

>> is said,

>> do not work for everyone, but I could see the two separate images

>> gradually

>> coming together as one over a period of 3 months, so the doctors

>> claimed I

>> was steroid sensitive and so they did indeed work for me.

>> Next year, my balance was affected and rotary nystgmus (eyes move on

>> their

>> own and shake constantly) set in. Again, steroids, visualization (my

>> idea

>> again, doctors, of course, poo-poo'd that idea) and 2 months of time

>> made it

>> go away.

>> Through the next few years, I endured depression (attributed to the

>> diagnosis) fatique, blurred vision, nervousness, anxiety, weakness

>> in my

>> limbs, tingling sensations, burning sensations and various pain.

>> (All

>> attributed to the MS, but I rejected steroid treatment and opted for

>> just my

>> own method of treatment: distraction in the form of reckless

>> behavior, ie,

>> sky diving, impulsive behavior, drinking to excess, manic behavior,

>> etc.

>> It was around that time, 60 Minutes reported the amalgam/mercury

>> story. I had

>> 11 large amalgam fillings. My cousin was a dentist and removed all

>> of them,

>> at one time, and replaced them with gold (now I wish I had opted for

>>

>> composite material, but the gold doesn't seem to cause me all that

>> many

>> problems). Within 10 days, I had NO more symptoms of MS! Very few

>> people,

>> including my doctors and my cousin, the dentist, believed me. I

>> didn't care,

>> I KNEW it was from the mercury!! (Thank God for that TV report!)

>> MS is said to exacerbate with stress. Well, I have endured much

>> stress since

>> having my fillings replaced: the birth of my son too early, my

>> husband of 15

>> years being suddenly and tragically decapitated in a car accident,

>> losing all

>> my money and assets to a con artist, to name a few. These stressors

>> did not

>> bring on any symptoms, as surely would have if the diagnosis of MS

>> were

>> correct. However, the medical profession will not see it's way clear

>> to

>> UNdiagnose the MS; making health insurance exhorbitant, for one

>> thing.

>> This has been a long, but educational trek. I HAVE NO DOUBT I was

>> mercury

>> poisoned and still endure some after effects. I did not do any

>> chelation, I

>> didn't know about it back then.

>> I feel extremely strong about getting the message out and making

>> " whom ever

>> it is " that approves mercury use to STOP!

>> I would like to go back to school to become whatever I need to to

>> get the

>> necessary credentials (not sure what they are, though) to do

>> research,

>> writing, etc. to get paid for a working against this practice of

>> using

>> mercury, about which I am so passionate, interested and directly

>> affected by.

>> I wish everyone affected by mercury all the best of luck in beating

>> this

>> thing If there are any questions about my experiences, please send

>> me an

>> email or posting and I will be glad to answer.

>> Sincerely,

>> Cochran (lisalmccoc@...)

>

>---------------------------

February 19, 2000

Yes , After ALL metals are removed from the mouth, DMSA is used to

remove the metals from the body. It is a chelation drug. You can

learn more about it by bringing up information on the net " chelation " ,

amalgam fillings ect. Different search engines will have variety of

different information. Infoseek and Dogpile seem to be the best.

T. Dabney

[This message contained attachments]

February 21, 2000

Why not go to www.drday.com Here is someone who used the Gerson

Therapy to cure herself of breast cancer and has ample material available as

to exactly how she did it. The experiences of others as related by Charlotte

Gerson Strauss, and the book by Dr. Gerson himself show the root of many

traumatic diseases to be rooted in the functioning or malfunctioning of the

body. No therapy seems to work for everyone. But it is nice to find a

complete system and then to add some of the newer things as you progress.

Dr. Day also addresses many of the qu estions one has about practical

matters such as what do i do about allthese other medications I've been on ?

How do I go about getting on a program sensibly and many other things that

the average person with no doctor who is willing to guide them has no idea

how to cope with. Anyway this is just a thought. Wishing the best for you

and your husband. cherie

February 22, 2000

a: 714X was on 20-20, or one of the magazine programs, a few months ago.

Looked very interesting. You can find out more using a search engine on the web.

Also, look up apricot seeds, and flaxseed oil with cottage cheese. In fact they

have a subscription like this one. You can subscribe at:

FlaxSeedOil-subscribeonelist. And the following article might be helpful.

At

least is can't hurt and it doesn't cost a bunch. Has anyone else heard of, or

tried the Grape Juice Cure?

Everyone please notice that I deleted her original message so you don't have to

read it again.

When Fred Wortman of Albany, Georgia, developed an inoperable malignancy of

the intestine, he faced the prospect of long treatments with x-radiation

" therapy " .

" The doctors, " Mr. Wortman said, " refused to operate when they discovered the

condition of my bank balance. "

Being a wide reader, he remembered a simple remedy for cancer that was given

in a book by a ‘Mrs. Brandt’, and looked it up.

It was rather involved and cumbersome to follow, so he reduced it to its

essentials, took the " cure " and was completely cancer-free within a month.

Wortman then had his experience published in " The Independent " and received

hundreds of replies. Over 200 cancer-sufferers reported complete cures--total

recovery. The grape treatment cured lung cancer in two weeks, he reported.

Cancer

of the prostate took a little longer--about a month. Only four cases of leukemia

(cancer of the blood) were treated, but the judicious usage of grape juice cured

them all.

Start the treatment like this:

Begin with a 24 oz. bottle of (dark concord) grape juice the first thing in

the

morning. Do not eat until Noon. Take a couple of swallows every 10 or 15 minutes

(Don’t gulp it down all at once). After 12 o’clock, live the rest of the day

normally, but

do not eat anything after 8 o’clock in the evening...food seems to carry off the

curative agent in the grape juice, which may be magnesium, so stick to the fast

between 8 P.M. and Noon the following day.

Keep this up every day for 2 weeks to one month.

I’d appreciate hearing of the first-hand results of this treatment. The more

cases,

the better the evidence.

Krebiozen is fine, but it racks up only about 80% cures, and is no longer

available

due to the federal injunction suit, the F.D.A., the A.M.A., etc. Ditto

" Mucorihicin " , the

87% -effective cancer treatment from Pittsburgh.

The dark concord grape juice treatment is reported to be nearly 100%

effective.

J.F. Goodavage

Whitefield, Maine 04362

February 22, 2000

Hello, ph F. Goodavage and list,

Yes, I have read about the " Grape Juice Cure " several years ago in a book

by Abbot Burke, <Magnetic Therapy> and elsewhere, and I tried to

locate the original article written by Wortman in the Atlanta Independent

newspaper in the early part of the Twentieth Century. (No success). I have

taken his 28 day " fast' several times as a health detox measure. I can say

that it is very pleasant and not too hard to follow. I ate lunch and dinner

and from 8 PM to 12 Noon I drank only water when thirsty. I never had

hunger cravings. The results are really good with an increase in energy and

a good clean out. I am now a bit suspect about where the grape are grown.

Fluoride treated water areas? In depleted soil? Are they made from

concentrates? In which county are they grown? Etc... Nevertheless, the Grape

Juice Cure of Fred Wortman makes good sense because I recall an old Italian

immigrant telling me that if I wanted to be healthy I would have to eat only

grapes for a two to four week period at least once a year. Thanks for this

posting. Mike Cinelli

============================================================

At 11:34 PM 02/21/2000 -0800, you wrote:

>a: 714X was on 20-20, or one of the magazine programs, a few months ago.

>Looked very interesting. You can find out more using a search engine on the

web.

>Also, look up apricot seeds, and flaxseed oil with cottage cheese. In fact they

>have a subscription like this one. You can subscribe at:

>FlaxSeedOil-subscribeonelist. And the following article might be

helpful. At

>least is can't hurt and it doesn't cost a bunch. Has anyone else heard of, or

>tried the Grape Juice Cure?

>Everyone please notice that I deleted her original message so you don't have to

>read it again.

>

> When Fred Wortman of Albany, Georgia, developed an inoperable malignancy of

>the intestine, he faced the prospect of long treatments with x-radiation

> " therapy " .

> " The doctors, " Mr. Wortman said, " refused to operate when they discovered the

>condition of my bank balance. "

>

> Being a wide reader, he remembered a simple remedy for cancer that was

given

>in a book by a 'Mrs. Brandt', and looked it up.

>

> It was rather involved and cumbersome to follow, so he reduced it to its

>essentials, took the " cure " and was completely cancer-free within a month.

>

> Wortman then had his experience published in " The Independent " and received

>hundreds of replies. Over 200 cancer-sufferers reported complete cures--total

>recovery. The grape treatment cured lung cancer in two weeks, he reported.

Cancer

>of the prostate took a little longer--about a month. Only four cases of

leukemia

>(cancer of the blood) were treated, but the judicious usage of grape juice

cured

>them all.

>

>Start the treatment like this:

>

> Begin with a 24 oz. bottle of (dark concord) grape juice the first thing in

>the

>morning. Do not eat until Noon. Take a couple of swallows every 10 or 15

minutes

>(Don't gulp it down all at once). After 12 o'clock, live the rest of the day

>normally, but

>do not eat anything after 8 o'clock in the evening...food seems to carry

off the

>curative agent in the grape juice, which may be magnesium, so stick to the fast

>between 8 P.M. and Noon the following day.

>Keep this up every day for 2 weeks to one month.

>

> I'd appreciate hearing of the first-hand results of this treatment. The

more

>cases,

>the better the evidence.

>

> Krebiozen is fine, but it racks up only about 80% cures, and is no longer

>available

>due to the federal injunction suit, the F.D.A., the A.M.A., etc. Ditto

> " Mucorihicin " , the

>87% -effective cancer treatment from Pittsburgh.

> The dark concord grape juice treatment is reported to be nearly 100%

>effective.

>

> J.F. Goodavage

> Whitefield, Maine 04362

>

><!doctype html public " -//w3c//dtd html 4.0 transitional//en " >

><html>

>a: 714X was on 20-20, or one of the magazine programs, a few months

>ago. Looked very interesting. You can find out more using a search engine

>on the web. Also, look up apricot seeds, and flaxseed oil with cottage

>cheese. In fact they have a subscription like this one. You can subscribe

>at: FlaxSeedOil-subscribeonelist. And the following article might

>be helpful. At least is can't hurt and it doesn't cost a bunch. Has anyone

>else heard of, or tried the Grape Juice Cure?

> <tt>From:</tt> <tt>

> Rochon & lt;rrochon@... & gt;</tt>

>

>Everyone please notice that I deleted her original message so you

>don't have to read it again.

><hr>

>

><a target= " egnewwin "

href= " 1/1782/3/_/_/_/951205200/ " ><center>

><img width= " 468 " height= " 60 "

> border= " 0 "

> alt= " Click Here "

>

src= " http://adimg./img/1782/3/_/_/_/951205200/KeywordSky-468x60.g

if " ></center><center></center></a>

>

><hr>

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>-List Archives:

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m/archives.cgi/ </a>

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href= " http://home.sol.no/~dusan/cancerpage.html " >http://home.sol.no/~dusan/c

ancerpage.html</a>

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nse/</a>

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>

> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp

; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

> & nbsp; & nbsp; & nbsp; When Fred Wortman of Albany, Georgia, developed an

>inoperable malignancy of

> the intestine, he faced the prospect of long treatments with x-radiation

> " therapy " .

> " The doctors, " Mr. Wortman said, " refused to operate when they discovered

>the

> condition of my bank balance. "

> & nbsp; & nbsp; & nbsp; Being a wide reader, he remembered a simple remedy

>for cancer that was given

> in a book by a 'Mrs. Brandt', and looked it up.

> & nbsp; & nbsp; & nbsp; It was rather involved and cumbersome to follow,

>so he reduced it to its

> essentials, took the " cure " and was completely cancer-free within a

>month.

> & nbsp; & nbsp; & nbsp; Wortman then had his experience published in " The

>Independent " and received

> hundreds of replies. Over 200 cancer-sufferers reported complete

cures--total

> recovery. The grape treatment cured lung cancer in two weeks, he reported.

>Cancer

> of the prostate took a little longer--about a month. Only four cases

>of leukemia

> (cancer of the blood) were treated, but the judicious usage of grape

>juice cured

> them all.

>Start the treatment like this:

> & nbsp; & nbsp; & nbsp; Begin with a 24 oz. bottle of (dark concord) grape

>juice the first thing in the

> morning. Do not eat until Noon. Take a couple of swallows every 10

>or 15 minutes

> (Don't gulp it down all at once). After 12 o'clock, live the rest of

>the day normally, but

> do not eat anything after 8 o'clock in the evening...food seems to

>carry off the

> curative agent in the grape juice, which may be magnesium, so stick

>to the fast

> between 8 P.M. and Noon the following day.

> Keep this up every day for 2 weeks to one month.

> & nbsp; & nbsp; & nbsp; I'd appreciate hearing of the first-hand results

>of this treatment. The more cases,

> the better the evidence.

> & nbsp; & nbsp; & nbsp; Krebiozen is fine, but it racks up only about 80%

>cures, and is no longer available

> due to the federal injunction suit, the F.D.A., the A.M.A., etc. Ditto

> " Mucorihicin " , the

> 87% -effective cancer treatment from Pittsburgh.

> & nbsp; & nbsp; & nbsp; The dark concord grape juice treatment is reported

>to be nearly 100% effective.

> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

& nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbs

p; & nbsp; & nbsp; & nbsp;

>J.F. Goodavage

> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp

; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

>Whitefield, Maine 04362

> & nbsp;

> & nbsp;</html>

>

The Pen is Mightier Than The Sword. ' A Timeold Saying "

February 22, 2000

i am crawling out from under my lurking rock. dr. roy watkins in

summerfield is terrific and very knowledgeable. he took me on and had never

treated inclusion body myositis before; a comment that he made. am i

better, who knows? i have remained stable. if you are in north carolina,

it is certainly worth a trip to see chip watkins. and now i am crawling

back under my rock.

ann

" Friends are angels who lift us to our feet when our wings have trouble

remembering how to fly. "

rheumatic (unknown)

> From: Dan Hines <paperhanging@...>

>

> a

> The dr I found first was Dr. Roy Watkins he is great and I just believe

> he would treat these other diseases.

> His address is Hwy. 220 North, Summerfield,NC

> Phone: 336-643-7711

> Dr. Watkins sent me to a dr. friend in Charlotte

> Dr. Neal Speight

> Randolf Rd. Charlotte

> Phone: 704-334-8447

> I just went to see dr speight on the 4th and plan to start the IV

> treatment soon.He wants to do a couple more test first. I like dr.

> watkins so much I dont know if I will stop going to see him. It is a 3

> hr. dr from here. I live between Indian Trail and Waxhaw.

>

> ------------------------------------------------------------------------

> Shop the web for great deals. Save on Computers,

> electronics, Home furnishings and more.

> 1/1559/0/_/_/_/951267222/

> ------------------------------------------------------------------------

>

February 27, 2000

Hi Becky,

My daughter , just turned 15 and is a freshman in high school. Her

rheumy said if we ever had trouble with the schools about Jess' illness, she

has systemic JRA, just let them know and they would handle it. She said we

aren't to try and handle it, she and her office staff would. Maybe you

could talk to your rheumy and see if they have a protocol on helping parents

handle the schools and all the problems this disease can cause with our

children's educations. I wish you the best, if nothing else, print some of

the articles Georgina posts to the list and let them read for themselves

just what you and all the other parents of JRA sufferers are living through,

not to mention what the kids themselves are suffering through.

Hope you can get some results soon!! JODI

becky severance wrote:

> From: " becky severance " <BanJsmom@...>

>

> georgina,

> thank-you for the nice welcome!well you had asked me about

> my daugher she is 13years old she was 9-10 years old when she was

> diagnosed with jra she has what the dr. tells me is polyarticularjra

> it took the dr. a long time and i was scared and running from one dr.

> to another and getting very angry why couldn`t someone just tell me

> anything it was like it hit her over night she was always my healthy

> child never sick etc you know and all of a sudden what a big change

> for the little girl that i knew to a different person and it is still

> that way it has changed are lives she is on so much medicine and she

> is getting tired of doctorsthe medicine she is on is a vitamin once a

> day just over the counter, tylenol allowed 3x`s a day

> ,prednisone(which one day i would like to see her off

> of)hydroxychlor,methotrexate shot she gets once a weekthen 12 hours

> afterher shot she gets 2 leucover then the rest of the week she gets

> folic acid. some pretty powerful stuff but you worry but you also

> have to go day by day but anyhow iam getting off track the weather is

> not been kind to her at all iam hopeing spring is right around the

> corner and maybe that will help but she sure has been having a lot of

> bad days lately i try to keep her as actived as i can she goes

> swimming 2 times a week a coach from a program picks her up plus she

> goes to shriners then on weekends she is in a wow group they do a lot

> of nice things for all the kids but even all that i wish there was

> more i could do .well as you see i could keep on going on and on but

> my chidren are telling that they are hungary so i will go feed them

> but i wanted to write back to you sooner but it has been so crazy i

> had to go to another school meeting and it is always the same thing

> over and over i wish i could tell them that yes tomorrow she is going

> to be well but i can not so in the mean time i wish they could stay

> off my back!the school has been a real treat do other parents have

> the fun of the schools riding your backs?? well thank u i hope u are

> having a good day ill write soon and u 2 please becky

>

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> For links to websites with JRA info visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

February 29, 2000

Hi Becky,

When I read stories like yours, I feel very grateful that we've had lots

of support from my children's school. They've been aware of the JRA

since my son first got sick, towards the end of his kindergarden year.

They've tried to be very helpful and accomodating. I worry a little

about Josh's transition to middle school. He'll be changing schools come

August, starting 6th grade, and I'm sure there will be some new issues

to work on. In fact, I just got a call about scheduling for the last IEP

conference of the year. Josh has had an individualized educational plan

in place since 3rd grade. He falls under the heading of special ed, due

to having a health impairment. He doesn't have a learning disability,

and performs above average academically, but his illness-related

absences are sometimes frequent. Although he never needed any special

services, the school personnel encouraged me to set this up. This year,

after being hospitalized for a week and then having more late and

missed-school days because of a flare, he started having a tutor twice a

week in our home. She comes after school for two hours. Just so he

doesn't fall behind in any of the class work he was absent for. In the

past I'd work with him at home, whenever he started feeling better and

was ready to study. Now the tutor does most of this.

I keep in pretty close contact with his teachers and pick up any work he

may have missed and turn in work that he's completed, on a daily basis.

Josh usually feels worse in the mornings. If he starts feeling better

after breakfast and meds, and a hot shower or bath, I'll bring him in to

school a little late. When a flare is more active, he sometimes feels

terribly sick until noon or even later. The fevers are a big problem for

him, as they make him very fatigued and he'll complain that his body is

sore all over, instead of just having pain and stiffness in a couple

joints. Even on the worst days, it's amazing to see the huge difference

in him by late afternoon, early evening.

Becky, you mentioned that your daughter takes leucover. Was this part of

the plan ever since she started taking MTX or was it added later on, to

combat some of the side effects? Josh takes 1mg of folic acid every day

except the day of MTX injection. He's never had any of the possible bad

side effects from MTX, like mouth sores or any of that. Recently though,

he's getting some slight nausea and LOTS of tiredness afterwards.

Lasting to the next morning. I wonder if this is something that could be

helped by trying leucover? We used to give his MTX orally right before

bedtime on weekends and it wasn't a problem but now that the schedule

has changed to right after school on Thursdays, there does seem to be a

problem. Let me know, okay?

Thanks,

Georgina