Question

[Guest guest]

Hello, everyone--

This is my first visit and I wanted to share a couple of things

regarding the battle with mucous. I have what's called an acapella--a

device with a flutter valve which you can also attach to the device

used for breathing treatments. When I do my albuterol/pulmacort

treatment, I attach it to the acapella flutter valve and take care of

the treatment and coughing up the mucous at the same time. It is

really great and I highly recommend it over the device with the metal

ball. The other thing I wanted to mention is that my doctor has me on

a supplement called N-Acetyl Cysteine which helps to break up the

mucous in the lungs. It comes in tablet and liquid form (and smells

awful!--like rotten eggs)and I take 600 mg tablets 3x day. My doctor

swears by it, and it certainly feels as though it really does help. I

don't have to cough very hard, and the mucous comes up very easily.

The supplement is made by Life Extension, and the website is

www.lef.org, where it can be purchased. My doctor cautioned me not to

use any other type of supplement that claims to do the same thing. My

pharmacy has ordered it, and keeps it in stock for me. It works very

well for me; check with your doctor.

In Breathe-Support , sharon prendergast

wrote:

>

> Hi Margaret, Have you heard of the flutter. I just emailed Jim

about it , but its a small device that looks like a pipe and you

can't inhale through it but you exhale and you can feel it flutter in

your chest and cough and it truly brings up mucous which with my

asthma mucous happens to be a problem. My doctors nurse told me about

it and I am glad she did. sharon p asthma ph2008

>

>

>

>

> From: Margaret McConnell

> Subject: Re: question

> To: Breathe-Support

> Date: Friday, January 30, 2009, 5:48 PM

>

>

>

>

>

>

>

>

> Hi Jim,

>  

>  Good to be talking to a fellow Alaskan. I think I have been

experiencing our Alaska virus for a week or so; that's why I looked

up this site, I was feeling so crummy. Last week my doc said that I

could try OTC Musinex; could you just call your doc and ask about

trying that, if it is safe for you, without charge? I haven't had a

bad mucous problem but do have a little increase.

>  

> I have never heard of your medication so don't know what it is for.

I do know a lot of water is supposed to help with mucous. One of the

med tecs that works in my doc's office has two children with cystic

fibrosis. I know they use the the mechanical suction. I think it

might be something your wife would have to help with but I have only

seen it done on children. I used to wheeze really badly but didn't

cough or cough up much. What really helped me was to lie on my

stomach and have my daughter pat my back right between the shoulder

blades. It felt good and I know they do that with the CF kids to

loosen up stuff. It would be nice for this virus to pass!

>  

> What is the weather like in your neck of the woods today? Has the

volcano ash ever blown your way? It is 19 degrees and snowing right

now here. Hope you feel better and this truly was the last of it for

now.

>  

> Margaret

>  

>  

>  

>  

>   

>

>

>

>

>

> From: james wallman

> To: Breathe-Support@ yahoogroups. com

> Sent: Friday, January 30, 2009 1:36:24 PM

> Subject: question

>

>

>

>

>

>

>

>

> this is one of those subjects that is rather unpleasant and so is

not talked about much, but I need

info/advice. ........mucus. .......is my worst enemy. When I can't

cough it up, keep coughing, sats drop, very sob, very weak, feel like

passing out. This condition hasn't hit me for some time. I use liquid

acetylsysteine 3 times a day and drink lots of water. (I've found

that makes alot of difference) My wife works at the hospital and

thinks I should go be seen, and I think that's a waste of time....and

lots of money. I did a sputum sample 2 days ago and they found no

reason to give me antibiotics. I think this is associated with a

virus going around though I have no other symptoms.

>  

> Question: has anyone heard of or experienced mechanical suction? I

read that term on the fact sheet that comes with the acetylsysteine a

long time ago. Is that something they do? Sounds like a bronch to me,

conjures up some not too pleasant pictures in my head........ I think

todays session is winding down. But for future reference... ....Thank

you!!!!

>  

> jim IPF 05

> alaska

>

[Guest guest]

Hello, everyone--

This is my first visit and I wanted to share a couple of things

regarding the battle with mucous. I have what's called an acapella--a

device with a flutter valve which you can also attach to the device

used for breathing treatments. When I do my albuterol/pulmacort

treatment, I attach it to the acapella flutter valve and take care of

the treatment and coughing up the mucous at the same time. It is

really great and I highly recommend it over the device with the metal

ball. The other thing I wanted to mention is that my doctor has me on

a supplement called N-Acetyl Cysteine which helps to break up the

mucous in the lungs. It comes in tablet and liquid form (and smells

awful!--like rotten eggs)and I take 600 mg tablets 3x day. My doctor

swears by it, and it certainly feels as though it really does help. I

don't have to cough very hard, and the mucous comes up very easily.

The supplement is made by Life Extension, and the website is

www.lef.org, where it can be purchased. My doctor cautioned me not to

use any other type of supplement that claims to do the same thing. My

pharmacy has ordered it, and keeps it in stock for me. It works very

well for me; check with your doctor.

In Breathe-Support , sharon prendergast

wrote:

>

> Hi Margaret, Have you heard of the flutter. I just emailed Jim

about it , but its a small device that looks like a pipe and you

can't inhale through it but you exhale and you can feel it flutter in

your chest and cough and it truly brings up mucous which with my

asthma mucous happens to be a problem. My doctors nurse told me about

it and I am glad she did. sharon p asthma ph2008

>

>

>

>

> From: Margaret McConnell

> Subject: Re: question

> To: Breathe-Support

> Date: Friday, January 30, 2009, 5:48 PM

>

>

>

>

>

>

>

>

> Hi Jim,

>  

>  Good to be talking to a fellow Alaskan. I think I have been

experiencing our Alaska virus for a week or so; that's why I looked

up this site, I was feeling so crummy. Last week my doc said that I

could try OTC Musinex; could you just call your doc and ask about

trying that, if it is safe for you, without charge? I haven't had a

bad mucous problem but do have a little increase.

>  

> I have never heard of your medication so don't know what it is for.

I do know a lot of water is supposed to help with mucous. One of the

med tecs that works in my doc's office has two children with cystic

fibrosis. I know they use the the mechanical suction. I think it

might be something your wife would have to help with but I have only

seen it done on children. I used to wheeze really badly but didn't

cough or cough up much. What really helped me was to lie on my

stomach and have my daughter pat my back right between the shoulder

blades. It felt good and I know they do that with the CF kids to

loosen up stuff. It would be nice for this virus to pass!

>  

> What is the weather like in your neck of the woods today? Has the

volcano ash ever blown your way? It is 19 degrees and snowing right

now here. Hope you feel better and this truly was the last of it for

now.

>  

> Margaret

>  

>  

>  

>  

>   

>

>

>

>

>

> From: james wallman

> To: Breathe-Support@ yahoogroups. com

> Sent: Friday, January 30, 2009 1:36:24 PM

> Subject: question

>

>

>

>

>

>

>

>

> this is one of those subjects that is rather unpleasant and so is

not talked about much, but I need

info/advice. ........mucus. .......is my worst enemy. When I can't

cough it up, keep coughing, sats drop, very sob, very weak, feel like

passing out. This condition hasn't hit me for some time. I use liquid

acetylsysteine 3 times a day and drink lots of water. (I've found

that makes alot of difference) My wife works at the hospital and

thinks I should go be seen, and I think that's a waste of time....and

lots of money. I did a sputum sample 2 days ago and they found no

reason to give me antibiotics. I think this is associated with a

virus going around though I have no other symptoms.

>  

> Question: has anyone heard of or experienced mechanical suction? I

read that term on the fact sheet that comes with the acetylsysteine a

long time ago. Is that something they do? Sounds like a bronch to me,

conjures up some not too pleasant pictures in my head........ I think

todays session is winding down. But for future reference... ....Thank

you!!!!

>  

> jim IPF 05

> alaska

>

[Guest guest]

Hi, that is interesting since i do albuterol treatments myself. There are two types on ebay. Green and blue. Which do you use and where do you attach the tubing. I would like to try it.the flutter isn't bad but it seems right to do it during a breathing treatment Thanks sharon p asthma ph2008> > > > Subject: Re: question> To: Breathe-Support@ yahoogroups. com> Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > Hi Jim,> > Good to be talking to a fellow Alaskan. I think I have been experiencing our Alaska virus for a week or so; that's why I looked up this site, I was feeling so crummy. Last week my doc said that I could try OTC Musinex; could you just call your doc and ask about trying that, if it is safe

for you, without charge? I haven't had a bad mucous problem but do have a little increase.> > I have never heard of your medication so don't know what it is for. I do know a lot of water is supposed to help with mucous. One of the med tecs that works in my doc's office has two children with cystic fibrosis. I know they use the the mechanical suction. I think it might be something your wife would have to help with but I have only seen it done on children. I used to wheeze really badly but didn't cough or cough up much. What really helped me was to lie on my stomach and have my daughter pat my back right between the shoulder blades. It felt good and I know they do that with the CF kids to loosen up stuff. It would be nice for this virus to pass! > > What is the weather like in your neck of the woods today? Has the volcano ash ever blown your way? It is 19 degrees and

snowing right now here. Hope you feel better and this truly was the last of it for now.> > Margaret> > > > > > > > > > > From: james wallman <james_wallman@ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, January 30, 2009 1:36:24 PM> Subject: question> > > > > > > > > this is one of those subjects that is rather unpleasant and so is not talked about much, but I need info/advice. ........mucus. .......is my worst enemy. When I can't cough it up, keep coughing, sats drop, very sob, very weak, feel like passing out. This condition hasn't hit me for some time. I use liquid acetylsysteine 3 times a day and drink lots of water. (I've found that makes alot of difference) My

wife works at the hospital and thinks I should go be seen, and I think that's a waste of time....and lots of money. I did a sputum sample 2 days ago and they found no reason to give me antibiotics. I think this is associated with a virus going around though I have no other symptoms. > > Question: has anyone heard of or experienced mechanical suction? I read that term on the fact sheet that comes with the acetylsysteine a long time ago. Is that something they do? Sounds like a bronch to me, conjures up some not too pleasant pictures in my head........ I think todays session is winding down. But for future reference... ....Thank you!!!!> > jim IPF 05> alaska>

[Guest guest]

Hi, that is interesting since i do albuterol treatments myself. There are two types on ebay. Green and blue. Which do you use and where do you attach the tubing. I would like to try it.the flutter isn't bad but it seems right to do it during a breathing treatment Thanks sharon p asthma ph2008> > > > Subject: Re: question> To: Breathe-Support@ yahoogroups. com> Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > Hi Jim,> > Good to be talking to a fellow Alaskan. I think I have been experiencing our Alaska virus for a week or so; that's why I looked up this site, I was feeling so crummy. Last week my doc said that I could try OTC Musinex; could you just call your doc and ask about trying that, if it is safe

for you, without charge? I haven't had a bad mucous problem but do have a little increase.> > I have never heard of your medication so don't know what it is for. I do know a lot of water is supposed to help with mucous. One of the med tecs that works in my doc's office has two children with cystic fibrosis. I know they use the the mechanical suction. I think it might be something your wife would have to help with but I have only seen it done on children. I used to wheeze really badly but didn't cough or cough up much. What really helped me was to lie on my stomach and have my daughter pat my back right between the shoulder blades. It felt good and I know they do that with the CF kids to loosen up stuff. It would be nice for this virus to pass! > > What is the weather like in your neck of the woods today? Has the volcano ash ever blown your way? It is 19 degrees and

snowing right now here. Hope you feel better and this truly was the last of it for now.> > Margaret> > > > > > > > > > > From: james wallman <james_wallman@ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, January 30, 2009 1:36:24 PM> Subject: question> > > > > > > > > this is one of those subjects that is rather unpleasant and so is not talked about much, but I need info/advice. ........mucus. .......is my worst enemy. When I can't cough it up, keep coughing, sats drop, very sob, very weak, feel like passing out. This condition hasn't hit me for some time. I use liquid acetylsysteine 3 times a day and drink lots of water. (I've found that makes alot of difference) My

wife works at the hospital and thinks I should go be seen, and I think that's a waste of time....and lots of money. I did a sputum sample 2 days ago and they found no reason to give me antibiotics. I think this is associated with a virus going around though I have no other symptoms. > > Question: has anyone heard of or experienced mechanical suction? I read that term on the fact sheet that comes with the acetylsysteine a long time ago. Is that something they do? Sounds like a bronch to me, conjures up some not too pleasant pictures in my head........ I think todays session is winding down. But for future reference... ....Thank you!!!!> > jim IPF 05> alaska>

[Guest guest]

Hi, that is interesting since i do albuterol treatments myself. There are two types on ebay. Green and blue. Which do you use and where do you attach the tubing. I would like to try it.the flutter isn't bad but it seems right to do it during a breathing treatment Thanks sharon p asthma ph2008> > > > Subject: Re: question> To: Breathe-Support@ yahoogroups. com> Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > Hi Jim,> > Good to be talking to a fellow Alaskan. I think I have been experiencing our Alaska virus for a week or so; that's why I looked up this site, I was feeling so crummy. Last week my doc said that I could try OTC Musinex; could you just call your doc and ask about trying that, if it is safe

for you, without charge? I haven't had a bad mucous problem but do have a little increase.> > I have never heard of your medication so don't know what it is for. I do know a lot of water is supposed to help with mucous. One of the med tecs that works in my doc's office has two children with cystic fibrosis. I know they use the the mechanical suction. I think it might be something your wife would have to help with but I have only seen it done on children. I used to wheeze really badly but didn't cough or cough up much. What really helped me was to lie on my stomach and have my daughter pat my back right between the shoulder blades. It felt good and I know they do that with the CF kids to loosen up stuff. It would be nice for this virus to pass! > > What is the weather like in your neck of the woods today? Has the volcano ash ever blown your way? It is 19 degrees and

snowing right now here. Hope you feel better and this truly was the last of it for now.> > Margaret> > > > > > > > > > > From: james wallman <james_wallman@ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, January 30, 2009 1:36:24 PM> Subject: question> > > > > > > > > this is one of those subjects that is rather unpleasant and so is not talked about much, but I need info/advice. ........mucus. .......is my worst enemy. When I can't cough it up, keep coughing, sats drop, very sob, very weak, feel like passing out. This condition hasn't hit me for some time. I use liquid acetylsysteine 3 times a day and drink lots of water. (I've found that makes alot of difference) My

wife works at the hospital and thinks I should go be seen, and I think that's a waste of time....and lots of money. I did a sputum sample 2 days ago and they found no reason to give me antibiotics. I think this is associated with a virus going around though I have no other symptoms. > > Question: has anyone heard of or experienced mechanical suction? I read that term on the fact sheet that comes with the acetylsysteine a long time ago. Is that something they do? Sounds like a bronch to me, conjures up some not too pleasant pictures in my head........ I think todays session is winding down. But for future reference... ....Thank you!!!!> > jim IPF 05> alaska>

[Guest guest]

I use the green acapella; the other is smaller, and I'm not sure what

the difference is other than that. When you put it all together, the

mouthpiece goes on the end with the extended plastic piece, and on

the other end you insert the flutter valve (a tiny piece that fits

snug into the other end), then attach your container of medication to

a plastic piece that then fits into the other end after the flutter

valve is in. Then the tubing from the nebulizer fits a small

extention at the bottom of the medication container, and you're all

set. It's used just like a regular nebulizer except the flutter valve

vibrates, and you can feel it all the way down in your lungs. Saves

so much time! Hope this makes sense!

> >

> >

> > From: Margaret McConnell

> > Subject: Re: question

> > To: Breathe-Support@ yahoogroups. com

> > Date: Friday, January 30, 2009, 5:48 PM

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi Jim,

> >  

> >  Good to be talking to a fellow Alaskan. I think I have been

> experiencing our Alaska virus for a week or so; that's why I looked

> up this site, I was feeling so crummy. Last week my doc said that I

> could try OTC Musinex; could you just call your doc and ask about

> trying that, if it is safe for you, without charge? I haven't had a

> bad mucous problem but do have a little increase.

> >  

> > I have never heard of your medication so don't know what it is

for.

> I do know a lot of water is supposed to help with mucous. One of

the

> med tecs that works in my doc's office has two children with cystic

> fibrosis. I know they use the the mechanical suction. I think it

> might be something your wife would have to help with but I have

only

> seen it done on children. I used to wheeze really badly but didn't

> cough or cough up much. What really helped me was to lie on my

> stomach and have my daughter pat my back right between the shoulder

> blades. It felt good and I know they do that with the CF kids to

> loosen up stuff. It would be nice for this virus to pass!

> >  

> > What is the weather like in your neck of the woods today? Has the

> volcano ash ever blown your way? It is 19 degrees and snowing right

> now here. Hope you feel better and this truly was the last of it

for

> now.

> >  

> > Margaret

> >  

> >  

> >  

> >  

> >   

> >

> >

> >

> >

> >

> > From: james wallman

> > To: Breathe-Support@ yahoogroups. com

> > Sent: Friday, January 30, 2009 1:36:24 PM

> > Subject: question

> >

> >

> >

> >

> >

> >

> >

> >

> > this is one of those subjects that is rather unpleasant and so is

> not talked about much, but I need

> info/advice. ........mucus. .......is my worst enemy. When I can't

> cough it up, keep coughing, sats drop, very sob, very weak, feel

like

> passing out. This condition hasn't hit me for some time. I use

liquid

> acetylsysteine 3 times a day and drink lots of water. (I've found

> that makes alot of difference) My wife works at the hospital and

> thinks I should go be seen, and I think that's a waste of

time....and

> lots of money. I did a sputum sample 2 days ago and they found no

> reason to give me antibiotics.  I think this is associated with a

> virus going around though I have no other symptoms.

> >  

> > Question: has anyone heard of or experienced mechanical suction?

I

> read that term on the fact sheet that comes with the acetylsysteine

a

> long time ago. Is that something they do? Sounds like a bronch to

me,

> conjures up some not too pleasant pictures in my head........ I

think

> todays session is winding down. But for future

reference... ....Thank

> you!!!!

> >  

> > jim IPF 05

> > alaska

> >

>

[Guest guest]

I use the green acapella; the other is smaller, and I'm not sure what

the difference is other than that. When you put it all together, the

mouthpiece goes on the end with the extended plastic piece, and on

the other end you insert the flutter valve (a tiny piece that fits

snug into the other end), then attach your container of medication to

a plastic piece that then fits into the other end after the flutter

valve is in. Then the tubing from the nebulizer fits a small

extention at the bottom of the medication container, and you're all

set. It's used just like a regular nebulizer except the flutter valve

vibrates, and you can feel it all the way down in your lungs. Saves

so much time! Hope this makes sense!

> >

> >

> > From: Margaret McConnell

> > Subject: Re: question

> > To: Breathe-Support@ yahoogroups. com

> > Date: Friday, January 30, 2009, 5:48 PM

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi Jim,

> >  

> >  Good to be talking to a fellow Alaskan. I think I have been

> experiencing our Alaska virus for a week or so; that's why I looked

> up this site, I was feeling so crummy. Last week my doc said that I

> could try OTC Musinex; could you just call your doc and ask about

> trying that, if it is safe for you, without charge? I haven't had a

> bad mucous problem but do have a little increase.

> >  

> > I have never heard of your medication so don't know what it is

for.

> I do know a lot of water is supposed to help with mucous. One of

the

> med tecs that works in my doc's office has two children with cystic

> fibrosis. I know they use the the mechanical suction. I think it

> might be something your wife would have to help with but I have

only

> seen it done on children. I used to wheeze really badly but didn't

> cough or cough up much. What really helped me was to lie on my

> stomach and have my daughter pat my back right between the shoulder

> blades. It felt good and I know they do that with the CF kids to

> loosen up stuff. It would be nice for this virus to pass!

> >  

> > What is the weather like in your neck of the woods today? Has the

> volcano ash ever blown your way? It is 19 degrees and snowing right

> now here. Hope you feel better and this truly was the last of it

for

> now.

> >  

> > Margaret

> >  

> >  

> >  

> >  

> >   

> >

> >

> >

> >

> >

> > From: james wallman

> > To: Breathe-Support@ yahoogroups. com

> > Sent: Friday, January 30, 2009 1:36:24 PM

> > Subject: question

> >

> >

> >

> >

> >

> >

> >

> >

> > this is one of those subjects that is rather unpleasant and so is

> not talked about much, but I need

> info/advice. ........mucus. .......is my worst enemy. When I can't

> cough it up, keep coughing, sats drop, very sob, very weak, feel

like

> passing out. This condition hasn't hit me for some time. I use

liquid

> acetylsysteine 3 times a day and drink lots of water. (I've found

> that makes alot of difference) My wife works at the hospital and

> thinks I should go be seen, and I think that's a waste of

time....and

> lots of money. I did a sputum sample 2 days ago and they found no

> reason to give me antibiotics.  I think this is associated with a

> virus going around though I have no other symptoms.

> >  

> > Question: has anyone heard of or experienced mechanical suction?

I

> read that term on the fact sheet that comes with the acetylsysteine

a

> long time ago. Is that something they do? Sounds like a bronch to

me,

> conjures up some not too pleasant pictures in my head........ I

think

> todays session is winding down. But for future

reference... ....Thank

> you!!!!

> >  

> > jim IPF 05

> > alaska

> >

>

[Guest guest]

I use the green acapella; the other is smaller, and I'm not sure what

the difference is other than that. When you put it all together, the

mouthpiece goes on the end with the extended plastic piece, and on

the other end you insert the flutter valve (a tiny piece that fits

snug into the other end), then attach your container of medication to

a plastic piece that then fits into the other end after the flutter

valve is in. Then the tubing from the nebulizer fits a small

extention at the bottom of the medication container, and you're all

set. It's used just like a regular nebulizer except the flutter valve

vibrates, and you can feel it all the way down in your lungs. Saves

so much time! Hope this makes sense!

> >

> >

> > From: Margaret McConnell

> > Subject: Re: question

> > To: Breathe-Support@ yahoogroups. com

> > Date: Friday, January 30, 2009, 5:48 PM

> >

> >

> >

> >

> >

> >

> >

> >

> > Hi Jim,

> >  

> >  Good to be talking to a fellow Alaskan. I think I have been

> experiencing our Alaska virus for a week or so; that's why I looked

> up this site, I was feeling so crummy. Last week my doc said that I

> could try OTC Musinex; could you just call your doc and ask about

> trying that, if it is safe for you, without charge? I haven't had a

> bad mucous problem but do have a little increase.

> >  

> > I have never heard of your medication so don't know what it is

for.

> I do know a lot of water is supposed to help with mucous. One of

the

> med tecs that works in my doc's office has two children with cystic

> fibrosis. I know they use the the mechanical suction. I think it

> might be something your wife would have to help with but I have

only

> seen it done on children. I used to wheeze really badly but didn't

> cough or cough up much. What really helped me was to lie on my

> stomach and have my daughter pat my back right between the shoulder

> blades. It felt good and I know they do that with the CF kids to

> loosen up stuff. It would be nice for this virus to pass!

> >  

> > What is the weather like in your neck of the woods today? Has the

> volcano ash ever blown your way? It is 19 degrees and snowing right

> now here. Hope you feel better and this truly was the last of it

for

> now.

> >  

> > Margaret

> >  

> >  

> >  

> >  

> >   

> >

> >

> >

> >

> >

> > From: james wallman

> > To: Breathe-Support@ yahoogroups. com

> > Sent: Friday, January 30, 2009 1:36:24 PM

> > Subject: question

> >

> >

> >

> >

> >

> >

> >

> >

> > this is one of those subjects that is rather unpleasant and so is

> not talked about much, but I need

> info/advice. ........mucus. .......is my worst enemy. When I can't

> cough it up, keep coughing, sats drop, very sob, very weak, feel

like

> passing out. This condition hasn't hit me for some time. I use

liquid

> acetylsysteine 3 times a day and drink lots of water. (I've found

> that makes alot of difference) My wife works at the hospital and

> thinks I should go be seen, and I think that's a waste of

time....and

> lots of money. I did a sputum sample 2 days ago and they found no

> reason to give me antibiotics.  I think this is associated with a

> virus going around though I have no other symptoms.

> >  

> > Question: has anyone heard of or experienced mechanical suction?

I

> read that term on the fact sheet that comes with the acetylsysteine

a

> long time ago. Is that something they do? Sounds like a bronch to

me,

> conjures up some not too pleasant pictures in my head........ I

think

> todays session is winding down. But for future

reference... ....Thank

> you!!!!

> >  

> > jim IPF 05

> > alaska

> >

>

[Guest guest]

thank you so much. I'll let you know.Sharon p

Subject: Re: questionTo: Breathe-Support Date: Saturday, January 31, 2009, 1:57 PM

I use the green acapella; the other is smaller, and I'm not sure what the difference is other than that. When you put it all together, the mouthpiece goes on the end with the extended plastic piece, and on the other end you insert the flutter valve (a tiny piece that fits snug into the other end), then attach your container of medication to a plastic piece that then fits into the other end after the flutter valve is in. Then the tubing from the nebulizer fits a small extention at the bottom of the medication container, and you're all set. It's used just like a regular nebulizer except the flutter valve vibrates, and you can feel it all the way down in your lungs. Saves so much time! Hope this makes sense!> > > > > > > > Subject: Re: question> > To: Breathe-Support@ yahoogroups. com> > Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > > > > > > > > > > Hi Jim,> > > > Good to be talking to a fellow Alaskan. I think I have been > experiencing our Alaska virus for a week or so; that's why I looked > up this site, I was feeling so crummy. Last week my doc said that I > could try OTC Musinex; could you just call your doc and ask about > trying that, if it is safe for you, without charge? I haven't had a > bad mucous problem but do have a

little increase.> > > > I have never heard of your medication so don't know what it is for. > I do know a lot of water is supposed to help with mucous. One of the > med tecs that works in my doc's office has two children with cystic > fibrosis. I know they use the the mechanical suction. I think it > might be something your wife would have to help with but I have only > seen it done on children. I used to wheeze really badly but didn't > cough or cough up much. What really helped me was to lie on my > stomach and have my daughter pat my back right between the shoulder > blades. It felt good and I know they do that with the CF kids to > loosen up stuff. It would be nice for this virus to pass! > > > > What is the weather like in your neck of the woods today? Has the > volcano ash ever blown your way? It is 19 degrees

and snowing right > now here. Hope you feel better and this truly was the last of it for > now.> > > > Margaret> > > > > > > > > > > > > > > > > > > > > > From: james wallman <james_wallman@ yahoo.com>> > To: Breathe-Support@ yahoogroups. com> > Sent: Friday, January 30, 2009 1:36:24 PM> > Subject: question> > > > > > > > > > > > > > > > > > this is one of those subjects that is rather unpleasant and so is > not talked about much, but I need > info/advice. ........mucus. .......is my worst enemy. When I can't > cough it up, keep coughing, sats drop, very sob, very weak, feel like > passing out.

This condition hasn't hit me for some time. I use liquid > acetylsysteine 3 times a day and drink lots of water. (I've found > that makes alot of difference) My wife works at the hospital and > thinks I should go be seen, and I think that's a waste of time....and > lots of money. I did a sputum sample 2 days ago and they found no > reason to give me antibiotics. I think this is associated with a > virus going around though I have no other symptoms. > > > > Question: has anyone heard of or experienced mechanical suction? I > read that term on the fact sheet that comes with the acetylsysteine a > long time ago. Is that something they do? Sounds like a bronch to me, > conjures up some not too pleasant pictures in my head........ I think > todays session is winding down. But for future reference... ....Thank >

you!!!!> > > > jim IPF 05> > alaska> >>

[Guest guest]

thank you so much. I'll let you know.Sharon p

Subject: Re: questionTo: Breathe-Support Date: Saturday, January 31, 2009, 1:57 PM

I use the green acapella; the other is smaller, and I'm not sure what the difference is other than that. When you put it all together, the mouthpiece goes on the end with the extended plastic piece, and on the other end you insert the flutter valve (a tiny piece that fits snug into the other end), then attach your container of medication to a plastic piece that then fits into the other end after the flutter valve is in. Then the tubing from the nebulizer fits a small extention at the bottom of the medication container, and you're all set. It's used just like a regular nebulizer except the flutter valve vibrates, and you can feel it all the way down in your lungs. Saves so much time! Hope this makes sense!> > > > > > > > Subject: Re: question> > To: Breathe-Support@ yahoogroups. com> > Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > > > > > > > > > > Hi Jim,> > > > Good to be talking to a fellow Alaskan. I think I have been > experiencing our Alaska virus for a week or so; that's why I looked > up this site, I was feeling so crummy. Last week my doc said that I > could try OTC Musinex; could you just call your doc and ask about > trying that, if it is safe for you, without charge? I haven't had a > bad mucous problem but do have a

little increase.> > > > I have never heard of your medication so don't know what it is for. > I do know a lot of water is supposed to help with mucous. One of the > med tecs that works in my doc's office has two children with cystic > fibrosis. I know they use the the mechanical suction. I think it > might be something your wife would have to help with but I have only > seen it done on children. I used to wheeze really badly but didn't > cough or cough up much. What really helped me was to lie on my > stomach and have my daughter pat my back right between the shoulder > blades. It felt good and I know they do that with the CF kids to > loosen up stuff. It would be nice for this virus to pass! > > > > What is the weather like in your neck of the woods today? Has the > volcano ash ever blown your way? It is 19 degrees

and snowing right > now here. Hope you feel better and this truly was the last of it for > now.> > > > Margaret> > > > > > > > > > > > > > > > > > > > > > From: james wallman <james_wallman@ yahoo.com>> > To: Breathe-Support@ yahoogroups. com> > Sent: Friday, January 30, 2009 1:36:24 PM> > Subject: question> > > > > > > > > > > > > > > > > > this is one of those subjects that is rather unpleasant and so is > not talked about much, but I need > info/advice. ........mucus. .......is my worst enemy. When I can't > cough it up, keep coughing, sats drop, very sob, very weak, feel like > passing out.

This condition hasn't hit me for some time. I use liquid > acetylsysteine 3 times a day and drink lots of water. (I've found > that makes alot of difference) My wife works at the hospital and > thinks I should go be seen, and I think that's a waste of time....and > lots of money. I did a sputum sample 2 days ago and they found no > reason to give me antibiotics. I think this is associated with a > virus going around though I have no other symptoms. > > > > Question: has anyone heard of or experienced mechanical suction? I > read that term on the fact sheet that comes with the acetylsysteine a > long time ago. Is that something they do? Sounds like a bronch to me, > conjures up some not too pleasant pictures in my head........ I think > todays session is winding down. But for future reference... ....Thank >

you!!!!> > > > jim IPF 05> > alaska> >>

[Guest guest]

thank you so much. I'll let you know.Sharon p

Subject: Re: questionTo: Breathe-Support Date: Saturday, January 31, 2009, 1:57 PM

I use the green acapella; the other is smaller, and I'm not sure what the difference is other than that. When you put it all together, the mouthpiece goes on the end with the extended plastic piece, and on the other end you insert the flutter valve (a tiny piece that fits snug into the other end), then attach your container of medication to a plastic piece that then fits into the other end after the flutter valve is in. Then the tubing from the nebulizer fits a small extention at the bottom of the medication container, and you're all set. It's used just like a regular nebulizer except the flutter valve vibrates, and you can feel it all the way down in your lungs. Saves so much time! Hope this makes sense!> > > > > > > > Subject: Re: question> > To: Breathe-Support@ yahoogroups. com> > Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > > > > > > > > > > Hi Jim,> > > > Good to be talking to a fellow Alaskan. I think I have been > experiencing our Alaska virus for a week or so; that's why I looked > up this site, I was feeling so crummy. Last week my doc said that I > could try OTC Musinex; could you just call your doc and ask about > trying that, if it is safe for you, without charge? I haven't had a > bad mucous problem but do have a

little increase.> > > > I have never heard of your medication so don't know what it is for. > I do know a lot of water is supposed to help with mucous. One of the > med tecs that works in my doc's office has two children with cystic > fibrosis. I know they use the the mechanical suction. I think it > might be something your wife would have to help with but I have only > seen it done on children. I used to wheeze really badly but didn't > cough or cough up much. What really helped me was to lie on my > stomach and have my daughter pat my back right between the shoulder > blades. It felt good and I know they do that with the CF kids to > loosen up stuff. It would be nice for this virus to pass! > > > > What is the weather like in your neck of the woods today? Has the > volcano ash ever blown your way? It is 19 degrees

and snowing right > now here. Hope you feel better and this truly was the last of it for > now.> > > > Margaret> > > > > > > > > > > > > > > > > > > > > > From: james wallman <james_wallman@ yahoo.com>> > To: Breathe-Support@ yahoogroups. com> > Sent: Friday, January 30, 2009 1:36:24 PM> > Subject: question> > > > > > > > > > > > > > > > > > this is one of those subjects that is rather unpleasant and so is > not talked about much, but I need > info/advice. ........mucus. .......is my worst enemy. When I can't > cough it up, keep coughing, sats drop, very sob, very weak, feel like > passing out.

This condition hasn't hit me for some time. I use liquid > acetylsysteine 3 times a day and drink lots of water. (I've found > that makes alot of difference) My wife works at the hospital and > thinks I should go be seen, and I think that's a waste of time....and > lots of money. I did a sputum sample 2 days ago and they found no > reason to give me antibiotics. I think this is associated with a > virus going around though I have no other symptoms. > > > > Question: has anyone heard of or experienced mechanical suction? I > read that term on the fact sheet that comes with the acetylsysteine a > long time ago. Is that something they do? Sounds like a bronch to me, > conjures up some not too pleasant pictures in my head........ I think > todays session is winding down. But for future reference... ....Thank >

you!!!!> > > > jim IPF 05> > alaska> >>

[Guest guest]

feaganesd, Please could we have a name. Just wanted to let you know you an order NAC fromPuritan Pride on line very cheap. Most here do use it, that is if our tummies can tolerate it.Welcome to our group. So sorry you needed to find us but you couldn't have landed in a better place. These are the most supportive, compassionate, informative people you could ever hope to find.Hang around, ask questions and make your self comfortable. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Hello, everyone--This is my first visit and I wanted to share a couple of things regarding the battle with mucous. I have what's called an acapella--a device with a flutter valve which you can also attach to the device used for breathing treatments. When I do my albuterol/pulmacort treatment, I attach it to the acapella flutter valve and take care of the treatment and coughing up the mucous at the same time. It is really great and I highly recommend it over the device with the metal ball. The other thing I wanted to mention is that my doctor has me on a supplement called N-Acetyl Cysteine which helps to break up the mucous in the lungs. It comes in tablet and liquid form (and smells awful!--like rotten eggs)and I take 600 mg tablets 3x day. My doctor swears by it, and it certainly feels as though it really does help. I don't have to cough very hard, and the mucous comes up very easily. The supplement is made by Life Extension, and the website is www.lef.org, where it can be purchased. My doctor cautioned me not to use any other type of supplement that claims to do the same thing. My pharmacy has ordered it, and keeps it in stock for me. It works very well for me; check with your doctor.In Breathe-Support , sharon prendergast  wrote:>> Hi Margaret, Have you heard of the flutter. I just emailed Jim about it , but its a small device that looks like a pipe and you can't inhale through it but you exhale and you can feel it flutter in your chest and cough and it truly brings up mucous which with my asthma mucous happens to be a problem. My doctors nurse told me about it and I am glad she did. sharon p asthma ph2008> > > > > > Subject: Re: question> To: Breathe-Support > Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > Hi Jim,>  >  Good to be talking to a fellow Alaskan. I think I have been experiencing our Alaska virus for a week or so; that's why I looked up this site, I was feeling so crummy. Last week my doc said that I could try OTC Musinex; could you just call your doc and ask about trying that, if it is safe for you, without charge? I haven't had a bad mucous problem but do have a little increase.>  > I have never heard of your medication so don't know what it is for. I do know a lot of water is supposed to help with mucous. One of the med tecs that works in my doc's office has two children with cystic fibrosis. I know they use the the mechanical suction. I think it might be something your wife would have to help with but I have only seen it done on children. I used to wheeze really badly but didn't cough or cough up much. What really helped me was to lie on my stomach and have my daughter pat my back right between the shoulder blades. It felt good and I know they do that with the CF kids to loosen up stuff. It would be nice for this virus to pass! >  > What is the weather like in your neck of the woods today? Has the volcano ash ever blown your way? It is 19 degrees and snowing right now here. Hope you feel better and this truly was the last of it for now.>  > Margaret>  >  >  >  >   > > > > > > From: james wallman <james_wallman@ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, January 30, 2009 1:36:24 PM> Subject: question> > > > > > > > > this is one of those subjects that is rather unpleasant and so is not talked about much, but I need info/advice. ........mucus. .......is my worst enemy. When I can't cough it up, keep coughing, sats drop, very sob, very weak, feel like passing out. This condition hasn't hit me for some time. I use liquid acetylsysteine 3 times a day and drink lots of water. (I've found that makes alot of difference) My wife works at the hospital and thinks I should go be seen, and I think that's a waste of time....and lots of money. I did a sputum sample 2 days ago and they found no reason to give me antibiotics. I think this is associated with a virus going around though I have no other symptoms. >  > Question: has anyone heard of or experienced mechanical suction? I read that term on the fact sheet that comes with the acetylsysteine a long time ago. Is that something they do? Sounds like a bronch to me, conjures up some not too pleasant pictures in my head........ I think todays session is winding down. But for future reference... ....Thank you!!!!>  > jim IPF 05> alaska>

[Guest guest]

feaganesd, Please could we have a name. Just wanted to let you know you an order NAC fromPuritan Pride on line very cheap. Most here do use it, that is if our tummies can tolerate it.Welcome to our group. So sorry you needed to find us but you couldn't have landed in a better place. These are the most supportive, compassionate, informative people you could ever hope to find.Hang around, ask questions and make your self comfortable. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Hello, everyone--This is my first visit and I wanted to share a couple of things regarding the battle with mucous. I have what's called an acapella--a device with a flutter valve which you can also attach to the device used for breathing treatments. When I do my albuterol/pulmacort treatment, I attach it to the acapella flutter valve and take care of the treatment and coughing up the mucous at the same time. It is really great and I highly recommend it over the device with the metal ball. The other thing I wanted to mention is that my doctor has me on a supplement called N-Acetyl Cysteine which helps to break up the mucous in the lungs. It comes in tablet and liquid form (and smells awful!--like rotten eggs)and I take 600 mg tablets 3x day. My doctor swears by it, and it certainly feels as though it really does help. I don't have to cough very hard, and the mucous comes up very easily. The supplement is made by Life Extension, and the website is www.lef.org, where it can be purchased. My doctor cautioned me not to use any other type of supplement that claims to do the same thing. My pharmacy has ordered it, and keeps it in stock for me. It works very well for me; check with your doctor.In Breathe-Support , sharon prendergast  wrote:>> Hi Margaret, Have you heard of the flutter. I just emailed Jim about it , but its a small device that looks like a pipe and you can't inhale through it but you exhale and you can feel it flutter in your chest and cough and it truly brings up mucous which with my asthma mucous happens to be a problem. My doctors nurse told me about it and I am glad she did. sharon p asthma ph2008> > > > > > Subject: Re: question> To: Breathe-Support > Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > Hi Jim,>  >  Good to be talking to a fellow Alaskan. I think I have been experiencing our Alaska virus for a week or so; that's why I looked up this site, I was feeling so crummy. Last week my doc said that I could try OTC Musinex; could you just call your doc and ask about trying that, if it is safe for you, without charge? I haven't had a bad mucous problem but do have a little increase.>  > I have never heard of your medication so don't know what it is for. I do know a lot of water is supposed to help with mucous. One of the med tecs that works in my doc's office has two children with cystic fibrosis. I know they use the the mechanical suction. I think it might be something your wife would have to help with but I have only seen it done on children. I used to wheeze really badly but didn't cough or cough up much. What really helped me was to lie on my stomach and have my daughter pat my back right between the shoulder blades. It felt good and I know they do that with the CF kids to loosen up stuff. It would be nice for this virus to pass! >  > What is the weather like in your neck of the woods today? Has the volcano ash ever blown your way? It is 19 degrees and snowing right now here. Hope you feel better and this truly was the last of it for now.>  > Margaret>  >  >  >  >   > > > > > > From: james wallman <james_wallman@ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, January 30, 2009 1:36:24 PM> Subject: question> > > > > > > > > this is one of those subjects that is rather unpleasant and so is not talked about much, but I need info/advice. ........mucus. .......is my worst enemy. When I can't cough it up, keep coughing, sats drop, very sob, very weak, feel like passing out. This condition hasn't hit me for some time. I use liquid acetylsysteine 3 times a day and drink lots of water. (I've found that makes alot of difference) My wife works at the hospital and thinks I should go be seen, and I think that's a waste of time....and lots of money. I did a sputum sample 2 days ago and they found no reason to give me antibiotics. I think this is associated with a virus going around though I have no other symptoms. >  > Question: has anyone heard of or experienced mechanical suction? I read that term on the fact sheet that comes with the acetylsysteine a long time ago. Is that something they do? Sounds like a bronch to me, conjures up some not too pleasant pictures in my head........ I think todays session is winding down. But for future reference... ....Thank you!!!!>  > jim IPF 05> alaska>

[Guest guest]

feaganesd, Please could we have a name. Just wanted to let you know you an order NAC fromPuritan Pride on line very cheap. Most here do use it, that is if our tummies can tolerate it.Welcome to our group. So sorry you needed to find us but you couldn't have landed in a better place. These are the most supportive, compassionate, informative people you could ever hope to find.Hang around, ask questions and make your self comfortable. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Hello, everyone--This is my first visit and I wanted to share a couple of things regarding the battle with mucous. I have what's called an acapella--a device with a flutter valve which you can also attach to the device used for breathing treatments. When I do my albuterol/pulmacort treatment, I attach it to the acapella flutter valve and take care of the treatment and coughing up the mucous at the same time. It is really great and I highly recommend it over the device with the metal ball. The other thing I wanted to mention is that my doctor has me on a supplement called N-Acetyl Cysteine which helps to break up the mucous in the lungs. It comes in tablet and liquid form (and smells awful!--like rotten eggs)and I take 600 mg tablets 3x day. My doctor swears by it, and it certainly feels as though it really does help. I don't have to cough very hard, and the mucous comes up very easily. The supplement is made by Life Extension, and the website is www.lef.org, where it can be purchased. My doctor cautioned me not to use any other type of supplement that claims to do the same thing. My pharmacy has ordered it, and keeps it in stock for me. It works very well for me; check with your doctor.In Breathe-Support , sharon prendergast  wrote:>> Hi Margaret, Have you heard of the flutter. I just emailed Jim about it , but its a small device that looks like a pipe and you can't inhale through it but you exhale and you can feel it flutter in your chest and cough and it truly brings up mucous which with my asthma mucous happens to be a problem. My doctors nurse told me about it and I am glad she did. sharon p asthma ph2008> > > > > > Subject: Re: question> To: Breathe-Support > Date: Friday, January 30, 2009, 5:48 PM> > > > > > > > > Hi Jim,>  >  Good to be talking to a fellow Alaskan. I think I have been experiencing our Alaska virus for a week or so; that's why I looked up this site, I was feeling so crummy. Last week my doc said that I could try OTC Musinex; could you just call your doc and ask about trying that, if it is safe for you, without charge? I haven't had a bad mucous problem but do have a little increase.>  > I have never heard of your medication so don't know what it is for. I do know a lot of water is supposed to help with mucous. One of the med tecs that works in my doc's office has two children with cystic fibrosis. I know they use the the mechanical suction. I think it might be something your wife would have to help with but I have only seen it done on children. I used to wheeze really badly but didn't cough or cough up much. What really helped me was to lie on my stomach and have my daughter pat my back right between the shoulder blades. It felt good and I know they do that with the CF kids to loosen up stuff. It would be nice for this virus to pass! >  > What is the weather like in your neck of the woods today? Has the volcano ash ever blown your way? It is 19 degrees and snowing right now here. Hope you feel better and this truly was the last of it for now.>  > Margaret>  >  >  >  >   > > > > > > From: james wallman <james_wallman@ yahoo.com>> To: Breathe-Support@ yahoogroups. com> Sent: Friday, January 30, 2009 1:36:24 PM> Subject: question> > > > > > > > > this is one of those subjects that is rather unpleasant and so is not talked about much, but I need info/advice. ........mucus. .......is my worst enemy. When I can't cough it up, keep coughing, sats drop, very sob, very weak, feel like passing out. This condition hasn't hit me for some time. I use liquid acetylsysteine 3 times a day and drink lots of water. (I've found that makes alot of difference) My wife works at the hospital and thinks I should go be seen, and I think that's a waste of time....and lots of money. I did a sputum sample 2 days ago and they found no reason to give me antibiotics. I think this is associated with a virus going around though I have no other symptoms. >  > Question: has anyone heard of or experienced mechanical suction? I read that term on the fact sheet that comes with the acetylsysteine a long time ago. Is that something they do? Sounds like a bronch to me, conjures up some not too pleasant pictures in my head........ I think todays session is winding down. But for future reference... ....Thank you!!!!>  > jim IPF 05> alaska>

[Guest guest]

Needed that laugh BARB

i am right there with you... patti,nj,ipf7'06,raynauds,scleroderma,PH

>

> From: Margaret McConnell

> Subject: Re: question

> To: Breathe-Support@ yahoogroups. com

> Date: Friday, January 30, 2009, 2:48 PM

>

>

>

>

>

>

> Hi Jim,

> �

> �Good to be talking to a fellow Alaskan. I think I have been

experiencing our Alaska virus for a week or so; that's why I looked

up this site, I was feeling so crummy. Last week my doc said that I

could try OTC�Musinex; could you just call your doc and ask about

trying that, if it is safe for you, without charge? I haven't had a

bad mucous problem but do have a little increase.

> �

> I have never heard of your medication so don't know what it is

for. I do know a lot of water is supposed to help with mucous. One

of the med tecs that works in my doc's office has two children with

cystic fibrosis. I know they use the the mechanical suction. I think

it might be something your wife would have to help with but I have

only seen it done on children.�I used to wheeze really badly but

didn't cough or cough up much. What really helped me was to lie on

my stomach and have my daughter pat my back right between the

shoulder blades. It felt good and I know they do that with the CF

kids to loosen up stuff. It would be nice for this virus to pass!

> �

> What is the weather like in your neck of the woods today? Has the

volcano ash ever blown your way? It is 19 degrees and snowing right

now here. Hope you feel better and this truly was the last of it for

now.

> �

> Margaret

> �

> �

> �

> �

> ��

>

>

>

>

>

> From:�james wallman

> To:�Breathe-Support@ yahoogroups. com

> Sent:�Friday, January 30, 2009 1:36:24 PM

> Subject:� question

>

>

>

>

>

>

>

>

> this is one of those subjects that is rather unpleasant and so is

not talked about much, but I need

info/advice. ........mucus. .......is my worst enemy. When I can't

cough it up, keep coughing, sats drop, very sob, very weak, feel

like passing out. This condition hasn't hit me for some time. I use

liquid acetylsysteine 3 times a day and drink lots of water. (I've

found that makes alot of difference) My wife works at the hospital

and thinks I should go be seen, and I think that's a waste of

time....and lots of money. I did a sputum sample 2 days ago and they

found no reason to give me antibiotics.�I think this is associated

with a virus going around though I have no other symptoms.

> �

> Question: has anyone heard of or experienced mechanical suction? I

read that term on the fact sheet that comes with the acetylsysteine

a long time ago. Is that something they do? Sounds like a bronch to

me, conjures up some not too pleasant pictures in my head........ I

think todays session is winding down. But for future

reference... ....Thank you!!!!

> �

> jim IPF 05

> alaska

>

[Guest guest]

Bruce, I had been treated for the past 18 months for asthma/chronic

bronchitis and within a year's time had been on prednizone three

times. When shortness of breath suddenly and rapidly appeared, I

found a new lung specialist who treated me aggressively for the same

thing for two weeks, but admitted me from my second visit to the

hospital for five days,where amongst other tests and films, I had a

CT scan of the chest which showed unquestionably that I have

pulmonary fibrosis. With all the prednisone I've had, I'm surprised I

have responded so well. In addition to the prednizone, I do two

breathing treatments a day, and have very little coughing except when

I'm doing my treatments (which,, of course, is a good thing!). We're

beginning to taper off from the prednizone. I started w/ 60 mg/day,

have been on 50 mg/day for a month, and will see the doctor tomorrow

with hopes that he'll decrease dosage again. I'm really doing

extremely well right now and feel I am in good hands with my doctor.

We have talked about an open lung biopsy by a specialist in

Cincinnati he has worked with frequently, but he feels this is

something we can currently place on hold, to see how I do over the

next several months. The side effects of the prednizone really bother

me, and I must remind myself to think with my head and not my heart.

I'm hanging in there,knowing that dealing with the side effects is

such a minor thing compared to the ramifications of this disease.

We'll see what the doctor says tomorrow!

> > > >

> > > >

> > > > From: Margaret McConnell

> > > > Subject: Re: question

> > > > To: Breathe-Support

> > > > Date: Friday, January 30, 2009, 5:48 PM

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Hi Jim,

> > > >

> > > > Good to be talking to a fellow Alaskan. I think I have been

> > > experiencing our Alaska virus for a week or so; that's why I

looked

> > > up this site, I was feeling so crummy. Last week my doc said

that I

> > > could try OTC Musinex; could you just call your doc and ask

about

> > > trying that, if it is safe for you, without charge? I haven't

had a

> > > bad mucous problem but do have a little increase.

> > > >

> > > > I have never heard of your medication so don't know what it is

> > for.

> > > I do know a lot of water is supposed to help with mucous. One

of the

> > > med tecs that works in my doc's office has two children with

cystic

> > > fibrosis. I know they use the the mechanical suction. I think it

> > > might be something your wife would have to help with but I have

only

> > > seen it done on children. I used to wheeze really badly but

didn't

> > > cough or cough up much. What really helped me was to lie on my

> > > stomach and have my daughter pat my back right between the

shoulder

> > > blades. It felt good and I know they do that with the CF kids to

> > > loosen up stuff. It would be nice for this virus to pass!

> > > >

> > > > What is the weather like in your neck of the woods today? Has

the

> > > volcano ash ever blown your way? It is 19 degrees and snowing

right

> > > now here. Hope you feel better and this truly was the last of

it for

> > > now.

> > > >

> > > > Margaret

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > From: james wallman

> > > > To: Breathe-Support@ yahoogroups. com

> > > > Sent: Friday, January 30, 2009 1:36:24 PM

> > > > Subject: question

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > this is one of those subjects that is rather unpleasant and

so is

> > > not talked about much, but I need

> > > info/advice. ........mucus. .......is my worst enemy. When I

can't

> > > cough it up, keep coughing, sats drop, very sob, very weak, feel

> > like

> > > passing out. This condition hasn't hit me for some time. I use

> > liquid

> > > acetylsysteine 3 times a day and drink lots of water. (I've

found

> > > that makes alot of difference) My wife works at the hospital and

> > > thinks I should go be seen, and I think that's a waste of

> > time....and

> > > lots of money. I did a sputum sample 2 days ago and they found

no

> > > reason to give me antibiotics. I think this is associated with a

> > > virus going around though I have no other symptoms.

> > > >

> > > > Question: has anyone heard of or experienced mechanical

suction?

> > I

> > > read that term on the fact sheet that comes with the

acetylsysteine

> > a

> > > long time ago. Is that something they do? Sounds like a bronch

to

> > me,

> > > conjures up some not too pleasant pictures in my head........ I

> > think

> > > todays session is winding down. But for future

> > reference... ....Thank

> > > you!!!!

> > > >

> > > > jim IPF 05

> > > > alaska

> > > >

> > >

> >

>

[Guest guest]

Diane

Many of us were considered to be short of breath because of asthma or

allergies or age or being out of shape prior to the PF diagnosis.

As to prednisone, the previous treatments you had were very little. Let

me explain. Being on prednisone for 6 days to 2 weeks is a normal

reaction to various conditions including the ones you describe. However,

that is an easy on/easy off level of dosage and generally without the

side effects of long term use. You often even get such a dosage to help

on top of antibiotics in wiping out infections or to relieve

inflammation of many types. I've been on dosages like that with

prednisone or other steroids more times in my life than I can remember.

I was on strong dosages when in college to try to one time clear my

allergies (was unsuccessful).

Now, you're on a typical PF path of prednisone treatment, starting at 60

and working down. When you cross three weeks is typically when side

effects come into more play and also when withdrawal becomes difficult.

Now, know about the side effects so you take the steps to monitor. There

are things you can take for your bones. You can diet in such a way to

try to avoid diabetes or minimize it. Weight gain is something you can

attempt to fight, although often impossible. Many doctors say within

three months you should know if this course is helping or not. You seem

to have an indication it is.

Now, I know you have confidence in your current pulmonologist, but when

it comes to a disease such as this one I would always get a second

opinion. Especially since you've already had a change on a second

opinion. Doctor one said Asthma. Doctor two says PF. I'd sure take a day

at a teaching hospital, preferably an IPF center of excellence for a

complete battery. Have you been thoroughly evaluated for autoimmune

diseases? Assuming he diagnosed you from CT's, what did they indicate as

far as the form of PF? Additional tests might well shed light on why or

what the prednisone is helping.

One last point. You can have asthma or COPD and PF. It's very important

to get a fix on that because the asthma and COPD are obstructive and the

PF is restrictive. Some of the things we say here regarding PF would be

bad if you also have COPD, especially when it comes to the proper use of

oxygen.

As to the biopsy, I would think instead of Open they are talking VATS.

You need to consider why you'd want to do it or not want to. It is

invasive and not without some risks of complications. On the other hand

it can be very informative. But from your CT's and the impact of

prednisone you may already have the answers you need. I had a VATS and

am glad I did but one of my key reasons was to decide whether to try

prednisone or not. You're beyond that stage. I might also say, not

knowing where or how your CT's were done, that, true or not, most

centers specializing in PF think they can do them much better and find

out much more than a normal doctor's office or lab.

One last thing. Have you had an echocardiogram? If not, I'd advise

anyone with PF to get one and to start getting them regularly. PH is a

bad complication we all want to try to avoid and treat early if we do

get it.

> > > > >

> > > > >

> > > > > From: Margaret McConnell

> > > > > Subject: Re: question

> > > > > To: Breathe-Support

> > > > > Date: Friday, January 30, 2009, 5:48 PM

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Hi Jim,

> > > > >

> > > > > Good to be talking to a fellow Alaskan. I think I have been

> > > > experiencing our Alaska virus for a week or so; that's why I

> looked

> > > > up this site, I was feeling so crummy. Last week my doc said

> that I

> > > > could try OTC Musinex; could you just call your doc and ask

> about

> > > > trying that, if it is safe for you, without charge? I haven't

> had a

> > > > bad mucous problem but do have a little increase.

> > > > >

> > > > > I have never heard of your medication so don't know what it is

> > > for.

> > > > I do know a lot of water is supposed to help with mucous. One

> of the

> > > > med tecs that works in my doc's office has two children with

> cystic

> > > > fibrosis. I know they use the the mechanical suction. I think it

> > > > might be something your wife would have to help with but I have

> only

> > > > seen it done on children. I used to wheeze really badly but

> didn't

> > > > cough or cough up much. What really helped me was to lie on my

> > > > stomach and have my daughter pat my back right between the

> shoulder

> > > > blades. It felt good and I know they do that with the CF kids to

> > > > loosen up stuff. It would be nice for this virus to pass!

> > > > >

> > > > > What is the weather like in your neck of the woods today? Has

> the

> > > > volcano ash ever blown your way? It is 19 degrees and snowing

> right

> > > > now here. Hope you feel better and this truly was the last of

> it for

> > > > now.

> > > > >

> > > > > Margaret

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > From: james wallman

> > > > > To: Breathe-Support@ yahoogroups. com

> > > > > Sent: Friday, January 30, 2009 1:36:24 PM

> > > > > Subject: question

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > this is one of those subjects that is rather unpleasant and

> so is

> > > > not talked about much, but I need

> > > > info/advice. ........mucus. .......is my worst enemy. When I

> can't

> > > > cough it up, keep coughing, sats drop, very sob, very weak, feel

> > > like

> > > > passing out. This condition hasn't hit me for some time. I use

> > > liquid

> > > > acetylsysteine 3 times a day and drink lots of water. (I've

> found

> > > > that makes alot of difference) My wife works at the hospital and

> > > > thinks I should go be seen, and I think that's a waste of

> > > time....and

> > > > lots of money. I did a sputum sample 2 days ago and they found

> no

> > > > reason to give me antibiotics. I think this is associated with a

> > > > virus going around though I have no other symptoms.

> > > > >

> > > > > Question: has anyone heard of or experienced mechanical

> suction?

> > > I

> > > > read that term on the fact sheet that comes with the

> acetylsysteine

> > > a

> > > > long time ago. Is that something they do? Sounds like a bronch

> to

> > > me,

> > > > conjures up some not too pleasant pictures in my head........ I

> > > think

> > > > todays session is winding down. But for future

> > > reference... ....Thank

> > > > you!!!!

> > > > >

> > > > > jim IPF 05

> > > > > alaska

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Resources on any large wild fire are dependant upon the needs of the

incident hence this is the call of the Incident Commander. If he or she feels

they need a Strike Team then they can easily request one or more as they see

fit for deployment as they see fit.

I have used Ambulance Strike teams in a Staging Area on large wild fires

when I was concerned that a wind shift might cause the need to evacuate a

small long term car facility.

I put an Engine Strike Team along with a Tender Strike Team as well as the

Ambulance Strike Team in the parking lot of the LTC facility. Their only

mission was to defend and protect the LTC should the Engine Strike Team

Leader feel that the LTC needed to evacuate should the wind shift. The ESTL had

the authority to make that call delegated to him by me as the IC. The wind

did shift but in the opposite direction of my concern so we eventually

redeployed the Engine and Tender Strike teams and released the Ambulance

Strike team.

So a definite maybe.

Louis N. Molino, Sr., CET

FF/NREMT-B/FSI/EMSI

Freelance Consultant/Trainer/Author/Journalist/Fire Protection Consultant

LNMolino@...

(Cell Phone)

(IFW/FSS Office)/

(IFWF/SS Fax)

" A Texan with a Jersey Attitude "

" Great minds discuss ideas; Average minds discuss events; Small minds

discuss people " Eleanor Roosevelt - US diplomat & reformer (1884 - 1962)

The comments contained in this E-mail are the opinions of the author and

the author alone. I in no way ever intend to speak for any person or

organization that I am in any way whatsoever involved or associated with unless

I

specifically state that I am doing so. Further this E-mail is intended only

for its stated recipient and may contain private and or confidential

materials retransmission is strictly prohibited unless placed in the public

domain by the original author.

In a message dated 4/9/2009 9:50:14 P.M. Central Daylight Time,

joby@... writes:

With the large area of fires here in North Texas does the Ambulance Strike

Team get called?

Joby Berkley

Sent from my iPhone

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**************Feeling the pinch at the grocery store? Make dinner for $10

or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)

[Guest guest]

Does anyone know what it would take for me to work in the state of new york with

my certification from texas?

[Guest guest]

Must be certified CRAZY

In a message dated 12/5/2009 9:27:03 P.M. Central Standard Time,

sldbet@... writes:

Does anyone know what it would take for me to work in the state of new

york with my certification from texas?

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