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Date: Tue, 8 Jun 2004 09:57:36 -0700

Subject: RE: [ ] Mark Schauss help--chlorine toxicity

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Mike,

Actually the answers are remarkably simple.

Chlorine is well known to increase the likelihood of having a seizure in

susceptible individuals, especially children. My daughter Tasya has

always had this problem but there are things to do to possibly

(important term as id does not help everyone) alleviate the reaction.

First off, 500-1000mg of taurine is needed before going into a pool with

chlorine. Not only is it a neuroinhibitory amino acid but it is a

sulfur containing amino acid. This is important as sulfur is an

important antagonist (for lack of a better term) to chlorine. This is

why, epsom salts, aka magnesium sulfate is helpful after being in a pool

as part of a bath.

Another important addition are bicarbonates, as potassium and sodium

bicarbonate. These are also important in buffering reactions caused by

excessive chlorine and/or chlorides. Epileptics are notoriously low in

bicarbonates as are autistic children which may in part explain why

autistic children have a higher incidence of epilepsy than does the

general population. Now most neurologists would dismiss this as being

unimportant or inconsequential but my research says otherwise.

Increasing the levels of bicarbonates does seem to increase the seizure

threshold which is what we all strive for. A caveat, one needs to make

sure that CO2 levels are low before trying this (simple blood test).

In health,

Mark Schauss

www.carbonbased.com

[ ] Mark Schauss help--chlorine toxicity

Hi Mark,

I am new to the board and a fellow member, Barb Hunte, told me you might

provide some insight. My 11 year old son, who has autism also, had a

seizure Sunday. Actually due to his condition in the aftermath, the Dr

suspects multiple seizures.

It started about 4 months ago Mikey was in the tub and when I went to

get him out he was limp and seemingly unconscious. We called 911 and

the ER Dr. said due to fatique, he may have fallen asleep in the tub.

My wife and I actually suspected a small seizure. We had never seen

anything in his 11 years like it before.

Well Sunday it was really bad. The thing that nags at me is the

conditions prior to the event.

We had just put up our new pool. I know Mikey was drinking the pool

water and although I did not see him go near the chlorine float, it is

possible he may have ever lifted from the water and ingested some. That

afternoon after coming into the home Mikey went up to his to take a nap.

When I went upstairs to check on him, that's when I got one of the worst

scares of my life. My wife took him to the ER. All blood tests came

back normal and the CAT scan they did was normal. TOtday he goes in for

an EEG. To get back to the thing that is nagging me, water & chemicals.

My memory is fague, but I sear my wife had cleaned out the bathtub with

a bleach related product or even Lysol just prior to my son's first

episode. Now the full blown seizure after being in the pool. We have

only seen this type of thig two times and both times Mikey was in or had

been in the water; and most likely drinking it too.

I know this is long winded and you are busy, but could this be a factor?

I am crazy looking for a simple answer to a complicated problem? I

can't remember exactly, but isn't there an " old saying " that says, the

answer to a situation is usually the simplest one? Any suggestions,

advice etc. would be a Godsend. Thanks again in advance, Mike

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Date: Wed, 9 Jun 2004 10:28:50 -0700

Subject: RE: [ ] Mark Schauss

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,

Any comments I make are purely ones as an " educated consumer " and should

not be taken as medical advice.

Anxiety can be caused by any number of things but two pop up more often

than others. First and foremost would be electrolyte balance. We live

in a world that stresses that balance, especially potassium. Second

would be amino acids. The environmental toxicity each of is exposed to

drains those amino acids (taurine and glycine) that are considered

neuroinhibitory (calming).

Of course to determine which area is the problem requires testing. A

comprehensive blood test and a plasma amino acid assay are most helpful.

In health,

Mark Schauss

[ ] Mark Schauss

My daughter is 14 years old does not have epilepsy. But has alot of

anxiety. Without taking anykind of medication is there anything else

she can do to help herself. They had her on Zoloft but we took her

off. She was only on that for about a month.

Thanks

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Date: Thu, 10 Jun 2004 21:33:13 -0000

Subject: [ ] Need the help of people living with Epilepsy or

caregivers

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Hello, my name is Jay Lennox from M Force located in Chicago, a

national marketing research firm. We are conducting a marketing

research study on behalf of a major pharmaceutical company, which

manufactures some of the leading drugs in the treatment for

Epilepsy. We are looking for ways to improve the lives of

patients with Epilepsy and we'd like to talk to people with Epilepsy

or their care givers to get opinions. Please be assured we are not

selling anything and the information gathered will remain

confidential and be used for research purposes only.

We plan to incorporate your opinions into how we educate patients

better about epilepsy and our product. We would like to ask you

just a few questions about your condition to see if you qualify to

participate in our research project. If you do, and if you feel

comfortable discussing this topic, we would like you to participate

in a focus group with other Epilepsy patients/or their caregivers.

Your information will be kept completely confidential – it will only

be used for research purposes. The focus group will take

approximately two hours on Wednesday June 16th and you will receive

$125 for your time and cooperation. For more info about my company

go to www.mforce.net Please call me at 773 305 0282 X 224 Jay

Lennox. The Group will be held in Chicago, il

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Subject: Re: [ ] Mark Schauss

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Grace,

I strongly recommend having the Urine Organic Acid Report completed by Mark

through his company. It helped my daughter soooooooooooo much, because it

is very detailed and specific to her body. It eliminated the guess work and

gave me specifics for her body. This is unique to anyone else I have found

to help. I've actually been able to use the report with my pediatrician to

obtain an appointment with a metabolic specialist, and know exactly which

supplements she needs to bring her stability. I actually just found out

last week that her EEG is finally clear. We've been trying to do that for

14 months. I've been using Mark's recommendations (after an analysis) since

November. Twice I have stopped all supplements in order to clear her body

and allow me to figure out what was going on for her. Both times she became

more unstable, and stability returned when I reintroduced Mark's

supplements. The key was the detailed report, I now know exactly what's

going on in her body. Mark is an extremely smart man. He has spent much

time researching, and in his daughter's case he taught her neurologist

important keys.

If you have any more questions for me, I'll be glad to answer them.

Barb

[ ] Mark Schauss

> > >

> > >

> > > My daughter is 14 years old does not have epilepsy. But has alot

> > of

> > >

> > > anxiety. Without taking anykind of medication is there anything

> > else

> > >

> > > she can do to help herself. They had her on Zoloft but we took her

> > > off. She was only on that for about a month.

> > > Thanks

> > >

> > >

> > >

> > >

> > >

> > >

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Date: Sat, 12 Jun 2004 13:50:29 -0400

Subject: Re: [ ] Barb

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Barb,

Thanks for the info. I will wait until I get these reports back from the

lab my doc sent me to, and depending on the outcome, I will decide what

to do next. Mark is a great guy and very smart, I got that from all his

answers and suggestions to me. How did you go about having these tests

done and sent to him? Thanks Barb for answering my questions!

Grace

On Fri, 04 Jun 2004 12:57:37 -0600 Barb Hunte <bhunte@...> writes:

> Grace,

>

> I strongly recommend having the Urine Organic Acid Report completed

> by Mark

> through his company. It helped my daughter soooooooooooo much,

> because it

> is very detailed and specific to her body. It eliminated the guess

> work and

> gave me specifics for her body. This is unique to anyone else I

> have found

> to help. I've actually been able to use the report with my

> pediatrician to

> obtain an appointment with a metabolic specialist, and know exactly

> which

> supplements she needs to bring her stability. I actually just found

> out

> last week that her EEG is finally clear. We've been trying to do

> that for

> 14 months. I've been using Mark's recommendations (after an

> analysis) since

> November. Twice I have stopped all supplements in order to clear

> her body

> and allow me to figure out what was going on for her. Both times

> she became

> more unstable, and stability returned when I reintroduced Mark's

> supplements. The key was the detailed report, I now know exactly

> what's

> going on in her body. Mark is an extremely smart man. He has spent

> much

> time researching, and in his daughter's case he taught her

> neurologist

> important keys.

>

> If you have any more questions for me, I'll be glad to answer them.

>

> Barb

>

>

>

> [ ] Mark Schauss

> > > >

> > > >

> > > > My daughter is 14 years old does not have epilepsy. But has

> alot

> > > of

> > > >

> > > > anxiety. Without taking anykind of medication is there

> anything

> > > else

> > > >

> > > > she can do to help herself. They had her on Zoloft but we took

> her

> > > > off. She was only on that for about a month.

> > > > Thanks

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

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Date: Mon, 14 Jun 2004 07:50:37 -0700 (PDT)

Subject: Re: [ ] Mark's test?

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How do you go about getting this test done from Mark's company? I would be very

interested in getting this done for Austin. Also how much does it cost and does

insurance cover it?

" Grace H. " <foxyfox8@...> wrote:Barb,

Thanks for the info. I will wait until I get these reports back from the

lab my doc sent me to, and depending on the outcome, I will decide what

to do next. Mark is a great guy and very smart, I got that from all his

answers and suggestions to me. How did you go about having these tests

done and sent to him? Thanks Barb for answering my questions!

Grace

On Fri, 04 Jun 2004 12:57:37 -0600 Barb Hunte <bhunte@...> writes:

> Grace,

>

> I strongly recommend having the Urine Organic Acid Report completed

> by Mark

> through his company. It helped my daughter soooooooooooo much,

> because it

> is very detailed and specific to her body. It eliminated the guess

> work and

> gave me specifics for her body. This is unique to anyone else I

> have found

> to help. I've actually been able to use the report with my

> pediatrician to

> obtain an appointment with a metabolic specialist, and know exactly

> which

> supplements she needs to bring her stability. I actually just found

> out

> last week that her EEG is finally clear. We've been trying to do

> that for

> 14 months. I've been using Mark's recommendations (after an

> analysis) since

> November. Twice I have stopped all supplements in order to clear

> her body

> and allow me to figure out what was going on for her. Both times

> she became

> more unstable, and stability returned when I reintroduced Mark's

> supplements. The key was the detailed report, I now know exactly

> what's

> going on in her body. Mark is an extremely smart man. He has spent

> much

> time researching, and in his daughter's case he taught her

> neurologist

> important keys.

>

> If you have any more questions for me, I'll be glad to answer them.

>

> Barb

>

>

>

> [ ] Mark Schauss

> > > >

> > > >

> > > > My daughter is 14 years old does not have epilepsy. But has

> alot

> > > of

> > > >

> > > > anxiety. Without taking anykind of medication is there

> anything

> > > else

> > > >

> > > > she can do to help herself. They had her on Zoloft but we took

> her

> > > > off. She was only on that for about a month.

> > > > Thanks

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

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Date: Wed, 16 Jun 2004 14:02:32 -0000

Subject: %][ ] dilantin

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Anyone on dilantin? I am on it (this is my third time over the past

8 years) and am experiencing some side effects. I was wondering if

anyone else who is on it or knows someone on it can tell me more

about the side effects. Thanks. starr.

[Guest guest]

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Date: Mon, 21 Jun 2004 09:11:31 -0400

Subject: Re: [ ] AEDs, bone loss, and vitamin D

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Zoe,

My neuro also mentioned this to me. Like I said before, for some people,

AEDs can cause more problems than they're worth. Thanks for the article!

Grace

On Mon, 21 Jun 2004 03:46:49 -0000 " zoe88025 " <Zll51@...> writes:

> Osteoporosis, like other bone disorders are clearly linked now to

> the use of AEDs, as explained in the abstract below. Vitamin D

> supplements (not too much!) can indeed help improve calcium

> absorption.

>

> 1: Epilepsy Behav. 2004 Feb;5 Suppl 2:S3-15.

>

> Pathophysiology of bone loss in patients receiving anticonvulsant

> therapy.

>

> Fitzpatrick LA.

>

> Division of Endocrinology, Diabetes, Metabolism, Nutrition, and

> Internal

> Medicine, Mayo Clinic and Mayo Foundation, Rochester, MN 55905,

> USA.

> fitz@...

>

> Many studies have shown that patients taking antiepileptic drugs

> (AEDs) are at

> increased risk for metabolic bone disease and low bone mineral

> density. Although

> early reports of bone disease in patients with epilepsy often

> involved

> institutionalized patients, who may be at risk because of lack of

> physical

> activity, reduced sunlight exposure, and poor nutrition, low bone

> density has

> also been reported in well-nourished, ambulatory outpatients with

> epilepsy.

> Traditionally, attention to the problem of AED-induced bone loss has

>

> been

> focused on those drugs that induce the hepatic cytochrome P450

> enzyme system,

> thereby increasing the metabolism of vitamin D. However, the

> mechanisms of

> AED-induced bone loss appear to be multiple, and all types of AEDs

> are

> potentially implicated. Besides hepatic enzyme induction, mechanisms

>

> may include

> direct effects of AEDs on bone cells, resistance to parathyroid

> hormone,

> inhibition of calcitonin secretion, and impaired calcium absorption.

>

> An

> understanding of bone biology and the pathophysiology of bone loss

> can aid in

> the identification and monitoring of patients at risk and in the

> planning of

> appropriate prophylactic and therapeutic measures, by which most of

>

> the

> morbidity associated with AED-induced bone loss can be prevented.

>

> PMID: 15123006 [PubMed - in process]

> ----------------

>

> http://www.chclibrary.org/micromed/00070460.html

> This article is more in-depth about vitamin D and describes how it

> relates to seizures.

>

> Zoe

>

>

>

>

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Date: Thu, 24 Jun 2004 08:30:39 EDT

Subject: [ ] Durbin Supplement Amendment Withdrawal and the Health

Food Movement

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Recently Sen. Durbin (D-IL) withdrew his amendment to the Defense

Authorization Bill, considered a " must pass " piece of legislation which would

have

regulated supplements on military bases. Citizens for Health sent out a good

email warning on the bill and their website had excellent information and

links for action to contact your senators on the issue. Thannfully the volume of

nationwide response pouring into Senators offices THROUGHOUT the country from

all political and ideological positions was so large that Durbin had to

withdraw the amendment.Let it sink in and congratulate yourselves.You all did

it.

It has been a long time since we had a victory like this in the alternative

health movement. The last big one was in 1994 when we passed the Dietary

Supplement Health Education Act (DSHEA) at the end of the Congressional Session

that

year overcoming the highly effective opposition led by Representative Henry

Waxman, when he was Chairman of the Health & Environment Subcommittee of the

Senate Commerce Committee. The movement was united on the supplement issue and

we forced the leasership to bring pressure for passage. Note: Waxman and the

House Leadership lost control in the next election. The supplement issue has

enough support and power to obtain a victory over the medical establishment and

the pharmaceutical industry when it is activated.

I am often asked why I bother to inundate you with requests to contact

legislators on health politics issues. This is why. Unfortunately, you have to

fight

for these health freedom issues. It may seem unfair and an imposition on the

hectic lives of worried sick cancer patients to have to engage in such

extraneous lobbying of legislators and newspaper editorialists. Sadly we have

the

long list of failures since that victory 10 years ago. Vale is going to

jail for over 5 years for selling Laetrile-a cancer treatment. Drs. Serafina

Corsello,MD and Carley,MD are no longer licensed to practice medicine in

New York and Dr. s,MD although now licensed again is no longer

practicing because she cannot get medical malpractice insurance and noone will

hire her as a doctor. Navarro, the young brain cancer patient who was

denied by FDA the right to use Dr.Stanislaw Brzynski's antineoplaston treatment

from 1999 until May 2001, until it was too late to save him. He was the proxy

for so many others who are denied or kept in the dark about the existence of

alternatives. Fluoride is still in most water in the United States,mandatory

vaccinations are a central feature of the Homeland Security biodefense program,

and aspartame (nutrasweet/equal) is a protected sugar substitute in ever more

diet products despite more consumer complaints to FDA than any other product.

. It feels good to know we can win, but so much needs to be done.

Thanks again for your patience and efforts to secure these

rights.

Arnold

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Date: Fri, 25 Jun 2004 15:20:48 EDT

Subject: [ ] Letter to Sen.Durbin on Amendment withdrawal &

Supplement Safety

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Consumers Health Freedom Coalition

720 Fort Washington Avenue New York, NY 10040

212-795-6460

June 25, 2004

Senator Durbin

US Senate

Washington, DC 20510

Dear Senator Durbin:

Thank you for withdrawing S.3225 regulating dietary supplements on military

installations. The effort to regulate dietary supplements as if they had

comparable

Safety dangers as FDA approved prescription drugs is inappropriate and huge

waste of regulatory resources. Consumers throughout the country find it

disturbing that dietary supplements with an excellent safety record are being

subject

to an ongoing campaign of elevated scrutiny that is discouraging consumers

and restricting access while inevitably raising prices in the long term. While

you have paused in your efforts to curb these supplements, all of these

restrictions are based on very little hard scientific evidence and experience. I

hope

you will reconsider your sponsorship of The Supplement Safety Act S.722. The

actual data on the incidence of adverse reactions to dietary supplements shows

the problem to be extremely small. This bill tries to deal with a problem

that is in reality so small as to be a statistically random error.

The American Association of Poison Control Centers’ (AAPCC) annual reports

document the incidence of reported adverse events associated with Dietary

Supplements as well as other exposures causing injuries and death.

The latest annual report for the year 2002 listed the following associated

with deaths:

From ALL vitamins 2, from electrolytes & minerals 5, amino acids 0, herbs and

botanicals 3 (of which 2 were from formulas containing ephedra in combination

with other herbs and 1 having ephedra as a single ingredient) and 1 unknown

supplement or homeopathic. This was a total of only 11 for all supplements.

Major adverse events were all vitamins 64, electrolytes and minerals 69 and all

herbs, botanicals and other dietary supplements 195 for a total of 328 this was

reported in the American Journal of Emergency Medicine Vol.21, no.5, pp

406-407 & 409-410-September 2003-see enclosures

The figures for prior years are similarly low. The 2002 report even showed a

decrease in deaths of 42% from a total of 19 deaths and 294 major adverse

reactions reported in the American Journal of Emergency Medicine Vol.20, no.5,

pp.439-440 and 442-443, September 2002. See enclosures. The report is

available

on the website of the AAPCC www.aapcc.org

While no death is unimportant, these figures demonstrate that the problem of

safety is much greater for FDA approved prescription drugs which the Journal

of the American Medical Association, vol. 279,no.5:1200-1205,April 15,1998

estimated to result in 106,000 deaths and 2.2 million adverse reactions

resulting

in hospitalization. These were not the result of overdoses or errors, but from

prescriptions correctly prescribed and dispensed and taken as directed. Since

this study only included in-hospital cases it is an underestimate of the

extent of the real problem with FDA approved prescription drugs. If the Congress

and the FDA are concerned with safety, prescription drugs offer a major

opportunity for improvements. Placing restrictions on the safer dietary

supplements,

sometimes used as alternatives to prescription drugs can only exacerbate the

extent of the real problem.

The strength of the connection to even those very few instances of adverse

reactions is not very well established. The FDA press release of February

28,2003 “HHS Acts to Reduce Potential Risks of Dietary Supplements containing

Ephedra

†stated that RAND called such cases “sentinel events,†because they may

indicate a problem exists, but do not prove that ephedra caused the adverse

event. Their report recognized that such case studies are a weak form of

scientific evidence. Even these low numbers could be attributed to random errors

in

reporting from the millions of supplement users.

Ironically, one of the compelling reasons why consumers and patients prefer

to use supplements is the relative safety and lack of serious side effects and

complications attributed to prescription drugs. Presently supplements are much

cheaper than prescription drugs, if this bill is enacted many supplements may

be removed from the market. The bill provides most explicitly that “… if

1(one) or more serious adverse events indicate that a dietary supplement

…appears

to present a significant or unreasonable risk of illness…†it can be

removed.Sec, 416 (d) (1). This is a very draconian power to give to an agency

that

has shown suspicion and hostility to the use of dietary supplements. Your

assumption that FDA will undertake an unbiased clinical evaluation before taking

action is not born out by this agency’s prior conduct. Even if the supplements

stay on the market or are returned to the market, the price will be considerably

greater as happened with L-Tryptophane. This inexpensive sleep aid and

anti-depressant was removed in 1989 when a contaminated batch of a new

genetically

engineered formula was imported and caused several deaths... This cause was

established and reported in major medical journals. Nevertheless the product was

removed and brought back as a much more expensive prescription drug.

Under current law the FDA has authority to remove genuinely dangerous

supplements. I urge you to oppose this proposed legislation and support the

DSHEA

Full Implementation and Enforcement Act S.1538 sponsored by Senator Tom Harkin

which addresses the safety issue.

9 enclosures

Sincerely,

_____________

Arnold Gore

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