new to list

[Guest guest]

hi people,my name is rose i live in the UK,i have 3 girls,the youngest is 4 and

has autism,severe learning difficulties and is also nonverbal.this is the first

time i have replied,i just wanted to say hello.

& Rick Legg <rlegg@...> wrote: Welcome Sue !! My name is

. We have 5 children 3 boys 14,8, 14mos & 2 girls 10 & 4. My 4yr old

daughter is the one with autism. She is in the moderate to severe range. Also

non-verbal. -- New to list

Hi

I am new to the list. My name is Sue and I have 3 girls ages 14, 12 and 9.

The 12 year old has autism, accelerated growth, a 5 cm growth on her liver,

and eczema .

I am looking forward to being a part of this list since it is so rare that I

know someone with a daughter who has autism.

[Guest guest]

Hi Rose

Welcome to the list. My name is Tracey and I live in Canada. I have

two daughters named Coral and Skylar. Skylar is 9 1/2 and was diagnosed

autistic at the age of 3. This is a great list full of ideas and

support. Glad to have you with us.

Tracey

rosemary player wrote:

>

> hi people,my name is rose i live in the UK,i have 3 girls,the youngest

> is 4 and has autism,severe learning difficulties and is also

> nonverbal.this is the first time i have replied,i just wanted to say

> hello.

> & Rick Legg <rlegg@...> wrote: Welcome Sue !! My

> name is . We have 5 children 3 boys 14,8, 14mos & 2 girls 10 &

> 4. My 4yr old daughter is the one with autism. She is in the moderate

> to severe range. Also non-verbal. ------- Original

> Message -----

> From: HMMS571209@...

> Autism_in_Girls

> Sent: Wednesday, May 22, 2002 6:08 PM

> Subject: New to list

>

>

> Hi

> I am new to the list. My name is Sue and I have 3 girls ages 14, 12

> and 9.

> The 12 year old has autism, accelerated growth, a 5 cm growth on her

> liver,

> and eczema .

> I am looking forward to being a part of this list since it is so

> rare that I

> know someone with a daughter who has autism.

>

>

[Guest guest]

hi Traciei only just had time to reply,thanks for your greeting,i want to share

our good news.my daughter has made fab progress in her verbal skills,self help &

general awareness.The reason we are convinced is due to a natural

supplement.....NUTRICIA EFALEX have you heard of it?. It`s being tested as a

trail in the UK amongst all children.We call it Josie`s brain power,she been on

it 3 months now and the differance is amazing.

Do you have any advice/hints with eating problems/phobias Josie finds food very

distressing,we dont have any help from the professionals we have to work it out

for ourselves .

thanks Rose.

Duane and Tracey <dtpratt@...> wrote: Hi Rose

Welcome to the list. My name is Tracey and I live in Canada. I have

two daughters named Coral and Skylar. Skylar is 9 1/2 and was diagnosed

autistic at the age of 3. This is a great list full of ideas and

support. Glad to have you with us.

Tracey

rosemary player wrote:

>

> hi people,my name is rose i live in the UK,i have 3 girls,the youngest

> is 4 and has autism,severe learning difficulties and is also

> nonverbal.this is the first time i have replied,i just wanted to say

> hello.

> & Rick Legg <rlegg@...> wrote: Welcome Sue !! My

> name is . We have 5 children 3 boys 14,8, 14mos & 2 girls 10 &

> 4. My 4yr old daughter is the one with autism. She is in the moderate

> to severe range. Also non-verbal. ------- Original

> Message -----

> From: HMMS571209@...

> Autism_in_Girls

> Sent: Wednesday, May 22, 2002 6:08 PM

> Subject: New to list

>

>

> Hi

> I am new to the list. My name is Sue and I have 3 girls ages 14, 12

> and 9.

> The 12 year old has autism, accelerated growth, a 5 cm growth on her

> liver,

> and eczema .

> I am looking forward to being a part of this list since it is so

> rare that I

> know someone with a daughter who has autism.

>

>

[Guest guest]

Hi Rose

That is great that your daughter is making such progress. I have never

heard of that supplement, but would be interested in finding out more

about it. My daughter Skylar never talked until the age of 5. Now its

hard to get her to shut up sometimes, lol. She was also a very poor

eater. When she was small she ate only two things, Cinnamon Danish

cookies and Rice Krispies Cereal. Now she eats absolutely everything.

It was a long road to get here, but was worht it. The only thing we did

was to keep putting different foods on her plate or out as a snack and

let her look at it and even sometimes play with it. She absolutely

adores her older sister Coral and we would use that to help. I would

point out that Coral was eating it and sometimes that would make her at

least try it. She has only recently started eating meat and now just

loves it. Don't know if this will be of any help to you, but that is

how it worked with Skylar. Good luck. Keep us informed.

Tracey

rosemary player wrote:

>

> hi Traciei only just had time to reply,thanks for your greeting,i want

> to share our good news.my daughter has made fab progress in her verbal

> skills,self help & general awareness.The reason we are convinced is due

> to a natural supplement.....NUTRICIA EFALEX have you heard of it?.

> It`s being tested as a trail in the UK amongst all children.We call

> it Josie`s brain power,she been on it 3 months now and the differance

> is amazing.

> Do you have any advice/hints with eating problems/phobias Josie finds

> food very distressing,we dont have any help from the professionals we

> have to work it out for ourselves .

> thanks Rose.

>

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> Welcome to the list. My name is Tracey and I live in Canada. I have

> two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> diagnosed

> autistic at the age of 3. This is a great list full of ideas and

> support. Glad to have you with us.

>

> Tracey

> rosemary player wrote:

>

> >

> > hi people,my name is rose i live in the UK,i have 3 girls,the

> youngest

> > is 4 and has autism,severe learning difficulties and is also

> > nonverbal.this is the first time i have replied,i just wanted to say

>

> > hello.

> > & Rick Legg <rlegg@...> wrote: Welcome Sue !!

> My

> > name is . We have 5 children 3 boys 14,8, 14mos & 2 girls 10

> &

> > 4. My 4yr old daughter is the one with autism. She is in the

> moderate

> > to severe range. Also non-verbal. ------- Original

> > Message -----

> > From: HMMS571209@...

> > Autism_in_Girls

> > Sent: Wednesday, May 22, 2002 6:08 PM

> > Subject: New to list

> >

> >

> > Hi

> > I am new to the list. My name is Sue and I have 3 girls ages 14,

> 12

> > and 9.

> > The 12 year old has autism, accelerated growth, a 5 cm growth on

> her

> > liver,

> > and eczema .

> > I am looking forward to being a part of this list since it is so

> > rare that I

> > know someone with a daughter who has autism.

> >

> >

[Guest guest]

I have the same problem with Hannah, her diet is so poor...........she

absolutely refuses to try different things, so i just keep getting the

apples and bananas into her, she has cheese and bread and honey as well,

occasionally i can get a slice of ham or half a sausage, and of course the

old chicken flavoured noodles, but that's about it. I'm hoping in time, she

will decide to try different things, she will be 8 this year........still

waiting. Cheryl S

New to list

> >

> >

> > Hi

> > I am new to the list. My name is Sue and I have 3 girls ages 14,

> 12

> > and 9.

> > The 12 year old has autism, accelerated growth, a 5 cm growth on

> her

> > liver,

> > and eczema .

> > I am looking forward to being a part of this list since it is so

> > rare that I

> > know someone with a daughter who has autism.

> >

> >

[Guest guest]

Hello again Tracie, thanks for your advice i feel so much happier when i hear

parents say their children never spoke but now do.

Your daughter has a lovely name ,and has also by the sound of it made great

progress too. I will try your tips and let you know when she tries new food

(fingers crossed).Efalex is a liquid which consists of Rigel Evening Primrose

Oil & fish oil,it provides the brain with specific fatty acids that are

important building blocks to the brain & nervous system,it also helps with the

signal transfer in the nervous system.i will try and find a web site. thanks

rose.

Duane and Tracey <dtpratt@...> wrote: Hi Rose

That is great that your daughter is making such progress. I have never

heard of that supplement, but would be interested in finding out more

about it. My daughter Skylar never talked until the age of 5. Now its

hard to get her to shut up sometimes, lol. She was also a very poor

eater. When she was small she ate only two things, Cinnamon Danish

cookies and Rice Krispies Cereal. Now she eats absolutely everything.

It was a long road to get here, but was worht it. The only thing we did

was to keep putting different foods on her plate or out as a snack and

let her look at it and even sometimes play with it. She absolutely

adores her older sister Coral and we would use that to help. I would

point out that Coral was eating it and sometimes that would make her at

least try it. She has only recently started eating meat and now just

loves it. Don't know if this will be of any help to you, but that is

how it worked with Skylar. Good luck. Keep us informed.

Tracey

rosemary player wrote:

>

> hi Traciei only just had time to reply,thanks for your greeting,i want

> to share our good news.my daughter has made fab progress in her verbal

> skills,self help & general awareness.The reason we are convinced is due

> to a natural supplement.....NUTRICIA EFALEX have you heard of it?.

> It`s being tested as a trail in the UK amongst all children.We call

> it Josie`s brain power,she been on it 3 months now and the differance

> is amazing.

> Do you have any advice/hints with eating problems/phobias Josie finds

> food very distressing,we dont have any help from the professionals we

> have to work it out for ourselves .

> thanks Rose.

>

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> Welcome to the list. My name is Tracey and I live in Canada. I have

> two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> diagnosed

> autistic at the age of 3. This is a great list full of ideas and

> support. Glad to have you with us.

>

> Tracey

> rosemary player wrote:

>

> >

> > hi people,my name is rose i live in the UK,i have 3 girls,the

> youngest

> > is 4 and has autism,severe learning difficulties and is also

> > nonverbal.this is the first time i have replied,i just wanted to say

>

> > hello.

> > & Rick Legg <rlegg@...> wrote: Welcome Sue !!

> My

> > name is . We have 5 children 3 boys 14,8, 14mos & 2 girls 10

> &

> > 4. My 4yr old daughter is the one with autism. She is in the

> moderate

> > to severe range. Also non-verbal. ------- Original

> > Message -----

> > From: HMMS571209@...

> > Autism_in_Girls

> > Sent: Wednesday, May 22, 2002 6:08 PM

> > Subject: New to list

> >

> >

> > Hi

> > I am new to the list. My name is Sue and I have 3 girls ages 14,

> 12

> > and 9.

> > The 12 year old has autism, accelerated growth, a 5 cm growth on

> her

> > liver,

> > and eczema .

> > I am looking forward to being a part of this list since it is so

> > rare that I

> > know someone with a daughter who has autism.

> >

> >

[Guest guest]

Hi tracie & anyone interested in efalex here is a web site, luckly the web site

i found has a Canadian site & pnone number too.My josie is now very loving to us

and is trying to talk. www.nutriciacanda.com hpoes this helps rose

Duane and Tracey <dtpratt@...> wrote: Hi Rose

That is great that your daughter is making such progress. I have never

heard of that supplement, but would be interested in finding out more

about it. My daughter Skylar never talked until the age of 5. Now its

hard to get her to shut up sometimes, lol. She was also a very poor

eater. When she was small she ate only two things, Cinnamon Danish

cookies and Rice Krispies Cereal. Now she eats absolutely everything.

It was a long road to get here, but was worht it. The only thing we did

was to keep putting different foods on her plate or out as a snack and

let her look at it and even sometimes play with it. She absolutely

adores her older sister Coral and we would use that to help. I would

point out that Coral was eating it and sometimes that would make her at

least try it. She has only recently started eating meat and now just

loves it. Don't know if this will be of any help to you, but that is

how it worked with Skylar. Good luck. Keep us informed.

Tracey

rosemary player wrote:

>

> hi Traciei only just had time to reply,thanks for your greeting,i want

> to share our good news.my daughter has made fab progress in her verbal

> skills,self help & general awareness.The reason we are convinced is due

> to a natural supplement.....NUTRICIA EFALEX have you heard of it?.

> It`s being tested as a trail in the UK amongst all children.We call

> it Josie`s brain power,she been on it 3 months now and the differance

> is amazing.

> Do you have any advice/hints with eating problems/phobias Josie finds

> food very distressing,we dont have any help from the professionals we

> have to work it out for ourselves .

> thanks Rose.

>

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> Welcome to the list. My name is Tracey and I live in Canada. I have

> two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> diagnosed

> autistic at the age of 3. This is a great list full of ideas and

> support. Glad to have you with us.

>

> Tracey

> rosemary player wrote:

>

> >

> > hi people,my name is rose i live in the UK,i have 3 girls,the

> youngest

> > is 4 and has autism,severe learning difficulties and is also

> > nonverbal.this is the first time i have replied,i just wanted to say

>

> > hello.

> > & Rick Legg <rlegg@...> wrote: Welcome Sue !!

> My

> > name is . We have 5 children 3 boys 14,8, 14mos & 2 girls 10

> &

> > 4. My 4yr old daughter is the one with autism. She is in the

> moderate

> > to severe range. Also non-verbal. ------- Original

> > Message -----

> > From: HMMS571209@...

> > Autism_in_Girls

> > Sent: Wednesday, May 22, 2002 6:08 PM

> > Subject: New to list

> >

> >

> > Hi

> > I am new to the list. My name is Sue and I have 3 girls ages 14,

> 12

> > and 9.

> > The 12 year old has autism, accelerated growth, a 5 cm growth on

> her

> > liver,

> > and eczema .

> > I am looking forward to being a part of this list since it is so

> > rare that I

> > know someone with a daughter who has autism.

> >

> >

[Guest guest]

Tracey, thanks for sharing. I love hearing from people who say their child

talked at a late age. My daughter is 3 1/2 and is nonverbal so this gives me

even more hope I will hear her sweet little voice one day.

~Amy

mamaznutz@...

Check out my family webpage! www.geocities.com/amyboz

" Life is what happens while you're busy making other plans. " Lennon

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

New to list

> >

> >

> > Hi

> > I am new to the list. My name is Sue and I have 3 girls ages 14,

> 12

> > and 9.

> > The 12 year old has autism, accelerated growth, a 5 cm growth on

> her

> > liver,

> > and eczema .

> > I am looking forward to being a part of this list since it is so

> > rare that I

> > know someone with a daughter who has autism.

> >

> >

[Guest guest]

Hi Amy

I have found being on this list is a great source of information. I have

heard some many wonderful stories from others about the progress their

daughters have made and definately gives you a great feeling knowing how

far our children can go. With Skylar the key to getting her to talk was

teaching her sign language. We would sign the word and say it and it

seemed to cut down on her frustartion level. Eventually she started

using both sign and word and then dropped the sign. Now sometimes it is

hard to keep her quiet.LOL. The first time she called me Mommy I

cried. She has made such progress over the last few years. It is

sometimes hard to believe she used to scream all day and never talk.

She evewn pulled all her hair out of one side of her head. She is now

doing math, spelling, money, time, has quite a few friends. She gets

invited to birthday parties and, for the first time ever, is going on

her school trip without me. She will have her E.A. but I will not be

going. I don't know about her but this is a huge step for me...LOL. I

am sure your daughter has many wonderful surprises for you in the years

ahead.

Tracey

Amy Beyer-Boswell wrote:

> Tracey, thanks for sharing. I love hearing from people who say their

> child talked at a late age. My daughter is 3 1/2 and is nonverbal so

> this gives me even more hope I will hear her sweet little voice one

> day.

>

>

> ~Amy

> mamaznutz@...

> Check out my family webpage! www.geocities.com/amyboz

>

> " Life is what happens while you're busy making other plans. "

> Lennon

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> New to list

> > >

> > >

> > > Hi

> > > I am new to the list. My name is Sue and I have 3 girls ages

> 14,

> > 12

> > > and 9.

> > > The 12 year old has autism, accelerated growth, a 5 cm growth

> on

> > her

> > > liver,

> > > and eczema .

> > > I am looking forward to being a part of this list since it is

> so

> > > rare that I

> > > know someone with a daughter who has autism.

> > >

> > >

[Guest guest]

Hi Rose

Thanks for that website I will definately be sure to check it out. I

hope my tips help. Keep us informed. Thank you for your comment on

Skylar's name. I have always loved unusual names and tried to find

different names for both my girls.l We live in a small town but there

are now about 4 Skylars here, but still only 1 Coral. We have been very

fortunate that we have a great school here and they have been great with

Sky. She has been blessed to have the same E.A. since kindergarten and

both Skylar and I love her. She has been an angel to Sky and I feel she

is much of the reason Skylar has done so well over the last few years.

She also tutors Sky at her home once a week all summer. Skylar quite

looks forward to going to Mrs. Mills house. Skylar started talking

once we introduced sign language. It seemed to lessen her frustartion

level. We would use both word and sign and eventually we dropped the

sign and that just seemed to open flood gates for speech. Many in our

family felt that it was wrong to teach her sign language, that then she

would never try to speak, but it worked for her and I am very glad we

did it. I am sure one of these days your daughter will let you hear her

voice and what a beautiful sound it will be.

Tracey

rosemary player wrote:

>

> Hello again Tracie, thanks for your advice i feel so much happier when

> i hear parents say their children never spoke but now do.

> Your daughter has a lovely name ,and has also by the sound of it made

> great progress too. I will try your tips and let you know when she

> tries new food (fingers crossed).Efalex is a liquid which consists of

> Rigel Evening Primrose Oil & fish oil,it provides the brain with

> specific fatty acids that are important building blocks to the brain &

> nervous system,it also helps with the signal transfer in the nervous

> system.i will try and find a web site. thanks rose.

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> That is great that your daughter is making such progress. I have

> never

> heard of that supplement, but would be interested in finding out more

> about it. My daughter Skylar never talked until the age of 5. Now

> its

> hard to get her to shut up sometimes, lol. She was also a very poor

> eater. When she was small she ate only two things, Cinnamon Danish

> cookies and Rice Krispies Cereal. Now she eats absolutely everything.

>

> It was a long road to get here, but was worht it. The only thing we

> did

> was to keep putting different foods on her plate or out as a snack and

>

> let her look at it and even sometimes play with it. She absolutely

> adores her older sister Coral and we would use that to help. I would

> point out that Coral was eating it and sometimes that would make her

> at

> least try it. She has only recently started eating meat and now just

> loves it. Don't know if this will be of any help to you, but that is

>

> how it worked with Skylar. Good luck. Keep us informed.

>

> Tracey

>

> rosemary player wrote:

>

> >

> > hi Traciei only just had time to reply,thanks for your greeting,i

> want

> > to share our good news.my daughter has made fab progress in her

> verbal

> > skills,self help & general awareness.The reason we are convinced is

> due

> > to a natural supplement.....NUTRICIA EFALEX have you heard of it?.

> > It`s being tested as a trail in the UK amongst all children.We call

>

> > it Josie`s brain power,she been on it 3 months now and the

> differance

> > is amazing.

> > Do you have any advice/hints with eating problems/phobias Josie

> finds

> > food very distressing,we dont have any help from the professionals

> we

> > have to work it out for ourselves .

> > thanks Rose.

> >

> > Duane and Tracey <dtpratt@...> wrote: Hi Rose

> > Welcome to the list. My name is Tracey and I live in Canada. I

> have

> > two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> > diagnosed

> > autistic at the age of 3. This is a great list full of ideas and

> > support. Glad to have you with us.

> >

> > Tracey

> > rosemary player wrote:

> >

> > >

> > > hi people,my name is rose i live in the UK,i have 3 girls,the

> > youngest

> > > is 4 and has autism,severe learning difficulties and is also

> > > nonverbal.this is the first time i have replied,i just wanted to

> say

> >

> > > hello.

> > > & Rick Legg <rlegg@...> wrote: Welcome Sue !!

>

> > My

> > > name is . We have 5 children 3 boys 14,8, 14mos & 2 girls

> 10

> > &

> > > 4. My 4yr old daughter is the one with autism. She is in the

> > moderate

> > > to severe range. Also non-verbal. ------- Original

> > > Message -----

> > > From: HMMS571209@...

> > > Autism_in_Girls

> > > Sent: Wednesday, May 22, 2002 6:08 PM

> > > Subject: New to list

> > >

> > >

> > > Hi

> > > I am new to the list. My name is Sue and I have 3 girls ages 14,

>

> > 12

> > > and 9.

> > > The 12 year old has autism, accelerated growth, a 5 cm growth on

>

> > her

> > > liver,

> > > and eczema .

> > > I am looking forward to being a part of this list since it is so

>

> > > rare that I

> > > know someone with a daughter who has autism.

> > >

> > >

[Guest guest]

Hi Rose

Thanks for that website I will definately be sure to check it out. I

hope my tips help. Keep us informed. Thank you for your comment on

Skylar's name. I have always loved unusual names and tried to find

different names for both my girls.l We live in a small town but there

are now about 4 Skylars here, but still only 1 Coral. We have been very

fortunate that we have a great school here and they have been great with

Sky. She has been blessed to have the same E.A. since kindergarten and

both Skylar and I love her. She has been an angel to Sky and I feel she

is much of the reason Skylar has done so well over the last few years.

She also tutors Sky at her home once a week all summer. Skylar quite

looks forward to going to Mrs. Mills house. Skylar started talking

once we introduced sign language. It seemed to lessen her frustartion

level. We would use both word and sign and eventually we dropped the

sign and that just seemed to open flood gates for speech. Many in our

family felt that it was wrong to teach her sign language, that then she

would never try to speak, but it worked for her and I am very glad we

did it. I am sure one of these days your daughter will let you hear her

voice and what a beautiful sound it will be.

Tracey

rosemary player wrote:

>

> Hello again Tracie, thanks for your advice i feel so much happier when

> i hear parents say their children never spoke but now do.

> Your daughter has a lovely name ,and has also by the sound of it made

> great progress too. I will try your tips and let you know when she

> tries new food (fingers crossed).Efalex is a liquid which consists of

> Rigel Evening Primrose Oil & fish oil,it provides the brain with

> specific fatty acids that are important building blocks to the brain &

> nervous system,it also helps with the signal transfer in the nervous

> system.i will try and find a web site. thanks rose.

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> That is great that your daughter is making such progress. I have

> never

> heard of that supplement, but would be interested in finding out more

> about it. My daughter Skylar never talked until the age of 5. Now

> its

> hard to get her to shut up sometimes, lol. She was also a very poor

> eater. When she was small she ate only two things, Cinnamon Danish

> cookies and Rice Krispies Cereal. Now she eats absolutely everything.

>

> It was a long road to get here, but was worht it. The only thing we

> did

> was to keep putting different foods on her plate or out as a snack and

>

> let her look at it and even sometimes play with it. She absolutely

> adores her older sister Coral and we would use that to help. I would

> point out that Coral was eating it and sometimes that would make her

> at

> least try it. She has only recently started eating meat and now just

> loves it. Don't know if this will be of any help to you, but that is

>

> how it worked with Skylar. Good luck. Keep us informed.

>

> Tracey

>

> rosemary player wrote:

>

> >

> > hi Traciei only just had time to reply,thanks for your greeting,i

> want

> > to share our good news.my daughter has made fab progress in her

> verbal

> > skills,self help & general awareness.The reason we are convinced is

> due

> > to a natural supplement.....NUTRICIA EFALEX have you heard of it?.

> > It`s being tested as a trail in the UK amongst all children.We call

>

> > it Josie`s brain power,she been on it 3 months now and the

> differance

> > is amazing.

> > Do you have any advice/hints with eating problems/phobias Josie

> finds

> > food very distressing,we dont have any help from the professionals

> we

> > have to work it out for ourselves .

> > thanks Rose.

> >

> > Duane and Tracey <dtpratt@...> wrote: Hi Rose

> > Welcome to the list. My name is Tracey and I live in Canada. I

> have

> > two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> > diagnosed

> > autistic at the age of 3. This is a great list full of ideas and

> > support. Glad to have you with us.

> >

> > Tracey

> > rosemary player wrote:

> >

> > >

> > > hi people,my name is rose i live in the UK,i have 3 girls,the

> > youngest

> > > is 4 and has autism,severe learning difficulties and is also

> > > nonverbal.this is the first time i have replied,i just wanted to

> say

> >

> > > hello.

> > > & Rick Legg <rlegg@...> wrote: Welcome Sue !!

>

> > My

> > > name is . We have 5 children 3 boys 14,8, 14mos & 2 girls

> 10

> > &

> > > 4. My 4yr old daughter is the one with autism. She is in the

> > moderate

> > > to severe range. Also non-verbal. ------- Original

> > > Message -----

> > > From: HMMS571209@...

> > > Autism_in_Girls

> > > Sent: Wednesday, May 22, 2002 6:08 PM

> > > Subject: New to list

> > >

> > >

> > > Hi

> > > I am new to the list. My name is Sue and I have 3 girls ages 14,

>

> > 12

> > > and 9.

> > > The 12 year old has autism, accelerated growth, a 5 cm growth on

>

> > her

> > > liver,

> > > and eczema .

> > > I am looking forward to being a part of this list since it is so

>

> > > rare that I

> > > know someone with a daughter who has autism.

> > >

> > >

[Guest guest]

That is great that your daughter has made such wonderful progress. We use sign

language a lot with Cristina and she knows about 25 or 30 signs now. (Which

reminds me I need to make a new list for her speech therapist.) She also uses

pictures to request things and she has learned how to point. Boy, that was a

huge accomplishment for her. She seems very motivated to communicate which is

another reason I believe she'll talk eventually. Thank you again for sharing!

~Amy

New to list

> > >

> > >

> > > Hi

> > > I am new to the list. My name is Sue and I have 3 girls ages

> 14,

> > 12

> > > and 9.

> > > The 12 year old has autism, accelerated growth, a 5 cm growth

> on

> > her

> > > liver,

> > > and eczema .

> > > I am looking forward to being a part of this list since it is

> so

> > > rare that I

> > > know someone with a daughter who has autism.

> > >

> > >

[Guest guest]

Hi tracie thanks for your reply, it brought tears to my eyes (happy ones),i do

feel josie will one day say the word i long to hear mum.Mrs mills is a very

special & kind person, josie has a wonderful nursery school teacher who takes

good care of josie. When ever josie feels unsure or tired it`s Jane she goes too

for a cuddle.Her teacher writes daily to me on all the things josie has done she

sends home weekly work for us to do with her . Sadley she has to leave in July

she has to move on to another school and josie will have to get to know another

teacher and routine, i`m already starting to worry. Josie is getting so

frustrated at the moment she has a pecs book but that cant help her tell us her

feelings she has started to bite, it`s mostly me she does it too, i know she

doesn`t mean to hurt me ,her little facial expressions tell me so.Some times

tears flow, and as she gets frustrated she is tapping my lips & looking in my

mouth as to see where my noise comes from. I also use sign language (makaton)

with her, at present she hasn`t signed back but she does seem to understand some

signs.Oh good news josie is now eating 2 types of crisps & she tasted a new

bisuit thanks for your advice her sisters are attempting to eat in the same

room as her i`ll keep you informed. take care rose.

Duane and Tracey <dtpratt@...> wrote: Hi Rose

Thanks for that website I will definately be sure to check it out. I

hope my tips help. Keep us informed. Thank you for your comment on

Skylar's name. I have always loved unusual names and tried to find

different names for both my girls.l We live in a small town but there

are now about 4 Skylars here, but still only 1 Coral. We have been very

fortunate that we have a great school here and they have been great with

Sky. She has been blessed to have the same E.A. since kindergarten and

both Skylar and I love her. She has been an angel to Sky and I feel she

is much of the reason Skylar has done so well over the last few years.

She also tutors Sky at her home once a week all summer. Skylar quite

looks forward to going to Mrs. Mills house. Skylar started talking

once we introduced sign language. It seemed to lessen her frustartion

level. We would use both word and sign and eventually we dropped the

sign and that just seemed to open flood gates for speech. Many in our

family felt that it was wrong to teach her sign language, that then she

would never try to speak, but it worked for her and I am very glad we

did it. I am sure one of these days your daughter will let you hear her

voice and what a beautiful sound it will be.

Tracey

rosemary player wrote:

>

> Hello again Tracie, thanks for your advice i feel so much happier when

> i hear parents say their children never spoke but now do.

> Your daughter has a lovely name ,and has also by the sound of it made

> great progress too. I will try your tips and let you know when she

> tries new food (fingers crossed).Efalex is a liquid which consists of

> Rigel Evening Primrose Oil & fish oil,it provides the brain with

> specific fatty acids that are important building blocks to the brain &

> nervous system,it also helps with the signal transfer in the nervous

> system.i will try and find a web site. thanks rose.

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> That is great that your daughter is making such progress. I have

> never

> heard of that supplement, but would be interested in finding out more

> about it. My daughter Skylar never talked until the age of 5. Now

> its

> hard to get her to shut up sometimes, lol. She was also a very poor

> eater. When she was small she ate only two things, Cinnamon Danish

> cookies and Rice Krispies Cereal. Now she eats absolutely everything.

>

> It was a long road to get here, but was worht it. The only thing we

> did

> was to keep putting different foods on her plate or out as a snack and

>

> let her look at it and even sometimes play with it. She absolutely

> adores her older sister Coral and we would use that to help. I would

> point out that Coral was eating it and sometimes that would make her

> at

> least try it. She has only recently started eating meat and now just

> loves it. Don't know if this will be of any help to you, but that is

>

> how it worked with Skylar. Good luck. Keep us informed.

>

> Tracey

>

> rosemary player wrote:

>

> >

> > hi Traciei only just had time to reply,thanks for your greeting,i

> want

> > to share our good news.my daughter has made fab progress in her

> verbal

> > skills,self help & general awareness.The reason we are convinced is

> due

> > to a natural supplement.....NUTRICIA EFALEX have you heard of it?.

> > It`s being tested as a trail in the UK amongst all children.We call

>

> > it Josie`s brain power,she been on it 3 months now and the

> differance

> > is amazing.

> > Do you have any advice/hints with eating problems/phobias Josie

> finds

> > food very distressing,we dont have any help from the professionals

> we

> > have to work it out for ourselves .

> > thanks Rose.

> >

> > Duane and Tracey <dtpratt@...> wrote: Hi Rose

> > Welcome to the list. My name is Tracey and I live in Canada. I

> have

> > two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> > diagnosed

> > autistic at the age of 3. This is a great list full of ideas and

> > support. Glad to have you with us.

> >

> > Tracey

> > rosemary player wrote:

> >

> > >

> > > hi people,my name is rose i live in the UK,i have 3 girls,the

> > youngest

> > > is 4 and has autism,severe learning difficulties and is also

> > > nonverbal.this is the first time i have replied,i just wanted to

> say

> >

> > > hello.

> > > & Rick Legg <rlegg@...> wrote: Welcome Sue !!

>

> > My

> > > name is . We have 5 children 3 boys 14,8, 14mos & 2 girls

> 10

> > &

> > > 4. My 4yr old daughter is the one with autism. She is in the

> > moderate

> > > to severe range. Also non-verbal. ------- Original

> > > Message -----

> > > From: HMMS571209@...

> > > Autism_in_Girls

> > > Sent: Wednesday, May 22, 2002 6:08 PM

> > > Subject: New to list

> > >

> > >

> > > Hi

> > > I am new to the list. My name is Sue and I have 3 girls ages 14,

>

> > 12

> > > and 9.

> > > The 12 year old has autism, accelerated growth, a 5 cm growth on

>

> > her

> > > liver,

> > > and eczema .

> > > I am looking forward to being a part of this list since it is so

>

> > > rare that I

> > > know someone with a daughter who has autism.

> > >

> > >

[Guest guest]

Hi Rose

That is wonderful that Josie tasted a new biscuit and that she is eating

two types of crisps. I am sure she will continue to slowly try new

things. I am glad that her sisters are eating in the same room. I know

that Skylar learned alot of eating etiquette from Coral and also was

willing to try different things because she saw Coral eating it. Good

for you Josie!!!!

Tracey

rosemary player wrote:

>

> Hi tracie thanks for your reply, it brought tears to my eyes (happy

> ones),i do feel josie will one day say the word i long to hear

> mum.Mrs mills is a very special & kind person, josie has a wonderful

> nursery school teacher who takes good care of josie. When ever josie

> feels unsure or tired it`s Jane she goes too for a cuddle.Her teacher

> writes daily to me on all the things josie has done she sends home

> weekly work for us to do with her . Sadley she has to leave in July

> she has to move on to another school and josie will have to get to

> know another teacher and routine, i`m already starting to worry. Josie

> is getting so frustrated at the moment she has a pecs book but that

> cant help her tell us her feelings she has started to bite, it`s

> mostly me she does it too, i know she doesn`t mean to hurt me ,her

> little facial expressions tell me so.Some times tears flow, and as she

> gets frustrated she is tapping my lips & looking in my mouth as to see

> where my noise comes from. I also use sign language (makaton) with

> her, at present she hasn`t signed back but she does seem to understand

> some signs.Oh good news josie is now eating 2 types of crisps & she

> tasted a new bisuit thanks for your advice her sisters are attempting

> to eat in the same room as her i`ll keep you informed. take care

> rose.

> Duane and Tracey <dtpratt@...> wrote: Hi Rose

> Thanks for that website I will definately be sure to check it out. I

> hope my tips help. Keep us informed. Thank you for your comment on

> Skylar's name. I have always loved unusual names and tried to find

> different names for both my girls.l We live in a small town but there

>

> are now about 4 Skylars here, but still only 1 Coral. We have been

> very

> fortunate that we have a great school here and they have been great

> with

> Sky. She has been blessed to have the same E.A. since kindergarten

> and

> both Skylar and I love her. She has been an angel to Sky and I feel

> she

> is much of the reason Skylar has done so well over the last few years.

>

> She also tutors Sky at her home once a week all summer. Skylar quite

> looks forward to going to Mrs. Mills house. Skylar started talking

> once we introduced sign language. It seemed to lessen her frustartion

>

> level. We would use both word and sign and eventually we dropped the

> sign and that just seemed to open flood gates for speech. Many in our

>

> family felt that it was wrong to teach her sign language, that then

> she

> would never try to speak, but it worked for her and I am very glad we

> did it. I am sure one of these days your daughter will let you hear

> her

> voice and what a beautiful sound it will be.

>

> Tracey

>

> rosemary player wrote:

>

> >

> > Hello again Tracie, thanks for your advice i feel so much happier

> when

> > i hear parents say their children never spoke but now do.

> > Your daughter has a lovely name ,and has also by the sound of it

> made

> > great progress too. I will try your tips and let you know when she

> > tries new food (fingers crossed).Efalex is a liquid which consists

> of

> > Rigel Evening Primrose Oil & fish oil,it provides the brain with

> > specific fatty acids that are important building blocks to the

> brain &

> > nervous system,it also helps with the signal transfer in the nervous

>

> > system.i will try and find a web site. thanks rose.

> > Duane and Tracey <dtpratt@...> wrote: Hi Rose

> > That is great that your daughter is making such progress. I have

> > never

> > heard of that supplement, but would be interested in finding out

> more

> > about it. My daughter Skylar never talked until the age of 5. Now

> > its

> > hard to get her to shut up sometimes, lol. She was also a very

> poor

> > eater. When she was small she ate only two things, Cinnamon Danish

> > cookies and Rice Krispies Cereal. Now she eats absolutely

> everything.

> >

> > It was a long road to get here, but was worht it. The only thing we

>

> > did

> > was to keep putting different foods on her plate or out as a snack

> and

> >

> > let her look at it and even sometimes play with it. She absolutely

>

> > adores her older sister Coral and we would use that to help. I

> would

> > point out that Coral was eating it and sometimes that would make her

>

> > at

> > least try it. She has only recently started eating meat and now

> just

> > loves it. Don't know if this will be of any help to you, but that

> is

> >

> > how it worked with Skylar. Good luck. Keep us informed.

> >

> > Tracey

> >

> > rosemary player wrote:

> >

> > >

> > > hi Traciei only just had time to reply,thanks for your greeting,i

> > want

> > > to share our good news.my daughter has made fab progress in her

> > verbal

> > > skills,self help & general awareness.The reason we are convinced is

>

> > due

> > > to a natural supplement.....NUTRICIA EFALEX have you heard of

> it?.

> > > It`s being tested as a trail in the UK amongst all children.We

> call

> >

> > > it Josie`s brain power,she been on it 3 months now and the

> > differance

> > > is amazing.

> > > Do you have any advice/hints with eating problems/phobias Josie

> > finds

> > > food very distressing,we dont have any help from the professionals

>

> > we

> > > have to work it out for ourselves .

> > > thanks Rose.

> > >

> > > Duane and Tracey <dtpratt@...> wrote: Hi Rose

> > > Welcome to the list. My name is Tracey and I live in Canada. I

> > have

> > > two daughters named Coral and Skylar. Skylar is 9 1/2 and was

> > > diagnosed

> > > autistic at the age of 3. This is a great list full of ideas and

> > > support. Glad to have you with us.

> > >

> > > Tracey

> > > rosemary player wrote:

> > >

> > > >

> > > > hi people,my name is rose i live in the UK,i have 3 girls,the

> > > youngest

> > > > is 4 and has autism,severe learning difficulties and is also

> > > > nonverbal.this is the first time i have replied,i just wanted to

>

> > say

> > >

> > > > hello.

> > > > & Rick Legg <rlegg@...> wrote: Welcome Sue

> !!

> >

> > > My

> > > > name is . We have 5 children 3 boys 14,8, 14mos & 2

> girls

> > 10

> > > &

> > > > 4. My 4yr old daughter is the one with autism. She is in the

> > > moderate

> > > > to severe range. Also non-verbal. ------- Original

> > > > Message -----

> > > > From: HMMS571209@...

> > > > Autism_in_Girls

> > > > Sent: Wednesday, May 22, 2002 6:08 PM

> > > > Subject: New to list

> > > >

> > > >

> > > > Hi

> > > > I am new to the list. My name is Sue and I have 3 girls ages

> 14,

> >

> > > 12

> > > > and 9.

> > > > The 12 year old has autism, accelerated growth, a 5 cm growth

> on

> >

> > > her

> > > > liver,

> > > > and eczema .

> > > > I am looking forward to being a part of this list since it is

> so

> >

> > > > rare that I

> > > > know someone with a daughter who has autism.

> > > >

> > > >

[Guest guest]

Hi I am new to sprouting too. I got the biggest kick out of your

" German Shepherd " quote as I have Great Danes who feel I am growing

these for their benefit only )

Will be glad to see any recipes anyone shares--

Vickie & Ron Soper / The Ruatha Crew

Grandy Sherons Sister Mikel aka Mikel--Wild Child

BISS Paquestone Daynakins Quiet Riot-Little Angel

mail to: ruatha@...

New to List

> Hi, my name is and I just joined your list. I've just

recently begun sprouting and now I've gone sprout-crazy. I have a

three-layerd sprouter as well as jars. Anyway my first batch I got as

excited as a little kid...LoL

>

> Anyway, I'm a raw-vegan and in search of recipes...Any help?

>

>

>

> Angels are just German Shepherds with wings

>

> Otus Challenger of the Gods

> Bluemist Klondike's Gold Rush Hunter

> Oreo (Rescued)

> (Rescued)

>

[Guest guest]

Hi! We're GSD Crazy too We have a beautiful male named Chancellor and a

female named Daphne. They are the MOST wonderful dogs in the world. We also have

two little Shih Tzu that LOVE their big buddies. They would rather play with the

big dogs than eat.

I just ordered a sprouter and got it a day or so ago. We have parrots, and I was

told that they love the sprouts and that they're very healthy for them. Since we

just got a new baby birdie, I thought I'd let him be the " test " beak.

If I come across any good " recipes " I'll let you know. Give your angels a hug

---------- Original Message ----------------------------------

From: " gsd_crazy " <sieger_gsds@...>

Reply-

Date: Thu, 18 Jul 2002 12:35:53 -0400

>Hi, my name is and I just joined your list. I've just recently begun

sprouting and now I've gone sprout-crazy. I have a three-layerd sprouter as

well as jars. Anyway my first batch I got as excited as a little kid...LoL

>

>Anyway, I'm a raw-vegan and in search of recipes...Any help?

>

>

>

>Angels are just German Shepherds with wings

>

>Otus Challenger of the Gods

>Bluemist Klondike's Gold Rush Hunter

>Oreo (Rescued)

> (Rescued)

>

>

>

>

[Guest guest]

** Reply to message from " gsd_crazy " <sieger_gsds@...> on Thu, 18 Jul

2002 12:35:53 -0400

Welcome, ,

I'm relatively new to the list, also, although I have several years of

sprouting experience under my belt. I have recently acquired a raw vegan

recipe book entitled THE RAW GOURMET by Nomi , published by Alive Books.

I haven't been a raw vegan very long, so I'm finding all this quite a

challenge. If you find any other sources, please let me know. OK? Thanks.

Lynne

[Guest guest]

Here're 2 sites

http://www.living-foods.com

http://www.sunfood.net

Also http://www.vegsource.com has a raw food board

where you can ask other raw foodists anything

(including asking for raw food sites).

San

__________________________________________________

[Guest guest]

Hi Lynne, The Raw Gourmet is my bible!!!! And yes I have tons of other sources

that I can e-mail you privately if you want.

Angels are just German Shepherds with wings

Otus Challenger of the Gods

Bluemist Klondike's Gold Rush Hunter

Oreo (Rescued)

(Rescued)

Re: New to List

** Reply to message from " gsd_crazy " <sieger_gsds@...> on Thu, 18 Jul

2002 12:35:53 -0400

Welcome, ,

I'm relatively new to the list, also, although I have several years of

sprouting experience under my belt. I have recently acquired a raw vegan

recipe book entitled THE RAW GOURMET by Nomi , published by Alive

Books.

I haven't been a raw vegan very long, so I'm finding all this quite a

challenge. If you find any other sources, please let me know. OK? Thanks.

Lynne

[Guest guest]

Hi Ruth,

I have a typical twin(Ted) and one with DS who has also recently been

diagnosed with ASD(Tim). They are 4 1/2 and have a three year old younger

brother (typical and very much all boy:)). Tim seemed to stop gaining

skills and also lost speech (he was doing really really well with his

speech too for having DS) about 1 year ago or so. He was diagnosed in May

of this year with ASD. Just this summer he has been doing fantastic and is

speaking once again and almost back to where he left off when he began

losing skills and speech. This summer our school district placed him in a

program for autism and it must have been a very good match for him. He

went to 4 out of the 5 weeks (we were on vacation for one of the weeks). I

personally took this ASD diagnosis very very hard but am a firm believer in

" getting it on paper " so that he can get the proper intervention as far as

diagnosis goes. Without our diagnosis this past May, Tim would not have

been included in the summer programming as he was for autism and may not

have done so well.

I have begun working on toileting with Tim. We are having some successes

but it is moving very slowly. He is just beginning to " get it " what he is

supposed to do when placed on the potty. Good Luck. I haven't heard about

a " wet pants " alarm......does it sound off or what???

Let me know if I can offer any other suggestions.

Good Luck

Mom to twins Ted and Tim (DS/ASD) 4 1/2 and 3

At 06:44 PM 8/18/02 +0000, you wrote:

>Hi -

>

>I have a 6 year old w/DS and I believe he also is on the PDD

>spectrum. His name is . has a twin brother ()whose

>was diagnosed PDD when he was 2 (typical otherwise) and is now doing

>VERY well.

>

> is demonstrating alot of the perseverative behaviors and lack of

>eye contact that we saw with his brother and I'm becoming

>increasingly wary of the possiblity of the dual diagnosis. He seems

>to be spending more of his time in his own world and less aware of

>his surroundings.

>

>Does anyone have any suggestions for diagnosis or treatment? What

>about his IEP - should I be looking for a home based one-on-one

>program that we used with Mike when he was in preschool?

>

>Any suggestions or encouraging stories would be appreciated. I've

>been toilet training him for 2 years and he still has just as many

>accidents as ever. I've just ordered a wet pants alarm. I hope that

>it helps.

>

>Thanks,

>Ruth

>

>

>

[Guest guest]

In a message dated 8/18/02 11:45:41 AM Pacific Daylight Time,

joeysmom3@... writes:

<< Hi -

I have a 6 year old w/DS and I believe he also is on the PDD

spectrum. His name is . has a twin brother ()whose

was diagnosed PDD when he was 2 (typical otherwise) and is now doing

VERY well.

is demonstrating alot of the perseverative behaviors and lack of

eye contact that we saw with his brother and I'm becoming

increasingly wary of the possiblity of the dual diagnosis. He seems

to be spending more of his time in his own world and less aware of

his surroundings.

Does anyone have any suggestions for diagnosis or treatment? What

about his IEP - should I be looking for a home based one-on-one

program that we used with Mike when he was in preschool?

Any suggestions or encouraging stories would be appreciated. I've

been toilet training him for 2 years and he still has just as many

accidents as ever. I've just ordered a wet pants alarm. I hope that

it helps.

Thanks,

Ruth >>

Welcome Ruth,

Glad you found the list and I'm sure someone out here has some wise words for

you. We aren't up to toilet training yet. Sounds like you certainly know

what to look for and are right on top of the situation.

Gail :-)

Gail-Mom to Seth 6 ds/asd/pica, jo 9 the gymnast, 11 the pianist,

25 beautiful but a pain, Jen 26 the wallet breaker, Grandma to Errick 6

ALL boy and wife to , my hero.

[Guest guest]

Hi -

Thanks for a little background on your story. So happy and

encouraged to hear about Tim's progress. I have been hesitant on

trying to get a diagnosis, as I'm not sure how much it would

change his ed plan, but it seems from what I've been reading that it

would be useful, if not depressing, to have it on paper. Now the

challenge is to find an appropriate team who can be open-minded

enough to see the differences between PDD and MR. Still looking for

one in the Boston area.

We did some ABA with when he was 2, using the " he's at a higher

risk for PDD " argument, but that ended when he entered preschool,

becuase the school system didn't buy that and we couldn't get a dx at

that time. The therapy itself was awful though, he spent most of his

time crying through it. When had the same therapy, he had

just a few bad days, mostly in the beginning, when he did alot of

crying. After that, he really responded well. In fact, at his last

eval. they said they could no longer call him PDD, he is off the

spectrum. with be going to a regular kindergarten next fall,

without a resource room, just in room special ed. help a couple of

hours a week. will be attending a Special Ed. class with no

typical kids, but the reduced class size of 10 was very attractive to

me. The teacher is firm and I hope that it helps him. He currently

has no desire it seems for independence.

The wet pants alarm is a bedwetting treatment tool, but since

either doesn't care about wet pants or doesn't notice wet pants, I

thought an audible alarm would be helpful, at least for me. I'll let

you know if it is, it should come tomorrow. He has all the mechanics

of toileting down (he will do it if he's sitting on the toilet), but

he will not initiate and still has accidents, even if we bring him as

frequently as every half hour.

I have 4 kids all together, Shauna who is 7 and 'typical', twins

(PDD) and (DS and probably PDD) and my baby (so

far so good) who will be one next week, and is now officially into

everything.

Sorry to write such a long post.

Take care,

Ruth

> >Hi -

> >

> >I have a 6 year old w/DS and I believe he also is on the PDD

> >spectrum. His name is . has a twin brother ()whose

> >was diagnosed PDD when he was 2 (typical otherwise) and is now

doing

> >VERY well.

> >

> > is demonstrating alot of the perseverative behaviors and lack

of

> >eye contact that we saw with his brother and I'm becoming

> >increasingly wary of the possiblity of the dual diagnosis. He seems

> >to be spending more of his time in his own world and less aware of

> >his surroundings.

> >

> >Does anyone have any suggestions for diagnosis or treatment? What

> >about his IEP - should I be looking for a home based one-on-one

> >program that we used with Mike when he was in preschool?

> >

> >Any suggestions or encouraging stories would be appreciated. I've

> >been toilet training him for 2 years and he still has just as many

> >accidents as ever. I've just ordered a wet pants alarm. I hope

that

> >it helps.

> >

> >Thanks,

> >Ruth

> >

> >

> >

[Guest guest]

Hi Gail,

Thanks for the welcome. You have 5 kids?!? you are braver than me,

thats for sure. Hey after Seth's name you have ds/asd/pica. What

is 'pica'?

Thanks

Ruth

> In a message dated 8/18/02 11:45:41 AM Pacific Daylight Time,

> joeysmom3@y... writes:

>

> << Hi -

>

> I have a 6 year old w/DS and I believe he also is on the PDD

> spectrum. His name is . has a twin brother ()

whose

> was diagnosed PDD when he was 2 (typical otherwise) and is now

doing

> VERY well.

>

> is demonstrating alot of the perseverative behaviors and lack

of

> eye contact that we saw with his brother and I'm becoming

> increasingly wary of the possiblity of the dual diagnosis. He

seems

> to be spending more of his time in his own world and less aware of

> his surroundings.

>

> Does anyone have any suggestions for diagnosis or treatment? What

> about his IEP - should I be looking for a home based one-on-one

> program that we used with Mike when he was in preschool?

>

> Any suggestions or encouraging stories would be appreciated. I've

> been toilet training him for 2 years and he still has just as many

> accidents as ever. I've just ordered a wet pants alarm. I hope

that

> it helps.

>

> Thanks,

> Ruth >>

>

> Welcome Ruth,

> Glad you found the list and I'm sure someone out here has some wise

words for

> you. We aren't up to toilet training yet. Sounds like you

certainly know

> what to look for and are right on top of the situation.

> Gail :-)

> Gail-Mom to Seth 6 ds/asd/pica, jo 9 the gymnast, 11

the pianist,

> 25 beautiful but a pain, Jen 26 the wallet breaker, Grandma

to Errick 6

> ALL boy and wife to , my hero.

[Guest guest]

Hi Ruth,

Sounds like you really have your hands full with the four young

ones!!!! In our circles of DS parents and others with special needs that I

have run into through preschool programs there is always much talk about

developmental pediatricians. We started with one when Tim was very very

young (about 6mos or so, I would guess). Anyway she moved into a

neighboring city about an hour away and I was going to switch to another

one just to save the drive time but as I was listening to other parents

talk about their experiences with developmental pediatricians in our area I

was finding there were A LOT of children not being diagnosed, just

" watched " and evaluated every few months. I didn't like, what I considered

to be the " sit on the fence " approach from some of the dr's I was hearing

about so we decided to keep the ped we had begun with and make the drive (I

know from reading the list for the last month or so that many of you drive

much further than that!!!:)) So that is our developmental ped story. I

would ask other parents for recommendations and see what you get. Good

Luck. it is very difficult to find a caring, concerned and compassionate

MD. Ours spent nearly 3 hours with us upon diagnosis (never getting up

from her chair...just answering questions and being empathetic!!!) She has

since phoned to see how things are going and emailed me as well. She is

another of the angels that I consider to have touched our lives.

Keep me posted on the wet pants alarm...sounds like it might at least

enable you to get him to the potty in time.

Good Luck and as heartbreaking as it is to get something on paper, it will

end up benefiting in the end, I believe.

At 07:28 PM 8/20/02 +0000, you wrote:

>Hi -

>

>Thanks for a little background on your story. So happy and

>encouraged to hear about Tim's progress. I have been hesitant on

>trying to get a diagnosis, as I'm not sure how much it would

>change his ed plan, but it seems from what I've been reading that it

>would be useful, if not depressing, to have it on paper. Now the

>challenge is to find an appropriate team who can be open-minded

>enough to see the differences between PDD and MR. Still looking for

>one in the Boston area.

>

>We did some ABA with when he was 2, using the " he's at a higher

>risk for PDD " argument, but that ended when he entered preschool,

>becuase the school system didn't buy that and we couldn't get a dx at

>that time. The therapy itself was awful though, he spent most of his

>time crying through it. When had the same therapy, he had

>just a few bad days, mostly in the beginning, when he did alot of

>crying. After that, he really responded well. In fact, at his last

>eval. they said they could no longer call him PDD, he is off the

>spectrum. with be going to a regular kindergarten next fall,

>without a resource room, just in room special ed. help a couple of

>hours a week. will be attending a Special Ed. class with no

>typical kids, but the reduced class size of 10 was very attractive to

>me. The teacher is firm and I hope that it helps him. He currently

>has no desire it seems for independence.

>

>The wet pants alarm is a bedwetting treatment tool, but since

>either doesn't care about wet pants or doesn't notice wet pants, I

>thought an audible alarm would be helpful, at least for me. I'll let

>you know if it is, it should come tomorrow. He has all the mechanics

>of toileting down (he will do it if he's sitting on the toilet), but

>he will not initiate and still has accidents, even if we bring him as

>frequently as every half hour.

>

>I have 4 kids all together, Shauna who is 7 and 'typical', twins

> (PDD) and (DS and probably PDD) and my baby (so

>far so good) who will be one next week, and is now officially into

>everything.

>

>Sorry to write such a long post.

>

>Take care,

>Ruth

>

> > >Hi -

> > >

> > >I have a 6 year old w/DS and I believe he also is on the PDD

> > >spectrum. His name is . has a twin brother ()whose

> > >was diagnosed PDD when he was 2 (typical otherwise) and is now

>doing

> > >VERY well.

> > >

> > > is demonstrating alot of the perseverative behaviors and lack

>of

> > >eye contact that we saw with his brother and I'm becoming

> > >increasingly wary of the possiblity of the dual diagnosis. He seems

> > >to be spending more of his time in his own world and less aware of

> > >his surroundings.

> > >

> > >Does anyone have any suggestions for diagnosis or treatment? What

> > >about his IEP - should I be looking for a home based one-on-one

> > >program that we used with Mike when he was in preschool?

> > >

> > >Any suggestions or encouraging stories would be appreciated. I've

> > >been toilet training him for 2 years and he still has just as many

> > >accidents as ever. I've just ordered a wet pants alarm. I hope

>that

> > >it helps.

> > >

> > >Thanks,

> > >Ruth

> > >

> > >

> > >

[Guest guest]

In a message dated 8/20/02 12:33:28 PM Pacific Daylight Time,

joeysmom3@... writes:

<< Hi Gail,

Thanks for the welcome. You have 5 kids?!? you are braver than me,

thats for sure. Hey after Seth's name you have ds/asd/pica. What

is 'pica'?

Thanks

Ruth >>

Hi Ruth,

Yeah, we have 5 kids. LOL After our first two we did the vasectomy thing,

then decided to join the Catholic church, so had it reversed and had 3 more

kids plus lost one. Not brave Ruth.....LOL There are a lot of names that

would fit me, but brave is not one of them! LOL

Gail :-)

Age is a very high price to pay for maturity.