Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 Hi there , My son is on anafranil. It is the only anti-obsessional med that works for him. If things are tough for now, than why not go back for a quick few sessions with his therapist? We all have good and bad days, sometimes they are a little longer, but we've learned to identify things as just that - a little set back! I think Dr. Claiborne says that once someone has given up an obsession, or compulsion, they cant go back to it again! Is interested in joining the teen list? My 13 yo says its a great support. If he's interested, I'm including the info at the bottom. Anyway, I'm glad that you've 'come out' and welcome. Oh, and dont forget to add your location so that we can keep track of where everyone is, or some other identifying name. take care, wendy in canada =================================== LIST NAME: Teen OCD CONTACT: <kelly@...> SUBSCRIBE: http://www.angelfire.com/il/TeenOCD PURPOSE: For Teens to provide support for other Teens experiencing OCD and other spectrums in their lives. MEMBERSHIP: Teens with OCD ages 13-19 (pre-teens aged 10-12 are welcome with parental supervision). College students are welcome. DESCRIPTION: 239 members as of 5/99 (started 6/98). The list also provides a " safe Teen " and 2 " safe parents " and Dr. Jim Hatton, Ph.D., M.F.C.C. to assist with medical advice ============================== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 Hi !! I don't know if you remember me ( from Louisiana). You were one of the first person's that I made contact with when was first diagnosed with OCD. I am so sorry that has had a setback. Do you think that it could be from anxiety about school starting up soon? Will he still be going to the same school where you work? was taken off the adderall because it seemed to heighten his OCD symptoms also. His OCD has continued to snowball, and we have tried several different med's. We have been through several psychiatrists and therapists and have had a difficult time finding someone who knows how to do behavior therapy and E & RP therapy. We are going into this school year knowing that he will homebound again this year. Take care and keep us posted! mary from La. Ruley wrote: > From: " Ruley " <cinners@...> > > Hello > > My name is and I have a 12 year old son with OCD and ADHD. I've been reading this list for quite a while and have gained a lot of valuable information. My son was finally doing rather well and then had a set-back, so we are kind of starting all over. He is on anafranil for the OCD and adderal for the ADHD. He had several months of CBT and I'm trying to implement what we worked on but we may be going back to therapy. It seems to be difficult to medicate for the ADHD and the OCD. I think the stimulants heighten the OCD symptoms. > > A NOTE TO NELLIE: was on Luvox for several weeks and it make him extremely hyper, fidgety and giddy. We've found the anafranil does better for him. Just something to think about. > > -- > Visit http://www.ivillage.com for your FREE iVillage.com email account. > iVillage.com: The #1 Women's Network -- Real Solutions for Real Women. > ------------------------------------------------------------------------ > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The archives for the OCD and > Parenting List may be accessed > by going to the member center. > Enter your username and password, > then click on " list name " , then > click on " view archives " , and > then click on " archives index " . > You may then view archives by > date of entry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Cheryl, Sorry to hear that you are sick in bed. I hope that the pain is over for you soon and that you are back in the saddle agian! Sounds like has a jump on school with helping get things going and all. We have explosions here too after our son comes home from an outing. Sometimes his bag is so full he just takes out out on the ones closest to him.I think he has just bottles it all up and instead of dealing with things appropriately at the time they happen he just saves it to come out when at home. This is great that can at least identify what is happening! Take good care! Vivian __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Cheryl, >she thought I was mad at her and I wasnt she was making things up and >then the crying started. She said she was sorry that when it happens it >is not her, it is someone else coming out and being mean and she cant >stop it... I told her then that is when you need to go and be by >yourself so you dont say these mean things to anybody, she says that >only makes it worse cause then it gets ll bottled up inside and she >feels like she will explode. Maybe give her a punch bag or something to let out the angry or frustrations. I agree with her that it would make worse, if she did not let it out. There is so much anyone can take. Good luck on finding a way to overcome the frustrations. TC --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Cheryl in CT, Sounds like a bad bug - dont breath on me!! I wish there was something I could suggest for your aches and pains. Perhaps watching a comedy will distract you?? I think you handled very well. Sometimes when Ziv gets 'nasty' I give her some fresh juice or something. I think, no proof, that maybe her sugar is low. At school I tell her to eat something every recess and lunch too! Helping the teacher set up the classroom is a great idea. What an understanding teacher she has - lucky girl!! 'hope that you are feeling better....... wendy in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 1999 Report Share Posted August 27, 1999 Hi , I was so glad to see you joined the list! Your e-mail buddy ( mom to Ashton and Landon (DS) 14months TJFONZ@... wrote: > From: TJFONZ@... > > Hello Everyone! My name is and I'm a mother of > 15 month old boy/girl twins. has DS. > Sloan Isis does not.They were born on May 6,1998. > One month early of their actual due date. > weight in at 3lbs. 15oz. and 18 inches.Sloan weighed > in at 3lbs. 14oz and 17 1/2 inches. > We found out one or both of the twins had DS when I > was 4 month pregnant from the AFP test and then I > had the amnio to determine which or both babies had > DS.The waiting on the test results were just as bad > as the amnio!It was confirmed that Baby A > ()had DS and Baby B (Sloan) did not. > We did ALOT of research and probably too much before > they were born. > While still pregnant we found out would have > to have surgery for Deoduial Astresia within days of > his birth. was taken to a Children hostipal > when he was less than 4 hours old ( 2 o'clock on the > morning) > He had the surgery that morning and stayed at the > Childrens hospital for 3 weeks. > He did wonderful with sucking on bottles and has > always eaten more then his sister. > He is now pulling up to stand and wanting to run > after his sister.He has always watched and tried to > do everything she does. > ,my husband is a stay at home dad. > I just to introduce myself and my family and look > forward to hearing from everyone. > ~ > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 1999 Report Share Posted September 2, 1999 Welcome Pam...... Im new tooo & already love it here Everyone is great & helpful Your the first person I've meet that both twins has ds.... I have boy/girl twins who are 8 months old & my daughter has ds Nice to meet you........ Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 1999 Report Share Posted September 2, 1999 >My name is Pam Degeorge and I have twin girls, age 8 who both have DS. >I am interested in talking with other families of twins. >My girls are fully included in 3rd grade. We live outside of Pittsburgh. > >Pam Welcome to the list, Pam. I have boy/girl twins that are 2 years 8 months. My boy, has ds. My daughter, Nicala; does not. They were born at 27 weeks gestation. There is another mom on this list that has twins, both with ds. They are the exact same age as mine!!! I live in Canada; , mom to Nicala & (2 years, 8 months) and (10 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Hi Pam, Welcome to the list. I have twin boys, 22 mths one with DS one without. I see you live in Pittsburgh. Were you at the NDSC in August? My husband and I attended and had a wonderful time. We met a parent there with twin girls both with DS. The girls were 4. To me it was like a mirrored reflection. I could not tell them apart. My boys are as opposite as night and day from coloring to temperament. I look forward to chatting. Bonnie from long Island Mom to -9, twins and (ds)-22mths Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Welcome to the list Pam. My name is and I have 16 month old boy/girl twins. has DS. I have enjoyed the list and have gotten ALOT of information from everyone and meet some GREAT people. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Hey Pam! Glad ya made it!! Was great seeing you and your beautiful girls at the conf!! Cheers, Sara __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 1999 Report Share Posted September 8, 1999 Hi Pam! I think you chatted w/my husband Mike when he first joined the DS List-Serv a couple years ago. You sent us pictures of your girls and I just ran across them the other day! Sam & are doing good. They will be 3 in Dec. and we are starting the " transition " process soon! Glad you joined the group! Judi - Mom to Sam & , 32 mos, Identical Twins --- tyler2@... wrote: > From: tyler2@... > > Hi there! > > My name is Pam Degeorge and I have twin girls, age 8 > who both have DS. > I am interested in talking with other families of > twins. > My girls are fully included in 3rd grade. We live > outside of Pittsburgh. > > Pam > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 1999 Report Share Posted September 8, 1999 Hi Pam! I think you chatted w/my husband Mike when he first joined the DS List-Serv a couple years ago. You sent us pictures of your girls and I just ran across them the other day! Sam & are doing good. They will be 3 in Dec. and we are starting the " transition " process soon! Glad you joined the group! Judi - Mom to Sam & , 32 mos, Identical Twins --- tyler2@... wrote: > From: tyler2@... > > Hi there! > > My name is Pam Degeorge and I have twin girls, age 8 > who both have DS. > I am interested in talking with other families of > twins. > My girls are fully included in 3rd grade. We live > outside of Pittsburgh. > > Pam > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 1999 Report Share Posted September 11, 1999 Hi Judi, I can't believe your boys are going to be 3 already!! Time sure does fly!! I'm glad things are going well. It's good to see you're here. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 hello >I am currently a criminal justice graduate student interested in improving >my understanding of the daily experiences of persons with >disabilities/chronic illnesses and how those experiences relate to possible >criminal victimization. > >Please feel free to visit my website at www.cvdos.com and take a moment to >complete the attached survey. This survey is intended to serve as a basis >for justifying changes within the criminal justice system that may result in >crime victims with disabilities getting the same treatment that their >non-disabled counterparts are currently enjoying. > >I recognize that the survey is not perfect, and therefore welcome any >suggestions or comments you might have upon viewing the it. You can contact >me at lbarrow@.... > >Thank you. > > >Please forward this site to anyone who might be interested. > >Thank you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Dear Dr. Len: Great to have you here on the Multiples list. I enjoy learning from your posts on the " other " lists and know that you will be a great addition here! Regards, Bonnie from Long Island Mom to -9, twins and (ds)-23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Len Leshin wrote: > > From: Len Leshin <lleshin@...> > > Hi! I'm not a father of multiples, but your list owner invited me on > to help in any way I can. My name is Len Leshin, and I'm the father of > Avi, an almost 6 year old boy with Down syndrome and epilepsy. I'm also > a pediatrician and operate a website devoted to health issues in Down > syndrome. Feel free to ask me anything about medical issues. > > Len Leshin > mailto:lleshin@... > Down Syndrome Health Issues: http://www.ds-health.com > > > http://DSyndrome.com/Multiples Thanks Dr. Len Leshin for being here! I was on the list this past summer, but came here because I feel more in common with this group, but I missed your medical input. Now I don't have to think I'm missing it anymore!! Welcome! Gail mom to Bobby-5, Jillian-3, and Tara{Ds}6months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 1999 Report Share Posted October 13, 1999 Welcome to the list Len! I have also have been to your web site before,when I first found out that had DS and I started researching all I could find on the internet. My question is probably not related to DS,but anyway Vinnie has a dry spot on his cheek (I call it his turn spot)that I can't seem to clear up.I have tried lotions,Desitin,anti bacteria cream and Cortaid. It does clear up some but won't completely go away. Any suggestions of something I haven't tried or what I could do? Thanks in advance and again welcome to our list. ~,moma to and Sloan {17 months} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 1999 Report Share Posted October 13, 1999 Try putting some antifungal cream on it. My son had something like that on his chin awhile back and it cleared right up with the AF cream (like nystatin or lotrimin, even gynelotrimin or monistat would probably work, too). I had also tried other creams and it looked less dry but the redness never went away until the AF cream. Leigh TJFONZ@... wrote: > My question is probably not related to DS,but anyway Vinnie has a dry spot on his cheek (I call it his turn spot)that I can't seem to clear up.I have tried lotions,Desitin,anti bacteria cream and Cortaid. > It does clear up some but won't completely go away. > Any suggestions of something I haven't tried or what I could do? > Thanks in advance and again welcome to our list. > ~,moma to and Sloan {17 months} > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 1999 Report Share Posted October 14, 1999 Thank You Very Much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Have you thought of buying a padded toilet seat? Or maybe warming it in some way. doesn't like the cold seat. Do they have smaller toilets at school? Some classes have the smaller ones for the kids (I've used a bathroom before and it's a long way down there! LOL). Maybe an adult size one is too intimidating. Just a few suggestions. Loriann Wife to Dewight, Mom to , 9 years, Down Syndrome, Autistic, ADHD, Oppositional Defiant Disorder and , 7.5 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 In a message dated 2/9/2000 12:49:08 AM !!!First Boot!!!, Davejason@... writes: << JJ is not potty trained at home, however he uses the toilet sporadically at school. The problem at home is he refuses to sit on the toilet! JJ will straighten his legs and refuse to sit. If you force his legs to bend, he will sit on the pot but will be struggling, crying, kicking and screaming enough to work himself off the toilet. This will continue until you give in and let him go. Any suggestions? Thank you Dave, wife Pat, and >> Hi, I'm far from an expert on potty training and my daughter Maddie (6, DS and autistic spectrum disorder) is nowhere near ready for potty training yet. However, I have potty trained her 4 siblings. One of the plusses of having sibs is you can use them as instigators and motivators. Look JJ, how Jimmy sits on the potty. When Jimmy sits on the potty, Jimmy gets an M & M..........or whatever. Let's see how long Jimmy can sit. Naturally, incredibly loud and raucous cheers and reward if sib deposits something. Then of course, if you get JJ to actually sit, HUGE praise must follow. I wouldn't worry about what he deposits there yet, so much as his tolerance for sitting on it. Sounds gross, but showing him how it is done is another instigator. Also, does he sit on a potty chair or on the toilet? Make sure he is comfortable at home and that he is stable when he sits. And if JJ has no siblings at home and Mom and Dad aren't quite up to the task of demonstrating, use a doll and praise that doll to the high heavens for sitting on the potty, making sure of course, that JJ is fully aware of what is going on. Anyway, these are just some minor suggestions (not that I've had to use the dolly thing yet-----------but may in the future) And, welcome to the list!!!! I'm looking forward to hearing more about JJ and his family. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 In a message dated Wed, 22 Mar 2000 4:04:19 PM Eastern Standard Time, Taebotig@... writes: > Hi everyone I am new...my name is Angie. I am 23 and on another taebo list so > I know some of you. I weigh 240 and wear size 22's. I have been working out > since feb. 3rd. So far i have lost 13 inches and no lbs. Actually I keep > going up and down with the weight but Im not worried about it I am losing > inches and thats fine with me....Well I hope to get to know you all. > > Angie > ICQ-46432916 > AIM-Tyggyrow > Angie welcome to the group!! 13 inches is pretty impressive...the pounds will follow after you build muscle and increase your metabolism. I'm close to your age 24.....tell us more about yourself!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 In a message dated 3/22/00 4:03:56 PM Eastern Standard Time, Taebotig@... writes: << Hi everyone I am new...my name is Angie. I am 23 and on another taebo list so I know some of you. I weigh 240 and wear size 22's. I have been working out since feb. 3rd. So far i have lost 13 inches and no lbs. Actually I keep going up and down with the weight but Im not worried about it I am losing inches and thats fine with me....Well I hope to get to know you all. Angie >> Hi Angie!! Welcome to the group! 13 inches! Wow! Which tapes do you do? I look forward to getting to know you better! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 In a message dated 3/22/00 4:03:56 PM Eastern Standard Time, Taebotig@... writes: << Hi everyone I am new...my name is Angie. I am 23 and on another taebo list so I know some of you. I weigh 240 and wear size 22's. I have been working out since feb. 3rd. So far i have lost 13 inches and no lbs. Actually I keep going up and down with the weight but Im not worried about it I am losing inches and thats fine with me....Well I hope to get to know you all. Angie ICQ-46432916 AIM-Tyggyrow --- >> Hi Angie !! Congratulations on the 13 inches lost !! WOO HOO !! Good for you !! Yes do not worry about the scale - I have a hard time with that myself so I shouldn't even give advice on it - LOL !! But I do know that inches are what to go by. Keep up the good work !! Pam Quote Link to comment Share on other sites More sharing options...
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