hello

[Guest guest]

Watch out Aisha! Or I'll get my immunologist to bash up your Immunologist!

(and he has a damn sight more weight to throw around let me tell you!!!)

Anyway, my Immunologist has...Charisma!!! (for an old fart) Beat that! Na na

nanana!!!

Not all the tests were back today, so have to ring next week :-( The

Shirmers indicated Sjogrens, but he wants to do a lip biopsy cause that

evidently gives more info into the best treatment for the individual somehow

(not sure of the details, it was by phone) So he will discuss this with my

GP so I don't have to go to you smelly old city for it!! *wink*

All the other test came back within the normal range so far (not sure how

many have yet to come back , he indicated it was the important ones we are

still waiting on) Apart from the one that shows what the Immune system is

doing, evidetly that showed that my immune system is very overactive (tell

me something I didnt know)

Will let you know the results when they come in

By the way, he doesnt want me to have the tear ducts blocked (as the

opthalmic surgeon advised) he said wait and see, cause it can cause heaps of

problems that may be able to be controlled more easily. So have to wait till

Monday for more results!

:-)

>From: " Aisha Elderwyn " <aisha@...>

>Reply-egroups

><egroups>

>Subject: Re: Hello

>Date: Mon, 1 May 2000 15:17:29 +1000

>

>Hey ,

>

>I think my immunologist would " not be able to comment with enthusiasm " at

>your guy being the top one! LOL.... (Anyhow I am biased as I think my

>immunologist is the best! *smile* Well he did save my life!)

>

>Glad he is helping you - any indications of what he has found???

>

>Love A.

>

> ___________________________________

>

>*Medical Resources and Support*

>http://www.elderwyn.com/medicallinks

>

>*Aisha Elderwyn*

>http://www.elderwyn.com/aisha

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

My immunologist is so tough, he likes needles! Ha!

I do NOT have sarcoidosis, i will have something far more exclusive and

interesting than that! You just want to say " I told you so " LOL (actually he

hasn't mentioned anything except sjogrens to me, as yet, we will see....)

Anyway, who would want to be called normal? I have an email buddy who calls

average people " mundanes " LOL Now, who could call any of us mundane, we are

nothing if not facinating, at least to the medical fraternity!

See ya later alligator! (Jon Bon Jovi indeed!!! hehehehe)

>From: " Aisha Elderwyn " <aisha@...>

>Reply-egroups

><egroups>

>Subject: Re: Hello

>Date: Mon, 1 May 2000 16:45:39 +1000

>

>Hahahahahahaha....

>

>My immunologist isnt exactly short or thin either! LOL....And he seems to

>have a thing for needles so God only knows what he would do to your

>immunologist!

>

>So Nerrrrrrrrrrrrrrrrrrrrrrrrr

>

>You sound like you have sarcoidosis... biopsies are the most accurate way

>to diagnose it and it is caused by... and over active immune syndrome. It

>is also similar to sjogrens syndrome.

>

> " So he will discuss this with my GP so I don't have to go to you smelly old

>city for it!! *wink* "

>

>Hahahahaha.... lest I dont live with Polly's! But we do have the tacky

>olympics... ewwwwwwww

>

> " All the other test came back within the normal range "

>

>Now that is strange... wouldn't have put you in a normal category!

>*raspberry blow* hehehehehe

>

>Keep in touch with those results sweetie!

>

>Love A.

>

>

> ___________________________________

>

>*Medical Resources and Support*

>http://www.elderwyn.com/medicallinks

>

>*Aisha Elderwyn*

>http://www.elderwyn.com/aisha

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

I do NOT have sarcoidosis, i will have something far more exclusive and interesting than that!

LMAO.... I dont think you can beat Janalise's leg. She wins.

And it is not just sarc thank you - it is Neurosarcoidosis with RARE neurological side effects. You are welcome to it - I would be happy to give it to anyone who would take it!!!

I hope you dont have it also - its a nasty illness.

Anyway, who would want to be called normal?

What is normal anyway?

See ya later alligator! (Jon Bon Jovi indeed!!! hehehehe)Well ... hmmm... dont think you are in a position to judge here! *wink*

Love ya!

Aisha.

[Guest guest]

Hi ,

I also have Neurosarcoidosis, You are also welcome to take mine, cause

I really really tired and fed up with it. <sigh>.

Dusty

Aisha Elderwyn wrote:

I

do NOT have sarcoidosis, i will have something far more exclusive and

interesting than that! LMAO.... I dont think you

can beat Janalise's leg. She wins. And it is

not just sarc thank you - it is Neurosarcoidosis with RARE neurological

side effects. You are welcome to it - I would be happy to give it to anyone

who would take it!!! I hope you dont have it

also - its a nasty illness. Anyway, who would want to be called

normal? What is normal anyway?

See ya later alligator! (Jon Bon Jovi indeed!!! hehehehe)

Well ... hmmm... dont think you are in

a position to judge here! *wink* Love ya!Aisha.

The Being Sick Members Lounge.....

* FREE counselling via email

* Daily Horoscopes

* FREE psychic/tarot readings via email

* Daily cartoons

* Members Profiles, locations and birthdays

* DAILY LIVE CHAT!!

* Medical Resources, and more.... http://www.elderwyn.com/members

~~~~~~~~~~~~~~~

“There will always be people who are better off and worse off then

you. This makes no difference to how you are feeling. You are the only

one who feels as you do, and you have every right to be negative or upset

when you are ill, injured, disabled, or caring for someone who is. Being

sick sucks. No one deserves being sick. It is not fair.” - Aisha Elderwyn.

~~~~~~~~~~~~~~~

Your subscription details

/mygroups

Proudly sponsored by Elderwyn Management

http://www.elderwyn.com

[Guest guest]

LOL Knew I should never have told you about !! (I always did

have poor taste in men.)

Did you see " changing rooms tonight? That show gives Interior designers a

bad name! Wish they would let me do it for a week!

Of course what you have is no mere common garden variety illness, Aisha, you

are far too rare and precious an individual for something ordinary! AWWWWW!

(out did myself with that one, hey! See I can be nice too!

Luv :-)

>From: " Aisha Elderwyn " <aisha@...>

>Reply-egroups

><egroups>

>Subject: Re: Hello

>Date: Wed, 3 May 2000 11:08:06 +1000

>

> I do NOT have sarcoidosis, i will have something far more exclusive and

> interesting than that!

>

> LMAO.... I dont think you can beat Janalise's leg. She wins.

>

> And it is not just sarc thank you - it is Neurosarcoidosis with RARE

>neurological side effects. You are welcome to it - I would be happy to give

>it to anyone who would take it!!!

>

> I hope you dont have it also - its a nasty illness.

>

> Anyway, who would want to be called normal?

>

> What is normal anyway?

>

> See ya later alligator! (Jon Bon Jovi indeed!!! hehehehe)

>

> Well ... hmmm... dont think you are in a position to

>judge here! *wink*

>

> Love ya!

> Aisha.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Thanks for the offer guys, but I think I'm gonna find out I have a

weird one all of my own! But don't worry, I will share it with you if

you like, I am a generous soul:-)

I'll let you keep yours for now though:-)

rachel :-)

>

> > I do NOT have sarcoidosis, i will have something far more

> > exclusive and

> > interesting than that! LMAO.... I dont think you can beat

> > Janalise's leg. She wins. And it is not just sarc thank you

> > - it is Neurosarcoidosis with RARE neurological side

> > effects. You are welcome to it - I would be happy to give it

> > to anyone who would take it!!! I hope you dont have it also

> > - its a nasty illness. Anyway, who would want to be called

> > normal? What is normal anyway?

> > See ya later alligator! (Jon Bon Jovi indeed!!! hehehehe)

> >

> > Well ... hmmm... dont think you are in a

> > position to judge here! *wink* Love ya!Aisha.

> >

> > ------------------------------------------------------------------

-----

> >

> > ------------------------------------------------------------------

-----

> > The Being Sick Members Lounge.....

> > * FREE counselling via email

> > * Daily Horoscopes

> > * FREE psychic/tarot readings via email

> > * Daily cartoons

> > * Members Profiles, locations and birthdays

> > * DAILY LIVE CHAT!!

> > * Medical Resources, and more.... http://www.elderwyn.com/members

> >

> > ~~~~~~~~~~~~~~~

> >

> > " There will always be people who are better off and worse off

then

> > you. This makes no difference to how you are feeling. You are the

only

> > one who feels as you do, and you have every right to be negative

or

> > upset when you are ill, injured, disabled, or caring for someone

who

> > is. Being sick sucks. No one deserves being sick. It is not

fair. " -

> > Aisha Elderwyn.

> >

> > ~~~~~~~~~~~~~~~

> >

> > Your subscription details

> > /mygroups

> >

> > Proudly sponsored by Elderwyn Management

> > http://www.elderwyn.com

>

> >

[Guest guest]

Hi everyone,

I just signed up for the challenge and today was my

first day. I actually signed up in January but got

" side-tracked " and never did much. I have a friend at

work that has been doing it since January and she

looks absolutely fabulous! She has been encouraging

me to do it again so here I am. I got up early this

morning and did a walk/run for 20 minutes. I'm still

not sure about what level I'm exercising at yet but

I'm sure it will come. Also, I forgot my inhaler so I

couldnt' really get my level up too high. Tomorrow

morning, it's weights! I have a weight bench and some

free weights at home that my husband got me for

Christmas. Guess I'll have to wipe off the cobwebs!

BTW - I'm Deb, I live in Denver and I'm a paralegal.

I'm also 50 years old! Any other boomers out there?

I know it's harder for us " oldies " to make physical

changes.

Deb

__________________________________________________

[Guest guest]

Hi Deb!

Welcome to the greatest group ever. There is so much knowledge,

motivation and support in this group, you are sure to meet your

goals. Can you tell us what your goals are? I also live in Denver

(Northglenn). I wish I could say that it is my age (I'm 25) that

keeps me from making progress. I have found that I can be my own

worst enemy. Anyway, maybe we can get together for a workout

sometime :<) Jannette

[Guest guest]

Deb,

You are only as old as you feel. But you are also as " young " as you feel.

Drop that " old " stuff and jump on the bandwagon. You are very young compared

to many who have made the decision to change their bodies along with their

lives. If anything, this will make you younger than you could possibly

imagine!

BTW, I am 44.

~Laury

[Guest guest]

In a message dated 05/24/2000 11:02:33 AM Eastern Daylight Time,

pamr@... writes:

<< Hi Deb. I'm 40 and a paralegal manager in Texas. Lots of legal minds on

this challenge - YIKES! Welcome aboard.

>>> gloe2000@... 05/24/00 09:56AM >>>

Hi Deb, yes lots of boomers here. I'm 47, and a licensed attorney in

Nevada, but have not been practicing law for about a year now.

Congratulations on starting the challenge. . . this is a great group.

Welcome!

>>

That's right. I am a Police Officer in Seattle.

~Laury

[Guest guest]

Hello

My son, , is 4 years and much higher maintenance than his 4 month old

sister! He's not officially diagnosed yet so I usually describe him as

'autisticy' We're going to try the gf/cf diet if his sample comes back

positive - all he eats is bread, potato and milk!

I think it was ine who wrote about trips to the park (I'm getting

behind, I know) I used to go to the park with but now his Dad takes

him. He is SO dangerous I just can't keep track of him and as for

sitting,chatting to other mums I gave up on that a long time ago. Still I

know exactly what you mean, I'd look at the other mums relaxing whilst their

kids played and feel even more miserable.

About Elie moving house; we did recently (and I was REALLY worried about how

would take it )- You've probably already thought of this, but we

read a very simple book called 'moving house' over and over and

over. As the house was empty we were able to visit it daily before the big

day. Anyway he coped very well, much to my surprise. Good Luck!

Kayte

[Guest guest]

In a message dated 06/10/2000 11:39:26 PM Central Daylight Time,

aisha@... writes:

<< It is not a weakness my sweet, it is a strength. >>

This is extremely profound.

I don't know if we are allowed to mention religion in here, but there's a

song that always touched my heart when I was scared. Can I share it?

You shall walk the barren desert

but you shall not die of thirst.

You shall wander far in safety

though you do not know the way.

You shall speak your words in foreign lands

and all will understand.

You shall see the face of God and live.

Be not afraid. I go before you always.

Come, follow me, and I will give you rest.

When you think you're alone, you aren't. You have this entire group praying

for you tonight...and certainly all those prayers..can you feel them....we

are all thinking about you tonight.

Love,

Lillian

[Guest guest]

Cry Leigh...

It is not a weakness my sweet, it is a strength. Perhaps taking you away for a few days is the best thing for you. I know you don't think you can leave everyone at this time, but allow him to nurture you. You need that love dear one. Be gentle on yourself. Allow the love in.

Know that I am sending you lots of loving vibes right now and that if I was there I would huggle you and keep you safe from the world.

Aisha.

[Guest guest]

In a message dated 6/11/00 12:28:07 AM Eastern Daylight Time,

country_desire@... writes:

<< Anyways, I don't know what to do. I do know that I

must take it day by day.

The worst part is, I will not allow myself to cry that

much.

Love,

Leigh

>>

Leigh, sometimes its good to have a good cry. It may even make you feel

better just a little bit. Ya know, Maybe a small vacation would be just what

you need?. Maybe you should go away for a couple of days.

Feel Better!

Hugs & Prayers to you

Tasha

[Guest guest]

I am still here. My time to be cranky. Maybe 4 more years of

this......and counting! LOL Ah but the freedom comes with it's own

problems doesn't it?! Life is Grand!!!!!!

))))))HUGS ALL(((((((

DORIE

[Guest guest]

"I am still here. My time to be cranky. Maybe 4 more years ofthis......and counting! "

Hey Dorie,

What is it again that you have to endure? And I just love this background but then again I love stars LOL....

Maybe 4 more years of this?? What is this??

With Love

a concerned Aisha

[Guest guest]

, welcome!

Kathy H has supplied you with a good list for medications, but I want to

add the site to read when you are choosing a behavioural therapist.

/Jenike+Article+on+Choosing+Behavior\

al+Therapist.htm

There are several interesting files to read at our web site

under FILES and LINKS.

I have 3 kids with ocd and depression. My oldest (17), and most severe was

diagnosed at 12, he must take medication. My #2 (14) was 10 when she was

diagnosed and is presently med free. She does wonderfully with self directed

therapy. #3 is 11, diagnosed at 7 and is taking medication to help her deal

with her anxiety and obtrusive thoughts. She also does very well with cbt,

and we hope to reduce her meds soon.

I cant stress enough the importance of taking care of yourself. We go

through excessive stress that effects our ability to work and have

relationships, never mind to sleep and think!! The best suggestion is to

find a counsellor for yourself with experience dealing with ocd in the

family. If you need an anti-depressant, take it! Most of us are on

something! This medication doesnt change your personality; it helps you to

cope better and you can think more clearly without feeling so overwhelmed!

Can you share with us where you live, how school is for your daughter,

etc.? You will find many people going through similar experiences here,

really!

take care, wendy in canada wb4@...

=================================================

>At 04:44 PM 06/26/2000 -0000, you wrote:

> >My name is

> >I have a 8 year old daughter with OCD. Tomorrow is are first trip to

> >get medications for her. She has been seeing a therapist for two

> >months. We have been waiting for this appointment for a month. Any

> >suggestions about questions I should ask?

> >Thanks and God Bless.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi :

Welcome to the list. The early days of dealing with OCD treatments are

often confusing for all concerned. What kind of therapy has your daughter

been receiving for the last two months? The expert consensus guidelines

for OCD show that exposure and response prevention (E & RP), a form of

cognitive behavior therapy (CBT) is the most effective treatment for OCD in

children. THese guidelines also indicate that for children with OCD the

first line treatment is E & RP without medication.

I have a son, Steve, now 13, who was too depressed to do E & RP initially so

we did put him on medication. Often kids with OCD have other disorders

that require medication too. It is a good idea to arm yourself with quite

a bit of information before going to the doctor for medication. A helpful

site is the OCF web site which has a section specifically on medication for

children. Their URL is http://www.ocfoundation.org.

Some questions you might want to ask about meds include:

1) how do you expect this medication will help my child?

2) what dosage should they take and how do we titrate up to that dosage?

3) what side effects should I watch out for?

4) why do you recommend drug x out of the 6+ anti-obsessional medications

available?

5) how can the possible side effects be managed?

6) under what circumstances should we discontinue the medication?

7) how long will my daughter be taking this medication?

8) have you treated other children with OCD with this medication? How many?

9) how soon should we expect to see positive results re: OCD?

10) will this drug interact with prescription y that my child is currently

taking (if applicable)?

11) is there anything else I should be asking you about this medication?

Good luck, please keep us posted on how the appointment goes, take care,

aloha, Kathy (H)

kathyh@...

At 04:44 PM 06/26/2000 -0000, you wrote:

>My name is

>I have a 8 year old daughter with OCD. Tomorrow is are first trip to

>get medications for her. She has been seeing a therapist for two

>months. We have been waiting for this appointment for a month. Any

>suggestions about questions I should ask?

>Thanks and God Bless.

[Guest guest]

In a message dated 7/7/00 7:41:41 AM Central Daylight Time, dlga@...

writes:

> he was also

> diagnosed with Sensory Integration about 1 yr ago. Any specific

> steps of advice out there?

Do you know if you have any OT's where you are that work specifically with

SID? has a really good therapist for SID but we have only been with

him for about 6 weeks. I am amazed at how intrusive SID is into his life. I

knew we had to work around some things ... like clothing issues but didn't

realize just what all we were doing and what ways he had found to cope. The

poor kid doesn't do anything that isn't in response to some sensory problem.

Either craving sensory input or avoiding it. He was dx'd with PDD (a type of

autism) but it seems to be more SID than PDD. Where do you live? Maybe

's therapist knows of a good one in your area. There is a brushing

technique that is supposed to work wonders that we will start on Monday. Also

weighted lap belts and or vests have done amazing things for him when he has

sit down time.

Peggikaye ... Oklahoma

[Guest guest]

Hi , Welcome to our group!!

There are excellent links to articles and more information on our web

site To connect to the site, type

in your email address and password, then click on you want to read (FILE,

LINK, ...). Sunday evenings, 10pm eastern time, there is a chat at this

site (click the CHAT option). Its a great opportunity to ask questions and

get to know some of us better.

Expect to be overwhelmed with lots of information! Depending on the

severety of your sons ocd, there are basic steps you could be taking:

1. look for a qualified cognitive behavioral therapist trained in the method

of Exposure and Response Prevention and understands the families role in

when treating ocd. (Ph.D, social worker, etc) (there is an article on how

to do this at the web site)

2. discuss, after a thorough assessment if the cbt is sufficient, and if

medications are necessary, which psychiatrist is recommended with experience

treating ocd. (there's an article on medication for children)

3. look for a support group in your area. the resources from local people

are unlimited!! OBSESSIVE COMPULSIVE DISORDER, NEW HELP FOR THE FAMILY by

Dr. Herbert Gravitz is a short practical book on the effect of OCD on the

family.

4. TAKE CARE OF YOURSELF! We, as the primary care givers, need to be

productive. It is very important to allow yourself time alone or with

friends on a regular basis. You dont want to burn out!!

Perhaps you could tell us more about where you live, your family, etc. Since

we are located all over the world, maybe someone is from your area and can

help with your search.

take care, wendy in canada wb4@...

========================================

>Hello,

>

>i am new here. I have an 8 yr old son who was diagnosed with OCB

>about 1 1/2 weeks ago so we are very new to this! he was also

>diagnosed with Sensory Integration about 1 yr ago. Any specific

>steps of advice out there? how can we best help our son? His school

>diagnosed him and then said we'll meet again in the fall. No

>resources or even a definition of what this is. Any help would be

>greatly appreciated!

>

>

>dlga@...

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

> Hello,

>

> i am new here. I have an 8 yr old son who was diagnosed with OCB

> about 1 1/2 weeks ago so we are very new to this! he was also

> diagnosed with Sensory Integration about 1 yr ago. Any specific

> steps of advice out there? how can we best help our son? His

school

> diagnosed him and then said we'll meet again in the fall. No

> resources or even a definition of what this is. Any help would be

> greatly appreciated!

>

>

> dlga@s...

,

Prepare for a rough road. Ocd is a difficult illness, and its

difficult to get teachers to understand that these children cant help

the things they do. Keep in constant contact with his teacher, I

practically lived at my daughters school last year. She is also 8

yeares old. We found a wonderful clinic, The Marcus institute at

Emory University in Georgia, they specialize in children with all

different behavioral and emotional and learning disorders. They are

getting us on the right track. Read all you can and educate yourself,

the more you know the better,I have been searching for a support

group for kids but I have not found one yet. Kids with ocd tend to

be isolated alot from their peers, especially if they spend alot of

their day on rituals.

Good luck, Let me know how he does

Ilene

[Guest guest]

Hi .

This sounds so familiar. I woke up one morning with my defib firing... It

attempted something like 87 times.... I only got 5 of those. Thank

goodness! Seems I had fractured one of the leads while doing sit ups.. See

what I get for trying to be healthy? ha ha.. Anyway..... they got all my

leads out and I have new everything...... subclavian.... since Feb... Hope

all goes well with your new unit.

Amy

hello

>Hello all...

> I had my 1st ICD implanted in 1995 after developing v-tach which was

>secondary to two heart attacks. One was massive with cardiac arrest,

>etc. and the other mild by comparison. I was on lots of drugs for about

>a year and got my ICD only after the drugs no longer worked. I have

>been relatively trouble-free as my ICD always seemed to get my rhythms

>straightened out before I needed any defib shocks.

> Last week I ran into a scary situation and wanted to know if anyone

>has had a similar situation. I began getting defib shocks at home and

>then at the hospital. Needless to say, everyone gor pretty nervous

>watching me yelp and rise off the bed 6 inches every time I got zapped.

>I also got lots of strange sensations like I was getting paced at

>different speeds. Anyway, to keep this short...I ended up going to

>surgery where the EP put in a new lead (next to the old one) because the

>original had fractured. It seems a fractured or defective lead will

>cause the ICD to receive incorrect signals and shock you even when you

>don't need it.

> Any comments about lead problems would be appreciated. Regular

>e-mails are okay.

>

>

>

>Please visit the Zapper homepage at

>http://www.ZapLife.org

>

>

[Guest guest]

Hi, Just thought that I would throw my two cents worth in everytime I have

had a problem with my defrillator not working correctly and giving me shock

when they weren't really necessary was with a broken or fractured lead. One

of my worst episodes was about 10 years ago when it fired 48 times in three

hours and no one could even find a magnet to turn it off. I had to life

flighted to the Cleveland Clinic. I have a couple of leads which they can't

even remove becase they are so fried. Ot is a very horrible scary feeling to

have your body out of control and you can't do anything but lay there and

yell.

[Guest guest]

Sprague wrote:

hello, i dont know if any of you are interested in

what i have been doing in

my free time.

but heres a link to it if you are.

http://cgi.ebay.com/aw-cgi/eBayISAPI.dll?ViewItem & item=424212149

if you want to see all 3 just click on see my other auctions.

Melinda

Melinda-

I am always interested in the hobbies of others, especially since I

have so many of my own... that I just can't seem to get my butt in gear

to do. Maybe if I see how much fun everyone else is having...

I'll get my butt in gear sooner, rather than later!

Keep showing off your works....

Please inspire me!!

Love Always,

Anne

[Guest guest]

You never need

apologise. LOL we are all misery guts here! Vent all you need hon.Love

Aisha the Madwoman.

Penny,

She is not

kidding... she is a MAD woman! (but we love her anyway!)

How are you

doing today? Has your pain let up at all??

My brother's

girlfriend & her identical twin Bridget both have Endometriosis...

that is one wicked surgery.... I never thought that part could swell to

that big! Her crotch came all the way down to below her knees for

about a week after the surgery... NO Thanks! I'll pass!

Love,

Anne