HELP

[Guest guest]

Well, Liz, you’re probably feeling panicked right now but take a deep breath

– it’s nearly August, and you and your son are probably used to Augusts

without school services anyway, so hopefully this one won’t feel too different

or be any more challenging for him than they’ve been in the past.

Do you have plans in place to keep his days filled and productive while you

continue to search for other options? With Home Based money you can design

whatever kinds of days he would like – maybe start with what he does right

now, in summer school – are some of those activities sustainable beyond the

next two weeks? Does he go out into the community with school? Volunteer

anywhere? What does he usually do in August when there’s no school in

session?

Use what time you have remaining with your school staff to get contact

information for any community sites he visits or volunteers at. You can contact

them directly & set up continued visits there with paid staff you pay with Home

Based Waiver funds. Anywhere he has structured routines will help. Perhaps

your PSWs could still go in and observe/meet with school staff and see how they

work with your son for the next few weeks, too.

When you’re through crying out the frustration, know that there are options

available but they do require legwork and/or time on your part to get set up.

This likely won’t be resolved within the next two weeks. My advice is –

come up with an interim plan of PSWs to help your son get through the next few

weeks/months. Use that time to figure out a longer-term solution. Maybe if you

give yourself ‘til Labor Day’ to figure this out, it won’t be so

overwhelming.

Hope that helps,

Laurie

From: Liz Youhana

Sent: Wednesday, July 20, 2011 4:29 PM

IPADDUnite

Subject: HELP

Hi all,

I need help. Today I found out the place we've been looking at for my son is

not taking anyone at this time. He graduated in June and has 2 weeks of summer

school left. After that.....nothing. I do have HBS and have 2 people coming in

a few hours a week. He has behavior issues and I have never left him with them.

I've already been in a panic, as many of you can understand, that I may not even

be able to run to the store by myself to pick up milk. I live in the southern

suburbs and looking for a workshop or day program. I went to check out Easter

Seals program today and they have no openings. Any suggestions?

Thanks for letting me vent......trying to hold back tears.

Liz

[Guest guest]

Hi Liz,

Have you checked out Elim Christian's adult program? They are in Tinley Park.

Thais

[Guest guest]

Yes  I did check out Elim.   He is autistic and the program seams

great.....but for higher functioning.

It's a very happy place. 

I believe the name is Oasis.

And thanks .......you did help to calm me.  By the way I've been doing

alot of leg work.  I know not to depend on others if you need to get things

done.  I think I'm upset because we've been waiting to here from Trinity

(months) about Safe Now.  They should have let us know awhile ago that there

were no openings.  I've been calling and finally got ahold of someone who

pushed for me.  As you know this process is exhausting.  But believe me I will

not give up. Something better will turn up.

Thanks ,

Liz

PS  I did call the school district and asked if anyone knows of any programs. 

The problem is I want to keep him at home right now and many programs are just

to far from here.

 

From: Francis PALLUAU <fpalluau@...>

IPADDUnite

Sent: Wednesday, July 20, 2011 6:46 PM

Subject: Re: HELP

 

Hi Liz,

Have you checked out Elim Christian's adult program? They are in Tinley Park.

Thais

[Guest guest]

One of the best programs that CPs offers is at Mc Pherson School. I also like

Easter Seals in Chicago. Higher Functioing ASD students do well at Mc Pherson.

Also there is a school called Positive Connections. I hope this helps!

Sent from my Verizon Wireless BlackBerry

Re: HELP

 

Hi Liz,

Have you checked out Elim Christian's adult program? They are in Tinley Park.

Thais

[Guest guest]

Hi Liz:

I wish I knew the resources in your area a little better.

I don't know if you work, but if you do not, you might consider having the new

respite people shadow you with your son, in the community. If they can pick up

your techniques for supporting your son, that might be useful...Otherwise a

trusted past teacher or therapist might be able to do something like that, so

that you can feel more comfortable with the personal support workers that you

have coming to work with your son. Your son's PSW's can, perhaps, get him

involved in local volunteer efforts...Meals on Wheels, stocking the local food

pantry. Perhaps there is another young adult in a similar situation and the two

can buddy to go on community outings or to work out together at a local gym

along with a PSW?

In our community, several different groups of parents, frustrated with

traditional day programs and limited options for young adults, started their own

programs...two of which have become very successful, well attended, albeit,

private pay community based programs.

When the school bus stops coming, it can be very scary...those of us who have

been there, empathize with you.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

Thanks Ellen

I did put a call in today........actually a few calls in......looking for 

options.  Keep your fingers crossed for me and again Thank You.  Liz

From: ELLEN BRONFELD <egskb@...>

IPADDUnite

Sent: Thursday, July 21, 2011 4:39 PM

Subject: Re: HELP

 

Hi Liz:

I wish I knew the resources in your area a little better.

I don't know if you work, but if you do not, you might consider having the new

respite people shadow you with your son, in the community. If they can pick up

your techniques for supporting your son, that might be useful...Otherwise a

trusted past teacher or therapist might be able to do something like that, so

that you can feel more comfortable with the personal support workers that you

have coming to work with your son. Your son's PSW's can, perhaps, get him

involved in local volunteer efforts...Meals on Wheels, stocking the local food

pantry. Perhaps there is another young adult in a similar situation and the two

can buddy to go on community outings or to work out together at a local gym

along with a PSW?

In our community, several different groups of parents, frustrated with

traditional day programs and limited options for young adults, started their own

programs...two of which have become very successful, well attended, albeit,

private pay community based programs.

When the school bus stops coming, it can be very scary...those of us who have

been there, empathize with you.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

Hi Liz

I am from Tinley Park. What south suburb do you live in? What kinds of things

would your son enjoy doing? I am glad to help if I can. I grew up there and used

to work in the south suburbs. I am dating myself but I set up the first on the

job training programs there fir the ARC of Illinois, oh so many years ago.

I am in Spain now helping my oldest who just delivered a baby boy. Mom and baby

are fine. I should be back in a week.

Hang in there. With HBS you can possibly get him a life coach to go to the gym,

take walks in town, maybe even find a job. Did you like any of his aides from

school? Was there a high school senior from best buddies you could hire?

Ficker Terrill

On 21/07/2011, at 23:39, " ELLEN BRONFELD " <egskb@...> wrote:

> Hi Liz:

> I wish I knew the resources in your area a little better.

> I don't know if you work, but if you do not, you might consider having the new

respite people shadow you with your son, in the community. If they can pick up

your techniques for supporting your son, that might be useful...Otherwise a

trusted past teacher or therapist might be able to do something like that, so

that you can feel more comfortable with the personal support workers that you

have coming to work with your son. Your son's PSW's can, perhaps, get him

involved in local volunteer efforts...Meals on Wheels, stocking the local food

pantry. Perhaps there is another young adult in a similar situation and the two

can buddy to go on community outings or to work out together at a local gym

along with a PSW?

> In our community, several different groups of parents, frustrated with

traditional day programs and limited options for young adults, started their own

programs...two of which have become very successful, well attended, albeit,

private pay community based programs.

> When the school bus stops coming, it can be very scary...those of us who have

been there, empathize with you.

> Ellen

> Ellen Garber Bronfeld

> egskb@...

>

>

[Guest guest]

Can some one help I was wandering when I read posts on my email to reply

to the post on my email I just click REPLY but if I want to post for all

to see must I go to the group and post or do I just click on REPLY

from my email posts, will every one see my post if I click on reply from

my email. Thank you all so much. Pat

[Guest guest]

_OffTopicChat/

Everyone, join the off-topic group for guilt-free off-topic chatter! Back to

kefir here!

Larry

From: on <opiewan@...>

Subject: Help

Date: Monday, July 9, 2012, 2:05 PM

 

Marilynn,

I am not one to usually complain about things on an open list, but would it

be possible to get back to Kefir in general??

I really dont think rubbing milk of magnesia in one's armpits has anything

to do with Kefir!

Please help return this list to what should be discussed, Kefir!

Thanks in advance,

[Guest guest]

What kefir does not do, cold thermogenesis will. (Had to keep it on topic

for this group so I mentioned the word kefir.)

jackkruse.com

Read the blog. This is a real brain bender but not only for geeks. Us

common folk can get some of it. A good one to start with is #7 on circadian

rhythms.

http://jackkruse.com/cold-thermogenesis-7/

To know how to do it read Leptin Rx

http://jackkruse.com/the-evolution-of-the-leptin-rx/

If you are the least bit interested once you had a taste of the wisdom of

Dr. Jack Kruse, be sure to read the comments below each blog. People ask

question and Jack answers each and every one. What a great calling he has.

I am so thankful had him as his guest on oneradionetwork.comrecently.

I am moving this over to the off topic chat. I hope some of you try it and

we can compare notes.

Marilyn

On Mon, Jul 9, 2012 at 3:46 PM, <ouched63188@...> wrote:

> Marilyn, you are too funny!... " And the ones complaining of off topic

> posts, please learn to use your

>

> delete key. "

>

> What is cold theromogenesis?

>

> Al

>

>

[Guest guest]

Greetings,

Actually it does. Many people use kefir to boost their calcium intake.

But, in order for that to work, you also need to boost your magnesium

intake. So, in order for your body to get the most out of your kefir,

you need to use Milk of Magnesia as your deodorant. It all seems pretty

on topic to me.

Bright Blessings,

Garth & Kim

www.TheRoseColoredForest.com

Bedias, Texas

On 7/9/2012 1:05 PM, on wrote:

> Marilynn,

>

> I am not one to usually complain about things on an open list, but would it

> be possible to get back to Kefir in general??

>

> I really dont think rubbing milk of magnesia in one's armpits has anything

> to do with Kefir!

>

> Please help return this list to what should be discussed, Kefir!

>

> Thanks in advance,

>

>

>

[Guest guest]

So I have to now go buy some Milk of Magnesia. I guess it can't be worse

than using Pepto Bismol on my arm pits, and maybe I won't have the pink

stain on my shirts either.

I think missed his kefir today. But just in case, do we have any

current or retired Generals on the list? if so that would cover " kefir in

general "

:-)

Also, too much " on topic " leads to people saying " read the archives " or

" read the FAQ " because there was a similar discussion 4 years ago. That's

not how you build a community.

Leo

On Mon, Jul 9, 2012 at 6:30 PM, Garth & Kim <gartht@...>wrote:

> **

>

>

> Greetings,

> Actually it does. Many people use kefir to boost their calcium intake.

> But, in order for that to work, you also need to boost your magnesium

> intake. So, in order for your body to get the most out of your kefir,

> you need to use Milk of Magnesia as your deodorant. It all seems pretty

> on topic to me.

>

> Bright Blessings,

> Garth & Kim

> www.TheRoseColoredForest.com

> Bedias, Texas

>

>

> On 7/9/2012 1:05 PM, on wrote:

> > Marilynn,

> >

> > I am not one to usually complain about things on an open list, but would

> it

> > be possible to get back to Kefir in general??

> >

> > I really dont think rubbing milk of magnesia in one's armpits has

> anything

> > to do with Kefir!

> >

> > Please help return this list to what should be discussed, Kefir!

> >

> > Thanks in advance,

> >

> >

> >

>

>

>