Guest guest Report post Posted March 16, 2010 OOOPS i am not from the UK...sorry..... Jahjet Smile..( as much as i love malt vinegar) > > > > > should you add vinegar to your brew in the beginning to help establish = > > > and better scoby. > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > If you are short of that, you can use distilled malt vinegar at the > > beginning of the brewing cycle. > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > contains a different culture called 'Mother of vinegar' which can mess > > up your Kombucha culture. > > > > The acidity is good especially to ward off mold spores. > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > eat all the still remaining sugar in the KT liquid. Even the acidity > > at the end of your KT brewing may be good enough to give your new brew > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > yours acidically ;-) > > > > Margret :-) > > > > -- > > +------------------ Minstrel@ --------------------+ > > http://www.therpc.f9.co.uk/family/scobygrow/home.html > > http://bavarianminstrel.wordpress.com > > creation.com > > Be willing to let your schedule be altered if knowing God better requires it. > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 ok thanks Jahjet! Patti ________________________________ From: Jahjet <jahjet@...> kombucha tea Sent: Tue, March 16, 2010 6:41:16 PM Subject: Re: help hi, Patty, it should say distilled.. i use plain distilled.. jahjet > > > > > should you add vinegar to your brew in the beginning to help establish = > > > and better scoby. > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > If you are short of that, you can use distilled malt vinegar at the > > beginning of the brewing cycle. > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > contains a different culture called 'Mother of vinegar' which can mess > > up your Kombucha culture. > > > > The acidity is good especially to ward off mold spores. > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > eat all the still remaining sugar in the KT liquid. Even the acidity > > at the end of your KT brewing may be good enough to give your new brew > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > yours acidically ;-) > > > > Margret :-) > > > > -- > > +----------- ------- Minstrel@ ------------ --------+ > > http://www.therpc. f9.co.uk/ family/scobygrow /home.html > > http://bavarianmins trel.wordpress. com > > creation.com > > Be willing to let your schedule be altered if knowing God better requires it. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 ok thanks Jahjet! Patti ________________________________ From: Jahjet <jahjet@...> kombucha tea Sent: Tue, March 16, 2010 6:41:16 PM Subject: Re: help hi, Patty, it should say distilled.. i use plain distilled.. jahjet > > > > > should you add vinegar to your brew in the beginning to help establish = > > > and better scoby. > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > If you are short of that, you can use distilled malt vinegar at the > > beginning of the brewing cycle. > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > contains a different culture called 'Mother of vinegar' which can mess > > up your Kombucha culture. > > > > The acidity is good especially to ward off mold spores. > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > eat all the still remaining sugar in the KT liquid. Even the acidity > > at the end of your KT brewing may be good enough to give your new brew > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > yours acidically ;-) > > > > Margret :-) > > > > -- > > +----------- ------- Minstrel@ ------------ --------+ > > http://www.therpc. f9.co.uk/ family/scobygrow /home.html > > http://bavarianmins trel.wordpress. com > > creation.com > > Be willing to let your schedule be altered if knowing God better requires it. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 This sounds like a scoby I got once. About 3 " across in a little plastic pouch from an ebay seller? I followed the directions that came with it and it turned out great, but I had to throw out the first batch of tea (save about a cup for starter) because it had so much cider vinegar in it. It is still doing well now in black tea. It made great daughter scobys. They are ugly and lumpy just the way I like them. On Tue, Mar 16, 2010 at 7:20 PM, patti <patti720@...> wrote: > > > I have Sarson's malt vinegar.. doesnt mention being distilled... anyone > from the uk know if this is distilled? > > I just received a small scoby with very little tea. I was going to add some > cider vinegar. (which is what I was instructed to do)... now I don't know > what to use! > > Patti > > eddWyrd Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 This sounds like a scoby I got once. About 3 " across in a little plastic pouch from an ebay seller? I followed the directions that came with it and it turned out great, but I had to throw out the first batch of tea (save about a cup for starter) because it had so much cider vinegar in it. It is still doing well now in black tea. It made great daughter scobys. They are ugly and lumpy just the way I like them. On Tue, Mar 16, 2010 at 7:20 PM, patti <patti720@...> wrote: > > > I have Sarson's malt vinegar.. doesnt mention being distilled... anyone > from the uk know if this is distilled? > > I just received a small scoby with very little tea. I was going to add some > cider vinegar. (which is what I was instructed to do)... now I don't know > what to use! > > Patti > > eddWyrd Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Hi Patti and EveryOne, You can use any food grade vinegar as long as it is either pasteurized, or you boil it. It takes just a moment, you can even add it when you boil your tea, sugar, water,mixture. The idea is to keep any live organisms in the vinegar from changing your Kombucha thus the pasteurization. Peace, Love and Harmony, Bev > > > > > should you add vinegar to your brew in the beginning to help establish = > > > and better scoby. > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > If you are short of that, you can use distilled malt vinegar at the > > beginning of the brewing cycle. > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > contains a different culture called 'Mother of vinegar' which can mess > > up your Kombucha culture. > > > > The acidity is good especially to ward off mold spores. > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > eat all the still remaining sugar in the KT liquid. Even the acidity > > at the end of your KT brewing may be good enough to give your new brew > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > yours acidically ;-) > > > > Margret :-) > > > > -- > > +----------- ------- Minstrel@ ------------ --------+ > > http://www.therpc. f9.co.uk/ family/scobygrow /home.html > > http://bavarianmins trel.wordpress. com > > creation.com > > Be willing to let your schedule be altered if knowing God better requires it. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Hi Patti and EveryOne, You can use any food grade vinegar as long as it is either pasteurized, or you boil it. It takes just a moment, you can even add it when you boil your tea, sugar, water,mixture. The idea is to keep any live organisms in the vinegar from changing your Kombucha thus the pasteurization. Peace, Love and Harmony, Bev > > > > > should you add vinegar to your brew in the beginning to help establish = > > > and better scoby. > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > If you are short of that, you can use distilled malt vinegar at the > > beginning of the brewing cycle. > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > contains a different culture called 'Mother of vinegar' which can mess > > up your Kombucha culture. > > > > The acidity is good especially to ward off mold spores. > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > eat all the still remaining sugar in the KT liquid. Even the acidity > > at the end of your KT brewing may be good enough to give your new brew > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > yours acidically ;-) > > > > Margret :-) > > > > -- > > +----------- ------- Minstrel@ ------------ --------+ > > http://www.therpc. f9.co.uk/ family/scobygrow /home.html > > http://bavarianmins trel.wordpress. com > > creation.com > > Be willing to let your schedule be altered if knowing God better requires it. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Hi, Bev, thanks for clearing that up! Is pasteurization, or boiling at high temp. to prevent the forming of Mother of Vinegar? Jahjet > > > > > > > should you add vinegar to your brew in the beginning to help establish = > > > > and better scoby. > > > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > > If you are short of that, you can use distilled malt vinegar at the > > > beginning of the brewing cycle. > > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > > contains a different culture called 'Mother of vinegar' which can mess > > > up your Kombucha culture. > > > > > > The acidity is good especially to ward off mold spores. > > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > > eat all the still remaining sugar in the KT liquid. Even the acidity > > > at the end of your KT brewing may be good enough to give your new brew > > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > > > > yours acidically ;-) > > > > > > Margret :-) > > > > > > -- > > > +----------- ------- Minstrel@ ------------ --------+ > > > http://www.therpc. f9.co.uk/ family/scobygrow /home.html > > > http://bavarianmins trel.wordpress. com > > > creation.com > > > Be willing to let your schedule be altered if knowing God better requires it. > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Hi, Bev, thanks for clearing that up! Is pasteurization, or boiling at high temp. to prevent the forming of Mother of Vinegar? Jahjet > > > > > > > should you add vinegar to your brew in the beginning to help establish = > > > > and better scoby. > > > > > > Hi , The best vinegar to add is acidic Kombucha, ready brewed. > > > If you are short of that, you can use distilled malt vinegar at the > > > beginning of the brewing cycle. > > > Just spoon a tablespoon of vinegar over your scoby/top of your new brew. > > > > > > Don't use cider vinegar (unless you boil it and cool it first), as this > > > contains a different culture called 'Mother of vinegar' which can mess > > > up your Kombucha culture. > > > > > > The acidity is good especially to ward off mold spores. > > > You can get Kombucha vinegar from a scoby hotel, where the scobys > > > eat all the still remaining sugar in the KT liquid. Even the acidity > > > at the end of your KT brewing may be good enough to give your new brew > > > sufficient acidity. 1/2 - 1 cup added to your new brew should be sufficient. > > > > > > > > > yours acidically ;-) > > > > > > Margret :-) > > > > > > -- > > > +----------- ------- Minstrel@ ------------ --------+ > > > http://www.therpc. f9.co.uk/ family/scobygrow /home.html > > > http://bavarianmins trel.wordpress. com > > > creation.com > > > Be willing to let your schedule be altered if knowing God better requires it. > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 17, 2010 In message <hnova0+vj1qeGroups> you wrote: > Hi, Margret, it is hard to find distilled " malt " vinegar " here, we have > plain distilled though. Would that suffice?... Jahjet If it is sourced from natural vinegar, yes. I should avoid vinegar sourced from petrochemicals. It is always possible to boil/destroy the inherent mother of vinegar and use the 'doctored' cider vinegar. That's my take. :-) Margret -- +------------------ Minstrel@... --------------------+ http://www.therpc.f9.co.uk/family/scobygrow/home.html http://bavarianminstrel.wordpress.com creation.com JOY comes by putting Jesus first, Others second, and Yourself last. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 17, 2010 In message <hnova0+vj1qeGroups> you wrote: > Hi, Margret, it is hard to find distilled " malt " vinegar " here, we have > plain distilled though. Would that suffice?... Jahjet If it is sourced from natural vinegar, yes. I should avoid vinegar sourced from petrochemicals. It is always possible to boil/destroy the inherent mother of vinegar and use the 'doctored' cider vinegar. That's my take. :-) Margret -- +------------------ Minstrel@... --------------------+ http://www.therpc.f9.co.uk/family/scobygrow/home.html http://bavarianminstrel.wordpress.com creation.com JOY comes by putting Jesus first, Others second, and Yourself last. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 yeah, someone told me about the shriners hosptial..but i dont know much about them...is my only concern > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > Sent from my iPhone > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 yeah, someone told me about the shriners hosptial..but i dont know much about them...is my only concern > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > Sent from my iPhone > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 You should really look into your nearest Shriners like Catie said, sounds like your child has Progressive Infantile Scoliosis and you are going to want to properly cast her while you still have the window of opportunity. Just take deep breaths and make some calls Monday morning. Casting really isn't bad at all. The day of casting can be stressful, but your child bounces right back as soon as you get them up and playing (within hours). You just have to adjust your lifestyle a little and then it's "business as usual". Please dont let us worry or overwhelm you. WE have been in your shoes and there is a cure if treated early (under 2). Good luck and ask us any quesitons at all. Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX From: Chelsea <softballchick105@...>infantile scoliosis treatment Sent: Fri, March 26, 2010 11:01:47 PMSubject: Re: Help yeah, someone told me about the shriners hosptial..but i dont know much about them...is my only concern>> As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > Sent from my iPhone> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 You should really look into your nearest Shriners like Catie said, sounds like your child has Progressive Infantile Scoliosis and you are going to want to properly cast her while you still have the window of opportunity. Just take deep breaths and make some calls Monday morning. Casting really isn't bad at all. The day of casting can be stressful, but your child bounces right back as soon as you get them up and playing (within hours). You just have to adjust your lifestyle a little and then it's "business as usual". Please dont let us worry or overwhelm you. WE have been in your shoes and there is a cure if treated early (under 2). Good luck and ask us any quesitons at all. Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX From: Chelsea <softballchick105@...>infantile scoliosis treatment Sent: Fri, March 26, 2010 11:01:47 PMSubject: Re: Help yeah, someone told me about the shriners hosptial..but i dont know much about them...is my only concern>> As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > Sent from my iPhone> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Chelsea, Welcome to CAST! My name is Judy and we seem to live kinda close to you. We live in Springfield, MO. Anyway, we were seeing Dr.A from Kansas City's Chilren's Hospital for awhile, from the time that ELi was 10 months til we decided to do a cast for his treatment this past Feb.(16 mon). He did offer us the casting option but they did not offer the Mehta casting that we had read about on the internet. We spoke to him after our last apt 2-11 and told him that we would like to be refered to Shriner's in SLC(Salt Lake City) he gave us the two options if we wanted Mehta casting, Rochester, NY or SLC, UT. We did look into casting at SHriner's ST. Louis, becasue the way that Shriner's work is they wanted to send us to the closest hosp to us. But when we explored that, which was AN AWFUL conversation with one of the DRs nurses that we had been assigned to.(Sorry, but it was awful) We found out that they didn't know what I was even talking about when we refered to the casting style Mehta, which in their defense, they might call it something different, I was so new at the time in this I didnt realize what I needed. I was told by my unfriendly nurse that obviously the DR doesn't believe in the Mehta casting or he would be doing it. So, I said thanks, and hung up. But Shriner's just transfered us to SLC the same day. We called and sent Xrays and were accepted pretty much all in the same day. Yeah! But, I will tell you, our Dr. from KS was awesome and he wanted to come with us to find out how to do the Mehta type cast. His group of DRs had ordered a Mehta table to do her casting!! Yippee! And instead of coming with us this month to SLC, Dr. M (herself) is coming down in JUNE and they were looking for kid-o's that wanted to be casted. He called us, but we didnt want to wait until June. I feel like we have lost some time in this, even though our care coordinator in Salt Lake said we are doing good on the timing of everything : ) Yeah, for cheerleaders in my corner!! But anyways, we did a few things, we applied online and we had our specials from KS give us a referral too. Anyway, that might have been overkill but we got in! : ) I know that you don't know much about Shriner's neither do we, but we didn't know much about the other hospitals either that did the casting. Shriner's is FREE, which is so amazing!! And when you apply they give you TONS of info!! So one step at a time, I would get online and apply. You don't even have to wait til Monday. We applied on Friday and got a call Tuesday. That might have been fast, IDK? Get this, there is also a place called Angel Flight that is paying for my husband, me and Eli to fly to Utah!! And then there is our local chapter of Shriner's that is paying for the gas for us to drive to Kansas City so we can fly out from there.. This whole process is so overwelming and we are not very much ahead of you on this journey, but girl, I have found this GROUP to be AMAZING!! And I am taking this all one day at a time!! Many Blessing to you and your little one! By the way, she shares her birthday with our oldest child Ben! : ) Good day! I hope this info has helped, im a little late chiming in. Busy day yesterday, we are supposed to be heading out in the morning to get Eli's first cast. : ) Judy Poland, mom of Ben, Josh and Eli(39*, diagnoised at 9 months and supposed to be getting our first cast this Tuesday in SLC) > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > Sent from my iPhone > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Chelsea, Welcome to CAST! My name is Judy and we seem to live kinda close to you. We live in Springfield, MO. Anyway, we were seeing Dr.A from Kansas City's Chilren's Hospital for awhile, from the time that ELi was 10 months til we decided to do a cast for his treatment this past Feb.(16 mon). He did offer us the casting option but they did not offer the Mehta casting that we had read about on the internet. We spoke to him after our last apt 2-11 and told him that we would like to be refered to Shriner's in SLC(Salt Lake City) he gave us the two options if we wanted Mehta casting, Rochester, NY or SLC, UT. We did look into casting at SHriner's ST. Louis, becasue the way that Shriner's work is they wanted to send us to the closest hosp to us. But when we explored that, which was AN AWFUL conversation with one of the DRs nurses that we had been assigned to.(Sorry, but it was awful) We found out that they didn't know what I was even talking about when we refered to the casting style Mehta, which in their defense, they might call it something different, I was so new at the time in this I didnt realize what I needed. I was told by my unfriendly nurse that obviously the DR doesn't believe in the Mehta casting or he would be doing it. So, I said thanks, and hung up. But Shriner's just transfered us to SLC the same day. We called and sent Xrays and were accepted pretty much all in the same day. Yeah! But, I will tell you, our Dr. from KS was awesome and he wanted to come with us to find out how to do the Mehta type cast. His group of DRs had ordered a Mehta table to do her casting!! Yippee! And instead of coming with us this month to SLC, Dr. M (herself) is coming down in JUNE and they were looking for kid-o's that wanted to be casted. He called us, but we didnt want to wait until June. I feel like we have lost some time in this, even though our care coordinator in Salt Lake said we are doing good on the timing of everything : ) Yeah, for cheerleaders in my corner!! But anyways, we did a few things, we applied online and we had our specials from KS give us a referral too. Anyway, that might have been overkill but we got in! : ) I know that you don't know much about Shriner's neither do we, but we didn't know much about the other hospitals either that did the casting. Shriner's is FREE, which is so amazing!! And when you apply they give you TONS of info!! So one step at a time, I would get online and apply. You don't even have to wait til Monday. We applied on Friday and got a call Tuesday. That might have been fast, IDK? Get this, there is also a place called Angel Flight that is paying for my husband, me and Eli to fly to Utah!! And then there is our local chapter of Shriner's that is paying for the gas for us to drive to Kansas City so we can fly out from there.. This whole process is so overwelming and we are not very much ahead of you on this journey, but girl, I have found this GROUP to be AMAZING!! And I am taking this all one day at a time!! Many Blessing to you and your little one! By the way, she shares her birthday with our oldest child Ben! : ) Good day! I hope this info has helped, im a little late chiming in. Busy day yesterday, we are supposed to be heading out in the morning to get Eli's first cast. : ) Judy Poland, mom of Ben, Josh and Eli(39*, diagnoised at 9 months and supposed to be getting our first cast this Tuesday in SLC) > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > Sent from my iPhone > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Judy, Thank you so much for that info. I'm also seeing Dr. "a" if its the same one in ortho! He has seemed very nice through all of this but just kept saying we could wait two months and ten come back to see if aubreys scoliosis has got any better otherwise he wanted to brace. But I do believe im going to call on monday and see if i can get an appointment to talk about putting a cast on her because she does have a very big curve in her back andi think i would be better off putting the cast on where as with the brace i can take it off. We've been trying to get some medical help for aubrey due to that fact we are not rich! I stay at home just because with all these appointments theres no way i could keep a job and have them let me off for everything. But our familes arent exactly supportive in our decision so thats really been the only hard part. Aubrey is holding up like a trooper and thats pretty much what gets me through. She does not like the brace and I do feel bad for putting in on, but I would rather her cry then not be here like the doctor said if we didnt do anything. So as of right now im taking it one day at a time, and im going to look into all the places you have said in this message and see if i can get some things figured out! Thank you so much -Chelsea infantile scoliosis treatment From: judypoland5@...Date: Sat, 27 Mar 2010 13:10:44 +0000Subject: Re: Help Chelsea,Welcome to CAST! My name is Judy and we seem to live kinda close to you. We live in Springfield, MO. Anyway, we were seeing Dr.A from Kansas City's Chilren's Hospital for awhile, from the time that ELi was 10 months til we decided to do a cast for his treatment this past Feb.(16 mon). He did offer us the casting option but they did not offer the Mehta casting that we had read about on the internet. We spoke to him after our last apt 2-11 and told him that we would like to be refered to Shriner's in SLC(Salt Lake City) he gave us the two options if we wanted Mehta casting, Rochester, NY or SLC, UT. We did look into casting at SHriner's ST. Louis, becasue the way that Shriner's work is they wanted to send us to the closest hosp to us. But when we explored that, which was AN AWFUL conversation with one of the DRs nurses that we had been assigned to.(Sorry, but it was awful) We found out that they didn't know what I was even talking about when we refered to the casting style Mehta, which in their defense, they might call it something different, I was so new at the time in this I didnt realize what I needed. I was told by my unfriendly nurse that obviously the DR doesn't believe in the Mehta casting or he would be doing it. So, I said thanks, and hung up. But Shriner's just transfered us to SLC the same day. We called and sent Xrays and were accepted pretty much all in the same day. Yeah! But, I will tell you, our Dr. from KS was awesome and he wanted to come with us to find out how to do the Mehta type cast. His group of DRs had ordered a Mehta table to do her casting!! Yippee! And instead of coming with us this month to SLC, Dr. M (herself) is coming down in JUNE and they were looking for kid-o's that wanted to be casted. He called us, but we didnt want to wait until June. I feel like we have lost some time in this, even though our care coordinator in Salt Lake said we are doing good on the timing of everything : ) Yeah, for cheerleaders in my corner!! But anyways, we did a few things, we applied online and we had our specials from KS give us a referral too. Anyway, that might have been overkill but we got in! : ) I know that you don't know much about Shriner's neither do we, but we didn't know much about the other hospitals either that did the casting. Shriner's is FREE, which is so amazing!! And when you apply they give you TONS of info!! So one step at a time, I would get online and apply. You don't even have to wait til Monday. We applied on Friday and got a call Tuesday. That might have been fast, IDK?Get this, there is also a place called Angel Flight that is paying for my husband, me and Eli to fly to Utah!! And then there is our local chapter of Shriner's that is paying for the gas for us to drive to Kansas City so we can fly out from there..This whole process is so overwelming and we are not very much ahead of you on this journey, but girl, I have found this GROUP to be AMAZING!! And I am taking this all one day at a time!! Many Blessing to you and your little one! By the way, she shares her birthday with our oldest child Ben! : ) Good day!I hope this info has helped, im a little late chiming in. Busy day yesterday, we are supposed to be heading out in the morning to get Eli's first cast. : )Judy Poland, mom of Ben, Josh and Eli(39*, diagnoised at 9 months and supposed to be getting our first cast this Tuesday in SLC) > >> > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > Sent from my iPhone> >> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn More. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Judy, Thank you so much for that info. I'm also seeing Dr. "a" if its the same one in ortho! He has seemed very nice through all of this but just kept saying we could wait two months and ten come back to see if aubreys scoliosis has got any better otherwise he wanted to brace. But I do believe im going to call on monday and see if i can get an appointment to talk about putting a cast on her because she does have a very big curve in her back andi think i would be better off putting the cast on where as with the brace i can take it off. We've been trying to get some medical help for aubrey due to that fact we are not rich! I stay at home just because with all these appointments theres no way i could keep a job and have them let me off for everything. But our familes arent exactly supportive in our decision so thats really been the only hard part. Aubrey is holding up like a trooper and thats pretty much what gets me through. She does not like the brace and I do feel bad for putting in on, but I would rather her cry then not be here like the doctor said if we didnt do anything. So as of right now im taking it one day at a time, and im going to look into all the places you have said in this message and see if i can get some things figured out! Thank you so much -Chelsea infantile scoliosis treatment From: judypoland5@...Date: Sat, 27 Mar 2010 13:10:44 +0000Subject: Re: Help Chelsea,Welcome to CAST! My name is Judy and we seem to live kinda close to you. We live in Springfield, MO. Anyway, we were seeing Dr.A from Kansas City's Chilren's Hospital for awhile, from the time that ELi was 10 months til we decided to do a cast for his treatment this past Feb.(16 mon). He did offer us the casting option but they did not offer the Mehta casting that we had read about on the internet. We spoke to him after our last apt 2-11 and told him that we would like to be refered to Shriner's in SLC(Salt Lake City) he gave us the two options if we wanted Mehta casting, Rochester, NY or SLC, UT. We did look into casting at SHriner's ST. Louis, becasue the way that Shriner's work is they wanted to send us to the closest hosp to us. But when we explored that, which was AN AWFUL conversation with one of the DRs nurses that we had been assigned to.(Sorry, but it was awful) We found out that they didn't know what I was even talking about when we refered to the casting style Mehta, which in their defense, they might call it something different, I was so new at the time in this I didnt realize what I needed. I was told by my unfriendly nurse that obviously the DR doesn't believe in the Mehta casting or he would be doing it. So, I said thanks, and hung up. But Shriner's just transfered us to SLC the same day. We called and sent Xrays and were accepted pretty much all in the same day. Yeah! But, I will tell you, our Dr. from KS was awesome and he wanted to come with us to find out how to do the Mehta type cast. His group of DRs had ordered a Mehta table to do her casting!! Yippee! And instead of coming with us this month to SLC, Dr. M (herself) is coming down in JUNE and they were looking for kid-o's that wanted to be casted. He called us, but we didnt want to wait until June. I feel like we have lost some time in this, even though our care coordinator in Salt Lake said we are doing good on the timing of everything : ) Yeah, for cheerleaders in my corner!! But anyways, we did a few things, we applied online and we had our specials from KS give us a referral too. Anyway, that might have been overkill but we got in! : ) I know that you don't know much about Shriner's neither do we, but we didn't know much about the other hospitals either that did the casting. Shriner's is FREE, which is so amazing!! And when you apply they give you TONS of info!! So one step at a time, I would get online and apply. You don't even have to wait til Monday. We applied on Friday and got a call Tuesday. That might have been fast, IDK?Get this, there is also a place called Angel Flight that is paying for my husband, me and Eli to fly to Utah!! And then there is our local chapter of Shriner's that is paying for the gas for us to drive to Kansas City so we can fly out from there..This whole process is so overwelming and we are not very much ahead of you on this journey, but girl, I have found this GROUP to be AMAZING!! And I am taking this all one day at a time!! Many Blessing to you and your little one! By the way, she shares her birthday with our oldest child Ben! : ) Good day!I hope this info has helped, im a little late chiming in. Busy day yesterday, we are supposed to be heading out in the morning to get Eli's first cast. : )Judy Poland, mom of Ben, Josh and Eli(39*, diagnoised at 9 months and supposed to be getting our first cast this Tuesday in SLC) > >> > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > Sent from my iPhone> >> Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn More. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Judy, Thank you so much for that info. I'm also seeing Dr. " a " if its the same one in ortho! He has seemed very nice through all of this but just kept saying we could wait two months and ten come back to see if aubreys scoliosis has got any better otherwise he wanted to brace. But I do believe im going to call on monday and see if i can get an appointment to talk about putting a cast on her because she does have a very big curve in her back andi think i would be better off putting the cast on where as with the brace i can take it off. We've been trying to get some medical help for aubrey due to that fact we are not rich! I stay at home just because with all these appointments theres no way i could keep a job and have them let me off for everything. But our familes arent exactly supportive in our decision so thats really been the only hard part. Aubrey is holding up like a trooper and thats pretty much what gets me through. She does not like the brace and I do feel bad for putting in on, but I would rather her cry then not be here like the doctor said if we didnt do anything. So as of right now im taking it one day at a time, and im going to look into all the places you have said in this message and see if i can get some things figured out! Thank you so much -Chelsea > > > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > > > Sent from my iPhone > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Judy, Thank you so much for that info. I'm also seeing Dr. " a " if its the same one in ortho! He has seemed very nice through all of this but just kept saying we could wait two months and ten come back to see if aubreys scoliosis has got any better otherwise he wanted to brace. But I do believe im going to call on monday and see if i can get an appointment to talk about putting a cast on her because she does have a very big curve in her back andi think i would be better off putting the cast on where as with the brace i can take it off. We've been trying to get some medical help for aubrey due to that fact we are not rich! I stay at home just because with all these appointments theres no way i could keep a job and have them let me off for everything. But our familes arent exactly supportive in our decision so thats really been the only hard part. Aubrey is holding up like a trooper and thats pretty much what gets me through. She does not like the brace and I do feel bad for putting in on, but I would rather her cry then not be here like the doctor said if we didnt do anything. So as of right now im taking it one day at a time, and im going to look into all the places you have said in this message and see if i can get some things figured out! Thank you so much -Chelsea > > > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > > > Sent from my iPhone > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Chelsea, He is a good guy, and I think I actually talked to him the day he saw you . He was telling me about a 10 month old he saw that day in the office with a 50* curve. I told my husband I wished I could have talked to you that day.. Well, I hope that everything goes well. Keep up updated!! judy : ) > > > > > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > > > > > Sent from my iPhone > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Chelsea, He is a good guy, and I think I actually talked to him the day he saw you . He was telling me about a 10 month old he saw that day in the office with a 50* curve. I told my husband I wished I could have talked to you that day.. Well, I hope that everything goes well. Keep up updated!! judy : ) > > > > > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > > > > > Sent from my iPhone > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Judy, I am so sorry your experience with speaking with a nurse at St Louis Shriners was less than perfect. My friend has had Drue casted by Dr. L at St. Louis and had a reverse experience. Dr. L was trained by our Dr. and has embraced the derotational casting process to the guidelines outlined by Dr. Mehta. They use a modified Spica frame the same as is used in Salt Lake City I believe. Drues cast is identical in appearence and cut outs match that of and the results have been wonderful. I would advocate contacting for the doctors contact info directly rather than calling the hospital. I have a personal relationship with the doctors partner who is one of the leading researchers in pediatric scoliosis in the Midwest. They are committed to providing support to Chicago Shriners and work with our doctor frequently. We contacted Dr. S directly rather than go through the hospital initially and were seen and casted like Drue in St. Louis within weeks. I am glad you are at a center you are comfortable with. I can assure the doctor Drue sees is committed to saving kids with casting and wish you would have had a different experience. Hope this info helps to clarify that of the doctor in St. Louis if not the center. is at soccer all day today but will chime in with her personal experience tonight I am sure. Sent from my iPhoneOn Mar 27, 2010, at 8:10 AM, "judypoland5" <judypoland5@...> wrote: Chelsea, Welcome to CAST! My name is Judy and we seem to live kinda close to you. We live in Springfield, MO. Anyway, we were seeing Dr.A from Kansas City's Chilren's Hospital for awhile, from the time that ELi was 10 months til we decided to do a cast for his treatment this past Feb.(16 mon). He did offer us the casting option but they did not offer the Mehta casting that we had read about on the internet. We spoke to him after our last apt 2-11 and told him that we would like to be refered to Shriner's in SLC(Salt Lake City) he gave us the two options if we wanted Mehta casting, Rochester, NY or SLC, UT. We did look into casting at SHriner's ST. Louis, becasue the way that Shriner's work is they wanted to send us to the closest hosp to us. But when we explored that, which was AN AWFUL conversation with one of the DRs nurses that we had been assigned to.(Sorry, but it was awful) We found out that they didn't know what I was even talking about when we refered to the casting style Mehta, which in their defense, they might call it something different, I was so new at the time in this I didnt realize what I needed. I was told by my unfriendly nurse that obviously the DR doesn't believe in the Mehta casting or he would be doing it. So, I said thanks, and hung up. But Shriner's just transfered us to SLC the same day. We called and sent Xrays and were accepted pretty much all in the same day. Yeah! But, I will tell you, our Dr. from KS was awesome and he wanted to come with us to find out how to do the Mehta type cast. His group of DRs had ordered a Mehta table to do her casting!! Yippee! And instead of coming with us this month to SLC, Dr. M (herself) is coming down in JUNE and they were looking for kid-o's that wanted to be casted. He called us, but we didnt want to wait until June. I feel like we have lost some time in this, even though our care coordinator in Salt Lake said we are doing good on the timing of everything : ) Yeah, for cheerleaders in my corner!! But anyways, we did a few things, we applied online and we had our specials from KS give us a referral too. Anyway, that might have been overkill but we got in! : ) I know that you don't know much about Shriner's neither do we, but we didn't know much about the other hospitals either that did the casting. Shriner's is FREE, which is so amazing!! And when you apply they give you TONS of info!! So one step at a time, I would get online and apply. You don't even have to wait til Monday. We applied on Friday and got a call Tuesday. That might have been fast, IDK? Get this, there is also a place called Angel Flight that is paying for my husband, me and Eli to fly to Utah!! And then there is our local chapter of Shriner's that is paying for the gas for us to drive to Kansas City so we can fly out from there.. This whole process is so overwelming and we are not very much ahead of you on this journey, but girl, I have found this GROUP to be AMAZING!! And I am taking this all one day at a time!! Many Blessing to you and your little one! By the way, she shares her birthday with our oldest child Ben! : ) Good day! I hope this info has helped, im a little late chiming in. Busy day yesterday, we are supposed to be heading out in the morning to get Eli's first cast. : ) Judy Poland, mom of Ben, Josh and Eli(39*, diagnoised at 9 months and supposed to be getting our first cast this Tuesday in SLC) > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > Sent from my iPhone > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 27, 2010 Judy, I am so sorry your experience with speaking with a nurse at St Louis Shriners was less than perfect. My friend has had Drue casted by Dr. L at St. Louis and had a reverse experience. Dr. L was trained by our Dr. and has embraced the derotational casting process to the guidelines outlined by Dr. Mehta. They use a modified Spica frame the same as is used in Salt Lake City I believe. Drues cast is identical in appearence and cut outs match that of and the results have been wonderful. I would advocate contacting for the doctors contact info directly rather than calling the hospital. I have a personal relationship with the doctors partner who is one of the leading researchers in pediatric scoliosis in the Midwest. They are committed to providing support to Chicago Shriners and work with our doctor frequently. We contacted Dr. S directly rather than go through the hospital initially and were seen and casted like Drue in St. Louis within weeks. I am glad you are at a center you are comfortable with. I can assure the doctor Drue sees is committed to saving kids with casting and wish you would have had a different experience. Hope this info helps to clarify that of the doctor in St. Louis if not the center. is at soccer all day today but will chime in with her personal experience tonight I am sure. Sent from my iPhoneOn Mar 27, 2010, at 8:10 AM, "judypoland5" <judypoland5@...> wrote: Chelsea, Welcome to CAST! My name is Judy and we seem to live kinda close to you. We live in Springfield, MO. Anyway, we were seeing Dr.A from Kansas City's Chilren's Hospital for awhile, from the time that ELi was 10 months til we decided to do a cast for his treatment this past Feb.(16 mon). He did offer us the casting option but they did not offer the Mehta casting that we had read about on the internet. We spoke to him after our last apt 2-11 and told him that we would like to be refered to Shriner's in SLC(Salt Lake City) he gave us the two options if we wanted Mehta casting, Rochester, NY or SLC, UT. We did look into casting at SHriner's ST. Louis, becasue the way that Shriner's work is they wanted to send us to the closest hosp to us. But when we explored that, which was AN AWFUL conversation with one of the DRs nurses that we had been assigned to.(Sorry, but it was awful) We found out that they didn't know what I was even talking about when we refered to the casting style Mehta, which in their defense, they might call it something different, I was so new at the time in this I didnt realize what I needed. I was told by my unfriendly nurse that obviously the DR doesn't believe in the Mehta casting or he would be doing it. So, I said thanks, and hung up. But Shriner's just transfered us to SLC the same day. We called and sent Xrays and were accepted pretty much all in the same day. Yeah! But, I will tell you, our Dr. from KS was awesome and he wanted to come with us to find out how to do the Mehta type cast. His group of DRs had ordered a Mehta table to do her casting!! Yippee! And instead of coming with us this month to SLC, Dr. M (herself) is coming down in JUNE and they were looking for kid-o's that wanted to be casted. He called us, but we didnt want to wait until June. I feel like we have lost some time in this, even though our care coordinator in Salt Lake said we are doing good on the timing of everything : ) Yeah, for cheerleaders in my corner!! But anyways, we did a few things, we applied online and we had our specials from KS give us a referral too. Anyway, that might have been overkill but we got in! : ) I know that you don't know much about Shriner's neither do we, but we didn't know much about the other hospitals either that did the casting. Shriner's is FREE, which is so amazing!! And when you apply they give you TONS of info!! So one step at a time, I would get online and apply. You don't even have to wait til Monday. We applied on Friday and got a call Tuesday. That might have been fast, IDK? Get this, there is also a place called Angel Flight that is paying for my husband, me and Eli to fly to Utah!! And then there is our local chapter of Shriner's that is paying for the gas for us to drive to Kansas City so we can fly out from there.. This whole process is so overwelming and we are not very much ahead of you on this journey, but girl, I have found this GROUP to be AMAZING!! And I am taking this all one day at a time!! Many Blessing to you and your little one! By the way, she shares her birthday with our oldest child Ben! : ) Good day! I hope this info has helped, im a little late chiming in. Busy day yesterday, we are supposed to be heading out in the morning to get Eli's first cast. : ) Judy Poland, mom of Ben, Josh and Eli(39*, diagnoised at 9 months and supposed to be getting our first cast this Tuesday in SLC) > > > > As a side note, my cousin is a nurse at childrens mercy and they don't currently use derotational casting to my knowledge. St. Louis Shriners, salt lake city or Chicago are your closest options. > > > > Sent from my iPhone > > > Quote Share this post Link to post Share on other sites
