Guest guest Report post Posted May 20, 2010 Thank you so much. I will take a good look at this. > > > > > Hi > > > > > > After suffering with nasal congestion and discomfort for 18mths and my > GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS > surgery. Sadly the polyps quickly grew back and fast forward 4 years I have > now had 3 more FESS operations. > > > > > > My last of which was at the end of March. Sadly my polyps have grown > back within 8 weeks. > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, > betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken > steroids in short bursts over the last four years but this is the first time > on this one. I am not really comfortable with taking these and am hoping for > some advice. > > > > > > My quality of life is at times very poor. > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2010 Aspirin desensitization doesn't always work, true. But it works for many (and many who have been treated successfully don't bother with posting as they are going on about their lives without much problem). Avoiding salicylates may help, but its a difficult process, esp if you like to eat. Lots of healthy foods, fruits, berries, many veggies, tea etc are full of salicylates as are some toothpastes, most spices etc. Around here salicylates even come off the bark of aspen and cottonwood trees. Many of us have had dramatic changes with aspirin desensitization and it is the standard treatment today for Samter's. You probably do need to find a different ENT or allergist who is more informed about desensitization -- it sounds like you've suffered way too much already. On May 20, 2010, at 4:10 PM, kdcurlywurly12 wrote: I have thought until this point that my Polyps will not grow back. This week, finding that they are returning more quickly each time, I have decided I need to do some research. This is my first step. I have never been a member of one of these groups before and thought it would be useful for me. I take your comments on board. > >> > >> You don't mention the obvious - desensitization to aspirin. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 Hi , thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. Becky From: <soniarobins@...>samters Sent: Thu, 20 May, 2010 23:08:07Subject: RE: Re: Help My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help –it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. FRUIT LOW MODERATE HIGH VERY HIGH Pears Apple – Golden Red Delicious Apple – Granny Avocado Bananas Mango Apricot Kiwi Paw Paw Pear – can in juice Lychee Mandarin Rhubarb Peach Orange Tamarillo Rockmelon Passionfruit Custard Apple Watermelon Pineapple Loquat Lemon Grapes Tomato Date Grapefruit Rasberry Tangelo Prune Plum Raisins / Sultanas VEGETABLES Bamboo Shoots Beetroot Alfalfa Cauliflower Cabbage Carrots Capsicum Gherkins Celery Chinese Vegetables Chilli Olives Chives Parsnip Corn Broccoli Beans Potato – Red Cucumber Mushrooms Peas Pumpkin Onion Spinach Leek Snow Peas / Sprouts Zucchini Tomato Lettuce Sweet Potato Artichoke Broad Bean Mungbean Sprouts Asparagus Chickory Egg Plant Parsley Marrow Endive Champignon Potato White Turnip Watercress Cabbage Red Shallots Swede CEREALS / GRAINS Barley Any with: Buckwheat Honey/nuts/coconut/ fruit Cornflour Cornflakes Malt Cornmeal Rice Polenta Wheat Nutrigrain Rice cereals Rolled oats Rice /Soy /Rye flour FATS & OILS Butter Almond oil Coconut oil Ghee Corn oil Copha Margarine Peanut oil Olive oil Sunflower Sesame oil Canola Walnut LOW MODERATE HIGH VERY HIGH DRINKS Carob Powder Fruit juices Cordials Cow milk Soft drinks Goat milk Fruit flavoured drinks Lemonade / 7UP Cola drinks Soy milk Orange juice Cocoa powder Tomato juice Choc. flavoured Vegetable juice TEA & COFFEE Decaf. coffee Coffee Tea Tea – decaf., herbal Peppermint tea ALCOHOL Gin Beer Vodka Cider Whiskey Liqueur Port Rum Sherry All wine JAMS / SPREADS Caramels Molasses Chewing gum Carob Raw sugar Fruit flavoured anything Golden syrup Honey Malt extract Jams – all Maple syrup Liquorice Sugar Mint flavoured anything Toffee Peppermints Rice syrup Lemon butter Chocolate NUTS & SNACKS Cashews Corn chips Brazil Fruit flavours Plain crips Tacos Coconut Honey Pretzels Hazelnuts Muesli bars Macadamia Spicy flavours Peanuts Almonds Pecans Pinenuts Pistachio Roasted cashews Sesame seeds Sunflower seeds Walnuts LOW MODERATE HIGH VERY HIGH HERBS, SPICES ETC. Chives Allspice Tandoori Garlic Aniseed Vinegar Parsley Basil Gravies Poppy seeds Bayleaf Pastes – tomato etc. Saffron Cardamon Sauces – all Salt Carraway Stock cubes Shallots Cayenne Tomato sauce Vanilla Cinnamon Vegemite Malt vinegar Clove Soy sauce Coriander Soy paste Cumin Citric Acid Curry Oyster sauce Dill Fish sauce Five spice Garam Masala Ginger Mace Mint Mixed herbs Mustard Nutmeg Oregano Paprika Pepper Pimento Rosemary Sage Thyme Tumeric SAFE FOODS Chicken Ice creamEggs Natural yoghurt (no fruit)FishMeat Exceptions being: Devon / luncheon meatsMeat piesSalamiSausagesSeasoned meatSeasoned chicken AVOIDAll aspirin preparations, Menthol, Eucalyptus, Cough syrups and lozenges, Herbal remedies, flavoured toothpaste. From: kdcurlywurly12 [mailto:kdcurlywurl yhotmail (DOT) co.uk] Sent: Friday, 21 May 2010 7:45 AMsamters@groups .comSubject: Re: Help I mentioned it to my consultant but he said that it doesn't always work and brushed it aside.> > > Hi> > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > My quality of life is at times very poor.> > > > Does anyone have any hints, info, dietary tips etc.> > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > I look forward to hearing from you.> > > > > > > >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 I think someone up there must like us, chocolate is a godsend, I think I would have died without it. Just proves that this piece of ‘sinful delicacy’ is good for you after all. I just wish I could go through this aspirin desens. Maybe one day I’ll find a doctor who will do it but I’m not so sure if there’s one available in this country, maybe I should try the US of A? Daughter is heading over again in a few months, might make the trip with her this time. From: Bannister [mailto:beckyb256@...] Sent: Friday, 21 May 2010 4:52 PM samters Subject: Re: Re: Help Hi , thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. Becky From: <soniarobins@...> samters Sent: Thu, 20 May, 2010 23:08:07 Subject: RE: Re: Help My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help –it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. FRUIT LOW MODERATE HIGH VERY HIGH Pears Apple – Golden Red Delicious Apple – Granny Avocado Bananas Mango Apricot Kiwi Paw Paw Pear – can in juice Lychee Mandarin Rhubarb Peach Orange Tamarillo Rockmelon Passionfruit Custard Apple Watermelon Pineapple Loquat Lemon Grapes Tomato Date Grapefruit Rasberry Tangelo Prune Plum Raisins / Sultanas VEGETABLES Bamboo Shoots Beetroot Alfalfa Cauliflower Cabbage Carrots Capsicum Gherkins Celery Chinese Vegetables Chilli Olives Chives Parsnip Corn Broccoli Beans Potato – Red Cucumber Mushrooms Peas Pumpkin Onion Spinach Leek Snow Peas / Sprouts Zucchini Tomato Lettuce Sweet Potato Artichoke Broad Bean Mungbean Sprouts Asparagus Chickory Egg Plant Parsley Marrow Endive Champignon Potato White Turnip Watercress Cabbage Red Shallots Swede CEREALS / GRAINS Barley Any with: Buckwheat Honey/nuts/coconut/ fruit Cornflour Cornflakes Malt Cornmeal Rice Polenta Wheat Nutrigrain Rice cereals Rolled oats Rice /Soy /Rye flour FATS & OILS Butter Almond oil Coconut oil Ghee Corn oil Copha Margarine Peanut oil Olive oil Sunflower Sesame oil Canola Walnut LOW MODERATE HIGH VERY HIGH DRINKS Carob Powder Fruit juices Cordials Cow milk Soft drinks Goat milk Fruit flavoured drinks Lemonade / 7UP Cola drinks Soy milk Orange juice Cocoa powder Tomato juice Choc. flavoured Vegetable juice TEA & COFFEE Decaf. coffee Coffee Tea Tea – decaf., herbal Peppermint tea ALCOHOL Gin Beer Vodka Cider Whiskey Liqueur Port Rum Sherry All wine JAMS / SPREADS Caramels Molasses Chewing gum Carob Raw sugar Fruit flavoured anything Golden syrup Honey Malt extract Jams – all Maple syrup Liquorice Sugar Mint flavoured anything Toffee Peppermints Rice syrup Lemon butter Chocolate NUTS & SNACKS Cashews Corn chips Brazil Fruit flavours Plain crips Tacos Coconut Honey Pretzels Hazelnuts Muesli bars Macadamia Spicy flavours Peanuts Almonds Pecans Pinenuts Pistachio Roasted cashews Sesame seeds Sunflower seeds Walnuts LOW MODERATE HIGH VERY HIGH HERBS, SPICES ETC. Chives Allspice Tandoori Garlic Aniseed Vinegar Parsley Basil Gravies Poppy seeds Bayleaf Pastes – tomato etc. Saffron Cardamon Sauces – all Salt Carraway Stock cubes Shallots Cayenne Tomato sauce Vanilla Cinnamon Vegemite Malt vinegar Clove Soy sauce Coriander Soy paste Cumin Citric Acid Curry Oyster sauce Dill Fish sauce Five spice Garam Masala Ginger Mace Mint Mixed herbs Mustard Nutmeg Oregano Paprika Pepper Pimento Rosemary Sage Thyme Tumeric SAFE FOODS Chicken Ice cream Eggs Natural yoghurt (no fruit) Fish Meat Exceptions being: Devon / luncheon meats Meat pies Salami Sausages Seasoned meat Seasoned chicken AVOID All aspirin preparations, Menthol, Eucalyptus, Cough syrups and lozenges, Herbal remedies, flavoured toothpaste. From: kdcurlywurly12 [mailto:kdcurlywurl yhotmail (DOT) co.uk] Sent: Friday, 21 May 2010 7:45 AM samters@groups .com Subject: Re: Help I mentioned it to my consultant but he said that it doesn't always work and brushed it aside. > > > Hi > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > My quality of life is at times very poor. > > > > Does anyone have any hints, info, dietary tips etc. > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > I look forward to hearing from you. > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 , if you can then it is definately worth a try. My feeling is that we should all be desens if we can be. It is not a cure-all, but it does improve things a lot. Becky From: <soniarobins@...>samters Sent: Fri, 21 May, 2010 7:56:20Subject: RE: Re: Help I think someone up there must like us, chocolate is a godsend, I think I would have died without it. Just proves that this piece of ‘sinful delicacy’ is good for you after all. I just wish I could go through this aspirin desens. Maybe one day I’ll find a doctor who will do it but I’m not so sure if there’s one available in this country, maybe I should try the US of A? Daughter is heading over again in a few months, might make the trip with her this time. From: Bannister [mailto:beckyb256@ .co. uk] Sent: Friday, 21 May 2010 4:52 PMsamters@groups .comSubject: Re: Re: Help Hi , thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. Becky From: <soniarobins@ tsn.cc>samters@groups .comSent: Thu, 20 May, 2010 23:08:07Subject: RE: Re: Help My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help –it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. FRUIT LOW MODERATE HIGH VERY HIGH Pears Apple – Golden Red Delicious Apple – Granny Avocado Bananas Mango Apricot Kiwi Paw Paw Pear – can in juice Lychee Mandarin Rhubarb Peach Orange Tamarillo Rockmelon Passionfruit Custard Apple Watermelon Pineapple Loquat Lemon Grapes Tomato Date Grapefruit Rasberry Tangelo Prune Plum Raisins / Sultanas VEGETABLES Bamboo Shoots Beetroot Alfalfa Cauliflower Cabbage Carrots Capsicum Gherkins Celery Chinese Vegetables Chilli Olives Chives Parsnip Corn Broccoli Beans Potato – Red Cucumber Mushrooms Peas Pumpkin Onion Spinach Leek Snow Peas / Sprouts Zucchini Tomato Lettuce Sweet Potato Artichoke Broad Bean Mungbean Sprouts Asparagus Chickory Egg Plant Parsley Marrow Endive Champignon Potato White Turnip Watercress Cabbage Red Shallots Swede CEREALS / GRAINS Barley Any with: Buckwheat Honey/nuts/coconut/ fruit Cornflour Cornflakes Malt Cornmeal Rice Polenta Wheat Nutrigrain Rice cereals Rolled oats Rice /Soy /Rye flour FATS & OILS Butter Almond oil Coconut oil Ghee Corn oil Copha Margarine Peanut oil Olive oil Sunflower Sesame oil Canola Walnut LOW MODERATE HIGH VERY HIGH DRINKS Carob Powder Fruit juices Cordials Cow milk Soft drinks Goat milk Fruit flavoured drinks Lemonade / 7UP Cola drinks Soy milk Orange juice Cocoa powder Tomato juice Choc. flavoured Vegetable juice TEA & COFFEE Decaf. coffee Coffee Tea Tea – decaf., herbal Peppermint tea ALCOHOL Gin Beer Vodka Cider Whiskey Liqueur Port Rum Sherry All wine JAMS / SPREADS Caramels Molasses Chewing gum Carob Raw sugar Fruit flavoured anything Golden syrup Honey Malt extract Jams – all Maple syrup Liquorice Sugar Mint flavoured anything Toffee Peppermints Rice syrup Lemon butter Chocolate NUTS & SNACKS Cashews Corn chips Brazil Fruit flavours Plain crips Tacos Coconut Honey Pretzels Hazelnuts Muesli bars Macadamia Spicy flavours Peanuts Almonds Pecans Pinenuts Pistachio Roasted cashews Sesame seeds Sunflower seeds Walnuts LOW MODERATE HIGH VERY HIGH HERBS, SPICES ETC. Chives Allspice Tandoori Garlic Aniseed Vinegar Parsley Basil Gravies Poppy seeds Bayleaf Pastes – tomato etc. Saffron Cardamon Sauces – all Salt Carraway Stock cubes Shallots Cayenne Tomato sauce Vanilla Cinnamon Vegemite Malt vinegar Clove Soy sauce Coriander Soy paste Cumin Citric Acid Curry Oyster sauce Dill Fish sauce Five spice Garam Masala Ginger Mace Mint Mixed herbs Mustard Nutmeg Oregano Paprika Pepper Pimento Rosemary Sage Thyme Tumeric SAFE FOODS Chicken Ice creamEggs Natural yoghurt (no fruit)FishMeat Exceptions being: Devon / luncheon meatsMeat piesSalamiSausagesSeasoned meatSeasoned chicken AVOIDAll aspirin preparations, Menthol, Eucalyptus, Cough syrups and lozenges, Herbal remedies, flavoured toothpaste. From: kdcurlywurly12 [mailto:kdcurlywurl yhotmail (DOT) co.uk] Sent: Friday, 21 May 2010 7:45 AMsamters@groups .comSubject: Re: Help I mentioned it to my consultant but he said that it doesn't always work and brushed it aside.> > > Hi> > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > My quality of life is at times very poor.> > > > Does anyone have any hints, info, dietary tips etc.> > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > I look forward to hearing from you.> > > > > > > >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 Becky my daughter heads off to St Louis in October and if I can find an ENT somewhere along the route which means landing at Los Angeles and changing planes etc. I’ll definitely give it a go. I’m just so fed up with this after so many years and no doctor nor specialist here seems to want to try it. From: Bannister [mailto:beckyb256@...] Sent: Friday, 21 May 2010 5:18 PM samters Subject: Re: Re: Help , if you can then it is definately worth a try. My feeling is that we should all be desens if we can be. It is not a cure-all, but it does improve things a lot. Becky From: <soniarobins@...> samters Sent: Fri, 21 May, 2010 7:56:20 Subject: RE: Re: Help I think someone up there must like us, chocolate is a godsend, I think I would have died without it. Just proves that this piece of ‘sinful delicacy’ is good for you after all. I just wish I could go through this aspirin desens. Maybe one day I’ll find a doctor who will do it but I’m not so sure if there’s one available in this country, maybe I should try the US of A? Daughter is heading over again in a few months, might make the trip with her this time. From: Bannister [mailto:beckyb256@ .co. uk] Sent: Friday, 21 May 2010 4:52 PM samters@groups .com Subject: Re: Re: Help Hi , thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. Becky From: <soniarobins@ tsn.cc> samters@groups .com Sent: Thu, 20 May, 2010 23:08:07 Subject: RE: Re: Help My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help –it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. FRUIT LOW MODERATE HIGH VERY HIGH Pears Apple – Golden Red Delicious Apple – Granny Avocado Bananas Mango Apricot Kiwi Paw Paw Pear – can in juice Lychee Mandarin Rhubarb Peach Orange Tamarillo Rockmelon Passionfruit Custard Apple Watermelon Pineapple Loquat Lemon Grapes Tomato Date Grapefruit Rasberry Tangelo Prune Plum Raisins / Sultanas VEGETABLES Bamboo Shoots Beetroot Alfalfa Cauliflower Cabbage Carrots Capsicum Gherkins Celery Chinese Vegetables Chilli Olives Chives Parsnip Corn Broccoli Beans Potato – Red Cucumber Mushrooms Peas Pumpkin Onion Spinach Leek Snow Peas / Sprouts Zucchini Tomato Lettuce Sweet Potato Artichoke Broad Bean Mungbean Sprouts Asparagus Chickory Egg Plant Parsley Marrow Endive Champignon Potato White Turnip Watercress Cabbage Red Shallots Swede CEREALS / GRAINS Barley Any with: Buckwheat Honey/nuts/coconut/ fruit Cornflour Cornflakes Malt Cornmeal Rice Polenta Wheat Nutrigrain Rice cereals Rolled oats Rice /Soy /Rye flour FATS & OILS Butter Almond oil Coconut oil Ghee Corn oil Copha Margarine Peanut oil Olive oil Sunflower Sesame oil Canola Walnut LOW MODERATE HIGH VERY HIGH DRINKS Carob Powder Fruit juices Cordials Cow milk Soft drinks Goat milk Fruit flavoured drinks Lemonade / 7UP Cola drinks Soy milk Orange juice Cocoa powder Tomato juice Choc. flavoured Vegetable juice TEA & COFFEE Decaf. coffee Coffee Tea Tea – decaf., herbal Peppermint tea ALCOHOL Gin Beer Vodka Cider Whiskey Liqueur Port Rum Sherry All wine JAMS / SPREADS Caramels Molasses Chewing gum Carob Raw sugar Fruit flavoured anything Golden syrup Honey Malt extract Jams – all Maple syrup Liquorice Sugar Mint flavoured anything Toffee Peppermints Rice syrup Lemon butter Chocolate NUTS & SNACKS Cashews Corn chips Brazil Fruit flavours Plain crips Tacos Coconut Honey Pretzels Hazelnuts Muesli bars Macadamia Spicy flavours Peanuts Almonds Pecans Pinenuts Pistachio Roasted cashews Sesame seeds Sunflower seeds Walnuts LOW MODERATE HIGH VERY HIGH HERBS, SPICES ETC. Chives Allspice Tandoori Garlic Aniseed Vinegar Parsley Basil Gravies Poppy seeds Bayleaf Pastes – tomato etc. Saffron Cardamon Sauces – all Salt Carraway Stock cubes Shallots Cayenne Tomato sauce Vanilla Cinnamon Vegemite Malt vinegar Clove Soy sauce Coriander Soy paste Cumin Citric Acid Curry Oyster sauce Dill Fish sauce Five spice Garam Masala Ginger Mace Mint Mixed herbs Mustard Nutmeg Oregano Paprika Pepper Pimento Rosemary Sage Thyme Tumeric SAFE FOODS Chicken Ice cream Eggs Natural yoghurt (no fruit) Fish Meat Exceptions being: Devon / luncheon meats Meat pies Salami Sausages Seasoned meat Seasoned chicken AVOID All aspirin preparations, Menthol, Eucalyptus, Cough syrups and lozenges, Herbal remedies, flavoured toothpaste. From: kdcurlywurly12 [mailto:kdcurlywurl yhotmail (DOT) co.uk] Sent: Friday, 21 May 2010 7:45 AM samters@groups .com Subject: Re: Help I mentioned it to my consultant but he said that it doesn't always work and brushed it aside. > > > Hi > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > My quality of life is at times very poor. > > > > Does anyone have any hints, info, dietary tips etc. > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > I look forward to hearing from you. > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 It'll be an adventure! The good thing about desens in the USA is that it is a quick process - I would recommend here in the UK, but it is slower - about 3 -4 weeks and that is no good if you are coming from abroad. Becky From: <soniarobins@...>samters Sent: Fri, 21 May, 2010 8:21:14Subject: RE: Re: Help Becky my daughter heads off to St Louis in October and if I can find an ENT somewhere along the route which means landing at Los Angeles and changing planes etc. I’ll definitely give it a go. I’m just so fed up with this after so many years and no doctor nor specialist here seems to want to try it. From: Bannister [mailto:beckyb256@ .co. uk] Sent: Friday, 21 May 2010 5:18 PMsamters@groups .comSubject: Re: Re: Help , if you can then it is definately worth a try. My feeling is that we should all be desens if we can be. It is not a cure-all, but it does improve things a lot. Becky From: <soniarobins@ tsn.cc>samters@groups .comSent: Fri, 21 May, 2010 7:56:20Subject: RE: Re: Help I think someone up there must like us, chocolate is a godsend, I think I would have died without it. Just proves that this piece of ‘sinful delicacy’ is good for you after all. I just wish I could go through this aspirin desens. Maybe one day I’ll find a doctor who will do it but I’m not so sure if there’s one available in this country, maybe I should try the US of A? Daughter is heading over again in a few months, might make the trip with her this time. From: Bannister [mailto:beckyb256@ .co. uk] Sent: Friday, 21 May 2010 4:52 PMsamters@groups .comSubject: Re: Re: Help Hi , thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. Becky From: <soniarobins@ tsn.cc>samters@groups .comSent: Thu, 20 May, 2010 23:08:07Subject: RE: Re: Help My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help –it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. FRUIT LOW MODERATE HIGH VERY HIGH Pears Apple – Golden Red Delicious Apple – Granny Avocado Bananas Mango Apricot Kiwi Paw Paw Pear – can in juice Lychee Mandarin Rhubarb Peach Orange Tamarillo Rockmelon Passionfruit Custard Apple Watermelon Pineapple Loquat Lemon Grapes Tomato Date Grapefruit Rasberry Tangelo Prune Plum Raisins / Sultanas VEGETABLES Bamboo Shoots Beetroot Alfalfa Cauliflower Cabbage Carrots Capsicum Gherkins Celery Chinese Vegetables Chilli Olives Chives Parsnip Corn Broccoli Beans Potato – Red Cucumber Mushrooms Peas Pumpkin Onion Spinach Leek Snow Peas / Sprouts Zucchini Tomato Lettuce Sweet Potato Artichoke Broad Bean Mungbean Sprouts Asparagus Chickory Egg Plant Parsley Marrow Endive Champignon Potato White Turnip Watercress Cabbage Red Shallots Swede CEREALS / GRAINS Barley Any with: Buckwheat Honey/nuts/coconut/ fruit Cornflour Cornflakes Malt Cornmeal Rice Polenta Wheat Nutrigrain Rice cereals Rolled oats Rice /Soy /Rye flour FATS & OILS Butter Almond oil Coconut oil Ghee Corn oil Copha Margarine Peanut oil Olive oil Sunflower Sesame oil Canola Walnut LOW MODERATE HIGH VERY HIGH DRINKS Carob Powder Fruit juices Cordials Cow milk Soft drinks Goat milk Fruit flavoured drinks Lemonade / 7UP Cola drinks Soy milk Orange juice Cocoa powder Tomato juice Choc. flavoured Vegetable juice TEA & COFFEE Decaf. coffee Coffee Tea Tea – decaf., herbal Peppermint tea ALCOHOL Gin Beer Vodka Cider Whiskey Liqueur Port Rum Sherry All wine JAMS / SPREADS Caramels Molasses Chewing gum Carob Raw sugar Fruit flavoured anything Golden syrup Honey Malt extract Jams – all Maple syrup Liquorice Sugar Mint flavoured anything Toffee Peppermints Rice syrup Lemon butter Chocolate NUTS & SNACKS Cashews Corn chips Brazil Fruit flavours Plain crips Tacos Coconut Honey Pretzels Hazelnuts Muesli bars Macadamia Spicy flavours Peanuts Almonds Pecans Pinenuts Pistachio Roasted cashews Sesame seeds Sunflower seeds Walnuts LOW MODERATE HIGH VERY HIGH HERBS, SPICES ETC. Chives Allspice Tandoori Garlic Aniseed Vinegar Parsley Basil Gravies Poppy seeds Bayleaf Pastes – tomato etc. Saffron Cardamon Sauces – all Salt Carraway Stock cubes Shallots Cayenne Tomato sauce Vanilla Cinnamon Vegemite Malt vinegar Clove Soy sauce Coriander Soy paste Cumin Citric Acid Curry Oyster sauce Dill Fish sauce Five spice Garam Masala Ginger Mace Mint Mixed herbs Mustard Nutmeg Oregano Paprika Pepper Pimento Rosemary Sage Thyme Tumeric SAFE FOODS Chicken Ice creamEggs Natural yoghurt (no fruit)FishMeat Exceptions being: Devon / luncheon meatsMeat piesSalamiSausagesSeasoned meatSeasoned chicken AVOIDAll aspirin preparations, Menthol, Eucalyptus, Cough syrups and lozenges, Herbal remedies, flavoured toothpaste. From: kdcurlywurly12 [mailto:kdcurlywurl yhotmail (DOT) co.uk] Sent: Friday, 21 May 2010 7:45 AMsamters@groups .comSubject: Re: Help I mentioned it to my consultant but he said that it doesn't always work and brushed it aside.> > > Hi> > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > My quality of life is at times very poor.> > > > Does anyone have any hints, info, dietary tips etc.> > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > I look forward to hearing from you.> > > > > > > >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 ,4 FESS in 4 years is way too much ; by now, a good area of your nasal fossa and sinus must have undergone fibrosis (ie scarring) from this level of surgery and is therefore less or not at all functional. But when surgery is unvoidable...it's hardly avoidable ; that's the trouble. As Ken said, reading old posts is a must, there is a lot that has been shared here about : - irrigation (btw, since your mucosa is likely scarred, help it drain after irrigation by "gravity" - bend over forwards face parallel to ground for 10+ minutes so your sinuses can empty in case your natural draining is out of service) ; - "triggers" (food, environmental, occupational, allergies, etc),- germs (they're almost everywhere, but start by avoiding touching your nose with your fingers unless you've just washed your hands, and thoroughly disinfect your irrigation device, and not just with plain water),- medication (have you tried Zyflo if you do not respond to Singulair?),- aspirin desense (a lifesaver for many members),- diet (make it healthier but avoid products that are too rich in salicylates),- surgery,and I probably am forgetting a few issues.I do not see a topical steroid in your treatment, unless your betnesol is a nasal spray. Spraying the topical steroid in irrigation might help.Also read the archives, links, resources, etc.Good luck!>> Hi> > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > My quality of life is at times very poor.> > Does anyone have any hints, info, dietary tips etc.> > I also douche my nose daily with salt and bicarbonate of soda.> > I look forward to hearing from you.> > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 , I live in St. Louis and have a great doctor. He desensitized me over three days, and while it hasn't been a cure-all, it has definitely improved my symptoms. He was a friend of Dr.Samter and is tickled that we call it Samter's Triad on this group since the medical community calls it AERD. His name is Dr. Slavin and he is at St. Louis University. I can get you his number if you're interested. Christy > > Becky my daughter heads off to St Louis in October and if I can find an ENT somewhere along the route which means landing at Los Angeles and changing planes etc. I’ll definitely give it a go. I’m just so fed up with this after so many years and no doctor nor specialist here seems to want to try it. > > > > > > From: Bannister [mailto:beckyb256@...] > Sent: Friday, 21 May 2010 5:18 PM > samters > Subject: Re: Re: Help > > > > > > , if you can then it is definately worth a try. My feeling is that we should all be desens if we can be. It is not a cure-all, but it does improve things a lot. > > > > Becky > > > > _____ > > From: <soniarobins@...> > samters > Sent: Fri, 21 May, 2010 7:56:20 > Subject: RE: Re: Help > > > > I think someone up there must like us, chocolate is a godsend, I think I would have died without it. Just proves that this piece of ‘sinful delicacy’ is good for you after all. > > > > I just wish I could go through this aspirin desens. Maybe one day I’ll find a doctor who will do it but I’m not so sure if there’s one available in this country, maybe I should try the US of A? Daughter is heading over again in a few months, might make the trip with her this time. > > > > > > > > From: Bannister [mailto:beckyb256@ .co. uk] > Sent: Friday, 21 May 2010 4:52 PM > samters@groups .com > Subject: Re: Re: Help > > > > > > Hi , > > thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! > > > > Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. > > > > Becky > > > > _____ > > From: <soniarobins@ tsn.cc> > samters@groups .com > Sent: Thu, 20 May, 2010 23:08:07 > Subject: RE: Re: Help > > > > My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. > > > > My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. > > > > My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. > > > > Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help †" it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2010 Christy thankyou very much. My daughter comes over for Halloween to stay with friends that live there and loved St Louis – so I think this year I may just tag along (finances permitting) as I’d love to see the city and in particular the spectacular gardens there. Imagine meeting someone that is a friend of Dr Samter himself, that’d be really interesting. Thankyou so much Christy for the information and I’d really appreciate getting his number if you don’t mind. From: Christy [mailto:whitech@...] Sent: Friday, 21 May 2010 9:45 PM samters Subject: Re: Help , I live in St. Louis and have a great doctor. He desensitized me over three days, and while it hasn't been a cure-all, it has definitely improved my symptoms. He was a friend of Dr.Samter and is tickled that we call it Samter's Triad on this group since the medical community calls it AERD. His name is Dr. Slavin and he is at St. Louis University. I can get you his number if you're interested. Christy > > Becky my daughter heads off to St Louis in October and if I can find an ENT somewhere along the route which means landing at Los Angeles and changing planes etc. I’ll definitely give it a go. I’m just so fed up with this after so many years and no doctor nor specialist here seems to want to try it. > > > > > > From: Bannister [mailto:beckyb256@...] > Sent: Friday, 21 May 2010 5:18 PM > samters > Subject: Re: Re: Help > > > > > > , if you can then it is definately worth a try. My feeling is that we should all be desens if we can be. It is not a cure-all, but it does improve things a lot. > > > > Becky > > > > _____ > > From: <soniarobins@...> > samters > Sent: Fri, 21 May, 2010 7:56:20 > Subject: RE: Re: Help > > > > I think someone up there must like us, chocolate is a godsend, I think I would have died without it. Just proves that this piece of ‘sinful delicacy’ is good for you after all. > > > > I just wish I could go through this aspirin desens. Maybe one day I’ll find a doctor who will do it but I’m not so sure if there’s one available in this country, maybe I should try the US of A? Daughter is heading over again in a few months, might make the trip with her this time. > > > > > > > > From: Bannister [mailto:beckyb256@ .co. uk] > Sent: Friday, 21 May 2010 4:52 PM > samters@groups .com > Subject: Re: Re: Help > > > > > > Hi , > > thank you for this info...I was on this diet for 8 months and found I could do it. Now I can't eat wheat though and have just made the connection that oats do the same thing as wheat so I should be saying bye to oats too, which would limit this diet even more. Thank God that chocolate is on the low sal diet - that is one salvation lol! > > > > Good luck with finding out more about Samters. I have been desens for 3 years now and it REALLY does make a huge difference. I can eat ALL the foods that has listed without any issues, althoug I still need the other meds. > > > > Becky > > > > _____ > > From: <soniarobins@ tsn.cc> > samters@groups .com > Sent: Thu, 20 May, 2010 23:08:07 > Subject: RE: Re: Help > > > > My ENT and Immunologist both don’t do aspirin desensitisation and I’ve yet to find a doctor anywhere that does in this country. I’ve visited over a dozen throughout the past ten/fifteen years. > > > > My current medication is Seritide morning and night, Nasonex twice a day which has helped keep the polyps away so far after four years, and ventolin and nebulizer when needed. > > > > My ENT has put me on a totally salicylate free diet for three weeks yet again to try and sort things out, so far a week down there’s absolutely no difference, but my sleeping has improved. Headaches are a problem because no doubt that’s the caffeine missing out of my daily 4 to 5 cups now that I’ve switched to decaffe. > > > > Here’s a copy of what he gave me that I typed out again as it was on many pages, hope this is of help †" it’s not an easy diet but I’m willing to try it for a few weeks. You can have anything from the low section and some from the moderate. > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 22, 2010 I love your first point, Ken, so true. > >> > >> You don't mention the obvious - desensitization to aspirin. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 22, 2010 I was so glad to see a polyp peeking out my nose after month on the diet (and a month after steroids banished the polyps), I couldn't bear eating such bland food! > > > > > Hi > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > > > My quality of life is at times very poor. > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2010 Hi , That one made me laugh, it reminds me of some fruitless past experiments ! I believe the low-sal diet will really help those of us who are the most sal-sensitive, but probably not the majority of the group - but this just an opinion. > > > > > > > Hi > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > > > > > My quality of life is at times very poor. > > > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2010 I think the general public (doctors included) is appalled to know what we put ourselves though to find relief. I've experimented with all of the following in my irrigation fluid: cayenne, vinegar, hydrogen pyroxide, baby shampoo....the latter is the most pleasant. The fact that we irrigate as much as we do is shocking to most people! Fruitless experiments indeed :-) > > > > > > > > > Hi > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > > > > > > > My quality of life is at times very poor. > > > > > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2010 Because my septum won't heal I went to see a new-age doctor recently who told me I was very unhappy (I did feel unhappy in his presence and much happier when I left his office), that I needed lots of sessions of work with him, that I needed to fast (I'm 5'9" and weigh about 115 lbs), and to stop irrigating and stop using steroid spray. (I'd just been told to keep using the steroid spray as I have another sore in the same nostril which is too wet. Lovely.) When I told him I was worried about polyps growing back and having to get more surgery, he told me fear was a bad place to operate from. Of course he's not the one who will lose his sense of smell, have to have another CAT scan, more surgery, go through desense again etc. Anyhow, adventures in desperation -- I think from now on I'll stick with the ENT. On May 23, 2010, at 8:40 PM, wrote: I think the general public (doctors included) is appalled to know what we put ourselves though to find relief. I've experimented with all of the following in my irrigation fluid: cayenne, vinegar, hydrogen pyroxide, baby shampoo....the latter is the most pleasant. The fact that we irrigate as much as we do is shocking to most people! Fruitless experiments indeed :-) > > > > > > > > > Hi > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > > > > > > > My quality of life is at times very poor. > > > > > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 , have you not tried the grated onion yet? that was particularly unpleasant lol And apparently smelly, not that I could tell! Becky From: <rebeebit@...>samters Sent: Mon, 24 May, 2010 3:40:57Subject: Re: Help I think the general public (doctors included) is appalled to know what we put ourselves though to find relief. I've experimented with all of the following in my irrigation fluid: cayenne, vinegar, hydrogen pyroxide, baby shampoo....the latter is the most pleasant. The fact that we irrigate as much as we do is shocking to most people! Fruitless experiments indeed :-) > > > > > > > > > Hi> > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > > > > > > > My quality of life is at times very poor.> > > > > > > > > > Does anyone have any hints, info, dietary tips etc.> > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > > > > > > > I look forward to hearing from you.> > > > > > > > > > > > > > > > > > > >> > > >> > >> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 Joan,If you apply undiluted sterile manuka honey on your septum for 2 months and let it melt there for part of the day, I am confident it will help heal. Otherwise, another idea would be to have an ENT apply a thick post-FESS healing gel, like dextran-chitosan gel, or a hyaluronic acid surgical gel.However, the success of all this depends on whether the sore is infected or not - if there are bugs, they need to be killed first.Your description of a new-age doctor's diagnosis is both very funny and frightening when one thinks about the number of unsuspecting patients who buy these people's words and embark on a course where they end up worsening their situation.I saw a new-age ENT once (she didn't advertise the fact, doctors are forbidden to advertise in France), and apart from the music and incense burning, all she did was prescribe honest homeopathic and plant remedies.> > > > > > > > > > > > > Hi> > > > > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > > > > > > > > > > > My quality of life is at times very poor.> > > > > > > > > > > > > > Does anyone have any hints, info, dietary tips etc.> > > > > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > > > > > > > > > > > I look forward to hearing from you.> > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > > >> > > > >> > > >> > >> > > >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 One doctor even said I shouldn't nebulize with this or that because "the nebulizer wasn't designed for it". Well, it sure wasn't, but as long as it seems to work and doesn't clog the nebulizing tip, anything safe can be transformed into a mist. He may have meant the droplet size isn't optimal for sinus diffusion, which is true, but that is part of the experiment.There are a few things that do help when added to the irrigation solution :- antibiotics,- steroids,- sodium cromoglycate,- NAC,- baby shampoo,- manuka honey.Of course, irrigation will not reach sinuses that have not been surgically opened, and there are cases where only a combination of systemic and topical drugs will achieve a cure. For instance, when the underlying bones are infected (osteomyelitis), no topical drug will do anything.One requirement is that the aditive does not contaminate the area, ie that it be sterile.> > > > > > > > > > > Hi> > > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > > > > > > > > > My quality of life is at times very poor.> > > > > > > > > > > > Does anyone have any hints, info, dietary tips etc.> > > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > > > > > > > > > I look forward to hearing from you.> > > > > > > > > > > > > > > > > > > > > > > >> > > > >> > > >> > >> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 Thanks asfy. I did in fact get some of the sterile manuka honey and it works better than anything else I've tried. I realize my problem is that I wanted it to work in two days instead of two months. Thanks so much for suggesting it -- I'm going to keep on with it -- I do already have far fewer nosebleeds. On May 24, 2010, at 3:18 AM, asfy wrote: Joan,If you apply undiluted sterile manuka honey on your septum for 2 months and let it melt there for part of the day, I am confident it will help heal. Otherwise, another idea would be to have an ENT apply a thick post-FESS healing gel, like dextran-chitosan gel, or a hyaluronic acid surgical gel.However, the success of all this depends on whether the sore is infected or not - if there are bugs, they need to be killed first.Your description of a new-age doctor's diagnosis is both very funny and frightening when one thinks about the number of unsuspecting patients who buy these people's words and embark on a course where they end up worsening their situation.I saw a new-age ENT once (she didn't advertise the fact, doctors are forbidden to advertise in France), and apart from the music and incense burning, all she did was prescribe honest homeopathic and plant remedies.> > > > > > > > > > > > > Hi> > > > > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant.> > > > > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations.> > > > > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice.> > > > > > > > > > > > > > My quality of life is at times very poor.> > > > > > > > > > > > > > Does anyone have any hints, info, dietary tips etc.> > > > > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda.> > > > > > > > > > > > > > I look forward to hearing from you.> > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > > >> > > > >> > > >> > >> > > >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 2 months was a large estimate - if you are cured in 1, you'll know it's time to stop. > > > > > > > > > > > > > > > > > Hi > > > > > > > > > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > > > > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > > > > > > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > > > > > > > > > > > > > > > My quality of life is at times very poor. > > > > > > > > > > > > > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > > > > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > > > > > > > > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 I knew I was forgetting some manner of nastiness that went up my nose! I HAVE tried the onion juice! > > > > > > > > > > > Hi > > > > > > > > > > > > After suffering with nasal congestion and discomfort for 18mths and my GP telling me I had hayfever, I was finally referred to an ENT consultant. > > > > > > > > > > > > He diagnosed Nasal Polyps and Samters Triad. I had septoplasty and FESS surgery. Sadly the polyps quickly grew back and fast forward 4 years I have now had 3 more FESS operations. > > > > > > > > > > > > My last of which was at the end of March. Sadly my polyps have grown back within 8 weeks. > > > > > > > > > > > > I am currently taking Cetirizine, singulair, seretide 125, ventolin, betnesol and for 10 days (I am 2 days in) Prednisolone. I have taken steroids in short bursts over the last four years but this is the first time on this one. I am not really comfortable with taking these and am hoping for some advice. > > > > > > > > > > > > My quality of life is at times very poor. > > > > > > > > > > > > Does anyone have any hints, info, dietary tips etc. > > > > > > > > > > > > I also douche my nose daily with salt and bicarbonate of soda. > > > > > > > > > > > > I look forward to hearing from you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 So go back and ask if being 'on the limit' is anything like being a 'tiny bit pregnant' or 'a little bit diabetic'!!! Tell him that he may not be concerned but you are!! Glynis " I have done blood test to see if I suffer from hypothyroidism but the doctor says that I am at the limit and so he is not concerned. But I don't feel well and I have lots of the symptoms of hypothyroidism. I would like to know from you: what do you suggest me to do? Thank you. > Vivien " > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 Hi Vivien, welcome to our forum and I hope you get the support and help you need. First, never accept that because a doctor tells you your blood tests are normal, or that " you are at the limit " - so he is not concerned. What you have to do is to ask this doctor for the results of your blood test. This means getting the actual figure for each test done together with the reference range and then post these results here so we can hopefully give you a better explanation of what they might mean. We need to know whether the results were at the bottom, the middle or the top of the reference range. A doctor cannot withhold any such results from you, so telephone the surgery, tell them what you need and that you will call in and pick them up. Luv - Sheila Hello everybody. My name is Vivien and I am new here. I have done blood test to see if I suffer from hypothyroidism but the doctor says that I am at the limit and so he is not concerned. But I don't feel well and I have lots of the symptoms of hypothyroidism. I would like to know from you: what do you suggest me to do? Thank you. Vivien No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.437 / Virus Database: 271.1.1/2894 - Release Date: 05/24/10 18:26:00 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 Hi Vivien, welcome to the forum. Unfortunately your story is a common one- blood tests are taken as gospel and patients symptoms ignored. What test was done and what were the results and range used- you are entitled to your results so just ask for them- if you post here we will comment. you probably had a TSH test done which isn't that reliable- most healthy folk have a result of 1.0 . the range used in the Uk is the widest in the world so it is not surprising that patients needs are often ignored. > thyroid treatment > From: foffion@...> Date: Tue, 25 May 2010 15:22:00 +0000> Subject: Help> > Hello everybody. My name is Vivien and I am new here. I have done blood test to see if I suffer from hypothyroidism but the doctor says that I am at the limit and so he is not concerned. But I don't feel well and I have lots of the symptoms of hypothyroidism. I would like to know from you: what do you suggest me to do? Thank you.> Vivien > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 7, 2010 sorry Khaleel..I had hunted for the book..but didnt help..very diff to find it online..but u may buy secondhand onlineOn Tue, Jul 6, 2010 at 7:24 PM, khaleel ahamed <ka_almanar@...> wrote: hai it will be very much appreciated if some one could send me the link to jhonson and moore anatomy.... many thanx khaleel Quote Share this post Link to post Share on other sites
