Re: (unknown)

September 28, 2004

Is this rude person a member of our group, or spammer? This response I received

was unnecessary.

Peyton

Re: rheumatic (unknown)

Are these original studies available anywhere the Internet? I'm looking for

the ENTIRE, original study, not a summary written by someone else, and not

just the abstract.

Thanks,

Peyton

>

> SCIENTIFIC PUBLICATIONS SUPPORTING ANTIBIOTIC THERAPY FOR RHEUMATIC

DISEASES

> The National Library of Medicine

>

> MAJOR CLINICAL STUDIES IN THE USE OF MINOCYCLINE (MINOCIN):

>

> Breedveld F, Dukmans BAC, Mattie H - Minocycline Treatment for Rheumatoid

> Arthritis: An Open Dose Study; J of Rheum, 1990; 17:1, 43-46

>

> Langevitz P, Bank I, Zemer D, Book M - Treatment of Resistant Rheumatoid

> Arthritis with Minocycline: An Open Study; J of Rheum 1992; 10:10,

1502-1504

>

> Kloppenburg M, Breedveld F, Terwiel J, Mallee C, Dijkmans BAC -

Minocycline

> in Active Rheumatoid Arthritis; Arthritis & Rheumatism 1994; 17:5, 629-636

>

> Tilley BC, Alarcon AS, Heyse SP, Trentham DE, Neuner R., Kaplan DA, Clegg

> DO, Leisen JCC, Buckley L, SM, Duncan H, Pillemer SR, Tuttlemen M,

> Fowler SE - Minocycline in Rheumatoid Arthritis: A 48 Week, Double-Blind,

> Placebo-Controlled Trial;ls of Internal Medicine, 1995; 122:81-89

>

> O'Dell J, Haire C, Palmer W, Drymalski W, Wees S, Churchill M, Eckhoff J,

> Weaver A, Doud D, son N, Dietz F, Olson R, Maloney P, Klassen L,

> G - Treatment of Early Rheumatoid Arthritis with Minocycline or Placebo:

> Results of a Randomized, Double-Blind, Placebo-Controlled Trial; Arthritis

> and Rheumatism May 1997, 40:5, 842-848.

>

> Scleroderma study published in " Lancet " , Vol 352, Issue 9142, 28th

November,

> 1998.

> Trentham, Chief of Rheumatology, Beth Israel Hospital in Boston,

> Massachusetts, and Associate Professor of Medicine, Harvard Medical

School,

> reported to the 6th Biennial Congress of the International Society for

> Rheumatic Therapies on a small recently concluded study using minocycline

in

> scleroderma. Eleven patients were enrolled in the study with six

completing

> it. All showed significant improvement with four achieving remission. Of

the

> five patients who dropped out, two were due to renal crisis, one was due

to

> unrelated carcinoma, one changed to IV therapy and one withdrew because of

> another medical problem. Click here to read the CNN coverage of this

study.

>

> O'Dell JR, sen G, Haire CE, Blakely K, Palmer W, Wees S, Eckhoff PJ,

> Klassen LW, Churchill M, Doud D, Weaver A, GF - Treatment of early

> seropositive rheumatoid arthritis with minocycline. Four-year followup of

a

> double blind, placebo-controlled trial, Arthritis & Rheumatism, 1999,

> 42:8,1691-1695

>

September 29, 2004

My child pulls his tounge, grinds his teeth, and he used to be bad about banging

his head but dosnt really do it so much anymore.

Rywilli Willingham <rywilli24@...> wrote:

hey I know this is off the subject of mercury but i was wondering if

anyone has a child that does any of the following things:

Eye Rolling

Pulling Tongue

Teeth Grinding

One eye turing inward

banging toys into their head

thanks

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

=======================================================

September 29, 2004

hey scarlett what was causing it in your child. I haven't found many

parents that had children that pull their tongue. thanks

>From: SCARLETT FINNEY <gavinsmom1017@...>

>Reply-

>

>Subject: Re: [ ] (unknown)

>Date: Wed, 29 Sep 2004 08:43:19 -0700 (PDT)

>

>My child pulls his tounge, grinds his teeth, and he used to be bad about

>banging his head but dosnt really do it so much anymore.

>

>Rywilli Willingham <rywilli24@...> wrote:

>hey I know this is off the subject of mercury but i was wondering if

>anyone has a child that does any of the following things:

>

>Eye Rolling

>

>Pulling Tongue

>

>Teeth Grinding

>

>One eye turing inward

>

>banging toys into their head

>

>thanks

>

>_________________________________________________________________

>Don’t just search. Find. Check out the new MSN Search!

>http://search.msn.click-url.com/go/onm00200636ave/direct/01/

>

>=======================================================

>

September 29, 2004

I have absolutley no idea. He still pulls on his tongue he will pull on it and

his lips till it forms a sore the doc says it is a sensory issue, but I dont

believe it.

Scarlett

Rywilli Willingham <rywilli24@...> wrote:

hey scarlett what was causing it in your child. I haven't found many

parents that had children that pull their tongue. thanks

>From: SCARLETT FINNEY

>Reply-

>

>Subject: Re: [ ] (unknown)

>Date: Wed, 29 Sep 2004 08:43:19 -0700 (PDT)

>

>My child pulls his tounge, grinds his teeth, and he used to be bad about

>banging his head but dosnt really do it so much anymore.

>

>Rywilli Willingham wrote:

>hey I know this is off the subject of mercury but i was wondering if

>anyone has a child that does any of the following things:

>

>Eye Rolling

>

>Pulling Tongue

>

>Teeth Grinding

>

>One eye turing inward

>

>banging toys into their head

>

>thanks

>

>_________________________________________________________________

>Don’t just search. Find. Check out the new MSN Search!

>http://search.msn.click-url.com/go/onm00200636ave/direct/01/

>

>=======================================================

>

September 30, 2004

Hello, my son grinds his teeth. He has for quite some time. He's 3.6 years old

and still uses a pacifier to calm himself. If he doesn't have his " paci " when

he sleeps ,he grinds his teeth and they make terrible squeaking noises. (kind

of like chalk or fingernails on a chalkboard) It's unbearable to listen to! He

also goes through tongue pulling phases. I haven't talked to anyone about these

issues. I figure they are just more symptoms of his Autism.

Rywilli Willingham <rywilli24@...> wrote:hey scarlett what was causing

it in your child. I haven't found many

parents that had children that pull their tongue. thanks

>From: SCARLETT FINNEY

>Reply-

>

>Subject: Re: [ ] (unknown)

>Date: Wed, 29 Sep 2004 08:43:19 -0700 (PDT)

>

>My child pulls his tounge, grinds his teeth, and he used to be bad about

>banging his head but dosnt really do it so much anymore.

>

>Rywilli Willingham wrote:

>hey I know this is off the subject of mercury but i was wondering if

>anyone has a child that does any of the following things:

>

>Eye Rolling

>

>Pulling Tongue

>

>Teeth Grinding

>

>One eye turing inward

>

>banging toys into their head

>

>thanks

>

>_________________________________________________________________

>Don’t just search. Find. Check out the new MSN Search!

>http://search.msn.click-url.com/go/onm00200636ave/direct/01/

>

>=======================================================

>

September 30, 2004

Teeth grinding is usually a sign of zinc deficiency.

Magnesium can help also. My kids take a Cal/mag/zinc supplement.

-GA

Re: [ ] (unknown)

>Date: Wed, 29 Sep 2004 08:43:19 -0700 (PDT)

>

>My child pulls his tounge, grinds his teeth, and he used to be bad about

>banging his head but dosnt really do it so much anymore.

>

>Rywilli Willingham wrote:

>hey I know this is off the subject of mercury but i was wondering if

>anyone has a child that does any of the following things:

>

>Eye Rolling

>

>Pulling Tongue

>

>Teeth Grinding

>

>One eye turing inward

>

>banging toys into their head

>

>thanks

>

>_________________________________________________________________

>Don’t just search. Find. Check out the new MSN Search!

>http://search.msn.click-url.com/go/onm00200636ave/direct/01/

>

>=======================================================

>

October 4, 2004

Hi Maggie! I'm home I wasn't able to get to my computer until today. Anyway, first of all it was really nice meeting you and . I was able to come home Friday night so it was nice to be in my own bed (my fever went away that day). I'm still getting use to my change but so far so good. The only thing is that I got diarrhea and that's always a bit uncomfortable. Other than that I'm excited for my change and I know it's only the beginning. My family has been an awesome support. I've just been sticking to water, gatorade, jello and chicken broth....4 days already so we'll see.

October 5, 2004

> Hi Maggie! I'm home I wasn't able to get to my computer until

today.

> Anyway, first of all it was really nice meeting you and . I

was able to come

> home Friday night so it was nice to be in my own bed (my fever went

away that

> day). I'm still getting use to my change but so far so good. The

only thing

> is that I got diarrhea and that's always a bit uncomfortable.

Other than

> that I'm excited for my change and I know it's only the beginning.

My family has

> been an awesome support. I've just been sticking to water,

gatorade, jello

> and chicken broth....4 days already so we'll see.

Hey Flav, the diarrhea is normal.. I had it for about 3-4 days, but

it did go away! Read thur some of my other messages about some things

you can try later on with the soup. One is adding some cream of

chicken to the reg. broth and I also made a nice refriend bean soup

that is good. But don't try right away!! Also, add some crystyl light

to drink if you want. I mix half water and half crystal light in my

cup or half juice and water. ( light apple juice non sweeten)

The soreness will get better!! Just really take it easy. My port area

is just now going down some after 12 days, so it does take some time.

I knew you would love Dr. A and Nina they are just awesome.

Keep up the great work and post your weight as you lose it!!

Debi

October 5, 2004

Betty,

I'm also on Enbrel but for me it was effective right away. Has your

daughter tried methotrexate? The combination of mtx (methothrexate) and

enbrel are very effective together. Personally I'd leave Arava for last

since there has been many questions on it's safety. Many believe it should

be pulled off the market, but I also have to say that we have several

members that have been helped by it.

I've got a website with information on RA meds that may help:

http://rheumatoid.arthritis.freehosting.net/drugs.html

a

>

> Hi everyone,

> My daughter who is 28 was diagnosed with RA after many long years of pain.

> Her doctor has her on Enbrel and had her on Vioxx as well. Neeless to say she

> is no longer taking the Vioxx, but she is still taking the Enbrel. She has

> been taking the Enbrel since June 2004, and when she first began treatment was

> on Prednisone, Vioxx and Enbrel, she felt great for the first time in a long

> time. But when she was taken off the Prednisone, her pain returned, and it

> seems the Enbrel isn't very effective. How long does it take to become

> effective? Also the cost of the Enbrel is a real hardship for her and yet her

> doctor is reluctant to prescribe something less costly- Surely there must be

> something- I had looked up some medications, and found one called Arava

> (leflunomide). Do any of you know anything about this drug and it's

> effectiveness and cost? Thanks in advance for any information you can pass on

> to me.

> bettymiller56

>

October 5, 2004