Re: (unknown)

[Guest guest]

Thank you, I sure don't want more spinal surgery any time soon.

So next Wed. will be my first spinal block, we'll see how it goes!

> >

> > Margee

> >  

> > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> problems in my neck, and back, slight case of spinal stensosis,

> arthriths. I was recently diagnosed with hypopituitarism

> and hypothyroidism. I know how terrified and confused you are. I've

> been there and back. Living in chronic pain, effects everything in our

> lives. I tried everything there was to alleviate my pain before having

> the implants. Nothing worked.

> > The SCSs and pain pump have made a tremendous difference in the

> quality of my life. They are not a cure all, but they certainly reduce

> the amount of pain you have and increase your mobility. The lumbar SCS

> kept me out of a wheelchair and kept me from having to have a lumbar

> spinal fusion surgery. The cervical SCS gave me back the mobility in

> my right arm.                                 The beauty of this group

> is that everyone here is going through the same thing. We can all

> share our experiences and exchange our information.  You're in a place

> with experts in the field of SCS!!

> > If you have any questions or would like any other information,

> please feel free to contact me.

> >  

> > Sue C

> > Moderator

> >  

> >  

> >  

> >

> >

> >

> >

> >

[Guest guest]

Are you doing these awake or asleep? I have had them all done asleep with a

drug called propofol....I love it...you wake up feeling like you slept all

night

Deb RN

From: Stimulator [mailto:Stimulator ] On

Behalf Of Margee'

Sent: Thursday, October 09, 2008 6:34 PM

Stimulator

Subject: Re: (unknown)

Thank you, I sure don't want more spinal surgery any time soon.

So next Wed. will be my first spinal block, we'll see how it goes!

> >

> > Margee

> >

> > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> problems in my neck, and back, slight case of spinal stensosis,

> arthriths. I was recently diagnosed with hypopituitarism

> and hypothyroidism. I know how terrified and confused you are. I've

> been there and back. Living in chronic pain, effects everything in our

> lives. I tried everything there was to alleviate my pain before having

> the implants. Nothing worked.

> > The SCSs and pain pump have made a tremendous difference in the

> quality of my life. They are not a cure all, but they certainly reduce

> the amount of pain you have and increase your mobility. The lumbar SCS

> kept me out of a wheelchair and kept me from having to have a lumbar

> spinal fusion surgery. The cervical SCS gave me back the mobility in

> my right arm. The beauty of this group

> is that everyone here is going through the same thing. We can all

> share our experiences and exchange our information. You're in a place

> with experts in the field of SCS!!

> > If you have any questions or would like any other information,

> please feel free to contact me.

> >

> > Sue C

> > Moderator

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Sue,

I do not know if he used flouro or not...probably did not need to as I was

filleted open.........how do you feel about the pain pump? Was that done

before or after the stimulator? How well does it work? Do you still have

to take oral drugs? How often do you have the pump refilled? Does it hurt?

What kind of meds are in your pump? Thanks for all of your help I greatly

appreciate it.....the drainage slows down till I start going up and down the

steps.

Deb

From: Stimulator [mailto:Stimulator ] On

Behalf Of Corn

Sent: Thursday, October 09, 2008 5:11 PM

stimulator

Subject: (unknown)

Deb

I don't blame you for being angry and confused. I would be furious if it was

me. The doctor should have told you that there was a problem, and told you

that he had to do surgery before he did it. You had a right to know what was

going to happen before it happened.

I have never heard of having the wires implanted during the trial. The whole

purpose of the trial is to see if the stimulator is going to work. If it

isn't going to help, they don't do the implant, avoiding unneccessary

surgery. This doesn't make sense to me.

I have one battery above my waist and the other below the bra line on the

side of my back. My pain pump is in my stomach. The remote that controls

the stimulator doesn't have to be right against the battery pack. How is the

drainage? drainage is normal, but from what you said, it sounded alot more

than simple drainage. Did the doctor do the procedure under the guide of

X-ray equipment? Hope this helps

Sue C

Moderator

[Guest guest]

My doctor uses light sedation  while doing the nerve blocks, facet injections,

stellate injections, epidurals, etc. . You are relaxed, but still awake. This

way you can feel the medication being injected into you, without the pain. . She

does the injections under X-ray, but can get the feed back from you since you

are awake. The best of both worlds.

 

Sue C

Moderator

From: Debra <i_ownaberner@...>

Subject: RE: Re: (unknown)

Stimulator

Date: Friday, October 10, 2008, 1:12 AM

Are you doing these awake or asleep? I have had them all done asleep with a

drug called propofol.... I love it...you wake up feeling like you slept all

night

Deb RN

From: Stimulator@gro ups.com [mailto:Stimulator@gro ups.com] On

Behalf Of Margee'

Sent: Thursday, October 09, 2008 6:34 PM

Stimulator@gro ups.com

Subject: Re: (unknown)

Thank you, I sure don't want more spinal surgery any time soon.

So next Wed. will be my first spinal block, we'll see how it goes!

> >

> > Margee

> >

> > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> problems in my neck, and back, slight case of spinal stensosis,

> arthriths. I was recently diagnosed with hypopituitarism

> and hypothyroidism. I know how terrified and confused you are. I've

> been there and back. Living in chronic pain, effects everything in our

> lives. I tried everything there was to alleviate my pain before having

> the implants. Nothing worked.

> > The SCSs and pain pump have made a tremendous difference in the

> quality of my life. They are not a cure all, but they certainly reduce

> the amount of pain you have and increase your mobility. The lumbar SCS

> kept me out of a wheelchair and kept me from having to have a lumbar

> spinal fusion surgery. The cervical SCS gave me back the mobility in

> my right arm. The beauty of this group

> is that everyone here is going through the same thing. We can all

> share our experiences and exchange our information. You're in a place

> with experts in the field of SCS!!

> > If you have any questions or would like any other information,

> please feel free to contact me.

> >

> > Sue C

> > Moderator

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Deb

 

No need to thank me. I'm glad to help. I wish I had someone to guide me when I

was going through my own nightmare.

I highly recommend both the SCS and the pain pump. Both have changed my life. I

had the SCSs implanted first. The pump was implanted about a year later. I only

have morphine in the pump. I have it refilled about every 3 months. Depending on

the dosage of medication you are receiving you might have to have it filled much

sooner, or later. It doesn't hurt to refill it. There's a port in the pump. The

dr. first removes any remaining medication with a syringe through the port, then

he refills the pump with the new medication through the port.   My tank is full,

and I'm good to go. LOL.  I don't take any other prescription pain killers. If I

need anything, I'll take extra strength tynlenol. My pain was tolerable, until

last year, when I developed other health problems. It took until recently to

diagnosis the problem. I have hypopituitarism and hypothyroidism. This was

causing all my extra pain that was causing my pain levels to go through the

roof. Now

that I'm on medication for my new health conditions, that pain has just about

gone away. My pain has again become tolerable.

How long did the doctor say the incision should be draining? Is it a bright red,

or a dark brown? I'm not a doctor, but I don't think it should still be

draining. Did the doctor see it, or did you just talk to him?

 

Sue C

Moderator

From: Debra <i_ownaberner@...>

Subject: RE: (unknown)

Stimulator

Date: Friday, October 10, 2008, 1:46 AM

Sue,

I do not know if he used flouro or not...probably did not need to as I was

filleted open........ .how do you feel about the pain pump? Was that done

before or after the stimulator? How well does it work? Do you still have

to take oral drugs? How often do you have the pump refilled? Does it hurt?

What kind of meds are in your pump? Thanks for all of your help I greatly

appreciate it.....the drainage slows down till I start going up and down the

steps.

Deb

From: Stimulator@gro ups.com [mailto:Stimulator@gro ups.com] On

Behalf Of Corn

Sent: Thursday, October 09, 2008 5:11 PM

stimulator@gro ups.com

Subject: (unknown)

Deb

I don't blame you for being angry and confused. I would be furious if it was

me. The doctor should have told you that there was a problem, and told you

that he had to do surgery before he did it. You had a right to know what was

going to happen before it happened.

I have never heard of having the wires implanted during the trial. The whole

purpose of the trial is to see if the stimulator is going to work. If it

isn't going to help, they don't do the implant, avoiding unneccessary

surgery. This doesn't make sense to me.

I have one battery above my waist and the other below the bra line on the

side of my back. My pain pump is in my stomach. The remote that controls

the stimulator doesn't have to be right against the battery pack. How is the

drainage? drainage is normal, but from what you said, it sounded alot more

than simple drainage. Did the doctor do the procedure under the guide of

X-ray equipment? Hope this helps

Sue C

Moderator

[Guest guest]

Procedure will be done under local anesthesia. he said most patients

receive intravenous sedation and analgesia, amount depends on patient.

This is all I know.

I sure hope it's not painful, I'm not dealing with pain well right

now. I had a bad day yesterday, first bad day since I went on

Gabapentin(generic for Nuerontin).

> > >

> > > Margee

> > >

> > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > problems in my neck, and back, slight case of spinal stensosis,

> > arthriths. I was recently diagnosed with hypopituitarism

> > and hypothyroidism. I know how terrified and confused you are. I've

> > been there and back. Living in chronic pain, effects everything in our

> > lives. I tried everything there was to alleviate my pain before having

> > the implants. Nothing worked.

> > > The SCSs and pain pump have made a tremendous difference in the

> > quality of my life. They are not a cure all, but they certainly reduce

> > the amount of pain you have and increase your mobility. The lumbar SCS

> > kept me out of a wheelchair and kept me from having to have a lumbar

> > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > my right arm. The beauty of this group

> > is that everyone here is going through the same thing. We can all

> > share our experiences and exchange our information. You're in a place

> > with experts in the field of SCS!!

> > > If you have any questions or would like any other information,

> > please feel free to contact me.

> > >

> > > Sue C

> > > Moderator

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Yes, my doctor will be doing it that way. He'll have to be careful

with me, I will go out easily. In the past with operations, they try

to give me something to relax and it puts me asleep.

Only 5 more days until my procedure, getting really nervous about it.

> > >

> > > Margee

> > >

> > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > problems in my neck, and back, slight case of spinal stensosis,

> > arthriths. I was recently diagnosed with hypopituitarism

> > and hypothyroidism. I know how terrified and confused you are. I've

> > been there and back. Living in chronic pain, effects everything in our

> > lives. I tried everything there was to alleviate my pain before having

> > the implants. Nothing worked.

> > > The SCSs and pain pump have made a tremendous difference in the

> > quality of my life. They are not a cure all, but they certainly reduce

> > the amount of pain you have and increase your mobility. The lumbar SCS

> > kept me out of a wheelchair and kept me from having to have a lumbar

> > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > my right arm. The beauty of this group

> > is that everyone here is going through the same thing. We can all

> > share our experiences and exchange our information. You're in a place

> > with experts in the field of SCS!!

> > > If you have any questions or would like any other information,

> > please feel free to contact me.

> > >

> > > Sue C

> > > Moderator

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I can't have morphine, causes nausea and panic attacks.

Was really bad after my spinal surgery in May 07, I told the nurse not

to give me any, she said she would give me half dose.

Well then when I got sick all over, not fun in a spinal collar either,

she got mad at me.

Then my Nuerosurgeon's assistant spent all night with me trying to

talk me through panic attacks.It was a very long night for both of us.

>

> From: Debra <i_ownaberner@...>

> Subject: RE: (unknown)

> Stimulator

> Date: Friday, October 10, 2008, 1:46 AM

>

>

>

>

>

>

> Sue,

>

> I do not know if he used flouro or not...probably did not need to as

I was

> filleted open........ .how do you feel about the pain pump? Was that

done

> before or after the stimulator? How well does it work? Do you still have

> to take oral drugs? How often do you have the pump refilled? Does it

hurt?

> What kind of meds are in your pump? Thanks for all of your help I

greatly

> appreciate it.....the drainage slows down till I start going up and

down the

> steps.

>

> Deb

>

> From: Stimulator@gro ups.com [mailto:Stimulator@gro

ups.com] On

> Behalf Of Corn

> Sent: Thursday, October 09, 2008 5:11 PM

> stimulator@gro ups.com

> Subject: (unknown)

>

> Deb

>

> I don't blame you for being angry and confused. I would be furious

if it was

> me. The doctor should have told you that there was a problem, and

told you

> that he had to do surgery before he did it. You had a right to know

what was

> going to happen before it happened.

> I have never heard of having the wires implanted during the trial.

The whole

> purpose of the trial is to see if the stimulator is going to work. If it

> isn't going to help, they don't do the implant, avoiding unneccessary

> surgery. This doesn't make sense to me.

> I have one battery above my waist and the other below the bra line

on the

> side of my back. My pain pump is in my stomach. The remote that controls

> the stimulator doesn't have to be right against the battery pack.

How is the

> drainage? drainage is normal, but from what you said, it sounded

alot more

> than simple drainage. Did the doctor do the procedure under the guide of

> X-ray equipment? Hope this helps

>

> Sue C

> Moderator

>

>

[Guest guest]

Margee

 

There are other medications that can be used in the pump, besides morphine.

When are these doctors and nurses going to learn to listen to their patients!!! 

In the future, just refuse to take the morphine and insist on another

medication. That is your right.  I have learned to speak up for myself, we must

advocate for ourselves, for our health, for our lives.

 

Sue C

Moderator

From: Margee' <48margee@...>

Subject: Re: (unknown)

Stimulator

Date: Friday, October 10, 2008, 11:36 AM

I can't have morphine, causes nausea and panic attacks.

Was really bad after my spinal surgery in May 07, I told the nurse not

to give me any, she said she would give me half dose.

Well then when I got sick all over, not fun in a spinal collar either,

she got mad at me.

Then my Nuerosurgeon' s assistant spent all night with me trying to

talk me through panic attacks.It was a very long night for both of us.

>

> From: Debra <i_ownaberner@ ...>

> Subject: RE: (unknown)

> Stimulator@gro ups.com

> Date: Friday, October 10, 2008, 1:46 AM

>

>

>

>

>

>

> Sue,

>

> I do not know if he used flouro or not...probably did not need to as

I was

> filleted open........ .how do you feel about the pain pump? Was that

done

> before or after the stimulator? How well does it work? Do you still have

> to take oral drugs? How often do you have the pump refilled? Does it

hurt?

> What kind of meds are in your pump? Thanks for all of your help I

greatly

> appreciate it.....the drainage slows down till I start going up and

down the

> steps.

>

> Deb

>

> From: Stimulator@gro ups.com [mailto:Stimulator@ gro

ups.com] On

> Behalf Of Corn

> Sent: Thursday, October 09, 2008 5:11 PM

> stimulator@gro ups.com

> Subject: (unknown)

>

> Deb

>

> I don't blame you for being angry and confused. I would be furious

if it was

> me. The doctor should have told you that there was a problem, and

told you

> that he had to do surgery before he did it. You had a right to know

what was

> going to happen before it happened.

> I have never heard of having the wires implanted during the trial.

The whole

> purpose of the trial is to see if the stimulator is going to work. If it

> isn't going to help, they don't do the implant, avoiding unneccessary

> surgery. This doesn't make sense to me.

> I have one battery above my waist and the other below the bra line

on the

> side of my back. My pain pump is in my stomach. The remote that controls

> the stimulator doesn't have to be right against the battery pack.

How is the

> drainage? drainage is normal, but from what you said, it sounded

alot more

> than simple drainage. Did the doctor do the procedure under the guide of

> X-ray equipment? Hope this helps

>

> Sue C

> Moderator

>

>

[Guest guest]

My Dr does not use sedation, but he gives me valium

> > >

> > > Margee

> > >

> > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > problems in my neck, and back, slight case of spinal stensosis,

> > arthriths. I was recently diagnosed with hypopituitarism

> > and hypothyroidism. I know how terrified and confused you are. I've

> > been there and back. Living in chronic pain, effects everything in

our

> > lives. I tried everything there was to alleviate my pain before

having

> > the implants. Nothing worked.

> > > The SCSs and pain pump have made a tremendous difference in the

> > quality of my life. They are not a cure all, but they certainly

reduce

> > the amount of pain you have and increase your mobility. The lumbar

SCS

> > kept me out of a wheelchair and kept me from having to have a lumbar

> > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > my right arm. The beauty of this group

> > is that everyone here is going through the same thing. We can all

> > share our experiences and exchange our information. You're in a

place

> > with experts in the field of SCS!!

> > > If you have any questions or would like any other information,

> > please feel free to contact me.

> > >

> > > Sue C

> > > Moderator

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

It does the same thing. It relaxes you without putting you to sleep. The only

difference is that the Valium is taken orally.

 

Sue C

Moderator

From: cobranine <cobranine@...>

Subject: Re: (unknown)

Stimulator

Date: Friday, October 10, 2008, 2:20 PM

My Dr does not use sedation, but he gives me valium

> > >

> > > Margee

> > >

> > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > problems in my neck, and back, slight case of spinal stensosis,

> > arthriths. I was recently diagnosed with hypopituitarism

> > and hypothyroidism. I know how terrified and confused you are. I've

> > been there and back. Living in chronic pain, effects everything in

our

> > lives. I tried everything there was to alleviate my pain before

having

> > the implants. Nothing worked.

> > > The SCSs and pain pump have made a tremendous difference in the

> > quality of my life. They are not a cure all, but they certainly

reduce

> > the amount of pain you have and increase your mobility. The lumbar

SCS

> > kept me out of a wheelchair and kept me from having to have a lumbar

> > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > my right arm. The beauty of this group

> > is that everyone here is going through the same thing. We can all

> > share our experiences and exchange our information. You're in a

place

> > with experts in the field of SCS!!

> > > If you have any questions or would like any other information,

> > please feel free to contact me.

> > >

> > > Sue C

> > > Moderator

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Margee,

If your doc is an anesthesia doc...ask for propofol.....BUT ask them to mix

some lidocaine with the drug (they probably already do...some only do when

patient asks)..the drug burns lido relieves burning....with valium and

versed etc you feel drugged all day..with propofol it is deeper sedation

that wears off quickly

Deb RN

From: Stimulator [mailto:Stimulator ] On

Behalf Of Corn

Sent: Friday, October 10, 2008 8:37 AM

Stimulator

Subject: Re: Re: (unknown)

Margeee

This is how I get my nerve blocks. They aren't painful.You are aware of

everything that is going on, but you are sedated.

I had a bad reaction to the Neurontin and had to stop it. If you had a

reaction to it, the doctor can change the medication.

Sue C

Moderator

From: Margee' <48margee@... <mailto:48margee%40clearwire.net>

I

Subject: Re: (unknown)

Stimulator <mailto:Stimulator%40>

Date: Friday, October 10, 2008, 11:28 AM

Procedure will be done under local anesthesia. he said most patients

receive intravenous sedation and analgesia, amount depends on patient.

This is all I know.

I sure hope it's not painful, I'm not dealing with pain well right

now. I had a bad day yesterday, first bad day since I went on

Gabapentin(generic for Nuerontin).

> > >

> > > Margee

> > >

> > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > problems in my neck, and back, slight case of spinal stensosis,

> > arthriths. I was recently diagnosed with hypopituitarism

> > and hypothyroidism. I know how terrified and confused you are. I've

> > been there and back. Living in chronic pain, effects everything in our

> > lives. I tried everything there was to alleviate my pain before having

> > the implants. Nothing worked.

> > > The SCSs and pain pump have made a tremendous difference in the

> > quality of my life. They are not a cure all, but they certainly reduce

> > the amount of pain you have and increase your mobility. The lumbar SCS

> > kept me out of a wheelchair and kept me from having to have a lumbar

> > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > my right arm. The beauty of this group

> > is that everyone here is going through the same thing. We can all

> > share our experiences and exchange our information. You're in a place

> > with experts in the field of SCS!!

> > > If you have any questions or would like any other information,

> > please feel free to contact me.

> > >

> > > Sue C

> > > Moderator

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

All you have to do is say you are " allergic " to it and they dont dare give it to

you!

Doesnt matter what kind of reaction it caused

Most places dont even ask what reaction you had to the medicaton.

That works when they dont listen!

(unknown)

>

> Deb

>

> I don't blame you for being angry and confused. I would be furious

if it was

> me. The doctor should have told you that there was a problem, and

told you

> that he had to do surgery before he did it. You had a right to know

what was

> going to happen before it happened.

> I have never heard of having the wires implanted during the trial.

The whole

> purpose of the trial is to see if the stimulator is going to work. If it

> isn't going to help, they don't do the implant, avoiding unneccessary

> surgery. This doesn't make sense to me.

> I have one battery above my waist and the other below the bra line

on the

> side of my back. My pain pump is in my stomach. The remote that controls

> the stimulator doesn't have to be right against the battery pack.

How is the

> drainage? drainage is normal, but from what you said, it sounded

alot more

> than simple drainage. Did the doctor do the procedure under the guide of

> X-ray equipment? Hope this helps

>

> Sue C

> Moderator

>

>

[Guest guest]

Margee

They usually give you a small amount of the drug cocktail that they use and see

how you react to it. If you are out then they dont give you anymore.

I go out pretty easily too and most of mine it was give me the dose and lights

out for the most part.

I do remember about 2 seconds of pain or pressure but thats it.

Much easier than surgery or even some stupid CT scans where I had to drink that

crap for it to work.

Kim

Re: (unknown)

Procedure will be done under local anesthesia. he said most patients

receive intravenous sedation and analgesia, amount depends on patient.

This is all I know.

I sure hope it's not painful, I'm not dealing with pain well right

now. I had a bad day yesterday, first bad day since I went on

Gabapentin(generic for Nuerontin).

> > >

> > > Margee

> > >

> > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > problems in my neck, and back, slight case of spinal stensosis,

> > arthriths. I was recently diagnosed with hypopituitarism

> > and hypothyroidism. I know how terrified and confused you are. I've

> > been there and back. Living in chronic pain, effects everything in our

> > lives. I tried everything there was to alleviate my pain before having

> > the implants. Nothing worked.

> > > The SCSs and pain pump have made a tremendous difference in the

> > quality of my life. They are not a cure all, but they certainly reduce

> > the amount of pain you have and increase your mobility. The lumbar SCS

> > kept me out of a wheelchair and kept me from having to have a lumbar

> > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > my right arm. The beauty of this group

> > is that everyone here is going through the same thing. We can all

> > share our experiences and exchange our information. You're in a place

> > with experts in the field of SCS!!

> > > If you have any questions or would like any other information,

> > please feel free to contact me.

> > >

> > > Sue C

> > > Moderator

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I totally agree with this even though I have not had mine yet. What if the trial

does not work and you have to have it removed? Then you have gone through all

that surgery for naught.

Just my thoughts

Kim

(unknown)

Deb

I don't blame you for being angry and confused. I would be furious if it was

me. The doctor should have told you that there was a problem, and told you that

he had to do surgery before he did it. You had a right to know what was going to

happen before it happened.

I have never heard of having the wires implanted during the trial. The whole

purpose of the trial is to see if the stimulator is going to work. If it isn't

going to help, they don't do the implant, avoiding unneccessary surgery. This

doesn't make sense to me.

I have one battery above my waist and the other below the bra line on the side

of my back. My pain pump is in my stomach. The remote that controls the

stimulator doesn't have to be right against the battery pack. How is the

drainage? drainage is normal, but from what you said, it sounded alot more than

simple drainage. Did the doctor do the procedure under the guide of X-ray

equipment? Hope this helps

Sue C

Moderator

[Guest guest]

Hello,

I have the scoop....my doctor always puts in permanent wires BECAUSE he used

to do temporary wires and the patient was thrilled and then when he placed

the permanent wires it wasn't covering the patients pain...and he couldn't

get it right and the patient was upset and disappointed...that is why he

does it the way he does. In the future the doc should not give patients the

company video he really needs to make his own pre op teaching stuff....well

I am lucky it does work and is being implanted on Wed....

Deb

From: Stimulator [mailto:Stimulator ] On

Behalf Of kimleach

Sent: Friday, October 10, 2008 1:19 PM

Stimulator

Subject: Re: (unknown)

I totally agree with this even though I have not had mine yet. What if the

trial does not work and you have to have it removed? Then you have gone

through all that surgery for naught.

Just my thoughts

Kim

(unknown)

Deb

I don't blame you for being angry and confused. I would be furious if it was

me. The doctor should have told you that there was a problem, and told you

that he had to do surgery before he did it. You had a right to know what was

going to happen before it happened.

I have never heard of having the wires implanted during the trial. The whole

purpose of the trial is to see if the stimulator is going to work. If it

isn't going to help, they don't do the implant, avoiding unneccessary

surgery. This doesn't make sense to me.

I have one battery above my waist and the other below the bra line on the

side of my back. My pain pump is in my stomach. The remote that controls the

stimulator doesn't have to be right against the battery pack. How is the

drainage? drainage is normal, but from what you said, it sounded alot more

than simple drainage. Did the doctor do the procedure under the guide of

X-ray equipment? Hope this helps

Sue C

Moderator

[Guest guest]

That the first time I heard a Doctor do that. mike owner

>

> Hello,

>

> I have the scoop....my doctor always puts in permanent wires

BECAUSE he used

> to do temporary wires and the patient was thrilled and then when he

placed

> the permanent wires it wasn't covering the patients pain...and he

couldn't

> get it right and the patient was upset and disappointed...that is

why he

> does it the way he does. In the future the doc should not give

patients the

> company video he really needs to make his own pre op teaching

stuff....well

> I am lucky it does work and is being implanted on Wed....

>

> Deb

>

>

>

> From: Stimulator

[mailto:Stimulator ] On

> Behalf Of kimleach

> Sent: Friday, October 10, 2008 1:19 PM

> Stimulator

> Subject: Re: (unknown)

>

>

>

> I totally agree with this even though I have not had mine yet. What

if the

> trial does not work and you have to have it removed? Then you have

gone

> through all that surgery for naught.

> Just my thoughts

> Kim

> (unknown)

>

> Deb

>

> I don't blame you for being angry and confused. I would be furious

if it was

> me. The doctor should have told you that there was a problem, and

told you

> that he had to do surgery before he did it. You had a right to know

what was

> going to happen before it happened.

> I have never heard of having the wires implanted during the trial.

The whole

> purpose of the trial is to see if the stimulator is going to work.

If it

> isn't going to help, they don't do the implant, avoiding

unneccessary

> surgery. This doesn't make sense to me.

> I have one battery above my waist and the other below the bra line

on the

> side of my back. My pain pump is in my stomach. The remote that

controls the

> stimulator doesn't have to be right against the battery pack. How

is the

> drainage? drainage is normal, but from what you said, it sounded

alot more

> than simple drainage. Did the doctor do the procedure under the

guide of

> X-ray equipment? Hope this helps

>

> Sue C

> Moderator

>

>

[Guest guest]

I never heard of it being done that way either. I never heard of permant wires

placed during a trial. Good luck with the implant

 

Sue C

Moderator

From: Mike <mike2boys@...>

Subject: Re: (unknown)

Stimulator

Date: Friday, October 10, 2008, 9:27 PM

That the first time I heard a Doctor do that. mike owner

>

> Hello,

>

> I have the scoop....my doctor always puts in permanent wires

BECAUSE he used

> to do temporary wires and the patient was thrilled and then when he

placed

> the permanent wires it wasn't covering the patients pain...and he

couldn't

> get it right and the patient was upset and disappointed. ..that is

why he

> does it the way he does. In the future the doc should not give

patients the

> company video he really needs to make his own pre op teaching

stuff....well

> I am lucky it does work and is being implanted on Wed....

>

> Deb

>

>

>

> From: Stimulator@gro ups.com

[mailto:Stimulator@gro ups.com] On

> Behalf Of kimleach

> Sent: Friday, October 10, 2008 1:19 PM

> Stimulator@gro ups.com

> Subject: Re: (unknown)

>

>

>

> I totally agree with this even though I have not had mine yet. What

if the

> trial does not work and you have to have it removed? Then you have

gone

> through all that surgery for naught.

> Just my thoughts

> Kim

> (unknown)

>

> Deb

>

> I don't blame you for being angry and confused. I would be furious

if it was

> me. The doctor should have told you that there was a problem, and

told you

> that he had to do surgery before he did it. You had a right to know

what was

> going to happen before it happened.

> I have never heard of having the wires implanted during the trial.

The whole

> purpose of the trial is to see if the stimulator is going to work.

If it

> isn't going to help, they don't do the implant, avoiding

unneccessary

> surgery. This doesn't make sense to me.

> I have one battery above my waist and the other below the bra line

on the

> side of my back. My pain pump is in my stomach. The remote that

controls the

> stimulator doesn't have to be right against the battery pack. How

is the

> drainage? drainage is normal, but from what you said, it sounded

alot more

> than simple drainage. Did the doctor do the procedure under the

guide of

> X-ray equipment? Hope this helps

>

> Sue C

> Moderator

>

>

[Guest guest]

Margee,

I am also allergic to morphine which is why I have Fentanyl - synthetic morphine

- in my pump.

[Guest guest]

http://whale.to/a/india2.html

(unknown)

In India's vaccination schedule there's a measles shot included at nine

months. I guess this was the reason this poor baby got it. There were four? more

baby deaths in the state of Maharashtra few weeks back after the MMR shot. Let

me find the link. It's really terrible.

[Guest guest]

>

> http://whale.to/a/india2.html

>

Thanks for that link...I had no idea there was such a big section for

India on your site.

[Guest guest]

He told me he'd make it so I was comfortable.

> > > >

> > > > Margee

> > > >

> > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc

> > > problems in my neck, and back, slight case of spinal stensosis,

> > > arthriths. I was recently diagnosed with hypopituitarism

> > > and hypothyroidism. I know how terrified and confused you are. I've

> > > been there and back. Living in chronic pain, effects everything

in our

> > > lives. I tried everything there was to alleviate my pain before

having

> > > the implants. Nothing worked.

> > > > The SCSs and pain pump have made a tremendous difference in the

> > > quality of my life. They are not a cure all, but they certainly

reduce

> > > the amount of pain you have and increase your mobility. The

lumbar SCS

> > > kept me out of a wheelchair and kept me from having to have a lumbar

> > > spinal fusion surgery. The cervical SCS gave me back the mobility in

> > > my right arm. The beauty of this group

> > > is that everyone here is going through the same thing. We can all

> > > share our experiences and exchange our information. You're in a

place

> > > with experts in the field of SCS!!

> > > > If you have any questions or would like any other information,

> > > please feel free to contact me.

> > > >

> > > > Sue C

> > > > Moderator

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Oh, I've never heard of that.

My Mom has problems with Morphine too, once they gave it to her during

one of her back surgeries and her heart stopped. Took them awhile to

get her heart going again.

>

> Margee,

> I am also allergic to morphine which is why I have Fentanyl -

synthetic morphine - in my pump.

>

>

>

[Guest guest]

In South Africa, children also get a Measles shot at 9 months, my oldest son had

a reaction 10 days after receiving this shot.

(unknown)

In India's vaccination schedule there's a measles shot included at nine

months. I guess this was the reason this poor baby got it. There were four? more

baby deaths in the state of Maharashtra few weeks back after the MMR shot. Let

me find the link. It's really terrible.

[Guest guest]

I have heard that 10 days after is a very common time for the MMR reaction. My

son had one then, too--to the day.

Winnie

(unknown)

>

>

> In India's vaccination schedule there's a measles shot

> included at nine months. I guess this was the reason this poor

> baby got it. There were four? more baby deaths in the state of

> Maharashtra few weeks back after the MMR shot. Let me find the

> link. It's really terrible.

>

>