Question

[Guest guest]

,

The " Me " book by Dr. Lovaas helped me to start my grandson in

therapy, primarily speech as this is where he needs help the most

right now. My daughter, his Mother, also has the Let Me Hear Your

Voice and the Behavioral Intervention for Young Children with Autism

but the " Me " book has helped me (I do my 4 yr. grandson and she does

my 2 yr granddaughter, since she seems to be somewhat behind in

speech) set up a program the most.

My grandson gets 1 1/2 hours speech therapy from the school system a

week. My daughter has set up a meeting with the teachers, etc. and I

am going also to try to get the school to give more speech therapy.

We would like at the very least 1 hour a day, one on one aba speech

therapy, but I fear that will not happen. We are in process right

now to try to find an advocate for my grandson that can help us in

that area. I really don't have much hope for that, either but you

never know.

My grandson has already made a few gains (I've been doing my own

speech therapy per the " Me " book for about 3 weeks), so we are

encouraged somewhat. We want more gains, tho. We have learned so

much on how to help him talk through the " Me " book and a litte from

the Behavioral Intervention for Young Children with Autism.

Different people like different things, this is just what has helped

us.

Grandma in Ga.

> So most of you are getting some form of therapy such as Aba 25-30

> hours per week plus speech developmental and OT? The three hours

they

> are providing for us is 1 hour speech per week, 1 hour

developmental,

> and 1 hour every other week of OT for sensory issues. I did contact

> my Early childhood provider and she wasnt sure they could do any

more

> for us said the money is gone for the program. Think I am bieng

lied

> to? need to push harder? Cause from what you all posted i get the

> feeling he isnt getting what he needs to improve. What if I wanted

to

> try doing ABa at home myself? Where would I learn how? F

[Guest guest]

,

The " Me " book by Dr. Lovaas helped me to start my grandson in

therapy, primarily speech as this is where he needs help the most

right now. My daughter, his Mother, also has the Let Me Hear Your

Voice and the Behavioral Intervention for Young Children with Autism

but the " Me " book has helped me (I do my 4 yr. grandson and she does

my 2 yr granddaughter, since she seems to be somewhat behind in

speech) set up a program the most.

My grandson gets 1 1/2 hours speech therapy from the school system a

week. My daughter has set up a meeting with the teachers, etc. and I

am going also to try to get the school to give more speech therapy.

We would like at the very least 1 hour a day, one on one aba speech

therapy, but I fear that will not happen. We are in process right

now to try to find an advocate for my grandson that can help us in

that area. I really don't have much hope for that, either but you

never know.

My grandson has already made a few gains (I've been doing my own

speech therapy per the " Me " book for about 3 weeks), so we are

encouraged somewhat. We want more gains, tho. We have learned so

much on how to help him talk through the " Me " book and a litte from

the Behavioral Intervention for Young Children with Autism.

Different people like different things, this is just what has helped

us.

Grandma in Ga.

> So most of you are getting some form of therapy such as Aba 25-30

> hours per week plus speech developmental and OT? The three hours

they

> are providing for us is 1 hour speech per week, 1 hour

developmental,

> and 1 hour every other week of OT for sensory issues. I did contact

> my Early childhood provider and she wasnt sure they could do any

more

> for us said the money is gone for the program. Think I am bieng

lied

> to? need to push harder? Cause from what you all posted i get the

> feeling he isnt getting what he needs to improve. What if I wanted

to

> try doing ABa at home myself? Where would I learn how? F

[Guest guest]

,

The " Me " book by Dr. Lovaas helped me to start my grandson in

therapy, primarily speech as this is where he needs help the most

right now. My daughter, his Mother, also has the Let Me Hear Your

Voice and the Behavioral Intervention for Young Children with Autism

but the " Me " book has helped me (I do my 4 yr. grandson and she does

my 2 yr granddaughter, since she seems to be somewhat behind in

speech) set up a program the most.

My grandson gets 1 1/2 hours speech therapy from the school system a

week. My daughter has set up a meeting with the teachers, etc. and I

am going also to try to get the school to give more speech therapy.

We would like at the very least 1 hour a day, one on one aba speech

therapy, but I fear that will not happen. We are in process right

now to try to find an advocate for my grandson that can help us in

that area. I really don't have much hope for that, either but you

never know.

My grandson has already made a few gains (I've been doing my own

speech therapy per the " Me " book for about 3 weeks), so we are

encouraged somewhat. We want more gains, tho. We have learned so

much on how to help him talk through the " Me " book and a litte from

the Behavioral Intervention for Young Children with Autism.

Different people like different things, this is just what has helped

us.

Grandma in Ga.

> So most of you are getting some form of therapy such as Aba 25-30

> hours per week plus speech developmental and OT? The three hours

they

> are providing for us is 1 hour speech per week, 1 hour

developmental,

> and 1 hour every other week of OT for sensory issues. I did contact

> my Early childhood provider and she wasnt sure they could do any

more

> for us said the money is gone for the program. Think I am bieng

lied

> to? need to push harder? Cause from what you all posted i get the

> feeling he isnt getting what he needs to improve. What if I wanted

to

> try doing ABa at home myself? Where would I learn how? F

[Guest guest]

Contact your Dept of Health if your child is under 5. If over 5 your school

district should pay for all required services, Just FIGHT LIKE HELL for them

and when you have him evaluated, make sure the people that do the evaluation

(don't use the school district) write it up for the amount of therpay that

you want!!!!!

Good Luck!

Pam

[Guest guest]

Contact your Dept of Health if your child is under 5. If over 5 your school

district should pay for all required services, Just FIGHT LIKE HELL for them

and when you have him evaluated, make sure the people that do the evaluation

(don't use the school district) write it up for the amount of therpay that

you want!!!!!

Good Luck!

Pam

[Guest guest]

Contact your Dept of Health if your child is under 5. If over 5 your school

district should pay for all required services, Just FIGHT LIKE HELL for them

and when you have him evaluated, make sure the people that do the evaluation

(don't use the school district) write it up for the amount of therpay that

you want!!!!!

Good Luck!

Pam

[Guest guest]

bluskies@... wrote:

The other problem that I have - and I'd love to know if

> anyone else does - is not being able to come up with the right word. It

> doesn't have to be a " hard " word either - it's like my mind just " forgets "

> words sometimes and someone either has to remind me (good thing my husband

> & I have been together long enough that we read each others' minds!) or I

> have to just sit until it comes to me - rather embarrassing sometimes

> during a conversation!! Or I'll do stuff like calling the refrigerator the

> microwave, etc. Anyone else run into this??

Absolutely, quite a bit sometimes. Yesterday we were in the grocery

store and I was trying to suggest something for supper. I couldn't get

the right word out, and dh couldn't figure out where I was pointing. I

finally told him, " I'm not going to be able to get the right words out,

so you're just going to have to try harder to understand what I'm

telling you. " Between the two of us, we got the general concept

understood.

Darcy

[Guest guest]

bluskies@... wrote:

The other problem that I have - and I'd love to know if

> anyone else does - is not being able to come up with the right word. It

> doesn't have to be a " hard " word either - it's like my mind just " forgets "

> words sometimes and someone either has to remind me (good thing my husband

> & I have been together long enough that we read each others' minds!) or I

> have to just sit until it comes to me - rather embarrassing sometimes

> during a conversation!! Or I'll do stuff like calling the refrigerator the

> microwave, etc. Anyone else run into this??

Absolutely, quite a bit sometimes. Yesterday we were in the grocery

store and I was trying to suggest something for supper. I couldn't get

the right word out, and dh couldn't figure out where I was pointing. I

finally told him, " I'm not going to be able to get the right words out,

so you're just going to have to try harder to understand what I'm

telling you. " Between the two of us, we got the general concept

understood.

Darcy

[Guest guest]

bluskies@... wrote:

The other problem that I have - and I'd love to know if

> anyone else does - is not being able to come up with the right word. It

> doesn't have to be a " hard " word either - it's like my mind just " forgets "

> words sometimes and someone either has to remind me (good thing my husband

> & I have been together long enough that we read each others' minds!) or I

> have to just sit until it comes to me - rather embarrassing sometimes

> during a conversation!! Or I'll do stuff like calling the refrigerator the

> microwave, etc. Anyone else run into this??

Absolutely, quite a bit sometimes. Yesterday we were in the grocery

store and I was trying to suggest something for supper. I couldn't get

the right word out, and dh couldn't figure out where I was pointing. I

finally told him, " I'm not going to be able to get the right words out,

so you're just going to have to try harder to understand what I'm

telling you. " Between the two of us, we got the general concept

understood.

Darcy

[Guest guest]

AlyceAnn@... wrote:

> I type " eht " all the time for " the " . Does anyone have this problem? My

daughter is getting really good at reading my words as I don't fix them when we

are instant messaging because it is so hard for me to type to >begin with so we

decided that I shouldn't fix it.

Yup, I often type eht for the, and automatically put an " ing " on

anything with an " in " at the end, regardless of whether it needs a g or

not. I think sometimes, my right hand is faster than my left. Then

when you add my poor spelling on top of things...I'm just grateful for

spell checkers!

Darcy

[Guest guest]

AlyceAnn@... wrote:

> I type " eht " all the time for " the " . Does anyone have this problem? My

daughter is getting really good at reading my words as I don't fix them when we

are instant messaging because it is so hard for me to type to >begin with so we

decided that I shouldn't fix it.

Yup, I often type eht for the, and automatically put an " ing " on

anything with an " in " at the end, regardless of whether it needs a g or

not. I think sometimes, my right hand is faster than my left. Then

when you add my poor spelling on top of things...I'm just grateful for

spell checkers!

Darcy

[Guest guest]

AlyceAnn@... wrote:

> I type " eht " all the time for " the " . Does anyone have this problem? My

daughter is getting really good at reading my words as I don't fix them when we

are instant messaging because it is so hard for me to type to >begin with so we

decided that I shouldn't fix it.

Yup, I often type eht for the, and automatically put an " ing " on

anything with an " in " at the end, regardless of whether it needs a g or

not. I think sometimes, my right hand is faster than my left. Then

when you add my poor spelling on top of things...I'm just grateful for

spell checkers!

Darcy

[Guest guest]

patidu@... wrote:

>

> I think that I have just about heard just about everything and the something

> like this comes along and I realize that there are still many strange

> happenings around.

It just boggled my mind that anyone would *want* to add conditions to

what they needed before they could go home sick. It was like we all

were suddenly small kids and need to prove to mom that we really were

sick and should stay home from school, or something like that.

Darcy

[Guest guest]

patidu@... wrote:

>

> I think that I have just about heard just about everything and the something

> like this comes along and I realize that there are still many strange

> happenings around.

It just boggled my mind that anyone would *want* to add conditions to

what they needed before they could go home sick. It was like we all

were suddenly small kids and need to prove to mom that we really were

sick and should stay home from school, or something like that.

Darcy

[Guest guest]

patidu@... wrote:

>

> I think that I have just about heard just about everything and the something

> like this comes along and I realize that there are still many strange

> happenings around.

It just boggled my mind that anyone would *want* to add conditions to

what they needed before they could go home sick. It was like we all

were suddenly small kids and need to prove to mom that we really were

sick and should stay home from school, or something like that.

Darcy

[Guest guest]

In a message dated 12/9/2001 3:45:47 PM Eastern Standard Time,

bluskies@... writes:

> The other problem that I have - and I'd love to know if

> anyone else does - is not being able to come up with the right word. It

> doesn't have to be a " hard " word either - it's like my mind just " forgets "

> words sometimes and someone either has to remind me (good thing my husband

> & I have been together long enough that we read each others' minds!) or I

> have to just sit until it comes to me - rather embarrassing sometimes

> during a conversation!! Or I'll do stuff like calling the refrigerator the

> microwave, etc. Anyone else run into this??

>

Absolutely. And it seems to me that the more pain I'm in the harder it

becomes to communicate at all. I try to see the funny side of it when I come

up with something totally off the wall, but it does get frustrating after a

while. My memory lapses sometimes just aren't amusing, either--last week I

totally blanked out on how to do a simple computer task at work, and it is

something which I literally do every day and have done for 13 years!

Cheers,

Diane N.

[Guest guest]

In a message dated 12/9/2001 3:45:47 PM Eastern Standard Time,

bluskies@... writes:

> The other problem that I have - and I'd love to know if

> anyone else does - is not being able to come up with the right word. It

> doesn't have to be a " hard " word either - it's like my mind just " forgets "

> words sometimes and someone either has to remind me (good thing my husband

> & I have been together long enough that we read each others' minds!) or I

> have to just sit until it comes to me - rather embarrassing sometimes

> during a conversation!! Or I'll do stuff like calling the refrigerator the

> microwave, etc. Anyone else run into this??

>

Absolutely. And it seems to me that the more pain I'm in the harder it

becomes to communicate at all. I try to see the funny side of it when I come

up with something totally off the wall, but it does get frustrating after a

while. My memory lapses sometimes just aren't amusing, either--last week I

totally blanked out on how to do a simple computer task at work, and it is

something which I literally do every day and have done for 13 years!

Cheers,

Diane N.

[Guest guest]

In a message dated 12/9/2001 3:45:47 PM Eastern Standard Time,

bluskies@... writes:

> The other problem that I have - and I'd love to know if

> anyone else does - is not being able to come up with the right word. It

> doesn't have to be a " hard " word either - it's like my mind just " forgets "

> words sometimes and someone either has to remind me (good thing my husband

> & I have been together long enough that we read each others' minds!) or I

> have to just sit until it comes to me - rather embarrassing sometimes

> during a conversation!! Or I'll do stuff like calling the refrigerator the

> microwave, etc. Anyone else run into this??

>

Absolutely. And it seems to me that the more pain I'm in the harder it

becomes to communicate at all. I try to see the funny side of it when I come

up with something totally off the wall, but it does get frustrating after a

while. My memory lapses sometimes just aren't amusing, either--last week I

totally blanked out on how to do a simple computer task at work, and it is

something which I literally do every day and have done for 13 years!

Cheers,

Diane N.

[Guest guest]

What's the difference??

In a message dated Thu, 17 Jan 2002 2:41:50 PM Eastern Standard Time,

" pcoholistic " pcoholistic@...> writes:

> Hi,

>

> I just thought of another question- is fibromyalgia considered

> a " chronic condition " or a disease?

>

> Thank you,

> Sunny

>

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

[Guest guest]

What's the difference??

In a message dated Thu, 17 Jan 2002 2:41:50 PM Eastern Standard Time,

" pcoholistic " pcoholistic@...> writes:

> Hi,

>

> I just thought of another question- is fibromyalgia considered

> a " chronic condition " or a disease?

>

> Thank you,

> Sunny

>

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

[Guest guest]

Hi,

A disease is some that is degenerative that cannot be reversed. It

can be treated but never cured. A chronic condition is something

that can be reversed. For example, some heavy duty detox programs

can reverse chronic conditions (ie. asthma, loss of hearing, and

other things). Fasting is one way to reverse some of these things.

To learn more about it, there is a great book called The Detox Book.

I have been told (by medical doctors) that I cannot cure my pcos- but

pcos is a chronic condition, not a disease and according to my last

visit with my GYN I have done a fine job of about getting rid of it.

I was researching fibromyalgia for my sister and am wondering if a

fasting and/or detox program might be helpful for her in trying to

reverse the condition. Not sure if I was clear in all of that- but

if you have questions please let me know.

Also, when/if you are able to reverse your chronic condition- it is

my assumption that you are suceptable to it coming back if you resort

back to the lifestyle in which fed the condition to begin with. I

find that in order to maintain the level of healing that I have

obtain so far I need to have a different approach to my mind, body

and spirit.

Thanks,

Sunny

> What's the difference??

>

> In a message dated Thu, 17 Jan 2002 2:41:50 PM Eastern Standard

Time, " pcoholistic " writes:

>

> > Hi,

> >

> > I just thought of another question- is fibromyalgia considered

> > a " chronic condition " or a disease?

> >

> > Thank you,

> > Sunny

> >

> >

> >

> > SEND POST TO: fibromyalgia-cfs@y...

> >

> > HOME

PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

cfs.html

> > LIST OWNER: " Missy "

> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe@y...

> >

> >

> >

> >

> >

> >

[Guest guest]

Hello,

I can't drive myself because of pain in my wrists, arms, and back so

my husband drives me everywhere. If we drive for more than an hour I get very

tired and feel useless for the rest of the day. It also makes my pain worse

and I usually sit with a heating pad for the rest of the day. I think some of

it has to do with our car. We have 95 camaro and the seats just kill my back.

I've put a " better back " and pillows in the car and they help a little but I

don't think I'll ever be comfortable in cars.

[Guest guest]

Hello,

I can't drive myself because of pain in my wrists, arms, and back so

my husband drives me everywhere. If we drive for more than an hour I get very

tired and feel useless for the rest of the day. It also makes my pain worse

and I usually sit with a heating pad for the rest of the day. I think some of

it has to do with our car. We have 95 camaro and the seats just kill my back.

I've put a " better back " and pillows in the car and they help a little but I

don't think I'll ever be comfortable in cars.

[Guest guest]

Hello,

I can't drive myself because of pain in my wrists, arms, and back so

my husband drives me everywhere. If we drive for more than an hour I get very

tired and feel useless for the rest of the day. It also makes my pain worse

and I usually sit with a heating pad for the rest of the day. I think some of

it has to do with our car. We have 95 camaro and the seats just kill my back.

I've put a " better back " and pillows in the car and they help a little but I

don't think I'll ever be comfortable in cars.

[Guest guest]

Fay...

I have found the ultimate contraption for long distance driving...It does not

totally take away the pain, but it makes the difference that my back hurts in

3 hours instead of 1/2 hour. It is a seat pad made by Homedics. It has heat

and massage and a lumbar support. It plugs into your cigarette lighter. I

don't use the massage setting because of my brain malformation, the vibration

gives me major headache. But, the heat and support does wonders for me. I

think I paid $20-$30 for this at Macy's, and it made a world of difference.

It never leaves my car now. On the other hand. Don't forget to turn it off

when you turn off the car...LOL It eats your battery. (I left it plugged in

for 3 days!)

Missy