Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 I started puberty young as well. I never had any problems with sinus infections i had my kids. Never had a problem with ear infections either. I'm not really sure if i was tall for my age, but i'm 5'7 " now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Our son (32) never had any ear infections nor sinus infections. His puberty went normal and he's 1 meter 85 centimeters (5.97) which is a normal height for his age in The Netherlands Dolph Re: blepharophimosis (unknown)> > > > Clare,> > I was just reading your reply to Shena and you made me think...LOL. My> oldest son, who is 11, actually started puberty at the age of 9. He also> has ADD and during the process of all the testing to determine if he had> ADD, the doctor mentioned to me that he was starting puberty. At that time> he already had underarm hair. He turned 11 in Sept. and he is already> taller than me. He's 5ft. 8in. tall and wears a mens size 11½ shoe. He was> back to the regular in Jan. and he's started the 2nd phase of puberty. I> made hubby take him to that appointment because we had some questions about> it and felt my son would be more comfortable with his dad instead of me. I> sure wish there was more that the doctors knew about BPES. It's always a> guessing game. Wonder if this or that has to do with BPES.> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Out of the 3 guys that have BF here ...none are tall ( by far my kids are very small) no ear infections, sinus, or otherwise and my 13 yr old seems to be on the level of everyone his age puberty wise .....I didn't think this was part of BF ? Dolph Heideman <ajheideman@...> wrote: Our son (32) never had any ear infections nor sinus infections. His puberty went normal and he's 1 meter 85 centimeters (5.97) which is a normal height for his age in The Netherlands Dolph Re: blepharophimosis (unknown)> > > > Clare,> > I was just reading your reply to Shena and you made me think...LOL. My> oldest son, who is 11, actually started puberty at the age of 9. He also> has ADD and during the process of all the testing to determine if he had> ADD, the doctor mentioned to me that he was starting puberty. At that time> he already had underarm hair. He turned 11 in Sept. and he is already> taller than me. He's 5ft. 8in. tall and wears a mens size 11½ shoe. He was> back to the regular in Jan. and he's started the 2nd phase of puberty. I> made hubby take him to that appointment because we had some questions about> it and felt my son would be more comfortable with his dad instead of me. I> sure wish there was more that the doctors knew about BPES. It's always a> guessing game. Wonder if this or that has to do with BPES.> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 I have a daughter, 6, with bleph. She is the first one in our family. Of our three children, she is the only one with sinus infections, which she seems to get with almost every cold. She is not particularly tall for her age, no signs of early puberty (except possibly the attitude she likes to sport on occasion!, and no other major symptoms except for the typical eye issues - telecanthus, epicanthus inversus, ptosis. She also has a shortage of skin around her eyes -- they are quite tight, if you know what I mean, and they needed to graft some skin to her lower lid area to keep the lid from pulling away from the eyeball. She is also quite smart. Of course, I may be a biased mom, but her teacher said we should test her for the gifted program in our district. As for the questions about genetic testing, we had the testing done and it did not tell us whether or not has type 1 or type 2. We just have to wait and see how things go for her. Beth, from my conversations with the genetics counselor, I think you are correct...there is no real difference that genetic testing will make in how you proceed with treating your case of bleph. You'll have to deal with symptoms as they arise, no matter what. However, some people like to know and understand the causes of this, and my conversations with the genetics councelor have really made a difference for me. I really feel like I understand things much better because of it. Also, she talked with us thoroughly about the risks and benefits of testing to help us decide. (Risks involve things like having a record made of your genetic makeup, etc. Minimal, in the estimation of my husband and I, but to some this may be important.) We saw a genetics counselor at Children's Hospital in Seattle. If you decide to proceed with this, I'd suggest going to the closest children's hospital. We saw a different geneticist at first, who was great, but when we moved to Children's, they had us see the member of their team. There was definitely a difference, because the genetics counselors at a children's hospital are used to helping educate parents who are trying to make decisions about future children. I really left that appointment much more informed, and even was able to call her when I was pregnant with my third child to ask questions. Hope this helps! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 My husband has a moderate case of BPES and he has never had an ear infection or a sinus issue . He only sicknesses issues are broncial. My little Juli Who has BPES is only 10 months old and on her 2nd ear infection.. Hmmmm makes you wonderbethgordon03 <bethgordon03@...> wrote: These might be interesting questions to pose to the adults who have BPES, I have BPES and I did have a lot of ear infections, sinus infections, and still get sinus infections, my nose bridge is small but not extremely so. I was tall for my age, entered puberty young (11). I never thought any of these things were particularly unusual.> hi there, what a roller coaster, my son lynden as i replied earlier has some> of the same features as others........ puberty ithink he is not there yet> but he is tall and i mean tall i am 5 foot 3 (i am not tall by any means ha> ha)and lynden is about 5 feet, his feet are size 5, most of the other kids> in his class have size 1 or 2 feet. now his dad is 6 foot 2 but now that i> see your guy's posts i am wondering if this is related to the BPES, lol> > Tonikka> Re: blepharophimosis (unknown)> > > > Clare,> > I was just reading your reply to Shena and you made me think...LOL. My> oldest son, who is 11, actually started puberty at the age of 9. He also> has ADD and during the process of all the testing to determine if he had> ADD, the doctor mentioned to me that he was starting puberty. At that time> he already had underarm hair. He turned 11 in Sept. and he is already> taller than me. He's 5ft. 8in. tall and wears a mens size 11½ shoe. He was> back to the regular in Jan. and he's started the 2nd phase of puberty. I> made hubby take him to that appointment because we had some questions about> it and felt my son would be more comfortable with his dad instead of me. I> sure wish there was more that the doctors knew about BPES. It's always a> guessing game. Wonder if this or that has to do with BPES.> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 I had posterior fusion at c1-c2 . I will be in a collar for 3 months . very little neck pain , just discomfort. Good luck with surgery . . --- Jeanie Larson <jeanrrt1218@...> wrote: > Hi, > I have just found out that I am going to have to > have a posterior cervical fusion at C3-4. I have > scheduled it for June 15, 2005 since my daughter is > graduating in May. I am wondering if there is > anyone that has had this done and if so, how painful > was it?? I have heard that it is much worse than > the anterior approach, but since I am already fused > C4-7, my doctor doesn't want to use the anterior > approach this time because he would have to take out > the plate and screws already in there to gain access > to that area. Are there different approaches used > in posterior fusion?? How long and painful is > recovery?? > Thanks very much. > RRT > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 I had posterior fusion at c1-c2 . I will be in a collar for 3 months . very little neck pain , just discomfort. Good luck with surgery . . --- Jeanie Larson <jeanrrt1218@...> wrote: > Hi, > I have just found out that I am going to have to > have a posterior cervical fusion at C3-4. I have > scheduled it for June 15, 2005 since my daughter is > graduating in May. I am wondering if there is > anyone that has had this done and if so, how painful > was it?? I have heard that it is much worse than > the anterior approach, but since I am already fused > C4-7, my doctor doesn't want to use the anterior > approach this time because he would have to take out > the plate and screws already in there to gain access > to that area. Are there different approaches used > in posterior fusion?? How long and painful is > recovery?? > Thanks very much. > RRT > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Hi Terri, Welcome to the site, I had a TLHR and bone grafting at the beginning of October last year and I was non weight bearing for three months. I also am getting a lot of pain in my good hip and just this week end I could hardly lift my leg in order to climb the stairs which great seeing as I still have a lot of stiffness in my op leg too. I think that most of my pain (also in my lower spine) is due to my body trying to get used to the fact that both my legs are now a similar length whereas before my left leg was about 2 inches shorter than my right. The majority of this difference has been corrected by the surgery, I don’t think it is 100% but it is certainly better than before. Could this be part of the problem for you? Have you mentioned it to your doctor? I am still using one crutch at the minute as I don’t feel that I can manage without it especially outdoors, but I noticed the pain more when I began using just one crutch usually when walking long distances. Good luck Jo From: terri manship [mailto:diamondgirl1109@...] Sent: 02 March 2005 01:40 To: Joint Replacement Surgery Subject: (unknown) Hi all. I'm another newbee to this group. I'm 49 and on 2/11 I had a THR. I have a cobalt chrome " press fit " . Dr's orders is that I put no weight on it at all. My transportation in my beloved walker. My question is..my good hip now is starting to hurt. Can I damage it with putting too much weight on it? The last I knew it was in great shape. I know weight has alot to do with it as I am not small..I am 5'5 and 175 and I KNOW I need to lose weight. On 3/3 I get my staples removed and then I will find out " if " I get to place any weight on my new hip. Have any of you had your good leg start hurting? Thanks for any input. This is a great site and I have been reading it daily Terri __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Hi Terri, I had a THR on my left hip on 10/28. By December, my right hip began to ache badly. I'm now scheduled for another THR on my right hip on 3/15. The surgeon said it was fairly common for the opposite side to 'act up' after a THR. I did not have the same weight-bearing restrictions as you, and at 52, was about 20 pounds overweight. Good luck, Carolterri manship <diamondgirl1109@...> wrote: Hi all. I'm another newbee to this group. I'm 49 and on 2/11 I had a THR. I have a cobalt chrome "press fit" . Dr's orders is that I put no weight on it at all. My transportation in my beloved walker. My question is..my good hip now is starting to hurt. Can I damage it with putting too much weight on it? The last I knew it was in great shape. I know weight has alot to do with it as I am not small..I am 5'5 and 175 and I KNOW I need to lose weight. On 3/3 I get my staples removed and then I will find out "if" I get to place any weight on my new hip. Have any of you had your good leg start hurting? Thanks for any input. This is a great site and I have been reading it daily Terri __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Welcome Patty I have been looking for you glad yu found us. We at one time had a letter someone posted for our family and friends explaining how we feel and that because we don't look sick doesn't mean we aren't sick. I can't find my copy of it but maybe someone else has it. I hope you get some help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 hi again, i posted yesterday and it didnt go up ,maybe im doing somthing wrong ,was wondering after my surg on monday for cholesteatoma i lost my incus and stirup,will i ever hear again or can it be fixed, hope this goes thru ,thank you kirkHi Kirk The loss of the middle ear bones causes conductive deafness. If your nerve hearing (the inner ear part) is functioning reasonable well then there is quite a lot of scope for improving your hearing. The first is reconstruction - they replace all or some of the bones with a prosthetic (often a titanium rod of some kind) which helps to conduct the sound to the inner ear. Another option is a BAHA (bone anchored hearing aid) which bypasses the middle ear by conducting sound directly through your skull. Lastly an ordinary hearing aid simply amplifies sound will provide some help. Any idea what your current hearing loss is according to your audiology chart? There are usually two graph lines: one measuring air conduction and the other measuring bone conduction. Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2005 Report Share Posted March 21, 2005 Hi Clare, Well done, I knew you wouldn't wait long for a trip. Drop me a note off site at brodj2@.... Magz Teague (unknown) Hey guys, Thanks for the replies.Hows it going ?Im on the Triton FPSO did a week on the Beatrice Alpha then came out here on wed. Still finding my feet but its all good so far.Are you also a safety officer ? think ill have to look into doing courses in the future not just yet though! Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2005 Report Share Posted March 21, 2005 Thank you! Dagmar. (unknown) you can use velcro but it does not stretch. Better to use elastic cloth with velcro sewn or stapled onto the ends. The elastic cloth can get wet. So, the area of the cloth that touches the wet electrodes should be taped with plastic tape to avoid leaking the current through the wet elastic cloth. bG > > Hi, > > I have one more question. How do you fix the electrodes onto your wrist? Can you use a strip of velcro or would this carry the current? > > Thank you for your answer, > > Dagmar. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 I added 5 pound ankle weights to my workout. That has made a big difference also. I can really feel that my legs are stronger. Ideas for Eddie -- do you have a local YMCA? They have some wonderful youth programs. Does your community offer a "summer activity" for kids? These usually center around doing something active at a park. Is there something that he has always wanted to try? Can you sign him up for lessons? One thing that I an looking forward to getting back into this spring/summer is hiking. We liked to do that as a family when our boys were younger. Got out of the habit. Do you have some state parks nearby? They usually have some good hiking trails.How about biking? Do you have some biking trails nearby? Dacia <>< God's grace has saved you because of your faith in Christ. Your salvation doesn't come from anything you do. It is God's gift. It is not based on anything you have done. No one can brag about earning it. Ephesians 2:8-9 www.DeafJesus.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Coco Puro is one good brand of Virgin Coconut Oil in the market. Other brands manufactured in the Philippines are also good provided that they are registered with the Bureau of Food and Drugs... > > > > Can anyone recommend a good brand of virgin Coconut oil ... ? > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 all that I can recommend for now is Rare Earth Centrifuged processed vco that i suggest that you should try out first for yuu to know if it is indeed good as I say. thanks selina www.coconaturelle.com --- nickvillarruz <iam@...> wrote: > > Coco Puro is one good brand of Virgin Coconut Oil in > the market. Other > brands manufactured in the Philippines are also good > provided that they > are registered with the Bureau of Food and Drugs... > > > > > > > > > Can anyone recommend a good brand of virgin > Coconut oil ... ? > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 For my son (who's 14 with AS traits), we've had him in gifted programming (which worked fairly well socially - lots of square pegs - but demanded too much of him in terms of written expression (his weakness)) in French immersion (unchallenging academically, demanding socially as this kids were elite - this was pre-diagnosis) and now mainstream high school with tutoring for both strenghts and weaknesses. He floats academically through the day but I figure there's enough stress socially and emotionally for him. To challenge him we're using the tutor method. Can't say it's the best system, but I know of no other at the moment. kimz (unknown) Hi Amy, I wsh I had an answer for you. My daughter has similar issues - high intelligence but emotionally unstable. She was placed in a smaller SPED class last year and it really brought her down; she missed out on a lot of school work; was terribly bored (which brought on more OCD). She is doing better in a typical fourth grade class this year but has a full time aide with her. She also just switched meds and is doing great on Prozac. We are very nervous about middle school next year (not sure if they will provide an aide and not sure if dd wants an aide). I am anxious to see what kind of suggestions you get from this group! Good Luck, , mom to katie 10 yrs, OCD GAD > Hello all, > > We have a dilemma, and we would like some feedback from others as we try to > make the best decisions for our daughter (Doug please feel free to email me > personally). Our daughter since first grade now in fifth has had > difficulties in school towards the end of the school year. Some of the > issues are getting homework done, long term assignments, heightened anxiety, > social struggles, increased meltdowns.....this has impacted her ability to > learn and retain information the second half of the school year. This > situation has been an ongoing problem in each grade. By the end of each > school year she is almost non-functioning. Every little stressor impacts > her and causes her stability to deteriorate, she becomes age regressive and > more symptomatic. Her diagnosis at present is GAD (generalized anxiety > disorder) with panic, OCD, depression and alexithymia (inability to express > emotions in words or interpret the emotions of others). When she was in the > third grade she was put into a partial hospital program and did not finish > the year in public school. She made the most progress with both the illness > related issues and coping skills while in this program. She has always been > resistant to therapy, and it would increase her symptoms. We have felt that > the partial program offered her an environment that addressed all of her > inabilities and offered her group therapy that was more comfortable for her > to achieve such progress. > > We are looking at this pattern of ongoing issues that repeat each year in a > public school setting and asking ourselves if we are helping her by keeping > her in the main stream of society (public school) or are we complicating her > full potential that may be achieved by a specialized environment (example a > school for the emotionally/socially impaired). We are in our second attempt > to have her evaluated for Special Education, she does have a 504 currently. > She was just recently diagnosed with scoliosis and may need surgery due to > the severity and this is an added concern we are factoring into our > decisions of making this decision about her educational needs. > > Our questions are: Are we complicating her abilities by keeping her in > public school environments? Would a specialized school be more appropriate? > What do you offer to help bridge the gap of high intelligence, and the > emotional, and social weaknesses? > > Looking forward to hearing your views, > > Amy Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Dear Pang, Sounds like you've had quite an experience with this illness already! Most of us on this board are opposed to the iodine treatment because it permanently destroys the thyroid, you must be on Synthroid for life, and it causes side effects after 2 years or so. Thyroid disease is caused by an imbalance, and can be corrected, although it takes patience. Please go to our sister site, iThyroid.com, to see how to use nutrition and supplements to address the imbalance (of course, you still need to stay on the meds while you do this). Good luck, and keep in touch, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Amy, That's a tough question. The only worthwhile thought I have on the problem is that most programs for kids with social / emotional issues are filled with children who are tremendous discipline problems, and have, for the most part, been removed from regular classrooms. Many, many of them are kids with unstable families and lots of the kids are in and out of foster care. I know you will evaluate any program very well, but I suspect that other than partial hospitalization programs, you'll have trouble finding a place for someone like your daughter. And with a partial hospitalization program, don't you run into insurance issues? Can you use it as an ongoing school option? We found that public school was the best option for our daughter with OCD, but it required some heavy-duty parent advocacy for a while. She had an IEP starting in fifth grade, but it was borderline whether they would give it to her, since she was getting all A's and B's. The fact that she was gifted and still getting B's was used to point out that her OCD was impairing her functioning. I think they signed the IEP mostly because I had made myself indipensable at school, and they liked my family and my daughter. (I hate to admit that, but I think it's true.) She would easily have qualified for a 504, but her psychiatrist told me to push for an IEP and I did. She has now gotten beyond the social issues (way beyond!) and is doing really well. Of course I don't know your daughter and can't tell how she funtions in school, but for social and emotional issues, being around " normal " peers is quite helpful. If you could reduce the stress through a 504 or IEP (reduce the work load or grade only on what she finishes, etc.) so that she doesn't have such a hard time in the spring, maybe she would be able to relax more. My daughter had a Nov. - March collapse each year until this year. We made sure the teachers knew and really didn't pressure her when she was stressed. It helped. I'll be interested in hearing what others say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 Jeanette, You can get the book info at the website www.autismthoughts.com if you have any problems I am one of the authors and will be happy to hook you up. Verla (unknown) Can anyone tell me, where i can get the book called heartfelt thoughts of mothers or mothers heartfelt thoughts???????????Not sure which way round it is.Please let me know.thanks netty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 Can someone tell me Is http://www.collegepharmacy.com the only exclusive on-line TD-DMPS distributor? >>>> Ths pharmacy in Switzerland carries the AMT, same as above, TD DMPS for Europe - they do not require a prescription, the one above does _http://www.merlonipharma.ch/eng_frm_presentazione.htm_ (http://www.merlonipharma.ch/eng_frm_presentazione.htm) HTH Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2005 Report Share Posted April 23, 2005 My dentist said hydrogen peroxide and baking soda was the best. (unknown) > > Hi Everybody, > > Does anybody know the safety of using household > hydrogen peroxide? > > I used to use a combo of hydrogen peroxide and baking > soda to brush my teeth, but a dentist told me it > erodes the tooth enamel. > > So, now I just use plain baking soda. > > Thoughts? > > Much love, > Pamela > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2005 Report Share Posted April 23, 2005 Thanks, . Is that what you use? How long and what have been your results? Pamela --- " McCourt, Ph.D. " <drjem@...> wrote: > > My dentist said hydrogen peroxide and baking soda > was the best. > > (unknown) > > > > > > Hi Everybody, > > > > Does anybody know the safety of using household > > hydrogen peroxide? > > > > I used to use a combo of hydrogen peroxide and > baking > > soda to brush my teeth, but a dentist told me it > > erodes the tooth enamel. > > > > So, now I just use plain baking soda. > > > > Thoughts? > > > > Much love, > > Pamela > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2005 Report Share Posted April 23, 2005 Seems just like everything else. Cannot tell that it is better or worse. Very Inexpensive. Mouth seems cleaner and less slimy than commercial paste. Does not prevent tartar. Does not promote improved gum tissue. But then again neither do the commercial products. (unknown) > > > > > > > > > > Hi Everybody, > > > > > > Does anybody know the safety of using household > > > hydrogen peroxide? > > > > > > I used to use a combo of hydrogen peroxide and > > baking > > > soda to brush my teeth, but a dentist told me it > > > erodes the tooth enamel. > > > > > > So, now I just use plain baking soda. > > > > > > Thoughts? > > > > > > Much love, > > > Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2005 Report Share Posted April 23, 2005 Ruth welcome ! So glad your husband is feeling so good after surgery. Take it easy and don't push the solid food too soon ! It is a wonderful feeling when the food hits your stomach for the first time for a long time . Good luck Joan Johannesburg South Africa (unknown) > > my huaband had surgury for A this week. he had the laproscopic heller > myotomy. > WOW. it has been a joy to see him eat and eat and eat. even if it is > mostly soups and custard. no complaining over here. what a gift to have > him eat again. > just wanted to share our happy moment. we are from winnipeg, canada. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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