group

[Guest guest]

Hi could you please switch my membership to " read on web " too.

thank you.

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- Simplifying group communications

[Guest guest]

In a message dated 7/14/99 10:34:09 AM Eastern Daylight Time,

hearnwic@... writes:

<< Hi could you please switch my membership to " read on web " too.

thank you. >>

I would like to request this status too. Thankyou. Seagale

------------------------------------------------------------------------

eGroups.com home: hyperthyroidism

- Simplifying group communications

[Guest guest]

can you take us off the loop because we get too much mail. It is hard to deal

with so much these days.

[Guest guest]

HEY group.... I forgot to mention in my inaugural address that one thing

I insist on is a sense of humor and FUN...so shape up any of you gloomy

Gussies.... much of being supportive can be helping others out of the

blues and out of the dumps...

(however try to be sensitive of each others feelings sometimes a joke

may not be appropriate (note to self)

love jerry

Jerry Fox owner..(Whatever the hell that means)

gefox@...

[Guest guest]

Hello Jerry !

I read the e-mail from Linnie and was waiting for this letter but I knew that you would sent it soon.

I must tell you that it could not have been written any better. It clearly shows to come from your heart and with much love and when you do things that way you can't go wrong.

As long as God will grant me health and a little strength to touch a few letters on the keyboard; I will always be here.

As you know by now; I try to acknowledge God in all my ways since He has been truly faithful to me throughout all this so I hope that I will never offend anyone since my intentions are to extend my love to every single member here.

Joan as the moderator is just wonderful; she has been so sweet to me and I'm still hoping to one day finally meet her in person. I will never forget last christmas eve when I got home and found that precious and delicious arragement of fruit and other goddies that she sent to me. Some friends from church were dropping me off and they were so impressed and with a big smile I told them "this is from my on-line family" and since then I have received many more precious gifts from different members so I have truly been a beneficiary while in here.

Great Job !

Love,

Tony

[Guest guest]

Jerry

Glad to have you, can't think of a better owner. Glad Joan is still around

or this would be a group of the crazies leading the crazies. I can't promise

to behave but I'll try if I have to.

Congratulations. I toast you with virtual champagne (alcohol doesn't travel

through cyberspace so we're ok)

Patty

[ ] group

OK gang here is the skinny...

This past weekend from Friday thru Sunday I was pretty much off line...in

fact my mailbox filled up and stopped receiving mail. The weekend was a time

for celebration in Alcoholics Anonymous. We recognize June the 10th as being

the beginning of AA that was the day one of our founders Dr.

took his last drink. He was a physician in Akron , Ohio my hometown and

right here in Akron was where AA was born. He together with a New York

business man....Bill .... got together at the home of Henrietta

Siberling (daughter of the founder of Goodyear Tire and Rubber) and began

talking about their alcohol problems in a quest to find a solution..the

talks laid the groundwork of forming AA which now has about 3 million

members world-wide (or more ..there is no actual count) Each year on the

weekend closest to June 10 we have founders day celebrations and some

12.000+ people from all over the world converge on Akron for making and

renewing friendships, support, discussions, meetings , entertainment, and

just plain fun...that's 12000 sober drunks from bikers to bankers, laborers

to lawyers, draftsmen to doctors of every race, color creed,nationality,

sexual pesuasion and religion and it's one big family reunion. They go on

pilgrimsges to doctor Bob's house, Stan Hywett Hall ( the Goodyear mansion,)

St. hospital's Ignatia hall (the first hospital to treat alcoholism as

a disease.... I my self spent 2 tours of duty in de-tox there) and many othe

places that are part of AAs beginnings ..including te site of the first ever

AA meeting. had a great time....this was my 10th Founders Day....but it was

extremely tire-some for me.

Anyway...... Friday AM I checked my email and found a very surprising

invitation from Joanne to take over as owner of the group....I 'd have

dropped my teeth if they weren't real . I couldn't believe that she aske

little old opinionated me, who was always stirring up trouble....I meant to

write her back and decline as I thought I had neither the skill nor the

temperment to do this job.....Hell I don't even have a computer......I went

shmoomzing for the weekend and by the time i checked back in Monday morning

to see what was happening in group I found out that Joanne had not waited

for me to answer and that I was now indeed the owner, Joan the moderator,

and the PBCers along with Joanne and Linnie had unsubscribed from the group.

So here I is the new owner of the group...

Hold all your applause please.

As I am not to sure what my duties actually are except I have a title and

some unknown powers I guess ...I want to ask all of you to help me the best

you can. Please try to stay reasonably close to the rules or Joan will be

swift and vengeful...she's in charge of that stuff because I don't like to

get my hands dirty....try to help me stay , personally out of controversy as

you all know my sharp tongue and I'd hate to have to ban myself...(I'd

probab;ly ban Joan instead anyway for not doing her duty) If you ever have

questions or bitches write me or her personally. Likewise beore getting on

another members behind on line take it outside...I don't want any more

disension. This is A terrific group of people and I want us to be close to

everyone. While I am on that note....we have at present 625 membes...but

only about 20 actually post regularly... I took a quick glance and see that

may be due to the fact that most don't have daily or digest forms of

delivery.

I want ALL of our members to participate . Please don't be timid or shy the

regular posters are not ogres and actually we can get a bit tiresome. If you

post a couple three times someone should answer you and soon you will feel

like part of the group....(poor babies). Please jump in on any subject and

remember there are NO dumb questions but I for a fact know there are many

dumb answers... Lets build this support group back to the way it was

intended to be. Your DOM ..but fearless servant (at least for now,... if I

don't kick myself off for insubordination) I'll try desparately to remember

I'm here to help you ...likewise please give me help too.

I love ALL of you !!!!

[Guest guest]

Jerry

Congrats on the promotion. I always enjoy hearing from you.

Hope you enjoyed your weekend.

Glo

[Guest guest]

HEY HEY HEY!!! Welcome home….but

good golly…..GOLF for THAT long? Geez….you and my

brother! My brother is all over the country golfing……

Glad you are back!

Debby

[ ] group

Hey...... anybody miss me?

As some of you remembered I was tied up at the NEC

golf tournament and

it was so exhausting for me, I just now got back

on line....I also got a

couple of electrical jobs that I decided to try

doing and those too just

about killed me exhaustion-wise, not too

mention my poor aching back

and joints....jeeez I wish I would win a

lottery...

Stupid me forgot to turn off my mail and my

mailbox filled up real

fast.... bounced me and I had to

reactivate my account....

Bottom line I am way out of touch.... I tried to

start reading back thru

the archives but it is just to overwhelming...may

perchance some one can

or will give me a synopsis on important events

....I hope everyone is

WELL!

Tony... I'm so glad you and God are hanging in

there..Happy Birthday to

your Mom! My prayers are there for you my friend.

I also am sending up huge prayers for Patty as I

see she got her

transplant...I wish her a quick and speedy

recovery Karl...thanks for

keeping us informed.

Actually that is as far as I got in my reading ,

I'm just too tired and

I have to finish a job tomorrow, so please someone

give me particulars

and let me know what else has/is happening...

I really missed you guys and thought about

everyone daily and just hope

all is OK... how about Gene is he alright?

Some of you wrote me personally and I apologize

for not responding but I

just haven't opened my mail for a long time....I

was at the golf

tournament every day at 5:30 till any where from

7:00 - 10:00 and went

straight to bed when I got home...the only way I

was able to do it was 6

hits of Oxycontin that my mom had left over from

her broken wrist

script... I took one every mornng and it kept me

mostly pain free all

day...boy I wish my doc would script me some of

those lttle rascals...iI

could go to work sometimes..as it is the two

little jobs I have now are

taking a toll burt I should be ok by next week

when I see both my gastro

and oncologist... (on 9/11 no less)

The Cleveland Clinic called me and they are

starting to monitor my blood

sugar more closely because it was 204 last draw!

That's allI need is

diabetes....sh*t.

Anyway ... I must get to sleep...PLEASE all of you

be well and take care

of yourselves... espec. Tony and Patty (and any

one else who is having

problems I'm not aware of yet)

I LOVE YOU ALL!!!

jerry

I should be back to my usual self next

week.....fair warning. I'll ty

to answer those personal emails that I know

of...so forgive me ..

[Guest guest]

Welcome back, Jerry!

nne

>

> Hey...... anybody miss me?

>

> As some of you remembered I was tied up at the NEC golf tournament

and

> it was so exhausting for me, I just now got back on line....I also

got a

> couple of electrical jobs that I decided to try doing and those

too just

> about killed me exhaustion-wise, not too mention my poor aching

back

> and joints....jeeez I wish I would win a lottery...

>

> Stupid me forgot to turn off my mail and my mailbox filled up real

> fast.... bounced me and I had to reactivate my

account....

>

> Bottom line I am way out of touch.... I tried to start reading

back thru

> the archives but it is just to overwhelming...may perchance some

one can

> or will give me a synopsis on important events ...I hope everyone

is

> WELL!

>

> Tony... I'm so glad you and God are hanging in there..Happy

Birthday to

> your Mom! My prayers are there for you my friend.

>

> I also am sending up huge prayers for Patty as I see she got her

> transplant...I wish her a quick and speedy recovery Karl...thanks

for

> keeping us informed.

>

> Actually that is as far as I got in my reading , I'm just too

tired and

> I have to finish a job tomorrow, so please someone give me

particulars

> and let me know what else has/is happening...

>

> I really missed you guys and thought about everyone daily and just

hope

> all is OK... how about Gene is he alright?

>

> Some of you wrote me personally and I apologize for not responding

but I

> just haven't opened my mail for a long time....I was at the golf

> tournament every day at 5:30 till any where from 7:00 - 10:00 and

went

> straight to bed when I got home...the only way I was able to do it

was 6

> hits of Oxycontin that my mom had left over from her broken wrist

> script... I took one every mornng and it kept me mostly pain free

all

> day...boy I wish my doc would script me some of those lttle

rascals...iI

> could go to work sometimes..as it is the two little jobs I have

now are

> taking a toll burt I should be ok by next week when I see both my

gastro

> and oncologist... (on 9/11 no less)

> The Cleveland Clinic called me and they are starting to monitor my

blood

> sugar more closely because it was 204 last draw! That's allI need

is

> diabetes....sh*t.

>

> Anyway ... I must get to sleep...PLEASE all of you be well and

take care

> of yourselves... espec. Tony and Patty (and any one else who is

having

> problems I'm not aware of yet)

>

> I LOVE YOU ALL!!!

>

> jerry

>

> I should be back to my usual self next week.....fair warning.

I'll ty

> to answer those personal emails that I know of...so forgive me ..

[Guest guest]

No one ever knows the right words to say. But I am so very sorry for

what you and your family have gone through.

Take care,

Katrina :-)

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and

after 6

> surgeries to remove them, radiation (chemo wouldn't touch them)

she

> lost the battle on May 7th. I am deeply saddened by my loss, as

she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone

who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than

I

> did on my own problems. I pray she is at peace in heaven now,

free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and

one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a

back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out

too

> be sciatic nerve problems that I will live with the rest of my

life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP

the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB

about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and

another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

No one ever knows the right words to say. But I am so very sorry for

what you and your family have gone through.

Take care,

Katrina :-)

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and

after 6

> surgeries to remove them, radiation (chemo wouldn't touch them)

she

> lost the battle on May 7th. I am deeply saddened by my loss, as

she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone

who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than

I

> did on my own problems. I pray she is at peace in heaven now,

free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and

one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a

back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out

too

> be sciatic nerve problems that I will live with the rest of my

life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP

the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB

about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and

another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

No one ever knows the right words to say. But I am so very sorry for

what you and your family have gone through.

Take care,

Katrina :-)

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and

after 6

> surgeries to remove them, radiation (chemo wouldn't touch them)

she

> lost the battle on May 7th. I am deeply saddened by my loss, as

she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone

who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than

I

> did on my own problems. I pray she is at peace in heaven now,

free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and

one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a

back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out

too

> be sciatic nerve problems that I will live with the rest of my

life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP

the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB

about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and

another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

Sharon, I'm so sorry for your loss. It sounds as though the doctors

were not as helpful as they could have been. It is very noble of you

to spread the word. All people in pain need an advocate that can

speak up for them and they, like you said, also need to find the

words to speak up for themselves. This is a lesson I am learning and

the support of your group has been exceptional. This group helps so

many of us; I hope that we can also in return help you in your time

of grief. Please keep in touch. We all wish you the best.

-a

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and after

6

> surgeries to remove them, radiation (chemo wouldn't touch them) she

> lost the battle on May 7th. I am deeply saddened by my loss, as she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than I

> did on my own problems. I pray she is at peace in heaven now, free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out too

> be sciatic nerve problems that I will live with the rest of my life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

Sharon, I'm so sorry for your loss. It sounds as though the doctors

were not as helpful as they could have been. It is very noble of you

to spread the word. All people in pain need an advocate that can

speak up for them and they, like you said, also need to find the

words to speak up for themselves. This is a lesson I am learning and

the support of your group has been exceptional. This group helps so

many of us; I hope that we can also in return help you in your time

of grief. Please keep in touch. We all wish you the best.

-a

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and after

6

> surgeries to remove them, radiation (chemo wouldn't touch them) she

> lost the battle on May 7th. I am deeply saddened by my loss, as she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than I

> did on my own problems. I pray she is at peace in heaven now, free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out too

> be sciatic nerve problems that I will live with the rest of my life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

Sharon, I'm so sorry for your loss. It sounds as though the doctors

were not as helpful as they could have been. It is very noble of you

to spread the word. All people in pain need an advocate that can

speak up for them and they, like you said, also need to find the

words to speak up for themselves. This is a lesson I am learning and

the support of your group has been exceptional. This group helps so

many of us; I hope that we can also in return help you in your time

of grief. Please keep in touch. We all wish you the best.

-a

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and after

6

> surgeries to remove them, radiation (chemo wouldn't touch them) she

> lost the battle on May 7th. I am deeply saddened by my loss, as she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than I

> did on my own problems. I pray she is at peace in heaven now, free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out too

> be sciatic nerve problems that I will live with the rest of my life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

Thanks so much Jenn. I really appreciate it hugz Sharon

> Sharon, I am so very sorry for your loss. You and your family are

in my thoughts.

> Jenn

>

>

[Guest guest]

Thanks so much Jenn. I really appreciate it hugz Sharon

> Sharon, I am so very sorry for your loss. You and your family are

in my thoughts.

> Jenn

>

>

[Guest guest]

Thanks so much Jenn. I really appreciate it hugz Sharon

> Sharon, I am so very sorry for your loss. You and your family are

in my thoughts.

> Jenn

>

>

[Guest guest]

-Thank you Katrina, at times like this friends help so much. Thanks

again hugz Sharon

-- In neck pain , " sweettoobeme "

<sweettoobeme@y...> wrote:

> No one ever knows the right words to say. But I am so very sorry

for

> what you and your family have gone through.

> Take care,

> Katrina :-)

>

[Guest guest]

-Thank you Katrina, at times like this friends help so much. Thanks

again hugz Sharon

-- In neck pain , " sweettoobeme "

<sweettoobeme@y...> wrote:

> No one ever knows the right words to say. But I am so very sorry

for

> what you and your family have gone through.

> Take care,

> Katrina :-)

>

[Guest guest]

-Thank you Katrina, at times like this friends help so much. Thanks

again hugz Sharon

-- In neck pain , " sweettoobeme "

<sweettoobeme@y...> wrote:

> No one ever knows the right words to say. But I am so very sorry

for

> what you and your family have gone through.

> Take care,

> Katrina :-)

>

[Guest guest]

Sharon I am so sorry to here about your sister.

My prayers goes out to your family. I pray for peace and

understanding during this time.

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and

after 6

> surgeries to remove them, radiation (chemo wouldn't touch them)

she

> lost the battle on May 7th. I am deeply saddened by my loss, as

she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone

who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than

I

> did on my own problems. I pray she is at peace in heaven now,

free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and

one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a

back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out

too

> be sciatic nerve problems that I will live with the rest of my

life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP

the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB

about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and

another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

Sharon I am so sorry to here about your sister.

My prayers goes out to your family. I pray for peace and

understanding during this time.

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and

after 6

> surgeries to remove them, radiation (chemo wouldn't touch them)

she

> lost the battle on May 7th. I am deeply saddened by my loss, as

she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone

who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than

I

> did on my own problems. I pray she is at peace in heaven now,

free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and

one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a

back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out

too

> be sciatic nerve problems that I will live with the rest of my

life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP

the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB

about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and

another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

Sharon I am so sorry to here about your sister.

My prayers goes out to your family. I pray for peace and

understanding during this time.

> Hello too everyone. As most of you know I started this group as a

> place for all of us too come and get support with our pain. I also

> had another reason, my sister. For the last 4 1/2 yrs as I have

> fought neck and back pain and several surgeries, she has fought

even

> more. Somehow she ended up with brain tumors on her spine and

after 6

> surgeries to remove them, radiation (chemo wouldn't touch them)

she

> lost the battle on May 7th. I am deeply saddened by my loss, as

she

> was way too young to die. But at the time of her death she was

> paralyzed completely and in a horrible amount of pain. She could

not

> even breathe on her own as one of the returning tumors was cutting

> off her ability to breathe on her own Last weekend was her

funeral

> and it was really hard for me but I know she was at peace now. The

> chance of getting these tumors on your spine is one in several

> millions, the cases are so rare they had no idea how too treat

them.

> Obviously all their efforts failed as the tumors returned time and

> time again too cripple her completely. I feel deeply for anyone

who

> may get these tumors and their families it is a long hard road of

> endless hopes and prayers. I have decided that what better way too

> honor my sister than too dedicate this group too her. I know she

was

> very interested in the group asking me all the time about how

people

> were doing here. And of course I did more research on tumors than

I

> did on my own problems. I pray she is at peace in heaven now,

free

> from the pain she was in. Leaving not only her husband but 3

> wonderful boys, two seniors going off too college next fall and

one

> still in high school. Prayers for them would be appreciated, they

> face a long road ahead still, without their Mom who they deeply

> loved. Sorry for the long note today, but it is important to me

that

> people know what can happen too them, not only could pain be a

back

> problem it could be much much more. The dr's first thought she had

> carpal tunnel in her hands, then when her feet and legs got numb

> within two weeks time, they decided an MRI was needed asap. But

then

> the dr's told me I might have a broken leg at first when my

problems

> started (I had pain in my ankle and lower leg) which turned out

too

> be sciatic nerve problems that I will live with the rest of my

life

> it seems. So please tell your dr EVERYTHING you notice about what

> hurts and things that you feel, LOOK STUFF UP on your own, HELP

the

> dr's treat you, so you KNOW what is going on. DON'T PLAY DUMB

about

> your pain, only YOU can help yourself. If a dr

> doesn't listen too you or blows you off, go see another and

another

> if you have too. YOU know your body and YOU KNow what feels wrong

> with it. DON't take NO for an answer if you don't feel the dr. is

> right. YOU have too FIGHT For YOU!!!!!!!!! In this day and age of

> healthcare dr's see 4-6 patients and hour, how much can they learn

in

> 10 min about you????????? Think about it...........

> My prayers too all for a good week and as painfree as possible.

Sharon

[Guest guest]

-Hello n thanks so much for caring it really helps knowing that

others care. I am so sorry too hear about your pain, has your dr got

you on nuerotin??? As a rule we don't discuss meds here but I have

been thinking about that and I think if we just limit that too the

narcotics and pain meds it would be ok. I mean I know we all take a

heck of alot more than that unfortunately. Anyway its a really good

med for nerve pain, it actually helps block the pain. Also you might

be a canidate for a transplant like I got so you might look into

that. The implant blocks the nerve pain at the nerve root so most of

it doesn't get too your leg. It isn't perfect but it sure has got me

at least walking again. Before I had it in dec I could not even leave

the house and I pretty much had too stay on one level, forget stairs

they were terrible. If you'd like too write me and discuss all this

please do I hope I can be of some help. Take care I know its not easy

when the pain is so severe I'll keep you in my prayers. Hugz Sharon

p.s. I got a puppy to cheer me up and geez it was too much work, we

should have gotten another cat the puppy is now 8 months and 75 lbs,

I can barely walk her she is so huge. What a great small house dog I

adopted, she was supposed too be UNDER 50 lbs HA!!!!!!! I think

someone misread the breed mix at the adoption agency.

-- In neck pain , n Pace <kehla59@y...>

wrote:

> Sharon, I just opened my e-mail and i'm so very sorry 4 your lost.

I'm lost 4 words but if i could be there for support at anytime 4 u

and your family not a problem. Take care and stay strong. I had a

tough weekend my sister went in 4 a surgery 2 have a tumor and sist

removed,my son had a tumor 2 removed,and a very good friend 4 many

years a police killed himself!! Plus the fact my back is getting

worst pain is now traveling down my legs and i cry so hard in pain,

all i would like right now is one full day without pain. I know this

is not possible cause it's been many years with pain. I have been

going for the acturpuncture now 4 1 1/2 months and the pain has

gotten really bad it's now going down my legs. i have to go to my

surgerion but i'm affraid he will say surgery! I had my 3rd back

surgery oct 11,03 plus two bunions removed from my foot. i'll keep

you all posted. I've been so busy and with the verus i'm affraid to

pick up any e-mails. My husband just got me a puppy 10 weeks

> old and Bella is alot of work i can't get anything done of my own

such as this. take care. marian

>

>