Question

April 16, 2004

I did see Dr. Weinert today and felt very comfortable with him. He answered all

of our questions including all the ones from the list that this group said I

should ask.

He seemed very dedicated to Dr. Ponseti's non-surgical methods. He also said

he had just been out in October to see Dr. Ponseti and he spoke highly of him.

He also showed us models of the DBB he uses.

I just want to reiterate that we were very happy with our interview with him and

everything he told us about his treatment mirrored what is on Dr. Ponseti's

website. I am a lawyer and I tend to get very particular in my questions but I

felt very satisfied.

Of course, one should make up one's own mind but again, so far I have had a

positive experience with him. I am not due until August but will report then.

Dessi Pickett DPickett@...> wrote:

Incredible. Carl Weinert - the king of CHOC! He who rebelled against

Dr. Ponseti's method for so long and as of 1.5 yrs had a 60% cut rate!

He saw 's feet at the hospital and said that one of them had to

get the surgery for sure. It is just hard to believe. I hope he is

going to use Ponseti's method for real. Weinert was using the AFO not

the DBB. WOW! If anybody goes to interview him, please let me know. I

will try calling his office. Last time I called they refused to release

any info to me.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 16, 2004

I did see Dr. Weinert today and felt very comfortable with him. He answered all

of our questions including all the ones from the list that this group said I

should ask.

He seemed very dedicated to Dr. Ponseti's non-surgical methods. He also said

he had just been out in October to see Dr. Ponseti and he spoke highly of him.

He also showed us models of the DBB he uses.

I just want to reiterate that we were very happy with our interview with him and

everything he told us about his treatment mirrored what is on Dr. Ponseti's

website. I am a lawyer and I tend to get very particular in my questions but I

felt very satisfied.

Of course, one should make up one's own mind but again, so far I have had a

positive experience with him. I am not due until August but will report then.

Dessi Pickett DPickett@...> wrote:

Incredible. Carl Weinert - the king of CHOC! He who rebelled against

Dr. Ponseti's method for so long and as of 1.5 yrs had a 60% cut rate!

He saw 's feet at the hospital and said that one of them had to

get the surgery for sure. It is just hard to believe. I hope he is

going to use Ponseti's method for real. Weinert was using the AFO not

the DBB. WOW! If anybody goes to interview him, please let me know. I

will try calling his office. Last time I called they refused to release

any info to me.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 16, 2004

What do you mean models of the DBB?

I just spoke with his office and was told that he uses AFOs mainly.

Interesting, I was told that the method used will still depend on the

child. Very confusing. St. ph pediatricians will speak with him

next week.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 16, 2004

What do you mean models of the DBB?

I just spoke with his office and was told that he uses AFOs mainly.

Interesting, I was told that the method used will still depend on the

child. Very confusing. St. ph pediatricians will speak with him

next week.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 16, 2004

What do you mean models of the DBB?

I just spoke with his office and was told that he uses AFOs mainly.

Interesting, I was told that the method used will still depend on the

child. Very confusing. St. ph pediatricians will speak with him

next week.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 17, 2004

-

I see from another post you are going to give Dr. King a try. Should he not

be a match for you for any reason please contact me about other Southern

California doctors. We've saw Dr. Mubarak in San Diego for castings and

tenonomy and currently drive north to see Dr. Colburn in Pleasanton for

follow up treatment. I can be reached directly at hwray98@....

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Question

>Date: Tue, 13 Apr 2004 23:37:01 -0000

>

>Our son Kody was born Feb 1st 2004 with a clubfoot.

>The doctors went right away ahead and put his leg

>in a cast. Now after 2 1/2 month we are not really

>happy with the treatment anymore and they already mentioned

>that he might need surgery. Today I read about the

>Ponseti method and I got very interested.

>My question is: Are there any doctors in Southern

>California who know how to apply that method

>correctly or do we have to contact the University

>in Iowa to do it the treatment over there.

>I would be very happy if somebody could give me an

>answer.

>

_________________________________________________________________

From must-see cities to the best beaches, plan a getaway with the Spring

Travel Guide! http://special.msn.com/local/springtravel.armx

April 17, 2004

-

I see from another post you are going to give Dr. King a try. Should he not

be a match for you for any reason please contact me about other Southern

California doctors. We've saw Dr. Mubarak in San Diego for castings and

tenonomy and currently drive north to see Dr. Colburn in Pleasanton for

follow up treatment. I can be reached directly at hwray98@....

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Question

>Date: Tue, 13 Apr 2004 23:37:01 -0000

>

>Our son Kody was born Feb 1st 2004 with a clubfoot.

>The doctors went right away ahead and put his leg

>in a cast. Now after 2 1/2 month we are not really

>happy with the treatment anymore and they already mentioned

>that he might need surgery. Today I read about the

>Ponseti method and I got very interested.

>My question is: Are there any doctors in Southern

>California who know how to apply that method

>correctly or do we have to contact the University

>in Iowa to do it the treatment over there.

>I would be very happy if somebody could give me an

>answer.

>

_________________________________________________________________

From must-see cities to the best beaches, plan a getaway with the Spring

Travel Guide! http://special.msn.com/local/springtravel.armx

April 17, 2004

-

I see from another post you are going to give Dr. King a try. Should he not

be a match for you for any reason please contact me about other Southern

California doctors. We've saw Dr. Mubarak in San Diego for castings and

tenonomy and currently drive north to see Dr. Colburn in Pleasanton for

follow up treatment. I can be reached directly at hwray98@....

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Question

>Date: Tue, 13 Apr 2004 23:37:01 -0000

>

>Our son Kody was born Feb 1st 2004 with a clubfoot.

>The doctors went right away ahead and put his leg

>in a cast. Now after 2 1/2 month we are not really

>happy with the treatment anymore and they already mentioned

>that he might need surgery. Today I read about the

>Ponseti method and I got very interested.

>My question is: Are there any doctors in Southern

>California who know how to apply that method

>correctly or do we have to contact the University

>in Iowa to do it the treatment over there.

>I would be very happy if somebody could give me an

>answer.

>

_________________________________________________________________

From must-see cities to the best beaches, plan a getaway with the Spring

Travel Guide! http://special.msn.com/local/springtravel.armx

April 17, 2004

Hm, thanks for the update Dessi. When I say the DBBs, I mean he showed us the

shoes attached to the bar, not AFOs. That is really interesting.

Thanks again, we will also follow up.

Take care.

Dessi Pickett DPickett@...> wrote:

What do you mean models of the DBB?

I just spoke with his office and was told that he uses AFOs mainly.

Interesting, I was told that the method used will still depend on the

child. Very confusing. St. ph pediatricians will speak with him

next week.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 17, 2004

Hm, thanks for the update Dessi. When I say the DBBs, I mean he showed us the

shoes attached to the bar, not AFOs. That is really interesting.

Thanks again, we will also follow up.

Take care.

Dessi Pickett DPickett@...> wrote:

What do you mean models of the DBB?

I just spoke with his office and was told that he uses AFOs mainly.

Interesting, I was told that the method used will still depend on the

child. Very confusing. St. ph pediatricians will speak with him

next week.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 17, 2004

Hm, thanks for the update Dessi. When I say the DBBs, I mean he showed us the

shoes attached to the bar, not AFOs. That is really interesting.

Thanks again, we will also follow up.

Take care.

Dessi Pickett DPickett@...> wrote:

What do you mean models of the DBB?

I just spoke with his office and was told that he uses AFOs mainly.

Interesting, I was told that the method used will still depend on the

child. Very confusing. St. ph pediatricians will speak with him

next week.

Dessi

Re: Re: Question

Dear ,

We are in Orange County, too. I had the dilemma about where to go, too.

I wrote to Dr. Ponseti and he answered me soon after regarding doctors

in Orange County. Here is what he said, I am sure this will be a big

help to you and may help you avoid a trip to Tarzana since he recommends

a doctor here in Orange County. Here is the actual text of his email:

Dear Mrs. Hewitt:

Before a physician is added to my web site, I request that he send me

the photos of the feet of three babies he has treated showing the feet

before treatment was started and after it was complete, etc. In today's

mail I received this information from two California physicians: Dr.

Carl Weinert, Jr., 1310 West Dr., Suite 508, Orange, California

phone 714 633-2111 and Dr. Lerman, Shriners Hospital, 2425

Stockton Blvd., Sacramento CA 95817 phone 916 453-2049 The photos

submitted by each of these physicians show excellent results and their

names will be added to our web site.

If I can be of further service or answer questions for you at any time,

don't hesitate to be in touch.

I.V. Ponseti, M.D.

(Joyce Roller, secretary)

claugauga claugauga@...> wrote:

Hi ,

thanks for replying. We live in Santa Ana (Orange County).

Hall send me the link to the California available

Doctors and there are only two who we could choose from. Since

you are telling me that Dr. King is doing a good job we will

try him. I will read the protocol again and hopefully the

treatment is going to be as good as in Iowa.

How old is now? And how long was the treatment with the cast

for her?

Thank you so much for replying!!!

and Kody

> > Our son Kody was born Feb 1st 2004 with a clubfoot.

> > The doctors went right away ahead and put his leg

> > in a cast. Now after 2 1/2 month we are not really

> > happy with the treatment anymore and they already mentioned

> > that he might need surgery. Today I read about the

> > Ponseti method and I got very interested.

> > My question is: Are there any doctors in Southern

> > California who know how to apply that method

> > correctly or do we have to contact the University

> > in Iowa to do it the treatment over there.

> > I would be very happy if somebody could give me an

> > answer.

April 30, 2004

Hi Ruth,

I can totally relate to you. My husband is a truck driver and for the

past 9 yrs I have only had him on on weekends and sometimes during

the weekdays - but I got use to it.

This past August he was in a nasty rollover that almost took his life

and have had him home daily since then up until this week when he

went back to work. I had come to depend on him so much, just the fact

of knowing he was in the house was a relief so these next few weeks

will be an adjusting period for both of us.

To answer you question - yes SOME antibiotics can make your lupus

flare, but the thing to remember is NO 2 LUPUS PATIENTS ARE ALIKE -

so say zithromax made me have a lupus flare, does not mean it would

make you have a lupus flare. I do know that lupus patients must

AVOID sulfa. If you go to our dear 's website I believe she has

a section there that may be helpful for you. That site is

http://www.itzarion.com/lupusgroup.html make sure to check it out, it

is very informative and such.

I wish you much luck tomorrow with your daughter's meet and I hope

she can perform. Just make sure you douse yourself with sunscreen,

and wear a hat.

Hopefully others will be helpful to you with your question, I hope I

was able to help somewhat.

Well I will let you go, please take it easy and try to get some rest.

Huggles,

Deanna

> Well tonight is gonna be a night of little or no sleep. If my

hubby were home instead of on a fishing trip I would take something

stronger for the pain and would probably sleep sound. He will be

gone until Sunday evening. I usually only sleep in bits and pieces

while he is gone. The last 4 to 5 years I have come to depend on him

so much. Not so much for helping with things but just to be here for

me.

>

> But he is gone and I have an 11 year old in the house so I get to

play on the computer.

>

> From reading some posts do I understand right that taking

antibiotics can cause a flare up of lupus?

>

> I have stayed away form the sun for years except when I had no

choice. Tomorrow is gonna be a no choice day. My darling youngest

has a track meet. Well, that is if her asthma will let her. We have

had winds and dust along wtih all the pollens and the asthma is

trying really hard this week to kick her butt.

>

> Bad thing is I work tomorrow night and Saturday. It is gonna take

me the next 4 days to recoop so I can work again.

>

> I better go I am starting to ramble.

>

> Hey thanks a lot.

>

> Ruth in CA

April 30, 2004

Hi Ruth,

I can totally relate to you. My husband is a truck driver and for the

past 9 yrs I have only had him on on weekends and sometimes during

the weekdays - but I got use to it.

This past August he was in a nasty rollover that almost took his life

and have had him home daily since then up until this week when he

went back to work. I had come to depend on him so much, just the fact

of knowing he was in the house was a relief so these next few weeks

will be an adjusting period for both of us.

To answer you question - yes SOME antibiotics can make your lupus

flare, but the thing to remember is NO 2 LUPUS PATIENTS ARE ALIKE -

so say zithromax made me have a lupus flare, does not mean it would

make you have a lupus flare. I do know that lupus patients must

AVOID sulfa. If you go to our dear 's website I believe she has

a section there that may be helpful for you. That site is

http://www.itzarion.com/lupusgroup.html make sure to check it out, it

is very informative and such.

I wish you much luck tomorrow with your daughter's meet and I hope

she can perform. Just make sure you douse yourself with sunscreen,

and wear a hat.

Hopefully others will be helpful to you with your question, I hope I

was able to help somewhat.

Well I will let you go, please take it easy and try to get some rest.

Huggles,

Deanna

> Well tonight is gonna be a night of little or no sleep. If my

hubby were home instead of on a fishing trip I would take something

stronger for the pain and would probably sleep sound. He will be

gone until Sunday evening. I usually only sleep in bits and pieces

while he is gone. The last 4 to 5 years I have come to depend on him

so much. Not so much for helping with things but just to be here for

me.

>

> But he is gone and I have an 11 year old in the house so I get to

play on the computer.

>

> From reading some posts do I understand right that taking

antibiotics can cause a flare up of lupus?

>

> I have stayed away form the sun for years except when I had no

choice. Tomorrow is gonna be a no choice day. My darling youngest

has a track meet. Well, that is if her asthma will let her. We have

had winds and dust along wtih all the pollens and the asthma is

trying really hard this week to kick her butt.

>

> Bad thing is I work tomorrow night and Saturday. It is gonna take

me the next 4 days to recoop so I can work again.

>

> I better go I am starting to ramble.

>

> Hey thanks a lot.

>

> Ruth in CA

April 30, 2004

Avoiding sulfa and sulfonamides is no problem for me. When I take

sulfonamides like Bextra, Celebrez, Indocin, etc. I get really sick so on

my charts say no sulfonamides. Then Dr. decided to mark it no SULFA.

As far as I can tell I have never taken SULFA in my life.

If this is Lupus then maybe the reaction to the sulfanomides was part of it.

Most of this started happening big time about 4 years ago. I was injured at

work and ha 5 major surgical repairs in one year. A bit much. I almost

went bonkers with it. At one point I just literally sat and bawled in my

Dr.s office and told him I can;t do this.

He was such a sweetie. He says yes we can. He gave me some meds teh next

year that got me through some bad stuff.

I might try and work on my cookbook now. I put one together a few years

back as Christmas present for my family.

I am currently writing two different book. I am writing one book on Once a

Month Coooking and I am writing another one on being a servant to others

through cooking. The last one is about a hostess ministry through churches.

Take care,

Ruth

September 11, 2004

Hi (cool name!),

Just my experience. My 's first doc also did the remove the

cast the night before and now we are seeing Dr. Herzenberg in

Baltimore because her foot was not fully corrected. She even needed

a second tenotomy. And I followed the rules the doc set with the

DBB and everything. Problem was that the doc wasn't truely using

the Ponseti method. Multiple deviations.

Because of what I've gone through with , the cast removal

would be a BIG red flag. You may want a second opinion. Emailing

Dr Ponseti or Dr. Herzenberg may be a good idea.

Dr. Ponseti

(319)356-3469

ignacio-ponseti@...

Dr Herzenberg

JHERZENBERG@...

Hope that helps!

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (2 days left!!)

Owen and 3/20/99

> Hello everyone. I've just been looking at Dr. Ponseti's site &

what

> I've found is most of the kids seem to have had around 5 casts. My

> daughter is on her 5th casting and her foot still isn't quite

> straight. It's starting to make me nervous. Also, her doctor

wasn't

> listed--actually, no docs were listed for PA. Is that not a

complete

> listing? Is anyone familiar with Dr. Realyvasquez at St.

> Chris's in Philly? So am I just overly concerned or not? The

> castings the doctor has done seem just like the pictures, with the

> only exception being that her 3rd & 4th castings were pretty much

> the same--we had a different doc (Dr. Realy on vacation) and he

> couldn't get her foot to turn far enough. So really this 5th

casting

> is only in the 4th position. Also, we were told to remove her cast

> the night before her appointment & on the website it says that's a

> big " no-no " --not to remove cast until an hour before new cast.

> Anyone have any experience with that? I know I'm rambling but I'm

> just feeling a little concerned. I was a little stunned when she

was

> born and other than making sure we had a " good " doctor I haven't

> been doing much research until this week and now I'm getting a

> little worked up. We kind of fell into the Ponseti method by

chance

> (fortunately!) and I totally think it will work, but I just want

to

> make sure we're doing everything we can. (A little late now!)

> Thanks for any help you can give me!

>

> mom of Guinevere 5/00 (no CF)

> on 4/02 (no CF)

> Ava 8/04 (right CF)

> PS I'm also still trying to get down all your " lingo " and

> abbreviations. Is there a dictionary anywhere? :-)

September 11, 2004

Hi ,

We're glad you posted. Welcome!

It's great that you are doing research and informing yourself. A

mother's instinct is almost always right.. if you have doubts about

how treatment is going, don't ignore it and get the answers you need.

I went through this myself.. a period of unease, wanting to believe

we were on the right track, but questioning it. It took me 3 months

before I finally accepted that we needed to make a change. I'm not

saying that's the case for you.. but.. I can relate to your

situation, as many others can here too.

It can be tricky to know if your child is getting the true method.

Here is a checklist of questions for parents and clues that it is

being done with success. Typically 5 to 7 casts are needed.

http://pages.ivillage.com/ponseti_links/id13.html

Up till now I haven't heard of any docs in the Philly area doing the

method.. that doesn't mean that they are not, but we have often heard

of families in that area ending up going to see Dr. Herzenberg

in Baltimore, after failed treatment elsewhere. You're fortunate

you're near him; he's one of the very best. He'd be a great resource

for you if you were to want another opinion. Here's a link to his

website:

http://www.lifebridgehealth.org/sinaibody.cfm?id=2360

I know the other parents here will answer you and provide much info..

this is a group with a wealth of info and many years of accumulated

experience. We're glad you're a part of it!

and Claire

born 6/29/00 with unilateral left

switched to Dr. Ponseti at 3 months old

doing great

> Hello everyone. I've just been looking at Dr. Ponseti's site & what

> I've found is most of the kids seem to have had around 5 casts. My

> daughter is on her 5th casting and her foot still isn't quite

> straight. It's starting to make me nervous. Also, her doctor wasn't

> listed--actually, no docs were listed for PA. Is that not a

complete

> listing? Is anyone familiar with Dr. Realyvasquez at St.

> Chris's in Philly? So am I just overly concerned or not? The

> castings the doctor has done seem just like the pictures, with the

> only exception being that her 3rd & 4th castings were pretty much

> the same--we had a different doc (Dr. Realy on vacation) and he

> couldn't get her foot to turn far enough. So really this 5th

casting

> is only in the 4th position. Also, we were told to remove her cast

> the night before her appointment & on the website it says that's a

> big " no-no " --not to remove cast until an hour before new cast.

> Anyone have any experience with that? I know I'm rambling but I'm

> just feeling a little concerned. I was a little stunned when she

was

> born and other than making sure we had a " good " doctor I haven't

> been doing much research until this week and now I'm getting a

> little worked up. We kind of fell into the Ponseti method by chance

> (fortunately!) and I totally think it will work, but I just want to

> make sure we're doing everything we can. (A little late now!)

> Thanks for any help you can give me!

>

> mom of Guinevere 5/00 (no CF)

> on 4/02 (no CF)

> Ava 8/04 (right CF)

> PS I'm also still trying to get down all your " lingo " and

> abbreviations. Is there a dictionary anywhere? :-)

September 13, 2004

Hello ! You have reason to be concerned, but please also remember

every childs case is different. If the cf is real severe, it can take

more than 5 or 6 casts to make the correction. However, it never hurts to

get a 2nd opinion especially if your doctor is not listed on Dr. Ponseti's

site. It also doesn't necessarily mean your doctor is bad. And luckily,

you are still in the very beginning stages so if you decide to go

elsewhere, you have lost very little time. I have heard others from PA

said they couldn't find a Ponseti trained doctor so they go to Dr.

Herzenberg in Baltimore. Everyone on this board will give you a lot of

help and insight. I left my 1st doctor when my daughter was 6 months. We

had to start all over at that point. So try to do more research and like

I said, 5 weeks in is still plenty early enough where too much time won't

be lost if you choose another doctor.

Good luck and keep us informed!

& (3/2/04) bcf (4 casts, 2nd go-around)

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

September 13, 2004