Help

[Guest guest]

Dear Sal,

I don't know of anyone in Michigan myself, but I am in contact with a

person in the Detroit area who may have information about treatment there.

His address is:

k8ib@...

His name is Terry. Tell him Jackie gave you his address and I am sure he will

help you if he can.

Jackie

[Guest guest]

The OC Foundation does not, as I recall, actually recommend the therapists on its list. Are they not self-referred? That is, can't they get on the list simply by claiming that they treat OCD?

When we moved to County, land, we were looking for an OCD therapist and tried one that insisted he would not believe Dan had OCD even though he had been diagnosed and treated for it for a year by a child psychiatrist, that he would have to determine for himself that the diagnosis was correct, and that this would take several sessions. He made it very clear that he personally thought the more likely cause was a toxic maternal parent. Needless to say, that was our only contact with him other than the bills he kept sending for his services. I thought we had gotten him off the OC Foundation list, but maybe not. I know our insurance listed him as an OCD therapist, and that was definitely self-referral on his part.

I wish there were a mechanism for us to give feedback on the therapists on the OC Foundation list, much like the Better Business Bureau or the internet bidding sites. That way we could avoid wasting time and money on the really ineffective (or worse) ones and find the effective ones more efficiently.

Judy in Baltimore

Re: Help

Welcome Sal, falzone2@... The most efficient source for finding a therapist experienced indealing with OCD is through the Obessive-Compulsive Foundationwww.ocfoundation.org If you go to our FILES, on the webpage, you willfind several interesting articles to help you determine what you arelooking for in a therapist.

[Guest guest]

Funny that sounds exactly like my day. Yes, I too was diagnosed with ADHD

several years ago. So now I don't beat myself up with why stuff did not get

completed. I understand it now.

Cate

[Guest guest]

, I think that I've got it too. Lynne B

Help

> I just wanted to let you know that I have recently been diagnosed with

> AAADD.

> Age-Activated Attention Deficit Disorder

>

> This is how it goes... I decide to do the laundry, start down the

> hall and

> notice the newspaper on the table. OK, I'm going to do the laundry...

> BUT FIRST

> I'm going to read the newspaper. After that, I notice the mail on the

> table.

> OK, I'll just put the newspaper in the recycle stack....

> BUT FIRST

> I'll look through the pile of mail and see if there are any bills to

> be

> paid.

> Yes. Now where is the checkbook? Oops.. there's the empty glass from

> yesterday on the coffee table. I'm going to look for that checkbook...

> BUT FIRST

> I need to put the glass in the sink. I head for the kitchen, look out

> the

> window, notice my poor flowers need a drink of water, I put the glass

> in the

> sink and there's the remote for the TV on the kitchen counter.

> What's it doing here? I'll just put it away...

> BUT FIRST

> I need to water those plants. I head for the door and...Aaaagh!

> stepped on the cat. Cat needs to be fed. Okay, I'll put the remote

> away and

> water the plants...

> BUT FIRST

> I need to feed the cat.

>

> END OF DAY: Laundry is not done, newspapers are still on the floor,

> glass is

> still in the sink, bills are not paid, checkbook is still lost, and

> the cat

> ate the remote control...And, when I try to figure out how come

> nothing got

> done today, I'm baffled because...I KNOW I WAS BUSY ALL DAY! I

> realize this

> condition is serious...I'd get help...

> BUT FIRST...I think I'll check my e-mail

>

>

>

>

>

[Guest guest]

I have AAADD too!

Bons

http://www.isosoapa.com

[Guest guest]

no pun intended but i do the same stuff not everyday but more days then not.

i just thought i was disorganized --tamika

[Guest guest]

,

I read that you use already made products do you sell your products and could

you gave me some pointer on how to use them.

Thanks

Debra

[Guest guest]

Debra,

Which products are we talking about?

I make my body cream, my lip balms, salt glow & sugar scrub and bath salts.

I buy my body spray, lotion base, and shower gel. I get the shower gel from

www.herbalaccents.com and my lotion base and body spray from

www.craftexpress.com. Oh, I also get a bubble bath from craft express. I

would like to start making my own lotion base but i cant beat craftexpress's

prices and i need that low price to compete with discount stores and bath

and body works. My cream is already way higher that B & BW. I know a homemade

product is better, but most people dont know the difference between a

mineral oil based koition and one that is almond oil based!

katherine

On Mon, 22 Oct 2001 10:32:24 EDT, wrote:

> ,

> I read that you use already made products do you sell your products and

could

> you gave me some pointer on how to use them.

> Thanks

> Debra

>

>

>

[Guest guest]

, do you put any additives into your lotion base? When I question

Craftexpress about it, I get very vague answers about what I can do to make

it better. I don't sell it, just use it for family and friend gifts but I

would like to add some nicer oils to it but I can never get a definite

answer as to what and how much. Carol A2

[Guest guest]

I just contacted craft express about his as i had 5 gallon bucket lotion

mod after 3 months. Obviously i dont use it fast enough. They said most

people use 5 gallon bucket in 1 month. They is antimicrobil as a

preservative and they said if they add more that the lotion will foam up

when go to you wash your hands. They also told me that hey are no longer

carrying lotion or gel base in anything smaller thatn the 5 gallon quantity,

so i will have to find another supplier anyway! RATS!! I think i might

experiment and jsut make my own even if it costs more. SOme people like to

buy products for the simple fact that theyare homemade and are willing ot

pay more for such a product. Hopefully. I use a product from

www.herbalaccents.com in the base that i make myself. It is vitamen E with

D-alpha, TOCOPHEROL,axcorbic acid, ascorbyl palmitate, polyethylene glycol.

Yes, synthetics, but it works great. Hope this helps

katherine

On Tue, 23 Oct 2001 09:15:18 -0400, wrote:

> , do you put any additives into your lotion base? When I

question

> Craftexpress about it, I get very vague answers about what I can do to

make

> it better. I don't sell it, just use it for family and friend gifts but

I

> would like to add some nicer oils to it but I can never get a definite

> answer as to what and how much. Carol A2

_______________________________________________________

Send a cool gift with your E-Card

http://www.bluemountain.com/giftcenter/

[Guest guest]

Hi:

Take a look at www.brambleberry.com. Also, Anne Marie is wonderful at

personally helping everyone. You'll love her, she's a doll

Re: Help

>

> > , do you put any additives into your lotion base? When I

> question

> > Craftexpress about it, I get very vague answers about what I can do to

> make

> > it better. I don't sell it, just use it for family and friend gifts

but

> I

> > would like to add some nicer oils to it but I can never get a definite

> > answer as to what and how much. Carol A2

>

>

>

>

>

> _______________________________________________________

> Send a cool gift with your E-Card

> http://www.bluemountain.com/giftcenter/

>

>

>

>

>

[Guest guest]

hi phyllis,

i want so badly to be able to say something to help you,but i cant find the

words.... when i left the hospital last march i was ready to do myself in

i was so scared.

i joined this group and they dragged me off the bottom and made me feel

good again...

i was zapped twice in march and not since......i guess my fear has wained a

bit due to not having to endure a zap lately...so, i just do my best to do

whatever i feel like doing and so far it is working.....this is with docs

permission.....

i suggest you talk it over with the docs and see what they advise,, and

llsten to what the members of the grouop have to say...they are wonderful

people.....

bob in pa

[Guest guest]

Phyllis....

> ovies and I was distracated with the thought " what happens if it goes

> off here " " I feel a little dizzy here it comes " etc. etc. Please share

> with my you feelings, how nuts am I and if I am not nuts how do you

> handle it.

I honestly don't know, since i'm not the Zapee around here. My husband

is a very weird man,

when it comes to this. He got wrongfully zapped by his ICD twice. (the

dr. fixed that.) But he

could tell when it was coming.... he said he felt it 'spooling up' to

discharge. He had no fear, was

just interested in what was going on. Said it didn't hurt. Doesn't much

care if it happens again. He

IS very weird, as i told ya.... Me.... i'd be freaking out, feeling it

coming. HE'S nutz.... you are not.

All i can tell ya is that i do understand, and am sending healing

and peaceful energy to you.

The rest of the good folks on this list will give you better support.

I'm only here to send vibes,

and learn things.

Hope the vibes help.

Sue

[Guest guest]

Hi Phyllis,

I am so sorry to hear your news, It is fresh and it is painful and it is

VERY scary!!!! But, YOU will get past this!

The best advice I can give you is to attack the reasoning behind why you

got zapped. What were you doing? Was it something you ate? Was is

something you drank? Were you hydrated? Did you take your meds on

time? Where you exercising or thinking about something that would cause an

adrenaline rush? Were you overly full? Or did you eat something overly

sweet? I could go on here, but what I am trying to get at is for you to

focus on the things that you may have done to bring a run of arrhythmia on?

When was the last time you were interrogated? Have you been stable and now

out of the blue, ZAP? Or have you felt a lot of PVC's recently? Did you

call the doc?

Getting shocked leaves us feeling completely out of control and then we

focus on being out of control and our thoughts become irrational - fear in

and of itself is irrational. What I want to encourage you with is to focus

on that which you CAN control. Attack it head on and say, " I'm not going

to let you get me! " That will help to get your confidence back and allow

you to heal.

I am sorry for you - we all are. We wish none of us had to go through this

- but alas we do. But if we can draw strength from each other, then we can

have the hope that normal is just around the corner - and it is! (Smile!)

Thanks for letting us in, and if you don't mind, I will be praying for you

these next few days - till the worst is over...

Hang in there, Phyllis!

M in PA

[Guest guest]

Dear Phyllis: I am still cautious every time I leave the house or am alone

in the house. Silly me even gets nervous of using the same 'phone' that I

was zapped while using. I try to logic it out. As for traveling, well I make

sure I have the phone number and addy of a EP where I am going. My hubby is

trained in CPR now and I go only with him. The movies do scare me. It is the

'what if's' that are paralyzing. Time is the fixer of this. My shocks hurt

and so I do anything I can to try and prevent them, at least in my mind.

I guess what I'm trying to say very sloppily, is that, You are wonderful and

have been kept here for a higher purpose and you are not alone. Thank you

for making me feel I am not alone.

Love, Jeannie

zapped 158 times and counting...

>

>

> Phyllis....

>

> > ovies and I was distracated with the thought " what happens if it goes

> > off here " " I feel a little dizzy here it comes " etc. etc. Please share

> > with my you feelings, how nuts am I and if I am not nuts how do you

> > handle it.

[Guest guest]

Dear Phyllis

i am so sorry to hear of your misfutune but i can say i know how you feel there has been a few times that my family have been out of townand i have been zapped it'd not fun i will say that but it's worth it to thank that you could have died without it your family come home to find you but as i say you have your back up system

when times are shocking just come a knocking we shall be here and there where ever you are just remindber we have and hopfuly not but probly will be in your postion i wish i was near you because i would come be there for you i have no words to comfert you i know no aswers but i will say this you have are and will never go though this totaly alone we will always be here and with you though your good bad and inbetween times for you you are never alone i hope this helps

on another note i met a nother person with defibrillator just put in last week and come to find out today she a friends grandma but i gave her zappers web site she said she already been zapped and after her zap she was scared to death and up the rest of the night

stacie,18

[Guest guest]

Daear Phyllis

We have a system in my house if things go wrong if my family is not here.

When my family goes out all of them have mobile phones amd pages so if anything happens all i have to do is press a number on the phone and the phone company sends out a messager to them saying help is required and they send for the hospital to send out someone to the house and I am sent to hospital right away to be look at and the famly would be there in ten mins weather this is just a one off I dont know but it works here perhaps you can do the same then you would not be on your own for very long.

Hope this help you as it has help me many times when i have been zapped and i am still here and still helping you all out.

Have a Happy Christmas and a Happy New Year keep well

Colin Kerridge of Zapper UK

rcsejt@... wrote:

Dear Phyllisi am so sorry to hear of your misfutune but i can say i know how you feel there has been a few times that my family have been out of townand i have been zapped it'd not fun i will say that but it's worth it to thank that you could have died without it your family come home to find you but as i say you have your back up system when times are shocking just come a knocking we shall be here and there where ever you are just remindber we have and hopfuly not but probly will be in your postion i wish i was near you because i would come be there for you i have no words to comfert you i know no aswers but i will say this you have are and will never go though this totaly alone we will always be here and with you though your good bad and inbetween times for you you are never alone i hope this helps on another note i met a nother person with defibrillator just put in last week and come to find out today she a friends grandma but i gave her zappers web site she said she already been zapped and after her zap she was scared to death and up the rest of the night stacie,18 Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Phyllis:

I am not sure that this is of any help to others, byut it works for me. It's been over a year since my only zxapping incident (3 zaps ina very, very short period), but i remember them well. here' how I deal with the ever present possibility of them:

1. I remember very specifdically what they felt like and how they affected me at the moment. if I were to expect one in the next minute or so, I can clearly pciture what would occur and how I would respond. That knowledge is a lot better than not knowing.

2. I have discussed with my cardio what are the key questions I should ask and answer if I am zapped so that i know whether or not the zap was serious enough to reqyuire immediate medical care or it can wait a short time (hours not days).

3. I make sure that those close to me know what to do if I am zapped.

4. I constantly remind myself that I cannot control being zapped (other than by not doing stupid things) and refuse to let this mechanical insurance policy run my life.

5. I enjoy life when and where I can and tell the Grim Reaper to go reap himself.

Best.

Bill

----- Original Message -----

From: pschatsky@...

For those who remember I was the one who was afraod to go to the Carribean with my ffamily, I got such great suport that I was going to go and not be afraid. I then decided that I really did not want to go so I opted to stay home and let my family go without me. Well, I guess that was lucky because I was zapped three times this week while they were away.. three incidents without a zapping and three incidents with a zap, a real good one at that. The help I am asking for is what do you do with that fear, the fear of being alone, the fear of night and the fear of going away even if it is to another state. The fear is being zapped again. That feeling stays and is hard to get rid of, I just came back from the movies and I was distracated with the thought "what happens if it goes off here""I feel a little dizzy here it comes" etc. etc. Please share with my you feelings, how nuts am I and if I am not nuts how do you handle it. Thank you all, for you support in the past Phyllis

[Guest guest]

I've used cornstarch, baking soda, powered lavender and rosemary. Just added

drops of e/os and sifted everything. Didn't use a recipe, just trial and

error. So the first ones had way too much powered lav and rosemary

wouldn't come out of the little shaker holes.

I found some very pretty brushed tin shakers. There's some plastic ones at

fromnaturewithlove.com.

Barb J

No. Idaho

In a message dated 01/09/2002 4:32:48 PM Pacific Standard Time,

dmward@... writes:

> Hi all,

> Was wondering if I could get a little help with a couple things. 1. Was

> wondering what all of you put into powders, like body powders? and how do

> you incorporate the fo/eo?

> 2. What is a good supplier of the little silver tins with the lids that

> slide off, not the really flats ones, maybe 2 1/2 to 3 " across and the same

> in heighth?

> 3. What is a good supplies for the wire bale jars like for the salt scrubs,

> sorry, this has probably already been posted, just need to pay better

> attention.

> Thanks so much for all your help!

> Mindy

[Guest guest]

Hi Kristy- I have had luck with a liquid cal/mag supplement called nightcal

that is available from BrainChildNutritionals- they have a website. You give

it before bed and it has a definate calming effect. Some people use

Melatonin but it has been linked to precocious puberty (it's a hormone).

Good Luck, Deanna

[Guest guest]

Hi!

OUr daughter, Kara, age 10 (PDD-NOS) use to get up at those hours, too.

I don't know how your daughter is, but make sure you have very dark blinds

or curtains on her windows. We noticed in the summer that she got up

earlier because of the light(not that means anything at 3 or 5am!) We

convinced her to go back to bed most mornings (she still does this

occasionally). When she was younger and safety was an issue, her room had

the lock on the outside of her door. She would get up and play for an hour

or two and then go back to sleep most days. She was contained to her room.

It's very frustrating I know. Even now when she gets up at 6 am some

weekend mornings, she is exhausted by 1 pm and we have planned to do the

zoo, museum, etc. and she's too tired. Another suggestion is music playing

and her going back to bed or " resting " for awhile. We knew Kara just

thought it was time to get up, so we'd show the moon or whatever and talk

about nighttime. I hope something will help and Good Luck!! Carolyn

K. (NJ)

[Guest guest]

Kristy,

Have you considered a weighted blanket, vest, or a heavy sleeping bag? My Hannah

needs deep pressure to sleep through the night and we use a very heavy down

filled sleeping bag to help her but you can get weighted blankets and vests for

this purpose, too. Some " white " noise is helpful, too, like running water in a

fish tank or a fan turned on.

Andy

:0)

mum to Hannah 5.4 (autism) 6.9 (siezure disorder) and Meaghan 8.4 (nt)

help

Can anyone tell me how to get these

kids such as ours to sleep normally?

My daughter gets up one morning at

3 and the next at 5 and so on and

so forth. This makes life rather

hard on us parents. Please know that

my precious angel Chelsie also has

Down Syndrome as well as Autism.

Thank you for any suggestions that any

of you may have.

Kristy

=====

" With men this is impossible, but with God ALL things are possible "

19:26

Here you can see pictures of my precious angel to which this scripture comes

to life

http://www.geocities.com.angelhugz_19_35/

God bless you Kristy

__________________________________________________

[Guest guest]

Kristy,

Is your daughter on the gfcf diet? had terrible sleep patterns and

was an extremely light sleeper before we took milk/dairy/caesin out of her

diet. The very first night of the very first day that we eliminated it, she

slept very soundly all night. She continues to be a great sleeper -- 8:30

pm - 7:00 am pretty regularly every night. We started the diet when she was

4 yrs. old in 8/99 and it's been great since then for all of us!

joy

Joy Insinna

Director

Office: (716) 240-7483

Fax: (585) 295-4890

Element K

'the knowledge catalyst'

www.elementk.com

Kristy L

<angelhugz_19_35@

autism_in_girls

> cc:

01/17/02 02:25 PM Subject: help

Please respond to

Autism_in_Girls

Can anyone tell me how to get these

kids such as ours to sleep normally?

My daughter gets up one morning at

3 and the next at 5 and so on and

so forth. This makes life rather

hard on us parents. Please know that

my precious angel Chelsie also has

Down Syndrome as well as Autism.

Thank you for any suggestions that any

of you may have.

Kristy

=====

" With men this is impossible, but with God ALL things are possible "

19:26

Here you can see pictures of my precious angel to which this scripture

comes to life

http://www.geocities.com.angelhugz_19_35/

God bless you Kristy

__________________________________________________

[Guest guest]

Do you know of a source for these weighted blankets?

I know of someone who is looking for one.

Tamara

--- Andy <andysplace@...> wrote:

> Kristy,

>

> Have you considered a weighted blanket, vest, or a

> heavy sleeping bag? My Hannah needs deep pressure to

> sleep through the night and we use a very heavy down

> filled sleeping bag to help her but you can get

> weighted blankets and vests for this purpose, too.

> Some " white " noise is helpful, too, like running

> water in a fish tank or a fan turned on.

>

> Andy

> :0)

> mum to Hannah 5.4 (autism) 6.9 (siezure

> disorder) and Meaghan 8.4 (nt)

> help

>

>

> Can anyone tell me how to get these

> kids such as ours to sleep normally?

> My daughter gets up one morning at

> 3 and the next at 5 and so on and

> so forth. This makes life rather

> hard on us parents. Please know that

> my precious angel Chelsie also has

> Down Syndrome as well as Autism.

>

> Thank you for any suggestions that any

> of you may have.

>

> Kristy

>

> =====

> " With men this is impossible, but with God ALL

> things are possible " 19:26

> Here you can see pictures of my precious angel to

> which this scripture comes to life

> http://www.geocities.com.angelhugz_19_35/

> God bless you Kristy

>

> __________________________________________________

>

[Guest guest]

I was told by one professional that the heaviest weight would be the best to

get. JFYI Deanna