Re: (unknown)

April 24, 2005

thank you joan!

yes....we are just so so thankful.

how long would you advise to wait before going into solid foods?

shalom,

ruth

Joan Pearse <jpearse@...> wrote:

Ruth welcome !

So glad your husband is feeling so good after surgery. Take it easy and

don't push the solid food too soon !

It is a wonderful feeling when the food hits your stomach for the first time

for a long time .

Good luck

Joan

Johannesburg

South Africa

(unknown)

>

> my huaband had surgury for A this week. he had the laproscopic heller

> myotomy.

> WOW. it has been a joy to see him eat and eat and eat. even if it is

> mostly soups and custard. no complaining over here. what a gift to have

> him eat again.

> just wanted to share our happy moment. we are from winnipeg, canada.

>

> __________________________________________________

>

April 25, 2005

Hi Ruth,

You have already had some excellent advice from those who have just had the

experience ! I would honestly go slowly as Kathie did and introduce foods

one at a time. It is worth remembering that your stomach wall has been

'fiddled with' and the valve (sphincter) cut so give it time to heal. There

are others who with their doctors blessing went and had a hamburger, but I

too would rather be safe than sorry.

Joan

(unknown)

>

>>

>> my huaband had surgury for A this week. he had the laproscopic heller

>> myotomy.

>> WOW. it has been a joy to see him eat and eat and eat. even if it is

>> mostly soups and custard. no complaining over here. what a gift to have

>> him eat again.

>> just wanted to share our happy moment. we are from winnipeg, canada.

>>

>> __________________________________________________

>>

April 25, 2005

thank you joan!

yes....i have been busy making him soft foods.

i got cream of potatoe...cream of tomato....cream of

cauliflour/asparagus....baked custurd...

Joan Pearse <jpearse@...> wrote:

Hi Ruth,

You have already had some excellent advice from those who have just had the

experience ! I would honestly go slowly as Kathie did and introduce foods

one at a time. It is worth remembering that your stomach wall has been

'fiddled with' and the valve (sphincter) cut so give it time to heal. There

are others who with their doctors blessing went and had a hamburger, but I

too would rather be safe than sorry.

Joan

(unknown)

>

>>

>> my huaband had surgury for A this week. he had the laproscopic heller

>> myotomy.

>> WOW. it has been a joy to see him eat and eat and eat. even if it is

>> mostly soups and custard. no complaining over here. what a gift to have

>> him eat again.

>> just wanted to share our happy moment. we are from winnipeg, canada.

>>

>> __________________________________________________

>>

April 26, 2005

- welcome. What is your son's name? Our daughter Macey is 9 and has

CVID which is a combination of immune problems. Has your son had any of the

heart related problems from the Di? Is he very allergic to

everything? What type of treatment do they have him on? Feel free to ask

any questions you may have. I believe we have other families with Di

and I know we have some Hyper IgE (aka Job's syndrome) families.

Ursula Holleman

mom to (12 yrs old) and Macey (9 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

April 26, 2005

best of luck to you and your family. Our son too has many issues.

Our son is 3 yrs old and has cvid, acid reflux disease, torticolis

developmental delay ect....my name is Dawn

--- nancy kuhr <lilwildones@...> wrote:

> Hello im i have a son who has hyper IGE syndrome and De

> syndrome and velcocardiofacial syndrome, hes only 3 yrs old and been

> through alot. just finally diagnoaised with these syndromes in jan.2005.

> we started out at 5 days old havin grand maul seizures and not sure he

> would make it, and now we are at 3 yrs old and worried about the future

> for him. me and my husband are looking to meet parents with children

> with immune defencys, its really changed are lifes. we hardly go

> anywheres besides childrens hosp of wisc, we have 2 other children

> too..thank you all and god bless

>

> ---------------------------------

> Do you ?

> Small Business - Try our new resources site!

>

April 27, 2005

Is this true? Or one of those email chain letters? Isn't there a site where

you can find out if this type of emails are legit? Does someone have it?

Kimi

April 27, 2005

In a message dated 4/27/2005 10:27:05 AM Eastern Standard Time,

Ksmile96@... writes:

Isn't there a site where you can find out if this type of emails are legit?

Does someone have it?

isn't it snopes.com?

Amy M. Marquez

McHenry, Illinois

April 27, 2005

or breakthechain.org

Ames24@... wrote:

>In a message dated 4/27/2005 10:27:05 AM Eastern Standard Time,

>Ksmile96@... writes:

>Isn't there a site where you can find out if this type of emails are legit?

>Does someone have it?

>isn't it snopes.com?

>

>Amy M. Marquez

>McHenry, Illinois

>

April 27, 2005

Yes, snopes would have the info. I checked that for several other

things, including the email from my sis in-law about the ban on

religious broadcasting (but that particular one did not mention Dobson).

> In a message dated 4/27/2005 10:27:05 AM Eastern Standard Time,

> Ksmile96@a... writes:

> Isn't there a site where you can find out if this type of emails are

legit?

> Does someone have it?

> isn't it snopes.com?

>

> Amy M. Marquez

> McHenry, Illinois

>

April 27, 2005

Anyone know of anything that helps with receding gums? My dentist told

me it's a consequence of aging, so I'd love to prove him wrong.

McCourt, Ph.D. wrote:

>Seems just like everything else. Cannot tell that it is better or worse.

>Very Inexpensive. Mouth seems cleaner and less slimy than commercial paste.

>Does not prevent tartar. Does not promote improved gum tissue. But then

>again neither do the commercial products.

>

> (unknown)

>>>

>>>>Hi Everybody,

>>>>

>>>>Does anybody know the safety of using household

>>>>hydrogen peroxide?

>>>>

>>>>I used to use a combo of hydrogen peroxide and

>>>>

>>>baking

>>>

>>>>soda to brush my teeth, but a dentist told me it

>>>>erodes the tooth enamel.

>>>>

>>>>So, now I just use plain baking soda.

>>>>

>>>>Thoughts?

>>>>

>>>>Much love,

>>>>Pamela

>>>>

>

>Note: This forum is for discussion of health related subjects but under no

circumstances should any information published here be considered a substitute

for personal medical advice from a qualified physician. -the owner

>

April 29, 2005

Dawn, I am so excited for you! Drink lots of water to get the sweat going in the sauna. Good Luck, Anita (unknown) Hi Everybody,Thanks Rogene, Patty and Kenda for answering myswollen gland question!I'm waiting around for the ax to fall quite frankly.Reason being, I actually am having a major break fromthe anxiety and depression that I had while I had theimplants. I know I probably sound like a fruit cakehere, but I think I may have been much much moredepressed than I thought. Truthfully, the depressionprobably came before all of the other symptoms... butit was so insidious that I did not even recognize itas depression. For the past three years I just wanted to be alone...I wanted to be around no one, I wanted to do nothing,I wanted zero relationship with my husband. I amactually shocked at the fact that I now yearn to bewith my family, I am excited about life, I feel someof the vigor I had pre implant. I know I am notimagining this, my husband sees it too. We just don'twant to get too excited about this yet since who knowsif it will last.This is a good sign. It goes to show that the implantsreally were wreaking havoc inside my body. I nowbelieve that other symptoms will abate and I have anexcellent shot for recovery.I haven't been able to keep up with the postslately... sorry, I'm sort of out of the loop as towhat's goin' on .. on the board. I will contribute asmuch as I can regarding my recovery.. I want the newgirls to know that they should have hope and that itis not all in their head.By the way, did the sauna at the gym today... gees,just like you guys said.... I was in there for a good15 to 20 mins and barely broke a sweat! Howdisappointing! Oh well, I'll keep trying.Hope you all are doing okay.Hugs,Dawn__________________________________________________

May 6, 2005

Well Sue I just got back from a meeting with the principal of my elementary

school to see if she was open to a half day kindergarten next year for

Micah, as an alternative to pre-school wirth aide. The advocate we spoke with

suggested talking to her to see how she responded because she could

make or break it for Micah. Well no such luck. She didn't seem very happy to

see us there as if she had better things to do. I got all the old standby's

" Oh he would probably do better in self contained because they can work more

one on one with him. " Duh,that's what a resource room is for. Also my

personal favorite " Well if he can't keep up with his peers then it would not be

the

best placement " I said " He will never keep up with his peers. That has

nothing to do with the most appropriate placement for him. " She kept saying

she started out as a special ed teacher and knows the laws as she worked with

a special ed lawyer at one point.. I wanted to say, then do you know

" Holland vs. the school board " etc. but I bit my tongue until it bled and

played

stupid until my CSE meeting. I will now go in and definitely fight for

pre-school with teacher consult and KNOW I am looking at a HUGE fight but i am

hopping mad right now.

So Sue you are not going through this stuff alone. I am too!

Loree

May 6, 2005