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Dear : Call your local colleges and ask them if they have an advocate

for you. You should also have someone in charge of special ed. for your

district who should be going to meetings with you. My daughter is on a 504

plan. It helped when I delivered some papers to each of her teachers

regarding school and ocd. I will give that to you at the end of this email.

Demand updates at least once a month where you, the teachers, the counselor,

the special ed. district person, and your child attend. This has been helpful

for us. Also weekly I get a progress report so that I know that my child is

cooperating as well. Good luck. Sheree

<A HREF= " http://www.fairlite.com/ocd/articles/school.shtml " >School Personnel:

A Critical Link</A>

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Hi ,

I'm not sure what is available in Ca. but you may want to check under

http://www.schoolwisepress.com/

They have a section on Parent Advocacy and other interesting sections.

Actually I believe there is an ASK AN EXPERT section under the site

contents. Let me know if you still can't find anything. I can phone

my mom in law and get more info from her. She is quite knowledgeable

on school education rights in southern california, san diego in

particular.

Take care and good luck,

Kay D. (AlilNutty)

kdugan@...

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Hi Kay!

Would like to get into contact with your mom-in-law; we live in San Diego

jjmcf@... Jim McFerrin

Thanks

Jim

Re: HELP

>From: Kay <alilnutty@...>

>

>Hi ,

>

>I'm not sure what is available in Ca. but you may want to check under

>

>http://www.schoolwisepress.com/

>

>They have a section on Parent Advocacy and other interesting sections.

> Actually I believe there is an ASK AN EXPERT section under the site

>contents. Let me know if you still can't find anything. I can phone

>my mom in law and get more info from her. She is quite knowledgeable

>on school education rights in southern california, san diego in

>particular.

>

>Take care and good luck,

>Kay D. (AlilNutty)

>kdugan@...

>

>

>

>

>

>

>

>------------------------------------------------------------------------

>Have you visited our new web site?

>

>Onelist: Helping to create Internet communities

>------------------------------------------------------------------------

>The is sponsored by the OCSDA. You may visit their

web site at http://www.ocdhelp.org/ and view schedules for chatroom support

at http://www.ocdhelp.org/chat.html

>

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Hello ,

I had the same trouble. You need to first call the special services department

of

your local school board and ask for the guidlines for 504. Next, you need to

meet

with your school principal and 504 coordinator for the school. It is a Federal

mandate that schools follow the 504 plan that you have completed. The school

system can lose federal funds and get into a lot of trouble for not cooperating.

Keep us posted and let us know what is happening.

wrote:

> From: <mikeinglen@...>

>

> Our son has OCD and slight ADD. We are having trouble with the school.

> They are doing everything to convince us of course that he is fine, and

> have gone so far as to call him a " spoiled child " , who only likes being in

> special classes because he can gloat to the other kids. GIVE me A BREAK!

> He is in speech and adaptive PE but that will go nowhere to pull him out of

> the dive he is in do to the school's refusal to address the issue.

>

> We have a 504 plan that is not being upheld. Now that we are more in the

> know, we tend to notice we are being treated less and less kindly.

>

> We need an Advocate. We need someone to accompany us to the meetings that

> know all the loop holes that the school is trying to shovel on us. Where

> can we find such a person, organization, in the Southern CA area? PLEASE

> HELP! Our boy's Psychiatrist has referred us to one group, but they are

> way too expensive. Because this is a " Mental Disorder " our insurance

> covers very little. ANY ideas?

>

>

>

> ------------------------------------------------------------------------

> New hobbies? New curiosities? New enthusiasms?

>

> Sign up for a new email list today

> ------------------------------------------------------------------------

> The is sponsored by the OCSDA. You may visit their

web site at http://www.ocdhelp.org/ and view schedules for chatroom support at

http://www.ocdhelp.org/chat.html

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Dear List: I subscribe to the OcdL list as well and read the ocdspouse list

too. I need to vent and wondered where the best place would be and decided it

should be here. My desperate feelings are one of a parent so perhaps you guys

may understand. I am so frustrated. I feel I have done all I can do for my

l6 year old daughter. She continues to have little motivation and I just

don't know if its ocd or idc (I don't care). Even the teachers are unsure.

We had her put on a 504 plan and this was several weeks ago. Although it

seems as if its helping, since that time she has cut school, gone late to

classes,and now it seems as if she is developing an eating disorder. I just

don't get it anymore. She was provided with tapes for books, oral testing,

etc.

I am at a loss as to if this is her teenage behavior or her ocd. She

will tell me all work is done but then I get progress reports that say that

homework is missing. Drs. and educators say not to punish her for failing

tests cause it will only exacerbate things. So, instead she is punished for

not telling the truth. I am exhausted mentally.

Last week she fainted from not eating. I thought it to be an isolated

incident but today I got a call from a teacher saying she looked awful and

hadn't eaten. (She told me she had) She also says that she is not hungry.

She takes prozac. I feel like I cannot take another issue to deal with.

She sees a therapist and is given cbt to do but usually won't do it at

home as she is supposed to. I don't know whether to see another psychiatrist,

another psychologist, a cardiologist (I forgot to mention she had a racing

heart the week before and was tested) I feel so sad and angry. Sorry for

rambling on and on but I just needed to talk. Sheree

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Sheree,

It sounds to me a combination of teenage years and OCD. Teen years are hard

for a " normal " child. Combine that with OCD and you have double misery. I have

a fifteen year old daughter that does not have OCD, but she has had depression

for several years. She has been on zoloft for 3 years and has also been

through 3 years of counceling. She has torn our hearts out many times.

If you haven't already, I'd find a Psychiatrist who speciializes in adolescence.

My son who has OCD was doing the same things that your daughter is doing.

He would tell me that his assignments were complete and then I would get an

awful progress report because assignments weren't turned in. I later discovered

that because of the OCD he was totally dysfunctional at school. By noon each

day, he was having anxiety attacks. He refused to even go to the bathroom at

school. He was starving himself so he wouldn't have to go. He is obssesed with

germs, and contamination; the bathrooms at school were filthy anyway; but to

avoid having to go into the bathroom, he conditioned himself so he wouldn't have

to go.

I know it's tough, but hang in there. You can vent here anytime. My heart goes

out to you. Please continue to post I want to hear from you.

SSacks9021@... wrote:

> From: SSacks9021@...

>

> Dear List: I subscribe to the OcdL list as well and read the ocdspouse list

> too. I need to vent and wondered where the best place would be and decided it

> should be here. My desperate feelings are one of a parent so perhaps you guys

> may understand. I am so frustrated. I feel I have done all I can do for my

> l6 year old daughter. She continues to have little motivation and I just

> don't know if its ocd or idc (I don't care). Even the teachers are unsure.

> We had her put on a 504 plan and this was several weeks ago. Although it

> seems as if its helping, since that time she has cut school, gone late to

> classes,and now it seems as if she is developing an eating disorder. I just

> don't get it anymore. She was provided with tapes for books, oral testing,

> etc.

>

> I am at a loss as to if this is her teenage behavior or her ocd. She

> will tell me all work is done but then I get progress reports that say that

> homework is missing. Drs. and educators say not to punish her for failing

> tests cause it will only exacerbate things. So, instead she is punished for

> not telling the truth. I am exhausted mentally.

>

> Last week she fainted from not eating. I thought it to be an isolated

> incident but today I got a call from a teacher saying she looked awful and

> hadn't eaten. (She told me she had) She also says that she is not hungry.

> She takes prozac. I feel like I cannot take another issue to deal with.

>

> She sees a therapist and is given cbt to do but usually won't do it at

> home as she is supposed to. I don't know whether to see another psychiatrist,

> another psychologist, a cardiologist (I forgot to mention she had a racing

> heart the week before and was tested) I feel so sad and angry. Sorry for

> rambling on and on but I just needed to talk. Sheree

>

> ------------------------------------------------------------------------

> New hobbies? New curiosities? New enthusiasms?

>

> Sign up for a new email list today

> ------------------------------------------------------------------------

> The is sponsored by the OCSDA. You may visit their

web site at http://www.ocdhelp.org/ and view schedules for chatroom support at

http://www.ocdhelp.org/chat.html

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I know how you feel; my 17 year old daughter has had so many ups and

downs, some attributable to OCD and some to being a teenager. When I

feel overwhelmed I step back, take a deep breath, and emotionally

distance myself from the chaos for a few days - no correcting, no

criticizing, no praising - I just give myself a break from it all, and I

think my daughter gets as much from it as I do. Hang in there.

Re: HELP

From: SSacks9021@...

Dear List: I subscribe to the OcdL list as well and read the ocdspouse

list

too. I need to vent and wondered where the best place would be and

decided it

should be here. My desperate feelings are one of a parent so perhaps

you guys

may understand. I am so frustrated. I feel I have done all I can do

for my

l6 year old daughter. She continues to have little motivation and I

just

don't know if its ocd or idc (I don't care). Even the teachers are

unsure.

We had her put on a 504 plan and this was several weeks ago. Although

it

seems as if its helping, since that time she has cut school, gone late

to

classes,and now it seems as if she is developing an eating disorder. I

just

don't get it anymore. She was provided with tapes for books, oral

testing,

etc.

I am at a loss as to if this is her teenage behavior or her ocd.

She

will tell me all work is done but then I get progress reports that say

that

homework is missing. Drs. and educators say not to punish her for

failing

tests cause it will only exacerbate things. So, instead she is punished

for

not telling the truth. I am exhausted mentally.

Last week she fainted from not eating. I thought it to be an

isolated

incident but today I got a call from a teacher saying she looked awful

and

hadn't eaten. (She told me she had) She also says that she is not

hungry.

She takes prozac. I feel like I cannot take another issue to deal with.

She sees a therapist and is given cbt to do but usually won't do it

at

home as she is supposed to. I don't know whether to see another

psychiatrist,

another psychologist, a cardiologist (I forgot to mention she had a

racing

heart the week before and was tested) I feel so sad and angry. Sorry

for

rambling on and on but I just needed to talk. Sheree

------------------------------------------------------------------------

New hobbies? New curiosities? New enthusiasms?

Sign up for a new email list today

------------------------------------------------------------------------

The is sponsored by the OCSDA. You may visit

their web site at http://www.ocdhelp.org/ and view schedules for

chatroom support at http://www.ocdhelp.org/chat.html

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Hello Sheree,

Your story and frustrations are all too similar.

> From: SSacks9021@...

>

> Dear List: I subscribe to the OcdL list as well and read the ocdspouse list

> too. I need to vent and wondered where the best place would be and decided it

> should be here. My desperate feelings are one of a parent so perhaps you guys

> may understand. I am so frustrated. I feel I have done all I can do for my

> l6 year old daughter.

We find ourselves giving and giving in to our children, OCD or not. Just last

night things blew up because our daughter believes she must have her hair cut

and bleached to satisfy her latest

'compulsion/obsession' (we don't know what to think anymore). Do we give into

this latest thing because it's part of her OCD or do we treat her as a teen (14)

and say she can't because she

neglects her schooling! Her education is falling apart.

> She continues to have little motivation and I just

> don't know if its ocd or idc (I don't care). Even the teachers are unsure.

> We had her put on a 504 plan and this was several weeks ago.

Here it's called an IPRC and we are set to have one next month. The school is

doing this on our request so she has an educational plan in place for next year.

She is not in school now. When

my daughter is faced with conversation about school, or her edu. choices of what

will work for her she gets into a 'state'. She has a homeschool instructor come

in for 2 hours, twice a week.

The teacher finds our daughter to be very bright, but he finds her poor

motivation puzzling.

> Although it

> seems as if its helping, since that time she has cut school, gone late to

> classes,and now it seems as if she is developing an eating disorder. I just

> don't get it anymore. She was provided with tapes for books, oral testing,

> etc.

There may be more stress factors affecting your daughter than she is willing to

tell. Our daughter tried for years to 'contain' herself in the classroom. As she

got into the higher grades she

avoided school, was late all the time, couldn't concentrate, and was afraid

everyone would see her accelerated OCD symptoms. She exploded. Her OCD peaked to

a very severe level. Also, the

eating disorder may be just part of the ups and downs of OCD. Our daughter when

she stabilized at home without the school stresses she went though almost three

months of barely eating. We

believe it was a contamination issue but we are not sure. Now she eats. Why the

sudden change, I don't know.

> I am at a loss as to if this is her teenage behavior or her ocd. She

> will tell me all work is done but then I get progress reports that say that

> homework is missing. Drs. and educators say not to punish her for failing

> tests cause it will only exacerbate things. So, instead she is punished for

> not telling the truth. I am exhausted mentally.

We are there too. The work she gets from the home instructor is minimal but we

feel we are pestering her all the time. She rushes to do her work 5 minutes

before the teacher shows up. And if

it's not done? How do you punish this? Can it be the OCD or some other

behavioral problem associated with OCD? ADD?

> Last week she fainted from not eating. I thought it to be an isolated

> incident but today I got a call from a teacher saying she looked awful and

> hadn't eaten. (She told me she had) She also says that she is not hungry.

> She takes prozac. I feel like I cannot take another issue to deal with.

We have been trying to get our daughter back on medication for quite a while. We

feel she will not be prepared to enter school in Sept. if she doesn't. She is

starting to feel the stresses of

this because she will soon need to pick her classes. Also our education system

here has been overhauled. The changes are scary for her. But her OCD attitude

kicks in and now she is starting

to say things she hasn't said in a while. She asks to be killed. So again her

OCD is playing havoc on our family again.

> She sees a therapist and is given cbt to do but usually won't do it at

> home as she is supposed to. I don't know whether to see another psychiatrist,

> another psychologist, a cardiologist (I forgot to mention she had a racing

> heart the week before and was tested) I feel so sad and angry. Sorry for

> rambling on and on but I just needed to talk. Sheree

Our daughter goes to a very good therapist twice a month. She stubbornly won't

give in. She protects the OCD. No CBT and no meds.

The only advice I can give (although I don't feel I'm successfully qualified in

our own situation) first is to educate your daughter by giving her information

on her disorder but without you

teaching it. Second is to live your own life the best you can. Give first to

yourself and then to everyone else you care for.

My hope is that all children who live with OCD can find there way in life.

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Dear List: Just want to thank everyone who replied to my letter. The

outpouring of sympathy was greatly needed and appreciated. I am so

disheartened right now. I feel guilty for my thoughts. I wish my child was

" normal " . I believe it has to be easier to have a child with diabetes or an

illness where at least you know how to help. I have tried so much and it just

doesn't get better. I actually think my involvement has made things worse in

a way. Its almost as if she is using it to manipulate me and the school.

What I hear of in school is not what I see in the home. I see a regular

teenager who talks on the phone, and is very social, and lives for the next

weekend. At school, I am told, is a depressed or sickly or delinquent child

(depending on the day). Sorry for my " down " letter. I do appreciate all of

you parents out there and I know I am not alone. Sheree

P.S. I think one of the best pieces of advice I received was to distance

myself for a little bit. I'll try real hard if I can.

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Dear List: I know I have written alot in the past few days about my dilemmas.

I wonder if anyone out there has had experience with a child with anorexia.

It seems suddenly that this may be a problem my daughter is also having. At

first it seemed only to be at school but now I'm not sure. The ocd was one

thing and I've spent alot of time understanding it, but this seems even more

hopeless to me. I always felt that although ocd was a terrible disease at

least you could learn to cope with it. This anorexia things seems like it

could be physically damaging and irreversible. Can anyone make me feel that

this is not so? Can this be helped just like ocd? Sheree

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Dear Sheree,

I am sorry to read that you think your daughter may have an eating

disorder.

I know that you will be mentioning this to your daughter's doctors.

I read your post on the OCD-L and I am sure that the OCD-L doctors will

respond soon. Please know that all of us are thinking of you and

your daughter.

Take care.

Louis

ocdnet@...

/subscribe/ and

/subscribe/ocdandhomeschooling

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Sheree,

My prayers are with you. I don't know much about anorexia, and I 'm

just

winging it most the time with OCD. I hope you can find some answers soon.

Take care,

Serena

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Me too . . I'm back.

Hi Dale,

Is the offer still on? No hurry, still have one month supply.

Tom,

I just got a case of Renewtrient, so if you need a bottle or two let me

know. Also send me a private email and we might be able to help you.

Dale

> Help

>

> Hi All,

>

> Back from vacation and had great time, but returned home to find results

> of

>

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Welcome back Dale.

Concerning your PSA, I wouldn't worry too much about it yet as 1.6 is still

well within the healthy range (as I understand it anything under 4 is

normal) and I suspect there are a lot of random factors and natural

variation in PSA test results.

Even so, if I were you and being the cautious person that I am, I

would not start any kind of of testosterone replacement therapy until

after a second PSA test, which I would take in about 3 months along

with digital rectal exam. I would want to know if my PSA was trending

sharply higher.

-gts

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Dale,

Total testosterone should be somewhere between 1000 and 300 ng/dl, so is the

20 ng/dl a typo!?

If a testosterone delivery method is used in the future, make sure that you

retest (E/T ratio) for the excess conversion (via aromatase) of testosterone

into estrogen.

A 69 year old friend had the testosterone level of a ninety-year old woman

and used testo patches with some success.

*****You should, by all means, *study* the new LEF testosterone protocol!!

It includes a step-by-step approach to therapy and should serve as a guide

for you and your doctor.*****

Good luck,

-Bill

___________________________________________________________________

>From: " Dale R. Hersh " <drh@...>

>Reply-longevityegroups

>longevityegroups

>Subject: Help

>Date: Mon, 03 Jan 2000 09:39:48 -0500

>

>

>Hi All,

>

>Back from vacation and had great time, but returned home to find results

>of

>blood test and I find some of it very alarming and ask for help from the

>

>community.

>

>The first item that caught my eye was my PSA level. I had a PSA test at

>my last

>physical on 8/5/99 and it was .6. I considered this good for a 48 year

>old man

>It has held around .5-.6 for the last several years. Now it shows

>1.6ng/ml.

>I would like some input on this. It has nearly tripled in just a few

>months.

>Can that be?

>

>Second, I was going to start testosterone replacement which prompted the

>new

>blood work and my Total T came back at less than 20ng/dl about one-tenth

>the

>normal range. Free T. 12.2; progesterone .8 and estradiol 28.6. It's

>pretty

>bad when Estradiol exceed T. Only other item out of normal range was

>lymph

>at 53 with normal range 14-46. The funny thing is I feel fairly strong,

>

>considering these numbers.

>

>I have tried to think of what I have been doing differently and can't

>come up

>with much to account for the rise in PSA or low t., I have been using

>Renewtrient about two to three times a week and also some of the

>aminos, like Glutamine, AGPL and a few others. Also have started using

>Colostrum in my water during workouts. It has helped keep my energy

>level up.

>

>As I mentioned I was going to start T replacement therapy, first using

>4-diol,

>and see what happens, but I am very concerned about the PSA jump and

>especially

>with total T. so low.

>

>I would greatly appreciate advice on the above. It's going to be a

>while

>before I can get in to see my MD, and would like to go in their

>prepared,

>since he is not up on a lot of this.

>

>Thanks in advance and hope everyone has a great new year.

>

>Dale R. Hersh

>

>

>------------------------------------------------------------------------

>-----------------------

>

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Dale,

Bill wrote:

> *****You should, by all means, *study* the new LEF testosterone protocol!!

> It includes a step-by-step approach to therapy and should serve as a guide

> for you and your doctor.*****

I agree with Bill. That is a very informative article.

It is a shame that you don't have recourse to the advice of your doctor at a

time like this. I'm happy to tell you what I think, as is Bill and Ellis,

but I think all of us would have to agree that advice about a jump in PSA is

really something that should be deferred to someone who has credentials (and

malpractice insurance).

-gts

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Bill,

Thanks and the article is what prompted me to get my levels tested.

I have several copies of the article that I am now studying in detail.

How many of the males out there have a history of their PSA test, before

and after replacement therapy of any kind. I sure would like to know

of your changes over time.

I went to the LEF retail store here in Ft. Lauderdale, where I work

with a very knowledgeable person ( Prater) who gave me Chrysin to take

to help boost T and stop conversion to estradiols.

Thanks to all for responding and I will be retested in about another

month and will let you know.

Dale

gts wrote:

Dale,

Bill wrote:

> *****You should, by all means, *study* the new LEF testosterone protocol!!

> It includes a step-by-step approach to therapy and should serve as

a guide

> for you and your doctor.*****

I agree with Bill. That is a very informative article.

It is a shame that you don't have recourse to the advice of your doctor

at a

time like this. I'm happy to tell you what I think, as is Bill and

Ellis,

but I think all of us would have to agree that advice about a jump

in PSA is

really something that should be deferred to someone who has credentials

(and

malpractice insurance).

-gts

------------------------------------------------------------------------

-----------------------

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, My heart goes out to you.I don't know to much about ADD ,is that what

makes his behavior out of control? I would first find out why he's so

angry. I'm sure and Kathy H. will be able to help you .But I want you

to know I'll be praying for your family. Beth in IN.

help

> From: lisas@...

>

> i am hoping this gets posted. my son is now 14. he has ocd and add. we

have been to different docs. just now found a good therapist

> for the past 1yr he has been taking 40mg prozac and 5mg ritalin. i took

him off

> because he was always dizzy. hes been worse since then. a week ago doc

says if he could control behavoir

> in a week he wouldnt have to take meds again. well today is a week, and

its still awful. he kicks holes in walls and grabs me.

> so this mourning i said to take meds, he wont do it. how do u make him

take them

> his father his an hr away, and is against the meds. i have 3 yr and he has

a step father. does anyone have

> any support for this mother that is loosing her mind. i hope this gets

posted. thanks lisa in indina

>

> ---------------------------

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Hi ,

My son is only 12 and he is very compliant about taking his medications. He

knows his behavior gets out of controll sometimes and he knows his medicines

really help him keep it together. Fortunately I have not been in your

situation.

I can tell you what I have heard some other parents say. At age 14 I don't

think you can leagally make your son take his medications. (shhhh, don't

tell my son!) But you can hold him accaountable for his actions. Make it

clear to him that there will be strong consequences for any misbehavior.

Tell him that if he kicks a hole in the wall he will pay to have it repaired.

Also if his medications are making him dizzy, maybe he should try a different

medication. I have heard adults wsimilar complaints about Prozac. There are

other SSRIs and other Stimulant medications.

I'm wondering if this is a rebellion thing for your son.

My son is diagnosed Opposistional Defiant Disorder. What that means is if I

need to make him do something it will usually work better if I help him think

he wants to do it too.

Patti in CA

<< i am hoping this gets posted. my son is now 14. he has ocd and add. we

have been to different docs. just now found a good therapist

for the past 1yr he has been taking 40mg prozac and 5mg ritalin. i took him

off

because he was always dizzy. hes been worse since then. a week ago doc says

if he could control behavoir

in a week he wouldnt have to take meds again. well today is a week, and its

still awful. he kicks holes in walls and grabs me.

so this mourning i said to take meds, he wont do it. how do u make him take

them

his father his an hr away, and is against the meds. i have 3 yr and he has a

step father. does anyone have

any support for this mother that is loosing her mind. i hope this gets

posted. thanks lisa in indina >>

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Kara,

Never heard of that before. I just did it to Seth and it's weird! On his

left foot the toes go down and his right foot they go up! Can you explain

again what causes it and what it does to you? Is that why Seth gets his neck

x-rayed for space in the vertebrae?

Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to

Errick(4) and wife to (my hero)

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We all know why SOME dr. go intop the fields they go into - because basically

they hate people who are not inert!

Babinski - negative on my son. I thought this was a sign of neuro damage - not

genetic defect like DS. One of the things we were told to watch for was a

positive Babinski - IF the AAI ever becomes an issue .

Think you are on the right track. aAre there no decent, compassionate,

knowledgeable doc in Indiana? You and your DH will be much in demand.

Sara

>>> kawetzel@... - 03/15/0 10:52 PM >>>

From: kawetzel@...

For anyone interested in doing me a HUGE favor and advancing the medical

knowledge of DS in less than 1 minute, read on.

I need to find out if a " Babinski reflex " is something seen in kids with

DS. It is suppossed to be there at birth, but disappear at age one unless

there is some damage to the brain or spinal cord. Jen has been limping

since last week and has seen many docs who give us the run around. Friday

they found she had a Babinski sign, but were unsure if that was ok in DS (I

don't think it is, but couldn't find anything in the literature.) I think

she has what is termed AAI (too much space between the top 2 vertebra which

is common in DS, usually no symptoms but CAN be fatal or can cause symptoms

like 's).

Here is what you do. Take your child's bare foot and hold it with one

hand. Take the blunt end of a pen or even your finger and apply moderate

pressure on the bottom of the foot starting at the heel and moving up to

the little toe in one motion. Did the toes fan out and the big toe goe

towards their head? That is the babinski sign. If the toes go toward the

heel, they do not have a Babinski.

I would appreciate getting a handful of answers so that I can relax or get

really worried. None of the docs know. However, one neurologist told me

" you know, their brains aren't right to begin with " . Thanks Mr Sensitive

for that key piece of information.

Thanks so much.

Kara

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Kara,

I will help with this, but Matt is sleeping now, and we all know the 11th

commandment " Thou shalt not wake a sleeping child " , so I will do it

tomorrow morning and post results.

Maybe that doc's mom didnt' follow this 11th commandment and therefore

he " Isn't right in the brain " . He must have failed " illegible

handwriting 101 " and so took " How to be an insensitive, STUPID, boob 102 "

to make up for it.

Good thing you will be able to make up for these kinds of comments soon.

S

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has a babinsky response, at almost 10 years old. I had never heard it

wasn't normal for DS kids to have one.

Loriann

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Kara,

Did they do just one x-ray? They should do a flex, extension and neutral and

they should be read by a pediatric ophthalmologist as I understand it. keep

us informed Kara. This is very interesting I think.

Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to

Errick(4) and wife to (my hero)

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OK Kara I tried this on . Used her right foot and got a babinski

reflex! the first time. Then I tried her left foot ~ nothing. Went back

to her right foot ~ nothing. Well, we all know is a wee bit odd:))

Sherry

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