Intro

January 4, 2001

hello, all....

my name is /Jules... i'm 29 yo, single female, who lives

no-where! ;-(

at this point in time i'm staying with friends in NJ, but practically

everything i own (clothes, books, yarn, bed!) is at my bf's house up

in NH... a few months ago, while on a trip south to live with my sister

i found out that NH-DMV " discovered " my epilepsy and wanted me to have

a physical examination to determine that i was not a threat to

public safety while driving a car (fair enough.)......

my seizures (grand-mal) are catamenial (i have a grand-mal 2 or

3 days before i begin menstruating), and they are also nocturnal

in that i only seem to have them after i've been sleeping for an

hour or so... these facts, along with the fact that my seizures

are preceeded by auras, made me think that it wouldn't be too much

of a hassle getting my license back....

how wrong i was.

so now, i'm depending upon the kindness of friends (again), sleeping

on the floor (again), and spending whatever *sane* moments i have

arguing on the phone with gov.workers and doctors (again!!!)....

the rest of the time, i spend crying.

yesterday was bad, very bad... and i suddenly became very afraid of

the harm i could do to myself.... i've been diagnosed as suffering

from PTSD, and anorexia (stemming more from emetephobia, than a

desire to lose weight)..... i realized i was creeping " back inside "

and frankly, i'm terrified.

i don't expect anyone to solve my problems for me, but i need

so much to believe that there are people out there who are

" on my side " ......

blessings,

Jules

_________________________________________________________________

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January 4, 2001

Hi ,

I'm Kristy, and 29 also. When I was a youngster I used to

have seizures also. When I got older I took a medicine

called Voltaren for my arthritis and it caused me to have a

Grand Mal Seizure. The neurologist that I went to said

that the medicine wasn't the thing that caused the seizure

that I had in 1992 even though I hadn't had a seizure in

about 20 years prior to that medicine.

Well, we found out of course that the seizure was indeed

caused by the Voltaren. I've not had a seizure since then.

However my ob/gyn does monitor me very closely and won't

let me have certain anti-inflammatory drugs b/c she's

afraid that I will have a seizure from taking something

like Relafen even though I can take it safely.

So that's my claim to having seizures. As for my health

problems, I have endometriosis, vulvodynia, Polycystic

Ovarian Syndrome, Irritable Bowel Syndrome, Generalized

Anxiety Disorder, and osteoarthritis in my left knee.

I live in FL and I love getting personal e-mails if you

would like to write to me on a private basis.

Please take care and know that we are all on your side.

(((((Hugs)))))) to you.

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

January 4, 2001

Oh my Jules,

Well you have come to the right place. I dont think anybody here really

tries to " Solve " problems but we will definately be on your side.

As aisha always says, feel free to vent, scream, swear. ect...

No vent is too long or too short. hehe

im sorry for the situation you are in. I know its awful to have epilepsy and

try and get your licence. ( my ex had epilepsy and his licence too)

Just know that there are people out there routing for you.

welcome.

melinda

Re: intro

hello, all....

my name is /Jules... i'm 29 yo, single female, who lives

no-where! ;-(

at this point in time i'm staying with friends in NJ, but practically

everything i own (clothes, books, yarn, bed!) is at my bf's house up

in NH... a few months ago, while on a trip south to live with my sister

i found out that NH-DMV " discovered " my epilepsy and wanted me to have

a physical examination to determine that i was not a threat to

public safety while driving a car (fair enough.)......

my seizures (grand-mal) are catamenial (i have a grand-mal 2 or

3 days before i begin menstruating), and they are also nocturnal

in that i only seem to have them after i've been sleeping for an

hour or so... these facts, along with the fact that my seizures

are preceeded by auras, made me think that it wouldn't be too much

of a hassle getting my license back....

how wrong i was.

so now, i'm depending upon the kindness of friends (again), sleeping

on the floor (again), and spending whatever *sane* moments i have

arguing on the phone with gov.workers and doctors (again!!!)....

the rest of the time, i spend crying.

yesterday was bad, very bad... and i suddenly became very afraid of

the harm i could do to myself.... i've been diagnosed as suffering

from PTSD, and anorexia (stemming more from emetephobia, than a

desire to lose weight)..... i realized i was creeping " back inside "

and frankly, i'm terrified.

i don't expect anyone to solve my problems for me, but i need

so much to believe that there are people out there who are

" on my side " ......

blessings,

Jules

_________________________________________________________________

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~~~~~~~~~~~~~~~

“Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

January 4, 2001

Jules

HOLD ON It is very tough to go through a diagnosis and lose your ability to

drive and be on your own. I know because Im 31 and going through the same

thing. Have you started the process to get SSDisability? That could give

you an income and help you to feel a little more self sufficient. I also am

roaming staying at different places and have what stuff I kept at an aunts.

You will find wonderful people on this list for support. No, none of us can

solve your problems BUT I know that having the lists I am on for support has

saved me during the last 6 months. At many times these people have been the

only non-biased and stable support I have had to turn to, so feel free to

vent----

HUGS

Colleen

January 4, 2001

Hi Jules

WELCOME to the list, I am glad you have found us. I am a carer for my hubby and live in Australia, we are a friendly bunch here so just jump right on in and vent, scream , yell, laugh etc whatever takes your fancy.

Sorry to hear you have been having grief with all sorts of things *hugs* I hope you can get something sorted out for you soon

Don't forget we are all here to give ya a hug when you are feeling down

Take care

Lots of love

Nerys

January 4, 2001

>

>Jules

>HOLD ON It is very tough to go through a diagnosis and lose your ability

>to

>drive and be on your own.

well, actually, the epilepsy is something i've been dealing with

since infancy (petit mal), it went latent(sp) when i hit age

6 or so and then came back with a vengence when i hit puberty....

i didn't start having the grand-mal seizures until about 3-4

years ago (when i got hit with the apnea and the hypothyroid

bull-crap)......

>I know because Im 31 and going through the same

>thing. Have you started the process to get SSDisability? That could give

>you an income and help you to feel a little more self sufficient. I also

>am

>roaming staying at different places and have what stuff I kept at an

> >aunts.

i've been on disability since i was 17, but since i've been unable

to put together much of a work history, all i can collect per month

is about 500 (not that i'm complaining! i'm grateful for anything

that helps me pay bills)......

in NH, though, SSI doesn't automatically qualify you to recieve

medical insurance so i had to go down to the office and apply in

person (i was denied coverage, btw.)....

>You will find wonderful people on this list for support. No, none of us

>can

>solve your problems BUT I know that having the lists I am on for support

>has

>saved me during the last 6 months. At many times these people have been

>the

>only non-biased and stable support I have had to turn to, so feel free to

>vent----

>HUGS

>Colleen

and vent i shall! ;-)

blessings

Jules

_________________________________________________________________

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January 5, 2001

Hi ,

Just wish to let you know that while we are sorry you have to join this

list, you have come to the right place!

We may not help you in terms of solving some of your problems, but we will

definitely be on your side, supporting you as much as we can!

Just feel free to write whatever and whenever you want to.

Ling

Re: intro

hello, all....

my name is /Jules... i'm 29 yo, single female, who lives

no-where! ;-(

at this point in time i'm staying with friends in NJ, but practically

everything i own (clothes, books, yarn, bed!) is at my bf's house up in

NH... a few months ago, while on a trip south to live with my sister found

out that NH-DMV " discovered " my epilepsy and wanted me to have

a physical examination to determine that i was not a threat public safety

while driving a car (fair enough.)......

my seizures (grand-mal) are catamenial (i have a grand-mal 2 or

3 days before i begin menstruating), and they are also nocturnal

in that i only seem to have them after i've been sleeping for an

hour or so... these facts, along with the fact that my seizures

are preceeded by auras, made me think that it wouldn't be too much

of a hassle getting my license back....

how wrong i was.

so now, i'm depending upon the kindness of friends (again), sleeping

on the floor (again), and spending whatever *sane* moments i have

arguing on the phone with gov.workers and doctors (again!!!)....

the rest of the time, i spend crying.

yesterday was bad, very bad... and i suddenly became very afraid of

the harm i could do to myself.... i've been diagnosed as suffering

from PTSD, and anorexia (stemming more from emetephobia, than a

desire to lose weight)..... i realized i was creeping " back inside "

and frankly, i'm terrified.

i don't expect anyone to solve my problems for me, but i need so much to

believe that there are people out there who are " on my side " ......

blessings,

Jules

January 5, 2001

Hi ,

Welcome to the list. I'm a bit slow (behind in my email again...lol) but I

wanted to take just a minute to introduce myself. :-)

I'm , I joined this list as a caregiver to my son, . There are a lot

of people on this list who are here for you, hon. Just say the word, and you

have 100+ people at your fingertips. :-) I've found so much love and support

here that I probably couldn't

leave even if I tried. LOL

*hugs*

, momma to

^^ 12/23/98-6/9/00

Pearson's syndrome and Kearns-Sayre syndrome

(And Gracie and Adri, too!!)

julie bailey wrote:

> hello, all....

>

> my name is /Jules... i'm 29 yo, single female, who lives

> no-where! ;-(

> at this point in time i'm staying with friends in NJ, but practically

> everything i own (clothes, books, yarn, bed!) is at my bf's house up

> in NH... a few months ago, while on a trip south to live with my sister

> i found out that NH-DMV " discovered " my epilepsy and wanted me to have

> a physical examination to determine that i was not a threat to

> public safety while driving a car (fair enough.)......

>

> my seizures (grand-mal) are catamenial (i have a grand-mal 2 or

> 3 days before i begin menstruating), and they are also nocturnal

> in that i only seem to have them after i've been sleeping for an

> hour or so... these facts, along with the fact that my seizures

> are preceeded by auras, made me think that it wouldn't be too much

> of a hassle getting my license back....

>

> how wrong i was.

>

> so now, i'm depending upon the kindness of friends (again), sleeping

> on the floor (again), and spending whatever *sane* moments i have

> arguing on the phone with gov.workers and doctors (again!!!)....

> the rest of the time, i spend crying.

>

> yesterday was bad, very bad... and i suddenly became very afraid of

> the harm i could do to myself.... i've been diagnosed as suffering

> from PTSD, and anorexia (stemming more from emetephobia, than a

> desire to lose weight)..... i realized i was creeping " back inside "

> and frankly, i'm terrified.

>

> i don't expect anyone to solve my problems for me, but i need

> so much to believe that there are people out there who are

> " on my side " ......

>

> blessings,

> Jules

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

> The Being Sick Community

>

> Visual problems with colors?

> Click the link below and select the modify link to your right. Then select the

**Send Plain Text Email** option. This will stop you receiving emails with

colored or enlarged fonts.

>

> Members Lounge:-

> Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email and a whole bunch of free things.

> http://www.elderwyn.com/members

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> /chat.htm

>

> Sharing our resources:-

> Add a website URL you have found useful.

>

> Personal Complaints or problems:-

> Please contact a moderator either via email <-owneregroups> or

visit:-

> /Moderators.htm

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your convenience

and receive no email.

> To modify your subscription settings please visit

mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to what you

believe, even if it's a tree that stands by itself. Hold on to what you must do

even, if it's a long way from here. Hold on to your life, even if it's easier to

let go. " - Pueblo Prayer

January 5, 2001

Hello Jules,

Welcome to the list!

"my name is /Jules... i'm 29 yo, single female, who livesno-where! ;-( at this point in time i'm staying with friends in NJ, but practicallyeverything i own (clothes, books, yarn, bed!) is at my bf's house upin NH... a few months ago, while on a trip south to live with my sisteri found out that NH-DMV "discovered" my epilepsy and wanted me to havea physical examination to determine that i was not a threat topublic safety while driving a car (fair enough.)......"

So you are stuck with friends? Can your bf not help you get home????? "my seizures (grand-mal) are catamenial (i have a grand-mal 2 or3 days before i begin menstruating), "

Ohhh thats interesting cause my myoclonus is ALWAYS worse before menstruation also.

"so now, i'm depending upon the kindness of friends (again), sleepingon the floor (again), and spending whatever *sane* moments i havearguing on the phone with gov.workers and doctors (again!!!)....the rest of the time, i spend crying."

*gentle hugs*"yesterday was bad, very bad... and i suddenly became very afraid ofthe harm i could do to myself.... i've been diagnosed as sufferingfrom PTSD, and anorexia (stemming more from emetephobia, than adesire to lose weight)..... i realized i was creeping "back inside"and frankly, i'm terrified."

Have you sought any professional assistance for this hon? Have you ever read the book "The secret language of Eating Disorders" by peggy claude peirre? I found it to be very insiteful.

"i don't expect anyone to solve my problems for me, but i needso much to believe that there are people out there who are"on my side"......"

We are here for you in abundance! Please vent anytime you need ok? You are not alone!!!

Love Aisha

January 9, 2001

Hi! I am . I am 26 yrs old, live in South Dakota, been married

for aqlmost 7 years and have two children. Four year old is partially

vaccinated. We stopped when we relized that she was having a reaction to

a vaccine, but the doctor refuse to admit it. Our 8 month old has never

been vaccinated. We now have a doctor now who supports our decision not

to vaccinate and agrees that Madeline's screaming fits were a vaccine

reaction.

I am always looking forward to learning more and am happy to be on this

list.

________________________________________________________________

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January 9, 2001

Welcome, !! I applaud you for standing your ground with your daughters

doctors, and protecting her from further harm. You will love this

group...Sharon

Re: intro

> Hi! I am . I am 26 yrs old, live in South Dakota, been married

> for aqlmost 7 years and have two children. Four year old is partially

> vaccinated. We stopped when we relized that she was having a reaction to

> a vaccine, but the doctor refuse to admit it. Our 8 month old has never

> been vaccinated. We now have a doctor now who supports our decision not

> to vaccinate and agrees that Madeline's screaming fits were a vaccine

> reaction.

>

> I am always looking forward to learning more and am happy to be on this

> list.

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

January 19, 2001

Janine:

ADHD is the diagnosis many of our kids first get. My now 12 yo son was

diagnosed first with ADHD, then OCD and MDD, and after a brief hospitalization,

PDD-NOS was added to the alphabet soup. Anxieties and worries like you describe

are very common in our kids. Does your son have any rituals that he performs?

One thing to be aware of, is that ritalin and other stiumlants can really

exacerbate the anxiety. My son takes a small dose of ritalin just in the

morning to get him through his academic classes. I rarely give it to him at

home. If you check our archives, over the past week or so there has been a lot

of discussion about the use of stimulants in kids with ocd.

You've come to the right place for support and information. Please let us know

where you live. One of us may be nearby.

Jule in Cleveland

January 19, 2001

Janine welcome!

Our experience is that when people dont know of any resources, they say

there arent any - but if you look harder - they're out there!! Six years

old is a fine age to start doing exposure and reponse prevention therapy.

Have you contacted the OC Foundation to see about a local therapist?

www.ocfoundation.org

Have you read Dr. Herb Gravitz's book: OCD: NEW HELP FOR THE FAMILY? This

might help you and your husband understand where you are in relation to

Codi's diagnosis. You can find this book, and tons of others, at the

Obsessive-Compulsive Foundations book store:

http://www.ocfoundation.org/ocf1110a.htm

You might find it helpful to read through our resouce articles on our

website. You may access the files, links, and archives for our list at

.

Where do you live? We have members all over the States, Canada, England

and Australia! hmmm, Did I leave anyone out?? ;o) If its convenient, try

joining our live chat Sunday evenings 10pm EST.

Take care, wendy in canada

=======================================================

>Hi All!

> My name is Janine. My son Codi has finally been diagnosed with OCD.

>We have been going round and round with different DRs trying to

>figure out what is going on in his little head. Codi is 6, but speaks

>like a 12+ year old. He was first thought to have ADHD, then anxiety

>disorder, depression and on and on. We have come to determine that is

>a little of everything. Oh, Great! Codi main problems is constant

>worry and anxiety. He worries about everything! To the point of being

>scared of school, people, going outside, just everything. We as

>parents are trying so hard to be understanding. But, my husband

>especially gets so fustrated. We don't know what else to do. We put

>him in a hospital for 1 week for children with his problems but it

>doesn't really seem to be helping. He is on Ritalin for his

>hyperactivity and they are trying him on Luvox. I was homeschooling

>this past fall because of his fears and school anxiety. We are going

>to try a ED self-contained classroom at the public school, but I am

>afraid that if he gets much rejection he may get worse or try to hurt

>himself which he sometimes does. I know he needs a support group but

>I keep being told that there aren't any for his age. Well, what can

>we do? Does any one have any suggestions?

>Thanks for listening!

>Janine

_________________________________________________________________________

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January 19, 2001

HI Janine:

Welcome to you, Codi and your family. Most of our kids don't just have

OCD, however treating the OCD is often the first way to get things back

under control again. I have a son, Steve, 14 on Monday, who has OCD, major

depressive disorder (MDD) and post-traumatic stress disorder (PTSD). He

has improved very remarkably with the right kind of treatment. It can be

very hard to find as you are experiencing, but when you do all the

struggles proves well worth it.

Please tell Codi there is a lot of hope and good help for kids with his

worries and symptoms. If you share where you are living perhaps we have a

list member nearby who can share information re: local resources for OCD

treatment. The OCF also provides a list of OCD treatment providers, as

does the ADAA (anxiety disorders association of America) and the AABT

(Association for the Advancement of Behavior Therapy). Many of our kids

are on meds too. Steve is on Luvox, mostly for his MDD as the dosage he

takes is too low to work on his OCD. He uses E & RP (exposure and response

prevention), a form of cognitive behavior therapy (CBT) for keeping his OCD

symptoms more in the background of his life.

Finding out about OCD and its treatment by reading books is an excellent

way for family members to increase their understanding and patience when

dealing with OCD. My husband has never been much for reading books about

OCD so I got videos and insisted he watch them. Also I asked him to attend

the OCF Conferences so he could learn about OCD from the experts, as it was

hard for him, when he was in pain and denial, to learn about it from me and

my hectoring of him.

Good luck, take care, please keep posting, aloha, kathy (h)

kathyh@...

At 03:52 PM 01/19/2001 -0000, you wrote: