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Chonette:

I think you have it right as to being treated with Fludarabine as it

doesn't seem to work. But when I had RF in 05, my Doc had not done

the tests to know about the 53 deletion. I had what I think was

amazing results to the RF. I was 300K plus at the beginning and I

think by the second treatment I was in the normal range. But those

results were short lived. Within less than a year my counts were

rising again.

That is probably due to the p53 deletion. But on the bright side,

That treatment ended 3 years ago and I could be a year or even more

away from needing additional treatment.

Chonette, I am really pulling for you to get through these next few

months. You and are two of my heroes. Two speciasl guys like

you will make it through this little blip of time. I'll be praying.

Dave

>

> I have not gone deep into this so I do not really know but I

thought if you have p53 you are not treated with fluradabine, in fact

the protocol I am following HDMP and Campath was designed for people

with p53.

> regards

> Chonette

>

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Dave, Thanks for this, no one has ever said that to me in public, it got my spirits up, but I make sure it does not get up my head.

regards

Chonette

"Chonette, I am really pulling for you to get through these next few months. You and are two of my heroes. Two speciasl guys like you will make it through this little blip of time. I'll be praying.Dave"

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Vitamin D can help prevent a lot of issues. Normally you would take it daily not

every week. Along with tablet or capsules, cod liver oil is a good source plus

will help the heart.

2 weeks is not long enough to go off testosterone to let your HPTA system kick

back in. You need 6-8 weeks and then LH and FSH testing.

Testosterone injections do spike your levels but most doctors still prescribe to

the old shots every 2-3 weeks. They prescribe huge shots that spike your levels

and then they drop below where you started after 2-3 weeks. Smaller shots at

least every week keep your levels up without too drastic of a swing.

An E2 check would be helpful.

________________________________

From: ph Noonan <jgnoonan@...>

Sent: Friday, January 16, 2009 2:28:37 PM

Subject: Tests

So in April I went to my PCP for my annual physical and complained of

exhaustion. He ordered yearly blood work and added Total Testosterone

to the tests, which came back at 170. He started me on Androgel and

when the minimum dose didn't work, he switched me to testim. All the

while, I kept asking why this was happening. I am a 47 yo and the

problems actually started a year earlier but I'm kind of slow about

going to the dr. I was 170lbs when the problem started and am now

208lbs. I asked him to do an MRI for a pituitary tumor, and he

grudgingly agreed but did not order it with the contrast, which of

course makes it totally useless. I finally contacted and

endocronologist through my medical plan and went to see her on Christmas

Eve. I had developed a rash from the testim so she stopped that and had

me wait 2 weeks and then go for a LOT of blood work. She did a full

lipid and metabolic panel. She did full testosterone, LH, FSH, the

whole 9 yards. She also did a Vitamin D and a CBC. In any case, I got

the results yesterday. I don't have all the exact results but basically

my T is very low and I was also very low on Vitamin D (12 and minimum sb

50). My cholesterol and triglycerides were the usual mess and for the

forth time in a row, my glucose was over the top of the range at 105.

She started me on vitamin D once a week and 8 pumps a day of androgel,

which is like taking a bath in the stuff. She says she uses shots as a

last resort because you get a spike of T and then a rapid drop off. The

nurse called me with the results (only the negative ones) so I don't

know what the exact readings are. The one thing they did NOT check was

estrogen levels, which I am going to ask about. Without being too

graphic, there is a certain body part that seems to be shrinking and

doesn't seem to want to do anything any more. It's usual automatic

night time and early morning activity disappeared about a year ago and

has not returned. I guess my question is about the Vitamin D

deficiency. Could this be causing the problem. I really like to know

why things happen so I keep pressing the doctors for answers and so far,

no luck.

jgn

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On Fri, 16 Jan 2009 15:28:37 -0500, you wrote:

>Without being too

>graphic, there is a certain body part that seems to be shrinking and

>doesn't seem to want to do anything any more. It's usual automatic

>night time and early morning activity disappeared about a year ago and

>has not returned. I guess my question is about the Vitamin D

>deficiency. Could this be causing the problem. I really like to know

>why things happen so I keep pressing the doctors for answers and so far,

>no luck.

>

>jgn

That's far less to do with D vitamins and much more to do with low T

and high E2. The huge weight gain you've had suggests some E2 fat and

bloating effects.

I've been dealing with TRT 6 years now and find whenever I have ED

issues it's always E2 and responds well to arimidex.

With both low T and low D you should probably have a bone density

test. Low T leads to bone loss and low D will speed that also.

Good TRT will help some on your lipid profile too. Sugar and fast

carbs are the main culprits in triglyceride problems. If you go to

whole grains and limit sugar you'll find they'll come down very fast

(with some weight loss too.) I cut mine more than 50% in just a few

weeks of watching sugar. ANd lost about 15 pounds too.

As mentioned you can lessen the spike from shots some by lowering dose

and increasing frequency.

I really urge an E2 test. Anything above 40 should be aggressively

controlled, as it will lead to ED issues and rob you of the energy,

focus and clarity of the TRT.

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>

> >Without being too

> >graphic, there is a certain body part that seems to be shrinking and

> >doesn't seem to want to do anything any more. It's usual automatic

> >night time and early morning activity disappeared about a year ago and

> >has not returned. I guess my question is about the Vitamin D

> >deficiency. Could this be causing the problem. I really like to know

> >why things happen so I keep pressing the doctors for answers and so

far,

> >no luck.

> >

> >jgn

>

>

> That's far less to do with D vitamins and much more to do with low T

> and high E2. The huge weight gain you've had suggests some E2 fat and

> bloating effects.

>

> I've been dealing with TRT 6 years now and find whenever I have ED

> issues it's always E2 and responds well to arimidex.

>

> With both low T and low D you should probably have a bone density

> test. Low T leads to bone loss and low D will speed that also.

>

> Good TRT will help some on your lipid profile too. Sugar and fast

> carbs are the main culprits in triglyceride problems. If you go to

> whole grains and limit sugar you'll find they'll come down very fast

> (with some weight loss too.) I cut mine more than 50% in just a few

> weeks of watching sugar. ANd lost about 15 pounds too.

>

> As mentioned you can lessen the spike from shots some by lowering dose

> and increasing frequency.

>

> I really urge an E2 test. Anything above 40 should be aggressively

> controlled, as it will lead to ED issues and rob you of the energy,

> focus and clarity of the TRT.

>

Thanks for the info. I am on the McDougall diet plan for 3 years

which is a very low fat vegan diet. I do not add suger to anything so

the weight gain totally took me by surprise. I was running three

times a week and lifting and was in great shape and then all of a

sudden I started having energy problems. I haven't gone to the gym in

months because I am just too tired. I have had a long history of

cholesterol/triglyceride problems that are genetic. I was was on

lipitor for a long time but have been off it since going on McDougall.

I will ask my dr. to order an E2 test when I go back in Feb.

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The CT scan is for my abdomen, I am seeing a different doctor about my ankle it is looking a little better but still purple in some spots yellow in other and swelling. It has been over ten days now so I am concerned. The colonoscopy is just a precaution my father died of colon cancer at age 50.~annamarie"Life isn't about how to survive the storm, but how to dance in the rain"

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You are killing me with the farts lmao~annamarie"Life isn't about how to survive the storm, but how to dance in the rain"

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How is the Real Time urine lab test? Does Direct lab. offer the same any

cheaper?  I can't get a person on the phone. I'm considering.

Thanks, Kathy

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The only lab that does the test is RealTime. They are moving to a new facility

and will be in by September 15. The lab is dropping its prices. If you have

problems reaching someone at the lab, let me know.

[] Tests

How is the Real Time urine lab test? Does Direct lab. offer the same any

cheaper? I can't get a person on the phone. I'm considering.

Thanks, Kathy

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I'd interested in have these tests done as well.

--- In , " Jack Thrasher, Ph.D. " <toxicologist1@...>

wrote:

>

> The only lab that does the test is RealTime. They are moving to a new

facility and will be in by September 15. The lab is dropping its prices. If

you have problems reaching someone at the lab, let me know.

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Below is the web site of RealTime Labs

http://www.realtimelab.com/

Jack-Dwayne: Thrasher, Ph.D.

Toxicologist/Immunotoxicologist/Fetaltoxicologist

www.drthrasher.org

toxicologist1@...

Off: 916-745-4703

Cell: 575-937-1150

L. Crawley, M.ED., LADC

Trauma Specialist

sandracrawley@...

916-745-4703 - Off

775-309-3994 - Cell

This message and any attachments forwarded with it is to be considered

privileged and confidential. The forwarding or redistribution of this message

(and any attachments) without my prior written consent is strictly prohibited

and may violate privacy laws. Once the intended purpose of this message has been

served, please destroy the original message contents. If you have received this

message in error, please reply immediately to advise the sender of the

miscommunication and then delete the message and any copies you have printed.

Thank you in advance for your compliance.

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This is absolutely wonderful Audrey and what a very helpful GP

you have. I have found that doctors appear to be much more helpful if they have

a patient who is quite knowledgeable and asks for the right tests for the right

reasons. Long may this continue, and I hope to have more and more reports from

you that you are regaining your full health, and that one day, you will no

longer need the services of TPA. Again, don't rush things. I did have

notification from Genova that they had received your saliva test, so hope the

results help you to understand what has caused your problems so far.

Luv - Sheila

Dear Sheila

Well, I seem to be hitting it off with my new lady GP as I rang her this

morning, thanked her for prescribing cortisone and that it has helped but that

I am going to see Dr M in three weeks and need some bloods done. She was most

kind and has arranged for Ferritin, B12, D3, Mag, Folate, Copper & Zinc and

I should have these before I go to London. I have sent off the Genova

DHEA/Adrenal saliva test and also I am now using the progesterone cream.

Thanks once again for all your help and it is a better day again today, not

brillient but better.

Love

Audrey

No virus

found in this incoming message.

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18:40:00

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