Guest guest Report post Posted January 18, 2002 Tamara, Here is a website that sells weighted blankets amoung other great equipment I'm assuming that you're in the US http://www.southpawenterprises.com/html/home.asp Andy :0) help > > > Can anyone tell me how to get these > kids such as ours to sleep normally? > My daughter gets up one morning at > 3 and the next at 5 and so on and > so forth. This makes life rather > hard on us parents. Please know that > my precious angel Chelsie also has > Down Syndrome as well as Autism. > > Thank you for any suggestions that any > of you may have. > > Kristy > > ===== > " With men this is impossible, but with God ALL > things are possible " 19:26 > Here you can see pictures of my precious angel to > which this scripture comes to life > http://www.geocities.com.angelhugz_19_35/ > God bless you Kristy > > __________________________________________________ > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2002 Shirley Ann, be very careful with the gels...The boys that make candles for me are doing away with the gels because they are not that stable.... But they did shrink wrap them to ship...And if they are shrink wrapped, they should hold the scent for a long time... frances Help > Hi All. > I was asked to make some gel candles, I have the supplies but I have a > question. How do I pack them for transport? Can I shrink wrap them? > Also can I make these candles in the summer and store them for the holidays? > Any suggestions would be appreciated. > Thank you all. > > Shirley Ann > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2002 You are not alone - we have been battling this problem for over a year ourselves. She has wandered away several times, once without us even knowing (she pushed the screen out of the bedroom window and climbed out, we didn't know until a neighbor brought her back. Once she snuck away from the church nursery and was sitting on the curb of a major street. We have also found her on the roof of the house and playing on the rail of the choir loft (40 ft high) also hates to have things like bracelets on so a device wouldn't work for us. You can buy a less expensive proximity alarm in many computer catalogs. The idea is that a traveler would wear the bracelet and put the alarm in his laptop case. If someone tried to steal it it would go off when it was 75' away. I could see this working for your daughter if she would wear something on her wrist. Because ours won't, we have done several other things: We further proofed the house with chain locks, a chainlink fence around the back yard and locks on all the windows. We made a tee-shirt that says " I'm autistic - I don't speak and often run away. If you see me without an adult, please take me to the police " , etc. and put our phone numbers on it. We have considered temporary tattoos like the tee-shirts, but she has been leaving her clothes on lately so we haven't done this. We have informed the neighborhood and the local police department. Last but certainly not least, we got a service dog. We are owner-training him and several of his tasks have to do with keeping from wandering away. I am also going to start working with the local search and rescue team so that they know the situation, and Harry (the dog) gets training as a rescue dog. Take Care and Good Luck! Jerry > I was wondering if there is anyone that has problems with their children wandering. My daughter will be 4yrs old & she is totally unaware of her surroundings. I >have childproofed my house to the best of my abilities but i know one day she will figure a way out of my home or backyard. I am looking for an electronic >tracking device (like the alzheimers patients wear). But i am unsure about where do start my search. Would i need to call my police dept or the sherrif's dept ?? . >Any suggestions would be appreciated. We live in Columbus OH. Thanks again -- > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2002 Hello also from Ohio..... I have no advice as to where to look for such a device. Just a remedy that I used when my dd was that age. She was also a " wanderer " and still is to some degree. She is 13 now. I used a wrist holder with her. It was made of soft fabric with velcro to close around her wrist, It had a stretchy plastic cord with a clip for my belt loop. It resembled a leash and I got quite a few stares but I didn't have to worry when in public. I can tell you though she has improved with age and hard work, she will now set on front porch (alone) for 20 - 30 mins with out bothering to wander after that I must prompt her to stay there. I wish the best for you and goodluck with your search. Ro robuds@... >From: " & Rick Legg " <rlegg@...> >Reply-Autism_in_Girls ><CPAC >, <Autism_in_Girls >, ><ASFriendlinkOhio >, <AutismOhio > >Subject: help >Date: Tue, 12 Mar 2002 12:01:27 -0500 > >I was wondering if there is anyone that has problems with their children >wandering. My daughter will be 4yrs old & she is totally unaware of her >surroundings. I have childproofed my house to the best of my abilities but >i know one day she will figure a way out of my home or backyard. I am >looking for an electronic tracking device (like the alzheimers patients >wear). But i am unsure about where do start my search. Would i need to call >my police dept or the sherrif's dept ?? . Any suggestions would be >appreciated. We live in Columbus OH. Thanks again -- > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2002 Jerry Where did you get your search and rescue dog? Can I purchase one in Canada? I laughed when I read your e-mail because it really hit home. I was thinking of getting a t-shirt too. At present we have a alarm in the house with motion detectors that make a small noise when not activated any time someone opens the door . We have locks on her door so she does not wander at night on to the street as well. We are considering a t-shirt. I am very interested in the dog can you tell me more about it. . Re: Help > You are not alone - we have been battling this problem for over a year > ourselves. She has wandered away several times, once without us even > knowing (she pushed the screen out of the bedroom window and climbed out, we > didn't know until a neighbor brought her back. Once she snuck away from the > church nursery and was sitting on the curb of a major street. We have also > found her on the roof of the house and playing on the rail of the choir loft > (40 ft high) > > also hates to have things like bracelets on so a device wouldn't work > for us. You can buy a less expensive proximity alarm in many computer > catalogs. The idea is that a traveler would wear the bracelet and put the > alarm in his laptop case. If someone tried to steal it it would go off when > it was 75' away. I could see this working for your daughter if she would > wear something on her wrist. > > Because ours won't, we have done several other things: > > We further proofed the house with chain locks, a chainlink fence around the > back yard and locks on all the windows. > > We made a tee-shirt that says " I'm autistic - I don't speak and often run > away. If you see me without an adult, please take me to the police " , etc. > and put our phone numbers on it. > > We have considered temporary tattoos like the tee-shirts, but she has been > leaving her clothes on lately so we haven't done this. > > We have informed the neighborhood and the local police department. > > Last but certainly not least, we got a service dog. We are owner-training > him and several of his tasks have to do with keeping from wandering > away. I am also going to start working with the local search and rescue > team so that they know the situation, and Harry (the dog) gets training as a > rescue dog. > > Take Care and Good Luck! > > Jerry > > > > I was wondering if there is anyone that has problems with their children > wandering. My daughter will be 4yrs old & she is totally unaware of her > surroundings. I >have childproofed my house to the best of my abilities but > i know one day she will figure a way out of my home or backyard. I am > looking for an electronic >tracking device (like the alzheimers patients > wear). But i am unsure about where do start my search. Would i need to call > my police dept or the sherrif's dept ?? . >Any suggestions would be > appreciated. We live in Columbus OH. Thanks again -- > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2002 Jerry Where did you get your search and rescue dog? Can I purchase one in Canada? I laughed when I read your e-mail because it really hit home. I was thinking of getting a t-shirt too. At present we have a alarm in the house with motion detectors that make a small noise when not activated any time someone opens the door . We have locks on her door so she does not wander at night on to the street as well. We are considering a t-shirt. I am very interested in the dog can you tell me more about it. . Re: Help > You are not alone - we have been battling this problem for over a year > ourselves. She has wandered away several times, once without us even > knowing (she pushed the screen out of the bedroom window and climbed out, we > didn't know until a neighbor brought her back. Once she snuck away from the > church nursery and was sitting on the curb of a major street. We have also > found her on the roof of the house and playing on the rail of the choir loft > (40 ft high) > > also hates to have things like bracelets on so a device wouldn't work > for us. You can buy a less expensive proximity alarm in many computer > catalogs. The idea is that a traveler would wear the bracelet and put the > alarm in his laptop case. If someone tried to steal it it would go off when > it was 75' away. I could see this working for your daughter if she would > wear something on her wrist. > > Because ours won't, we have done several other things: > > We further proofed the house with chain locks, a chainlink fence around the > back yard and locks on all the windows. > > We made a tee-shirt that says " I'm autistic - I don't speak and often run > away. If you see me without an adult, please take me to the police " , etc. > and put our phone numbers on it. > > We have considered temporary tattoos like the tee-shirts, but she has been > leaving her clothes on lately so we haven't done this. > > We have informed the neighborhood and the local police department. > > Last but certainly not least, we got a service dog. We are owner-training > him and several of his tasks have to do with keeping from wandering > away. I am also going to start working with the local search and rescue > team so that they know the situation, and Harry (the dog) gets training as a > rescue dog. > > Take Care and Good Luck! > > Jerry > > > > I was wondering if there is anyone that has problems with their children > wandering. My daughter will be 4yrs old & she is totally unaware of her > surroundings. I >have childproofed my house to the best of my abilities but > i know one day she will figure a way out of my home or backyard. I am > looking for an electronic >tracking device (like the alzheimers patients > wear). But i am unsure about where do start my search. Would i need to call > my police dept or the sherrif's dept ?? . >Any suggestions would be > appreciated. We live in Columbus OH. Thanks again -- > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2002 Jerry, Thanks for your ideas !! I probably would be able to get my daughter to wear a bracelet around her ankle. I am in the process of making a few calls. How did you train your dog. I have 4yr old black lab that i am very interested in training for a service animal for her. I have a chain link fence but she has got very adapt to climbing (she can climb on our stove now) & i hope it will be awhile before she discovers she can climb over the fence. feel free to email me off the list if you wish rlegg@ insight.rr.com Thanks -- Re: Help You are not alone - we have been battling this problem for over a year ourselves. She has wandered away several times, once without us even knowing (she pushed the screen out of the bedroom window and climbed out, we didn't know until a neighbor brought her back. Once she snuck away from the church nursery and was sitting on the curb of a major street. We have also found her on the roof of the house and playing on the rail of the choir loft (40 ft high) also hates to have things like bracelets on so a device wouldn't work for us. You can buy a less expensive proximity alarm in many computer catalogs. The idea is that a traveler would wear the bracelet and put the alarm in his laptop case. If someone tried to steal it it would go off when it was 75' away. I could see this working for your daughter if she would wear something on her wrist. Because ours won't, we have done several other things: We further proofed the house with chain locks, a chainlink fence around the back yard and locks on all the windows. We made a tee-shirt that says " I'm autistic - I don't speak and often run away. If you see me without an adult, please take me to the police " , etc. and put our phone numbers on it. We have considered temporary tattoos like the tee-shirts, but she has been leaving her clothes on lately so we haven't done this. We have informed the neighborhood and the local police department. Last but certainly not least, we got a service dog. We are owner-training him and several of his tasks have to do with keeping from wandering away. I am also going to start working with the local search and rescue team so that they know the situation, and Harry (the dog) gets training as a rescue dog. Take Care and Good Luck! Jerry > I was wondering if there is anyone that has problems with their children wandering. My daughter will be 4yrs old & she is totally unaware of her surroundings. I >have childproofed my house to the best of my abilities but i know one day she will figure a way out of my home or backyard. I am looking for an electronic >tracking device (like the alzheimers patients wear). But i am unsure about where do start my search. Would i need to call my police dept or the sherrif's dept ?? . >Any suggestions would be appreciated. We live in Columbus OH. Thanks again -- > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 3, 2002 Hey Chuck, You didn't mention it but how about Ultrasound? Works fine for me. Is there a traction calcaneal spur? Is it long standing ?. And most of all is she overweight? Major factor!!!!! Does she go around a lot bare footed or in sandals? I find these factors outside of the office often slow down the progress and/or doesn't help at all. Always a big factor. Good luck. Stover help > Hi All, > Who's good with feet? (Ted?) Anyway, gotta 40-something female with > refractory plantar fascitis. I've done my magic (CMT, taping, orthotics, > exercises, footwear). The MD has done his thing (Celebrex) and the DPM her > thing (locals, more orthotics). Except for lots of head-scratching, no one > has made much progress in about a year. She is at her wits' end. Fresh > ideas welcome. > Thanks > Chuck Simpson > > > OregonDCs rules: > 1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated. > 2. Always sign your e-mails with your first and last name. > 3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 3, 2002 Chuck: I have used pulse ultrasound in combination with simultaneous negative high volt galvanic current in addition all the things you have listed. In the few rare cases this did not do it a sclerosing injection from the DPM I use ends the ordeal. VErn Saboe, DC Albania help > Hi All, > Who's good with feet? (Ted?) Anyway, gotta 40-something female with > refractory plantar fascitis. I've done my magic (CMT, taping, orthotics, > exercises, footwear). The MD has done his thing (Celebrex) and the DPM her > thing (locals, more orthotics). Except for lots of head-scratching, no one > has made much progress in about a year. She is at her wits' end. Fresh > ideas welcome. > Thanks > Chuck Simpson > > > OregonDCs rules: > 1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated. > 2. Always sign your e-mails with your first and last name. > 3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 3, 2002 Chuck, I have seen next to miraculous results with my Microlight 830 cold laser on Plantar fascitis.Like you I always do an adjustment, use orthotics, and tape if necessary. Sorry, there is nobody on the west side of PDX that has this laser. Ron Johansen On Fri, 3 May 2002 19:27:36 EDT simpsondc@... writes: > Hi All, > Who's good with feet? (Ted?) Anyway, gotta 40-something female > with > refractory plantar fascitis. I've done my magic (CMT, taping, > orthotics, > exercises, footwear). The MD has done his thing (Celebrex) and the > DPM her > thing (locals, more orthotics). Except for lots of head-scratching, > no one > has made much progress in about a year. She is at her wits' end. > Fresh > ideas welcome. > Thanks > Chuck Simpson > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2002 , In Ohio there is something called Waiver that can help with the cost of the infusions and home care. I have used both University Home care (University hospital) and Northcoast both seem ok but the University home care nurses weren't the best also there is a place called Genteva that is suppose to be great. I don't know what insurance you have or if you have insurance and that will make a difference where you can go. Hope this helps. Good Luck. Rose Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2002 Sorry I've been on tour during all the great responses on this subject. One of my personal favorites. In a nut shell, because I am a terrible typist, below is an outline of my approach to PF. However, often unresponsive proximal PF is often complicated by medial calcaneal neuritis or other biomechanical aberration. Manipulation (typically subtalar, midtarsal and/or MPJ's) Ultrasound EMS Massage Transverse friction massage Graston technic Biomechanical foot wear functional orthotics low dye taping night splinting nutrition stretching periodized strengthening program Ted Ted Forcum, DC, DACBSP, CSCS Back In Motion Sports Injuries Clinic, LLC 11385 SW Scholls Ferry Road Beaverton, Oregon 97008 ph 503.524.9040 On Fri, 3 May 2002 19:27:36 EDT simpsondc@... writes: > Hi All, > Who's good with feet? (Ted?) Anyway, gotta 40-something female > with > refractory plantar fascitis. I've done my magic (CMT, taping, > orthotics, > exercises, footwear). The MD has done his thing (Celebrex) and the > DPM her > thing (locals, more orthotics). Except for lots of head-scratching, > no one > has made much progress in about a year. She is at her wits' end. > Fresh > ideas welcome. > Thanks > Chuck Simpson > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 5, 2002 Ron: What is a Microlight 830? Maybe I have been in a cave, OK no maybes. Ann Goldeen Astoria Re: help > Chuck, I have seen next to miraculous results with my Microlight 830 > cold laser on Plantar fascitis.Like you I always do an adjustment, use > orthotics, and tape if necessary. Sorry, there is nobody on the west side > of PDX that has this laser. Ron Johansen > On Fri, 3 May 2002 19:27:36 EDT simpsondc@... writes: > > Hi All, > > Who's good with feet? (Ted?) Anyway, gotta 40-something female > > with > > refractory plantar fascitis. I've done my magic (CMT, taping, > > orthotics, > > exercises, footwear). The MD has done his thing (Celebrex) and the > > DPM her > > thing (locals, more orthotics). Except for lots of head-scratching, > > no one > > has made much progress in about a year. She is at her wits' end. > > Fresh > > ideas welcome. > > Thanks > > Chuck Simpson > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 6, 2002 Second the motion of Stover. My wife loves to go barefoot though not pregnant. At home she stands on hard floors, the driveway, the patio, anything flat as a pancake and hard as a rock, etc. Arches hurt, legs hurt, back hurts. I mention shoes and she gives me " that look " which asys, " You may be a doctor but I know that deep down inside, you're just guessing most of the time " . I convince her to wear those rubber gardening clogs (DON NOT go to the store in these, you will not be allowed to write checks!) and it helps. The taping that Villnave showed us where you anchor the forefoot, wrap 2 longitudinal straps front to back around the heel, then anchor those is a great help and sometime a predictor of whether orthotics will help. BTW: P. Fasciitis, tennis elbow, carpal tunnel, and others: they use these structures 7 days per week. It often took months or years for the condition to become acute. I therefore try to convince the patient to get it ultrasounded 3-5X per week for a month. (And yes, I adjust the subluxations, too). If money is a problem, I tell them that they don't have to pay for every other visit. If it's still a problem I tell them to tell my staff that they forgot their checkbook and we won't charge them. I just don't see what is the big problem with health care coverage. If they are on managed care, they won't have to pay as it is not covered beyond reasonable and customary. -- Dr. Abrahamson > From: " Hillsboro Chiropractic Clinic, LLP " <hccllp@...> > Date: Fri, 3 May 2002 17:27:05 -0700 > < >, <simpsondc@...> > Subject: Re: help > > Hey Chuck, > You didn't mention it but how about Ultrasound? Works fine for me. Is > there a traction calcaneal spur? Is it long standing ?. And most of all is > she overweight? Major factor!!!!! > Does she go around a lot bare footed or in sandals? I find these factors > outside of the office often slow down the progress and/or doesn't help at > all. Always a big factor. > Good luck. > Stover > help > > >> Hi All, >> Who's good with feet? (Ted?) Anyway, gotta 40-something female with >> refractory plantar fascitis. I've done my magic (CMT, taping, orthotics, >> exercises, footwear). The MD has done his thing (Celebrex) and the DPM > her >> thing (locals, more orthotics). Except for lots of head-scratching, no > one >> has made much progress in about a year. She is at her wits' end. Fresh >> ideas welcome. >> Thanks >> Chuck Simpson >> >> >> OregonDCs rules: >> 1. Keep correspondence professional; the purpose of the listserve is to > foster communication and collegiality. No personal attacks on listserve > members will be tolerated. >> 2. Always sign your e-mails with your first and last name. >> 3. The listserve is not secure; your e-mail could end up anywhere. > However, it is against the rules of the listserve to copy, print, forward, > or otherwise distribute correspondence written by another member without his > or her consent, unless all personal identifiers have been removed. >> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 6, 2002 How can I get information about Waiver? Is it associated with BCMH. The problem is that our home infusion company; University, just found out that they can charge " list price " for 's drug so they are. In one month the cost of his medication jumped from $900.00 every three weeks to $2160.00 every three months. The lady said, " Because we can we are. " That's a pretty lame excuse but I'm stuck with it until I can find a company that will be ethical and not so worried about the dollar. In Him, Re: HELP > , > In Ohio there is something called Waiver that can help with the cost of the > infusions and home care. I have used both University Home care (University > hospital) and Northcoast both seem ok but the University home care nurses > weren't the best also there is a place called Genteva that is suppose to be > great. I don't know what insurance you have or if you have insurance and > that will make a difference where you can go. Hope this helps. Good Luck. > > Rose > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 6, 2002 , To apply for waivor you have to go to the dept of Human Services in your county. It is not based on your income only the childs and medical need. If you go there and they tell you it does not exsist ask for a supervisor. It is available in all counties in Ohio. I just helped someone else apply for it but she got the run around in Cuyahoga County. Hope this helps. Rose Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 8, 2002 Does anybody know if California has such a thing? le Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 10, 2002 Hi back to you ette, You are in luck! I DO faces! (as in, I am a makeup artist) Kay cosmetics has a creme to powder foundation (not liquid) that may work depending on your skin type. It comes with a round tiny pore sponge that you use for application. You could hold the sponge between the pointer and middle finger, lay the sponge over the back of the middle finger, and hold the other side with the middle and ring finger. You don't have to bend your wrist to apply color to the applicator, and I was able to sucessfully and rather easily get the hang of using the back of my hand for application instead of the palm side. I am sure there are other creme to powder foundations available on the market, I just don't keep up with them all. If you need ideas, I seem to have a very creative corner in my brain. Let me know if this helps. Caroline tgtb4g <sweetpeas777@...> wrote: Hi All I guess this would be for just the girls here but I need help with makup. Ok you know how stills makes wrists and fingers. Well I have bad ones. I can't turn them over. How in the world do I get some makeup on??? I have tried using a makup sponge, but it sucks up the whole thing! ette Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 i need some boys/men w/SMA Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 In a message dated 6/13/02 6:27:12 PM Central Daylight Time, mabriggs@... writes: > > Gee that's the way to get some Men! Pretty sly > i knew u'd say that mike!!!!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 Thanks all! Cross your fingers I'm competing against 2 other charities Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 Gee that's the way to get some Men! Pretty sly wrote: >i need some boys/men w/SMA Later, Mike Briggs Photo Gallery: http://www.pbase.com/photogrif/ " Fish Gotta Swim, I Gotta Dive " Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 , take a look at our site - there are lots of pictures of Bernie and . Help yourself. Good luck with your speech!! Bettylou http://www.ugalumni.uoguelph.ca/~eross HELP > i'm giving a speach to a company to get $10,000 for FSMA I'm looking for > photos of ppl w/SMA ..... i need them now.... my speach is tomorrow... > please share name, date of birth (death if any), sma type.... > > email them to esma1999@... > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 Do you still needs pictures? I just read your entry. If so e-mail back where you want it sent too. Linsu58 > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 26, 2002 I was just wondering if anyone could tell me what they gave there son/daughter to get them starting on taking the tolerex. My daughter is 2 and they want her to have 1 1/2 packs per day but so far i can't find anything to mix with it yet that she will drink. To top it off she is extremely fussy. Thanks Ann h Cameron SMA Type II Quote Share this post Link to post Share on other sites
