Guest guest Report post Posted March 16, 2001 I wanted to share this story with you. When I was a teenager the guy I was dating said I wasn't sick it was in my head. I told my aunt and she said with those headaches he's right. We had a good laugh, but it did upset me. So everytime I saw a new Dr. I asked them what they thought and EVERYONE of them said it was not in my head I really was sick. Even if it was in my head that would need treatment. I have been blessed with good Drs. all over the US Carolyn Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2001 Welcome !!!! Glad you found us! I'm sure you will love it here! Take care & hang in there! Love, Barb Intro well I guess its time i sstop lurkking and post. My naame is sandra and I am 20 and I hhave multiple scllerosis. ( pleasse bear wwith myy typping haveing a hard time with it) I was diaagnosed with itt in deceember althouugh it started acting up in septtember but I wass told it was all in myy head until then. I amm a single mom of a 15 month oold little girl. havving thiss disease iss really hardd beingg so youngg and havving a baby. i amm currently going throuugh an epissode and it stinks.. I also suffer fromm severe depression, altthough can ya blaame me? ohh well thatt me sandrra ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick Community Help with Merger /files/ Visual problems with colors? Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. /join Members Lounge:- Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:- /messages Chat:- Scheduled Daily Chats at # on IRC DALnet. /files/chat.htm Bookmarks:- Add a website URL you have found useful. /links Personal Complaints or problems:- Please contact a moderator either via email <-owner > or visit:- /files/Moderators.htm Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- /join To subscribe or unsubscribe please email:- -subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~ " Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2001 Glad you got a Dr. that listens, that is important. Glad you can live with your parents. It's no fun living back home, but if you are allowed too, that can help a lot. Please keep us updated as to how you are doing. Hugs to YOu Helen In a message dated 3/16/2001 11:08:16 AM Eastern Standard Time, happihopper@... writes: Hello eeveeryone. thank you all foor wlcoming me intto your group. Well laately I haave been havving a hardd timee taking care off my daughter, butt I livve at homee with myy parentts so they helpp me outt a bit. Although theey are reluctannt beccause they donnt understannd my dissease and theyy thinkk thatt i mellodrammatic. nice familly huh? soo bassically otther than financially, I pretty mucch havee to doo it on my own. I havee been told I have relappsing remitting MS and forr a whille I was ttotally paralyzzed from waisst down butt afterr monthhs off therappy itt got better. I am goiing thhrough anothher relapse right noww, and it pretty muchh a cognittive relapsee otherr than a lott of fatiggue and terriblee pain. And yes I llovee doctorss thatt donnt listen NOT! I amm on my second neuroo because thee firstt one saidd I wass a nut and trried to get me admitted into the psychh ward. hehe. I wassnt a nut untill afterr he saiid ... afterr i ripped intto him tellingg him how immcompetant hhe was. (I was totally paraalyzedd with loss off all functionn from waistt downn at the timme)Oh well.. neww neuroo now. Andd she iss great. sandraa Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2001 We are so glad you are here!! Please feel free to ask and accept as much support as you need!! Love, Lee Marie Resley <sresley1980@...> wrote: well I guess its time i sstop lurkking and post. My naame is sandra and I am 20 and I hhave multiple scllerosis. ( pleasse bear wwith myy typping haveing a hard time with it) I was diaagnosed with itt in deceember althouugh it started acting up in septtember but I wass told it was all in myy head until then. I amm a single mom of a 15 month oold little girl. havving thiss disease iss really hardd beingg so youngg and havving a baby. i amm currently going throuugh an epissode and it stinks.. I also suffer fromm severe depression, altthough can ya blaame me? ohh well thatt mesandrra Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2001 Welcome , sounds like you have been through a lot, you hang in there girl! We are here for you 24/7, anytime you need someone, just say so...somebody is always up! **gentle hugs** #4 (Chelle) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2001 I have the best doctors here in Minnesota and I too am blessed. Chelle (michelle4) In a message dated 3/16/01 11:31:40 AM Central Standard Time, Faulkncs@... writes: I have been blessed with good Drs. all over the US Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2001 Hi , Welcome to the list! I'm sorry you're sick, but I am so glad that you've found us. This is a great group of people! *hugs* Marie Resley wrote: > well I guess its time i sstop lurkking and post. My naame is sandra > and I am 20 and I hhave multiple scllerosis. ( pleasse bear wwith myy > typping haveing a hard time with it) I was diaagnosed with itt in > deceember althouugh it started acting up in septtember but I wass > told it was all in myy head until then. I amm a single mom of a 15 > month oold little girl. havving thiss disease iss really hardd beingg > so youngg and havving a baby. i amm currently going throuugh an > epissode and it stinks.. I also suffer fromm severe depression, > altthough can ya blaame me? ohh well thatt me > sandrra > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > Help with Merger > /files/ > > Visual problems with colors? > Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. > /join > > Members Lounge:- > Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. > http://www.elderwyn.com/members > > Message Archives and Digest Attachment Pictures:- > /messages > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > /files/chat.htm > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator either via email <-owner > or visit:- /files/Moderators.htm > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 18, 2001 Hello !!! Welcome to the family sweetie!! WOW it must be so hard for you to be so sick and look after a baby Sorry you also went through the " its all in your head " rubbish too... you almost reach a point when you give up but I'm glad you didnt. Do you get much support and help? And no, I dont blame ya one bit for getting depressed sweetone. It sucks big time Keep the faith!!! *angel hugs* Love Aisha. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 30, 2001 In a message dated 3/30/01 8:45:50 AM Eastern Standard Time, maxpb_10@... writes: > . My > name is Lori and I am a mother of a wonderful (aren't they all) 5 > month old boy. Welcome to the list Lori! Here's some links in case you didn't already see them: <A HREF= " http://www.909shot.com/ " >National Vaccine Information Center</A> <A HREF= " http://www.nccn.net/~wwithin/vaccine.htm " >Vaccination Information & Choice Network - Vaccine/Vaccination/Immunization Dan</A> <A HREF= " http://www.access1.net/Via/ " >VACCINE INFORMATION & AWARENESS</A> CherylO in Michigan's U.P.! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 19, 2001 Welcome back, Ellen! ~ __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 4, 2001 intro Hi my name is Dina and I am the Aunty of a 3 year old boy named who was born hep c we just found out last month. We took him to the childrens hospital in Vancouver Canada.The positive news is they are young and havn't done anything to damage there liver eg. booze ,drugs ect. it is very scary when it happens to the inoccent and i know very little about it but i am learning daily. My brother who is also hep c is taking a natural supplement and got a call from the doctor who told him his enzyme levels have changed drastically for the better And what ever he is doing to keep it up. We are starting on the herbs this week to keep his liver heathy. They are expensive for us here in Canada as they come from the States but there are testimonials out there and I have seen great results. Hopefully by the time these two kids are older there will be a cure but we were told just to treat him like a normal child no special diet dont tell people because they can be cruel and when he is old enough to understand you have to explain his illness to him. We should keep in touch as and your son are going to need support for each other down the road and maybe they could become good friends through us please keep in touch as it is hard to deal with this by yourself I am here if you need me anytime. Kiss your little angel for me and my personal email addy is loeb@... Take care Dina -----Original Message----- From: shelly <dillon@...> Hepatitis C <Hepatitis C > >my name is shelly, i am 22 years old and mom to dillon. i do not >have hepatitis C that i know of. today i found out that dillon >does. he is 2 1/2 years old. he was born with congenital heart >disease and has had a few open heart surgeries so i think he may have >gotten it from a blood transfusion. i am going to be tested next >week hopefully though just to make sure i didnt pass it to him when i >was pregnant with him or something. we live in oklahoma and i plan >on calling the oklahoma blood institute tomorrow to ask what all they >test for when people donate blood because i dont want to think i gave >it to dillon but i dont know if obi doesnt test for it. i donated >about 8 months ago and they never said anything to me. and i used to >be a regular donor but kinda got needle scared after having dillon. >i would love to have any information any of you could share with me. >i cant lose him, he's all ive got. > >thanks. >shelly, mommy to dillon (11-30-98) >TGA, VSD, IAA, PS >http://www.angelfire.com/ok4/jkfla > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 4, 2001 Hi : That is curious, isn't it that a baby has contracted this virus already. If you are not infected, I would look to the hospital where he had his surgeries. They've been able to screen for Hep C for years (1990 I believe), so there's no excuse for using tainted blood. I think you can even sue. Someone on this list did if I recall and was successful. I'm sure they will speak up. But more important, this isn't a death sentence for little Dillon. He's very lucky in that he has time to wait on the research that's going on. You obviously have access to the internet, and there are lots of good places to find info. I like www.nih.gov (that's the National Institutes of Health), then select NIDDK (that's the institute that covers Hepatitis). This will also tell you about any new protocols that are open. Tree There are others on this list who know a lot more about this thanI do, but one suggestion is any time a doctor prescribes medicines for your baby, find out if they are " liver friendly " and if not, see if there is an alternative that is. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2001 My prayers are with you. i really feel bad when children have this illness. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2001 My prayers are with you too. It is so hard when the children get sick. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2001 My naturopath works as a pediatrician also. Just wanted to make sure you knew that naturopaths see children also. Just being a member of this Group, you are off to a great start on the many complexities of the vaccination issue. There are several wonderful websites out there dedicated to vaccine issues. However, I'm partial to reading books. You can go to www.ThinkTwice.com and enter their bookstore. You will find MANY books there. Each listing has a thorough content description of the book. Peruse it until something catches your fancy. Also I don't think anyone has ever accused the CDC as being impartial! So careful navigating there. Since you are concerned with impartiality, I suggest a good starter for you is Viera Scheibner's book. All her information is cited from orthodox research studies. Those studies can also be looked up on-line. Here's the info from ThinkTwice: VACCINATION: 100 Years of Orthodox Research shows that Vaccines Represent a Medical Assault on the Immune System by Viera Scheibner, Ph.D. Imported from Australia. Vaccine researchers: your personal library is incomplete without this absolutely essential academic textbook on vaccines. For example, did you know that in 1975, when Japan raised the age to receive vaccines from 2 months to 2 years, the incidence of Sudden Infant Death Syndrome (SIDS) virtually disappeared in that country? [p. 49] Or that in 1991, the Institute of Medicine released a report documenting a causal relationship between the rubella vaccine and acute arthritis in adult women? [p. 121] Or that in 1992, the World Health Organization suspended use of a new measles vaccine when it was found that children had an increased risk of dying from other diseases in the years following administration of this vaccine? [p. 91] This book is a well documented indictment of vaccinations, and is extensively cited with orthodox studies. Required reading for anyone seriously investigating this issue. Not available in local bookstores. 288p. Code: VOY $26.95. (Take a 25% discount on 5+ copies.) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2001 Hi my name is Dina and I am the Aunty of a 3 year old boy named who was born hep c we just found out last month. We took him to the childrens hospital in Vancouver Canada.The positive news is they are young and havn't done anything to damage there liver eg. booze ,drugs ect. it is very scary when it happens to the inoccent and i know very little about it but i am learning daily. My brother who is also hep c is taking a natural supplement and got a call from the doctor who told him his enzyme levels have changed drastically for the better And what ever he is doing to keep it up. We are starting on the herbs this week to keep his liver heathy. They are expensive for us here in Canada as they come from the States but there are testimonials out there and I have seen great results. Hopefully by the time these two kids are older there will be a cure but we were told just to treat him like a normal child no special diet dont tell people because they can be cruel and when he is old enough to understand you have to explain his illness to him. We should keep in touch as and your son are going to need support for each other down the road and maybe they could become good friends through us please keep in touch as it is hard to deal with this by yourself I am here if you need me anytime. Kiss your little angel for me and my personal email addy is loeb@... Take care Dina intro >my name is shelly, i am 22 years old and mom to dillon. i do not >have hepatitis C that i know of. today i found out that dillon >does. he is 2 1/2 years old. he was born with congenital heart >disease and has had a few open heart surgeries so i think he may have >gotten it from a blood transfusion. i am going to be tested next >week hopefully though just to make sure i didnt pass it to him when i >was pregnant with him or something. we live in oklahoma and i plan >on calling the oklahoma blood institute tomorrow to ask what all they >test for when people donate blood because i dont want to think i gave >it to dillon but i dont know if obi doesnt test for it. i donated >about 8 months ago and they never said anything to me. and i used to >be a regular donor but kinda got needle scared after having dillon. >i would love to have any information any of you could share with me. >i cant lose him, he's all ive got. > >thanks. >shelly, mommy to dillon (11-30-98) >TGA, VSD, IAA, PS >http://www.angelfire.com/ok4/jkfla > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2001 i am so sorry it took me so long to respond back to you all. im away from home right now, sort of a mini vacation for dillon and myself. yes i am angry that this happened. if i do have hep c i have no idea how i got it. i have never done needle drugs and i dont remember ever having a blood transfusion. if i do have it and that is how dillon got it i will never be able to forgive myself. dillon has a heart cath scheduled for the 10th to see when his next surgery is. i am going to talk to his cardiologists about it also. tuesday i have an ob appt and im going to see if my midwife wants me to get tested. i visited our oklahoma blood institute website and it said they will test you for hep c for 10 dollars. it makes you wonder how they do the testing of the regular donors. i have so many questions, so many thoughts, its so hard to know where to start. im bound and determined to find out where it came from. if i have it i will find out where i got it also. thanks for the welcomes and info. hopefully when i get over my shock and get more answers i will be able to participate more with the group. shelly Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 6, 2001 Sometimes you don't know how you pick it up. Education seem to be one of answers. I would check out all the sites of hep C. When i was frist told i had this i looked for all the information i could get my hands on. Most people with Hep C do live normal lives with or no syptoms. The treatments are changing and one day we might have a cure. When frist started treatment in 1990 there was only Intron A, Right now we have Intron A and Rebtron combination drugs. In October hopefully the Peg intron will be approved. My prayers are with you and your son. My granddaughter is only 21 months old and i treasures her. Be strong. Ladonna Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 19, 2001 ~ Hi, and welcome! I am glad you are here, and willing to delve into everything surrounding vaccines. Unfortunately, so many won't even consider questioning vaccines...and many never even let it occur to them. I, too, was one who never questioned my doctor, until my 5 month old son had a severe reaction. At that point, we said we were going to delay, until we knew more. It didn't take long before we decided no more...period. I am sorry that you, and your ds' went thru what you/they did. Use it as a learning experience. It still breaks my heart, every day, to consider what I unwittingly allowed my son to have perpetrated upon him, and the reaction it caused...however, thru it, I have come to know so much about vaccines...so, in the end, it was a 'good' thing. Had he never reacted, I am sure I'd have continued having him vaccinated. So far, for the wee while that I have been on this list, I have learned so much, and come to value many of the others' opinions as priceless. I hope that you too, will find the rest of the group wonderful, and welcoming, and as knowledgable as I have. Please be sure to post ANY and ALL questions, worry, rants, etc that you have! Looking forward to getting to know you better. ~Donna...9 month old mommy to the peanutbutterboy, RJ --- <lindamaree@...> wrote: > HI, I am a SAHM to two boys 6 & almost 3. To > date both boys are > up to date on their vaccs. Like most people I > followed my doctors > advice without asking questions. I am now starting > to question the > vaccine issue. I have 2 years before my baby is due > to start school, > I hope that in that time I will be comfortable with > my decision which > ever way it goes. I have already decided that any > more babes I have > will not be vaxed immediately like my boys. Both > were very ill after > their 2 month shots. My baby was in hospital on > oxygen for 2 weeks > after with broncialitis. It didn't really click that > there was a > connection until talking with a natropath, thus my > quest for more > information. > > > > __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 19, 2001 >will not be vaxed immediately like my boys. Both were very ill after >their 2 month shots. My baby was in hospital on oxygen for 2 weeks >after with broncialitis. It didn't really click that there was a >connection until talking with a natropath, thus my quest for more >information. > , almost all of us whose kids were vaxed, the kids got very sick. Mine was in the hospital after the vax, too, with bronchialitis!!! Many of our kids are now " autistic' from the vax. so if yours can talk and walk, consider yourself lucky. Read www.thinktwice.com, or www.909shot.com Thanks for sharing, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2001 , Please continue to question and to educate yourself on this issue! I did what I thought was the right thing to do and my now 8 year old son had a 90 minute seizure just 6 hours after his 2nd DPT at 4 months.He has had uncontrolled seizures ever since and significant delays, I would not wish what our family has had to deal with the last 8 years on my worst enemy. My 20 month old son has not received any vaccines and I just can't take the chance that the same could happen to him. There's much more to this issue and much to be concerned about that the medical community doesn't share with the public. When your kids reach school age, check to see what kind of exemptions your state allows for vaccines should you decide to hold off on vaccines. Good luck! Maureen Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2001 Thankyou for the welcome and I will be posting any questions I may have. Is your boy allergic to p/n butter or does he just really like it. I lived on the stuff when preg with my first and he CAN'T STAND IT. He did have a reaction to it when about 8 months, but his intolerance to it has gone, he just wont eat it. oops > ~Donna...9 month old mommy to the peanutbutterboy, RJ< > > HI, I am a SAHM to two boys 6 & almost 3. To > > date both boys are > > up to date on their vaccs. Like most people I > > followed my doctors > > advice without asking questions. I am now starting > > to question the > > vaccine issue. I have 2 years before my baby is due > > to start school, > > I hope that in that time I will be comfortable with > > my decision which > > ever way it goes. I have already decided that any > > more babes I have > > will not be vaxed immediately like my boys. Both > > were very ill after > > their 2 month shots. My baby was in hospital on > > oxygen for 2 weeks > > after with broncialitis. It didn't really click that > > there was a > > connection until talking with a natropath, thus my > > quest for more > > information. > > > > > > > > > > > __________________________________________________ > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2001 I guess I am pretty lucky. Both my boys seem to be ok. Clyde is a bit slow at reading, his other subjects in school are fine, he is great with mathematics and science. Ewan is also doing fine, his communication skills are great. He is learning to read and he can count to 30 with out any problems . Although he can be quite regimented. I am working with Clyde's teachers at school he is really good. He has assured me for his age he is on par with everything else. Ewan is going to pre-school 2 days a week and he is really enjoying it and has blended in well. > >will not be vaxed immediately like my boys. Both were very ill after > >their 2 month shots. My baby was in hospital on oxygen for 2 weeks > >after with broncialitis. It didn't really click that there was a > >connection until talking with a natropath, thus my quest for more > >information. > > > > , almost all of us whose kids were vaxed, the kids got very sick. Mine > was in the hospital after the vax, too, with bronchialitis!!! Many of our > kids are now " autistic' from the vax. so if yours can talk and walk, > consider yourself lucky. Read www.thinktwice.com, or www.909shot.com > > Thanks for sharing, > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2001 welcome - What did the natropath say to you? Glad you are here. You will learn a lot. Jill Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2001 ~ ROFLMBOOOOOOO!! I have no clue if he is allergic, or if he even likes it. I initially began calling him my lil peanut...which became peanut butter...and then became peanutbutterboy. Just a silly little nickname I have for him! LOL!! ~Donna...9 month old mommy to the peanutbutterboy, RJ --- <lindamaree@...> wrote: > Thankyou for the welcome and I will be posting any > questions I may > have. Is your boy allergic to p/n butter or does he > just really like > it. ~Donna...9 month old mommy to the peanutbutterboy, RJ __________________________________________________ Quote Share this post Link to post Share on other sites
