Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 -My husband gets his bloodwork on Friday. Monday morning he shows up for chemo. Comes home with a 22 hour pump. He goes back Tuesday alnd comes home with another 22 hour pump. On Wed, a nurse comes to the house to disconnect it although he has learned how to disconnect by himself including take the needle out. I guess not very many people get that far. -- In colon_cancer_support , Grandmommyandme@a... wrote: > This has been bugging me for a while....Does anyone know why some people > have to return to the hospital 3 days in a row for their Folfox/Avastin > treatments? > > Glenn goes the first day (which is a Friday) and has blood work, then they > order the chemo mixed, if counts are o.k. and bring it up. While we are > waiting they start the anti-nausea/fluids and the he has a 3+ hr drip and he is > sent home with the pump and his tiny bag of chemo. He does not have to return > to the hospital on Saturday; and on Sunday, they send out a Home Nurse to > disconnect the pump at the 46th hour. > > It just seems so inconvenient that people have to travel so far or even if > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a different pump > or something?? Anyway, I count our blessings on this one!! And wish so > badly for those of you that have to go 3 days in a row that you didn't have to > do that!!! > > Lots of hugs and prayers, Donelle > Caregiver to Glenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 -My husband gets his bloodwork on Friday. Monday morning he shows up for chemo. Comes home with a 22 hour pump. He goes back Tuesday alnd comes home with another 22 hour pump. On Wed, a nurse comes to the house to disconnect it although he has learned how to disconnect by himself including take the needle out. I guess not very many people get that far. -- In colon_cancer_support , Grandmommyandme@a... wrote: > This has been bugging me for a while....Does anyone know why some people > have to return to the hospital 3 days in a row for their Folfox/Avastin > treatments? > > Glenn goes the first day (which is a Friday) and has blood work, then they > order the chemo mixed, if counts are o.k. and bring it up. While we are > waiting they start the anti-nausea/fluids and the he has a 3+ hr drip and he is > sent home with the pump and his tiny bag of chemo. He does not have to return > to the hospital on Saturday; and on Sunday, they send out a Home Nurse to > disconnect the pump at the 46th hour. > > It just seems so inconvenient that people have to travel so far or even if > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a different pump > or something?? Anyway, I count our blessings on this one!! And wish so > badly for those of you that have to go 3 days in a row that you didn't have to > do that!!! > > Lots of hugs and prayers, Donelle > Caregiver to Glenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 -My husband gets his bloodwork on Friday. Monday morning he shows up for chemo. Comes home with a 22 hour pump. He goes back Tuesday alnd comes home with another 22 hour pump. On Wed, a nurse comes to the house to disconnect it although he has learned how to disconnect by himself including take the needle out. I guess not very many people get that far. -- In colon_cancer_support , Grandmommyandme@a... wrote: > This has been bugging me for a while....Does anyone know why some people > have to return to the hospital 3 days in a row for their Folfox/Avastin > treatments? > > Glenn goes the first day (which is a Friday) and has blood work, then they > order the chemo mixed, if counts are o.k. and bring it up. While we are > waiting they start the anti-nausea/fluids and the he has a 3+ hr drip and he is > sent home with the pump and his tiny bag of chemo. He does not have to return > to the hospital on Saturday; and on Sunday, they send out a Home Nurse to > disconnect the pump at the 46th hour. > > It just seems so inconvenient that people have to travel so far or even if > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a different pump > or something?? Anyway, I count our blessings on this one!! And wish so > badly for those of you that have to go 3 days in a row that you didn't have to > do that!!! > > Lots of hugs and prayers, Donelle > Caregiver to Glenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 How it went for me with Chemo inspite of the hour and 15 minute drive it took me each way to Chemo. Day One- Anti-nausia calciam stuff for tingles then Oxy with luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack with more 5-Fu to go home with. Day two- unhook body pump and get more anti-nausia then 2 hour drip of luekvorin(sp?) then another push shot of 5-Fu and hooked up to body pack again to go home. Day three- get unhooked and port flushed. Don't know why, but this is how it was done to me. Just thought it went that way for everyone. Ingrid > This has been bugging me for a while....Does anyone know why some people > have to return to the hospital 3 days in a row for their Folfox/Avastin > treatments? > > Glenn goes the first day (which is a Friday) and has blood work, then they > order the chemo mixed, if counts are o.k. and bring it up. While we are > waiting they start the anti-nausea/fluids and the he has a 3+ hr drip and he is > sent home with the pump and his tiny bag of chemo. He does not have to return > to the hospital on Saturday; and on Sunday, they send out a Home Nurse to > disconnect the pump at the 46th hour. > > It just seems so inconvenient that people have to travel so far or even if > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a different pump > or something?? Anyway, I count our blessings on this one!! And wish so > badly for those of you that have to go 3 days in a row that you didn't have to > do that!!! > > Lots of hugs and prayers, Donelle > Caregiver to Glenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 How it went for me with Chemo inspite of the hour and 15 minute drive it took me each way to Chemo. Day One- Anti-nausia calciam stuff for tingles then Oxy with luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack with more 5-Fu to go home with. Day two- unhook body pump and get more anti-nausia then 2 hour drip of luekvorin(sp?) then another push shot of 5-Fu and hooked up to body pack again to go home. Day three- get unhooked and port flushed. Don't know why, but this is how it was done to me. Just thought it went that way for everyone. Ingrid > This has been bugging me for a while....Does anyone know why some people > have to return to the hospital 3 days in a row for their Folfox/Avastin > treatments? > > Glenn goes the first day (which is a Friday) and has blood work, then they > order the chemo mixed, if counts are o.k. and bring it up. While we are > waiting they start the anti-nausea/fluids and the he has a 3+ hr drip and he is > sent home with the pump and his tiny bag of chemo. He does not have to return > to the hospital on Saturday; and on Sunday, they send out a Home Nurse to > disconnect the pump at the 46th hour. > > It just seems so inconvenient that people have to travel so far or even if > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a different pump > or something?? Anyway, I count our blessings on this one!! And wish so > badly for those of you that have to go 3 days in a row that you didn't have to > do that!!! > > Lots of hugs and prayers, Donelle > Caregiver to Glenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 How it went for me with Chemo inspite of the hour and 15 minute drive it took me each way to Chemo. Day One- Anti-nausia calciam stuff for tingles then Oxy with luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack with more 5-Fu to go home with. Day two- unhook body pump and get more anti-nausia then 2 hour drip of luekvorin(sp?) then another push shot of 5-Fu and hooked up to body pack again to go home. Day three- get unhooked and port flushed. Don't know why, but this is how it was done to me. Just thought it went that way for everyone. Ingrid > This has been bugging me for a while....Does anyone know why some people > have to return to the hospital 3 days in a row for their Folfox/Avastin > treatments? > > Glenn goes the first day (which is a Friday) and has blood work, then they > order the chemo mixed, if counts are o.k. and bring it up. While we are > waiting they start the anti-nausea/fluids and the he has a 3+ hr drip and he is > sent home with the pump and his tiny bag of chemo. He does not have to return > to the hospital on Saturday; and on Sunday, they send out a Home Nurse to > disconnect the pump at the 46th hour. > > It just seems so inconvenient that people have to travel so far or even if > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a different pump > or something?? Anyway, I count our blessings on this one!! And wish so > badly for those of you that have to go 3 days in a row that you didn't have to > do that!!! > > Lots of hugs and prayers, Donelle > Caregiver to Glenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 That's the way they are going to " do it " to me, also!! On 5/8/2005 4:40:08 AM, colon_cancer_support wrote: > How it went for me with Chemo inspite of the hour and 15 minute drive > it took me each way to Chemo. > Day One- Anti-nausia calciam stuff for tingles then Oxy with > luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack > with more 5-Fu to go home with. > Day two- unhook body pump and get more anti-nausia then 2 hour drip > of luekvorin(sp?) then another push shot of 5-Fu and hooked up to > body pack again to go home. > Day three- get unhooked and port flushed. > Don't know why, but this is how it was done to me. Just thought it > went that way for everyone. Ingrid > > > > > > > > This has been bugging me for a while....Does anyone know why some > people Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 That's the way they are going to " do it " to me, also!! On 5/8/2005 4:40:08 AM, colon_cancer_support wrote: > How it went for me with Chemo inspite of the hour and 15 minute drive > it took me each way to Chemo. > Day One- Anti-nausia calciam stuff for tingles then Oxy with > luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack > with more 5-Fu to go home with. > Day two- unhook body pump and get more anti-nausia then 2 hour drip > of luekvorin(sp?) then another push shot of 5-Fu and hooked up to > body pack again to go home. > Day three- get unhooked and port flushed. > Don't know why, but this is how it was done to me. Just thought it > went that way for everyone. Ingrid > > > > > > > > This has been bugging me for a while....Does anyone know why some > people Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 That's the way they are going to " do it " to me, also!! On 5/8/2005 4:40:08 AM, colon_cancer_support wrote: > How it went for me with Chemo inspite of the hour and 15 minute drive > it took me each way to Chemo. > Day One- Anti-nausia calciam stuff for tingles then Oxy with > luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack > with more 5-Fu to go home with. > Day two- unhook body pump and get more anti-nausia then 2 hour drip > of luekvorin(sp?) then another push shot of 5-Fu and hooked up to > body pack again to go home. > Day three- get unhooked and port flushed. > Don't know why, but this is how it was done to me. Just thought it > went that way for everyone. Ingrid > > > > > > > > This has been bugging me for a while....Does anyone know why some > people Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Ahh, yes. That sounds so familiar. I did that for 12 cycles. That is the standard " Folfox " regimen and it did wonders for me. I only wish I could have continued with it, but my " tinglies " got so bad I had to stop the Oxaliplatin before all of the cancer was gone. I noticed one thing, when I had the pump plugged in and it was dosing me with 5-FU (fluorouracil for the purist) my arthritis was virtually non-existant. I could walk around without any knee pain. I was on the verge of asking my oncologist to put me on permanent chemo just to keep my knees feeling good. Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help the knees at all. I want my pump back. -joe- > > This has been bugging me for a while....Does anyone know why some > people > > have to return to the hospital 3 days in a row for their > Folfox/Avastin > > treatments? > > > > Glenn goes the first day (which is a Friday) and has blood work, > then they > > order the chemo mixed, if counts are o.k. and bring it up. While > we are > > waiting they start the anti-nausea/fluids and the he has a 3+ hr > drip and he is > > sent home with the pump and his tiny bag of chemo. He does not > have to return > > to the hospital on Saturday; and on Sunday, they send out a Home > Nurse to > > disconnect the pump at the 46th hour. > > > > It just seems so inconvenient that people have to travel so far or > even if > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > different pump > > or something?? Anyway, I count our blessings on this one!! And > wish so > > badly for those of you that have to go 3 days in a row that you > didn't have to > > do that!!! > > > > Lots of hugs and prayers, Donelle > > Caregiver to Glenn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Ahh, yes. That sounds so familiar. I did that for 12 cycles. That is the standard " Folfox " regimen and it did wonders for me. I only wish I could have continued with it, but my " tinglies " got so bad I had to stop the Oxaliplatin before all of the cancer was gone. I noticed one thing, when I had the pump plugged in and it was dosing me with 5-FU (fluorouracil for the purist) my arthritis was virtually non-existant. I could walk around without any knee pain. I was on the verge of asking my oncologist to put me on permanent chemo just to keep my knees feeling good. Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help the knees at all. I want my pump back. -joe- > > This has been bugging me for a while....Does anyone know why some > people > > have to return to the hospital 3 days in a row for their > Folfox/Avastin > > treatments? > > > > Glenn goes the first day (which is a Friday) and has blood work, > then they > > order the chemo mixed, if counts are o.k. and bring it up. While > we are > > waiting they start the anti-nausea/fluids and the he has a 3+ hr > drip and he is > > sent home with the pump and his tiny bag of chemo. He does not > have to return > > to the hospital on Saturday; and on Sunday, they send out a Home > Nurse to > > disconnect the pump at the 46th hour. > > > > It just seems so inconvenient that people have to travel so far or > even if > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > different pump > > or something?? Anyway, I count our blessings on this one!! And > wish so > > badly for those of you that have to go 3 days in a row that you > didn't have to > > do that!!! > > > > Lots of hugs and prayers, Donelle > > Caregiver to Glenn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Ahh, yes. That sounds so familiar. I did that for 12 cycles. That is the standard " Folfox " regimen and it did wonders for me. I only wish I could have continued with it, but my " tinglies " got so bad I had to stop the Oxaliplatin before all of the cancer was gone. I noticed one thing, when I had the pump plugged in and it was dosing me with 5-FU (fluorouracil for the purist) my arthritis was virtually non-existant. I could walk around without any knee pain. I was on the verge of asking my oncologist to put me on permanent chemo just to keep my knees feeling good. Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help the knees at all. I want my pump back. -joe- > > This has been bugging me for a while....Does anyone know why some > people > > have to return to the hospital 3 days in a row for their > Folfox/Avastin > > treatments? > > > > Glenn goes the first day (which is a Friday) and has blood work, > then they > > order the chemo mixed, if counts are o.k. and bring it up. While > we are > > waiting they start the anti-nausea/fluids and the he has a 3+ hr > drip and he is > > sent home with the pump and his tiny bag of chemo. He does not > have to return > > to the hospital on Saturday; and on Sunday, they send out a Home > Nurse to > > disconnect the pump at the 46th hour. > > > > It just seems so inconvenient that people have to travel so far or > even if > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > different pump > > or something?? Anyway, I count our blessings on this one!! And > wish so > > badly for those of you that have to go 3 days in a row that you > didn't have to > > do that!!! > > > > Lots of hugs and prayers, Donelle > > Caregiver to Glenn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Joe You might have been getting Decadron as well. I know that is my wonder drug- makes my knees not hurt and my hips not hurt. I get some decadron via on day one of chemo, and then on day 2-4 I take decadron and kytril.. I am in pain free heaven at least for a couple days. Then Sat/sun I start to come down. I sure do hate when that happens, start walking like an old lady again.. LOL.I get along well with my pump too. Take care Cheers Jolene Re: Question Ahh, yes. That sounds so familiar. I did that for 12 cycles. That is the standard " Folfox " regimen and it did wonders for me. I only wish I could have continued with it, but my " tinglies " got so bad I had to stop the Oxaliplatin before all of the cancer was gone. I noticed one thing, when I had the pump plugged in and it was dosing me with 5-FU (fluorouracil for the purist) my arthritis was virtually non-existant. I could walk around without any knee pain. I was on the verge of asking my oncologist to put me on permanent chemo just to keep my knees feeling good. Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help the knees at all. I want my pump back. -joe- > > This has been bugging me for a while....Does anyone know why some > people > > have to return to the hospital 3 days in a row for their > Folfox/Avastin > > treatments? > > > > Glenn goes the first day (which is a Friday) and has blood work, > then they > > order the chemo mixed, if counts are o.k. and bring it up. While > we are > > waiting they start the anti-nausea/fluids and the he has a 3+ hr > drip and he is > > sent home with the pump and his tiny bag of chemo. He does not > have to return > > to the hospital on Saturday; and on Sunday, they send out a Home > Nurse to > > disconnect the pump at the 46th hour. > > > > It just seems so inconvenient that people have to travel so far or > even if > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > different pump > > or something?? Anyway, I count our blessings on this one!! And > wish so > > badly for those of you that have to go 3 days in a row that you > didn't have to > > do that!!! > > > > Lots of hugs and prayers, Donelle > > Caregiver to Glenn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 You're probably right. I was receiving Decadron and I never associated the dose of steroids with the improvement in my arthritis. All this time I was giving 5-FU the credit. You stick around, you learn. -joe- > > > This has been bugging me for a while....Does anyone know why > some > > people > > > have to return to the hospital 3 days in a row for their > > Folfox/Avastin > > > treatments? > > > > > > Glenn goes the first day (which is a Friday) and has blood > work, > > then they > > > order the chemo mixed, if counts are o.k. and bring it up. > While > > we are > > > waiting they start the anti-nausea/fluids and the he has a 3+ > hr > > drip and he is > > > sent home with the pump and his tiny bag of chemo. He does not > > have to return > > > to the hospital on Saturday; and on Sunday, they send out a > Home > > Nurse to > > > disconnect the pump at the 46th hour. > > > > > > It just seems so inconvenient that people have to travel so far > or > > even if > > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > > different pump > > > or something?? Anyway, I count our blessings on this one!! > And > > wish so > > > badly for those of you that have to go 3 days in a row that you > > didn't have to > > > do that!!! > > > > > > Lots of hugs and prayers, Donelle > > > Caregiver to Glenn > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 That is the truth.. If you go to the File section on the group site, and Look for the Our Story file and Jolene's Story It will give a run down of all the good stuff that Decadron does during chemo. I call it my feel good drug. I am looking forward to getting on it this week, walking around like and old lady again and I don't like it. Shame that it is a steroid. Jolene .. Re: Question You're probably right. I was receiving Decadron and I never associated the dose of steroids with the improvement in my arthritis. All this time I was giving 5-FU the credit. You stick around, you learn. -joe- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 - Thats kind of funny , my Joe is on the Oxplatin/5fu/Leucovirn/Avastin regiment and the night of and day after ALL his joints HURT , they hurt bad enough he soaks in warm tub ( HE HATES taking bathes lol he is a shower man) and he has me rub him down with Ben-Gay Deb -- In colon_cancer_support , " Joe Savage " wrote: > Ahh, yes. That sounds so familiar. I did that for 12 cycles. > > That is the standard " Folfox " regimen and it did wonders for me. I > only wish I could have continued with it, but my " tinglies " got so > bad I had to stop the Oxaliplatin before all of the cancer was gone. > > I noticed one thing, when I had the pump plugged in and it was > dosing me with 5-FU (fluorouracil for the purist) my arthritis was > virtually non-existant. I could walk around without any knee pain. I > was on the verge of asking my oncologist to put me on permanent > chemo just to keep my knees feeling good. > > Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help > the knees at all. I want my pump back. > > -joe- > > > > > This has been bugging me for a while....Does anyone know why > some > > people > > > have to return to the hospital 3 days in a row for their > > Folfox/Avastin > > > treatments? > > > > > > Glenn goes the first day (which is a Friday) and has blood > work, > > then they > > > order the chemo mixed, if counts are o.k. and bring it up. > While > > we are > > > waiting they start the anti-nausea/fluids and the he has a 3+ > hr > > drip and he is > > > sent home with the pump and his tiny bag of chemo. He does not > > have to return > > > to the hospital on Saturday; and on Sunday, they send out a > Home > > Nurse to > > > disconnect the pump at the 46th hour. > > > > > > It just seems so inconvenient that people have to travel so far > or > > even if > > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > > different pump > > > or something?? Anyway, I count our blessings on this one!! > And > > wish so > > > badly for those of you that have to go 3 days in a row that you > > didn't have to > > > do that!!! > > > > > > Lots of hugs and prayers, Donelle > > > Caregiver to Glenn > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 It is the Decadron that takes the joint pain away, not the chemo meds. Maybe they should have given joe the Decadron as well. Jolene Re: Question - Thats kind of funny , my Joe is on the Oxplatin/5fu/Leucovirn/Avastin regiment and the night of and day after ALL his joints HURT , they hurt bad enough he soaks in warm tub ( HE HATES taking bathes lol he is a shower man) and he has me rub him down with Ben-Gay Deb -- In colon_cancer_support , " Joe Savage " wrote: > Ahh, yes. That sounds so familiar. I did that for 12 cycles. > > That is the standard " Folfox " regimen and it did wonders for me. I > only wish I could have continued with it, but my " tinglies " got so > bad I had to stop the Oxaliplatin before all of the cancer was gone. > > I noticed one thing, when I had the pump plugged in and it was > dosing me with 5-FU (fluorouracil for the purist) my arthritis was > virtually non-existant. I could walk around without any knee pain. I > was on the verge of asking my oncologist to put me on permanent > chemo just to keep my knees feeling good. > > Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help > the knees at all. I want my pump back. > > -joe- > > > > > This has been bugging me for a while....Does anyone know why > some > > people > > > have to return to the hospital 3 days in a row for their > > Folfox/Avastin > > > treatments? > > > > > > Glenn goes the first day (which is a Friday) and has blood > work, > > then they > > > order the chemo mixed, if counts are o.k. and bring it up. > While > > we are > > > waiting they start the anti-nausea/fluids and the he has a 3+ > hr > > drip and he is > > > sent home with the pump and his tiny bag of chemo. He does not > > have to return > > > to the hospital on Saturday; and on Sunday, they send out a > Home > > Nurse to > > > disconnect the pump at the 46th hour. > > > > > > It just seems so inconvenient that people have to travel so far > or > > even if > > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > > different pump > > > or something?? Anyway, I count our blessings on this one!! > And > > wish so > > > badly for those of you that have to go 3 days in a row that you > > didn't have to > > > do that!!! > > > > > > Lots of hugs and prayers, Donelle > > > Caregiver to Glenn > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 My husband usually took a pain pill the night of his first treatment (we blamed it on the Oxilaplatin). He also would get in the whirlpool tub and said it really helped (he's a shower man too). In fact, he has taken more baths during the treatments than in the 28 years we have been married. I don't really remember him ever taking a bath til now. I don't know what it is buy my boys won't take baths either. They don't know what they are missing (sometimes I take 2 a day). Ann Re: Question - Thats kind of funny , my Joe is on the Oxplatin/5fu/Leucovirn/Avastin regiment and the night of and day after ALL his joints HURT , they hurt bad enough he soaks in warm tub ( HE HATES taking bathes lol he is a shower man) and he has me rub him down with Ben-Gay Deb -- In colon_cancer_support , " Joe Savage " wrote: > Ahh, yes. That sounds so familiar. I did that for 12 cycles. > > That is the standard " Folfox " regimen and it did wonders for me. I > only wish I could have continued with it, but my " tinglies " got so > bad I had to stop the Oxaliplatin before all of the cancer was gone. > > I noticed one thing, when I had the pump plugged in and it was > dosing me with 5-FU (fluorouracil for the purist) my arthritis was > virtually non-existant. I could walk around without any knee pain. I > was on the verge of asking my oncologist to put me on permanent > chemo just to keep my knees feeling good. > > Now I'm taking Xeloda, a tablet form of 5-FU, and that doesn't help > the knees at all. I want my pump back. > > -joe- > > > > > This has been bugging me for a while....Does anyone know why > some > > people > > > have to return to the hospital 3 days in a row for their > > Folfox/Avastin > > > treatments? > > > > > > Glenn goes the first day (which is a Friday) and has blood > work, > > then they > > > order the chemo mixed, if counts are o.k. and bring it up. > While > > we are > > > waiting they start the anti-nausea/fluids and the he has a 3+ > hr > > drip and he is > > > sent home with the pump and his tiny bag of chemo. He does not > > have to return > > > to the hospital on Saturday; and on Sunday, they send out a > Home > > Nurse to > > > disconnect the pump at the 46th hour. > > > > > > It just seems so inconvenient that people have to travel so far > or > > even if > > > it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > > different pump > > > or something?? Anyway, I count our blessings on this one!! > And > > wish so > > > badly for those of you that have to go 3 days in a row that you > > didn't have to > > > do that!!! > > > > > > Lots of hugs and prayers, Donelle > > > Caregiver to Glenn > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2005 Report Share Posted May 12, 2005 That's exactly what I get, except for the addition of Avastin on day one (separate) All the best, Marty Israel News Radio - http://www.Israelnewsradio.net Audio Blog: http://www.israelnewsradio.net/the-marty-roberts-show.html Podcast: http://www.israelnewsradio.net/podcast.html Re: Question > How it went for me with Chemo inspite of the hour and 15 minute drive > it took me each way to Chemo. > Day One- Anti-nausia calciam stuff for tingles then Oxy with > luekvorin(sp?) then push shot of 5-Fu then hooked up to body pack > with more 5-Fu to go home with. > Day two- unhook body pump and get more anti-nausia then 2 hour drip > of luekvorin(sp?) then another push shot of 5-Fu and hooked up to > body pack again to go home. > Day three- get unhooked and port flushed. > Don't know why, but this is how it was done to me. Just thought it > went that way for everyone. Ingrid > > > > > > >> This has been bugging me for a while....Does anyone know why some > people >> have to return to the hospital 3 days in a row for their > Folfox/Avastin >> treatments? >> >> Glenn goes the first day (which is a Friday) and has blood work, > then they >> order the chemo mixed, if counts are o.k. and bring it up. While > we are >> waiting they start the anti-nausea/fluids and the he has a 3+ hr > drip and he is >> sent home with the pump and his tiny bag of chemo. He does not > have to return >> to the hospital on Saturday; and on Sunday, they send out a Home > Nurse to >> disconnect the pump at the 46th hour. >> >> It just seems so inconvenient that people have to travel so far or > even if >> it's close, go to the hosp. 3 days in a row. Maybe Glenn has a > different pump >> or something?? Anyway, I count our blessings on this one!! And > wish so >> badly for those of you that have to go 3 days in a row that you > didn't have to >> do that!!! >> >> Lots of hugs and prayers, Donelle >> Caregiver to Glenn >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Yea and I haven't got a straight answer and I don't think my mom really wants to know. She had a PET scan a few months ago, and it showed nothing in liver or lungs, they only removed on lymph node when they did the colostomy, it was in her groin area because it was enlarged and it was positive for cancer. Im assuming though if you have rectal cancer that is so large that it can not be removed, that would be stage 4 but not real sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Thank you, Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Thank you, Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Thank you, Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Yes, I agree with you. The blood preasure is way to high. Have you had it checked again to see if it has come down any? Chemo does some strange things and everyone reacts differently. I guess that is why the Onc's cannot say what is chemo and what is not. They got to protect themselves too I guess. Ingrid > > My mom is doing her 6th treatment this week. She gets Oxal, Avastin, > 5FU and > > maybe another thing or two. Today she went in and her b/p was 212/126 > and her > > pulse was 166. she normally has low pressure. Has anyone else had > this > > problem just pop up? They said it might be the avastin but they > aren't sure. > > > > Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Have you ever came right out and asked the doctor what stage your mom is??? Ingrid > Oh I totally understand that, not getting a straight answer. My mom's cancer > was found in Nov of 04 and they have never told us the stage. She can not > have the tumor removed, Surgeon said her pelvic area was full and even after > radiation and chemo, there was no viable tissue. Her CEA when she started was > 39.5 and now its 3.4. I don't know what to expect and I hate that. > > > > Quote Link to comment Share on other sites More sharing options...
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