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-My husband gets his bloodwork on Friday. Monday morning he shows up

for chemo. Comes home with a 22 hour pump. He goes back Tuesday

alnd comes home with another 22 hour pump. On Wed, a nurse comes to

the house to disconnect it although he has learned how to disconnect

by himself including take the needle out. I guess not very many

people get that far.

-- In colon_cancer_support , Grandmommyandme@a...

wrote:

> This has been bugging me for a while....Does anyone know why some

people

> have to return to the hospital 3 days in a row for their

Folfox/Avastin

> treatments?

>

> Glenn goes the first day (which is a Friday) and has blood work,

then they

> order the chemo mixed, if counts are o.k. and bring it up. While

we are

> waiting they start the anti-nausea/fluids and the he has a 3+ hr

drip and he is

> sent home with the pump and his tiny bag of chemo. He does not

have to return

> to the hospital on Saturday; and on Sunday, they send out a Home

Nurse to

> disconnect the pump at the 46th hour.

>

> It just seems so inconvenient that people have to travel so far or

even if

> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

different pump

> or something?? Anyway, I count our blessings on this one!! And

wish so

> badly for those of you that have to go 3 days in a row that you

didn't have to

> do that!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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-My husband gets his bloodwork on Friday. Monday morning he shows up

for chemo. Comes home with a 22 hour pump. He goes back Tuesday

alnd comes home with another 22 hour pump. On Wed, a nurse comes to

the house to disconnect it although he has learned how to disconnect

by himself including take the needle out. I guess not very many

people get that far.

-- In colon_cancer_support , Grandmommyandme@a...

wrote:

> This has been bugging me for a while....Does anyone know why some

people

> have to return to the hospital 3 days in a row for their

Folfox/Avastin

> treatments?

>

> Glenn goes the first day (which is a Friday) and has blood work,

then they

> order the chemo mixed, if counts are o.k. and bring it up. While

we are

> waiting they start the anti-nausea/fluids and the he has a 3+ hr

drip and he is

> sent home with the pump and his tiny bag of chemo. He does not

have to return

> to the hospital on Saturday; and on Sunday, they send out a Home

Nurse to

> disconnect the pump at the 46th hour.

>

> It just seems so inconvenient that people have to travel so far or

even if

> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

different pump

> or something?? Anyway, I count our blessings on this one!! And

wish so

> badly for those of you that have to go 3 days in a row that you

didn't have to

> do that!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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Guest guest

-My husband gets his bloodwork on Friday. Monday morning he shows up

for chemo. Comes home with a 22 hour pump. He goes back Tuesday

alnd comes home with another 22 hour pump. On Wed, a nurse comes to

the house to disconnect it although he has learned how to disconnect

by himself including take the needle out. I guess not very many

people get that far.

-- In colon_cancer_support , Grandmommyandme@a...

wrote:

> This has been bugging me for a while....Does anyone know why some

people

> have to return to the hospital 3 days in a row for their

Folfox/Avastin

> treatments?

>

> Glenn goes the first day (which is a Friday) and has blood work,

then they

> order the chemo mixed, if counts are o.k. and bring it up. While

we are

> waiting they start the anti-nausea/fluids and the he has a 3+ hr

drip and he is

> sent home with the pump and his tiny bag of chemo. He does not

have to return

> to the hospital on Saturday; and on Sunday, they send out a Home

Nurse to

> disconnect the pump at the 46th hour.

>

> It just seems so inconvenient that people have to travel so far or

even if

> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

different pump

> or something?? Anyway, I count our blessings on this one!! And

wish so

> badly for those of you that have to go 3 days in a row that you

didn't have to

> do that!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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How it went for me with Chemo inspite of the hour and 15 minute drive

it took me each way to Chemo.

Day One- Anti-nausia calciam stuff for tingles then Oxy with

luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

with more 5-Fu to go home with.

Day two- unhook body pump and get more anti-nausia then 2 hour drip

of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

body pack again to go home.

Day three- get unhooked and port flushed.

Don't know why, but this is how it was done to me. Just thought it

went that way for everyone. Ingrid

> This has been bugging me for a while....Does anyone know why some

people

> have to return to the hospital 3 days in a row for their

Folfox/Avastin

> treatments?

>

> Glenn goes the first day (which is a Friday) and has blood work,

then they

> order the chemo mixed, if counts are o.k. and bring it up. While

we are

> waiting they start the anti-nausea/fluids and the he has a 3+ hr

drip and he is

> sent home with the pump and his tiny bag of chemo. He does not

have to return

> to the hospital on Saturday; and on Sunday, they send out a Home

Nurse to

> disconnect the pump at the 46th hour.

>

> It just seems so inconvenient that people have to travel so far or

even if

> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

different pump

> or something?? Anyway, I count our blessings on this one!! And

wish so

> badly for those of you that have to go 3 days in a row that you

didn't have to

> do that!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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How it went for me with Chemo inspite of the hour and 15 minute drive

it took me each way to Chemo.

Day One- Anti-nausia calciam stuff for tingles then Oxy with

luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

with more 5-Fu to go home with.

Day two- unhook body pump and get more anti-nausia then 2 hour drip

of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

body pack again to go home.

Day three- get unhooked and port flushed.

Don't know why, but this is how it was done to me. Just thought it

went that way for everyone. Ingrid

> This has been bugging me for a while....Does anyone know why some

people

> have to return to the hospital 3 days in a row for their

Folfox/Avastin

> treatments?

>

> Glenn goes the first day (which is a Friday) and has blood work,

then they

> order the chemo mixed, if counts are o.k. and bring it up. While

we are

> waiting they start the anti-nausea/fluids and the he has a 3+ hr

drip and he is

> sent home with the pump and his tiny bag of chemo. He does not

have to return

> to the hospital on Saturday; and on Sunday, they send out a Home

Nurse to

> disconnect the pump at the 46th hour.

>

> It just seems so inconvenient that people have to travel so far or

even if

> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

different pump

> or something?? Anyway, I count our blessings on this one!! And

wish so

> badly for those of you that have to go 3 days in a row that you

didn't have to

> do that!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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How it went for me with Chemo inspite of the hour and 15 minute drive

it took me each way to Chemo.

Day One- Anti-nausia calciam stuff for tingles then Oxy with

luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

with more 5-Fu to go home with.

Day two- unhook body pump and get more anti-nausia then 2 hour drip

of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

body pack again to go home.

Day three- get unhooked and port flushed.

Don't know why, but this is how it was done to me. Just thought it

went that way for everyone. Ingrid

> This has been bugging me for a while....Does anyone know why some

people

> have to return to the hospital 3 days in a row for their

Folfox/Avastin

> treatments?

>

> Glenn goes the first day (which is a Friday) and has blood work,

then they

> order the chemo mixed, if counts are o.k. and bring it up. While

we are

> waiting they start the anti-nausea/fluids and the he has a 3+ hr

drip and he is

> sent home with the pump and his tiny bag of chemo. He does not

have to return

> to the hospital on Saturday; and on Sunday, they send out a Home

Nurse to

> disconnect the pump at the 46th hour.

>

> It just seems so inconvenient that people have to travel so far or

even if

> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

different pump

> or something?? Anyway, I count our blessings on this one!! And

wish so

> badly for those of you that have to go 3 days in a row that you

didn't have to

> do that!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>

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That's the way they are going to " do it " to me, also!!

On 5/8/2005 4:40:08 AM, colon_cancer_support wrote:

> How it went for me with Chemo inspite of the hour and 15 minute drive

> it took me each way to Chemo.

> Day One- Anti-nausia calciam stuff for tingles then Oxy with

> luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

> with more 5-Fu to go home with.

> Day two- unhook body pump and get more anti-nausia then 2 hour drip

> of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

> body pack again to go home.

> Day three- get unhooked and port flushed.

> Don't know why, but this is how it was done to me. Just thought it

> went that way for everyone. Ingrid

>

>

>

>

>

>

> > This has been bugging me for a while....Does anyone know why some

> people

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That's the way they are going to " do it " to me, also!!

On 5/8/2005 4:40:08 AM, colon_cancer_support wrote:

> How it went for me with Chemo inspite of the hour and 15 minute drive

> it took me each way to Chemo.

> Day One- Anti-nausia calciam stuff for tingles then Oxy with

> luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

> with more 5-Fu to go home with.

> Day two- unhook body pump and get more anti-nausia then 2 hour drip

> of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

> body pack again to go home.

> Day three- get unhooked and port flushed.

> Don't know why, but this is how it was done to me. Just thought it

> went that way for everyone. Ingrid

>

>

>

>

>

>

> > This has been bugging me for a while....Does anyone know why some

> people

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That's the way they are going to " do it " to me, also!!

On 5/8/2005 4:40:08 AM, colon_cancer_support wrote:

> How it went for me with Chemo inspite of the hour and 15 minute drive

> it took me each way to Chemo.

> Day One- Anti-nausia calciam stuff for tingles then Oxy with

> luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

> with more 5-Fu to go home with.

> Day two- unhook body pump and get more anti-nausia then 2 hour drip

> of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

> body pack again to go home.

> Day three- get unhooked and port flushed.

> Don't know why, but this is how it was done to me. Just thought it

> went that way for everyone. Ingrid

>

>

>

>

>

>

> > This has been bugging me for a while....Does anyone know why some

> people

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Guest guest

Ahh, yes. That sounds so familiar. I did that for 12 cycles.

That is the standard " Folfox " regimen and it did wonders for me. I

only wish I could have continued with it, but my " tinglies " got so

bad I had to stop the Oxaliplatin before all of the cancer was gone.

I noticed one thing, when I had the pump plugged in and it was

dosing me with 5-FU (fluorouracil for the purist) my arthritis was

virtually non-existant. I could walk around without any knee pain. I

was on the verge of asking my oncologist to put me on permanent

chemo just to keep my knees feeling good.

Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

the knees at all. I want my pump back.

-joe-

> > This has been bugging me for a while....Does anyone know why

some

> people

> > have to return to the hospital 3 days in a row for their

> Folfox/Avastin

> > treatments?

> >

> > Glenn goes the first day (which is a Friday) and has blood

work,

> then they

> > order the chemo mixed, if counts are o.k. and bring it up.

While

> we are

> > waiting they start the anti-nausea/fluids and the he has a 3+

hr

> drip and he is

> > sent home with the pump and his tiny bag of chemo. He does not

> have to return

> > to the hospital on Saturday; and on Sunday, they send out a

Home

> Nurse to

> > disconnect the pump at the 46th hour.

> >

> > It just seems so inconvenient that people have to travel so far

or

> even if

> > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

> different pump

> > or something?? Anyway, I count our blessings on this one!!

And

> wish so

> > badly for those of you that have to go 3 days in a row that you

> didn't have to

> > do that!!!

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >

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Guest guest

Ahh, yes. That sounds so familiar. I did that for 12 cycles.

That is the standard " Folfox " regimen and it did wonders for me. I

only wish I could have continued with it, but my " tinglies " got so

bad I had to stop the Oxaliplatin before all of the cancer was gone.

I noticed one thing, when I had the pump plugged in and it was

dosing me with 5-FU (fluorouracil for the purist) my arthritis was

virtually non-existant. I could walk around without any knee pain. I

was on the verge of asking my oncologist to put me on permanent

chemo just to keep my knees feeling good.

Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

the knees at all. I want my pump back.

-joe-

> > This has been bugging me for a while....Does anyone know why

some

> people

> > have to return to the hospital 3 days in a row for their

> Folfox/Avastin

> > treatments?

> >

> > Glenn goes the first day (which is a Friday) and has blood

work,

> then they

> > order the chemo mixed, if counts are o.k. and bring it up.

While

> we are

> > waiting they start the anti-nausea/fluids and the he has a 3+

hr

> drip and he is

> > sent home with the pump and his tiny bag of chemo. He does not

> have to return

> > to the hospital on Saturday; and on Sunday, they send out a

Home

> Nurse to

> > disconnect the pump at the 46th hour.

> >

> > It just seems so inconvenient that people have to travel so far

or

> even if

> > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

> different pump

> > or something?? Anyway, I count our blessings on this one!!

And

> wish so

> > badly for those of you that have to go 3 days in a row that you

> didn't have to

> > do that!!!

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >

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Guest guest

Ahh, yes. That sounds so familiar. I did that for 12 cycles.

That is the standard " Folfox " regimen and it did wonders for me. I

only wish I could have continued with it, but my " tinglies " got so

bad I had to stop the Oxaliplatin before all of the cancer was gone.

I noticed one thing, when I had the pump plugged in and it was

dosing me with 5-FU (fluorouracil for the purist) my arthritis was

virtually non-existant. I could walk around without any knee pain. I

was on the verge of asking my oncologist to put me on permanent

chemo just to keep my knees feeling good.

Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

the knees at all. I want my pump back.

-joe-

> > This has been bugging me for a while....Does anyone know why

some

> people

> > have to return to the hospital 3 days in a row for their

> Folfox/Avastin

> > treatments?

> >

> > Glenn goes the first day (which is a Friday) and has blood

work,

> then they

> > order the chemo mixed, if counts are o.k. and bring it up.

While

> we are

> > waiting they start the anti-nausea/fluids and the he has a 3+

hr

> drip and he is

> > sent home with the pump and his tiny bag of chemo. He does not

> have to return

> > to the hospital on Saturday; and on Sunday, they send out a

Home

> Nurse to

> > disconnect the pump at the 46th hour.

> >

> > It just seems so inconvenient that people have to travel so far

or

> even if

> > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

> different pump

> > or something?? Anyway, I count our blessings on this one!!

And

> wish so

> > badly for those of you that have to go 3 days in a row that you

> didn't have to

> > do that!!!

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >

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Joe

You might have been getting Decadron as well. I know that is my wonder drug-

makes my knees not hurt and my hips not hurt. I get some decadron via on

day one of chemo, and then on day 2-4 I take decadron and kytril.. I am in

pain free heaven at least for a couple days. Then Sat/sun I start to come

down. I sure do hate when that happens, start walking like an old lady

again.. LOL.I get along well with my pump too. Take care Cheers Jolene

Re: Question

Ahh, yes. That sounds so familiar. I did that for 12 cycles.

That is the standard " Folfox " regimen and it did wonders for me. I

only wish I could have continued with it, but my " tinglies " got so

bad I had to stop the Oxaliplatin before all of the cancer was gone.

I noticed one thing, when I had the pump plugged in and it was

dosing me with 5-FU (fluorouracil for the purist) my arthritis was

virtually non-existant. I could walk around without any knee pain. I

was on the verge of asking my oncologist to put me on permanent

chemo just to keep my knees feeling good.

Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

the knees at all. I want my pump back.

-joe-

> > This has been bugging me for a while....Does anyone know why

some

> people

> > have to return to the hospital 3 days in a row for their

> Folfox/Avastin

> > treatments?

> >

> > Glenn goes the first day (which is a Friday) and has blood

work,

> then they

> > order the chemo mixed, if counts are o.k. and bring it up.

While

> we are

> > waiting they start the anti-nausea/fluids and the he has a 3+

hr

> drip and he is

> > sent home with the pump and his tiny bag of chemo. He does not

> have to return

> > to the hospital on Saturday; and on Sunday, they send out a

Home

> Nurse to

> > disconnect the pump at the 46th hour.

> >

> > It just seems so inconvenient that people have to travel so far

or

> even if

> > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

> different pump

> > or something?? Anyway, I count our blessings on this one!!

And

> wish so

> > badly for those of you that have to go 3 days in a row that you

> didn't have to

> > do that!!!

> >

> > Lots of hugs and prayers, Donelle

> > Caregiver to Glenn

> >

> >

> >

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You're probably right. I was receiving Decadron and I never

associated the dose of steroids with the improvement in my

arthritis. All this time I was giving 5-FU the credit.

You stick around, you learn.

-joe-

> > > This has been bugging me for a while....Does anyone know why

> some

> > people

> > > have to return to the hospital 3 days in a row for their

> > Folfox/Avastin

> > > treatments?

> > >

> > > Glenn goes the first day (which is a Friday) and has blood

> work,

> > then they

> > > order the chemo mixed, if counts are o.k. and bring it up.

> While

> > we are

> > > waiting they start the anti-nausea/fluids and the he has a 3+

> hr

> > drip and he is

> > > sent home with the pump and his tiny bag of chemo. He does

not

> > have to return

> > > to the hospital on Saturday; and on Sunday, they send out a

> Home

> > Nurse to

> > > disconnect the pump at the 46th hour.

> > >

> > > It just seems so inconvenient that people have to travel so

far

> or

> > even if

> > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has

a

> > different pump

> > > or something?? Anyway, I count our blessings on this one!!

> And

> > wish so

> > > badly for those of you that have to go 3 days in a row that

you

> > didn't have to

> > > do that!!!

> > >

> > > Lots of hugs and prayers, Donelle

> > > Caregiver to Glenn

> > >

> > >

> > >

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That is the truth.. If you go to the File section on the group site, and

Look for the Our Story file and Jolene's Story It will give a run down of

all the good stuff that

Decadron does during chemo. I call it my feel good drug. I am looking

forward to getting on it this week, walking around like and old lady again

and I don't like it. Shame that it is a steroid.

Jolene

..

Re: Question

You're probably right. I was receiving Decadron and I never

associated the dose of steroids with the improvement in my

arthritis. All this time I was giving 5-FU the credit.

You stick around, you learn.

-joe-

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-

Thats kind of funny , my Joe is on the Oxplatin/5fu/Leucovirn/Avastin

regiment and the night of and day after ALL his joints HURT , they

hurt bad enough he soaks in warm tub ( HE HATES taking bathes lol he

is a shower man) and he has me rub him down with Ben-Gay

Deb

-- In colon_cancer_support , " Joe Savage "

wrote:

> Ahh, yes. That sounds so familiar. I did that for 12 cycles.

>

> That is the standard " Folfox " regimen and it did wonders for me. I

> only wish I could have continued with it, but my " tinglies " got so

> bad I had to stop the Oxaliplatin before all of the cancer was gone.

>

> I noticed one thing, when I had the pump plugged in and it was

> dosing me with 5-FU (fluorouracil for the purist) my arthritis was

> virtually non-existant. I could walk around without any knee pain.

I

> was on the verge of asking my oncologist to put me on permanent

> chemo just to keep my knees feeling good.

>

> Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

> the knees at all. I want my pump back.

>

> -joe-

>

>

> > > This has been bugging me for a while....Does anyone know why

> some

> > people

> > > have to return to the hospital 3 days in a row for their

> > Folfox/Avastin

> > > treatments?

> > >

> > > Glenn goes the first day (which is a Friday) and has blood

> work,

> > then they

> > > order the chemo mixed, if counts are o.k. and bring it up.

> While

> > we are

> > > waiting they start the anti-nausea/fluids and the he has a 3+

> hr

> > drip and he is

> > > sent home with the pump and his tiny bag of chemo. He does not

> > have to return

> > > to the hospital on Saturday; and on Sunday, they send out a

> Home

> > Nurse to

> > > disconnect the pump at the 46th hour.

> > >

> > > It just seems so inconvenient that people have to travel so far

> or

> > even if

> > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has

a

> > different pump

> > > or something?? Anyway, I count our blessings on this one!!

> And

> > wish so

> > > badly for those of you that have to go 3 days in a row that

you

> > didn't have to

> > > do that!!!

> > >

> > > Lots of hugs and prayers, Donelle

> > > Caregiver to Glenn

> > >

> > >

> > >

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It is the Decadron that takes the joint pain away, not the chemo meds. Maybe

they should have given joe the Decadron as well.

Jolene

Re: Question

-

Thats kind of funny , my Joe is on the Oxplatin/5fu/Leucovirn/Avastin

regiment and the night of and day after ALL his joints HURT , they

hurt bad enough he soaks in warm tub ( HE HATES taking bathes lol he

is a shower man) and he has me rub him down with Ben-Gay

Deb

-- In colon_cancer_support , " Joe Savage "

wrote:

> Ahh, yes. That sounds so familiar. I did that for 12 cycles.

>

> That is the standard " Folfox " regimen and it did wonders for me. I

> only wish I could have continued with it, but my " tinglies " got so

> bad I had to stop the Oxaliplatin before all of the cancer was gone.

>

> I noticed one thing, when I had the pump plugged in and it was

> dosing me with 5-FU (fluorouracil for the purist) my arthritis was

> virtually non-existant. I could walk around without any knee pain.

I

> was on the verge of asking my oncologist to put me on permanent

> chemo just to keep my knees feeling good.

>

> Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

> the knees at all. I want my pump back.

>

> -joe-

>

>

> > > This has been bugging me for a while....Does anyone know why

> some

> > people

> > > have to return to the hospital 3 days in a row for their

> > Folfox/Avastin

> > > treatments?

> > >

> > > Glenn goes the first day (which is a Friday) and has blood

> work,

> > then they

> > > order the chemo mixed, if counts are o.k. and bring it up.

> While

> > we are

> > > waiting they start the anti-nausea/fluids and the he has a 3+

> hr

> > drip and he is

> > > sent home with the pump and his tiny bag of chemo. He does not

> > have to return

> > > to the hospital on Saturday; and on Sunday, they send out a

> Home

> > Nurse to

> > > disconnect the pump at the 46th hour.

> > >

> > > It just seems so inconvenient that people have to travel so far

> or

> > even if

> > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has

a

> > different pump

> > > or something?? Anyway, I count our blessings on this one!!

> And

> > wish so

> > > badly for those of you that have to go 3 days in a row that

you

> > didn't have to

> > > do that!!!

> > >

> > > Lots of hugs and prayers, Donelle

> > > Caregiver to Glenn

> > >

> > >

> > >

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Guest guest

My husband usually took a pain pill the night of his first treatment (we blamed

it on the Oxilaplatin). He also would get in the whirlpool tub and said it

really helped (he's a shower man too). In fact, he has taken more baths during

the treatments than in the 28 years we have been married. I don't really

remember him ever taking a bath til now. I don't know what it is buy my boys

won't take baths either. They don't know what they are missing (sometimes I

take 2 a day).

Ann

Re: Question

-

Thats kind of funny , my Joe is on the Oxplatin/5fu/Leucovirn/Avastin

regiment and the night of and day after ALL his joints HURT , they

hurt bad enough he soaks in warm tub ( HE HATES taking bathes lol he

is a shower man) and he has me rub him down with Ben-Gay

Deb

-- In colon_cancer_support , " Joe Savage "

wrote:

> Ahh, yes. That sounds so familiar. I did that for 12 cycles.

>

> That is the standard " Folfox " regimen and it did wonders for me. I

> only wish I could have continued with it, but my " tinglies " got so

> bad I had to stop the Oxaliplatin before all of the cancer was gone.

>

> I noticed one thing, when I had the pump plugged in and it was

> dosing me with 5-FU (fluorouracil for the purist) my arthritis was

> virtually non-existant. I could walk around without any knee pain.

I

> was on the verge of asking my oncologist to put me on permanent

> chemo just to keep my knees feeling good.

>

> Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help

> the knees at all. I want my pump back.

>

> -joe-

>

>

> > > This has been bugging me for a while....Does anyone know why

> some

> > people

> > > have to return to the hospital 3 days in a row for their

> > Folfox/Avastin

> > > treatments?

> > >

> > > Glenn goes the first day (which is a Friday) and has blood

> work,

> > then they

> > > order the chemo mixed, if counts are o.k. and bring it up.

> While

> > we are

> > > waiting they start the anti-nausea/fluids and the he has a 3+

> hr

> > drip and he is

> > > sent home with the pump and his tiny bag of chemo. He does not

> > have to return

> > > to the hospital on Saturday; and on Sunday, they send out a

> Home

> > Nurse to

> > > disconnect the pump at the 46th hour.

> > >

> > > It just seems so inconvenient that people have to travel so far

> or

> > even if

> > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has

a

> > different pump

> > > or something?? Anyway, I count our blessings on this one!!

> And

> > wish so

> > > badly for those of you that have to go 3 days in a row that

you

> > didn't have to

> > > do that!!!

> > >

> > > Lots of hugs and prayers, Donelle

> > > Caregiver to Glenn

> > >

> > >

> > >

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Guest guest

That's exactly what I get, except for the addition of Avastin on day one

(separate)

All the best,

Marty

Israel News Radio - http://www.Israelnewsradio.net

Audio Blog:

http://www.israelnewsradio.net/the-marty-roberts-show.html

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Re: Question

> How it went for me with Chemo inspite of the hour and 15 minute drive

> it took me each way to Chemo.

> Day One- Anti-nausia calciam stuff for tingles then Oxy with

> luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack

> with more 5-Fu to go home with.

> Day two- unhook body pump and get more anti-nausia then 2 hour drip

> of luekvorin(sp?) then another push shot of 5-Fu and hooked up to

> body pack again to go home.

> Day three- get unhooked and port flushed.

> Don't know why, but this is how it was done to me. Just thought it

> went that way for everyone. Ingrid

>

>

>

>

>

>

>> This has been bugging me for a while....Does anyone know why some

> people

>> have to return to the hospital 3 days in a row for their

> Folfox/Avastin

>> treatments?

>>

>> Glenn goes the first day (which is a Friday) and has blood work,

> then they

>> order the chemo mixed, if counts are o.k. and bring it up. While

> we are

>> waiting they start the anti-nausea/fluids and the he has a 3+ hr

> drip and he is

>> sent home with the pump and his tiny bag of chemo. He does not

> have to return

>> to the hospital on Saturday; and on Sunday, they send out a Home

> Nurse to

>> disconnect the pump at the 46th hour.

>>

>> It just seems so inconvenient that people have to travel so far or

> even if

>> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a

> different pump

>> or something?? Anyway, I count our blessings on this one!! And

> wish so

>> badly for those of you that have to go 3 days in a row that you

> didn't have to

>> do that!!!

>>

>> Lots of hugs and prayers, Donelle

>> Caregiver to Glenn

>>

>>

>>

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Guest guest

Yea and I haven't got a straight answer and I don't think my mom really wants

to know. She had a PET scan a few months ago, and it showed nothing in liver

or lungs, they only removed on lymph node when they did the colostomy, it was

in her groin area because it was enlarged and it was positive for cancer. Im

assuming though if you have rectal cancer that is so large that it can not be

removed, that would be stage 4 but not real sure.

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Yes, I agree with you. The blood preasure is way to high. Have you

had it checked again to see if it has come down any? Chemo does some

strange things and everyone reacts differently. I guess that is why

the Onc's cannot say what is chemo and what is not. They got to

protect themselves too I guess. Ingrid

> > My mom is doing her 6th treatment this week. She gets Oxal,

Avastin,

> 5FU and

> > maybe another thing or two. Today she went in and her b/p was

212/126

> and her

> > pulse was 166. she normally has low pressure. Has anyone else

had

> this

> > problem just pop up? They said it might be the avastin but they

> aren't sure.

> >

> > Thanks

> >

> >

> >

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Have you ever came right out and asked the doctor what stage your mom

is??? Ingrid

> Oh I totally understand that, not getting a straight answer. My

mom's cancer

> was found in Nov of 04 and they have never told us the stage. She

can not

> have the tumor removed, Surgeon said her pelvic area was full and

even after

> radiation and chemo, there was no viable tissue. Her CEA when she

started was

> 39.5 and now its 3.4. I don't know what to expect and I hate that.

>

>

>

>

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