Tests

[Guest guest]

Lynn,

sorry for the earlier post. Did further research and found this for you.

Standard Candida antibody analyses are both sensitive and specific with

the following benefits:

a.. Elevated IgM levels suggest active or recent infection.

b.. Elevated IgG levels suggest a past infection.

c.. Elevated IgA levels are seen in patients who have had localized

mucosal candida infections (i.e., vaginal or mouth).

Although these tests have applications to the physician for the above

reasons, they have the following limitations:

a.. IgM antibodies are transient and therefore, present for only a short

period of time.

b.. IgG antibodies persist for many years after the infection has been

cured.

c.. Antibodies tests lack the specificity for a conclusive diagnosis of

clinical candidiasis (active candida overgrowth).

The only laboratory test that has been proven by independent clinical

studies to be effective for the detection and monitoring of Active Candida

Overgrowth is the Candida Immune Complex Assay.

tests

> >

> >

> > HI Everyone!

> >

> > Big question: I am going to my FOURTH " specialist " this Friday and this

time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

> >

> > So, I need opinions in which tests to insist upon. Keep in ming he is an

M.D. (gyn) specializing in infectious disease.

> >

> > I'm also thinking that I may have vulvadynia also. I don't know if he

knows anything about that but I'm not leaving his office with nothing again.

> >

> > Thanks.

> >

> > Lynne

> >

> > _____________________________________________________________

> > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our

yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist

advice, profiles of folks who are making a difference and ways you can make a

difference too! Visit them at http://www.planet-save.com/stonyfield.htm

> >

> >

[Guest guest]

, although IgM are transient.. they are a true indication of " present

infections " which is really what you are looking for. If you score outside the

reference range this would indicate that you are in a current state of

infection; albeit IgG can be past or current.

Why do you state the antibody tests lack specificity..Are they not tied directly

to the candida antibody..how much specific can they be?

When you mention the CICA..which lab does this test?

Regards, Ken

tests

> >

> >

> > HI Everyone!

> >

> > Big question: I am going to my FOURTH " specialist " this Friday and

this time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

> >

> > So, I need opinions in which tests to insist upon. Keep in ming he is

an M.D. (gyn) specializing in infectious disease.

> >

> > I'm also thinking that I may have vulvadynia also. I don't know if he

knows anything about that but I'm not leaving his office with nothing again.

> >

> > Thanks.

> >

> > Lynne

> >

> > _____________________________________________________________

> > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our

yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist

advice, profiles of folks who are making a difference and ways you can make a

difference too! Visit them at http://www.planet-save.com/stonyfield.htm

> >

> >

[Guest guest]

Ken,

This was all information from a lab in California. I'm not sure why it's said

to lack specificity, unless it is for a specific strain of candida antibody,

i.e.; something different than albicans..

The AAL Lab in Santa Ana, CA performs the CICA, Candida Immune Complex Assay,

which is the test that they say has been independently proven effective for

monitoring and detecting Active Candida Overgrowth.

It almost sounds as if they feel some candida bacteria may be slightly

inactive..but I wouldn't necessarily believe that, based upon individual subject

stories.

tests

> >

> >

> > HI Everyone!

> >

> > Big question: I am going to my FOURTH " specialist " this Friday and

this time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

> >

> > So, I need opinions in which tests to insist upon. Keep in ming he

is an M.D. (gyn) specializing in infectious disease.

> >

> > I'm also thinking that I may have vulvadynia also. I don't know if

he knows anything about that but I'm not leaving his office with nothing again.

> >

> > Thanks.

> >

> > Lynne

> >

> > _____________________________________________________________

> > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our

yummy yogurt and " Moosletters " focusing on organic info, recipes, nutritionist

advice, profiles of folks who are making a difference and ways you can make a

difference too! Visit them at http://www.planet-save.com/stonyfield.htm

> >

> >

[Guest guest]

,

Should I stop taking all of my supplements? Will thay effect the test?

Lynne

_____________________________________________________________

Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

[Guest guest]

Lynne,

I don't think that the supplements will affect the test, perhaps the fungals,

but I would take the list into your specialist so that he can take into account

any deficiencies if he does a full blood nutritional workup.

If you can provide a list of your supplements and dosages, as well as how many

times daily you take them and for how long, he may be able to determine if your

body is having a hard time getting the nutritional balance it needs in capsule

or tablet form.

That is part of the reason that I added Perfect Food and SportPharma's liquid

protein without sugar to my daily regimen, to get all of the nutrients into the

blood in liquid form. I have heard that it is absorbed more completely that

way, but I still take all of the tablets and capsules as well.

Re: tests

,

Should I stop taking all of my supplements? Will thay effect the test?

Lynne

_____________________________________________________________

Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

[Guest guest]

Do you have phone # of AAL labs.

Thanks, Ken

tests

> >

> >

> > HI Everyone!

> >

> > Big question: I am going to my FOURTH " specialist " this Friday and

this time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

> >

> > So, I need opinions in which tests to insist upon. Keep in ming he

is an M.D. (gyn) specializing in infectious disease.

> >

> > I'm also thinking that I may have vulvadynia also. I don't know if

he knows anything about that but I'm not leaving his office with nothing again.

> >

> > Thanks.

> >

> > Lynne

> >

> > _____________________________________________________________

> > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for

our yummy yogurt and " Moosletters " focusing on organic info, recipes,

nutritionist advice, profiles of folks who are making a difference and ways you

can make a difference too! Visit them at

http://www.planet-save.com/stonyfield.htm

> >

> >

[Guest guest]

In a message dated 3/9/2003 3:27:33 PM Pacific Standard Time, lbohn@...

writes:

> Request that he be tested by a registered speech and language pathologist,

> and

> request that s/he pay particular attention to pragmatics. If they turn you

> down,

> ask them to put it in writing.

Thanks, Liz

I'm going to send a letter tomorrow.....all in writing:) Thanks.

Johanna

[Guest guest]

Request that he be tested by a registered speech and language pathologist, and

request that s/he pay particular attention to pragmatics. If they turn you down,

ask them to put it in writing. If you don't get anywhere with the district, then

I'd get him tested independently, then present the district with the bill. We

did this both with speech and language testing and with neuropsychological

testing with my son three years ago. It was very helpful, and got us a terrific

placement for our son.

Liz

sjparvin@... wrote:

> Hi,

> My son's sped teacher performed the Preschool Language Scale 4, the one word

> receptive language test, the one word expressive language test for his

> assessments.

> I think he should have more evaluation on pragmatics, comprehension, and

> speech articulation. BTW, he scored really high 63-81% on those tests and

> I'm afraid they will try to throw him out of the program next year! He still

> has a hard time with abstracts, being literal, idioms, comprehension

> involving more than a couple steps, social language, staying on task, just

> plain trying to " get it " .

>

> What tests can you guys think of that I could request that would show these

> needs?

> Is this too big or vague of a question? I also think the speech path should

> test him and not just his teacher.

> Our IEP is on the 26th and we are writing the goals this next week (we being

> the teacher is including me!).

> There is no way he could go to K next year and function on his own, but I

> need to make my case as I can tell we will either be told no more sped

> preschool or he will just get a 1 hour speech class twice a week.....I can

> see it coming:)

> Thanks,

> Johanna

>

>

[Guest guest]

Hi Johanna,

I almost entirely agree with Liz. Asking in writing for what you want

is the best method. When it comes to pragmatics, formal tests are not

very worthwhile. (Think about it - a test to measure non-verbal

language.) Ask for an ** evaluation ** (by which I mean both formal

and informal testing) of pragmatics by an SLP experienced with

autistic children. This might include things like observation of

communication skills with peers. You might include an appendix to

your letter listing specific concerns so that they know exactly what

you have seen.

Good luck,

[Guest guest]

In a message dated 3/9/2003 7:38:26 PM Pacific Standard Time,

weinert@... writes:

> When it comes to pragmatics, formal tests are not

> very worthwhile. (Think about it - a test to measure non-verbal

> language.) Ask for an ** evaluation ** (by which I mean both formal

> and informal testing) of pragmatics by an SLP experienced with

> autistic children. This might include things like observation of

> communication skills with peers.

thanks,

I'm going to see if the school district will first eval him again and if they

refuse I will go elsewhere and then get them to pay for it if need be. Then

again, is the school district going to do a good enough job....I think a lot

of us can agree that an outside eval is more useful, but....

The teacher is willingly admitting he needs help with pragmatics and he is

processing slower. She is giving me her draft of his IEP goals tomorrow for

my review and input.

And then there is his ever increasing repertoire of self stimulatory

behaviors.....hand flapping, face slapping, tongue sticking out just got

added these last few months....not sure what to do with that other than have

them try to re-direct him when he does it at school.

Johanna

[Guest guest]

In a message dated 3/9/03 11:19:37 AM Eastern Standard Time, sjparvin@...

writes:

> What tests can you guys think of that I could request that would show these

> needs?

> Is this too big or vague of a question? I also think the speech path

> should

> test him and not just his teacher.

> Our IEP is on the 26th and we are writing the goals this next week (we

> being

> the teacher is including me!).

>

You should request a Speech and language evaluation from a ST in writing. I

think you expressed yourself very well. I don't know what specific tests

they might want to use. I mean, there are so many tests out there that are

available. There is a " test of pragmatic language " even but I am not sure

what ages it covers. The test she gave does not cover pragmatics. Remember

they need to test the child in the area(s) of their deficits.

Roxanna ôô

What doesn't kill us

Makes us really mean.

[Guest guest]

In a message dated 3/10/03 11:36:56 AM Eastern Standard Time,

sjparvin@... writes:

> .....hand flapping, face slapping, tongue sticking out just got

> added these last few months....not sure what to do with that other than

> have

> them try to re-direct him when he does it at school.

> Johanna

>

That might seem like punishment to him. Maybe he could have a small box of

fidget " toys " like putty? Then he could fidget quietly at his seat and blow

off the stress a little?

Roxanna ôô

What doesn't kill us

Makes us really mean.

[Guest guest]

In a message dated 3/10/2003 11:36:40 AM Eastern Standard Time,

sjparvin@... writes:

> And then there is his ever increasing repertoire of self stimulatory

> behaviors.....hand flapping, face slapping, tongue sticking out just got

> added these last few months....not sure what to do with that other than

> have

> them try to re-direct him when he does it at school.

>

Does your son's day include a sensory diet? Does he receive OT?

[Guest guest]

In a message dated 3/17/2003 3:55:31 AM Pacific Standard Time,

ppanda65@... writes:

>

> In a message dated 3/10/2003 11:36:40 AM Eastern Standard Time,

> sjparvin@... writes:

>

> >And then there is his ever increasing repertoire of self stimulatory

> >behaviors.....hand flapping, face slapping, tongue sticking out just got

> >added these last few months....not sure what to do with that other than

> >have

> >them try to re-direct him when he does it at school.

> >

>

> Does your son's day include a sensory diet? Does he receive OT?

>

His sensory stuff is pretty mild....read parts of Out of Sync Child and saw

some things but again, pretty mild. Tags, noises, singing, talking, and

foods sensitivities always (not a surprise) get more noticable when he is

tired or has had a lot of school. He does get OT twice a week and they run

through the course about twice. They put him in a booster group (20 mins)

meaning he has one on one before the rest of his class go to OT so he has

less trouble following the routine. The teacher talked to me about brushing,

but I have only heard about it and need to do some more research on it.

Johanna

[Guest guest]

> My son has had ALL his vaccine titres tested...

> antibody levels at immuno sciences lab... He had the

> Mumps, rubeola, rubella, the DPT, each one seperately,

> the varicella etc etc...I spent a lot on these tests

> as insurance doesn't cover tests done in another

> country.... anyway... all his tests results came back

> as ABNORMAL... very high titres apart from

> pertussis... I called the lab to find out where they

> got their reference ranges from.... they are from the

> average population...so how does one then know if his

> results are REALLY abnormal....what if most of the ref

> range people are 45 year old that have NEVER had a

> vaccine in their lives. My son is 3... & had all his

> vaccines.... so how can one compare?? it's like

> comparing apples & oranges... they are both round BUT

> completely different.

In this case high means immunne, either had the vaccine or had the

disease. Normal means not immune. They didn't answer very well.

> Don't get me wrong, Immuno sciences is a GREAT lab,

> I've had sooo much of his blood work done there... i

> just want this explained, I'm probably missing some

> detail.... but no one could answer this for me when i

> called them.

> Same with DDi... challenge test... o.k. we had that

> done.. & then on his results in BOLD letters it says

> that the ref range is from NON provoked, NON

> challenged individuals.... so again... how can you

> compare a 3 yr olds readings AFTER a nice BIG bolus

> dose of DMSA to NON provoked results of the general

> population.??

You can't. Which is why I say so often on list challenge tests mean

nothing. Challenge tests are not intepretable.

>Like i said apples & oranges...

Yup. I guess they forgot to do the apples and oranges bit in med

school.

> I'm

> pretty sure if those ref range indivuduals were given

> a big dose as per their weight of DMSA the ref range

> would be totally different.

Yup. There is some info on the web about this.

> Shouldn't the immune testing ranges be of say kids

> under 5 that have had vaccines.... when the test is

> for a 3 yr old... shouldn't the ref range for organix

> be again of kids & not adults when you are testing

> kids...

> I'm not the only one asking these this, A whole bunch

> of us moms out here would like to know .

> Again would like to mention... I'm not dissing ANY lab

> here, coz all the labs seem to have GENERAL ranges...

> but want to know how to get accurate testing info on

> my son.

> Thanks a LOT in advance.

> zarine

> Does anyone know of any labs that try & match the ref

> range to the patient being tested.?

This is not that common because it requires finding a lot of normal

healthy people wiling to be tested.

Most tests don't vary with age and sex. Some do.

Age and sex specific ranges are done for some tests that are really

common or where it matters a lot or where the lab is careful (e. g. DDI

uses age and sex specific hair test results, some labs don't), or as we

see frequently on list some labs use age specific alkaline phosphatase

and creatinine ranges for serum tests, others don't.

Andy

[Guest guest]

>>>same child as above is having bloods done to determine levels of

minerals, vits and amino acids, my question is should I stop giving

him all the stuff he gets at the moment in order to get a true

reading and if so for how long,

Vicky,

Since labs vary in how they do tests, I would contact the specific

lab and ask them what they want you to do. Some people want a reading

with no meds/supps while others want a test to reflect 'current

condition' with any meds/supps. And some supplements may influence

the test results depending on when procedure is used to treat the

sample.

Also, I usually want to know what a test will tell me in terms of

what we should do based on the results. It isn't helpful to get some

number in the mail. I always ask about what the plan is based on the

test results. If they can't tell me when the objective is, then I

wonder if the test is worth doing at all.

.

[Guest guest]

Dear Tig,

I had the scan, and am sorry I did. (Not that I had any effects from it, I

did not.) Based on what I've learned in this forum since, the test is not

necessary, and dangerous. The proper blood tests, sonogram, etc., are better

diagnostic tools. I'm not sure what those tests exactly are, but others on this

list can fill you in.

Best,

AntJoan

[Guest guest]

Thanks Antjoan,

Tig

> Dear Tig,

>

> I had the scan, and am sorry I did. (Not that I had any effects

from it, I

> did not.) Based on what I've learned in this forum since, the

test is not

> necessary, and dangerous. The proper blood tests, sonogram, etc.,

are better

> diagnostic tools. I'm not sure what those tests exactly are, but

others on this

> list can fill you in.

>

> Best,

> AntJoan

>

>

>

[Guest guest]

Should I be asking for a sonogram if my doc is only using labs so far? My

primary doc mentioned it when I was first diagnosed but then said it was

basically useless if I couldn't have the scan done too. I am glad I have a

built in excuse to not have the scan done - I am still nursing.

>

> I had the scan, and am sorry I did. (Not that I had any effects

from it, I

> did not.) Based on what I've learned in this forum since, the

test is not

> necessary, and dangerous.

[Guest guest]

In a message dated 5/30/2005 1:31:34 AM Eastern Daylight Time,

nicole.tucker@... writes:

Should I be asking for a sonogram if my doc is only using labs so far?

Dear ,

Don't know the answer to this one. Hopefully someone else on the list can

answer.

AntJoan

[Guest guest]

. Hertoghe devised his own tests and uses his own lab. Actually

people in US who went to Broda docs were using his lab but then AAL

opened here. I think it cost over a thousand dollars to use his Belgium

lab.

Gracia

> Also be aware that you will obtain many points of view on this and most

> lists; and many do not share Gracia's disdain for clinical tests. The

> book she often recommends by Dr. T. Hertoghe was an eye opener to me. I

> was quite surprised [given Gracia's oft-stated position] that Dr.

> Hertoghe confirmed EVERY diagnosis that he discussed with tests. Tests

> aren't everything and their interpretation is extremely difficult in

> complicated cases because many hormones interact. However, they are a

> critical component of any hormone treatment IMHO.

>

> Luck,

>

>

>

> Message: 15

> Date: Mon, 12 Sep 2005 20:19:09 -0400

> From: " Gracia " <circe@...>

> Subject: Re: Thanks

>

>

> Good luck with all those tests but know that most of them are worthless.

> You might need to find a doc with clinical skills

http://www.brodabarnes.org

> Gracia

>

>

> >> To those who responded, to my request (the shakes) for info, thank

> >> you. I don't think it is overmedication as I am just started on the

> >> titration phase at 50 mcg/day (I weigh 285 lbs and am 6'5 " so this

> >> isn't really that high), though I am sure the next round of TSH tests

> >> will show if it is. As to adrenal problems, I am waiting on the test

> >> results for pernicious anemia, adrenal dysfunction, and parathyroid

> >> dysfunction.

> >

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.344 / Virus Database: 267.10.24/100 - Release Date: 9/13/2005

>

>

>

>

>

[Guest guest]

I know some of those links are not active--not sure why. I will ask my

friend who sees him in Paris.

AAL is listed in the back of his book, AAL=www.antibodyassay.com His lab

method is supposed to be accurate for what is going on at the cellular

level.

Gracia

> What is AAL?

>

> He never mentioned that his tests were anything different as I recall;

> didn't really discuss how they were done.

>

> BTW, I went to the URL given in his book and the few links there were

> not active. This is the page he gives in his book that he says will

> help you find a good doctor in your area. Have any of you been able to

> get any info on that site? It's still up; just no info.

>

> Thanks,

>

>

>

>

> Message: 4

> Date: Tue, 13 Sep 2005 10:28:10 -0400

> From: " Gracia " <circe@...>

> Subject: Re: TESTS

>

>

> . Hertoghe devised his own tests and uses his own lab. Actually

> people in US who went to Broda docs were using his lab but then AAL

> opened here. I think it cost over a thousand dollars to use his Belgium

> lab.

> Gracia

>

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.344 / Virus Database: 267.10.25/102 - Release Date: 9/14/2005

>

>

>

>

>

[Guest guest]

In a message dated 8/17/2006 5:01:52 PM Eastern Standard Time, glory2glory1401@... writes:

Brigite,

Check this link:

http://www.orgsites.com/fl/adjuvantdisease/_pgg8.php3

Patty

Oh, wow, Patty --- thank you so much! I'd seen that before, and it was one I couldn't find.

Brig

[Guest guest]

In a message dated 8/17/2006 6:23:21 PM Eastern Standard Time, saxony01@... writes:

Mycoplasma bacteria . .. . IF you can get them to do that!

Rogene

Thank you, Rogene. That's another one I had saved, but couldn't think of!

Brig

[Guest guest]

Mycoplasma bacteria . .. . IF you can get them to do that! RogeneKissofSadness@... wrote: August 29, I see both my general doctor and my neurologist. As I mentioned in another post, I'd been saving emails of tests and things to check, and had planned to compose a list with them to take; however, AOL crashed recently so I've lost them all. I would

appreciate responses with any tests anyone knows of that I can mention to my doctor. My goal is to set up "medical necessity" in hopes that when I do explant, I can at least TRY filing to Medicare to see if they reimburse me at all. It seems to me like there was: Platinum testing, Alpha MSH (?) Testing, Candida... Anything else? Silicone Antibodies? Thanks ya'll!!! Brigite