Re: (unknown)

June 11, 2009

It will be alright

________________________________

From: Nilda <nindy327@...>

Hepatitis C

Sent: Thursday, June 11, 2009 9:06:57 AM

Subject: (unknown)

Its me Nilda, not in a good day, I woke up today thinking only about my HeP c. I

am very depress

June 11, 2009

Hi Margaret,

Â

When you say mild reactions, please share what they were? I started LDN, 1.5mg three evenings ago and each night I am having sleep awakening leg cramps. The crampsÂ escalated, and this morning, it was both legs and I had toÂ get upÂ an hour earlier than my usual wakingÂ time. Â Any informatin is appreciated.

Â

On Thu, Jun 11, 2009 at 2:51 AM, Margaret Schooling wrote:

Finally I started ldn on 22 April and after about 3 weeks of mild reactions, I suddenly felt substantially better. Since then Iâ€™ve gone from strength to strength.

June 11, 2009

According to the day book I'm keeping: headache, shooting pains in hands and feet, legs agitated and feeling like they were going to cramp when I went to bed, trips to loo at about 2 am, lot of aching, feeling groggy and fed up during day, need to sleep for short time during day, diarrhoea, balls of feet hurt more, started limping. That lasted for about a week. Then more positive than negative signs took over; numbness went, balance came back, feeling relaxed, no pain when at rest. Agitated legs came back a week later but has gone now. Hours asleep seems to vary but quality of sleep is great.MargaretFrom: "itsmelindad@..." <itsmelindad@...>low dose naltrexone Sent: Thursday, June 11, 2009 11:42:32 AMSubject: Re: [low dose naltrexone] (unknown)

Hi Margaret,

When you say mild reactions, please share what they were? I started LDN, 1.5mg three evenings ago and each night I am having sleep awakening leg cramps. The cramps escalated, and this morning, it was both legs and I had to get up an hour earlier than my usual waking time. Any informatin is appreciated.

On Thu, Jun 11, 2009 at 2:51 AM, Margaret Schooling wrote:

Finally I started ldn on 22 April and after about 3 weeks of mild reactions, I suddenly felt substantially better. Since then Iâ€™ve gone from strength to strength.

June 11, 2009

I SMELL SPAM!

I placed you on moderated status.

Alobar

On Thu, Jun 11, 2009 at 4:03 AM, Carol Ann<saffireskyes@...> wrote:

>

> http://houstonblvd.net/moneymaker.html

June 11, 2009

hugs Nilda!!!

I will not tell you any jokes today cause I dont want you to think I dont

understand your pain. But remember worry is hurtful to you.

Maybe when you feel really bad you might just read more about the disease

process of hep C and it is ok to get mad and you can take a phone book and rip

it up that might make you feel better.

(unknown)

Its me Nilda, not in a good day, I woke up today thinking only about my HeP c.

I am very depress

June 12, 2009

Does it have even traces of casein? My son can't handle threelac. I was

given some useful advice last week about giving it with enzymes, but that

still does not work. He is extremely sensitive to milk (IgG's off the chart)

From: [mailto: ]

On Behalf Of Pamela Bassin

Sent: Friday, June 12, 2009 8:30 AM

Subject: [ ] (unknown)

The new dairy free Kids Culturelle has done wonders for my kid. Its supposed

to help with Clostridia issues.

June 12, 2009

Hi After finishing the predisone mid March, I took the occasional Ibuprofen. I stopped that about 3/4 weeks before starting ldn. In the meantime I went gluten- and casein-free, and started Vit E 400 and fish oil (epa and dha). Dr Lawrence says they do the job of pain killers and anti-inflammatories. I certainly felt the benefit. The pain and inflammation diminished but it wasn't till I took ldn that I began to feel that all I had left was joint damage that occurred that I first noticed January this year. Because I've had gut issues ever since the diet change, (it was stablising mid May but then I had to take Allicim for a pesky tick bite). I've stopped all supplements for about a week now. I've felt

no increased pain/inflammation/swelling - which seems to indicate the ldn is doing the job. Yesterday I unsuccessfully tried to start my strimmer (4-stroke) and apart from the fury and frustration, no problem. Last night I did have to go to the loo several times (last visit at 3 am) - nothing drastic. I had that burning sensation, or was it stinging? around the hip/groin for a short while. I find sticking my feet outside the bedclothes sometimes helps. So far I've only rarely slept all night through - my body seems to do its own thing between 11.30 pm - 2/3 am and I just have to go with it.Bad cramps does seem to be a common problem during the first weeks/months !! of ldn and it's no joke whatever. MargaretFrom: M J <mxz75@...>Margaret Schooling <mschooling@...>Sent: Friday, June 12, 2009 10:36:02 AMSubject: Re: [low dose naltrexone] (unknown)

Hi Margaret,Just curious if you are just on ldn or other drugs that you started? I am having similar symptoms but not sure if its antivirals or ldn..or both. Thanks.

Finally I started ldn on 22 April and after about 3 weeks of mild reactions, I suddenly felt substantially better. Since then Iâ€™ve gone from strength to strength.

June 12, 2009

My son is sensitive too!! Has severe casein IgG as well. We havent had a problem

with it so far. It is made on pork, and I called and asked about the casein and

the rep said no. I have the adult form as well which doesnt have mannitol in it

so I sometimes give that to him in a smaller dose...

>

> Does it have even traces of casein? My son can't handle threelac. I was

> given some useful advice last week about giving it with enzymes, but that

> still does not work. He is extremely sensitive to milk (IgG's off the chart)

>

> From: [mailto: ]

> On Behalf Of Pamela Bassin

> Sent: Friday, June 12, 2009 8:30 AM

>

> Subject: [ ] (unknown)

>

> The new dairy free Kids Culturelle has done wonders for my kid. Its supposed

> to help with Clostridia issues.

>

June 12, 2009

It hurt me each time I began but I really liked it too. It was like getting a

good stretch. It didn't put me asleep but I was able to relax and watch tv. I

used to do 1.5 hrs. on one knee and then switch knees. That was after 4 Pt

classes a day at rehab. It was all a lot of work but it really does help.

________________________________

From: Bentley <sbentley@...>

Joint Replacement

Sent: Monday, June 8, 2009 10:09:55 AM

Subject: Re: (unknown)

Perhaps the reason some people hate them is that they are initially painful

to use. My friend's husband refused to use his for just that reason. The

first time they put my leg in one and turned it on (and it was set for the

lowest flexion) I was in tears because it hurt so bad. But I hung in there

and am so glad I did!

-- Re: (unknown)

That is so great! Many of us had sleep disturbance during our first days

and sleep is so necessary to healing. I¹m going for second surgery,

tentatively in late July, and will see if I can get the doc to prescribed

the CPM. I really liked it. My sister had one at home and also really like

having it on. Nurses say that lots of people hate them. Go figure!

Peace,

Jackie

On 6/7/09 9:45 PM, " Jo Gaines " <gainesbunch@...> wrote:

>

> Thanks Jackie for answering about what a CPM is! I LOVE having this

machine

> on! My husband calls it my " sleeping pill " . As soon as I lay down and

get

> started I'm sound asleep.

>

> I'm still having some problems with my blood sugar since surgery so I'm

going

> to have to call my doc in the morning but other than that all is still

going

> well.

>

> Jo

> NM

>

June 12, 2009

That's great to know.. I will see if I can round some up in Canada.. is it

on ice or is it stabilized?

From: [mailto: ]

On Behalf Of psbassin

Sent: Friday, June 12, 2009 12:10 PM

Subject: [ ] Re: (unknown)

My son is sensitive too!! Has severe casein IgG as well. We havent had a

problem with it so far. It is made on pork, and I called and asked about the

casein and the rep said no. I have the adult form as well which doesnt have

mannitol in it so I sometimes give that to him in a smaller dose...

>

> Does it have even traces of casein? My son can't handle threelac. I was

> given some useful advice last week about giving it with enzymes, but that

> still does not work. He is extremely sensitive to milk (IgG's off the

chart)

>

> From:

<mailto: %40>

[mailto:

<mailto: %40> ]

> On Behalf Of Pamela Bassin

> Sent: Friday, June 12, 2009 8:30 AM

>

<mailto: %40>

> Subject: [ ] (unknown)

>

> The new dairy free Kids Culturelle has done wonders for my kid. Its

supposed

> to help with Clostridia issues.

>

June 13, 2009

Sorry my name is Byram and I did sign up for your support group do I

need to do something else.

________________________________

From: Jenn <jjflemington@...>

Sent: Saturday, June 13, 2009 12:54:50 PM

Subject: [ ] (unknown)

Hi Bee,

I currently babsit dogs and have a horrible case of candida. I am currently on

your diet and have gotten everything on the list except the supplements. My

homeopath made me much worse with her diet suggestions and now I am once again

on the right track. I was just wondering she told me that my liver hurts

because I am developing cysts in them from dog sitting. I always make sure to

wash my hands and clothes and don't let the dogs lick me. Could she be correct.

jennifer

June 13, 2009

,

Is this the same homeopath who advised you to eat sugar? I used to work at

a vet clinic, and nobody ever developed cysts or aching livers from working

with the animals. I wonder what sort of " education " your homeopath has? I

have an excellent homeopath who works over the phone, in case you need a

referral to someone who actually knows what they are talking about.

Cheers!

Marla

On Sat, Jun 13, 2009 at 10:54 AM, Jenn <jjflemington@...> wrote:

> Hi Bee,

>

> I currently babsit dogs and have a horrible case of candida. I am

> currently on your diet and have gotten everything on the list except the

> supplements. My homeopath made me much worse with her diet suggestions and

> now I am once again on the right track. I was just wondering she told me

> that my liver hurts because I am developing cysts in them from dog sitting.

> I always make sure to wash my hands and clothes and don't let the dogs lick

> me. Could she be correct.

>

> jennifer

>

June 13, 2009

Hi marla yeah that's her she said its from the dogs skin and they are

developing or is this due off

Sent from my Verizon Wireless BlackBerry

Re: [ ] (unknown)

,

Is this the same homeopath who advised you to eat sugar? I used to work at

a vet clinic, and nobody ever developed cysts or aching livers from working

with the animals. I wonder what sort of " education " your homeopath has? I

have an excellent homeopath who works over the phone, in case you need a

referral to someone who actually knows what they are talking about.

Cheers!

Marla

On Sat, Jun 13, 2009 at 10:54 AM, Jenn <jjflemington@...> wrote:

> Hi Bee,

>

> I currently babsit dogs and have a horrible case of candida. I am

> currently on your diet and have gotten everything on the list except the

> supplements. My homeopath made me much worse with her diet suggestions and

> now I am once again on the right track. I was just wondering she told me

> that my liver hurts because I am developing cysts in them from dog sitting.

> I always make sure to wash my hands and clothes and don't let the dogs lick

> me. Could she be correct.

>

> jennifer

>

June 13, 2009

Thanks for that Jo. One could only hope.

BTW Jeff, how's Bucks County doing? Didn't you say you lived there?

My ole stomping grounds, especially New Hope!

S-

-- (unknown)

S & Jeff,

I too have DDD and had TKR 2 weeks ago this Tuesday. I have been doing

intensive rehab and have spent a lot of time in bed on my back using my CPM

(knee machine). I have not had any back pain since surgery. I'm walking

much better today and have done a few light household chores today and still

no back pain (no knee pain either).

Before surgery I had pain in my knee, hip and back almost constantly. I

have to agree with Jeff that it may be that fixing one will fix the others

(although everyone is different!)

JMHO,

Jo G

NM

------------------------------------

June 14, 2009

S,

Yes I live in New Hope. Don't know how long it's been since you were around but

it's gotten very overcrowded with new construction and traffic. Still beautiful

though.

Jeff

________________________________

From: sms <sms@...>

Joint Replacement

Sent: Saturday, June 13, 2009 11:33:35 PM

Subject: Re: (unknown)

Thanks for that Jo. One could only hope.

BTW Jeff, how's Bucks County doing? Didn't you say you lived there?

My ole stomping grounds, especially New Hope!

S-

-- (unknown)

S & Jeff,

I too have DDD and had TKR 2 weeks ago this Tuesday. I have been doing

intensive rehab and have spent a lot of time in bed on my back using my CPM

(knee machine). I have not had any back pain since surgery. I'm walking

much better today and have done a few light household chores today and still

no back pain (no knee pain either).

Before surgery I had pain in my knee, hip and back almost constantly. I

have to agree with Jeff that it may be that fixing one will fix the others

(although everyone is different!)

JMHO,

Jo G

NM

------------------------------------

June 16, 2009

What kind of test is to determine percentage of cancerous cells in the

blood?

In a message dated 6/16/2009 11:39:43 A.M. Eastern Daylight Time,

lmcs@... writes:

Hello Mike

Good for you on getting the fillings taken out. My percent cancerous

cells in the blood (I have cancer of the B lymphocytes) went from 70 to 30 %

just by doing that. Subsequently, with supplements and diet, I've been able

to get it down to less than 2%. Still have enlarged lymph nodes that are

stable. Some did regress in size though.

With mercury being a significant factor with my cancer, I've spent 4+

years studying all that's out there. One of the best resources is Dr. Cutler's

(PhD chemist who was mercury poisoned) books. One website is:

www.noamalgam.www

The point I wanted to make, is that even health care practitioners and

doctors make the mistake of assuming that if mercury is low (on a urine, blood

or hair test) that all is ok. This is not always true. Often time,

because mineral transport is deranged and/or some individuals do not excrete

mercury from their body as well as others, a low reading on a test can be

misleading.

take care and best of luck, steve

[Non-text portions of this message have been removed]

**************An Excellent Credit Score is 750. See Yours in Just 2 Easy

Steps!

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eExcfooterNO62)

June 17, 2009

A flow cytometry blood test, it's how I was diagnosed and how I monitor how I'm

doing

>

> What kind of test is to determine percentage of cancerous cells in the

> blood?

>

June 17, 2009

I am not a big fan of shots in general. I would think it should be fine but....???

Steph

(unknown)

Dear ,

This morning I got a fairly small, superficial but bloody scratch on my ankle from a piece of wire. I cleaned it up with iodine. Do you think, since I am taking quite a high quantity of iodine (50 mg), that I need a tetanus jab?

MacG.

June 17, 2009

Was the barbed wire exposed to dirt? If not, then its unlikely one would need a shot as the germs come from animal feces found in some soils.

(unknown)

Dear ,

This morning I got a fairly small, superficial but bloody scratch on my ankle from a piece of wire. I cleaned it up with iodine. Do you think, since I am taking quite a high quantity of iodine (50 mg), that I need a tetanus jab?

MacG.

June 17, 2009

My mom always said to watch for the red or black streaks going toward the heart from these type of wounds. I had to get a weeks worth of shots to my buns after a cat bite which is said to be one of worst after those streaks appeared a few years back. Even a carpet staple is deep enough to get the shot as to my last experience. Also need booster every 10 years anyway so that is another thought. I hate shots too. Pam

On Wed, Jun 17, 2009 at 10:47 AM, Kathleen Blake <kathleenblake@...> wrote:

Was the barbed wire exposed to dirt? If not, then its unlikely one would need a shot as the germs come from animal feces found in some soils.

(unknown)

Dear ,

This morning I got a fairly small, superficial but bloody scratch on my ankle from a piece of wire. I cleaned it up with iodine. Do you think, since I am taking quite a high quantity of iodine (50 mg), that I need a tetanus jab?

MacG.

June 17, 2009

Tetanus shots are very dangerous. They can and have caused terrible health problems. Soap/water/iodine should be fine. It's your choice, of course. I would never get one.Nonie

June 17, 2009

Most hospitals provide socks with non-skid bottoms and many people

walk around in them.

I wore Dansko mules to the hospital and used them to walk around in

and as slippers because they were easy to take on and off -- if you

want your own slippers bring them.

I didn't really need much in the way of clothing -- I wore a track

suit there and back. During my hospital stay which was relatively

short I pretty much stayed in my room except for the walks up and down

the corridor. I didn't have much desire to change clothing, put on

makeup, style my hair (just had it in a ponytail) or really do much

more than peacefully veg out. The first 24 hours I had a catheter as

well as the electric leg pumps.

I took much more " comfort " from some of the other stuff I brought

along -- iPOD, plastic bag to tie to the head of the bed to put stuff

in since the rolling table is quite small especially when the food

tray is on it; mints; hand sanitizer (although the hospital gave me a

container as well); diaper wipes in a plastic bag -- these were great

for cleansing myself in all kinds of places. A grabber was VERY

convenient since stuff like my magazines might be out of reach and (at

least at my hospital) the nursing staff is not available to do stuff

like that so self sufficiency is good.

Some people want to wear " street " clothing -- I was perfectly content

to be in the hospital gown because it was basically a comfortable

nightgown and someone else was providing me with all the " changes " I

needed.

On Jun 17, 2009, at 3:47 PM, September wrote:

>

> Are you supposed to bring your own slippers to the hospital? I saw

> some spa-type slip ons with velcro on sale at the mall, and thought

> it might be a good idea to buy a pair. Thanks.

>

June 17, 2009

This is a great list of things to have on hand - thanks!