fatigue

August 31, 2001

I found that going to the chiropractor for moist heat deep massage works

much better than a TENS unit. I have them put it up to the maximum pain I

can stand and after a few minutes it feels like Heaven. It's effects seem

to last me several days. A lot of insurances are now starting to cover

chiropractors. Give it a try, it's very liver friendly.

Debbie (Tommy's Mom)

> [Original Message]

> From: <echoes_in_eternity@...>

> < >

> Date: 8/31/01 5:29:18 PM

> Subject: [ ] Re: fatigue

>

> Hello Salem,

>

> I have terrible pain as well. More in my joints. In my knees,

> back,

> wrists, ankles, elbows...you name it, it hurts. I can't really take

>

> any pain medication as my liver can't handle it so I have to make do

>

> with a TENS machine but it only works so much and you can imagine

> how

> long I need to use it for when I use it on all my joints! Its

> gotten

> so bad my parents have had to put banisters in and a bathrail and

> bathchair in the bathroom. I'm like a crippled old woman and I'm

> only 18! You're right though, its terribly frustrating. AIH is

> just

> not fun at all and my doctor said I was " lucky " that it was AIH!

> Ha!

>

> Take care.

> Lynne Clacher.

> http://www.angelfire.com/rnb/aih - AIH Support

>

> > I have the same problem, can't sleep at night. I fall asleep,

> then

> wake up

> > every 2 hrs or so. Then it is hard to get up in the morning to do

>

> anything.

> > I take alot of Vitamins, directics, and lactulose. I get very

> weak

> in the

> > afternoon and very tired. My legs bother me at night and I

> sometimes itch

> > for no apparent reason. I have also noticed since I was diagnosed

> with

> > cirhosis, that my eyes get very tired, red and dry. I wear

> contacts. I

> > can't sit too long or bend down lately, because my back and legs

> and feet

> > hurt. My doctor had said I have little muscle in the palms of my

> hands and

> > feet.. I need to work, which I haven't since diagnosed, but don't

>

> know if I

> > can make it thru even 5 hrs. a day. It really is very

> frustrating,

> I can't

> > do alot of things I used to, especially anything like exercise.

> Anyone with

> > similar effects?

>

September 7, 2001

what exactly is usodial?

September 10, 2001

What is COPD?

September 11, 2001

COPD (Chronic Obstructive Pulmonary Disease) also called COLD (Chronic

Obstructive Lung Disease).

It is a persistent obstruction of the bronchial air flow. Asthma, chronic

bronchitis and chronic pulmonary emphysema are the diseases usually

associated with it. However other lung diseases may result in this condition.

Straight from my medical dictionary hope it helps.

Lori ('s Mom)

September 11, 2001

Thanks for the info!!!!

September 11, 2001

Hi Lori,

You dictionary is correct. I have COPD as well as a liver condition. Never

quite sure which is causing the fatigue!

Shireen

>From: Lorcan4@...

>Reply-

>

>Subject: Re: [ ] Re: fatigue

>Date: Tue, 11 Sep 2001 09:20:38 EDT

>

>COPD (Chronic Obstructive Pulmonary Disease) also called COLD (Chronic

>Obstructive Lung Disease).

>

>It is a persistent obstruction of the bronchial air flow. Asthma, chronic

>bronchitis and chronic pulmonary emphysema are the diseases usually

>associated with it. However other lung diseases may result in this

>condition.

>

>Straight from my medical dictionary hope it helps.

>

>Lori ('s Mom)

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October 24, 2001

hello Patty,

i just read your post and i have the same problem with fatigue. Mine has not gotten any better in 2 yrs. and I can't seem to find out from my doctor if there is anything that might help.just wondering if any doctors have told you about any meds or vitamins or herbs that may help.

Greg

Houston, TX

October 24, 2001

Hi Carl,

I have wondered that same thing. I cant beleive how much we can

change from one day to the next health wise. I also go through that

and my levels are good and have been good for at least 6 months now.

I wish the Dr. would understand my fatigue. Half the time I should

blame him for making me feel like a hypocondriac (spelling) I didnt

even know that what I was feeling was what everyone else with AIH was

feeling until I joined this group. Thanks.

Patty

AIH 98

AK

November 9, 2001

In a message dated 11/8/01 11:21:06 PM Pacific Standard Time, MadderGlo@... writes:

Hello Everyone:

Tell me when you tell your doctor that you feel very fatigued does he or she look at you like you are crazy and tell you it is not due to the liver disease it must be due to something else? I know there are times that I can hardly move and I have found out that I must listen to what my body tells me now.

Gloria

AIH 9/01

Oh, yeah.

Harper

November 9, 2001

Hello Everyone:

Tell me when you tell your doctor that you feel very fatigued does he or she

look at you like you are crazy and tell you it is not due to the liver

disease it must be due to something else? I know there are times that I can

hardly move and I have found out that I must listen to what my body tells me

now.

Gloria

AIH 9/01

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June 30, 2002

Larry,

The issue of dealing with fatigue is a troublesome one. There are

no easy answers, but I'll try a few suggestions.

1. Schedule your day to accomodate your fatigue. Are you aware of

your own body's daily cycle? I understand that the fatigue is

there all the time, but at what times of the day is it harder for

you to cope with the overwhelming kind of fatigue that stops you

dead in your tracks?

If you are aware that, let's say, everyday at 1 PM you " crash " you

may be able to schedule your lunch hour and take a nap in your car,

your office, or sitting in a back booth in a restaurant with a cool

drink and a serving of fruit so it looks like you're just taking a

long lunch. If you have an office where you can close the door,

lay down, on the floor if you have to, elevate your feet and legs,

and take 40 winks. Set a clock so you won't oversleep and be

discovered by a co-worker. Hang a sign that says you're out, and

turn off the phone.

When teaching school the last two hours were the toughest for me.

My body wanted to shut down around 1 PM, but school wasn't out

until after 3 PM. Then, providing there were no teachers'

meetings, I'd go home and go to bed for a couple of hours before

fixing dinner for my children. It wasn't the best thing I could do

for my kids, but it did allow me to function in the evening,

especially when our youngest was an infant and a toddler.

I finally had to give up teaching some eight years ago because I

couldn't control the fatigue attacks, or stand as much as was

necessary, let alone walk those long corridors with Achilles

tendonitis, and plantar fascitis, plus the inevitably swollen left

knee after a few hours on my feet. I tried to substitute teach for

several years, but the same problems finally caused me to end that

endeavor also.

2. If you can't take a rest, get a cool refreshing fruit smoothie

or similar drink and relax while you drink it. " Power bars " or

Coffee work for some folks to raise your level of ability in

dealing with the fog, but I seldom used them after morning hours.

3. Chronic pain can cause sleep disturbances that will result in

chronic fatigue. Be sure you discuss sleep problems with your

doctors. You must get enough Delta or Stage 4 sleep in order to be

alert and avoid fatigue the next day. Chronic pain patients seldom

get enough deep sleep without some kind of sleeping aid. Small

amounts of an antidepressant like Trazodone 25 to 50 mg will

sustain deep sleep after you get to sleep. Of course, the

medication you try will have side-effects, so you may have to

experiment with a few to find one that works. Elavil left me with

a humdinger of a hangover, so I had to move on to other meds. A

sleep inducer like Ambien or Soma may be needed if you have

difficulty getting to sleep. You may need to undergo a sleep study

in a sleep lab at a hospital to pinpoint those treatments that

would best work for you. Some people have found 25 to 50 mg of

Benadryl, an antihistamine available at most pharmacies over the

counter, actually on the shelf with the cold remedies, can help,

but it does have side effects like dry mouth and can leave many

with a hangover. It's worth a try.

3. Depending upon your employment situation see if you can adjust

your work schedule. Start earlier in the day, or later, depending,

again upon your own body rhythms.

4. Take advantage of any situation where you can rest, even if it

is just sitting with your feet propped up while you read files or

work on the computer.

Ray

July 1, 2002

Moderator's note: The content of a previous message was removed.

Re: Fatigue

For stamina, try Noni juice, at least 2 ounces a day, preferably

4 - 2ounces in morning on empty stomach, 2 ounces at night on empty

stomach. after 2 months of that, you can try 3 ounces a day for a

montrh, then 2 ounces a day for a month, then one or 2 ounces a day

for as long as you see fit, as a maitenance does. Books on Noni by

Dr. Neil are reportedly very good. Noni is expensive, but

helped me when I could afford it, at 2 ounces a day. 4 ounces would

have been better.

December 19, 2002

Hi Amy - I've had medical insurance for years but my insurance co will no

longer give me travel insurance since dx AIH. I dont think its the condition

so much, they didnt like the cocktail of meds I was taking especially

prednisone.

Jan

[ ] Fatigue

> I have been hearing about fatigue from everyone. I have been

> experiencing it for over a year now. I found out last year -

> actually about Dec. 28th last year- that my enzymes were elevated.

> I just found out about 4 weeks ago of my diagnosis. I am(well was)

> a traveling nurse and have been working full time traveling around

> the country working in hospitals and I felt tired but still worked

> full time. Now that I found out my diagnosis and had my liver

> biopsy all of a sudden I am exhausted all the time. I keep

> saying " it is all in my head, you did fine throughout the year, so

> why now are you so tired. " I wish I new but some days it is just

> hard to get around.

>

> I had to quit my job as a travel nurse and now moved back into my

> parents home to get a job and back on my feet again so that I can be

> followed by a doctor instead of going from one to the other. I am

> wondering, has anyone had a lot of problems getting coverage from

> insurance providers with this AIH due to a pre-existing condition?

>

> Amy

>

December 19, 2002

>

> From: " amyrn762001 <amyrn76@...> " <amyrn76@...>

> Date: Thu 19/Dec/2002 02:31 GMT

>

> Subject: [ ] Fatigue