Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Thank you, I sure don't want more spinal surgery any time soon. So next Wed. will be my first spinal block, we'll see how it goes! > > > > Margee > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > problems in my neck, and back, slight case of spinal stensosis, > arthriths. I was recently diagnosed with hypopituitarism > and hypothyroidism. I know how terrified and confused you are. I've > been there and back. Living in chronic pain, effects everything in our > lives. I tried everything there was to alleviate my pain before having > the implants. Nothing worked. > > The SCSs and pain pump have made a tremendous difference in the > quality of my life. They are not a cure all, but they certainly reduce > the amount of pain you have and increase your mobility. The lumbar SCS > kept me out of a wheelchair and kept me from having to have a lumbar > spinal fusion surgery. The cervical SCS gave me back the mobility in > my right arm. The beauty of this group > is that everyone here is going through the same thing. We can all > share our experiences and exchange our information. You're in a place > with experts in the field of SCS!! > > If you have any questions or would like any other information, > please feel free to contact me. > > > > Sue C > > Moderator > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Are you doing these awake or asleep? I have had them all done asleep with a drug called propofol....I love it...you wake up feeling like you slept all night Deb RN From: Stimulator [mailto:Stimulator ] On Behalf Of Margee' Sent: Thursday, October 09, 2008 6:34 PM Stimulator Subject: Re: (unknown) Thank you, I sure don't want more spinal surgery any time soon. So next Wed. will be my first spinal block, we'll see how it goes! > > > > Margee > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > problems in my neck, and back, slight case of spinal stensosis, > arthriths. I was recently diagnosed with hypopituitarism > and hypothyroidism. I know how terrified and confused you are. I've > been there and back. Living in chronic pain, effects everything in our > lives. I tried everything there was to alleviate my pain before having > the implants. Nothing worked. > > The SCSs and pain pump have made a tremendous difference in the > quality of my life. They are not a cure all, but they certainly reduce > the amount of pain you have and increase your mobility. The lumbar SCS > kept me out of a wheelchair and kept me from having to have a lumbar > spinal fusion surgery. The cervical SCS gave me back the mobility in > my right arm. The beauty of this group > is that everyone here is going through the same thing. We can all > share our experiences and exchange our information. You're in a place > with experts in the field of SCS!! > > If you have any questions or would like any other information, > please feel free to contact me. > > > > Sue C > > Moderator > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Sue, I do not know if he used flouro or not...probably did not need to as I was filleted open.........how do you feel about the pain pump? Was that done before or after the stimulator? How well does it work? Do you still have to take oral drugs? How often do you have the pump refilled? Does it hurt? What kind of meds are in your pump? Thanks for all of your help I greatly appreciate it.....the drainage slows down till I start going up and down the steps. Deb From: Stimulator [mailto:Stimulator ] On Behalf Of Corn Sent: Thursday, October 09, 2008 5:11 PM stimulator Subject: (unknown) Deb I don't blame you for being angry and confused. I would be furious if it was me. The doctor should have told you that there was a problem, and told you that he had to do surgery before he did it. You had a right to know what was going to happen before it happened. I have never heard of having the wires implanted during the trial. The whole purpose of the trial is to see if the stimulator is going to work. If it isn't going to help, they don't do the implant, avoiding unneccessary surgery. This doesn't make sense to me. I have one battery above my waist and the other below the bra line on the side of my back. My pain pump is in my stomach. The remote that controls the stimulator doesn't have to be right against the battery pack. How is the drainage? drainage is normal, but from what you said, it sounded alot more than simple drainage. Did the doctor do the procedure under the guide of X-ray equipment? Hope this helps Sue C Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 My doctor uses light sedation while doing the nerve blocks, facet injections, stellate injections, epidurals, etc. . You are relaxed, but still awake. This way you can feel the medication being injected into you, without the pain. . She does the injections under X-ray, but can get the feed back from you since you are awake. The best of both worlds. Sue C Moderator From: Debra <i_ownaberner@...> Subject: RE: Re: (unknown) Stimulator Date: Friday, October 10, 2008, 1:12 AM Are you doing these awake or asleep? I have had them all done asleep with a drug called propofol.... I love it...you wake up feeling like you slept all night Deb RN From: Stimulator@gro ups.com [mailto:Stimulator@gro ups.com] On Behalf Of Margee' Sent: Thursday, October 09, 2008 6:34 PM Stimulator@gro ups.com Subject: Re: (unknown) Thank you, I sure don't want more spinal surgery any time soon. So next Wed. will be my first spinal block, we'll see how it goes! > > > > Margee > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > problems in my neck, and back, slight case of spinal stensosis, > arthriths. I was recently diagnosed with hypopituitarism > and hypothyroidism. I know how terrified and confused you are. I've > been there and back. Living in chronic pain, effects everything in our > lives. I tried everything there was to alleviate my pain before having > the implants. Nothing worked. > > The SCSs and pain pump have made a tremendous difference in the > quality of my life. They are not a cure all, but they certainly reduce > the amount of pain you have and increase your mobility. The lumbar SCS > kept me out of a wheelchair and kept me from having to have a lumbar > spinal fusion surgery. The cervical SCS gave me back the mobility in > my right arm. The beauty of this group > is that everyone here is going through the same thing. We can all > share our experiences and exchange our information. You're in a place > with experts in the field of SCS!! > > If you have any questions or would like any other information, > please feel free to contact me. > > > > Sue C > > Moderator > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Deb No need to thank me. I'm glad to help. I wish I had someone to guide me when I was going through my own nightmare. I highly recommend both the SCS and the pain pump. Both have changed my life. I had the SCSs implanted first. The pump was implanted about a year later. I only have morphine in the pump. I have it refilled about every 3 months. Depending on the dosage of medication you are receiving you might have to have it filled much sooner, or later. It doesn't hurt to refill it. There's a port in the pump. The dr. first removes any remaining medication with a syringe through the port, then he refills the pump with the new medication through the port. My tank is full, and I'm good to go. LOL. I don't take any other prescription pain killers. If I need anything, I'll take extra strength tynlenol. My pain was tolerable, until last year, when I developed other health problems. It took until recently to diagnosis the problem. I have hypopituitarism and hypothyroidism. This was causing all my extra pain that was causing my pain levels to go through the roof. Now that I'm on medication for my new health conditions, that pain has just about gone away. My pain has again become tolerable. How long did the doctor say the incision should be draining? Is it a bright red, or a dark brown? I'm not a doctor, but I don't think it should still be draining. Did the doctor see it, or did you just talk to him? Sue C Moderator From: Debra <i_ownaberner@...> Subject: RE: (unknown) Stimulator Date: Friday, October 10, 2008, 1:46 AM Sue, I do not know if he used flouro or not...probably did not need to as I was filleted open........ .how do you feel about the pain pump? Was that done before or after the stimulator? How well does it work? Do you still have to take oral drugs? How often do you have the pump refilled? Does it hurt? What kind of meds are in your pump? Thanks for all of your help I greatly appreciate it.....the drainage slows down till I start going up and down the steps. Deb From: Stimulator@gro ups.com [mailto:Stimulator@gro ups.com] On Behalf Of Corn Sent: Thursday, October 09, 2008 5:11 PM stimulator@gro ups.com Subject: (unknown) Deb I don't blame you for being angry and confused. I would be furious if it was me. The doctor should have told you that there was a problem, and told you that he had to do surgery before he did it. You had a right to know what was going to happen before it happened. I have never heard of having the wires implanted during the trial. The whole purpose of the trial is to see if the stimulator is going to work. If it isn't going to help, they don't do the implant, avoiding unneccessary surgery. This doesn't make sense to me. I have one battery above my waist and the other below the bra line on the side of my back. My pain pump is in my stomach. The remote that controls the stimulator doesn't have to be right against the battery pack. How is the drainage? drainage is normal, but from what you said, it sounded alot more than simple drainage. Did the doctor do the procedure under the guide of X-ray equipment? Hope this helps Sue C Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Procedure will be done under local anesthesia. he said most patients receive intravenous sedation and analgesia, amount depends on patient. This is all I know. I sure hope it's not painful, I'm not dealing with pain well right now. I had a bad day yesterday, first bad day since I went on Gabapentin(generic for Nuerontin). > > > > > > Margee > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > problems in my neck, and back, slight case of spinal stensosis, > > arthriths. I was recently diagnosed with hypopituitarism > > and hypothyroidism. I know how terrified and confused you are. I've > > been there and back. Living in chronic pain, effects everything in our > > lives. I tried everything there was to alleviate my pain before having > > the implants. Nothing worked. > > > The SCSs and pain pump have made a tremendous difference in the > > quality of my life. They are not a cure all, but they certainly reduce > > the amount of pain you have and increase your mobility. The lumbar SCS > > kept me out of a wheelchair and kept me from having to have a lumbar > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > my right arm. The beauty of this group > > is that everyone here is going through the same thing. We can all > > share our experiences and exchange our information. You're in a place > > with experts in the field of SCS!! > > > If you have any questions or would like any other information, > > please feel free to contact me. > > > > > > Sue C > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Yes, my doctor will be doing it that way. He'll have to be careful with me, I will go out easily. In the past with operations, they try to give me something to relax and it puts me asleep. Only 5 more days until my procedure, getting really nervous about it. > > > > > > Margee > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > problems in my neck, and back, slight case of spinal stensosis, > > arthriths. I was recently diagnosed with hypopituitarism > > and hypothyroidism. I know how terrified and confused you are. I've > > been there and back. Living in chronic pain, effects everything in our > > lives. I tried everything there was to alleviate my pain before having > > the implants. Nothing worked. > > > The SCSs and pain pump have made a tremendous difference in the > > quality of my life. They are not a cure all, but they certainly reduce > > the amount of pain you have and increase your mobility. The lumbar SCS > > kept me out of a wheelchair and kept me from having to have a lumbar > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > my right arm. The beauty of this group > > is that everyone here is going through the same thing. We can all > > share our experiences and exchange our information. You're in a place > > with experts in the field of SCS!! > > > If you have any questions or would like any other information, > > please feel free to contact me. > > > > > > Sue C > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 I can't have morphine, causes nausea and panic attacks. Was really bad after my spinal surgery in May 07, I told the nurse not to give me any, she said she would give me half dose. Well then when I got sick all over, not fun in a spinal collar either, she got mad at me. Then my Nuerosurgeon's assistant spent all night with me trying to talk me through panic attacks.It was a very long night for both of us. > > From: Debra <i_ownaberner@...> > Subject: RE: (unknown) > Stimulator > Date: Friday, October 10, 2008, 1:46 AM > > > > > > > Sue, > > I do not know if he used flouro or not...probably did not need to as I was > filleted open........ .how do you feel about the pain pump? Was that done > before or after the stimulator? How well does it work? Do you still have > to take oral drugs? How often do you have the pump refilled? Does it hurt? > What kind of meds are in your pump? Thanks for all of your help I greatly > appreciate it.....the drainage slows down till I start going up and down the > steps. > > Deb > > From: Stimulator@gro ups.com [mailto:Stimulator@gro ups.com] On > Behalf Of Corn > Sent: Thursday, October 09, 2008 5:11 PM > stimulator@gro ups.com > Subject: (unknown) > > Deb > > I don't blame you for being angry and confused. I would be furious if it was > me. The doctor should have told you that there was a problem, and told you > that he had to do surgery before he did it. You had a right to know what was > going to happen before it happened. > I have never heard of having the wires implanted during the trial. The whole > purpose of the trial is to see if the stimulator is going to work. If it > isn't going to help, they don't do the implant, avoiding unneccessary > surgery. This doesn't make sense to me. > I have one battery above my waist and the other below the bra line on the > side of my back. My pain pump is in my stomach. The remote that controls > the stimulator doesn't have to be right against the battery pack. How is the > drainage? drainage is normal, but from what you said, it sounded alot more > than simple drainage. Did the doctor do the procedure under the guide of > X-ray equipment? Hope this helps > > Sue C > Moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Margee There are other medications that can be used in the pump, besides morphine. When are these doctors and nurses going to learn to listen to their patients!!! In the future, just refuse to take the morphine and insist on another medication. That is your right. I have learned to speak up for myself, we must advocate for ourselves, for our health, for our lives. Sue C Moderator From: Margee' <48margee@...> Subject: Re: (unknown) Stimulator Date: Friday, October 10, 2008, 11:36 AM I can't have morphine, causes nausea and panic attacks. Was really bad after my spinal surgery in May 07, I told the nurse not to give me any, she said she would give me half dose. Well then when I got sick all over, not fun in a spinal collar either, she got mad at me. Then my Nuerosurgeon' s assistant spent all night with me trying to talk me through panic attacks.It was a very long night for both of us. > > From: Debra <i_ownaberner@ ...> > Subject: RE: (unknown) > Stimulator@gro ups.com > Date: Friday, October 10, 2008, 1:46 AM > > > > > > > Sue, > > I do not know if he used flouro or not...probably did not need to as I was > filleted open........ .how do you feel about the pain pump? Was that done > before or after the stimulator? How well does it work? Do you still have > to take oral drugs? How often do you have the pump refilled? Does it hurt? > What kind of meds are in your pump? Thanks for all of your help I greatly > appreciate it.....the drainage slows down till I start going up and down the > steps. > > Deb > > From: Stimulator@gro ups.com [mailto:Stimulator@ gro ups.com] On > Behalf Of Corn > Sent: Thursday, October 09, 2008 5:11 PM > stimulator@gro ups.com > Subject: (unknown) > > Deb > > I don't blame you for being angry and confused. I would be furious if it was > me. The doctor should have told you that there was a problem, and told you > that he had to do surgery before he did it. You had a right to know what was > going to happen before it happened. > I have never heard of having the wires implanted during the trial. The whole > purpose of the trial is to see if the stimulator is going to work. If it > isn't going to help, they don't do the implant, avoiding unneccessary > surgery. This doesn't make sense to me. > I have one battery above my waist and the other below the bra line on the > side of my back. My pain pump is in my stomach. The remote that controls > the stimulator doesn't have to be right against the battery pack. How is the > drainage? drainage is normal, but from what you said, it sounded alot more > than simple drainage. Did the doctor do the procedure under the guide of > X-ray equipment? Hope this helps > > Sue C > Moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 My Dr does not use sedation, but he gives me valium > > > > > > Margee > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > problems in my neck, and back, slight case of spinal stensosis, > > arthriths. I was recently diagnosed with hypopituitarism > > and hypothyroidism. I know how terrified and confused you are. I've > > been there and back. Living in chronic pain, effects everything in our > > lives. I tried everything there was to alleviate my pain before having > > the implants. Nothing worked. > > > The SCSs and pain pump have made a tremendous difference in the > > quality of my life. They are not a cure all, but they certainly reduce > > the amount of pain you have and increase your mobility. The lumbar SCS > > kept me out of a wheelchair and kept me from having to have a lumbar > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > my right arm. The beauty of this group > > is that everyone here is going through the same thing. We can all > > share our experiences and exchange our information. You're in a place > > with experts in the field of SCS!! > > > If you have any questions or would like any other information, > > please feel free to contact me. > > > > > > Sue C > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 It does the same thing. It relaxes you without putting you to sleep. The only difference is that the Valium is taken orally. Sue C Moderator From: cobranine <cobranine@...> Subject: Re: (unknown) Stimulator Date: Friday, October 10, 2008, 2:20 PM My Dr does not use sedation, but he gives me valium > > > > > > Margee > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > problems in my neck, and back, slight case of spinal stensosis, > > arthriths. I was recently diagnosed with hypopituitarism > > and hypothyroidism. I know how terrified and confused you are. I've > > been there and back. Living in chronic pain, effects everything in our > > lives. I tried everything there was to alleviate my pain before having > > the implants. Nothing worked. > > > The SCSs and pain pump have made a tremendous difference in the > > quality of my life. They are not a cure all, but they certainly reduce > > the amount of pain you have and increase your mobility. The lumbar SCS > > kept me out of a wheelchair and kept me from having to have a lumbar > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > my right arm. The beauty of this group > > is that everyone here is going through the same thing. We can all > > share our experiences and exchange our information. You're in a place > > with experts in the field of SCS!! > > > If you have any questions or would like any other information, > > please feel free to contact me. > > > > > > Sue C > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Margee, If your doc is an anesthesia doc...ask for propofol.....BUT ask them to mix some lidocaine with the drug (they probably already do...some only do when patient asks)..the drug burns lido relieves burning....with valium and versed etc you feel drugged all day..with propofol it is deeper sedation that wears off quickly Deb RN From: Stimulator [mailto:Stimulator ] On Behalf Of Corn Sent: Friday, October 10, 2008 8:37 AM Stimulator Subject: Re: Re: (unknown) Margeee This is how I get my nerve blocks. They aren't painful.You are aware of everything that is going on, but you are sedated. I had a bad reaction to the Neurontin and had to stop it. If you had a reaction to it, the doctor can change the medication. Sue C Moderator From: Margee' <48margee@... <mailto:48margee%40clearwire.net> I Subject: Re: (unknown) Stimulator <mailto:Stimulator%40> Date: Friday, October 10, 2008, 11:28 AM Procedure will be done under local anesthesia. he said most patients receive intravenous sedation and analgesia, amount depends on patient. This is all I know. I sure hope it's not painful, I'm not dealing with pain well right now. I had a bad day yesterday, first bad day since I went on Gabapentin(generic for Nuerontin). > > > > > > Margee > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > problems in my neck, and back, slight case of spinal stensosis, > > arthriths. I was recently diagnosed with hypopituitarism > > and hypothyroidism. I know how terrified and confused you are. I've > > been there and back. Living in chronic pain, effects everything in our > > lives. I tried everything there was to alleviate my pain before having > > the implants. Nothing worked. > > > The SCSs and pain pump have made a tremendous difference in the > > quality of my life. They are not a cure all, but they certainly reduce > > the amount of pain you have and increase your mobility. The lumbar SCS > > kept me out of a wheelchair and kept me from having to have a lumbar > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > my right arm. The beauty of this group > > is that everyone here is going through the same thing. We can all > > share our experiences and exchange our information. You're in a place > > with experts in the field of SCS!! > > > If you have any questions or would like any other information, > > please feel free to contact me. > > > > > > Sue C > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 All you have to do is say you are " allergic " to it and they dont dare give it to you! Doesnt matter what kind of reaction it caused Most places dont even ask what reaction you had to the medicaton. That works when they dont listen! (unknown) > > Deb > > I don't blame you for being angry and confused. I would be furious if it was > me. The doctor should have told you that there was a problem, and told you > that he had to do surgery before he did it. You had a right to know what was > going to happen before it happened. > I have never heard of having the wires implanted during the trial. The whole > purpose of the trial is to see if the stimulator is going to work. If it > isn't going to help, they don't do the implant, avoiding unneccessary > surgery. This doesn't make sense to me. > I have one battery above my waist and the other below the bra line on the > side of my back. My pain pump is in my stomach. The remote that controls > the stimulator doesn't have to be right against the battery pack. How is the > drainage? drainage is normal, but from what you said, it sounded alot more > than simple drainage. Did the doctor do the procedure under the guide of > X-ray equipment? Hope this helps > > Sue C > Moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Margee They usually give you a small amount of the drug cocktail that they use and see how you react to it. If you are out then they dont give you anymore. I go out pretty easily too and most of mine it was give me the dose and lights out for the most part. I do remember about 2 seconds of pain or pressure but thats it. Much easier than surgery or even some stupid CT scans where I had to drink that crap for it to work. Kim Re: (unknown) Procedure will be done under local anesthesia. he said most patients receive intravenous sedation and analgesia, amount depends on patient. This is all I know. I sure hope it's not painful, I'm not dealing with pain well right now. I had a bad day yesterday, first bad day since I went on Gabapentin(generic for Nuerontin). > > > > > > Margee > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > problems in my neck, and back, slight case of spinal stensosis, > > arthriths. I was recently diagnosed with hypopituitarism > > and hypothyroidism. I know how terrified and confused you are. I've > > been there and back. Living in chronic pain, effects everything in our > > lives. I tried everything there was to alleviate my pain before having > > the implants. Nothing worked. > > > The SCSs and pain pump have made a tremendous difference in the > > quality of my life. They are not a cure all, but they certainly reduce > > the amount of pain you have and increase your mobility. The lumbar SCS > > kept me out of a wheelchair and kept me from having to have a lumbar > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > my right arm. The beauty of this group > > is that everyone here is going through the same thing. We can all > > share our experiences and exchange our information. You're in a place > > with experts in the field of SCS!! > > > If you have any questions or would like any other information, > > please feel free to contact me. > > > > > > Sue C > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 I totally agree with this even though I have not had mine yet. What if the trial does not work and you have to have it removed? Then you have gone through all that surgery for naught. Just my thoughts Kim (unknown) Deb I don't blame you for being angry and confused. I would be furious if it was me. The doctor should have told you that there was a problem, and told you that he had to do surgery before he did it. You had a right to know what was going to happen before it happened. I have never heard of having the wires implanted during the trial. The whole purpose of the trial is to see if the stimulator is going to work. If it isn't going to help, they don't do the implant, avoiding unneccessary surgery. This doesn't make sense to me. I have one battery above my waist and the other below the bra line on the side of my back. My pain pump is in my stomach. The remote that controls the stimulator doesn't have to be right against the battery pack. How is the drainage? drainage is normal, but from what you said, it sounded alot more than simple drainage. Did the doctor do the procedure under the guide of X-ray equipment? Hope this helps Sue C Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Hello, I have the scoop....my doctor always puts in permanent wires BECAUSE he used to do temporary wires and the patient was thrilled and then when he placed the permanent wires it wasn't covering the patients pain...and he couldn't get it right and the patient was upset and disappointed...that is why he does it the way he does. In the future the doc should not give patients the company video he really needs to make his own pre op teaching stuff....well I am lucky it does work and is being implanted on Wed.... Deb From: Stimulator [mailto:Stimulator ] On Behalf Of kimleach Sent: Friday, October 10, 2008 1:19 PM Stimulator Subject: Re: (unknown) I totally agree with this even though I have not had mine yet. What if the trial does not work and you have to have it removed? Then you have gone through all that surgery for naught. Just my thoughts Kim (unknown) Deb I don't blame you for being angry and confused. I would be furious if it was me. The doctor should have told you that there was a problem, and told you that he had to do surgery before he did it. You had a right to know what was going to happen before it happened. I have never heard of having the wires implanted during the trial. The whole purpose of the trial is to see if the stimulator is going to work. If it isn't going to help, they don't do the implant, avoiding unneccessary surgery. This doesn't make sense to me. I have one battery above my waist and the other below the bra line on the side of my back. My pain pump is in my stomach. The remote that controls the stimulator doesn't have to be right against the battery pack. How is the drainage? drainage is normal, but from what you said, it sounded alot more than simple drainage. Did the doctor do the procedure under the guide of X-ray equipment? Hope this helps Sue C Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 That the first time I heard a Doctor do that. mike owner > > Hello, > > I have the scoop....my doctor always puts in permanent wires BECAUSE he used > to do temporary wires and the patient was thrilled and then when he placed > the permanent wires it wasn't covering the patients pain...and he couldn't > get it right and the patient was upset and disappointed...that is why he > does it the way he does. In the future the doc should not give patients the > company video he really needs to make his own pre op teaching stuff....well > I am lucky it does work and is being implanted on Wed.... > > Deb > > > > From: Stimulator [mailto:Stimulator ] On > Behalf Of kimleach > Sent: Friday, October 10, 2008 1:19 PM > Stimulator > Subject: Re: (unknown) > > > > I totally agree with this even though I have not had mine yet. What if the > trial does not work and you have to have it removed? Then you have gone > through all that surgery for naught. > Just my thoughts > Kim > (unknown) > > Deb > > I don't blame you for being angry and confused. I would be furious if it was > me. The doctor should have told you that there was a problem, and told you > that he had to do surgery before he did it. You had a right to know what was > going to happen before it happened. > I have never heard of having the wires implanted during the trial. The whole > purpose of the trial is to see if the stimulator is going to work. If it > isn't going to help, they don't do the implant, avoiding unneccessary > surgery. This doesn't make sense to me. > I have one battery above my waist and the other below the bra line on the > side of my back. My pain pump is in my stomach. The remote that controls the > stimulator doesn't have to be right against the battery pack. How is the > drainage? drainage is normal, but from what you said, it sounded alot more > than simple drainage. Did the doctor do the procedure under the guide of > X-ray equipment? Hope this helps > > Sue C > Moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 I never heard of it being done that way either. I never heard of permant wires placed during a trial. Good luck with the implant Sue C Moderator From: Mike <mike2boys@...> Subject: Re: (unknown) Stimulator Date: Friday, October 10, 2008, 9:27 PM That the first time I heard a Doctor do that. mike owner > > Hello, > > I have the scoop....my doctor always puts in permanent wires BECAUSE he used > to do temporary wires and the patient was thrilled and then when he placed > the permanent wires it wasn't covering the patients pain...and he couldn't > get it right and the patient was upset and disappointed. ..that is why he > does it the way he does. In the future the doc should not give patients the > company video he really needs to make his own pre op teaching stuff....well > I am lucky it does work and is being implanted on Wed.... > > Deb > > > > From: Stimulator@gro ups.com [mailto:Stimulator@gro ups.com] On > Behalf Of kimleach > Sent: Friday, October 10, 2008 1:19 PM > Stimulator@gro ups.com > Subject: Re: (unknown) > > > > I totally agree with this even though I have not had mine yet. What if the > trial does not work and you have to have it removed? Then you have gone > through all that surgery for naught. > Just my thoughts > Kim > (unknown) > > Deb > > I don't blame you for being angry and confused. I would be furious if it was > me. The doctor should have told you that there was a problem, and told you > that he had to do surgery before he did it. You had a right to know what was > going to happen before it happened. > I have never heard of having the wires implanted during the trial. The whole > purpose of the trial is to see if the stimulator is going to work. If it > isn't going to help, they don't do the implant, avoiding unneccessary > surgery. This doesn't make sense to me. > I have one battery above my waist and the other below the bra line on the > side of my back. My pain pump is in my stomach. The remote that controls the > stimulator doesn't have to be right against the battery pack. How is the > drainage? drainage is normal, but from what you said, it sounded alot more > than simple drainage. Did the doctor do the procedure under the guide of > X-ray equipment? Hope this helps > > Sue C > Moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Margee, I am also allergic to morphine which is why I have Fentanyl - synthetic morphine - in my pump. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 http://whale.to/a/india2.html (unknown) In India's vaccination schedule there's a measles shot included at nine months. I guess this was the reason this poor baby got it. There were four? more baby deaths in the state of Maharashtra few weeks back after the MMR shot. Let me find the link. It's really terrible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 > > http://whale.to/a/india2.html > Thanks for that link...I had no idea there was such a big section for India on your site. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 He told me he'd make it so I was comfortable. > > > > > > > > Margee > > > > > > > > I have 2 spinal cord stimulators and a pain pump. I have RSD, disc > > > problems in my neck, and back, slight case of spinal stensosis, > > > arthriths. I was recently diagnosed with hypopituitarism > > > and hypothyroidism. I know how terrified and confused you are. I've > > > been there and back. Living in chronic pain, effects everything in our > > > lives. I tried everything there was to alleviate my pain before having > > > the implants. Nothing worked. > > > > The SCSs and pain pump have made a tremendous difference in the > > > quality of my life. They are not a cure all, but they certainly reduce > > > the amount of pain you have and increase your mobility. The lumbar SCS > > > kept me out of a wheelchair and kept me from having to have a lumbar > > > spinal fusion surgery. The cervical SCS gave me back the mobility in > > > my right arm. The beauty of this group > > > is that everyone here is going through the same thing. We can all > > > share our experiences and exchange our information. You're in a place > > > with experts in the field of SCS!! > > > > If you have any questions or would like any other information, > > > please feel free to contact me. > > > > > > > > Sue C > > > > Moderator > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Oh, I've never heard of that. My Mom has problems with Morphine too, once they gave it to her during one of her back surgeries and her heart stopped. Took them awhile to get her heart going again. > > Margee, > I am also allergic to morphine which is why I have Fentanyl - synthetic morphine - in my pump. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 In South Africa, children also get a Measles shot at 9 months, my oldest son had a reaction 10 days after receiving this shot. (unknown) In India's vaccination schedule there's a measles shot included at nine months. I guess this was the reason this poor baby got it. There were four? more baby deaths in the state of Maharashtra few weeks back after the MMR shot. Let me find the link. It's really terrible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 I have heard that 10 days after is a very common time for the MMR reaction. My son had one then, too--to the day. Winnie (unknown) > > > In India's vaccination schedule there's a measles shot > included at nine months. I guess this was the reason this poor > baby got it. There were four? more baby deaths in the state of > Maharashtra few weeks back after the MMR shot. Let me find the > link. It's really terrible. > > Quote Link to comment Share on other sites More sharing options...
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