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Date: Mon, 05 Apr 2004 17:38:07 -0000

Subject: [ ] Seizures and what they look like PLEASE tell me what

yours/childs are like

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hi all

I have a nearly 5 year old with autism and eplilepsy and all but 2

seizures in the last several years are subclinical or complex parital

seizures. I have to assume that I know when they did and do occur

and want to have as many people as can reply to me and tell me what

yours or your childs look like in as much detail as possible. Also

what happens before and after, pain, aggression, self injury, loud

sounds. My son is on Depakote and levels have been theraputic but

that does not mean he is not having seizures. Please help me sort

out this as we are in a crisis right now with severe aggression and

self injury with no known cause.

Thanks

Leighanne

mainecollier@...

April 5, 2004

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Sincerely,

Amazon.com Customer Service

> http://www.amazon.com/your-account

April 5, 2004

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>

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> Date: Mon, 05 Apr 2004 17:38:07 -0000

> Subject: [ ] Seizures and what they look like PLEASE

> tell me what yours/childs are like

> Reply-

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>

> hi all

> I have a nearly 5 year old with autism and eplilepsy and all but 2

> seizures in the last several years are subclinical or complex

> parital

> seizures. I have to assume that I know when they did and do occur

> and want to have as many people as can reply to me and tell me what

>

> yours or your childs look like in as much detail as possible. Also

>

> what happens before and after, pain, aggression, self injury, loud

> sounds. My son is on Depakote and levels have been theraputic but

> that does not mean he is not having seizures. Please help me sort

> out this as we are in a crisis right now with severe aggression and

>

> self injury with no known cause.

>

> Thanks

> Leighanne

> mainecollier@...

>

April 6, 2004

On Mon, 5 Apr 2004 14:52:42 -0700 " Amazon.com " <store-news@...>

writes:

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> most

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>

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>

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> of most pending orders.

>

> Thank you again for shopping at Amazon.com.

>

> Sincerely,

> Amazon.com Customer Service

> http://www.amazon.com/

>

April 6, 2004

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Date: Tue, 06 Apr 2004 17:37:29 -0000

Subject: [ ] Re: What is SCD-sorry, my system kicked me out of the

grp

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SCD stands for Specific Carbohydrate Diet - here is a good link for

research:

April 6, 2004

Thanks for writing to Amazon.com. You should find the answers to most

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April 7, 2004

Stop sending me this!!!

On Tue, 6 Apr 2004 11:00:23 -0700 Amazon.com <order-update@...>

writes:

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>

>

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> touch with us, please use the e-mail form available in our

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>

> Thanks for shopping at Amazon.com!

>

> Sincerely,

>

> Amazon.com Customer Service

> http://www.amazon.com

>

> P.S. You received this message because Amazon.com received

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> From

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> Subject: [ ] Re: What is SCD-sorry, my system kicked me

> out of the grp

> Reply-

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>

> SCD stands for Specific Carbohydrate Diet - here is a good link for

>

> research:

> http://www.breakingtheviciouscycle.info/index.htm

>

April 7, 2004

Stop sending me anything!!!!!

On Tue, 6 Apr 2004 15:48:46 -0700 " Amazon.com " <store-news@...>

writes:

> Thanks for writing to Amazon.com. You should find the answers to

> most

> of your questions in our online Help department:

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>

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>

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>

> Thank you again for shopping at Amazon.com.

>

> Sincerely,

> Amazon.com Customer Service

> http://www.amazon.com/

>

April 7, 2004

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cures for cancer , ,

actiongreens , flaxseedOil2

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Date: Wed, 7 Apr 2004 20:14:51 EDT

Subject: [ ] FDA panel says FDA can remove supplements now easily

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IAHF Website: Breaking News, Whats New, What to Do, All Countries, EU FSD,

Codex, DSHEA

IAHF List: The Associated Press published the article below in the aftermath

of the National Academy of Sciences unleashing their report " Dietary

Supplements: A Framework for Establishing Safety "

This AP article will undoubtedly be picked up by major newspapers world wide

and used to fuel the rabid global attack against dietary supplements.

Additionally, Consumer Reports has generated an article which calls for a

dozen supplements to be yanked from the shelves.

See

http://www.consumerreports.org/main/content/display_report.jsp?FOLDER%3C%3Efolde\

r_id=419337 & bmUID=1080967795242

I checked the legislative database to see if S.722 The (so called)

Dietary Supplement Safety Act of 2003 had picked up any cosponsors as a result

of

these announcements. (It hasn't, but I'll keep monitoring it.)

The best way consumers world wide can continue to defend their access to

supplements remains to contribute to the Alliance for Natural Health's lawsuit

to

overturn the EU Food Supplements Directive- see

http://www.alliance-natural-health.org

Please forward this information widely, we have our work cut out for us to

offset this Associated Press article:

http://customwire.ap.org/dynamic/stories/F/FIT_DIET_SUPPLEMENTS?SITE=APWEB & SEC

TION=HOME & TEMPLATE=DEFAULT

Panel: FDA Can Move Against Supplements

By LAURAN NEERGAARD

AP Medical Writer

WASHINGTON (AP) -- The Food and Drug Administration doesn't need direct

evidence of human harm before taking steps to curb sales of a dietary

supplement,

an advisory panel reported Thursday.

Data from animals, test-tube studies, even similar products can suffice, the

panel said.

Still, Congress should require manufacturers to report customers' side

effects, thus easing constraints lawmakers have placed on the FDA's ability to

protect the public from dangerous supplements, the Institute of Medicine

concluded

Thursday.

The report promises to bolster new FDA efforts to crack down on risky

supplements - and challenges long-held assumptions that the agency must prove an

ingredient unsafe before pulling it off the market.

Not true, concluded a panel of well-known scientists from the institute and

its sister agency, the National Research Council.

Latest Health News

Meditation Impacts Teen Blood Pressure

FDA Finds No Hepatitis a Outbreak Link

Bird Flu Scare Over for Md., Del. Farms

No'Smoking Gun' in Green Onion Probe

Group Says Minnesota's HMOs Improving

" You don't have to have proof of harm, " stressed Barbara Schneeman, vice

provost and a nutritionist at the University of California, , who headed

the

panel.

The law requires the FDA to demonstrate significant or unreasonable risk from

a supplement, something the panel insisted can be done with less strict

evidence. The report provides FDA with step-by-step instructions on how to

evaluate

supplement safety when there isn't clear-cut human data.

By setting a scientific framework for the FDA's work, " it's certainly our

hope this is going to allow them to be more effective in identifying substances

that could pose a risk for harm to human health, " Schneeman explained.

Contrary to frequent claims by supplement proponents, neither an absence of

reports of side effects nor a product's long history of use automatically mean

it's safe, the report cautioned.

Indeed, legal " constraints imposed on the FDA make it difficult for the

health of the American public to be adequately protected, " the report concluded,

calling on Congress to better fund the FDA's oversight of supplement safety -

and to mandate manufacturers' reporting of customers' side effects, just like

medication makers must.

Sen. Durbin, D-Ill., has introduced legislation for side-effect

reporting; support is uncertain.

The $19 billion dietary supplement industry - with products ranging from

mainstream vitamins to controversial hormones and stimulants - is loosely

regulated. A 1994 law sought by the industry means that, unlike most

medications, most

supplements sold today never had to be proven safe, much less proven to bring

any health benefit.

The burden is on the FDA's $10 million dietary supplements office, with a

staff of 25, to uncover enough evidence to push risky ones off the market. Later

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become the first supplement formally banned under the law's provisions.

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a pitched eight-year battle with ephedra supporters. The FDA at first said it

lacked enough proof of harm for a major crackdown but later reversed that

position. In December the agency set a legal precedent by making ephedra's

actions

inside the body key to its risk analysis, rather than simply trying to prove

it caused individual deaths.

The Institute of Medicine report " appears to be consistent " with the ephedra

approach, said Dr. , the FDA's dietary supplement chief. " We

anticipate this will be a very useful document. "

But even with clearer instructions, providing enough evidence to ban a risky

supplement " may take a considerable period of time, " she cautioned.

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safe.

" I see this report as an attempt to establish a framework that addresses, in

a predetermined manner that everybody understands - the regulator, the

regulated industry - how we can address safety issues, " said McGuffin of

the

American Herbal Products Association.

His group supports mandatory reporting of serious side effects.

For Health Freedom,

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Date: Sat, 10 Apr 2004 18:18:00 EDT

Subject: Re: [ ]Re: What is SCD-sorry, my system kicked me Digest

Number 1452

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Hiya Barb

It has been MY experience that NO MATTER what type of Magnesium I take, it is

only effective in liquid form. So I now go with the cheapest. Either crush

and dissolve Mg oxide, or take 1/2 to 1 tsp of MoM several times daily or

dissolve some EPsom salts.

There are several brands of liquid Mg available, but I need to be thrifty.

My body needs about 1 gram Mg daily just to minimize muscle spasms..... my

son has several types of seizures and adding Mg to his regime for the last year

has decreased seizure activity. We also get the necessary cofactors of B

complex+B6 to make the Mg work.

Hope this helps.

mjh

In a message dated 4/10/2004 5:53:07 PM Eastern Daylight Time,

writes:

From: Barb Hunte <bhunte@...>

Subject: Re: What is SCD-sorry, my system kicked me outDigest Number 1449

Thank you MJH,

Do you mean purchasing a liquid (if so which one), or do you mean dissolved

in boiling water. I've been dissolving it and it seems to help improve her

seizure threshold. (Actually it's the first time in about a year that we've

had a good week, instead of just a good day!!! Praise God). The dissolving

also seems to have lessened her stomachaches. Theory: Dissolved Mg = good

absorption and no bowel regulation. Undisolved Mg = poor absorption and

thus functions as a laxative? Would your experience support such a crazy

hypothesis? Lactulose is used as a mild laxative because it is a sugar our

bodies do not have the enzyme to digest, and thus it passes through and

helps the bowels. Just a thought.

Barb

***Attention ***

New email address Please update your address book

My new email is bhunte@...

----- Original Message -----

mjh

April 10, 2004

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Subject: Re: [ ] Fw: Grace--how Mark Schauss helped my daughter

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Barb,

What is funny is that many of these kids with seizures have problems with

body temp. When my daughter first started with the seizure disorder her temp ran

~96.4- Temp is controlled by the hypothalamus???

My daughter also had an intestinal parasite " Dientamoeba fragilis " .

A week prior to the seizure onset she had dental amalgams placed?

It seems like our kids have common symptoms, or otherwise present with the

same problems. But neurologists just seem to ignore these facts.

It really makes you wonder.

Tracey

April 13, 2004

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Subject: Re: [ ] Fw: Grace--how Mark Schauss helped my daughter

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Hi mark,

In 's case I believe Mercury is the toxin we are refering to. She

started the seizures right after the amalgams were placed, then the day she had

them removed and two additional days she had 20 seizures per day. She had been

averaging 9 a day.

So yes, it is toxicity. But why do the doctors ignore the matter and blow it

off?

April 15, 2004

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Date: Sat, 17 Apr 2004 02:59:09 -0000

Subject: [ ] Mannatech......Ambrotose....Glyco-bears???

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Has anyone heard of this or glyconutrients and if so have you tried

them,had any sucess,or failure????

April 16, 2004

Thanks for writing to Amazon.com. You should find the answers to most

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Thank you again for shopping at Amazon.com.

Sincerely,

Amazon.com Customer Service

April 18, 2004

Thanks for writing to Amazon.com. You should find the answers to most

of your questions in our online Help department:

To view any order, or to make changes to an order that has yet to

enter the shipping process, visit Your Account:

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any page of our store. Once there, you can cancel or combine items

from orders that have not yet entered the shipping process, as well

as change the shipping address, payment method, or shipping method

of most pending orders.

Thank you again for shopping at Amazon.com.

Sincerely,

Amazon.com Customer Service