Guest guest Report post Posted May 17, 1999 In a message dated 5/17/99 4:01:33 PM Central Daylight Time, mimianne@... writes: << has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the way to being tested for lyme disease? if you have been tested, were you negative? positive? were you positive or negative for LD? >> I actually just tested positive on a new blood culture test for rheumatoid arthritis. This same test also looks for MS and Lyme and is from GenSys Labs. My doctor says he will use the same treatment as for the Lyme as this is a bacterial infection that denotes this particular RA. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 1999 Hi , I have never tested positive for anything other than Lyme, and no longer test positive for that. I give no credence to any of the lab work I have had. I just know I got very sick after removing a tick from my scalp. I wish you the best with the LLMD and the RA appointments, keep us posted on how you are doing, Best to you, Marta - >From: mimianne@... > >has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the way to >being tested for lyme disease? if you have been tested, were you negative? >positive? were you positive or negative for LD? > >i test positive for all 3. it has been a real problem for my drs. they just >want to pick one and say, i have that ... so far they pick RA. my last dr. >finally picked sjogrens and LD so have made appointm. w/RA and LLMD .. I HOPE! > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 1999 I not only was tested numerous times (all negative) but the doctor was willing to diagnose me with sero-negative R.A. but not sero-negative Lyme. The next ten doctors I went to said I didn't have R.A. but they didn't know what was wrong. Now, I've tested positive for Babesia and Tulerimia but not Lyme. I was treated for several years for RA to no avail. The doctor took X-Rays and said all the high powered meds must be working since my joints weren't crippled. They still aren't and I'm not on those awful drugs anymore but I still can barely walk. On Mon, 17 May 1999 17:01:28 -0400 mimianne@... writes: >From: mimianne@... > >has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the >way to >being tested for lyme disease? if you have been tested, were you >negative? >positive? were you positive or negative for LD? > >i test positive for all 3. it has been a real problem for my drs. >they just >want to pick one and say, i have that ... so far they pick RA. my >last dr. >finally picked sjogrens and LD so have made appointm. w/RA and LLMD .. >I HOPE! >MimiAnne's Specialty Coffee > (540) 980-6464 > 93 W. Main Street > Pulaski, VA 24301 > > >------------------------------------------------------------------------ >ONElist: where real people with real interests get connected. > >Join a new list today! >------------------------------------------------------------------------ >Please send privately messages unrelated to lyme. >/archives.cgi/ >/archives.cgi/Lyme-Docs >Email: -subscribeonelist >You may substitute " unsubscribe " , " digest " , or " normal " for >the word " subscribe " ( " normal " is the opposite of " digest " ) > ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 18, 1999 wow. you sound like a friend of mine. she has NEVER received a diagnosis for anything but has classic RA symptoms. she is in really bad shape due to steriods. she is still on prednisone, only thing that allows her to function. what are Babesia and Tulerimia. are they autoimmune diseases? i can't walk if i don't take ibupropen 800mg x 3. i tried celebrex, did not help. my fingers are like vienna sausages even w/the med. i think i must have permanent joint damage in wrists, hands, and shoulders. my shoulder crack and fingers are bumpy looking. I HATE THIS #$%@^ *^ & ^$%. >From: " J. Swilley " <ljswilley@...> > >I not only was tested numerous times (all negative) but the doctor was >willing to diagnose me with sero-negative R.A. but not sero-negative >Lyme. The next ten doctors I went to said I didn't have R.A. but they >didn't know what was wrong. Now, I've tested positive for Babesia and >Tulerimia but not Lyme. I was treated for several years for RA to no >avail. The doctor took X-Rays and said all the high powered meds must be >working since my joints weren't crippled. They still aren't and I'm not >on those awful drugs anymore but I still can barely walk. > > > > >On Mon, 17 May 1999 17:01:28 -0400 mimianne@... writes: >>From: mimianne@... >> >>has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the >>way to >>being tested for lyme disease? if you have been tested, were you >>negative? >>positive? were you positive or negative for LD? >> >>i test positive for all 3. it has been a real problem for my drs. >>they just >>want to pick one and say, i have that ... so far they pick RA. my >>last dr. >>finally picked sjogrens and LD so have made appointm. w/RA and LLMD .. >>I HOPE! >>MimiAnne's Specialty Coffee >> (540) 980-6464 >> 93 W. Main Street >> Pulaski, VA 24301 >> >> >>------------------------------------------------------------------------ >>ONElist: where real people with real interests get connected. >> >>Join a new list today! >>------------------------------------------------------------------------ >>Please send privately messages unrelated to lyme. >>/archives.cgi/ >>/archives.cgi/Lyme-Docs >>Email: -subscribeonelist >>You may substitute " unsubscribe " , " digest " , or " normal " for >>the word " subscribe " ( " normal " is the opposite of " digest " ) >> > >___________________________________________________________________ >You don't need to buy Internet access to use free Internet e-mail. >Get completely free e-mail from Juno at http://www.juno.com/getjuno.html >or call Juno at (800) 654-JUNO [654-5866] > >------------------------------------------------------------------------ >Having difficulty getting " in synch " with list members? > >Try ONElist's Shared Calendar to organize events, meetings and more! >------------------------------------------------------------------------ >Please send privately messages unrelated to lyme. >/archives.cgi/ >/archives.cgi/Lyme-Docs >Email: -subscribeonelist >You may substitute " unsubscribe " , " digest " , or " normal " for >the word " subscribe " ( " normal " is the opposite of " digest " ) > > MimiAnne's Specialty Coffee (540) 980-6464 93 W. Main Street Pulaski, VA 24301 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 18, 1999 Hi , Babesia and Tuleremia are other tick-borne diseases, there are even more other than Lyme, Ehrlichiosis, and Rocky Mountain Fever too. Many of us are now finding out that we were/are coinfected with other diseases, mostly Babesia and Ehrlichiosis. Some even think that is why Lyme is chronic in some people. It is hard to believe that a tick can carry and infect us with more than one disease at a time, but it is happening. Best to you, Marta - >From: mimianne@... > >wow. you sound like a friend of mine. she has NEVER received a diagnosis >for anything but has classic RA symptoms. she is in really bad shape due to >steriods. she is still on prednisone, only thing that allows her to >function. what are Babesia and Tulerimia. are they autoimmune diseases? > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 24, 1999 --- FIG4159@... wrote: > From: FIG4159@... > > Although I really like and have confidence in my > LLMd, I think she > over-tests. I don't have insurance, so it's all out > of pocket. I have an > appointment Friday and I just can't afford for her > to run $500 worth of > (non-Lyme) blood work AGAIN. I understand there are > certain tests that > absolutely NEED to be done (ie: liver enzymes), but > I don't know what they > are. Can someone help? What tests do most LLMd's > do monthly? Thanks! > in SW Florida > - My LLD does a CBCwith Differential, a SMAC or whatever they are calling it these days. (SMAC,SMA,CHEM 20)I have heard them all. Also does the liver profile. He does this once a month during IV therapy and when I was on the Amoxicillin/Probenecid he checked those levels at one week and then like once a month after that. L (MI) > --------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 5, 2000 In a message dated 10/5/00 8:20:08 PM Central Daylight Time, chestnutt@... writes: << there is a book out called eating for your blood type >> I am type O - supposedly a red meat fiend, but I am actually a vegan. I never liked meat, even as a child. I love tofu, tempeh, beans, nuts and other sources of protein, though. Tracey Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 13, 2000 i am also an o- vegan. funny raen >From: TFreyre@... >Reply-candidiasisegroups >candidiasisegroups >Subject: Re: tests >Date: Thu, 5 Oct 2000 22:43:39 EDT > >In a message dated 10/5/00 8:20:08 PM Central Daylight Time, >chestnutt@... writes: > ><< there is a book out called eating for your blood type >> >I am type O - supposedly a red meat fiend, but I am actually a vegan. I >never liked meat, even as a child. I love tofu, tempeh, beans, nuts and >other sources of protein, though. > > Tracey > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 2, 2001 Dale..its a test specific for PBC. Jerry Hello my name is Dale Barnett, I may have PBC? One test I had was Pyruvate Dehydrogenase IgG ABB,it was 122 Does anyone know what this test means? Dale Barnett Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 2, 2001 Dale ....I`m sorry for the other note being so short but I really don`t know what the numbers mean. Pyruvate dehydrogenase is an enzyme produced and used as a catalyst in metabolization. It has been found to be an antigen specific to AMAs in people who have PBC as opposed to other liver diseases and as such is used in diagnoses. That`s about all I know and I`m not real sure about that, perhaps some PBCers know. Jerry Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2002 Dear Joe, There are many ways to test for cancer. Different cancers often require different tests. When you go to the doctor and have certain complaints, he may order bloodwork , x-rays or special tests like cat scans, colonoscopys, ultrasounds or MRIs. The bloodwork may also indicate a need for more specialized bloodwork. These types of tests are often looking for antigens for specific cancers. Theseall need to be ordered by an M.D. or a D.O.. I hope I answered your question enough. Sincerely, Lexi Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 26, 2002 Joe, The Antimalignin Antibody in Serum (AMAS) test is non-invasive with a high level of accuracy. The test can be ordered from Onocolab Inc. 1 800 9CA TEST or 617-536-0850. In Britan 01- 486 -0923. Rand " ph T. " <joe039@...> wrote: Could someone who has the knowledge on the various tests that are used to find cancer, tell us what they are and what the normal limits are and what they are looking for etc. I see people refer to a certain test but I have no ideal what it is. I am sure it would help more than just me. Joe __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2002 In a message dated 2/1/02 12:08:11 PM Mountain Standard Time, suzynakauchi@... writes: Recently his counsellor suggested that start Prozac again, since the symptoms started after he stopped. Dumbass doctor!!! No, he shouldn't START prozac again. See if there is a test to measure dopamine. From what I understand, these tremors, twitches, etc. come from the disruption in dopamine caused by excess serotonin. Check Ann 's book for a more medical explanation. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2002 In a message dated 2/1/02 2:50:26 PM Mountain Standard Time, stinky72001@... writes: I'm in california so will probably end up in a california prison - don't know what is gonna happen. I think I have a couple more free years before they (irs) start harrassing me. of course I could always just disappear. File bankruptcy and get rid of your debt. You can do this is the assessed amount is 3 years old. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2002 SHEESH! Suzy - I can tell that you and both know better than to listen to that counsellor! Prozac is what started this tragedy in the first place. How could that counsellor even suggest that? you know, I was wondering. Has talked to you about what it is like to actually be in prison? how do they treat him? are the other inmates mean and nasty? are the guards terrible? just wondering because I may end up in prison (irs related)and just trying to find out what the reality is. I'm in california so will probably end up in a california prison - don't know what is gonna happen. I think I have a couple more free years before they (irs) start harrassing me. of course I could always just disappear. I have also heard that the drinking water in many prisons is causing health problems. it's the fluoride in the water. doubt that they have anything like filtered water or bottled water for the inmates. thanks, /stinky > In a message dated 2/1/02 12:08:11 PM Mountain Standard Time, > suzynakauchi@h... writes: > > > > Recently > > his counsellor suggested that start Prozac again, since the symptoms > > started after he stopped. > > > > Dumbass doctor!!! No, he shouldn't START prozac again. See if there is a > > test to measure dopamine. From what I understand, these tremors, twitches, > > etc. come from the disruption in dopamine caused by excess serotonin. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2002 Thank you for the lead. Suzy >From: glitterari@... >Reply-SSRI medications >SSRI medications >Subject: Re: Tests >Date: Fri, 1 Feb 2002 16:19:49 EST > >In a message dated 2/1/02 12:08:11 PM Mountain Standard Time, >suzynakauchi@... writes: > > > > Recently > > his counsellor suggested that start Prozac again, since the >symptoms > > started after he stopped. > > > > Dumbass doctor!!! No, he shouldn't START prozac again. See if there is >a > > test to measure dopamine. From what I understand, these tremors, >twitches, > > etc. come from the disruption in dopamine caused by excess serotonin. > > > > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 18, 2002 I do know that I have read that different antibioitics are more effective for some types of mycos and not as effective for others. At 05:16 AM 2/18/2002 +0000, you wrote: >There seems to be some controversy regarding whether or not all the >mycoplasma tests are needed, since the treatment is the same. I need some >input if these are really necessary, because I know most labs don't have >sensitive enough equipment, and imm. in California wants 1300.00 for the >complete panel of tests, which my insurance co. would not pay for. I have >heard you should have these specific tests, but what if its not possible? >Do they treat all the mycoplasmas with antibiotics? I " m just trying to >figure out what tests I really must have.Thanks for any info. if anyone >knows about this. -Diane > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 22, 2002 Testosterone free and total Estradiol / Estrogen Cholesterol PSA if you have not had one recently (as a baseline) Bone Density if you have not had one (again as a baseline) You should obviously be on your treatment a few weeks before returning for more tests. I would go at least quarterly thereafter. Regards, K4 > I will be going back to the doctor soon. > What test should I ask for as far as my T levels are concerned. > Also when should I go. > > I'm taking 100mg every 5 days > > Also what is aggressive dosing ? > > I'm 6'7 " 290 lift weights and play softball alot. Also ride a > mountain bike 3-4 times a week. my body fat is 26%. > > I'm 37 I also don't want to feel like I'm juicing. > > Thanks Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 Lynne; The primary test is the candida-antibody assay. It is a blood test. tests HI Everyone! Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. Thanks. Lynne _____________________________________________________________ Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 Now, is that the one that gives the IgG that I keep reading about? Lynne >The primary test is the candida-antibody assay. It is a blood test. > tests > > > HI Everyone! > > Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. > > So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. > > I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. > > Thanks. > > Lynne > > _____________________________________________________________ > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 LYNNE, YOU NEED TO TELL THEM TO DO A IGA BLOOD TEXT. GO TO HEALTH.COM BUG tests HI Everyone! Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. Thanks. Lynne _____________________________________________________________ Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 yes it is the IgG TEST tests > > > HI Everyone! > > Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. > > So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. > > I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. > > Thanks. > > Lynne > > _____________________________________________________________ > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 YES LYNN IT IS IgG TEST. LOOK ON HEALTH.COM BUG tests HI Everyone! Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. Thanks. Lynne _____________________________________________________________ Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 Thanks, I will. Lynne > > > > > Now, is that the one that gives the IgG that I keep reading about? > > Lynne > > > > > >The primary test is the candida-antibody assay. It is a blood test. > > tests > > > > > > HI Everyone! > > > > Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. > > > > So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. > > > > I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. > > > > Thanks. > > > > Lynne > > > > _____________________________________________________________ > > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2002 No, that would be through the food allergy test. tests > > > HI Everyone! > > Big question: I am going to my FOURTH " specialist " this Friday and this time I am going armed with as much info as possible so he can't give me the " it's all in your head " wrap. I want TESTS and I mean besides the culture that half the time shows yeast and half the time doesn't. > > So, I need opinions in which tests to insist upon. Keep in ming he is an M.D. (gyn) specializing in infectious disease. > > I'm also thinking that I may have vulvadynia also. I don't know if he knows anything about that but I'm not leaving his office with nothing again. > > Thanks. > > Lynne > > _____________________________________________________________ > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice, profiles of folks who are making a difference and ways you can make a difference too! Visit them at http://www.planet-save.com/stonyfield.htm > > Quote Share this post Link to post Share on other sites
