New to group

February 25, 2008

Hello in England we have a doctor called Dr S. Myhill -whereever you

are in the world it could be useful to read her website & e-book.

Just type in her name in a web search

Also look on " Invest In ME " site - sorry an other UK site, however the

links and all the info would still be useful

Good Luck

>

> Can somebody help me. I'm almost positive I suffer from chronic fatigue

> syndrome. How do I go about talking to my Dr. about possible treatment.

> My life has been going down hill with all my symptoms.

> Thank you so much

>

February 25, 2008

Hi ,

That manometry test is kind of annoying.... I'd wait to have it until you have picked the facility where you are having treatment. I'd pick your team, no matter what your esophagus problem is before you get that test. Many tests depend on the skill and expertise of the giver. The barium is no big deal to repeat, but the manometry isn't a joy, so I'd try to do it only once or as seldom as possible. Even if it isn't achalasia, you want your doctor team to be in place. Find a great GI.

Also get copies of all your test results, keep everything electronically or a paper copy. It will come in handy in the future. Some of your tests will have a video copy. Keep a diary of dates and doctors, as this disease will follow you the rest of your life. It is not life ending, can be managed, but be prepared.

Sandy>> Hi,> My name is , I am a fifty year old grandmother who lives in Austin Texas. My doctor, Dr. Kent Ellis, believes that I have Achalasia. This all came about after I had a big scare in November of last year, I was having trouble swallowing and I choked once almost to the point of passing out at a restaurant. So I went to Doc thinking I had a tumor in my throat or something similar. He did the first test, an endoscopy and did a dilation. No cancer cells were found, gratefully! The dilation helped for a very short while. He told me he thought I had Achalasia, this rare disease. This week I am going for another test, they will run the tube down my nose and have me swallow, ugh, and check pressure of the esophagus. This is going to be hard to go through and I have almost chickened out.> Then he may suggest surgery. I am glad to have found a support group, though I am sorry your problem exists. Any advice is welcome. > I have been able to eat some foods, it just has taken some adjustments. > I have felt bewildered but it can always be worse, I think.> Thanks for any input > > > > ____________________________________________________________________________________> Never miss a thing. Make your home page. > http://www./r/hs>

February 25, 2008

Hi

Welcome Aboard! My name is Millie from Virginia and I recently was

diagnosed with " A " and had surgery on Dec. 5, 2007. I did not find

the testing to check the pressure hurtful but it was uncomfortable

but not to the extent of being unbareable. I have had 4 since being

diagnosed. I am new to this group and have found their comments,

knowledge and understanding to be GREAT! Although, recently, a lot

of discussion on this board has been about alternative medicine.

Just wanted to wish you the best of luck on your test and I will tell

you what I was told when I inquired on this board,if surgery is the

option -- Make Sure You Get Someone Who Knows About Achalasia.

One other thing I can suggest is read everything you can on this

board and learn about this stuff. It can take some of the fear or

worry out of the process. Also, eating I found that chocolate, and

milk helped me greatly but you might find something else helps you.

Take care - Millie VA

>

> Hi,

> My name is , I am a fifty year old grandmother who lives in

Austin Texas. My doctor, Dr. Kent Ellis, believes that I have

Achalasia. This all came about after I had a big scare in November

of last year, I was having trouble swallowing and I choked once

almost to the point of passing out at a restaurant. So I went to Doc

thinking I had a tumor in my throat or something similar. He did the

first test, an endoscopy and did a dilation. No cancer cells were

found, gratefully! The dilation helped for a very short while. He

told me he thought I had Achalasia, this rare disease. This week I

am going for another test, they will run the tube down my nose and

have me swallow, ugh, and check pressure of the esophagus. This is

going to be hard to go through and I have almost chickened out.

> Then he may suggest surgery. I am glad to have found a support

group, though I am sorry your problem exists. Any advice is

welcome.

> I have been able to eat some foods, it just has taken some

adjustments.

> I have felt bewildered but it can always be worse, I think.

> Thanks for any input

>

______________________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

February 26, 2008

Dear , Welcome to the Group. I am happy for you that all this has happened fairly quickly, both the diagnosis and finding this Group. It's better to have some treatment before any more damage is done to your oesophagus as it adapts to this disorder. The test you will be having is called a manometry. Different people have different experiences of it. I thought it was not as bad as the endoscopy and found that I was able to co-operate very well with the Doctor by relaxing as much as humanly possible and having the attitude that I and he were doing this test together as opposed to having it done to me. It's an important test, so try your best. The best thing about this Group is that you can ask any sort of question that you need to and there is some one who can respond. Between us we have a wealth of knowledge and experience, whereas to be alone in this is bewildering. And you are right - there are many worse conditions than this. All the best from Ann in England (57) <rich5757@...> wrote: Hi, My name is , I am a fifty year old grandmother who lives in Austin Texas. My doctor, Dr. Kent Ellis, believes that I have Achalasia. This all came about after I had a big scare in November of last year, I was having trouble swallowing and I choked once almost to the point of passing out at a restaurant. So I went to Doc thinking I had a tumor in my throat or something similar. He did the first test, an endoscopy and did a dilation. No cancer cells were found, gratefully! The dilation helped for a very short while. He told me he thought I had Achalasia, this rare disease. This week I am going for another test, they will run the tube down my nose and have me swallow, ugh, and check pressure of the esophagus. This is going to be hard to go through

and I have almost chickened out. Then he may suggest surgery. I am glad to have found a support group, though I am sorry your problem exists. Any advice is welcome. I have been able to eat some foods, it just has taken some adjustments. I have felt bewildered but it can always be worse, I think. Thanks for any input Looking for last minute shopping deals? Find them fast with Search.

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A Smarter Inbox.

February 26, 2008

Sagefox, I sent you a private message naming some doctors. I would

suggest you start with the one who treats heart symptoms. That isn't

just what she treats. I think she would be the top pick for you at

this time. Call around and see what you think.

a Carnes

> Please, please- anyone who knows of any doctor in this state- or

maybe

> Massachusetts, I'm closer to that now that New York, begging for

help as I slip

> under the grip of this disease again.

February 27, 2008

> My feelings are that while I do not want to vaccinate my children

> unecessarily, I feel that there must be some value to some of

them.

> I am someone who believes in gray, not black and white.

#### I have been studying this issue for a few years and can't see

any good to the current vaccines available: they do not offer

immunity, are loaded with toxic chemicals and are very dangerous to

the body, especially the brain. If there ever will be such a thing, a

vaccine that's safe and effective would be a " good thing " .

I really

> need help finding out about the following vaccs: Tetnus, Pertussis,

> and Hib. From what I understand about Tetnus, if you get cut by

> something that has the bacteria on it, if you already have the

> vaccination (within 8-10 years) you will be protected?

#### There has been some good discussion regarding tetanus on this

list this week - check the previous posts. The 8-10 year span - and

every other span associated with tetanus - is based on guess, not

scientific discovery. With tetanus, proper wound care is important

and should prevent infection.

With

> Pertussis, although not life threatening, it is in our school

system

> currently and a nasty disease, does the vaccine prevent all

strains?

#### I have never heard of a vaccine that prevents all strains of a

disease - only a few. As far as I know, pertussis is a childhood

disease that your child can fairly easily overcome (unless immune-

compromised).

> With Hib, can it be truly life threatening, and does the vaccine

> absolutely prevent it forever?

#### From www.thinktwice.com, the death rate is 4% and no, no vaccine

prevents disease forever - most vaccines just plain don't work and

may/will cause disease they're supposed to protect you against.

If I decide to get these vaccs, howe

> can I get them seperately and not all in one o with other ones I

> don't want?

#### You can request them separately, but I believe it's up to the

pediatrician/doctor. Some won't order them for you.

> I apologize if I sound ignorant but that's why I am here. I also

am

> looking for help as to how to find a pediatrician who thinks more

> along these lines (non traditional).

#### I'm in GA so can't help you with the ped - I'm sure someone else

will chime in !!!

Don't apologize - keep reading and educate yourself !! What really

opened my eyes was the video I recently saw by Tocco on Dr.

Mercola's site - it will really open your eyes and make you think.

Here is the link - it's long but you can watch in chapters - it's

really worth the time:

http://articles.mercola.com/sites/articles/archive/2008/2/14/why-

vaccines-aren-t-safe.aspx

Good luck,

Magda

February 27, 2008

Just wanted to say hello and let you know that you are NOT ignorant.

The fact that you are asking questions and looking for real answers is

not the path of an ignorant person. I am also trying to look for the

" answers " to the vaccination puzzle and I look forward to reading the

replies to your questions. Welcome!

>

> Hi All,

>

> First of all...what an amazing resource! I am very excited to have

> found you!

>

> I am a mom of a 2 1/2 yo boy with Down Syndrome who also has many

> medical issues and was vaccinated fully in the NICU while there for 5

> months. I am not altogether happy about this, but that was then.

>

> I now have a 3 month old girl who is healthy and I would like her to

> stay that way! I am in this group for both of them.

>

> I am very overwhelemed by this vaccine thing and at times I want to

> give in because it's the easy way out. I need your help not to do

> this.

> My feelings are that while I do not want to vaccinate my children

> unecessarily, I feel that there must be some value to some of them.

> I am someone who believes in gray, not black and white. I really

> need help finding out about the following vaccs: Tetnus, Pertussis,

> and Hib. From what I understand about Tetnus, if you get cut by

> something that has the bacteria on it, if you already have the

> vaccination (within 8-10 years) you will be protected? With

> Pertussis, although not life threatening, it is in our school system

> currently and a nasty disease, does the vaccine prevent all strains?

> With Hib, can it be truly life threatening, and does the vaccine

> absolutely prevent it forever? If I decide to get these vaccs, howe

> can I get them seperately and not all in one o with other ones I

> don't want?

>

> I apologize if I sound ignorant but that's why I am here. I also am

> looking for help as to how to find a pediatrician who thinks more

> along these lines (non traditional).

>

> Thank you so much,

> l in Londonderry, NH

>

February 27, 2008

Hi l --

Welcome to the group. I'm . I live in NY with DH and we have

two partially vaxed kids - DS had a severe allergic reaction to the

DPT which made us question vaxing. Live and learn.

Sheri has excellent info here -- you can use the search feature on

the Messages page to look for specifics.

You may also want to watch this video, very informative, also very

long, but worth the time IMHO.

http://articles.mercola.com/sites/articles/archive/2008/2/14/why-

vaccines-aren-t-safe.aspx

Health & blessings,

I no longer get a headache when I clean now that my home is CLEAN &

GREEN...and I Save money too!

http://www.shaklee.net/EcoClean/getclean

http://www.shaklee.net/ExcitingHealth

Please consider the environment before printing this e-mail.

February 27, 2008

I had another thought, just to approach this from a different angle:

it's not about not gettting sick - you have to get sick in order to

get your immune system going and strong - it's about strengthening the

body to help fight the disease. So don't fear getting sick -

strengthen the body with good nutrition, exercise, etc so you can get

better faster.

Also, do your research on individual diseases - you'll find they're

not as " deadly " as medical establishment would have you believe. Fear

works against us - arm yourself with knowledge.

Happy learning,

Magda in GA (mom to 3.5 year old unvaxed )

February 27, 2008

Hi l,

I used to live in Merrimack, NH. We lived there for 6 years, in fact,

and now live near SF in CA.

> From what I understand about Tetnus, if you get cut by

> something that has the bacteria on it, if you already have the

> vaccination (within 8-10 years) you will be protected?

Not so much. Tetanus bacteria are in soil and feces, but they cannot

live in the presence of air (they're anaerobic). To get tetanus, a

person would have to get a DEEP puncture wound from something that is

still buried in soil or feces, then not clean the wound. Proper wound

care and the fact that a child's circulatory system is so good prevent

tetanus without a vaccine. Furthermore, once you've had tetanus, you can

still get it again - of course, even getting it once is difficult. I

really researched tetanus because it and diphtheria were the two that I

knew nothing about.

> With

> Pertussis, although not life threatening, it is in our school system

> currently and a nasty disease, does the vaccine prevent all strains?

No. In fact the pertussis vaccine is, by pro-vax accounts, only 59-80%

effective. I can send you the link to that information if you'd like.

Most of the people who get pertussis are vaccinated schoolchildren and

unvaccinated adults.

> With Hib, can it be truly life threatening, and does the vaccine

> absolutely prevent it forever?

No. No vaccine prevents anything forever; even pro-vax people have to

admit that. Natural immunity generally does prevent a person from

getting a disease again, but even that's not a sure thing. There are

people who have had chicken pox twice, for example.

We did do the Hib vaccine, but I'm not sure that we would do that again.

Hib can be - is - truly life threatening to children under age 2. Once a

child hits 5, there is enough bacteria built up in the child's immune

system that Hib and its relatives are no longer a threat. That is, we

become immune naturally. As I said, we did choose the Hib vaccine, but

we started at 7 months. We chose it because it was really the only

disease that threatened children under age 2, and because the vaccine is

relatively safe. (If you check its VAERS numbers, they are very, very

low.) However, since we did it, one batch of Hib vaccines was recalled

and there has been new evidence linking the vaccine to diabetes in children.

> If I decide to get these vaccs, howe

> can I get them seperately and not all in one o with other ones I

> don't want?

No. Pertussis never comes by itself; it only comes with diphtheria and

tetanus.

Tetanus only comes by itself for older children. The tetanus-only

vaccine contains thimerosol.

Hib can be a standalone vaccine. If you wait until your child is 1 year

old, then she only " needs " one shot. Otherwise, it's 3. We did all 3.

I hope this helps!

~Robyn

kerrrachell wrote: