Guest guest Posted January 4, 1980 Report Share Posted January 4, 1980 Hi, My husband Vinny takes 800 mgs of motrin whenever he takes his shots. So far no problems...the doc said it was okay. Carolee ---------- From: Jeanie [sMTP:quinlyn1@...] Sent: Monday, January 03, 2000 1:32 AM Hepatitis Conelist Subject: Re: Fatigue Hi Tree, I don't know for sure if Ritalin is liver friendly, but I would assume it to be, or as you stated, the doctor wouldn't prescribe it. We know that Tylenol is not liver friendly, but can anyone tell me about aspirin or Ibuprofen? Pat suffers from many backaches, and one of his doctors say they are OK and the other says no. I do wish they would get together on what they tell us. Jeanie --- TreeSkinnr@... wrote: > Yes, Ritalin is what is prescribed for ADD. On > children, it has the opposite > effect as it does on adults I understand. The > fatigue for my husband was > there before the Prozac and we attributed the > exhaustion and sleeping 20 > hours a day to depression. But he's not depressed > anymore (not much anyway), > and he still can't get enough sleep. Is Ritalin > liver friendly? I guess it > is or your doctor would not have prescribed it. > Tree > <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1998 Report Share Posted February 3, 1998 Hello Aisha! Good luck with your new venture in life. I certainly hope everything you do & try, that you will succeed!! Sometimes I wish I could get a little more energy so I can run & play with my boys. Take care & Hang in there. We'll keep you in our thoughts & prayers!! Barb : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 1999 Report Share Posted January 2, 1999 My husband has a problem with fatigue and sometimes indigestion. The fatigue has been a problem for many years. Carol Fatigue >From: TreeSkinnr@... > >My husband was diagnosed about 4 years ago. He's taking 210 mg of milk >thistle daily and 40 mg of Prozac. If left alone, he could sleep at least 20 >hours a day. I mean that literally too. He often has indigestion too. Does >anyone else feel this way? Tree > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 1999 Report Share Posted July 23, 1999 Lynn, I've always had a lot of energy. It drove me crazy when I first had problems with fatigue. I'd lie in bed and fantasize about major projects I wanted to tackle but couldn't. When things started " hitting the fan " for us in 1996, it was just about tax time. My husband had his heart attack, I had a hysterectomy, he had to have surgery for lung cancer and our son with ALS was living with us. I filed for an extension on our taxes and forgot about the from then on. In 1997, I had a repeat surgery to repair damage from the first, Bob had back surgery and his compassionate employer laid him off (he's an engineer.) All of this right around 1997 tax time. Two years and no taxes filed. I didn't know I was getting very sick with AIH and basically did all the packing and coordinating of our move to Las Vegas. Three months later I was in the hospital with liver failure and by then I'd forgotten the IRS existed. Reason I mention this is because at midnight last night I started working on all of those back taxes and I wouldn't let up for almost four hours. I had about 5 hours sleep last night and my energy gave my poor hubby insomnia. Right now he's snoozing and I'm still up and at it, though we did go out to dinner and I pushed the wheelchair, then did the shopping I mentioned and came home and put things away. I thnk that I probably drive myself beyond my physical capabilities, but it's my nature to be this way. I also was exceptionally active during pregnancy. I never gained more than 20 lbs. each time I was pregnant and usually could wear my same old clothes home from the hospital. My mother's sisters are all the same way I am so maybe it's a genetic thing? If you're feeling more fatigue now and nothing else has changed (like your meds) maybe something else is going on? Remember, if you have one autoimmune disease, the likelihood of developing another one or two or more are greater. But there's also the emotional factor. Just the knowledge that you have a potentially very dangerous condition could increase fatigue. Does your doctor know that you're having problems, and what does he say? My understanding of remission is that you aren't cured or anything miraculous like that. My liver is still damaged and though some people say that regeneration is possible, I haven't heard that it can return from cirrhosis to a healthy liver. However, my labs have been stable and not alarming for a long time. Certain elevations are always there. My GGTP is always high. Segmented neutrophils are always elevated though I don't know what that means if anything. My glucose and cholesterol are always elevated except when I have a fasting test. Then they are normal. My WBC is usually high and my prothrombin time is always right at the border for being too long. Sometimes lymphocytes are low and segmented neutrophils are high Also MCV. I don't know what most of these mean, if anything, and none of them are ever alarmingly high. These are the labs that my doctors view as indicating remission. Mine dropped steadily into normal ranges over a five month period and have been fairly stable ever since. The only problems I have are the ongoing, undiagnosed left-sided pain and side effects from Prednisone. If I weren't taking tons of diuretics, my feet would probably look like basketballs. I also don't lose weight despite being down to 5 mgs. of pred for a few months and despite the fact that I don't eat all that much. I'm still retaining fluid and that's obvious. My liver is, after all, not functioning properly. But it's not getting worse either. Both Hepatologists seem convinced that my remission will be permanent. I'm guessing it's because of my excellent response to Imuran and Prednisone and the pattern of my lab returns to nearly normal. I really hope they're right. I've got things to do and places to go! Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 1999 Report Share Posted August 11, 1999 Janelle, I had soooo much fatigue before I was diagnosed and put on Imuran, that is one reason I went to the Dr. was because I was tired of it! For me I really fell the Imuran is no part of it. Lynn AIH Janelle Asplund wrote: > From: Janelle Asplund <jasplund@...> > > Has anyone else's doctor suggested a relation between Imuran and fatigue? I > was complaining to my GI about how darn tired I am all the time, and said > something to the effect of, " I guess it's just something I'll have to get > used to, " since fatigue and liver disease go hand in hand. But he seems to > think that since my levels look good, I should be feeling more energetic, > and suggested that maybe the fatigue has to do with the Imuran. I do > remember that 3 days after I went on it, I felt sooooper doooooper tired, > although fatigue was also one of the first symptoms of my AIH before I > started any meds. So confusing... > > Janelle AIH > Seattle > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 At 15:16 11/08/99 -0700, you wrote: >From: Lynn <CEN32195@...> > >Janelle, I had soooo much fatigue before I was diagnosed and put on Imuran, >that is one reason I went to the Dr. was because I was tired of it! For me I >really fell the Imuran is no part of it. Lynn AIH 88888888888888888888888888888888888888888888888888888888888888888888888888888 Dear Janelle, I have been researching the question of Fatigue in health and in autoimmune diseases when I have a little time It seems a lot is written but not much in the way explanination. If your " doctor " is a doctor, he could say a lot more than " I guess it's just something you will have to get used to, " . Is he ignorant of any explanition or is he showing contempt for your intelligence. The possible reason for his stupid statement is that he will not take the time for you, since he wants to cycle as many patients as possibile to collect as much mony as possible. In any case he does not deserve you as a patient. His favorit word seems to be " maybe " . Medicine is an art and a science. He does not seem to grasp either. Why is he posing as a professional? Need I say more? Regards, Albert >Janelle Asplund wrote: > >> From: Janelle Asplund <jasplund@...> >> >> Has anyone else's doctor suggested a relation between Imuran and fatigue? I >> was complaining to my GI about how darn tired I am all the time, and said >> something to the effect of, " I guess it's just something I'll have to get >> used to, " since fatigue and liver disease go hand in hand. But he seems to >> think that since my levels look good, I should be feeling more energetic, >> and suggested that maybe the fatigue has to do with the Imuran. I do >> remember that 3 days after I went on it, I felt sooooper doooooper tired, >> although fatigue was also one of the first symptoms of my AIH before I >> started any meds. So confusing... >> >> Janelle AIH >> Seattle >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 Janelle, my son is on 100 mg imuran a day and has 4 times the energy that i ever had or will have. don't think that has anything to do with the fatigue. maybe increasing your exercise will help you increase your energy in the long run. hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 Doctors either baffle you with bullshit or try to scare you out of wanting testing done. Arrogance = stupidity coupled with a misguided sense of superiority. Jody --- " Albert J. Bentley " <jordent@...> wrote: > From: " Albert J. Bentley " <jordent@...> > > At 15:16 11/08/99 -0700, you wrote: > >From: Lynn <CEN32195@...> > > > >Janelle, I had soooo much fatigue before I was > diagnosed and put on Imuran, > >that is one reason I went to the Dr. was because I > was tired of it! For me I > >really fell the Imuran is no part of it. Lynn AIH > 88888888888888888888888888888888888888888888888888888888888888888888888888888 > Dear Janelle, I have been researching the question > of Fatigue in health and > in > autoimmune diseases when I have a little time It > seems a lot is written but > not > much in the way explanination. If your " doctor " is a > doctor, he could say a > lot > more than " I guess it's just something you will have > to get used to, " . Is > he ignorant > of any explanition or is he showing contempt for > your intelligence. The > possible > reason for his stupid statement is that he will not > take the time for you, > since he > wants to cycle as many patients as possibile to > collect as much mony as > possible. > In any case he does not deserve you as a patient. > His favorit word seems to be " maybe " . Medicine is an > art and a science. He > does not > seem to grasp either. Why is he posing as a > professional? Need I say more? > Regards, Albert > > >Janelle Asplund wrote: > > > >> From: Janelle Asplund <jasplund@...> > >> > >> Has anyone else's doctor suggested a relation > between Imuran and fatigue? I > >> was complaining to my GI about how darn tired I > am all the time, and said > >> something to the effect of, " I guess it's just > something I'll have to get > >> used to, " since fatigue and liver disease go hand > in hand. But he seems to > >> think that since my levels look good, I should be > feeling more energetic, > >> and suggested that maybe the fatigue has to do > with the Imuran. I do > >> remember that 3 days after I went on it, I felt > sooooper doooooper tired, > >> although fatigue was also one of the first > symptoms of my AIH before I > >> started any meds. So confusing... > >> > >> Janelle AIH > >> Seattle > >> > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 Jody and Albert, There's an interesting editorial/article in this week's Newsweek about one woman's experience with HMO doctors and care. After more than 16 months of medical incompetence and indifference she finally traveled from California to Mayo Clinic in Minnesota, where the problem was finally resolved. I've followed the changes in medical care in the US during the past 10 years and could write a book about them. It would be a horror story. A friend's husband is an Endocrinologist in NY and he refuses to become a preferred provider with any HMO or PPO. It reduced his income at first but in time, he built it back up and is doing very well, treating people who would rather pay for good medical care than accept mediocre or worse care. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 1999 Report Share Posted September 5, 1999 Hi Athie I have the same dilma as yourself regarding fatigue. My LFT's have been normal for about a year now, but i still experience fatigue, and a feeling of unwellness. I thought it might be that i have some liver damage, or perhaps the medication i take could be the cause. My doctor doesn't seem to be disturbed at all, as long as the fatigue is not extreem. I will have to pin him down on this one next time i see him. Take Care AIH Melbourne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Good Morning Geri.. I agree it is puzzling they don't give me immunosuppressive drugs. My cardiologist is the one who thinks they would cause more problems then they are doing good. I have had a silent heart attack, have high blood pressure, AIH, PBC. But I after all I am seeing that can be done, this old broad (LOL) is going to get some answers. I am demanding to see a Hepatologist, if my doctor has a problem with that, he can take it up with my attorney. I am at this point now. I do know doctors hate to do referals. My family doctors wife/office manager refused a Thaluim Stress Test ordered by my Cardiologist. One phone call to My Attorney and the test was ordered and done the same day. So I have no problem going one on one with anyone where my life is concerned. AND PLEASE UNDERSTAND I HAVE NEVER SUED ANYONE IN MY LIFE. And Geri, he he he, please don't be offended by this...but I have 2 Life Challanging diseases. I like to think positive. Have a good day, and remember...Laughter is the music of a happy heart, love is it's sustenance. Sooooo...laugh a lot, it is healing. Joan, AIH, PBC, HBP Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Joan, It really is puzzling that your doctors don't give you immunosuppressive drugs though they diagnose autoimmune diseases. But, there could be some other conditions that would make those drugs dangerous or wrong for you. If your labs are stable or have improved, whatever they're doing must be right. If they're getting worse and you're feeling worse, I'd certainly challenge their decisions or find other doctors! Stage I cirrhosis is good news - kind of. NO cirrhosis would be good news, but at least you still have some latitude. However, you don't want it to progress and without treatment, what can stop it? I had fatigue before I started taking meds for AIH but when I first started on mega doses of Prednisone, Imuran and diuretics the fatigue was incredible. I didn't know it was possible to feel that wiped out. I didn't care if I lived or died, ate or much of anything else. And with all that, sleep was impossible. My nephew, who was living with us at the time (he's same as our son) used to come to my bedroom doorway and look at me anxiously, I suspect to see if I was still alive. The poor kid really was affected by what was going on. Now, I wouldn't call my tiredness real fatigue. I just get tired more quickly and lack the energy I've always had. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 1999 Report Share Posted September 12, 1999 Joan, Maybe from a cardiologist's point of view the heart risk to you from taking immunosuppressants is too high, but a Hepatologist might see things differently. There is so much knowledge and so many options for heart disease and so little for autoimmune diseases, it's hard to believe it can be worth the risk to your liver, to keep you off immunosuppressants. Good for you, for fighting back when your " gatekeeper " decided that you didn't need a critical diagnostic test. The writing is on the wall for HMOs and for doctors who are forced to bend to their pressure. I feel badly for the doctor, but I have a friend whose husband is an Endocrinologist and he refuses to sign on with any HMOs. She says that it's hurt their income, but he can sleep at night, knowing that he is doing his best for his patients and doesn't have to answer to anyone but himself and his patients. Several times recently I've seen signs in different doctor's offices that state they no longer take certain HMOs. I always wonder if the HMO dropped the doctor or the doctor dropped the HMO. If a clinic or doctor orders too many expensive tests, I understand they risk being dropped by the HMO. My husband has Medicare now as well as on our private PPO from his job. Today we got a statement from Medicare and I noticed that they approved a higher percentage of the doctor's bill than our insurance company's contract rate with the doctor! Makes me wonder why anyone would have a problem finding a doctor who accepts Medicare patients. I confess that I have a very low opinion of the policies of most HMOs. I hope that legislation to bring them in line passes. It may be a matter of life or death for many of us. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Hi, My hubby does not suffer from fatigue the way that most HepC patients do, but only because he has a doctor who prescribes him a drug called Ritalin, which is a stimulant. When he doesn't have the stimulant he could easily sleep 20 hours per day too. If my memory serves me correctly, I can't remember him ever complaining of indigestion. --- TreeSkinnr@... wrote: > My husband was diagnosed about 4 years ago. He's > taking 210 mg of milk > thistle daily and 40 mg of Prozac. If left alone, > he could sleep at least 20 > hours a day. I mean that literally too. He often > has indigestion too. Does > anyone else feel this way? Tree __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Jeanie & Tree..... Because of my mitochondrial disorder which also can be a cause of extreme fatigue, it would be hard for me to differentiate between several causes for the fatigue. I have had indigestion for a long time and mentioned it as a significant problem to a GI doc in 1988. It comes and goes and at times is very uncomfortable. I have never taken Prozac, but I do know that many people sleep quite a bit when they are taking it. Have you asked the doc if there might be an alternative?? It is my understanding that high ammonia levels can also cause extreme sleepiness and sometimes indigestion.... Merril (who is having a liver ultrasound and Doppler early tomorrow...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 --- Merril <allennco@...> wrote: > Merril (who is having a liver ultrasound and Doppler > early tomorrow...) Hi Merril, Tomorrow must be THE day for HepC patients. Pat has a check up at the U. of M., which has us concerned. He just isn't feeling as well, or doing as well as he was a few months ago. I guess we'll just have to wait and see what last weeks blood tests show. You will be in prayers tonight (but then you are every night) that all goes well with you tomorrow. Please let me know.... Extra Special Hugs, Jeanie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2000 Report Share Posted January 2, 2000 Yes, Ritalin is what is prescribed for ADD. On children, it has the opposite effect as it does on adults I understand. The fatigue for my husband was there before the Prozac and we attributed the exhaustion and sleeping 20 hours a day to depression. But he's not depressed anymore (not much anyway), and he still can't get enough sleep. Is Ritalin liver friendly? I guess it is or your doctor would not have prescribed it. Tree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 Thanks, Jeanie, will get back to you later. Hope pat does unexpectedly well today.... HUGS to both of you... Merril Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 I know if I left my husband alone, he would sleep that much as well.. but I try to make him do something...he does have stomach problems, but I think most of them are due to taking so much medication. ine.... ============== > My husband was diagnosed about 4 years ago. He's taking 210 mg of milk > thistle daily and 40 mg of Prozac. If left alone, he could sleep at least 20 > hours a day. I mean that literally too. He often has indigestion too. Does > anyone else feel this way? Tree > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 HI Merril, I hope all goes well for you tomorrow, please let us know how it goes. HI Jeanie, I hope your hubby is going to be ok tomorrow too, it is such a big worry when they don't feel well, I hope it is just all the excitement of christmas and now he will return to normal.. let us know who he goes. cheers ine. ================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 hi Jeanie, Is Ritalin what they use for ADD? I know it probably has many uses, just like all the other medications, ine ========================= > Hi, > > My hubby does not suffer from fatigue the way that > most HepC patients do, but only because he has a > doctor who prescribes him a drug called Ritalin, which > is a stimulant. When he doesn't have the stimulant he > could easily sleep 20 hours per day too. > > If my memory serves me correctly, I can't remember him > ever complaining of indigestion. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 Hi Tree, I don't know for sure if Ritalin is liver friendly, but I would assume it to be, or as you stated, the doctor wouldn't prescribe it. We know that Tylenol is not liver friendly, but can anyone tell me about aspirin or Ibuprofen? Pat suffers from many backaches, and one of his doctors say they are OK and the other says no. I do wish they would get together on what they tell us. Jeanie --- TreeSkinnr@... wrote: > Yes, Ritalin is what is prescribed for ADD. On > children, it has the opposite > effect as it does on adults I understand. The > fatigue for my husband was > there before the Prozac and we attributed the > exhaustion and sleeping 20 > hours a day to depression. But he's not depressed > anymore (not much anyway), > and he still can't get enough sleep. Is Ritalin > liver friendly? I guess it > is or your doctor would not have prescribed it. > Tree > <HR> <html><!-- ONElist --> <center><a href= " http://adforce.imgis.com/?adlink|2.0|2|94685|1051|1|ADFORCE;loc=300; " target=_top><img src= " http://adforce.imgis.com/?adserv|2.0|2|94685|1051|1|ADFORCE;loc=300; " border=0 width=468 height=60><br><font size=1>Click Here</font></a></center> <!-- endONElist --> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 Yes ine. It is also used for narcolepsy, so I guess that's why the doctor gave it to him. Jeanie --- Tinkerbell <lilywhite@...> wrote: > hi Jeanie, > Is Ritalin what they use for ADD? I know it probably > has many uses, just > like all the other medications, > ine > ========================= > > > Hi, > > > > My hubby does not suffer from fatigue the way that > > most HepC patients do, but only because he has a > > doctor who prescribes him a drug called Ritalin, > which > > is a stimulant. When he doesn't have the > stimulant he > > could easily sleep 20 hours per day too. > > > > If my memory serves me correctly, I can't remember > him > > ever complaining of indigestion. > > > > > > > <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 Thanks ine. I appreciate your concern. I'd like to believe that his feeling bad is due to the holidays. That's just temporary, which would be a good thing. We'll be leaving for the hospital in about 1/2 hour so I will let you know what transpires when we get back. Jeanie --- Tinkerbell <lilywhite@...> wrote: > HI Merril, > I hope all goes well for you tomorrow, please let us > know how it goes. > > HI Jeanie, > I hope your hubby is going to be ok tomorrow too, it > is such a big worry > when they don't feel well, I hope it is just all the > excitement of christmas > and now he will return to normal.. let us know > who he goes. > > cheers > ine. > ================= > > <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 Yes I am new to the list and have been told aspirin and ibuprofen are liver friendly. Good luck. Shorty. Re: Fatigue >Hi Tree, > >I don't know for sure if Ritalin is liver friendly, >but I would assume it to be, or as you stated, the >doctor wouldn't prescribe it. > >We know that Tylenol is not liver friendly, but can >anyone tell me about aspirin or Ibuprofen? Pat >suffers from many backaches, and one of his doctors >say they are OK and the other says no. I do wish they >would get together on what they tell us. > >Jeanie > >--- TreeSkinnr@... wrote: >> Yes, Ritalin is what is prescribed for ADD. On >> children, it has the opposite >> effect as it does on adults I understand. The >> fatigue for my husband was >> there before the Prozac and we attributed the >> exhaustion and sleeping 20 >> hours a day to depression. But he's not depressed >> anymore (not much anyway), >> and he still can't get enough sleep. Is Ritalin >> liver friendly? I guess it >> is or your doctor would not have prescribed it. >> Tree >> ><HR> ><html> >> > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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