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I got an email back from Kris almost immediately that she is not able to help out, .

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

A person with a disability that qualifies for HBWD would be an excellent canidate for a benefits analysis through the Work Incentives Planning and Assistance program. Please contact us and we can go over how employment affect all kinds of benefits.

My contact information is .Lawrenceillinois (DOT) gov and my telephone number is 312-814-8660.

Thank you

Lawrenceellenbronfeld <egskbsbcglobal (DOT) net> wrote:

There is also a new program called HBWD, Health Benefits for Workers with Disabilities. It was designed to help people with disabilities work and still retain full medicaid health care benefits. This program is available in Illinois and 28 other states. The individual would likely be required to pay a small premium ($1-100 per month)You can download an application by going to: http://www.hbwdillinois.com/application.htmlIt is administered by the Dept. of Healthcare and Family Services and you can probably find that website and get more info.Ellen

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How were you able to get Medicare for your son? Did he work enough quarters to qualify himself, or is there some other way to move from Medicaid to Medicare? I have been told my daughter either needs to be 65 (she is now 22) or be able to work enough hours in 6 quarters in 3 years. Since she has CP and can only work for about 3 hours/day and usually only 3-4 days a week - she will never be able to accumulate enough to qualify for Medicare until she qualifies at age 65 (or whatever age they raise it to by that time)

Thanks,

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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, does your daughter receive Social Security Disability? If so I thought you automatically become Medicare eligible. Since I worked and was covered by my insurance I did not get Medicare for him until I retired. Since he receives too much from SSD and his part time job I am told he does not qualify for Medicaid. I am looking into this. It seems we all have many questions and concerns. I would like to see a group meeting with many speakers from Social Security, state official, IPADD, NADS, PACT, and any others we can get to come and listen and answer questions. I am confused about so many things as it seems everyone has similar concerns. Thiks group is great but I think a face to face would be so much more helpful. Shirleyginar_30 <ginar_30@...> wrote: How were you able to get Medicare for your son? Did he work enough quarters to qualify himself, or is there some other way to move from Medicaid to Medicare? I have been told my daughter either needs to be 65 (she is now 22) or be able to work enough hours in 6 quarters in 3 years. Since she has CP and can only work for about 3 hours/day and usually only 3-4 days a week - she will never be able to accumulate enough to qualify for Medicare until she qualifies at age 65 (or whatever age they raise it to by that time) Thanks,

Re: Medicaid My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can

probably find that website and get more info.> Ellen>

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Face to face is certainly the best, but we can also accomodate the group by getting experts in any field of interest. Even after a "face to face", questions remain and clarification is always needed.

I will be looking into a speaker on entitlements and benefits.

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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She has Medicaid - It is Medicare we can't get. There are more benefits to Medicare, and more doctors will take Medicare - especially specialists.

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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I agree that speakers are good, but they can just introduce generalities, each situation is so different, that all the questions can never be answered at one time.

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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I find I know less and less the more I talk to others. ginar_30 <ginar_30@...> wrote: She has Medicaid - It is Medicare we can't get. There are more benefits to Medicare, and more doctors will take Medicare - especially specialists. Re: Medicaid My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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You are right, . General information only gets you so far.

That is why a place such as Health and Disability Advocates exists. They are located in Chicago but from what I understand, they will answer basic questions on the phone about medicare, medicaid, SSI, SSDI and probably other things as well.

The number is 312/223-9600. If anyone does call them, I would be interested to hear about your experience and success or lack thereof in obtaining the information you are seeking.

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Hi :

I hear you are VERY knowledgeable and accomplished. There are just so many things we are all involved in and we all have our little areas of expertise. You don't have to know it all, as long as you know where to find the information when you need it.

I'll bet you are good at that!

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Thanks much. With all the contacts, we were easily able to get a speaker for FVSR, and names and numbers of many willing to share their information in the future. This group is truly GREAT!!!

Re: Medicaid

A person with a disability that qualifies for HBWD would be an excellent canidate for a benefits analysis through the Work Incentives Planning and Assistance program. Please contact us and we can go over how employment affect all kinds of benefits.

My contact information is .Lawrenceillinois (DOT) gov and my telephone number is 312-814-8660.

Thank you

Lawrenceellenbronfeld <egskbsbcglobal (DOT) net> wrote:

There is also a new program called HBWD, Health Benefits for Workers with Disabilities. It was designed to help people with disabilities work and still retain full medicaid health care benefits. This program is available in Illinois and 28 other states. The individual would likely be required to pay a small premium ($1-100 per month)You can download an application by going to: http://www.hbwdillinois.com/application.htmlIt is administered by the Dept. of Healthcare and Family Services and you can probably find that website and get more info.Ellen

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How true! It is amazing how many are thinking along the same lines - but we are all trying to figure it out by ourselves!

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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I will call them on Mon. Medicaid has just stopped covering 2 of Kim's meds - don't know why, and noone will let me know if it is because formulary has changed or why. They will hopefully be able to give me some insight, or the exact department to call. Calling Medicaid is such a joy!!!

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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With the help of this group - I can get even more information. However, sometimes just the information is overwhelming. Then the problem is that the law keeps changing and I don't know of anyone who feels they can keep up with all the law changes. Just when you think you have a plan for housing for you adult child - and you start working on it based on today's state laws, and by the time you can actually get it up and running - the laws are changed and you have more hoops to jump thru. I guess at the moment - I am just tired of jumping thru hoops only to find that the hoops have changed and I don't seem to have the strength to jump thru the new hoops! Thanks for listening.

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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, I know what you mean. For us we didn't want to think about ever living anywhere but with us. As we get older I worry more about what will happen if we die. has a brother but I would rather he not have to make decisions on his own. We have other family but again, it would be nicer if we had a solution in place first. I don't know if you are familiar with PACT but they were supposed to help us after graduation with Chris's needs. We started the paper work but they kept changing our case workers and then they wanted us to file for MEDICAID and we were denied, then our case worker lost all of our information and they want us to re apply for MEDICAID (and I know he will be denied again) and start from the beginning again. I am just on hold right now not knowing what to do. I am hoping to get some answers here. But everyone has some of the same problems but we all have our own issues. And yes the rules

change all the time, it is hard to keep up with everything. I have a couple of calls to make next week thanks to some great people here so we'll see what happens. Maybe we can all help each other through the hoops. Hang in there. Shirleyginar_30 <ginar_30@...> wrote: With the help of this group - I can get even more information. However, sometimes just the information is overwhelming. Then the problem is that the law keeps changing and I don't know of

anyone who feels they can keep up with all the law changes. Just when you think you have a plan for housing for you adult child - and you start working on it based on today's state laws, and by the time you can actually get it up and running - the laws are changed and you have more hoops to jump thru. I guess at the moment - I am just tired of jumping thru hoops only to find that the hoops have changed and I don't seem to have the strength to jump thru the new hoops! Thanks for listening. Re: Medicaid My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care

benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Glad it all worked out, .

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

A person with a disability that qualifies for HBWD would be an excellent canidate for a benefits analysis through the Work Incentives Planning and Assistance program. Please contact us and we can go over how employment affect all kinds of benefits.

My contact information is .Lawrenceillinois (DOT) gov and my telephone number is 312-814-8660.

Thank you

Lawrenceellenbronfeld <egskbsbcglobal (DOT) net> wrote:

There is also a new program called HBWD, Health Benefits for Workers with Disabilities. It was designed to help people with disabilities work and still retain full medicaid health care benefits. This program is available in Illinois and 28 other states. The individual would likely be required to pay a small premium ($1-100 per month)You can download an application by going to: http://www.hbwdillinois.com/application.htmlIt is administered by the Dept. of Healthcare and Family Services and you can probably find that website and get more info.Ellen

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I hear you!

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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That is a nightmare we all worry about on Medicaid.

Those meds are SO expensive even if you have the money to cover it, that money could be going for other, quality of life items.

It has been my experience, when we had a medication rejected for payment by medicaid that my son's prescribing physician filled out and faxed a form( "prior authorization request form" that can be downloaded from the public aid website) to substantiate the critical need for those particular meds. It took several weeks (maybe it was a month) to receive approval for coverage. We have had two such incidents but the meds were eventually covered.

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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We obviously need a guest expert on some of this...

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Shirley Did you apply for SSI? Or is your son working? From what I understand - you file for SSI first - you may have to apply 2 or 3 times, just make copies of EVERYTHING. Once you have SSI it is easier to get Medicaid. In fact in some offices it is a given (should be the same throughout IL but it isn't)

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Thanks - I just printed the prior approval form from the internet. One of the drugs we had denied is Celebrex. It comes up for renewal every year - and we have filled out the prior approval form each time, and every year it has been covered. (Their first response is that a 22 year old is too young to have arthritis - haven't they ever heard of Juvenile Rheumatoid Arthritis?) But this year, we are going thru a different pharmacy (which should have no bearing) and they are just saying that they no longer cover it. But I think I will start with the prior approval form - that asks WHY she needs it and what other meds have been tired. At least they will have something in writing.

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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It really shouldn't be so hard, should it, ?

Can you imagine if our children did not have us to advocate for them?

It is too sad to contemplate.

I want to take the opportunity to remind all of our members that you are very likely members because you care about and love your child. Together we have a powerful voice and together we can help each other figure things out.

On a related note, in your spare time :) you should consider creating your letters of intent in regard to all of the day to day needs of your child with a disability and then all of the things above and beyond the day to day stuff...it is extremely time consuming but may take a big weight off your minds if you have created a document that will assure that everything that you do and everything that you plan to do with your child will be done in the evident that you can no longer do those things. There are various examples and formats in our files when you are ready. I will be repeating this as a sort of mantra from time to time because it is so important but admittedly, so hard to do.

Ellen

Ellen Garber Bronfeldegskb@...

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.html> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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, here is my problem. has received Soc. Sec. since 1987 as his father died then so he received survivor benefits. When turned 18 he was declared disabled and continued to receive Soc. Sec. under his fathers benefits which is a higher amount then what he would have been qualified for. So gets Social Security disability. Since he also works part time the total amounts together are too high to qualify for any other assistance like Medicaid. I applied for that and was denied. He does get Medicare A and B but that's it. I will apply again for Medicaid but I have a couple of phone calls to make first. I'll keep everyone posted. Thanks, Shirleyginar_30 <ginar_30@...> wrote: Shirley Did you apply for SSI? Or is your son working? From what I understand - you file for SSI first - you may have to apply 2 or 3 times, just make copies of EVERYTHING. Once you have SSI it is easier to get Medicaid. In fact in some offices it is a given (should be the same throughout IL but it isn't) Re: Medicaid My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a

new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Shirley, Please let us know how this all works! Does he also qualify for Medicare Part D?

Re: Medicaid

My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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Yes, he is but I am still able to keep him on my prescription plan with my benefits.ginar_30 <ginar_30@...> wrote: Shirley, Please let us know how this all works! Does he also qualify for Medicare Part D? Re: Medicaid My son has Medicare as his primary and my insurance as secondary insurance. That is what my company insists on.> There is also a new program called HBWD, Health Benefits for Workers > with Disabilities. It was designed to help people with disabilities > work and still retain full medicaid health care benefits. This program > is available in Illinois and 28 other states. The individual would > likely be required to pay a small premium ($1-100 per month)> You can download an application by going to: > http://www.hbwdillinois.com/application.htm! l> It is administered by the Dept. of Healthcare and Family Services and > you can probably find that website and get more info.> Ellen>

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  • 4 weeks later...

Good question Patt. Unfortunately I do not know the answer.

Here are some resources and information:

to apply for medicaid (applications and instructions) the website is:

http://www.dhs.state.il.ts.fss.pdf/IL444-2378.pdf

you need a state ID for you and your child (your driver's license is ok)

Social security card

copy of birth certificate

guardianship papers/power of attorney papers

SSI benefits confirmation

copies of monthly bills (proof of SSI being used for child's living expenses)

Local offices:

Lake County Local office (DHS Human Capital Development)

3235 W. Belvidere Rd., Park City, Il, 60085, 847/336-5212

Northern Local Office (DHS Human Capital Development)

8020 St. Louis Av., Skokie, 60076, 847/745-3200

I used Sherri Schneider, Family Benefit Solutions, to help with this application process, but it can be done without assistance...just more hassle...her number is 847/279-8506. She may answer some basic questions about medicaid but the nest resource would be your first and probably best resource for questions.

The Health and Disability Advocates, 312/223-9600. This group exists to protect and strengthen entitlements to children, the disabled and low income older adults. They are very knowledgeable.

I think the above number would be more efficient for questions as opposed to the medicaid office.

Ellen

Ellen Garber Bronfeldegskb@...

Medicaid

My son was denied on his father's medical insurance a desperately needed jaw surgery (it wasn't caused by an accident so they won't cover it). I wonder if Medicaid pays for such things... Can I go on a website to find out more info on Medicaid?Thanks,PattEllen Bronfeld <egskbsbcglobal (DOT) net> wrote:

I would also add, about medicaid, that some of the benefits are phenomenal...

We went from paying $300 per month for meds to less than $10 AND medicaid paid for a $7,000.00 augmentative communication device.

This is an ENTITLEMENT that most individuals with a developmental disability should qualify for. The down side is when you have a favorite physician or dentist who does not take medicaid. When our children are young and healthy, paying out of pocket for well-care to the provider of your choice is almost certainly going to be a better deal over all than staying on private insurance.

I am wondering if anyone has had experiences, positive or negative with trying to get medicaid to pay for therapies such as speech, OT or PT?

Does anyone have a physician or dentist who takes medicaid and who they are satisfied with?

That might be useful information for our membership.

Ellen

Ellen Garber Bronfeld

Patt MIlls - Creative Memories Consultant Your life | Your story | Your wayFREE-- your first 20 photos at www.cmphotocenter.com using CM ID #1329-1511

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