Re: (unknown)

[Guest guest]

You go Bobby!

Matt

Florida

[ ] (unknown)

Hi everyone, my trial nurse just called, my qpcr is 0.456, so it's staying

pretty steady.

Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840? -?? Zavie's Zero Club

09/2006 -? out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

?

[Guest guest]

Hi Galina,

As Karin mentiooned, the understanding of abbreviations is critical in

trying to come up with a total amount for this type of directions.

Chances are you will see one of these on either national exam being

offered.

Simply add up daily incremental totals then add those totals up for

your final answer:

Note we are using 5 mg Tablets

30 mg qd x 3 days would be (6 tabs per day for three days) 18 tabs

20 mg qd x 2 days would be (4 tabs per day for 3 days) 12 tabs

10 mg qd x 3 days would be (2 tabs per day for 3 days) 6 tabs

5 mg qd x 10 days would be ( 1 tab per day for 10 days) 10 tabs

Total: 18 tabs + 12 tabs + 6 tabs + 10 tabs = 46 tabs

Hope this helps

Joe Medina, CPhT

-----------

How many tablets should be dispensed to fill the following

prescription? Prednisone 5mg tabs 30mg qD x 3d, then 20mg qD x 3d, then

10mg qD x 3d, then 5mg qD x 10d, then stop

The correct answer is " 46 " .

12

19

39

46

[Guest guest]

 

ok you need to find out how many tablets to take for each dose.  for example

30mg/5mg tablets =6 tablets, then find out how many for that dose total.  for

example 6x3=18 then add all those totals together.  

From: spokane94 spokane94 (DOT) com

hello Jeanitta,

For some reason I don't understand the directions in this problem.

Need you help!

Thanks.

How many tablets should be dispensed to fill the following

prescription? Prednisone 5mg tabs 30mg qD x 3d, then 20mg qD x 3d, then

10mg qD x 3d, then 5mg qD x 10d, then stop

The correct answer is " 46 " .

12

19

39

46

[Guest guest]

Thank you,

it makes sense now.

 

Re: (unknown)

 

ok you need to find out how many tablets to take for each dose.  for example

30mg/5mg tablets =6 tablets, then find out how many for that dose total.  for

example 6x3=18 then add all those totals together.  

From: spokane94 spokane94 (DOT) com

hello Jeanitta,

For some reason I don't understand the directions in this problem.

Need you help!

Thanks.

How many tablets should be dispensed to fill the following

prescription? Prednisone 5mg tabs 30mg qD x 3d, then 20mg qD x 3d, then

10mg qD x 3d, then 5mg qD x 10d, then stop

The correct answer is " 46 " .

12

19

39

46

[Guest guest]

Congrats Bobby!

Sent from my Verizon Wireless BlackBerry

[ ] (unknown)

Hi everyone, my trial nurse just called, my qpcr is 0.456, so it's staying

pretty steady.

Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840? -?? Zavie's Zero Club

09/2006 -? out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

?

[Guest guest]

Congratulations Bobby. Eva

From: Sionito@...

Sent: Monday, September 22, 2008 7:16 PM

Subject: Re: [ ] (unknown)

Congrats Bobby!

Sent from my Verizon Wireless BlackBerry

[ ] (unknown)

Hi everyone, my trial nurse just called, my qpcr is 0.456, so it's staying

pretty steady.

Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840? -?? Zavie's Zero Club

09/2006 -? out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

?

[Guest guest]

Wow Jackie! I am so happy for you and Landon!

 

Pat Bombardier

[Guest guest]

Wow Jackie! I am so happy for you and Landon!

 

Pat Bombardier

[Guest guest]

Thank you very much, that really did help, and I did have that kind of questions

on my PTCB exam today.

[Guest guest]

Fann,

From reading seems like you been at it just in your environment, the

showers and baths may extract them from you internally. But I think you

need to keep your skin with a repelling oil, as we all know they don't

like scents tea tree I've had a lot of help with and eucalyptus. Fann,

maybe try adding an essential oil to your olive oil. Try it for a week,

don't be discouraged so fast. Believe me there's no such thing as a one

shot kill for these lil bugs, I wish there was. Keep skin hydrated and

clean but I can't stress enough on using a repellant in it.

On Thu, 25 Sep 2008 8:22 pm, Fannou n wrote:

> Thanks Adam for your link on tea tree crem, ill try it!

> Can i ask people if they still feel the bitings when you put olive oil

> on u. I do. I believe they are able to bite anyway. And if i wear my

> boots that are not well desinfected, then they crawl...

> If everybody here do not eel them with oil on them, then i'll start

> believe i have springtail, something for what i don't see issue...

>

> I exterminate yesterday with permetrin (all they wanted to use) we are

> now vaccuming. I have oil on me right now and i feel the biting crazy.

> I am thinking to buy permetrin cream, maby permtrin in the house and on

> me will broke the cycle..

> I just don't know what to do anymore, i got dicouraged and bottered

> with all try.

> Dehumidifier, oil, tea tree oil, cleans...I know it is a long road, but

> i don,t know if it's normal to feel the biting all the time, with oil,

> after a bath and gold bon cream and going on clean sheets...

> Is it?

> Does it stop for you with that....

>

> I hope my extermination will help whatever this is....

>

> So confused

>>> >> >> > > >

>>> >> >> > > >

>>> >> >> > > > My dad sent me $500 last week to buy supplies to fight

>>> >> > this.

>>> >> >> I

>>> >> >> > > spent

>>> >> >> > > > $160 on ivermectin and permetherin. I spent the rest on

>>> >> >> things

>>> >> >> > > like

>>> >> >> > > > mattress covers, pillow covers, bleach, ammonia,

>>> > listerine,

>>> >> >> > > windex,

>>> >> >> > > > borax, trash bags, shampoos...it all adds up so fast.

>> Now

>>> > i

>>> >> >> am

>>> >> >> > > reading

>>> >> >> > > > about dehumidifiers, and am wondering if i should have

>>> >> >> invested

>>> >> >> > > in one

>>> >> >> > > > of those instead. I have a newborn, and would rather

>> not

>>> > be

>>> >> >> > > spraying

>>> >> >> > > > chemicals. Are dehumidifiers really working? Along with

>>> >> > what

>>> >> >> > else?

>>> >> >> > > >

>>> >> >> > >

>>> >> >> >

>>> >> >>

>>> >> >

>>> >> >

>>> >> Adam

>>> >> Rumblers C.C.

>>> >> www.myspace. com/irishbandido

>>> >>

>>> >

>>> >

>>> Adam

>>> Rumblers C.C.

>>> www.myspace. com/irishbandido

>>>

>>

>>

> Adam

> Rumblers C.C.

> www.myspace. com/irishbandido

>

>

Adam

Rumblers C.C.

www.myspace.com/irishbandido

[Guest guest]

That's great news Bobby!  You deserve good news. 

God Bless, Jackie S.

From: Eva <evaob365@...>

Subject: Re: [ ] (unknown)

Date: Monday, September 22, 2008, 7:51 PM

Congratulations Bobby. Eva

From: Sionitoaol (DOT) com

Sent: Monday, September 22, 2008 7:16 PM

groups (DOT) com

Subject: Re: [ ] (unknown)

Congrats Bobby!

Sent from my Verizon Wireless BlackBerry

[ ] (unknown)

Hi everyone, my trial nurse just called, my qpcr is 0.456, so it's staying

pretty steady.

Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840? -?? Zavie's Zero Club

09/2006 -? out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

?

[Guest guest]

Specifically adrenal rushes? The senses can be more keyed up, and we

can at times enter high levels of focus.

On Sun, Sep 28, 2008 at 9:55 AM, Candace Everett

<candace.everett@...> wrote:

> about Autism so I know that some of what was depicted was true. They were

> indicating that autistic children can experience adrenaline rushes that

> surpass the degrees of strength that " main stream " children may experience

[Guest guest]

,

I am sorry you are dealing with this. My daughter is will be 25 at the end of

the month and she also has Stills and is planning to graduate from UT in May

2009. So I understand the struggle. There are a number of medication that your

your rheumotologist will probably true. The problem is that most of them

including plaquenil take some time. My daughter got sick last summer and had

symptoms like the ones you described fro several months. After that initial

onset the fevers and rash and swollen glands became better and ultimately went

away after taking plaquenil and celebrex. She still had joint pain and swelling

but that continued to improve as the year went on.

 

She had another flair of her condition this summer and that was when we finally

got the diagnosis of Stills. She is trying some new medications. All this to be

said  - make sure you have a good rheumotologist that understands Stills and as

everyone has told us be patient as it can take some time to stablize.

 

You will find a great deal of comfort in talking to others in this group and

realize that many have gotten much better and have gone in to remission.

 

I would encourage you to take very good care of yourself and get plenty of rest.

 

God Bless.

Lea

 

 

Subject: (unknown)

To: Stillsdisease

Date: Sunday, October 5, 2008, 7:46 PM

Hello all -

 

I am , I am a 25-year-old clinical microbiology student. I live in Nassau

Bay, Texas with my (very new) husband/partner for the last six years, M. We

share my seven-year-old prodigious daughter, " Bird " .

 

I was recently diagnosed with Still's after a massive 'flare' that lasted from

July until September of this year. It started with the rash, then 104 fevers,

and finally completely debilitating joint pain. The rheumatologist could not

decide on what it was until I spoke with a family friend who happens to be a

retired neurologist, and he said Still's immediately after I presented my

symptoms. I had never heard of it. I told my rheum, and she decided to do an

abdominal ultrasound to confirm. As it turns out, the margins of my spleen are

about 16 cm, which is just about insane, especially for someone of my petite

stature. She said that this, in combination with the rest of the clinical

picture, cemented Still's, and so, here I am.

 

Pharm therapy has rid me of the febrile & urticarial symptoms, however, the

joint pain is incredibly persistent, tho not nearly as ridiculous as it once

was. Also, every time we try to taper off the Prednisone and hope the Plaquenil

will take up the slack, the fever &  rash return (this is my fourth attempt at

tapering). This part really sucks cos I am set to graduate (finally!) in May

2009, and immune-suppression REALLY does not mix well with micro. Is there some

other option??

 

I am very happy to have found the group - nobody I know has ever heard of

Still's, and it's getting kinda lonely out here...

 

--  

A free race cannot be born of slave mothers.

- Margaret Sanger

 

 

[Guest guest]

,

I am sorry you are dealing with this. My daughter is will be 25 at the end of

the month and she also has Stills and is planning to graduate from UT in May

2009. So I understand the struggle. There are a number of medication that your

your rheumotologist will probably true. The problem is that most of them

including plaquenil take some time. My daughter got sick last summer and had

symptoms like the ones you described fro several months. After that initial

onset the fevers and rash and swollen glands became better and ultimately went

away after taking plaquenil and celebrex. She still had joint pain and swelling

but that continued to improve as the year went on.

 

She had another flair of her condition this summer and that was when we finally

got the diagnosis of Stills. She is trying some new medications. All this to be

said  - make sure you have a good rheumotologist that understands Stills and as

everyone has told us be patient as it can take some time to stablize.

 

You will find a great deal of comfort in talking to others in this group and

realize that many have gotten much better and have gone in to remission.

 

I would encourage you to take very good care of yourself and get plenty of rest.

 

God Bless.

Lea

 

 

Subject: (unknown)

To: Stillsdisease

Date: Sunday, October 5, 2008, 7:46 PM

Hello all -

 

I am , I am a 25-year-old clinical microbiology student. I live in Nassau

Bay, Texas with my (very new) husband/partner for the last six years, M. We

share my seven-year-old prodigious daughter, " Bird " .

 

I was recently diagnosed with Still's after a massive 'flare' that lasted from

July until September of this year. It started with the rash, then 104 fevers,

and finally completely debilitating joint pain. The rheumatologist could not

decide on what it was until I spoke with a family friend who happens to be a

retired neurologist, and he said Still's immediately after I presented my

symptoms. I had never heard of it. I told my rheum, and she decided to do an

abdominal ultrasound to confirm. As it turns out, the margins of my spleen are

about 16 cm, which is just about insane, especially for someone of my petite

stature. She said that this, in combination with the rest of the clinical

picture, cemented Still's, and so, here I am.

 

Pharm therapy has rid me of the febrile & urticarial symptoms, however, the

joint pain is incredibly persistent, tho not nearly as ridiculous as it once

was. Also, every time we try to taper off the Prednisone and hope the Plaquenil

will take up the slack, the fever &  rash return (this is my fourth attempt at

tapering). This part really sucks cos I am set to graduate (finally!) in May

2009, and immune-suppression REALLY does not mix well with micro. Is there some

other option??

 

I am very happy to have found the group - nobody I know has ever heard of

Still's, and it's getting kinda lonely out here...

 

--  

A free race cannot be born of slave mothers.

- Margaret Sanger

 

 

[Guest guest]

Welcome ... I developed and was diagnosed with Still's Disease this past

July as well. Don't be surprised at not hearing about Still's before... my

family doctor hadn't heard of it. Thankfully I'm under the care of a great

rheumy.

We're both lucky that we were diagnosed so quickly... some people in this

group were years (even decades) trying to get a name for what was wrong.

I'm being weened off the prednisone as well, and so far my only problem is

increased joint pain for a few days each time we drop it a bit. Once I had

the sore throat return and was a bit feverish as well, but the rash held

off, at least. My rheumy drops me 10mg at a time, which works for me, but he

said we may have to go slower at lower levels... maybe you could talk to

your doctor about slower decreases?

I'm not on plaquenil myself, but I seem to remember someone in the group

saying that they were told it takes a while to kick in. Let's hope it kicks

in before your big graduation! (Gratz, by the way!)

I really felt alone as well until I found this group. While I wouldn't wish

this on anyone, it was nice to know others understood what I was going

through. That, I think, is one of the most upsetting things about it all...

people just not understanding what it is you have or are going through. I

hope you have people who will support you. You do here, at least.

Take care,

[Guest guest]

Welcome ... I developed and was diagnosed with Still's Disease this past

July as well. Don't be surprised at not hearing about Still's before... my

family doctor hadn't heard of it. Thankfully I'm under the care of a great

rheumy.

We're both lucky that we were diagnosed so quickly... some people in this

group were years (even decades) trying to get a name for what was wrong.

I'm being weened off the prednisone as well, and so far my only problem is

increased joint pain for a few days each time we drop it a bit. Once I had

the sore throat return and was a bit feverish as well, but the rash held

off, at least. My rheumy drops me 10mg at a time, which works for me, but he

said we may have to go slower at lower levels... maybe you could talk to

your doctor about slower decreases?

I'm not on plaquenil myself, but I seem to remember someone in the group

saying that they were told it takes a while to kick in. Let's hope it kicks

in before your big graduation! (Gratz, by the way!)

I really felt alone as well until I found this group. While I wouldn't wish

this on anyone, it was nice to know others understood what I was going

through. That, I think, is one of the most upsetting things about it all...

people just not understanding what it is you have or are going through. I

hope you have people who will support you. You do here, at least.

Take care,

[Guest guest]

Welcome ... I developed and was diagnosed with Still's Disease this past

July as well. Don't be surprised at not hearing about Still's before... my

family doctor hadn't heard of it. Thankfully I'm under the care of a great

rheumy.

We're both lucky that we were diagnosed so quickly... some people in this

group were years (even decades) trying to get a name for what was wrong.

I'm being weened off the prednisone as well, and so far my only problem is

increased joint pain for a few days each time we drop it a bit. Once I had

the sore throat return and was a bit feverish as well, but the rash held

off, at least. My rheumy drops me 10mg at a time, which works for me, but he

said we may have to go slower at lower levels... maybe you could talk to

your doctor about slower decreases?

I'm not on plaquenil myself, but I seem to remember someone in the group

saying that they were told it takes a while to kick in. Let's hope it kicks

in before your big graduation! (Gratz, by the way!)

I really felt alone as well until I found this group. While I wouldn't wish

this on anyone, it was nice to know others understood what I was going

through. That, I think, is one of the most upsetting things about it all...

people just not understanding what it is you have or are going through. I

hope you have people who will support you. You do here, at least.

Take care,

[Guest guest]

 welcome first off. I like you had never heard of stills tell I was dx by an out

of state doc at a medical teaching university. but then again my internal doc

, romatologist, oncologist, urologist, and a few others had never heard of it

before so I felt smart also or I should say as smart as them being they did not

know every thing just like me LOL. That was over 8 years ago now. in that time I

had a bad run of things and my life changed in many ways some from stills and

most from living with stills and people that did not and would not understand it

or  live with it and me any more . I also got to enjoy a remission in that time

for a few years and to day have a great life a new wife that is awesome and well

yes I am also no longer in remission at all. I have never had the major joint

problems that may have in that way I feel lucky but I have enjoyed frustrating

my doctors with my fibermialga problems from stills and my organs fun. I do know

once i

stopped trying to have a remission and looking for a cure I started to learn to

live with stills and my life became better slowly yes but over time it also got

better in many way then it was pre stills also crazy as that sounds but it did

 so welcome and hang on it is a wild ride but doable if your holding on tight

enough

hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

If you find yourself in a hole, the first thing to do is stop diggin'.

 

In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

" Taking my gun away because I might shoot someone is like cutting my tongue out

because I might yell `Fire!' in a crowded theater. "

-- Venetoklis

 

a government and its agents are under no general duty to provide public

services, such as police protection, to any particular individual citizen...

-- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181)

[Guest guest]

 welcome first off. I like you had never heard of stills tell I was dx by an out

of state doc at a medical teaching university. but then again my internal doc

, romatologist, oncologist, urologist, and a few others had never heard of it

before so I felt smart also or I should say as smart as them being they did not

know every thing just like me LOL. That was over 8 years ago now. in that time I

had a bad run of things and my life changed in many ways some from stills and

most from living with stills and people that did not and would not understand it

or  live with it and me any more . I also got to enjoy a remission in that time

for a few years and to day have a great life a new wife that is awesome and well

yes I am also no longer in remission at all. I have never had the major joint

problems that may have in that way I feel lucky but I have enjoyed frustrating

my doctors with my fibermialga problems from stills and my organs fun. I do know

once i

stopped trying to have a remission and looking for a cure I started to learn to

live with stills and my life became better slowly yes but over time it also got

better in many way then it was pre stills also crazy as that sounds but it did

 so welcome and hang on it is a wild ride but doable if your holding on tight

enough

hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

If you find yourself in a hole, the first thing to do is stop diggin'.

 

In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

" Taking my gun away because I might shoot someone is like cutting my tongue out

because I might yell `Fire!' in a crowded theater. "

-- Venetoklis

 

a government and its agents are under no general duty to provide public

services, such as police protection, to any particular individual citizen...

-- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181)

[Guest guest]

 welcome first off. I like you had never heard of stills tell I was dx by an out

of state doc at a medical teaching university. but then again my internal doc

, romatologist, oncologist, urologist, and a few others had never heard of it

before so I felt smart also or I should say as smart as them being they did not

know every thing just like me LOL. That was over 8 years ago now. in that time I

had a bad run of things and my life changed in many ways some from stills and

most from living with stills and people that did not and would not understand it

or  live with it and me any more . I also got to enjoy a remission in that time

for a few years and to day have a great life a new wife that is awesome and well

yes I am also no longer in remission at all. I have never had the major joint

problems that may have in that way I feel lucky but I have enjoyed frustrating

my doctors with my fibermialga problems from stills and my organs fun. I do know

once i

stopped trying to have a remission and looking for a cure I started to learn to

live with stills and my life became better slowly yes but over time it also got

better in many way then it was pre stills also crazy as that sounds but it did

 so welcome and hang on it is a wild ride but doable if your holding on tight

enough

hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

If you find yourself in a hole, the first thing to do is stop diggin'.

 

In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

" Taking my gun away because I might shoot someone is like cutting my tongue out

because I might yell `Fire!' in a crowded theater. "

-- Venetoklis

 

a government and its agents are under no general duty to provide public

services, such as police protection, to any particular individual citizen...

-- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181)

[Guest guest]

Sue,

I so happy to here you are feeling better and starting to have more

energy. You take care and stay on the road to recovery.

Keep On Smiling : )

Kathy Sweet

Moderator

(unknown)

Mike

I started the thyroid medication this past Thursday and am already noticing

the difference. I am starting to have more energy, more color in my face, and am

starting to feel better. The headaches were from a sinus infection, was put on

an antibiotiic, and they are almost all gone.

I would love to join the chat, but Teddy and I go to services on Friday night.

Friday is the one night that is not good for me, sorry.

Hope all is well with everyone.

Sue C

Moderator

[Guest guest]

Kathy

 

Thanks, it's been a long, hard struggle, but there's finally a light at the end

of the tunnel!!!!  Good luck with your surgery on Friday.

 

Sue C

Moderator

From: Kathy <teews2@...>

Subject: Re: (unknown)

Stimulator

Date: Wednesday, October 8, 2008, 7:40 PM

Sue,

I so happy to here you are feeling better and starting to have more energy. You

take care and stay on the road to recovery.

Keep On Smiling : )

Kathy Sweet

Moderator

(unknown)

Mike

I started the thyroid medication this past Thursday and am already noticing the

difference. I am starting to have more energy, more color in my face, and am

starting to feel better. The headaches were from a sinus infection, was put on

an antibiotiic, and they are almost all gone.

I would love to join the chat, but Teddy and I go to services on Friday night.

Friday is the one night that is not good for me, sorry.

Hope all is well with everyone.

Sue C

Moderator

[Guest guest]

In message <31624.99241.qm@...> you wrote:

> Can I get some clarification on the last post? We also recently experienced

some mould on a brew when we went to harvest the tea after 14 days. We discarded

the scoby, but saved the finished product. Is it safe to consume? I'm not

impressed by the word " poisonous! "

Ken, I am sympathetic to your misgivings. It's only some forms of mold

that are actually poisonous.

If the liquid smells and tastes o.k. it will probably be.... says I, who'd

go ahead and drink it.

Everyone has to take their own risks. IMO, there would be nothing to worry

about, as the actual mold carrying scoby has been removed.

There are many people on this list who would give the advice:

If in doubt, throw it out.

Sorry I can't provide any certainties.

Margret:-)

--

+------------------ Minstrel@... --------------------+

<)))<>< http://www.therpc.f9.co.uk <)))<><

http://bavarianminstrel.wordpress.com

http://www.AnswersInGenesis.com

In a consecrated life there are no accidents.

[Guest guest]

Sue,

After reading your posts and speaking to the doctor...when he does the

implant he puts in permanent wires so when the second part of the surgery as

they say is the easy part...its just the incision for the battery.....do you

all have your battery in your hip or stomache? If you had to hold the

programmer up to the generator if it is In my hip there is no way in h-ll

that I will be able to do it myself.......

Deb

From: Stimulator [mailto:Stimulator ] On

Behalf Of Corn

Sent: Thursday, October 09, 2008 8:30 AM

stimulator

Subject: (unknown)

Deb

How are you doing? I agree with Kim, you need answers, but the most

important thing right now is to make sure you don't have an infection.

Did your pain mangement doctor or a surgeon do the trial? Everything should

have been explained to you before the trial. It's your right to know why

he/she had to make such a large incision. The incision for my implant is

only l and a half to 2 inches long. If a doctor does not answer my

questions, or have my best interest at heart, I change doctors. I have done

this several times in the past year and half.

Sue C

Moderator

[Guest guest]

Margee

 

It's normal to be nervous, but you now have a place to vent this feeling. I was

injured in l999. It took me 4 years to find a doctor to diagnosis me with the

RSD. During that time, I went from doctor to doctor to doctor trying to find an

answer as to why I wasn't getting any better, only worse.  I had 2 shoulder

surgeries, trigger point injections, acupuncture, massage therapy, physical

therapy and I was still in the most horrific pain, No one could give me an

answer, some were telling me there wasn't anything wrong, it was is my head.

Thank God, I found the pain doctor that I use now. She started with the nerve

block injections. They helped, but only for a while. Some lasted alot longer

than others. She knew I needed the spinal cord stimulator, but you have to go

through the process of having the nerve block injections first. It was

frustrating and annoying, but there's nothing that can be can about it.

Hopefully you get some relief from the injections.  You want to explore every

possibily before you have more surgery.  

 

Sue C

Moderator

 

 

 

From: Margee' <48margee@...>

Subject: (unknown)

Stimulator

Date: Thursday, October 9, 2008, 3:46 PM

I'm so glad I found this group when I did.

Where did they start with you?

My life changed after an auto accident, I ended up having an Anterior

Discectomy with Fusion of C-4 through C-7. My pain increased about 7

months afterwards.

We knew going in with the spinal surgery that later down the road

there's a good chance of more surgery. Right now they are trying to

avoid doing more surgery this soon.

I already had other health problems so this added to them.

I guess on the 15th, I'll find out how my Medial Branch Block for

Facet Joints, really nervous about it. This is Step One for me.

>

> Margee

>  

> I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

problems in my neck, and back, slight case of spinal stensosis,

arthriths. I was recently diagnosed with hypopituitarism

and hypothyroidism. I know how terrified and confused you are. I've

been there and back. Living in chronic pain, effects everything in our

lives. I tried everything there was to alleviate my pain before having

the implants. Nothing worked.

> The SCSs and pain pump have made a tremendous difference in the

quality of my life. They are not a cure all, but they certainly reduce

the amount of pain you have and increase your mobility. The lumbar SCS

kept me out of a wheelchair and kept me from having to have a lumbar

spinal fusion surgery. The cervical SCS gave me back the mobility in

my right arm.                                 The beauty of this group

is that everyone here is going through the same thing. We can all

share our experiences and exchange our information.  You're in a place

with experts in the field of SCS!!

> If you have any questions or would like any other information,

please feel free to contact me.

>  

> Sue C

> Moderator

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