Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Roni, You wrote: > > > I just checked my lab report again, and the TSH range > is o.35-5.50. Oops! Then, you are somewhat hyperT, and that could be the cause of the palps, especially in combination with the other conditions you are treating. Shaving your dosage a bit should help. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Thanks Chuck. I have to admit I am very confused at this point. I haven't been on groups, especially this group for very long and all I know is that sometime in my 20s I was given a blood test as part of a checkup, and told I was hypothyroid. At the time of the Afib incidents, the TSH, which is all they tested was <,01. At the time I was taking 2-1/2 grains of Thyrolar. I knocked it down to 2 immediately, but my doctor wanted it down to 1-1/2. I did that and then had this test done 8/21 with the results we've been discussing. Now my doctor says to go back to 2 grains per day, and was a bit annoyed when I said I've only been taking 2 grains twice a week since 2 weeks ago. I was afraid of shocking my body into another episode. How do I know when it's appropriate to go up or down? Roni --- Chuck B <gumboyaya@...> wrote: > Roni, > > You wrote: > > > > > > I just checked my lab report again, and the TSH > range > > is o.35-5.50. > > Oops! Then, you are somewhat hyperT, and that could > be the cause of the > palps, especially in combination with the other > conditions you are > treating. Shaving your dosage a bit should help. > > Chuck > ________________________________________________________________________________\ ____ Catch up on fall's hot new shows on TV. Watch previews, get listings, and more! http://tv./collections/3658 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Roni, T3 based medications need to be taken VERY regularly, due to the short biological half life of T3, about a day, depending on things such as activity levels. Taking two twice per week (and none on the other days) is about the worst pattern to use. You get the same T3 spike on days when you take it as if taking two every day (potentially inducing palps), but in between, T3 disappears and your T4 drops off enough to feel the low end of the cycle. Alternating two and three to get an average of two and a half per day at least guarantees you two each day. With your current tests and palps, I would strongly question a prescription to increase the daily dose. Get a second opinion. How to gage it? Some on the list will tell you to just go with how you feel. Unfortunately, you can still do real damage while feeling just great. I would suggest calibrating how you feel against occasional tests to make sure you are within safe limits. A TSH of 0.01 is not safe. Also, blood levels of T4 and TSH adjust VERY slowly to changing dosages. You need to stay on one level at least six weeks before testing, assuming you don't have adverse reactions that would compel an earlier change. Chuck You wrote: > > > Thanks Chuck. I have to admit I am very confused at > this point. I haven't been on groups, especially this > group for very long and all I know is that sometime in > my 20s I was given a blood test as part of a checkup, > and told I was hypothyroid. > > At the time of the Afib incidents, the TSH, which is > all they tested was <,01. At the time I was taking > 2-1/2 grains of Thyrolar. I knocked it down to 2 > immediately, but my doctor wanted it down to 1-1/2. I > did that and then had this test done 8/21 with the > results we've been discussing. Now my doctor says to > go back to 2 grains per day, and was a bit annoyed > when I said I've only been taking 2 grains twice a > week since 2 weeks ago. I was afraid of shocking my > body into another episode. > > How do I know when it's appropriate to go up or down? > > Roni > --- Chuck B <gumboyaya@... <mailto:gumboyaya%40cox.net>> wrote: > > > Roni, > > > > You wrote: > > > > > > > > > I just checked my lab report again, and the TSH > > range > > > is o.35-5.50. > > > > Oops! Then, you are somewhat hyperT, and that could > > be the cause of the > > palps, especially in combination with the other > > conditions you are > > treating. Shaving your dosage a bit should help. > > > > Chuck > > > > __________________________________________________________ > Catch up on fall's hot new shows on TV. Watch previews, get > listings, and more! > http://tv./collections/3658 <http://tv./collections/3658> > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.488 / Virus Database: 269.14.8/1066 - Release Date: 10/12/2007 11:10 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 are you talking about heart palps? heart palps=A-fib? my heart palps were caused by not enough thyroid meds, low cortisol and low estrogen. Gracia Venizia, You wrote: > > Why wouldn't her TSH numbers cause a-fib? She is hyperT according to > those numbers. Very slightly. Note that her reference range is different. The bottom she gave was 0.03, in which case, 0.011 is not very low. However, if that was a typo, and the real range was more like 0.3 - 5, then yes, that could be causing palpitations. None of the thyroxine levels seemed consistent with hyperT, since they were all within the range cited. Atrial fibrillation can be caused by diseased valves, hypertension, coronary artery disease, alcohol use, pericarditis, cardiac surgery, heart failure, and lots of other heart disorders, including electrolyte imbalance, in addition to hyperT. The hyperT has to be fairly pronounced, though, unless it is combined with one or more of those other causes. Chuck ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.8/1066 - Release Date: 10/12/2007 11:10 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 thyroid patients are taking 50 MG iodine/iodide daily. cancer pateitns are taking 100 MG daily. Gracia I'm not exactly sure about the " correct heart rate " I think it varies from person to person and to what is going on. I discovered that there is some iodine in my multi pill, so I'm getting 150 mcg in that, plus whatever salt I do consume, and I'm sure it's not miniscule, as I do like it. In addition there is sodium in meat and other natural foods, so I'm getting some there too. Roni --- Crystal <sweetnwright@...> wrote: > That reminds me, what is a normal heart rate? Mine > was 83 at walmart the > other night. > > -- Re: tests > > I cut down because the cardiologist said I should. > He > also said to take the Cartia XT, however, my BP this > evening was 118/80 with 70 heart rate, and I haven't > taken the medication since Sunday night, and today > is > Thursday. The swelling in my ankles, face, arms and > legs has gone down too. > > It hasn't been that low for a long time. > > Roni > > --- Gracia <circe@...> wrote: > > > > > you've cut down on salt? so you have cut down on > > the tiny miniscule amount of iodine in your diet? > > salt is also good for adrneal glands. My very high > > bp came down with hormones! > > Gracia > > > > Here are my results before I had the two Atrial > > Fibrillation episodes: > > > > T-Uptake 29% 24-39 > > > > T-4Thyroxine 6ugdl 4.5-12.0 > > > > T4-T Uptake indx 1.7 1.2-4.9 > > > > T3 155 85-205 > > > > TSH 0.011 .035-5.50 > > > > Thyroxine free 0.88 o.61-1.76 > > > > Free T3 3.2 2.3-4.2 > > > > What do you think Chuck? By the way, I cut out > > caffeine (coffee and chocolate) since the > > episodes. I > > just saw my doctor Wednesday, and he said > > Chocolate is > > good for you. Anyway, I haven't had an episode of > > fibrillations since about two weeks after the > > episodes > > that put me into the hospital twice. > > > > I was taking Cartia XL for the pressure, and > > Sunday > > night reacted to it with huge hives on my torso, > > so I > > had to stop that medication. I brought him a > > record of > > my pressures for 10 days previous, and it showed > > that > > the pressures were essentially the same with the > > medication and without it. For now I'm only taking > > furosemide 20 with 99 mgs of potassium, and I have > > cut > > down on salt. > > > > Roni > > > > > > > __________________________________________________________ > > Check out the hottest 2008 models today at > > Autos. > > http://autos./new_cars.html > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.488 / Virus Database: 269.14.8/1063 - > > Release Date: 10/11/2007 9:11 AM > > > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Take the Internet to Go: Go puts the Internet > in your pocket: mail, > news, photos & more. > http://mobile./go?refer=1GNXIC > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.8/1066 - Release Date: 10/12/2007 11:10 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Gracia, You wrote: > > > are you talking about heart palps? > heart palps=A-fib? > my heart palps were caused by not enough thyroid meds, low cortisol and > low estrogen. " Heart palps " is a broad umbrella. Atrial fibrillation is one type, one of several possible causes of palpitations, one that can be associated with hyperT but also a host of other conditions. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 on my father's side (Spanish/Panamanian), many of them married first cousins. They arrived in Panama from Spain in early 1500s. They were all doctors. It was just fine to marry first cousins and supposedly produced many geniuses (my father is one but he is not a first cousin offspring). Gracia Venizia- You are sooo funny, lol! First cousins, really? In a message dated 10/11/07 9:12:12 AM, nelsonck@... writes: > All my doctors say the same thing. Funny you should say that. Don't know > what the > common denominator is but something is making me unique. Maybe it's because > my > grandparents were first cousins. Our family often wonders about that. > They even got > special dispensation from the Pope to marry!! Oh yeh, good old grandma and > grandpa. > > Venizia > ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Gracia, I don't believe we have any geniuses in our family......well maybe when it comes to music and maybe art. I do have to say we are a very close family though. Venizia > > > on my father's side (Spanish/Panamanian), many of them married first cousins. They arrived in Panama from Spain in early 1500s. They were all doctors. It was just fine to marry first cousins and supposedly produced many geniuses (my father is one but he is not a first cousin offspring). > Gracia > > Venizia- > > You are sooo funny, lol! First cousins, really? > > In a message dated 10/11/07 9:12:12 AM, nelsonck@... writes: > > > All my doctors say the same thing. Funny you should say that. Don't know > > what the > > common denominator is but something is making me unique. Maybe it's because > > my > > grandparents were first cousins. Our family often wonders about that. > > They even got > > special dispensation from the Pope to marry!! Oh yeh, good old grandma and > > grandpa. > > > > Venizia > > > > ************************************** > See what's new at http://www.aol.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn ~ Silicone causes all kinds of weird things......part of it has to do with the proteins your body puts all over the surface of them.....I wonder if the steroids were stuck there cuz it was stuck to the silicone shell and or proteins....I was washed with that dayumn steroid 2 times I remember white chunks getting stuck in my tubes all the time both times ! ! Nasty.......sorry you had that done to you as well. My ANA has always been normal range.....high normal. I have had all but one symptom for lupus since the early 90's My g-mother had lupus. My dbl str dna was positive and so was my dna titer. but only as of 2 years ago. My docs say i have nonserology lupus. some say they question weather i have lupus or not, my neurologist told me I had chemically (silicone) stimulated lupus. So, who the H & *%$ knows...... Dont let what doctors say take hold of you. I did for years, and it dictated my life that is why I am so adament about not letting that happen to you. Having all those chemicals in you for all those years on top of foreign body reaction for all those years altered your entire being. From cell to cell to your emotional self. It will take time for all your cells to replace themselves with good healthy ones, and for your body to repair itself. Use your tests as guidelines on how well you are doing at detoxing and healthy eating....... and if you need to work harder, or try something different, you will know. I would bet with time, your tests will make you smile ~ I hope you had a nice Thanksgiving ! Love Dede Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn ~ You are welcome ! ! My Turkey day was good. My bro and his wife were here and my son came by. Dad was happy, that is what was most important. Loveyou ~ DedeCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Hello ~ I am sorry your MIL is having such a hard time. I asked Dad if he wanted me to shave my head... I was hoping he would say no, and he did.....lol. Right now, mine is at my butt....but sort of thin, so before I cut it for locks of love I need 20 inches more than I want left when it is cut. I think I am gonna get us some dew rags...... help keep his head warm....... I hope your MIL gets to feeling better. I am so sorry things are so tough on her right now. I know she had to have just loved having you all there with her. Loveya ~ N ~ Hugs ~ DedeCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Errrrrrr! And to know that I was never even informed. I would have had a fit if he told me he was using a steroid in me. I can't believe it didn't dissolve after that many years though. Lynn When the tests come back positive> >> > Most of the time I work at having a positive attitude and being> > "strong". I really try not to whine too much. It sounds mean somehow,> > but I am sometimes envious of those who have all the tests and they> > come back "negative" to a variety of diseases. I feel selfish too> > because I know that my health right now is better than some others.> > I have had many tests and symptoms that all indicate lupus. I have> > been diagnosed as having lupus. This is difficult for me because I> > begin to wonder if I will really be able to reverse all of this. Every> > new symptom or old symptoms flaring up get me down.> > Lately, I have been battling with depression because of this. I don't> > do well feeling powerless over a disease.> > I know others have been diagnosed with diseases and are taking meds> > for them. Do you deal with depression?> > Have there been others here with all the blood tests and lupus markers> > and symptoms that have recovered from this disease?> > As I've said before, maybe I can reduce the effects of the disease.> > It is depressing though to think that I might not be able to make this> > all go away.> >> > > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn, Normal? Some do it, but against the recommendations of the manufacturers. It is not uncommon to find that they did this, however. Lynda At 09:22 AM 11/25/2007, you wrote: > & Ladies, > >I looked up my DBL-STR DNA AB when I got home and mine was at >40. So, high too. Darn it, I was hoping for normal. But it looks >like my ANA was negative instead of positive. Unsure what this means? > >I also noticed Dr. Huang reported that during my explant she found >that my implant doctor used a long-acting steriod!! Is this >normal? I can only imagine what having a steriod in my body for 7+ >years did to my system. > >Thanks, > >Lynn > > > When the tests come back positive > > > > Most of the time I work at having a positive attitude and being > > " strong " . I really try not to whine too much. It sounds mean somehow, > > but I am sometimes envious of those who have all the tests and they > > come back " negative " to a variety of diseases. I feel selfish too > > because I know that my health right now is better than some others. > > I have had many tests and symptoms that all indicate lupus. I have > > been diagnosed as having lupus. This is difficult for me because I > > begin to wonder if I will really be able to reverse all of this. Every > > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this. I don't > > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are taking meds > > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupus markers > > and symptoms that have recovered from this disease? > > As I've said before, maybe I can reduce the effects of the disease. > > It is depressing though to think that I might not be able to make this > > all go away. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn, I am sure it discolored the implants. Some doctors put antibiotics in the saline to help prevent infection, also against the manufacturers recommendations. They never informed any women that I am aware of. They just assumed they knew what was best for us. Lynda At 09:28 AM 11/25/2007, you wrote: >Errrrrrr! And to know that I was never even >informed. I would have had a fit if he told me he was using a steroid in me. > >I can't believe it didn't dissolve after that many years though. > >Lynn > > > When the tests come back positive > > > > > > Most of the time I work at having a positive attitude and being > > > " strong " . I really try not to whine too much. It sounds mean somehow, > > > but I am sometimes envious of those who have all the tests and they > > > come back " negative " to a variety of diseases. I feel selfish too > > > because I know that my health right now is better than some others. > > > I have had many tests and symptoms that all indicate lupus. I have > > > been diagnosed as having lupus. This is difficult for me because I > > > begin to wonder if I will really be able to reverse all of this. Every > > > new symptom or old symptoms flaring up get me down. > > > Lately, I have been battling with depression because of this. I don't > > > do well feeling powerless over a disease. > > > I know others have been diagnosed with diseases and are taking meds > > > for them. Do you deal with depression? > > > Have there been others here with all the blood tests and lupus markers > > > and symptoms that have recovered from this disease? > > > As I've said before, maybe I can reduce the effects of the disease. > > > It is depressing though to think that I might not be able to make this > > > all go away. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn ~ It angers me too. Steroids can cause osteoporosis, and I was diagnosed at age 43 with it. Last bone density was this past January, and I still have it pretty bad. I have upped my magnesium and calcium and D, so hopefully it will make a difference in time. Love DedeCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Thanks for the post Dede. You are the best. Thanksgiving was very relaxing, I needed the break. Time to get back to the work grind tomorrow - blah. How was your Thanksgiving? Lynn Re: Tests Lynn ~ Silicone causes all kinds of weird things...... part of it has to do with the proteins your body puts all over the surface of them.....I wonder if the steroids were stuck there cuz it was stuck to the silicone shell and or proteins....I was washed with that dayumn steroid 2 times I remember white chunks getting stuck in my tubes all the time both times ! ! Nasty....... sorry you had that done to you as well. My ANA has always been normal range.....high normal. I have had all but one symptom for lupus since the early 90's My g-mother had lupus. My dbl str dna was positive and so was my dna titer. but only as of 2 years ago. My docs say i have nonserology lupus. some say they question weather i have lupus or not, my neurologist told me I had chemically (silicone) stimulated lupus. So, who the H & *%$ knows...... Dont let what doctors say take hold of you. I did for years, and it dictated my life that is why I am so adament about not letting that happen to you. Having all those chemicals in you for all those years on top of foreign body reaction for all those years altered your entire being. From cell to cell to your emotional self. It will take time for all your cells to replace themselves with good healthy ones, and for your body to repair itself. Use your tests as guidelines on how well you are doing at detoxing and healthy eating...... . and if you need to work harder, or try something different, you will know. I would bet with time, your tests will make you smile ~ I hope you had a nice Thanksgiving ! Love Dede Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Sounds a lot like mine. My mother-in-law was very happy to have us there and that is what mattered most. She is struggling with the fact she is now bald - darn chemo. She needs to start radiation but they won't until the skin where her port was has healed. I fear she has a hematoma there, it is huge and hard and drains blood crap all the time. She refuses to call the doctor but has an appointment on Monday. I think they will need to drain it but who knows, I am by far not a doctor. She just misses my father-in-law so much. I know she wishes sometimes that she was with him. Love you too! Lynn Re: Tests Lynn ~ You are welcome ! ! My Turkey day was good. My bro and his wife were here and my son came by. Dad was happy, that is what was most important. Loveyou ~ Dede Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn,It does make one wonder . . . Why would a doctor think a steroid drug should be put in a breast implants - unless they knew there was a problem?Yours is not the first we've heard of though.Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 From what I have read, it looks like they use it to try to combat capsular constricture. Makes me angry. Lynn Re: Tests Lynn,It does make one wonder . . . Why would a doctor think a steroid drug should be put in a breast implants - unless they knew there was a problem?Yours is not the first we've heard of though.Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Yep, that is the reason. But, not approved by manufacturers. Can void warranty. Lynda At 01:44 PM 11/25/2007, you wrote: > From what I have read, it looks like they use > it to try to combat capsular constricture. Makes me angry. > >Lynn > > > Re: Tests > >Lynn, > >It does make one wonder . . . Why would a doctor >think a steroid drug should be put in a breast >implants - unless they knew there was a problem? > >Yours is not the first we've heard of though. > >Rogene > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Lynn, I'm really behind on reading messages here. It was a hectic and sometimes exhausting weekend. Yes, 40 is high. ANA negative? I don't know what that would mean. When do you see a rheumatologist next? > > > > , > > > > I am on the same page with you!! I feel envious of those with the > auto-immune symptoms but negative tests. > > > > I have a positive ANA. I think mine was 1:180 in December and 1:320 > in March - either way it is positive! I fear mine won't be reversed > either. Especially with all my joint pains and skin issues. After > hearing about your skin biopsy, I feel my sores in my hairline would > test the same. They don't heal!! Also, my costochondritis has flared > back up lately and I see plueritic chest pain is another symptom of > Lupus. > > > > The Lupus diagnosis scares the crap out of me. I don't want to be > disabled!! I want kids. I know it can be controlled by early > detection and medication but then I hear how bad the medications are > and side effects. > > > > I have a follow-up with my rheumatologist in December. I pray that > my ANA is perfectly normal and not up even higher. If it is up, I may > ask about the medications. I want to at least know my options. > > > > Hang in there and know I am here. I understand how you feel > and I don't feel it is selfish. I feel the same way. Just think, we > could have something worse. At least the prognosis for Lupus is good > and they are doing research on it all the time. > > > > Hugs and prayers, > > > > Lynn > > > > > > > > When the tests come back positive > > > > Most of the time I work at having a positive attitude and being > > " strong " . I really try not to whine too much. It sounds mean somehow, > > but I am sometimes envious of those who have all the tests and they > > come back " negative " to a variety of diseases. I feel selfish too > > because I know that my health right now is better than some others. > > I have had many tests and symptoms that all indicate lupus. I have > > been diagnosed as having lupus. This is difficult for me because I > > begin to wonder if I will really be able to reverse all of this. Every > > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this. I don't > > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are taking meds > > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupus markers > > and symptoms that have recovered from this disease? > > As I've said before, maybe I can reduce the effects of the disease. > > It is depressing though to think that I might not be able to make this > > all go away. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 An ANA of 40 is borderline high, and usually not something to worry about, now 160 is something to be concerned about and so are some of the other parameters, like speckled, etc. Lynda At 02:28 PM 11/25/2007, you wrote: >Lynn, > >I'm really behind on reading messages here. It was a hectic and >sometimes exhausting weekend. > >Yes, 40 is high. ANA negative? I don't know what that would mean. >When do you see a rheumatologist next? > > > > > > > > > > , > > > > > > I am on the same page with you!! I feel envious of those with the > > auto-immune symptoms but negative tests. > > > > > > I have a positive ANA. I think mine was 1:180 in December and 1:320 > > in March - either way it is positive! I fear mine won't be reversed > > either. Especially with all my joint pains and skin issues. After > > hearing about your skin biopsy, I feel my sores in my hairline would > > test the same. They don't heal!! Also, my costochondritis has flared > > back up lately and I see plueritic chest pain is another symptom of > > Lupus. > > > > > > The Lupus diagnosis scares the crap out of me. I don't want to be > > disabled!! I want kids. I know it can be controlled by early > > detection and medication but then I hear how bad the medications are > > and side effects. > > > > > > I have a follow-up with my rheumatologist in December. I pray that > > my ANA is perfectly normal and not up even higher. If it is up, I may > > ask about the medications. I want to at least know my options. > > > > > > Hang in there and know I am here. I understand how you feel > > and I don't feel it is selfish. I feel the same way. Just think, we > > could have something worse. At least the prognosis for Lupus is good > > and they are doing research on it all the time. > > > > > > Hugs and prayers, > > > > > > Lynn > > > > > > > > > > > > When the tests come back positive > > > > > > Most of the time I work at having a positive attitude and being > > > " strong " . I really try not to whine too much. It sounds mean somehow, > > > but I am sometimes envious of those who have all the tests and they > > > come back " negative " to a variety of diseases. I feel selfish too > > > because I know that my health right now is better than some others. > > > I have had many tests and symptoms that all indicate lupus. I have > > > been diagnosed as having lupus. This is difficult for me because I > > > begin to wonder if I will really be able to reverse all of this. Every > > > new symptom or old symptoms flaring up get me down. > > > Lately, I have been battling with depression because of this. I don't > > > do well feeling powerless over a disease. > > > I know others have been diagnosed with diseases and are taking meds > > > for them. Do you deal with depression? > > > Have there been others here with all the blood tests and lupus markers > > > and symptoms that have recovered from this disease? > > > As I've said before, maybe I can reduce the effects of the disease. > > > It is depressing though to think that I might not be able to make this > > > all go away. > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I see him on the 20th. I will have repeat labs then. I hope and pray, and pray, and pray, and pray that everything has gone down. I don't care if it is normal, I just don't want it to go up. But if it does, I will keep detoxing and try not to let the numbers bother me or define who I am. Again, I am putting it in the Lord's hands. Sorry to hear you have such a hectic weekend. You'll need to rest us so you don't get ill. Lynn When the tests come back positive> > > > Most of the time I work at having a positive attitude and being> > "strong". I really try not to whine too much. It sounds mean somehow,> > but I am sometimes envious of those who have all the tests and they> > come back "negative" to a variety of diseases. I feel selfish too> > because I know that my health right now is better than some others.> > I have had many tests and symptoms that all indicate lupus. I have> > been diagnosed as having lupus. This is difficult for me because I> > begin to wonder if I will really be able to reverse all of this. Every> > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this. I don't> > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are taking meds> > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupus markers> > and symptoms that have recovered from this disease?> > As I've said before, maybe I can reduce the effects of the disease. > > It is depressing though to think that I might not be able to make this> > all go away.> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 My ANA was 1:160 & then a few months later 1:320. It is speckled. The Double Strand DNA was 40. Lynn When the tests come back positive> > >> > > Most of the time I work at having a positive attitude and being> > > "strong". I really try not to whine too much. It sounds mean somehow,> > > but I am sometimes envious of those who have all the tests and they> > > come back "negative" to a variety of diseases. I feel selfish too> > > because I know that my health right now is better than some others.> > > I have had many tests and symptoms that all indicate lupus. I have> > > been diagnosed as having lupus. This is difficult for me because I> > > begin to wonder if I will really be able to reverse all of this. Every> > > new symptom or old symptoms flaring up get me down.> > > Lately, I have been battling with depression because of this. I don't> > > do well feeling powerless over a disease.> > > I know others have been diagnosed with diseases and are taking meds> > > for them. Do you deal with depression?> > > Have there been others here with all the blood tests and lupus markers> > > and symptoms that have recovered from this disease?> > > As I've said before, maybe I can reduce the effects of the disease.> > > It is depressing though to think that I might not be able to make this> > > all go away.> > >> > > > > >> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Dede, I have a bone scan I think next week or the week after that - it is on my calendar at work. Due to the amount of Depoluprons I have had my gyno thought it was a good idea to get a scan. I will let you know what it says. Lynn Re: Tests Lynn ~ It angers me too. Steroids can cause osteoporosis, and I was diagnosed at age 43 with it. Last bone density was this past January, and I still have it pretty bad. I have upped my magnesium and calcium and D, so hopefully it will make a difference in time. Love Dede Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
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