Re: (unknown)

[Guest guest]

google is your friend.

for now, while on tx, just be confidant as a geno 3 you're going to clear

and quickly.

if you take milk thistle it can mess with the amounts of tx drugs in your

blood... could raise them a lot by not letting the body break them down...

so talk to your doc about it.

all the basic vitamins and selenium... go for it.

________________________________

From:

[mailto: ] On Behalf Of Barbara

Sent: Tuesday, May 26, 2009 6:03 PM

Subject: [ ] (unknown)

I want to know more about the supplements and what they do

to help with my hep I have gen 3 taking Pegysis alph 2 b and Ribivirian for

a month now........... Will know on the 5 June if heps still in my blood did

blood work today......... It was a stick a thon I have bad and unfindable

veins from 10 years IV drug use..........now I am paying with both Hep C and

Bad veins ......thanks for letting me share.... God bless each and everyone

of you..............

Barbara

[Guest guest]

Bob, I have never read that taking Milk Thistle will effect the levels of TX

medications. Please give supporting documentation or links to where you found

this information. I am sure a lot of us are taking Milk Thistle and would like

to know the facts.

Thank you.

Peg

>

> google is your friend.

> for now, while on tx, just be confidant as a geno 3 you're going to clear

> and quickly.

> if you take milk thistle it can mess with the amounts of tx drugs in your

> blood... could raise them a lot by not letting the body break them down...

> so talk to your doc about it.

>

> all the basic vitamins and selenium... go for it.

>

[Guest guest]

I haven't done it yet. From what I understand you paint on the Lugol's and then rub the progesterone on the area with the issue.

Steph

(unknown)

Steph,you mix the iodine with the progesterone?TY, Sylvia

[Guest guest]

That's right, Betsy. I forgot about those tricky labels. What about

alcohol-free beer then?

You could also ask your rheumatologist about the " non-alcoholic " type.

Not an MD

On Thu, May 28, 2009 at 7:58 AM, Farchette

<eafarchette@...> wrote:

>

>

> .05% alcohol content.

>

> Betsy

[Guest guest]

Hey Molly --are you in the Houston area? Did you see 's post

the other day about information needed on schools in the Houston area?

is from the Chicago area and it looks like she may be moving to Texas.

I privately put her in touch with someone who has an older child (not on

this list) in the area. However, her son, Colin, has alopecia (complete)

and is a handsome teenager in high school. would be a good person for

you to talk to, she has been around as long as I have (15+ years) on the DS

internet community.

(unknown)

>

> I have been reading these messages for awile, but haven't participated in

> replies. I suppose it's about time. Yes, my only child DS (8

> yrs.), also used to like to lick things. Mainly, it was just family

> members (Me). I think that it was just a developmental thing that he knew

> that I didn't like, and that is why he did it. He must have thought that

> it was a " normal, typical " thing to do. Finally, " I think " that he knows

> it is not appropriate.

> Does anyone have a problem with alapecia? Ben has had it for almost 2

> yrs. 2 yrs ago, my Mom took my son to get his hair cut. He developed a

> fungal infection on his head (aka rash). He was medicated and cured.

> Afterwards, he slowly developed alapecia. Over the course of a year, I

> was battling his regular doctor for either a referal, or treatment for his

> slow, progression of hair loss. I pretty much new it was alapecia,

> without it being diagnosed. (Don't we, as DS parents always feel that we

> know more about the medical field than Dr.'s do?) Anyway, finally, we got

> a dermatologist at Houston's Texas Children's Hospital (strongly

> recommended for anyone who need's any specialist). We have done steriods,

> 2 weeks on and 2 weeks off. Now, we are doing steroids 2 weeks on and

> another sort of topical cream during the 2 weeks off of the steroids. I

> have heard that the next step is shots which I don't want to put him

> through, when he is so young. He

> barely can stand the whole bed time routine of me having to help him brush

> his teeth, doing the medication routine, etc.

> I was just wondering if anyone has some input of what causes, or helps

> with the alopecia. Thanks for reading my babble, and I hope that all of

> you have a great day!

> God Bless,

> Molly

>

>

>

>

>

> ------------------------------------

>

> Click reply to all for messages to go to the list. Just hit reply for

> messages to go to the sender of the message.

[Guest guest]

Hannah has twice completely lost her hair. Once, we think, from a

reaction to an antibiotic and once from a vitamin deficiency. I do not

remember

what was deficient, but I do remember that they found it in her blood work.

Sorry that I can't be more helpful, but it was over 5 years ago and I've

had another kid in the meantime... you know... pregnancy kills braincells!

In a message dated 5/30/2009 2:43:45 P.M. Eastern Daylight Time,

mmikulenka@... writes:

I was just wondering if anyone has some input of what causes, or helps

with the alopecia. Thanks for reading my babble, and I hope that all of you

have a great day!

God Bless,

Molly

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100126575x1221322950x1201367186/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=62 & bcd=

MaystepsfooterNO62)

[Guest guest]

The dry skin is usually because of still being hypoT. You will need to be

evaluated again

to bring your medication level to where your skin is not so dry.

Roni

<>Just because something

isn't seen doesn't mean it's

not there<>

From: veella moore <modawsimms@...>

Subject: (unknown)

hypothyroidism

Date: Saturday, May 30, 2009, 4:40 PM

hello. I'm new and I want to know what is the best skin softener my hand and

feet are so dry they peel badly and hurt I was told with hypo to not take hot

hot showers and I don't but my skin is still dry and ichy does anyone have ny

suggestions

     

[Guest guest]

ROFLMAO - yes pregnancy and breast feeding kills brain cells- I am

finally getting mine back Lily started biting and drawing blood, so I

figured she had enough and she is now on cows milk

mind you she now has a facial rash that has not gone away for near 2

months- antibiotics, hyrodortisone 0.5% has done notheg, and nor has the

stronger cream they have put her on. Only thing I can attribute it to is

teething. But it is around her eyes too. Dr ruled out slap face. SO we

are off tot he dr again tomorrow- have been there once a week for past 2

months........sigh.....................Lily has been at the dr's more

than even was in his first year........off to the specialist me

thinks......................

kindafunny@... wrote:

>

> .. you know... pregnancy kills braincells!

>

> I

[Guest guest]

if you are looking for a moisturizer that won't irritate your skin that you can

get anywhere without spending a fortune I would try Eucerine.

From: veella moore <modawsimms (DOT) com>

Subject: (unknown)

hypothyroidism

Date: Saturday, May 30, 2009, 4:40 PM

hello. I'm new and I want to know what is the best skin softener my hand and

feet are so dry they peel badly and hurt I was told with hypo to not take hot

hot showers and I don't but my skin is still dry and ichy does anyone have ny

suggestions

     

[Guest guest]

Click on the unsubscribe at the bottom of this e-mail to unsubscribe yourself.

Steph

(unknown)

unsubscribe me now

kinrinola E A

[Guest guest]

hi there my son had scans done last wed everything went well just wondered how

long the results take just i called the hosp this mornin the results were sent

back the following day do u think it will be good news or that there more chance

of a problem

________________________________

From: Luther <adorote1@...>

Scoliosis Treatment

Sent: Monday, May 25, 2009 7:36:02 PM

Subject: Re: (unknown)

We are all here for you, . The diagnosis is scary at any age.

Take care of yourself and hug that baby for us!

God bless you!

n

>

> (unknown)

>

>

>

>

>

> my 15 month ols son has been diagnosed with thorocolumbar scoliosis,i

> have also been theres 2 curves the bottom being at 20 degrees just now the

> top 1 is unknown we are going for an mri scan in 2 weeks can anyone pease

> tell me if they think this will be progressive we are so scared

[Guest guest]

I Purchase from a health food store or herbalist: Wormwood(artimisia absinthium) tincture, green Black Walnut hull tincture, clove tincture, one ounce each blended together.  40 to 60 drops once a day on an empty stomach for 10 days. Take one week off,  then repeat for 10 days.  This can be done several times per year. I like to do it at season changes; Spring Equinox, Summer Solstice, Autumn Equinox, and if it's not too cold Winter Solstice. Kim

On Tue, Jun 2, 2009 at 10:50 AM, Gibson <ngcalmingeffects@...> wrote:

looking for some recommendations to eliminate parasites from the body

[Guest guest]

, I've always had great results using the Hulda parasite program, you can google it. Bonnie

From: Gibson <ngcalmingeffects@...>Subject: (unknown)"quantum group" <qxci-scio-epfx-english >Date: Tuesday, June 2, 2009, 1:50 PM

looking for some recommendations to eliminate parasites from the body

[Guest guest]

Andy Cutler is a person who has been down this road and discovered a safe

way to chelate. You can read about his protocol in his books. I believe they

can be found at www.noamalgam.com You can also get them on amazon.com.

On Thu, Jun 4, 2009 at 5:26 PM, drissia wright <ritzywright@...>wrote:

>

>

>

> Hello all,

>

> I've read reference to Andy Cutler on this and other groups. What is it?

> Where do I find it? I've been trying to get a handle on this for a while and

> have received some valuable info. Just can't seem to put it together. I

> think I understand something and then read something different or that works

> for a week and then doesn't anymore. I think I need a step by step

> instruction booklet.

>

> Thank you for any help.

>

> D.

>

>

>

--

Human beings are not born once and for all on the day their mothers give

birth to them, but rather life obliges them over and over again to give

birth to themselves.

Marquez

[Guest guest]

Glad to have you =) Just start reading through the different posts and even if it doesn't solve all of your/your son's problems, you'll feel validated in that other people have similar struggles as you. It's a place to be heard and you get some good advice on top of it. We don't always agree with each other, but at the end of the day, we're all here.

"Over-optimism is waiting for you ship to come in when you haven't sent one out."

From: Clare <clareharris95@...> Sent: Saturday, June 6, 2009 6:36:44 AMSubject: ( ) (unknown)

hi, I not sure what to say, ive never joined any of these groups before.

I have a 10 year old son who is waiting for his dignois it has been a long road where people think im mad or my son is just naughty it has been really hard on myself and my other 2 children are suffering Im not sure where else to turn, maybe someone can offer some advice any advice would be apperciated.

[Guest guest]

Welcome to our group, Clare! Feel free to join in whenever you like. It's hard to know what advice to give without knowing any specific concerns you have. Anytime you want to talk about something, just post. Many people are here who can relate and give their experiences and advice.

Roxanna

Autism Happens

( ) (unknown)

hi, I not sure what to say, ive never joined any of these groups before.

I have a 10 year old son who is waiting for his dignois it has been a long road where people think im mad or my son is just naughty it has been really hard on myself and my other 2 children are suffering Im not sure where else to turn, maybe someone can offer some advice any advice would be apperciated.

Wanna slim down for summer? Go to America Takes it Off to learn how.

[Guest guest]

That is so great! Many of us had sleep disturbance during our first days

and sleep is so necessary to healing. I¹m going for second surgery,

tentatively in late July, and will see if I can get the doc to prescribed

the CPM. I really liked it. My sister had one at home and also really like

having it on. Nurses say that lots of people hate them. Go figure!

Peace,

Jackie

On 6/7/09 9:45 PM, " Jo Gaines " <gainesbunch@...> wrote:

>

>

>

>

>

>

> Thanks Jackie for answering about what a CPM is! I LOVE having this machine

> on! My husband calls it my " sleeping pill " . As soon as I lay down and get

> started I'm sound asleep.

>

> I'm still having some problems with my blood sugar since surgery so I'm going

> to have to call my doc in the morning but other than that all is still going

> well.

>

> Jo

> NM

>

>

>

[Guest guest]

Perhaps the reason some people hate them is that they are initially painful

to use. My friend's husband refused to use his for just that reason. The

first time they put my leg in one and turned it on (and it was set for the

lowest flexion) I was in tears because it hurt so bad. But I hung in there

and am so glad I did!

-- Re: (unknown)

That is so great! Many of us had sleep disturbance during our first days

and sleep is so necessary to healing. I¹m going for second surgery,

tentatively in late July, and will see if I can get the doc to prescribed

the CPM. I really liked it. My sister had one at home and also really like

having it on. Nurses say that lots of people hate them. Go figure!

Peace,

Jackie

On 6/7/09 9:45 PM, " Jo Gaines " <gainesbunch@...> wrote:

>

>

>

>

>

>

> Thanks Jackie for answering about what a CPM is! I LOVE having this

machine

> on! My husband calls it my " sleeping pill " . As soon as I lay down and

get

> started I'm sound asleep.

>

> I'm still having some problems with my blood sugar since surgery so I'm

going

> to have to call my doc in the morning but other than that all is still

going

> well.

>

> Jo

> NM

>

>

>

[Guest guest]

Natures Answer do a great alcohol free Black Walnut.

Re: (unknown)

I Purchase from a health food store or herbalist: Wormwood(artimisia absinthium) tincture, green Black Walnut hull tincture, clove tincture, one ounce each blended together. 40 to 60 drops once a day on an empty stomach for 10 days. Take one week off, then repeat for 10 days. This can be done several times per year. I like to do it at season changes; Spring Equinox, Summer Solstice, Autumn Equinox, and if it's not too cold Winter Solstice. Kim

On Tue, Jun 2, 2009 at 10:50 AM, Gibson <ngcalmingeffects > wrote:

looking for some recommendations to eliminate parasites from the body

[Guest guest]

I would be happy to volenteer. Maybe if we had a standard form that members could update/append throughout their stay with us.

Regards,

Suzzette

I have not been diagnosed with Conns ...it is suspected.I am taking 240 mg verapamil; 1 mg clonodine and 125 meq Klte daily. Also have RA.CT shows a right 1.3 cm nodule in adrenal gland. I have a one hour standing aldosterone test scheduled for next week. Never been on spiro... have to redo AVS as it was not conclusive

From: Clarence Grim <lowerbp2@...>Subject: (unknown)"hyperaldosteronism " <hyperaldosteronism >Received: Monday, June 8, 2009, 1:07 AM

Would like to have someone to volunteer to keep aRunning tab ofNew members and ex or can we we up a newbies database that would allow a newbie to enter their own info and update it as events develop.?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free!

[Guest guest]

Thanks Shana has a questioner we can use but need to have her OK IT and see if we can set it up so it can be easily updated. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jun 8, 2009, at 7:45 PM, Sue james <semajsue1@...> wrote:

I would be happy to volenteer. Maybe if we had a standard form that members could update/append throughout their stay with us.

Regards,

Suzzette

I have not been diagnosed with Conns ...it is suspected.I am taking 240 mg verapamil; 1 mg clonodine and 125 meq Klte daily. Also have RA.CT shows a right 1.3 cm nodule in adrenal gland. I have a one hour standing aldosterone test scheduled for next week. Never been on spiro... have to redo AVS as it was not conclusive

From: Clarence Grim <lowerbp2mac>Subject: (unknown)"hyperaldosteronism " <hyperaldosteronism >Received: Monday, June 8, 2009, 1:07 AM

Would like to have someone to volunteer to keep aRunning tab ofNew members and ex or can we we up a newbies database that would allow a newbie to enter their own info and update it as events develop.?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free!

color: #1E66AE;

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[Guest guest]

I know! I think that the one I saw was a rental. It looked like super

silly fun to me. I'd pay to ride one.

On 6/9/09, from Michigan <volleyjen0416@...> wrote:

>     That Conference bike is TOO COOL!

>

> Looks almost as much fun as playing human foos ball

>

> LOL,

>

>                  Jen

>

>

>

> From: A. M. <plantpowered@...>

> Subject: Conference Bike - Crazy looking thing

>

> Date: Monday, June 8, 2009, 10:56 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> I saw one of these tooling down Market St. in S.F. on my way home from

>

> the beach cleanup yesterday. The people riding it were having a

>

> wonderful time, and traffic was slowing down to take a closer look:

>

>

>

> http://www.conferen cebike.com/ web.mov

>

>

>

> By the way, I did tons of walking this weekend, about 12 miles

>

> altogether. It was killer to walk on sand after doing CLX BS3 the same

>

> day.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

--

Sent from my mobile device

[Guest guest]

I know! I think that the one I saw was a rental. It looked like super

silly fun to me. I'd pay to ride one.

On 6/9/09, from Michigan <volleyjen0416@...> wrote:

>     That Conference bike is TOO COOL!

>

> Looks almost as much fun as playing human foos ball

>

> LOL,

>

>                  Jen

>

>

>

> From: A. M. <plantpowered@...>

> Subject: Conference Bike - Crazy looking thing

>

> Date: Monday, June 8, 2009, 10:56 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> I saw one of these tooling down Market St. in S.F. on my way home from

>

> the beach cleanup yesterday. The people riding it were having a

>

> wonderful time, and traffic was slowing down to take a closer look:

>

>

>

> http://www.conferen cebike.com/ web.mov

>

>

>

> By the way, I did tons of walking this weekend, about 12 miles

>

> altogether. It was killer to walk on sand after doing CLX BS3 the same

>

> day.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

--

Sent from my mobile device

[Guest guest]

I think it is more difficult for a younger sibling to go through this. My

Jaye is the youngest of five and her siblings had had their time with the

doctors and waiting around so they really did not care to go to anymore

apointments.? Well of course unless it was the appointments to Kansas City where

we got a motel and stayed the night.? Some people would say that you need to try

to set aside the same amount of time for the younger sibling and do special

things just with them.? Some people would realize that is just not practicle.?

Kids with a chronic illness just take alot of time there is no way around that.

Keep encourging to be a helper and a good friend to Abby. Find a special

role she can play in her sisters care. Of course not one that would cause any

stress but at home she could be your nurse assistant or something. My older kids

often did get frustrated that Jaye and I always went to Sonic after the

blood draw days.? But they lived through it and would never have wanted to

change places with Jaye.? Since I don't have a younger child around I

really can not give any good advice.

Veri and Jaye 15 poly

(unknown)

Hello,

? I have a five year old Abby with pauci extended.? We started with a steroid

injection in the knee and she was on Naproxen for over a year.? The naproxen

didn't seem to do anything, after switching rheumy's last August she began the

MXT injections weekly.? As of now she seems to be in remission and my doctor

discussed leaving her on them for about eighteen months.?????

? She has a four year old sister,, that would like to see a doctor too.?

I try not to bring to the appointments, but that doesn't happen very

often.? Only if I know if its going to be a long and involved appointment or I

get lucky.? When we get blood work done and I mean Abby and myself (I have

thyroid problems), we get to go to Mc s.? She always gets excited about

that since she doesn't get a shot and she gets something yummy.? When Abby gets

her injections, Rach brings her special bear (we let Abby get a build a bear)

and a band aid.? I believe she feels she's part of the team helping Abby with

her funny boo boos.? She often gives her hugs and tries to comfort her.? At her

eye appts, the doctor looks at too.? This seems to make her happy,

actually next eye appt I made one for her too.? At times I don't think she

understands why and she appears to feel left out.? I try to explain things as

best as I can and try

to figure out a way to include her.? I also try to do special things just for

her without Abby.?

[Guest guest]

Hello Glenda

We recently

set up a list for people who use, or are thinking of using, ldn for

RA. If you’d like to join, please go to

rheumatoidarthritis-low dose naltrexone

and click on

the Join button.

There are

some useful links there – ’s website is especially

recommended because it’s a kind of encyclopedia on the medical side

of ldn and has masses of useful information. There are very few

doctors who’ve heard of ldn so we have to find out as much as

possible about it for ourselves before deciding what to do and how to do it.

We’re

hoping to find an "ldn-literate" specialist

in rheumatology to take an interest in the group because I think it’s

true to say that for the moment we feel a bit out on a limb. In my

experience ldn has been more successful than I could have hoped for,

but not everyone is having the same positive results. It’s possible

that this is because my joint pain and deformation only appeared last

autumn, I’d only used prednisone in 3 short bursts, and was free of

all medication by the time I started ldn. Others have been suffering

for years and are having a lot of difficulty. We find it hard to

believe that these difficulties are due to ldn as such, but presume

they’re due to the way ldn boosts and starts regulating the immune

system and it’s the immune system which is dealing with the

problems in the body that have been gaining the upper ground for too

long.

Another very

confusing area – in my view anyway – is diet and supplements.

Again, in my experience, I found that going gluten-free and

casein-free made me feel better very quickly (though I don’t understand the relationship between that and the immune system).

I then took high doses of Vit E 400 and fish oil. The fish oil is a

valuable anti-inflammatory and Vit E a valuable anti-oxidant. Again,

others have yet to feel the same benefits I did.

Finally I

started ldn on 22 April and after about 3 weeks of mild reactions, I

suddenly felt substantially better. Since then I’ve gone from

strength to strength.

Margaret

From: victor baggerly <vjbaggerly@...>low dose naltrexone Sent: Thursday, June 11, 2009 2:28:54 AMSubject: [low dose naltrexone] (unknown)

I am looking for information on treating rheumatoid arthritis. Also would like to find out how to get LSN in Texas.

Thanks, Glenda