treatment

[Guest guest]

I have been on the treatment about 3 months

now.<br>What is it that is bothering you the most about the

treatment? Are you feeling better or worse than the 1st

couple months? My side effects are not bad at all, but I

really think alot of that has to do with the fact I get

as much rest as I can, a nap a day and go to bed by

9 or 10P.. if I get run down and tired or miss a

couple naps in a row..I start to feel a little achey and

pretty tired. If I get the rest and take it easy, I feel

fine. I am feeling better than the 1st couple

months..maybe getting used to it. I do have the WBC of 1.9

which is pretty low and that is about the worst of it

for me. good luck to you!

[Guest guest]

I have been on the treatment about 3 months

now.<br>What is it that is bothering you the most about the

treatment? Are you feeling better or worse than the 1st

couple months? My side effects are not bad at all, but I

really think alot of that has to do with the fact I get

as much rest as I can, a nap a day and go to bed by

9 or 10P.. if I get run down and tired or miss a

couple naps in a row..I start to feel a little achey and

pretty tired. If I get the rest and take it easy, I feel

fine. I am feeling better than the 1st couple

months..maybe getting used to it. I do have the WBC of 1.9

which is pretty low and that is about the worst of it

for me. good luck to you!

[Guest guest]

i have had alot of trouble sleeping and very tired all the time if anything i

think the side effects are worse i have been on the combo treatment for four

months now

[Guest guest]

i have had alot of trouble sleeping and very tired all the time if anything i

think the side effects are worse i have been on the combo treatment for four

months now

[Guest guest]

My sons started treatment when they were 16 and

19 and the side effects were really rough for both

of them the whole time (15 months and 6 months).

Will you be doing treatment for 6 months or a year? I

feel for you and wish there was something I could do.

[Guest guest]

My sons started treatment when they were 16 and

19 and the side effects were really rough for both

of them the whole time (15 months and 6 months).

Will you be doing treatment for 6 months or a year? I

feel for you and wish there was something I could do.

[Guest guest]

you are probably sick of hearing this

but....drink lots and lots of water, i cannot stress how

important this is and what a difference it makes in how you

feel. i was drinking up to 1 1/2 gallons a day!!! hang

in there. you are in my thoughts and

prayers.<br>debi

[Guest guest]

you are probably sick of hearing this

but....drink lots and lots of water, i cannot stress how

important this is and what a difference it makes in how you

feel. i was drinking up to 1 1/2 gallons a day!!! hang

in there. you are in my thoughts and

prayers.<br>debi

[Guest guest]

Yes, I responded now for almost 2.5 years now. However I was genotype 3a, and also was on high dose daily INF. Take care,

Les

[Guest guest]

Thanks for responding to me. May I ask, before your treatment was started, were you genotyped and did they do PCR quantatative tests (check how much virus was in your blood) periodically? May I also ask how it was determined that you be on high doses of interferon? Thanks so much.

Ruth Whiterwhite@...www.tnvacation.com>>> LEST2001@... 08/02/01 02:14PM >>>Yes, I responded now for almost 2.5 years now. However I was genotype 3a, and also was on high dose daily INF. Take care, Les

[Guest guest]

In a message dated 8/2/01 12:56:58 PM Pacific Daylight Time, rwhite@... writes:

Thanks for responding to me. May I ask, before your treatment was started, were you genotyped and did they do PCR quantatative tests (check how much virus was in your blood) periodically? May I also ask how it was determined that you be on high doses of interferon? Thanks so much.

Ruth White

Yes, to your first two questions, and I was no high doses of INF because I was in a clinical trial program to test how effective daily high dosing would work. Take care,

Les

[Guest guest]

Hey I just stop the treatments because I started to have trouble with my thyroid, kidneys and my heart. I never had any of these problems before. Just herbal medicine and diet now. I've had four live bios since I was told that I had Hepc.

[Guest guest]

In 1990 I was also in a clinical trial and was given the high dose at the Mayo clinic. It did not work and made me really sick now The Interferon and Rebetron is making me sick too.

[Guest guest]

I have genotype 3a also, yesterday my doc. offered me a liver biopsy leading

to treatment if I wanted to, as apparently genotype 3a responds well to it.

But I am apprehensive. I probably won't do it. But I would like to hear

from people who have been treated who have this genotype.

What were the side effects?

What were the risks?

How did you feel during treatment?

Do you consider that you were receiving correct dosages? ie not

overdosed.

How is your health now?

Do you consider there has been any detremental

damage to other parts of your body?

What else should I consider before going ahead?

Although I am not chronically ill, I do have to deal some horrible symptoms

of this dreaded thing as I know you all do. I would really like to be free

of it.

Thankyou

Robyn

_________________________________________________________________

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[Guest guest]

Here is another person's testimonial using Young Living oils who has

had success. If you want to know more don't hesitate to e-mail me.

I have been treating myself and others that have Hepatitis C with

tremendous results. One thing very important is to clean up the

diet. The liver is the filter, so avoid sugar, fatty food, alcohol,

pesticides, meat, and all processed foods. Stay with natural foods

and organic whenever possible.

I've been using the following oils for a couple years: juva

flex, immupower, rosemary verbanon,and release. I use these over my

liver and on the liver points on my foot and hand. Supplements are

very important to get the immune system in great working order. Milk

thistle is essential to help protect the liver.

I've been able to lower my viral load by 80% using the above

practices!! And others have also had very good success lowering the

liver enzymes as well as the viral load. Working with an educated MD

and a local support group is a big help. You can get this under

control. Love and Blessings,

Alana

WE DON'T DO PHARMACEUTICAL DRUGS - WE DO OILS (ESSENTIAL

THAT IS)!

______________________________________________

Get your FREE SkyBiz.com email at www.skybizworld.com !

[Guest guest]

The oil that I am taking is called hyssop. Plus the diet I agree clean up your liver.

[Guest guest]

I actually have only ever used herbs for Hep C. The offer of having

treatment was very tempting. But I am not going to I only wanted to find

out what happened with everyone else who has had the treatment. I know some

people have cleared the Hep C with treatment. But I don't think I am going

to risk it.

At them moment I am just testing out a new herb in my regime called Maca.

So far I am getting some exciting results.

I don't have the time right now but I will get back to you with some

information.

And also what MSM is doing for me as well as Spirulina and Green Barley

combo.

Robyn

_________________________________________________________________

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[Guest guest]

Hello,

In answer to Robyn's post about treating hepC

naturally I too deicided not to go the traditional

way and have had excellent results on a natural

program of herbs & antioxidents which include

something

called Microhydrin & Cyrstal Energy - I also swear

by MSM - love it!- and also take Spirulina daily and

make smoothies adding fresh fruit and spirulina

powder.

I'm having amazing results too - and getting better

and better. I'm a genotype 1a and I just don't like

the odds for us concerning INF TX.

Thats it for now.

Love,

=====

I said to a man who stood at the gate of the year;

" Give me a light that I may tread safely into the unknown. " And he replied, " Go

out into the darkness and put your hand in the hand of God. That shall be to

you better than a light and safer than a known way. "

http://alternativehopeforhepc.com

My RBC Website Address is: http://www.royal-health.com/473

__________________________________________________

[Guest guest]

Hi to all,

Just to let you know that essential oils are 80 times more powerful

than herbs without the toxic side effects. Also, when you are ill

(especially digestive problems, liver problems) your body cannot

assimilate herbs properly and they then store up and accumulate in

your tissues. This is when herbs become very toxic and can have

serious side effects. If you are taking herbs I would be very

careful - they may seem to work in the beginning but can cause

serious problems later. (I know of this in quite a few cases just in

my area where I live.)

WE DON'T DO PHARMACEUTICAL DRUGS - WE DO OILS (ESSENTIAL

THAT IS)!

______________________________________________

Get your FREE SkyBiz.com email at www.skybizworld.com !

[Guest guest]

I've also heard that your genotype responds well to treatment. Where do you live? How old are you? My husband did Rebetron treatment but we don't know what genotype he is. We feel that the doctors botched his treatment, but he is going to do treatment again this fall by a new doctor and we know more now than we did back in 1999. We believed what we were told. MISTAKE. I did the research and we're ready now. We found a doctor in KY and hopefully it will go better this time around. My husband has early cirrhosis, his liver biopsy showed and the new doctor said that is nothing to fool around with. Eventually HEP C will turn into cirrhosis, cancer, liver transplant. He will be doing the new treatment PEG and hopefully with much more supervision and knowledge than the first time. His side effects the first time were pretty bad at first, but he survived it. Flu-like symptoms, a rash developed and he was depressed and weak. He did it for 5 months and we quit ourselves. Again, we feel that it depends on the expertise of the doctor. Ours had none! Right now he feels okay. He does lawncare for a living and says he feels fine. He had no symptoms before he started treatment and he has none now. We just know that if we do nothing the cirrhosis will get worse and then it will be too late to try anything else. Keep checking around and then make your decision. Find some more peope with genotype 3a. Good luck to you.

Ruth Whiterwhite@...www.tnvacation.com>>> robynmb12@... 08/02/01 09:03PM >>> I have genotype 3a also, yesterday my doc. offered me a liver biopsy leading to treatment if I wanted to, as apparently genotype 3a responds well to it. But I am apprehensive. I probably won't do it. But I would like to hear from people who have been treated who have this genotype. What were the side effects? What were the risks? How did you feel during treatment? Do you consider that you were receiving correct dosages? ie not overdosed. How is your health now? Do you consider there has been any detremental damage to other parts of your body? What else should I consider before going ahead? Although I am not chronically ill, I do have to deal some horrible symptoms of this dreaded thing as I know you all do. I would really like to be free of it. Thankyou Robyn _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

This is my very first post. I treated with Rebetron and seem to have

responded well. I finished treatment in March and have one more month to

go. To date, the virus has gone undetected in blood work. It is my

understanding that if I still show no detection after 6 months, I go into

remission. I am from South Jersey and am treating with the head

hepatologist at the Hospital University of Pennsylvania in Philadelphia, PA.

>From: rwhite@...

>Reply-Hepatitis C

>Hepatitis C

>Subject: Treatment

>Date: Wed, 01 Aug 2001 19:52:41 -0000

>

>How many of you have been successfully treated for Hep C? I would

>appreciate if you would post and let me know. My husband is going to

>undergo treatment again, this time with PEG. He did Rebetron with no

>success. Has anyone been treated at the Hepatitis Treament Center in

>Louisville, KY by Dr. Cecil? Please respond. Thanks.

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

That's wonderful news! Thanks for responding. I am curious, did you do 3 shots a week and 6 pills a day? Were you genotyped and did you have a PCR Quantitative test done before treatment? How often did they do blood work on you? I appreciate your reply very much.

Ruth Whiterwhite@...www.tnvacation.com>>> mmartnez@... 08/09/01 08:36AM >>> This is my very first post. I treated with Rebetron and seem to have responded well. I finished treatment in March and have one more month to go. To date, the virus has gone undetected in blood work. It is my understanding that if I still show no detection after 6 months, I go into remission. I am from South Jersey and am treating with the head hepatologist at the Hospital University of Pennsylvania in Philadelphia, PA. >From: rwhite@... >Reply-Hepatitis C >Hepatitis C >Subject: Treatment >Date: Wed, 01 Aug 2001 19:52:41 -0000 > >How many of you have been successfully treated for Hep C? I would >appreciate if you would post and let me know. My husband is going to >undergo treatment again, this time with PEG. He did Rebetron with no >success. Has anyone been treated at the Hepatitis Treament Center in >Louisville, KY by Dr. Cecil? Please respond. Thanks. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi. I don't remember my genotype but I underwent Rebetron treatment.

Everyone responds differently to treatment so I can only share MY

experience, strength, and hope. I, too, was petrified about treatment

because I had heard some tremendous horror stories. I work and was afraid

that I would be too sick to continue so I was very apprehensive. However,

my liver biopsy showed that I had not had a lot of damage done yet, and I

had heard that the earlier you treat, the greater the chances of success. I

wanted to try ANYTHING, NOW before any more damage was done. I felt that

even if it didn't work, I had to try. Treatment was extremely difficult but

I kept telling myself, it's only temporary. I was also somewhat pleasantly

surprised. I would say the first two weeks were the roughest but throughout

the entire treatment, I struggled with many side effects, the most

devastating which was what the treatment did to me emotionally. I was like

a raving lunatic and anything would set me off. I also was extremely

over-emotional. As much as I fought it, I ended up having to go on a

antidepressant because I had no choice. It was really bad. Physically, at

intervals, I suffered from nausea, migraines, joint pains, fevers, loss of

apetite (which to me, was a good thing since I had put on weight I hadn't

been able to take off), fatigue, exhaustion. I became anemic during

treatment, and I also developed hypothyroidism (which I think was lurking

long before I started treatment and the treatment just triggered it -- which

also turned out to be a good thing). My skin was splotchy, my hair fell out

in handfuls and was as course as a brillo pad, I got painful sores on my

tongue often, I was as white as a ghost, and would get hot flashes and cold

sweats constantly. I also would get surging pains at the injection sites.

Despite it ALL, I was able to continue working, and the symptoms got better

as treatment went along. Emotionally I was dealing with some pretty heavy

duty things during that year of treatment as my father, right around the

same time I was diagnosed and started treatment, was diagnosed with cancer

and had undergone two surgeries and was down for the count. To top it off,

he was my mother's primary caregiver, for she has Alzheimer's, and we now

had TWO disabled parents to care for. I live 45 minutes from my job in one

direction, and approx. 40 minutes from my parents in a totally different

direction. During treatment, I had to work, care for my 6-year old child,

get involved in school, visit my father at the hospital, take on their

responsibilities, and physically care for both of them. On top of all THAT,

my husband and I had broken up and I was a total mess. Again, despite it

all, I responded well to treatment and even with all the hell I went

through, I refused to give up. I finished treatment in March and to date,

the virus has gone undetected. All those other symptoms have also left me,

and everything is pretty much back to normal.

I don't know if my story is helpful to you, but I just wanted to let you

know that there IS hope. I say, if you are not in bad shape now, why not

try and knock it out of the way before it does some serious damage?

I am, truly, a walking miracle and am eternally grateful to God for all I've

been given. You see, I am also a recovering addict and for some reason, I

have had many scrapes with death yet somehow God has seen to it that I live

to tell about it. I don't deserve it, but I sure am glad He's/She's done

it. If it can happen for me, it can happen for you.

Good luck!

>From: " robyn baker " <robynmb12@...>

>Reply-Hepatitis C

>Hepatitis C

>Subject: Re: Treatment

>Date: Fri, 03 Aug 2001 11:33:56 +0930

>

>

>I have genotype 3a also, yesterday my doc. offered me a liver biopsy

>leading

>to treatment if I wanted to, as apparently genotype 3a responds well to it.

>But I am apprehensive. I probably won't do it. But I would like to hear

>from people who have been treated who have this genotype.

>What were the side effects?

>What were the risks?

>How did you feel during treatment?

>Do you consider that you were receiving correct dosages? ie not

>overdosed.

>How is your health now?

>Do you consider there has been any detremental

>damage to other parts of your body?

>

>

>What else should I consider before going ahead?

>

>Although I am not chronically ill, I do have to deal some horrible symptoms

>of this dreaded thing as I know you all do. I would really like to be free

>of it.

>

>Thankyou

>

>Robyn

>

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

I'm not sure if you were replying to me or to robyn baker, she is the one who was very apprehensive to do treatment. I am the one who is interested in learning about other people experiences during treatment. My husband has Hep C and has gone through Rebetron once already without success and we are contemplating treatment again this time with a new doctor and PEG. My husband's biopsy showed early cirrhosis so we feel, as much as we hate it, that he needs to do something NOW. We both think that he may have been successful the first time if he had a competent doctor. This is why I am researching with your help to see how others who were successful at beating this thing were treated. Can you elaborate a little more on your treatment? How often they tested your blood? How often you had a PCR Quantitative test done to measure the levels of your virus. This would be extremely helpful to us. The bad doctor did none of this. He rarely did blood work and never did the PC Quant. Thanks for your input. You really went through quite an experience, you're are definitely a strong person. Thank you for sharing

Ruth Whiterwhite@...www.tnvacation.com.>>> mmartnez@... 08/09/01 09:04AM >>> Hi. I don't remember my genotype but I underwent Rebetron treatment. Everyone responds differently to treatment so I can only share MY experience, strength, and hope. I, too, was petrified about treatment because I had heard some tremendous horror stories. I work and was afraid that I would be too sick to continue so I was very apprehensive. However, my liver biopsy showed that I had not had a lot of damage done yet, and I had heard that the earlier you treat, the greater the chances of success. I wanted to try ANYTHING, NOW before any more damage was done. I felt that even if it didn't work, I had to try. Treatment was extremely difficult but I kept telling myself, it's only temporary. I was also somewhat pleasantly surprised. I would say the first two weeks were the roughest but throughout the entire treatment, I struggled with many side effects, the most devastating which was what the treatment did to me emotionally. I was like a raving lunatic and anything would set me off. I also was extremely over-emotional. As much as I fought it, I ended up having to go on a antidepressant because I had no choice. It was really bad. Physically, at intervals, I suffered from nausea, migraines, joint pains, fevers, loss of apetite (which to me, was a good thing since I had put on weight I hadn't been able to take off), fatigue, exhaustion. I became anemic during treatment, and I also developed hypothyroidism (which I think was lurking long before I started treatment and the treatment just triggered it -- which also turned out to be a good thing). My skin was splotchy, my hair fell out in handfuls and was as course as a brillo pad, I got painful sores on my tongue often, I was as white as a ghost, and would get hot flashes and cold sweats constantly. I also would get surging pains at the injection sites. Despite it ALL, I was able to continue working, and the symptoms got better as treatment went along. Emotionally I was dealing with some pretty heavy duty things during that year of treatment as my father, right around the same time I was diagnosed and started treatment, was diagnosed with cancer and had undergone two surgeries and was down for the count. To top it off, he was my mother's primary caregiver, for she has Alzheimer's, and we now had TWO disabled parents to care for. I live 45 minutes from my job in one direction, and approx. 40 minutes from my parents in a totally different direction. During treatment, I had to work, care for my 6-year old child, get involved in school, visit my father at the hospital, take on their responsibilities, and physically care for both of them. On top of all THAT, my husband and I had broken up and I was a total mess. Again, despite it all, I responded well to treatment and even with all the hell I went through, I refused to give up. I finished treatment in March and to date, the virus has gone undetected. All those other symptoms have also left me, and everything is pretty much back to normal. I don't know if my story is helpful to you, but I just wanted to let you know that there IS hope. I say, if you are not in bad shape now, why not try and knock it out of the way before it does some serious damage? I am, truly, a walking miracle and am eternally grateful to God for all I've been given. You see, I am also a recovering addict and for some reason, I have had many scrapes with death yet somehow God has seen to it that I live to tell about it. I don't deserve it, but I sure am glad He's/She's done it. If it can happen for me, it can happen for you. Good luck! >From: "robyn baker" < robynmb12@...> >Reply-Hepatitis C >Hepatitis C >Subject: Re: Treatment >Date: Fri, 03 Aug 2001 11:33:56 +0930 > > >I have genotype 3a also, yesterday my doc. offered me a liver biopsy >leading >to treatment if I wanted to, as apparently genotype 3a responds well to it. >But I am apprehensive. I probably won't do it. But I would like to hear >from people who have been treated who have this genotype. >What were the side effects? >What were the risks? >How did you feel during treatment? >Do you consider that you were receiving correct dosages? ie not >overdosed. >How is your health now? >Do you consider there has been any detremental >damage to other parts of your body? > > >What else should I consider before going ahead? > >Although I am not chronically ill, I do have to deal some horrible symptoms >of this dreaded thing as I know you all do. I would really like to be free >of it. > >Thankyou > >Robyn > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

nothing is forever except death,My doctors are

always telling me " you do this till something better

comes along " .....just do what they ask of you,the next

go round may be the charm,our bodies are always

changing it's our mental factors that slow down and get

stuck in the same place at times..take care of

yourself,keep asking questions and know that we are never alone

in this life,there's a power greater than our

selfs,trust that he is there for you too