Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi all, I'm here. Sorry to be a bit quiet. My husband has been cleaning a sectional we are putting in the living room and I've been working on stuff for college. -Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi all, Im still new to the group and I guess i have been a bit shy. Im awaiting approval for the permanent scs and Im going crazy about it. I think I went through a few days of deep depression once I had a taste of pain relief and it was taken away. Now Im ok, just waiting for that phone call. I will keep everyone updated. I hope everyone is ok from the Hurricane. I live in Fort Worth TX and we are pretty far inland so all we are getting is rain. > > Checking in as requested .....sorry I have not been online too much > in the last few weeks.....been working all kinds of crazy hours at > work for the last 5 weeks now because someone has been out on family > leave and I have had a lot of dr's appointments. I finally talked my > neurosurgeon into replacing my lead for me and have had to see him > several times plus a CTscan, lab work, one more pre-op appointment > tomorrow and finally my surgery on Friday! Can't tell you all how > much I am looking forward to this week going by fast! Not much else > on this front.....Hope everyone down in Gustav's path stay safe!!!!!!! > > C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Everyone goes through anticipation and disappointment of having to wait for the permanent SCS. Hopefully you'll get the call any day now. It's cruel that they give us the taste of pain relief only to make us wait. I was luckly, I didn't have to wait long. Once you have the implant, and the pain relief you are seeking it will be worth it. Noone tells us that depression goes hand in hand with chronic pain. Sue C Moderator From: shaninpain <shaninpain@...> Subject: Re: Group Stimulator Date: Tuesday, September 2, 2008, 3:07 AM Hi all, Im still new to the group and I guess i have been a bit shy. Im awaiting approval for the permanent scs and Im going crazy about it. I think I went through a few days of deep depression once I had a taste of pain relief and it was taken away. Now Im ok, just waiting for that phone call. I will keep everyone updated. I hope everyone is ok from the Hurricane. I live in Fort Worth TX and we are pretty far inland so all we are getting is rain. > > Checking in as requested .....sorry I have not been online too much > in the last few weeks.....been working all kinds of crazy hours at > work for the last 5 weeks now because someone has been out on family > leave and I have had a lot of dr's appointments. I finally talked my > neurosurgeon into replacing my lead for me and have had to see him > several times plus a CTscan, lab work, one more pre-op appointment > tomorrow and finally my surgery on Friday! Can't tell you all how > much I am looking forward to this week going by fast! Not much else > on this front.....Hope everyone down in Gustav's path stay safe!!!!!!! > > C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 -You will get that call. It takes time it the waiting process that bothers us. good luck Mike owner-- In Stimulator , " shaninpain " <shaninpain@...> wrote: > > Hi all, > > Im still new to the group and I guess i have been a bit shy. Im > awaiting approval for the permanent scs and Im going crazy about it. I > think I went through a few days of deep depression once I had a taste > of pain relief and it was taken away. Now Im ok, just waiting for that > phone call. I will keep everyone updated. I hope everyone is ok from > the Hurricane. I live in Fort Worth TX and we are pretty far inland so > all we are getting is rain. > > > > > > > > Checking in as requested .....sorry I have not been online too much > > in the last few weeks.....been working all kinds of crazy hours at > > work for the last 5 weeks now because someone has been out on family > > leave and I have had a lot of dr's appointments. I finally talked my > > neurosurgeon into replacing my lead for me and have had to see him > > several times plus a CTscan, lab work, one more pre-op appointment > > tomorrow and finally my surgery on Friday! Can't tell you all how > > much I am looking forward to this week going by fast! Not much else > > on this front.....Hope everyone down in Gustav's path stay safe!!!!!!! > > > > C. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 I dont know much about brain cancer are they going to go with radation. mike group owner > > > > It has gotten alittle quiet here lately, how is everyone? can > everyone > > checkin? also if your in LA hurricanne patch Please find safe place > to > > go. If at all possible can everyone checkin. If anyone has any > > questions it is good time to ask? Mike group owner > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 -Good to hear from you Kathy Take all the time you need things will turn aroundb for you soon that my prayer. Mike group owner-- In Stimulator , KGAVI@... wrote: > > hey mike! > > sorry i haven't been on and haven't called you...things here are not good... > > dad is still quite sick...'s funeral was last week, and now my best > friends dad died Wednesday from cancer...was told he had 5 years..he died in 4 > months....she is devastated...i am trying to spend as much time with her as > possible. > > cellultitis is back on legs...very,very painful > > will call later. > > love > > kathy > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 --Hi Mike Well as far as I know they cannot do radation on the same tumor,, if it was a new one they could,, as of now the tumor has more then doubled in size. she is in the hospital now getting a PET scan and other test,, so hopefully we will know more soon,, thanks mike for asking about her... hope your doing good Mike,, Soft HUgs T - In Stimulator , " mike2boys " <mike2boys@...> wrote: > > I dont know much about brain cancer are they going to go with > radation. mike group owner > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 ---Kathy you are so sweet ,, thank you,,, Im so sorry to hear about you Dad and your friends Dad.. I know how rough it can be,, I lost my dad in 92 and my Mom in 99.. and now watching my sister,,, stay strong sweetie,, youll make it... Is there anything they can do for the cellulitis?? That is something I know nothing about,,, sounds very painful tho... Hope you feel better soon sweetie... My prayers are with you and your family.. I know its rough watching them suffer.. hang in there girl...Im here is you need me... I can give you my cell # if you want to talk..take care sweetie... get some rest soft hugs T In Stimulator , KGAVI@... wrote: > > Hello ! > > I am so very sorry about your sister, and you pain while watching her suffer. > > I have not been online for some time now, as my very close friend has just > died of cancer. I had her services last week. > > My father is still extremely ill. > > My best friend's d just died of cancer, and the family was told that he > would have about 5 years to live, and he died in only 4 months. Although it was > great for her dad, a s he did not suffer a horrible, long death, the family > is just devastated and in such shock. > > I will be back on some time this week. I also have another outbreak of the > damned cellulitis on my right leg....I am about to wave the white flag with > the cellulitis!! LOL > > Please know even though I am not online, you and many other of my special > friends are in my thoughts, prayers and well wishes. > > All my love to you and yours. > > Hang in, honey. > > Love > Kathy G. > Group Co-owner > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Sue Thanks so much,,You are right.. im trying to spend time with her. I talk to her on the phone every couple days.. Im just really afraid that they are going to tell her there is nothing else they can do for her.. when our Mom was dying, Margie would not believe it,, even up till the last minute,, also her only child a daughter Lyndsay died of cancer back in 2000,, and even up till the last hour, the doctors kept telling her Lyndsay was going to be fine.. they never let them know they were losing their child.. we all knew but Margie would not believe it... so needles to say,she has a hard time dealing with death,, she said she is not afraid of death,, just the end...ok,, enough sad stuff... hope you are doing well Sue.. take care.. talk to ya all soon.. soft hugs to all T--- In Stimulator , Corn <butterfliesrfree309@...> wrote: > > All you can do is let her know that you are there for her. You are there to support her. I know how hard that is. Your heart is breaking, but you want to be so strong for her. When my dad was dying, I would hold his hand, and tell him that I wasn't going anywhere. He knew he was dying. I knew he was dying. He was facing the possible amputation of his leg. The doctors kept telling him he probably wouldn't survive the surgery, he didn't want to lose the leg, he didn't want to die, he had wounds on his legs down to the bone, along with multiple other conditions. The pain and suffering was unbearable. He was ready to go be with my mom. I would tell him that I would be there with him every step of the way . That's all you can do for Margie. Love her, talk to her spend time with her. Sometimes there are no words, i would just stroke my dad's hair. or we would just sit and hold hands. > > Sue C > Moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 hi its R from Ohio I hope you get your call I've had my stim since April 05 and it gave me my life back **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 Hey Yes, it is like giving a big, huge, delicious taffy to a wee one and then laughing a mean, evil, sinister laugh and pulling it out of the child's mouth. The good thing is that you KNOW it will work for you when it is done. Hang in, Sweetie. I know that it isn't easy....but just keep on thinking that the pain relief is coming soon! love kathy g. Group co-owner **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 , thanks so much, I will let you know as soon as I know! I lived in Athens Ohio for a few years to go to college, now Im back home in Texas. I cant wait to get some of my life back! > > hi its R from Ohio I hope you get your call I've had my stim > since April 05 and it gave me my life back > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 Kathy, You are awesome, thanks for the hillarious description of what I am going through. I am so happy I found this group, I have been very depressed lately and I was searching for an outlet. I will keep you posted! > > Hey > > Yes, it is like giving a big, huge, delicious taffy to a wee one and then > laughing a mean, evil, sinister laugh and pulling it out of the child's mouth. > > The good thing is that you KNOW it will work for you when it is done. > > Hang in, Sweetie. I know that it isn't easy....but just keep on thinking > that the pain relief is coming soon! > > love > > kathy g. > Group co- owner > > > > > > > > > > **************It's only a deal if it's where you want to go. Find your travel > deal here. > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 I have you added to to my MSN Mike so when ever you are ready to try it out just let me know teews1964@... this is my contact email so you can add me -- In Stimulator , " Mike " <mike2boys@...> wrote: > > Since we have members unable to use I decided if those members > would download msn messenger which will work we can hold chat using msn > messenger as chat client. go to www.msn.com then download msn messenger > Kathy and other do this once you have post you have and add me > mike2boys@... we can do this mike owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 thank you so very much, my friend. I appreciate your friendship, loyalty and goodness. Things are pretyy bad right now...pain is horrendous in both legs....just horrible. I will do the download tomorrow. all my love and thanks, kathy co-owner **************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Hi Mike, How are you? I know I just replied to a post but.... If you could please take my name off the e-mail list. I am still in somewhat of a remission and will not be going the route of a STS. Take care, Jill ~ Boston group is everyone about ready for a chat time? I do need you all to have msn messenger download. If room ready for chat let me know mike group owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2008 Report Share Posted October 3, 2008 Mike I just downloaded MSN messenger, so how does it work for a chat ? > > is everyone about ready for a chat time? I do need you all to have msn > messenger download. If room ready for chat let me know mike group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Hi Mike Ready when you are just give me a time and I will try to be there !!!! Keep On Smiling Kathyu Sweet > > is everyone about ready for a chat time? I do need you all to have msn > messenger download. If room ready for chat let me know mike group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Hey Mike... You are the reason that we are all here! I am so proud to be your co-owner and feel privileged to know all our great and wonderful friends online. Hope you are doing well. Thanks for all you do! Love, Kathy G. **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 ohio for lisa r **************Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/100000075x1212416248x1200771803/aol?redir=http://\ travel.aol.com/discount-travel?ncid=emlcntustrav00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Eastern WA for me! > > I would like to ask everyone what state are you in? your location wise > I am in Delaware Mike group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 > > I would like to ask everyone what state are you in? your location wise > I am in Delaware Mike group owner Texas here! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 I'm from Alabama. Lexie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 > > > > I would like to ask everyone what state are you in? your location > wise > > I am in Delaware Mike group owner > > > Texas here! > > > Hello There I live what I like to call the armpit of Ohio Lakeview Ohio. You have to Ride half hour to be any where. to see dr's or shopping or pay bill it is crazy. I would state where I am from Totally dislike winter's here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 I am in Rome, Georgia and there's not a pain doctor worth an ounce of salt here!!!! Dawn On 11/1/08 8:54 AM, " Mike " <mike2boys@...> wrote: > I would like to ask everyone what state are you in? your location wise > I am in Delaware Mike group owner > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.