Re: (unknown)

May 31, 2008

Hi Melynda: I just clicked on plain text to rich text. This e-mail will see if

it is corrected. I hope you are feeling better.

Hugs,

Barbara

--- In

@gro ups.com, " " & amp;amp;lt; Matsumura_ Clan@

.... & amp;amp; gt;

wrote:

& amp;amp;gt;

& amp;amp;gt; Sharon,

& amp;amp;gt;

& amp;amp;gt; Why do you suspect polymyalgia rheumatica and your physicians RA?

& amp;amp;gt;

& amp;amp;gt; Not an MD

============ =========

Probably just wishing thinking on my part & amp;amp;lt; g & amp;amp; gt;. HOWEVER,

here is why

I am leaning in that direction.

The way it came on, literally overnight. Pain jumps around. I never

know what new pain I will wake up to (muscles and joints). The pain

from the day before is totally gone. Seems to be focused on my

shoulder/upper arm area, although wrist or finger and knee are common

some days too. This morning my ankle and back are stiff and sore,

which has been been a problem before.

My RA is 84. SEDS is normal. AND... it came on the tail end of a

upper respitory viral type infection.

Through the day....once I am up and moving, the pain lessens

(although it is never totally gone from whatever area it decides to

hit that day). In the evening and especially through the night....

the pain is debilitating.

Ibruprophen doesn't touch the pain. One doc put me on a 3 week

regime of anti-inflamatories. .. which don't seem to be helping. ER

gave me a 30 day supply of Codine... which does take the edge off the

pain...... but I only take it when I absolutely have to. I don't

want to run out before I can get into see a Rheumatologist.

The PCP's see that RA reading and they can't seem to focus on

anything else.

Monday morning I will be on the phone making a couple of appointments

with Rheumatologists. Figure I will check out a couple and see who I

feel most comfortable with..

SHARON

============

May 31, 2008

You have to compose your email in " PLAIN TEXT " not Rich Text or HTML. There

should be a button on your screen or drop-down to make that change.

Dennis in eastexas

On Fri, May 30, 2008 at 9:12 PM, Melynda Gamez <melyndagamez@...>

wrote:

> hi barbara, i know i get that & nbsp; also.WHATS UP??? melyndagamez

> 5/30/08 9:11p.m.central

>

> [ ] (unknown)

>

> What is the deal with all the nbsp throughout my e-mail? & nbsp; How do you

> get rid of them?

> Thanks,

> Barbara

>

> & amp;amp;gt;

> & amp;amp;gt; Sharon,

> & amp;amp;gt;

> & amp;amp;gt; Why do you suspect polymyalgia rheumatica and your physicians

> RA?

> & amp;amp;gt;

> & amp;amp;gt; Not an MD

> ============ =========

> Probably just wishing thinking on my part & amp;amp;lt;g & amp;amp; gt;.

> HOWEVER, here is why

> I am leaning in that direction.

>

> The way it came on, literally overnight. Pain jumps around. I never

> know what new pain I will wake up to (muscles and joints). The pain

> from the day before is totally gone. Seems to be focused on my

> shoulder/upper arm area, although wrist or finger and knee are common

> some days too. This morning my ankle and back are stiff and sore,

> which has been been a problem before.

>

> My RA is 84. SEDS is normal. AND... it came on the tail end of a

> upper respitory viral type infection.

>

> Through the day....once I am up and moving, the pain lessens

> (although it is never totally gone from whatever area it decides to

> hit that day). In the evening and especially through the night....

> the pain is debilitating.

>

> Ibruprophen doesn't touch the pain. One doc put me on a 3 week

> regime of anti-inflamatories. .. which don't seem to be helping. ER

> gave me a 30 day supply of Codine... which does take the edge off the

> pain...... but I only take it when I absolutely have to. I don't

> want to run out before I can get into see a Rheumatologist.

>

> The PCP's see that RA reading and they can't seem to focus on

> anything else.

>

> Monday morning I will be on the phone making a couple of appointments

> with Rheumatologists. Figure I will check out a couple and see who I

> feel most comfortable with..

>

> SHARON

>

> ============

>

May 31, 2008

>

> From: dgd301@... & lt;dgd301@... & gt;

> Subject: Re: [ ] (unknown)

>

> Date: Thursday, May 29, 2008, 4:16 AM

>

> In a message dated 5/28/2008 6:28:05 P.M. Central Daylight Time,

> bcreedon (DOT) com writes:

>

> What is the deal with all the nbsp throughout my e-mail? & amp;nbsp; How

do you

> get rid of them?

>

> Your emails must be written in html and this list must only allow

text.

>

> You might need to figure out how to send only text to the list.

>

> dd

>

> ************ **Get trade secrets for amazing burgers. Watch " Cooking

with

> Tyler Florence " on AOL Food.

> (http://food. aol.com/tyler- florence? video=4 & amp;? NCID=aolfod00030

000000002)

>

May 31, 2008

Hi Joe,

I am new to this board but it sounds like you have had a really tough time. I hope we can all help to support you. I am sorry to hear that you have had to give up your career for medical problems. Your story sounds complicated, what happened? How old are your kids? I have a 6 and an 8 year old and keeping them peaceful can sometimes require the most creative problem solving skills I have!! I hope your days continue to brighten and being alive is just the first good thing that allows you to enjoy all other things in life like your kids!! All my best

Dawn

(unknown)

Well it has been a long road back from Feb. My roux en y was a disaster I had an esophagectomy 9 years ago now acid and bile reflux bothering me my MD said piece of cake. Yeah a heart attack and a stroke later I am now coming out of it. i gave up my nursing license as you can see I still have trouble with spelling and cant' hve that as a nurse, I'M ALIVE!!!!! and that's all that matters . Gotta go kids fighting

Love ya all through 9 years

Joe

June 1, 2008

thank-you barbara, let me know if it works? im feeling o.k. but as you may be

waking up whereever you live & im still awake, i have severe pain in my feet &

my hub will be getting up in a few hours to go to work & i will still b awake!!!

so PLEASE PRAY FOR ME BARBARA,MY FRIEND??? god bless,melyndagamez 6/1/08

3:30a.m.central time

Re: [ ] (unknown)

Hi Melynda: I just clicked on plain text to rich text. This e-mail will see if

it is corrected. I hope you are feeling better.

Hugs,

Barbara

--- In

@gro ups.com, " " & amp;amp;lt; Matsumura_ Clan@

.... & amp;amp; gt;

wrote:

& amp;amp;gt;

& amp;amp;gt; Sharon,

& amp;amp;gt;

& amp;amp;gt; Why do you suspect polymyalgia rheumatica and your physicians RA?

& amp;amp;gt;

& amp;amp;gt; Not an MD

============ =========

Probably just wishing thinking on my part & amp;amp;lt; g & amp;amp; gt;. HOWEVER,

here is why

I am leaning in that direction.

The way it came on, literally overnight. Pain jumps around. I never

know what new pain I will wake up to (muscles and joints). The pain

from the day before is totally gone. Seems to be focused on my

shoulder/upper arm area, although wrist or finger and knee are common

some days too. This morning my ankle and back are stiff and sore,

which has been been a problem before.

My RA is 84. SEDS is normal. AND... it came on the tail end of a

upper respitory viral type infection.

Through the day....once I am up and moving, the pain lessens

(although it is never totally gone from whatever area it decides to

hit that day). In the evening and especially through the night.....

the pain is debilitating.

Ibruprophen doesn't touch the pain. One doc put me on a 3 week

regime of anti-inflamatories. .. which don't seem to be helping. ER

gave me a 30 day supply of Codine... which does take the edge off the

pain...... but I only take it when I absolutely have to. I don't

want to run out before I can get into see a Rheumatologist.

The PCP's see that RA reading and they can't seem to focus on

anything else.

Monday morning I will be on the phone making a couple of appointments

with Rheumatologists. Figure I will check out a couple and see who I

feel most comfortable with..

SHARON

============

June 1, 2008

Hi Melynda:

So sorry you are feeling so awful. I sure hope you start to feel better soon,

and that your pain goes away. It must be so hard for your family to see you

like this, and they can't do anything about it. It helps to know how much they

love you, though. Hopefully tomorrow will be a better day for you. I have been

off my feet since Thurs., and that is helping. Glad we have our computers, and

that we have this wonderful group of people who care, and know what we are going

through. They are all so helpful, plus, they have so much knowledge that they

willingly share. I know I have learned so much about my RA since joining. I

was really afraid to seek information for a long time, but I guess I was ready

to do so. I, like so many others, just focus on today. That is all I can

really handle. I know you do the same thing. My prayers are with you, and I

pray for you to be pain free, and that your feet feel better soon.

Hugs,

Barbara

--- In

@gro ups.com, " " & amp;amp;lt; Matsumura_ Clan@

.... & amp;amp; gt;

wrote:

& amp;amp;gt;

& amp;amp;gt; Sharon,

& amp;amp;gt;

& amp;amp;gt; Why do you suspect polymyalgia rheumatica and your physicians RA?

& amp;amp;gt;

& amp;amp;gt; Not an MD

============ =========

Probably just wishing thinking on my part & amp;amp;lt; g & amp;amp; gt;. HOWEVER,

here is why

I am leaning in that direction.

The way it came on, literally overnight. Pain jumps around. I never

know what new pain I will wake up to (muscles and joints). The pain

from the day before is totally gone. Seems to be focused on my

shoulder/upper arm area, although wrist or finger and knee are common

some days too. This morning my ankle and back are stiff and sore,

which has been been a problem before.

My RA is 84. SEDS is normal. AND... it came on the tail end of a

upper respitory viral type infection.

Through the day....once I am up and moving, the pain lessens

(although it is never totally gone from whatever area it decides to

hit that day). In the evening and especially through the night.....

the pain is debilitating.

Ibruprophen doesn't touch the pain. One doc put me on a 3 week

regime of anti-inflamatories. .. which don't seem to be helping. ER

gave me a 30 day supply of Codine... which does take the edge off the

pain...... but I only take it when I absolutely have to. I don't

want to run out before I can get into see a Rheumatologist.

The PCP's see that RA reading and they can't seem to focus on

anything else.

Monday morning I will be on the phone making a couple of appointments

with Rheumatologists. Figure I will check out a couple and see who I

feel most comfortable with..

SHARON

============

June 2, 2008

THANK-YOU SO MUCH BARBARA FOR CARING & YOU DONT EVEN KNOW ME! I APPRECIATE ALL

THE PRAYERS I CAN GET. YOU ARE SUCH A SWEET HEART BARB. GOD BLESS,MELYNDAGAMEZ

6/2/08 1:40A.M. another long night

Re: [ ] (unknown)

Hi Melynda:

So sorry you are feeling so awful. I sure hope you start to feel better soon,

and that your pain goes away. It must be so hard for your family to see you

like this, and they can't do anything about it. It helps to know how much they

love you, though. Hopefully tomorrow will be a better day for you. I have been

off my feet since Thurs., and that is helping. Glad we have our computers, and

that we have this wonderful group of people who care, and know what we are going

through. They are all so helpful, plus, they have so much knowledge that they

willingly share. I know I have learned so much about my RA since joining.. I

was really afraid to seek information for a long time, but I guess I was ready

to do so. I, like so many others, just focus on today. That is all I can

really handle. I know you do the same thing. My prayers are with you, and I

pray for you to be pain free, and that your feet feel better soon.

Hugs,

Barbara

--- In

@gro ups.com, " " & amp;amp;lt; Matsumura_ Clan@

.... & amp;amp; gt;

wrote:

& amp;amp;gt;

& amp;amp;gt; Sharon,

& amp;amp;gt;

& amp;amp;gt; Why do you suspect polymyalgia rheumatica and your physicians RA?

& amp;amp;gt;

& amp;amp;gt; Not an MD

============ =========

Probably just wishing thinking on my part & amp;amp;lt; g & amp;amp; gt;. HOWEVER,

here is why

I am leaning in that direction.

The way it came on, literally overnight. Pain jumps around. I never

know what new pain I will wake up to (muscles and joints).. The pain

from the day before is totally gone. Seems to be focused on my

shoulder/upper arm area, although wrist or finger and knee are common

some days too. This morning my ankle and back are stiff and sore,

which has been been a problem before.

My RA is 84. SEDS is normal. AND.... it came on the tail end of a

upper respitory viral type infection.

Through the day....once I am up and moving, the pain lessens

(although it is never totally gone from whatever area it decides to

hit that day). In the evening and especially through the night.....

the pain is debilitating.

Ibruprophen doesn't touch the pain. One doc put me on a 3 week

regime of anti-inflamatories. .. which don't seem to be helping. ER

gave me a 30 day supply of Codine... which does take the edge off the

pain...... but I only take it when I absolutely have to. I don't

want to run out before I can get into see a Rheumatologist.

The PCP's see that RA reading and they can't seem to focus on

anything else.

Monday morning I will be on the phone making a couple of appointments

with Rheumatologists. Figure I will check out a couple and see who I

feel most comfortable with..

SHARON

============

June 2, 2008

Your welcome. We all need prayers, that's for sure. How are you

feeling today, and how are your feet? Better I hope. I am still off

mine, but they are feeling somewhat better. Not that intense pain.How is

your weather in Texas today? I am in Southwest Florida, 25 min. to the

Gulf.I need it to rain so I can stop hurting!!Talk soon, and as always,

God Bless You.

Hugs,

Barbara

> & amp;amp;gt;

> & amp;amp;gt; Sharon,

> & amp;amp;gt;

> & amp;amp;gt; Why do you suspect polymyalgia rheumatica and your

physicians RA?

> & amp;amp;gt;

> & amp;amp;gt; Not an MD

> ============ =========

> Probably just wishing thinking on my part & amp;amp;lt; g & amp;amp; gt;.

HOWEVER, here is why

> I am leaning in that direction.

>

> The way it came on, literally overnight. Pain jumps around. I never

> know what new pain I will wake up to (muscles and joints).. The pain

> from the day before is totally gone. Seems to be focused on my

> shoulder/upper arm area, although wrist or finger and knee are common

> some days too. This morning my ankle and back are stiff and sore,

> which has been been a problem before.

>

> My RA is 84. SEDS is normal. AND.... it came on the tail end of a

> upper respitory viral type infection.

>

> Through the day....once I am up and moving, the pain lessens

> (although it is never totally gone from whatever area it decides to

> hit that day). In the evening and especially through the night.....

> the pain is debilitating.

>

> Ibruprophen doesn't touch the pain. One doc put me on a 3 week

> regime of anti-inflamatories. .. which don't seem to be helping. ER

> gave me a 30 day supply of Codine... which does take the edge off the

> pain...... but I only take it when I absolutely have to. I don't

> want to run out before I can get into see a Rheumatologist.

>

> The PCP's see that RA reading and they can't seem to focus on

> anything else.

>

> Monday morning I will be on the phone making a couple of appointments

> with Rheumatologists. Figure I will check out a couple and see who I

> feel most comfortable with..

>

> SHARON

>

> ============

>

June 3, 2008

Diane,

Does the LDM help with yeast or cause more due to viral die off?

Diane Sykes <diatplay@...> wrote:

I just saw this post. I am still learning to navigate the various

, sorry. I meant LDM-100 a natural herbal alternative to Valtrex.

Very strong. There is a Washington group that went this route instead of

valtrex....

Matt's rash is fading and he is in good spirits as is my daughter, now I just

have to get more info to see if I must chelate post or during the three months

on LDM. Diane

June 4, 2008

Hi Jackie

It sounds like we are in a very similar situation. My son who is now 33 months

has been fevering since 8 months and is basically having his fevers every two

weeks with the fever lasting approximately three days. It seems that our

children may have their fevers more often(every two weeks) as compared to other

children who fever every 3-4 weeks but the actual duration of the episodes is

shorter than other children(many parents have commented that their child

actually fevers anywhere from 3-7 days).

We have not tried the prednisone yet, but may do so soon. We are waiting on the

T & A as an option, as our Dr's are not yet in agreement with this treatment and

our son is still quite small.

Regards,

June 4, 2008

Hi Jackie

It sounds like we are in a very similar situation. My son who is now 33 months

has been fevering since 8 months and is basically having his fevers every two

weeks with the fever lasting approximately three days. It seems that our

children may have their fevers more often(every two weeks) as compared to other

children who fever every 3-4 weeks but the actual duration of the episodes is

shorter than other children(many parents have commented that their child

actually fevers anywhere from 3-7 days).

We have not tried the prednisone yet, but may do so soon. We are waiting on the

T & A as an option, as our Dr's are not yet in agreement with this treatment and

our son is still quite small.

Regards,

June 4, 2008

Hi Jackie

It sounds like we are in a very similar situation. My son who is now 33 months

has been fevering since 8 months and is basically having his fevers every two

weeks with the fever lasting approximately three days. It seems that our

children may have their fevers more often(every two weeks) as compared to other

children who fever every 3-4 weeks but the actual duration of the episodes is

shorter than other children(many parents have commented that their child

actually fevers anywhere from 3-7 days).

We have not tried the prednisone yet, but may do so soon. We are waiting on the

T & A as an option, as our Dr's are not yet in agreement with this treatment and

our son is still quite small.

Regards,

June 4, 2008

Hi Jackie

I did forget to mention one other thing - my son is currently taking Singulair,

which seems to have lowered the overall severity of his fevers.

Regards,

June 4, 2008

Hi Jackie

I did forget to mention one other thing - my son is currently taking Singulair,

which seems to have lowered the overall severity of his fevers.

Regards,

June 4, 2008

Hi Jackie

I did forget to mention one other thing - my son is currently taking Singulair,

which seems to have lowered the overall severity of his fevers.

Regards,

June 4, 2008

I have a son that suffered from for 1 1/2 years (age 2 - 3 1/2). We went

through all the test, treatments etc and eventually had his tonsils removed and

he hasn't had a fever since. He's now 10 years old and perfectly healthy. I

highly recommend looking at removing his tonsils and adenoids, it worked for our

son.

I recently found this group as well when our youngest son (20 months) had back

to back months with fevers and may be going through the same thing. My question

to the group is to find out how many kids had the T & A but are still experiencing

fevers. It appears after reading posts on this board that many times the T & A

works, if that is the case then why aren't doctors recommending this option?

June 4, 2008

I have a son that suffered from for 1 1/2 years (age 2 - 3 1/2). We went

through all the test, treatments etc and eventually had his tonsils removed and

he hasn't had a fever since. He's now 10 years old and perfectly healthy. I

highly recommend looking at removing his tonsils and adenoids, it worked for our

son.

I recently found this group as well when our youngest son (20 months) had back

to back months with fevers and may be going through the same thing. My question

to the group is to find out how many kids had the T & A but are still experiencing

fevers. It appears after reading posts on this board that many times the T & A

works, if that is the case then why aren't doctors recommending this option?

June 5, 2008

Hi Jackie

Steroids definitely have a negative effect on the kids when used regularly. They

can affect growth, behaviour etc. Even though my doctor assured me it would be

fine if we 'just' give one dose every 3-4 weeks but after a year of doing that

we just didn't feel comfortable. Not that alternating fever reducers evry 3

hours for 3-5 days was a great alternative in my eyes either. These poor kids

just get so much medicine but what can we do? These fevers are so hard to keep

under control.

So we opted for T & A. Emma's last fever was on 5th March (3 months today!!) and

the T & A on 19th March. For us the recovery wasn't too bad but some kids really

battle. It takes a good 10 days to get back to normal. On this board there are

many many success stories of T & A. But there are also some where the fevers came

back after a few months or years. It's a very personal decision. Surgery is not

to be taken lightly. However for us it was the best decision ever even if the

fevers return tomorrow. Emma is a much healthier, happier kid now with rosy

cheeks andÂ energy levels that we have never seen before her op.

Good luck and take care

Inga

__________________________________________________________

Sent from .

A Smarter Email http://uk.docs./nowyoucan.html

June 5, 2008

Hi Inga,

Thank you very much for responding. It sounds like Emma is doing great, I am

so happy for all of you. We are so confused on what to do. The steriod is

working but like you I just hate the thought of it.. Landon is 4 1/2 so I keep

hoping it just goes away. We had a three month break last year but we are back

on our regular cycle of every two weeks, or every 5 days when we give the

steriod. Please keep us informed on Emma's progress, she gives us hope. Take

care!

Jackie

June 5, 2008

Hi Inga,

Thank you very much for responding. It sounds like Emma is doing great, I am

so happy for all of you. We are so confused on what to do. The steriod is

working but like you I just hate the thought of it.. Landon is 4 1/2 so I keep

hoping it just goes away. We had a three month break last year but we are back

on our regular cycle of every two weeks, or every 5 days when we give the

steriod. Please keep us informed on Emma's progress, she gives us hope. Take

care!

Jackie

June 5, 2008

Hi Inga,

Thank you very much for responding. It sounds like Emma is doing great, I am

so happy for all of you. We are so confused on what to do. The steriod is

working but like you I just hate the thought of it.. Landon is 4 1/2 so I keep

hoping it just goes away. We had a three month break last year but we are back

on our regular cycle of every two weeks, or every 5 days when we give the

steriod. Please keep us informed on Emma's progress, she gives us hope. Take

care!

Jackie

June 5, 2008

Hi ,

Yes, our situations do sound the same. We started prednisone a year ago Feb.

I did not notice an increase in episodes until this Dec. We actually went from

Sept. to Dec. with no fevers (longest period fever free in his four years of

life). The fevers came back this Dec. and were coming almost once a week. The

doctors never told me the steriod could increase the number of episodes until I

questioned them. Landon is now taking orapred which they say is the same as

prednisone. We are using this because we can get in a dissolving pill form (it

was very difficult to get the prednisone in Landon, the taste is not good). I

do not like giving the steriod, but it does get rid of the fever within two

hours. Symptoms completely disappear. The downside is the episodes can

increase, therefore they have to take the steriod more often. The other negative

is the steriod does alter their mood. I haven't noticed anything too bad, but

definitely

notice an increase in activity, sometimes bouncing off the walls. I don't

know which is worse, steriods or being on motrin and tylenol for 3 days. The

other nice thing about the steriod is if you have plans you know they will feel

better within hours. Before the steriod we missed so many parties and had cut

vacations short because Landon was so uncomfortable. Our doctor has mentioned

having the tonsils out, but he too said it would not be easy to find a doctor

willing to do it. My hope is Landon outgrows this soon. I almost feel lucky

after joining this group. Some of the stories are horrible, I feel lucky we

have never had seizures or vomiting. Keep me informed on what you decide and

take care.

Jackie

June 5, 2008