Help

[Guest guest]

Thanks for checking. Yes, a babinski is a sign of neuro damage, but most

docs are so freaked with a kid like Jen (because they are scared to say

they do not know) that they fill in the gaps. I am very worried about AAI.

Her 3 y/o xray was positive for AAI, but the next year was negative, but

they are very unreliable for AAI.

There are nice docs, but they seem to be less knowledgeable and less

willing to order the big tests.

Kara

At 11:12 PM 3/15/2000 -0500, you wrote:

>From: MIDVALE <Midvale@...>

>

>We all know why SOME dr. go intop the fields they go into - because

basically they hate people who are not inert!

>

>Babinski - negative on my son. I thought this was a sign of neuro damage

- not genetic defect like DS. One of the things we were told to watch for

was a positive Babinski - IF the AAI ever becomes an issue .

>

>Think you are on the right track. aAre there no decent, compassionate,

knowledgeable doc in Indiana? You and your DH will be much in demand.

>

>Sara

>

>>>> kawetzel@... - 03/15/0 10:52 PM >>>

>From: kawetzel@...

>

>For anyone interested in doing me a HUGE favor and advancing the medical

>knowledge of DS in less than 1 minute, read on.

>

>I need to find out if a " Babinski reflex " is something seen in kids with

>DS. It is suppossed to be there at birth, but disappear at age one unless

>there is some damage to the brain or spinal cord. Jen has been limping

>since last week and has seen many docs who give us the run around. Friday

>they found she had a Babinski sign, but were unsure if that was ok in DS (I

>don't think it is, but couldn't find anything in the literature.) I think

>she has what is termed AAI (too much space between the top 2 vertebra which

>is common in DS, usually no symptoms but CAN be fatal or can cause symptoms

>like 's).

>

>Here is what you do. Take your child's bare foot and hold it with one

>hand. Take the blunt end of a pen or even your finger and apply moderate

>pressure on the bottom of the foot starting at the heel and moving up to

>the little toe in one motion. Did the toes fan out and the big toe goe

>towards their head? That is the babinski sign. If the toes go toward the

>heel, they do not have a Babinski.

>

>I would appreciate getting a handful of answers so that I can relax or get

>really worried. None of the docs know. However, one neurologist told me

> " you know, their brains aren't right to begin with " . Thanks Mr Sensitive

>for that key piece of information.

>

>Thanks so much.

>

>Kara

>

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[Guest guest]

Unilateral is strange. Yes, that is why they do the neck xrays. To check

for AAI. AAI is normally not serious in the 15% of kids with DS, but if

they are symptomatic, it means pressure could be on the spinal cord. That

area of the neck is where superman broke his neck; serious stuff.

One sided may mean something is going on on one side of his neck, but are

there other symptoms? Dr Leictman told me yesterday a babinski alone

doesn't mean much.

Kara

At 11:37 PM 3/15/2000 EST, you wrote:

>From: smilinggail@...

>

>Kara,

>Never heard of that before. I just did it to Seth and it's weird! On his

>left foot the toes go down and his right foot they go up! Can you explain

>again what causes it and what it does to you? Is that why Seth gets his

neck

>x-rayed for space in the vertebrae?

>

>Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to

>Errick(4) and wife to (my hero)

>

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[Guest guest]

Matt's babinski is negative. Didnt' even splay out his toes. He seems to

be wired backward, tho. He is tickelish on his back much more than on his

tummy, and he enjoys having the palms of his hands and the soles of his

feet deeply rubbed.

S

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[Guest guest]

Kara,

We've tried this on both of Tanner's feet.....one has Babinski and one

doesn't! So what does that mean????

Jill

[Guest guest]

I didn't get much of any response on either of 's feet, although the

big toe did curl in on the right one on a second try. was x-rayed

last year for AAI, in fact twice, because the first x-rays indicated a

possibility of AAI, but the second more detailed set showed he didn't have

it (may have just moved during the x-ray).

Carole

Re: help

> From: gldcst@...

>

> OK Kara I tried this on . Used her right foot and got a babinski

> reflex! the first time. Then I tried her left foot ~ nothing. Went back

> to her right foot ~ nothing. Well, we all know is a wee bit odd:))

> Sherry

>

>

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[Guest guest]

Kara,

i went through and checked all the kids this morning. -yes, JJ -no,

Tim-no, Essie-yes, Sam would not let anyone touch is feet!

Interesting enough and Essie have a 3mm(?) seperation. JJ and Tim

have none. Dr. Leightman said it is " within normal limits " if it is less

than 5.

& Garry, parents of (9), (8), JJ (6), (5), and

Esther (3). All adopted & with Down Syndrome.

[Guest guest]

hehe nancy, i can just see you trying to get at five kids feet..heheh leah

[Guest guest]

Easy boy! Don't get upset!

PLANNING your meals helps set you up for success. When you've been

faithfully planning in advance for a while, you can eventually stop writing

it all down. When I tried to stop writing everything down too soon, I

stopped eating RIGHT. I realized that I needed to write it down to help

remember and analyze what I ate and when. Eventually you can do it without

writing it down.

As for training MORE than what the program suggests, I tried that too. It

leads to burnout very quickly and it is not necessary. Have you listened to

bills audio tapes? Overtraining can actually be harmful. I am not great YET

at explaining the science behind why, being only 8 1/2 weeks into my first

challenge so maybe some of our seasoned experts can help us out on that.

As for Cardio on weight training days, I think the best results will come

from doing the cardio. first thing in the a.m. after an overnight fast and

don't eat for an hour afterwards to take advantage of the afterburn. You

burn up to 30% more FAT that way. If you have to do your weights the same

day, I am of the opinion that you need to get some protein in your body

first.

OK group. This is my first effort at trying to answer questions for those

who are newer to the program than me. How did I do? Please feel free to

make any corrections!

[Guest guest]

Hi Jami, No I don't think there is any initiation....you just have to throw

yourself in. This is my answer to your questions.

Q. Is it ok to do cardio on weight-training days?

A. No.

Q. Is it ok to do more than 20 minutes?

A. No.

Q. Do you really have to write out every day what you're going to eat the

next day?

A. Yes.

OK I have answered your questions very briefly and based upon the info

supplied in Bill 's book. However you should know that these answers

are only applicable if you want to follow the BFL lifestyle and you want to

achieve success in a Challenge. You can actually do whatever you choose -

you can modify the program in any way that you desire to suit your lifestyle,

but then you have to accept the results of your own plan. BFL is thoroughly

researched and proven to work if you stick to it. Years of trial and error

have been condensed into this program so the risk is taken out of it. I

think everyone on the program makes their own modifications to suit their own

particular body, but it's best to stick within the basic guidelines until you

can 'read' your body. For instance, I no longer write out what I will eat

tomorrow - but I can tell a balanced meal from 20 paces. Others modify their

exercise plan once they get into the fine tuning stage but I think you'll

find most of us pretty much stick to the plan as outlined in the book. Sorry

you didn't get answers sooner and hopefully you will get some more since

obviously this is just my opinion. Good luck, Leaner.

[Guest guest]

Hi Gloe, Yeh I know you've been at this for almost 24 weeks straight now

haven't you? Why do you think your second time wasn't what you were hoping

for? Maybe you need to give yourself a break for a week after this

challenge. What do you think? BTW Gloe, do you know when the final date for

Round 3 admission is? And what are you up to now that you have decided not

to continue with law? Questions questions...but don't feel you have to

answer...it's not like your in the witness box LOL. Leaner.

[Guest guest]

Excellent - keep it up!! Leaner.

[Guest guest]

Well good luck in whatever you choose Gloe. You have invited so many people

into this group which has not only helped us individually but collectively

too. Thanks a lot... Leaner.

[Guest guest]

Ok, here are some clues.

20 minutes of cardio is best at the intensity level Bill recommends in his

book. If you want to do more, fine, but lower the intensity. By doing more

than 20 minutes of cardio at the rate Bill suggests, you will stop burning

fat and begin burning muscle. Here is why. If you do your cardio on an

empty stomach, usually first thing in the morning works best, your

carbohydrate stores are depleted or very low. Doing high intensity cardio

while your body is in this state forces it to use fat stores for energy.

After 20 to 40 minutes of cardio your body will think it will have to go on

like this forever and will store fat again and begin to burn muscle instead.

As for weight training more than recommended, your body uses up its

glycogen stores within 40 to 50 minutes of intense weight training and will

begin to burn the muscle for energy at that point.

As for writing everything down, it helps you to see what you are REALLY

putting in your mouth. Everything that goes into your body has an effect.

EVERYTHING! Now most of us have lives that include other things beside just

eating and we tend to not put as much attention into how much or what we are

eating at certain times of the day. By keeping a log you can see what foods

help you to gain muscle and lose fat and what foods do not. And like was

said before, once you get the hang of it you won't need to do that. But it

sure helps if you want results. Good Luck.

~Laury

[Guest guest]

Hi Jodi

Sometimes I felt like I was getting ignored but then I realized that this group reads and sends tons of e-mails sometimes and it's not easy to get a response to everything. I did the BFL thing EXACTLY, but without the supplements for four weeks and I did GREAT! I lost 10 inches from all over, no clue as to bodyfat or muscle, but I looked really good. My waist was getting smaller and I could see definition all over my legs and arms. Then I decided to goof off (I have no idea why, I'm taking a class with a really interesting professor and he says sometimes you're afraid to succeed and maybe that threw me off) and I gaied a bunch of weight. My friend and I decided to begin the program again and this week I only did cardio except for today, when I did a great upper body workout. Next week I plan to write everything down again, get my six meals, and maybe add some cardio after work on days that I don't have evening classes. Hope this helps!

[Guest guest]

Thank you, thank you thank, you!

Great responses. I see, so I just have to get a little assertive with

you guys! Just kidding. Sorry, that's the Scorpio in me coming out.

Anyway, I really appreciate it. Especially that link you sent, Kit.

Great site.

Another question...when using a bar as a meal replacement (and not a

BAR, as in beer!), can it be one of those high protein, low carb bars,

or should I stick to a more even balance?

an aside: i met a friend tonight for sushi, and she said i looked like

i'd lost weight. i hadn't even told her yet that i'm doing this

program. and it's only been 1 1/2 weeks. that felt good!

Have a good weekend.

Jami <----female, btw

[Guest guest]

In a message dated 04/15/2000 6:33:17 PM Eastern Daylight Time,

Honeybear3899@... writes:

<< I can't Tae Bo cuz it would be too hard on m

knee...anyone have any suggestions? >>

Tae-Bo sitting down?

you can still punch and lift your good knee

I believe Tae-Bo Gold has sitting instructions

You can also do upper body weights every other day

(and suck in those abs!!!)

Barb

who hopes 's knee heals quickly

[Guest guest]

If you can walk, you should be fine. Walking isn't Taebo but it is one of

the best exercises around. I love a good speedwalk outside. It is very

invigorating and being outside is great. Walking also gives you time to

relax your mind. I get some of my best thinking done when I am walking. Get

some good shoes and go for it.

---who tries to walk 5 miles at least 2 times a week

[Guest guest]

Honeybear3899@... wrote:

>

> I need help. I hurt my knee and cannot run for a month. I can't do anything

> but walk and maybe swim. I am still having a horrible time losing weight,

> and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m

> knee...anyone have any suggestions? I also got back into poor eating habits,

> which I am trying my hardest to change again, but it is reall hard...any

> advice would be great!!! Thanks!

>

> , I'm so sorry. You didn't need this on top of everything else. If I

were to hurt my knee and had access to a pool, I would definitely start swimming

regularly, using the kickboard, and maybe even do aqua aerobics. All of those

things are low impact and should help strengthen your knee. Do you have a pool

available at the base?

Elena

[Guest guest]

> I need help. I hurt my knee and cannot run for a month. I can't do

anything

> but walk and maybe swim. I am still having a horrible time losing weight,

> and have gained a few pounds. I can't Tae Bo cuz it would be too hard on

m

> knee...anyone have any suggestions? I also got back into poor eating

habits,

> which I am trying my hardest to change again, but it is reall hard...any

> advice would be great!!! Thanks!

,

I'm so sorry to hear about your knee! Walking is great exercise....you can

definitely continue losing weight by walking. Swimming is great, too...it

is a great overall workout. Either one of those is a great way to stay in

shape. You have been under extreme stress these past few weeks....try to be

a little easy on yourself. You can get back on track. Don't beat yourself

up over some bad food choices. Just make a real effort to get yourself back

on track. You'll feel much better when you are taking care of yourself!

You are in my thoughts and I hope you are doing ok. Take it one day at a

time. Let go of what you didn't do yesterday and focus on what you CAN do

today

[Guest guest]

> Tae-Bo sitting down?

> you can still punch and lift your good knee

> I believe Tae-Bo Gold has sitting instructions

> You can also do upper body weights every other day

> (and suck in those abs!!!)

,

that is a great idea! You can still get a really great workout just from

doing all the punches and stuff while sitting down. Even if you just step

side to side instead of doing any of the kicking....substitute upper body

stuff. If it hurts to even stand up...do it sitting down in a chair!

whose biggest fear is that she will get injured and not be able to tae-bo

[Guest guest]

,

I suggest you do upper body work from TaeBo and swim to work your

legs. Take it a day at a time.

I'm sorry your going thru this.

Hugs,

F ;-)

> I need help. I hurt my knee and cannot run for a month. I can't

do anything

> but walk and maybe swim. I am still having a horrible time losing

weight,

> and have gained a few pounds. I can't Tae Bo cuz it would be too

hard on m

> knee...anyone have any suggestions? I also got back into poor

eating habits,

> which I am trying my hardest to change again, but it is reall

hard...any

> advice would be great!!! Thanks!

>

>

[Guest guest]

> >

> > I need help. I hurt my knee and cannot run for a month. I can't

do anything

> > but walk and maybe swim. I am still having a horrible time

losing

weight,

> > and have gained a few pounds. I can't Tae Bo cuz it would be too

hard on m

> > knee...anyone have any suggestions? I also got back into poor

eating habits,

> > which I am trying my hardest to change again, but it is reall

hard...any

> > advice would be great!!! Thanks!

> >

!

Hi!

What about Pilates--I have Only Tried this The Once,And the Pace

Bored

me!{not a GREAT Advert Am I? } But! It would carry on Developing

your muscles-espescially the deep Ones!

Just a Thought

Hope you Feel Better and Mend your knee very soon,

Janet

[Guest guest]

I have a Pilates machine and I love it. It is not a good cardiovascular

workout, but it really does help you tone-up. I would try this with walking.

[Guest guest]

In a message dated 4/15/00 1:22:02 PM Hawaiian Standard Time,

etcarroll@... writes:

<< Do you have a pool available at the base?

Elena

>>

Actually I have a pool at my apartment complex, though it is not heated, it

will do!!

[Guest guest]

n a message dated 4/15/00 5:33:14 PM Central Daylight Time,

Honeybear3899@... writes:

<< I need help. I hurt my knee and cannot run for a month. I can't do

anything

but walk and maybe swim. I am still having a horrible time losing weight,

and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m

knee...anyone have any suggestions? I also got back into poor eating

habits,

which I am trying my hardest to change again, but it is reall hard...any

advice would be great!!! Thanks!

>>

I'm sorry to hear about your knee. You know when you are at home

watching TV you can still throw some jabs and do some speed backs. Also do

not forget the power of muscle isolations. When you can contract your

abs....do three sets of ten several times a day and try to hold them in

whenever you think about it. Do the same thing for you gluteaus maximus,

your calf muscles your arms etc. and Get ye to a pool. I think it would

probably be better than walking as it is a non-weight bearing exercise. Walk

the length of the shallow end several times for a warm up. Then stretch ouyt

in the pool the best you can without drowning. Then try swimming a couple of

laps free style. Go back to the shallow end. Do some lunges...if the dont

hurt. Then, grab on to the side of the pool and do fluteer kicks for two

minutes. More walking. Swin another two laps...underwater if you can.

Throw Find a level of water that your shoulders and arms are underneath but

your head is above and your feet are touching the bottom. Throw some

punches. Do some arm circles. Lift up your legs and tread water for two

minutes. Go back and wade through the shallow end some more. Finsh off with

five to ten strong laps. I also suggest you try to find a book on water

aerobis or workouts. Many will suggest you incorporate a sports ball (the 99

cent light weight type you get in the grocery store for children). IT is so

much fun if you can do that...but it can be a little embarressing if anyone

is around. A good portion of the workout has you squeezing the ball between

you legs as you try to balance yorself in the pool. It did my thighs good

when I use to do it.

After you pool workout go home and do some ab work, push ups on your knees.

Try doing lying leg raises.

As far as the diet goes...I hear you girl....I have been horrible. The

grocery store was out of sun dired tomatoes the time before last and that is

my new favorite snack...so I snacked on less healthy things...well they have

sun dried tomatoes againw hich I am eating along with my unhealthy stuff....I

guess I got the sugar in my bloodstream and on my mind and I can't get it

out. Plus I LOVE easter candy. Combine that with the fact that I have been

sick these last two weeks and I am a binge machine

I never really advocate fasting diets...or low cal, shake diets...but I hagve

noticed if that I spend two to three days over analyzing what I eat and being

extra healthy...by the fourth day I really don't want potatoe chips and

chocholate anymore and I don't have to worry about it until...something

sneaks past my lips and I give in again. I think its almost like a sugar

detox period that I have to go through. I will do it again AFTER EASTER. I

bought a ton of weight watchers deserts to help hold me over...hee hee. I

will be moderatly good this week...but I knw " detoxing: would be hopless with

easter one week away and me being at the chocholate " Time " of the month.

Hope you heal fast.