Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Actually describing someone as blind these days, shows the discriptor as being very innorant. The term used is sightless, but of course, you wouldn't know it as your blind. > > sorry, I can't keep you two clones/idiots straight. > > Re: [ ] Re: Treatment > > > > > > > > >you do nothing but twist my words, always and as usual. Read > the post > > >andy. In my boyfriend's apartment, downstairs in the house > where I live, > > >he has set up the storespace, as we moved out of ours. > > > > > > Again Saty you refer to the storespace as ours...is it his or is > it yours > > and his ( " ours " )? You gotta be careful about that loose > language you are > > so fond of using. > > > > > > >NOW who's posting E-mails from other sites? Isn't this what you > > >reprimanded ME for? > > > > > > Satya you have slipped a cog or two! Andy never mentioned > re=posting > > others posts...I did (BobK). It was I (BobK) who reprimanded > you for > > reposting my posts to other lists. Your reply to me indicated > to all that > > you feel that this is a correct and proper thing to do so what > is your > > beef?? Do you think Andy and I are one and the same? > > > > regards, > > BobK > > > > > > > > --------------------------------------------------------------- ---- > ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Andy, Isn't it still calle the National Association for the Blind? Give me a break. I suppose you have a problem with calling Polish people Polacks too? I'm a Polack by the way.m It would appear that you sure are reaching to find things to say about Satya. K > > > sorry, I can't keep you two clones/idiots straight. > > > Re: [ ] Re: Treatment > > > > > > > > > > > > >you do nothing but twist my words, always and as usual. > Read > > the post > > > >andy. In my boyfriend's apartment, downstairs in the house > > where I live, > > > >he has set up the storespace, as we moved out of ours. > > > > > > > > > Again Saty you refer to the storespace as ours...is it his > or is > > it yours > > > and his ( " ours " )? You gotta be careful about that loose > > language you are > > > so fond of using. > > > > > > > > > >NOW who's posting E-mails from other sites? Isn't this what > you > > > >reprimanded ME for? > > > > > > > > > Satya you have slipped a cog or two! Andy never mentioned > > re=posting > > > others posts...I did (BobK). It was I (BobK) who > reprimanded > > you for > > > reposting my posts to other lists. Your reply to me > indicated > > to all that > > > you feel that this is a correct and proper thing to do so > what > > is your > > > beef?? Do you think Andy and I are one and the same? > > > > > > regards, > > > BobK > > > > > > > > > > > > -------------------------------------------------------------- - > ---- > > ----------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Eddie, I seem to remember reading about the treatment you're describing only it was for HIV/AIDS. About 10 years ago they were doing this - taking the blood out of the body, heating it to very high temps & returning it to the body in Mexico. Quite a few desperate people went through it against medical advise - the idea was that the heat would kill the virus. I never heard of ANYONEclearing the virus & you know if it had worked it would be the tx of choice for all HIV/AIDS patients. Looks like they dusted it off & changed the virus name too make some money - sorry. SuzieTubs46@... wrote: Has anyone herd of a treatment where they hook a tube up to each leg and pump fluid in and blood out and heat the blood up to 170 degrees and then return it to the body. It's a 4 hr process then they give you some type of medicine to take for a year. Then they do a viral load test. They are supposed to be doing this a Emory. Remember, if you haven't got a smile on your face and laughter in your heart......Then you are just an old sour fart.Eddie Next time I'm coming back as a cat . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Hi, Kent! You will do good easing your mind into treatment as well; you have a winning attitude! Try to relax and not anticipate anything and you may be blessed with very few side effects. Now kill that virus! Hugs and prayers, Suzy > I started treatment with Copegus and Pegasys this week. I started the Copegus on Sunday and the Pegasys on Tuesday night. I figure I let my body get used to the pills for a couple days before I started the shots. So far no side effects except for a little dizziness, for the most part I am not feeling any worse than I had been before the treatments. I am 1B with stage one and a viral lode (copies) that were off the scale, the other reading was over 6 million. I think that the viral lode is why I have not been feeling so good but the Dr's can't give me an answer. I will keep posted as the treatment progresses. Later, Kent. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 In a message dated 9/12/2004 11:19:02 AM Eastern Daylight Time, psita@... writes: My treatment was pegylated interferon and ribavirin. Terry That's what I was afraid you say................Oh well, in for a penny, in for a pound, as my Grandmother Trimmer used to say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2004 Report Share Posted October 10, 2004 God Bless you Bettie Jane, Sounds like you make some good choices. Here I am spouting the invincibility of Rituxan and you turn out to be one of those that doesn't react to it right away. As we have found out many times, some people or even a lot of people react much better to Rituxan in combination etc. Like you said nothing is for sure with this sickness. I am glad that you are in the middle of this going full steam. Thats the only way to go after this disease and my hat is off to you. Good luck with your treatments, Kurt treatment Dear Sll/Cll group, I try to keep up with all the posts to this site and have been especially informed by reading Chonette's situation and the responses to her notes. For information for the group, I thought I would also give you what is going on with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 CD20 has to be positive and the brighter it is, the better Rituxan will work... I found out through a FISH test in 2001 that my CD20 was positive... If CD20 is not positive or bright enough, Rituxan won't help much... Not all CLLers have a bright CD20... Regards, Walter V. Date: Sun, 10 Oct 2004 00:47:33 -0700 From: " Kurt Grayson " <thel.g@...> Subject: Re: treatment God Bless you Bettie Jane, Sounds like you make some good choices. Here I am spouting the invincibility of Rituxan and you turn out to be one of those that doesn't react to it right away. As we have found out many times, some people or even a lot of people react much better to Rituxan in combination etc. Like you said nothing is for sure with this sickness. I am glad that you are in the middle of this going full steam. Thats the only way to go after this disease and my hat is off to you. Good luck with your treatments, Kurt treatment Dear Sll/Cll group, I try to keep up with all the posts to this site and have been especially informed by reading Chonette's situation and the responses to her notes. For information for the group, I thought I would also give you what is going on with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Pat, Welcome to the group,isn't the www incredible in the fact that people from all across the world can comunnicate. I assume you are in the eary stages of the disease and are overwhelmed right now. The Interluken 6 drugs also known as MRA is strictly clinical research right now.They aren't even doing trials in the states yet.It's also being studied for the incredible effects it has on children with systemic onset JRA. There are alot of wonderful new drugs out there and most children do great on some of the older ones. I don't know whats available in Bulgaria but here they use Enbrel,Remicade,Humira and Kiniret for the more harder to treat children. It is highly unlikely that your child will not respond to something or a combination of drugs. Be warned of homeopathy and supplements,they aren't governed the way OTC and prescription drugs are.Some are harmless while others can interfere with the medications your child is taking or will be taking. Reading up on the meds is scarey but they are pretty safe and you monitor closely with labs. My son has been sick for over 4 yrs and a good 3yrs has been perfect or near perfect and he was very sick in the beginning. Hang in there and ask any questions you may have. Hugs Becki and 7 systemic JRA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Thank you Becki and ! My name is Luly. I'll write you soon my questions Higs Lily __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Thanks Mike for responding. I am of course 1A, like almost eveyone else. > > > > I am 62 yrs old and have known I have Hep C since 95, saw a > specialist > > and was told I had about 7% chance of any damage. I am the queen > of > > denial so I kept drinking and smoking. In Oct 04, I found out I am > at > > stage 3 liver disease after having a liver biopsy and viral load of > > 3million. I am tired a lot and > > have lots of aches and pain in joints. I stopped drinking in 1/05 > and > > stopped smoking in 8/05. I am very overweight, so my decision is > do I > > really want to go through the available treatment. I have been > seeing > > a specialist for a year, they only come to my town once a month and > > have so many clients I haven't been able to start the interferon > yet. > > I > > have had my heart checked and liver portal checked and both are > fine. > > I wonder if anyone else debates rather to have treatment or not. > If I > > was 30 or 40, I won't hestitate or if I knew the treatment would > > work, but there are so many side effects and other diseases that > can > > come to light, I wonder if it is worth it. I have started taking > Milk > > Thistle. Wonder what other my age > > think? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Hello. I am starting saturday. good luck and god bless. nanc340 <no_reply > wrote: Got my med in, going to start tx Sunday. please say little pray for me. Happy Thanksgiving Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 M & #304;chael, God stay with you. MICHAEL LOGSDON <daddeuce@...> wrote: Hello. I am starting saturday. good luck and god bless. nanc340 <no_reply > wrote: Got my med in, going to start tx Sunday. please say little pray for me. Happy Thanksgiving Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 ....sure. some helps a lot, some not so much, some not at all, some is bad... what are you considering or interested in? are you asking about stuff you can do yourself or something more heavy-duty like a clinic outside the country? i use colloidal silver 3x/day and avoid polluted food/water, but still smoke cigars.... if not for that i'd be sick and homeless. might end up that way anyway soon due to lack of work coming in...things are pretty scary and no grocery or gas $ even...but physically feeling better than i have since puberty, esp since the damned sex hormones no longer are a source of damnable torment. bobL > treatment > > > Hi there, > > Has anyone out there sought alternative treatment? Thanks!!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 ....sure. some helps a lot, some not so much, some not at all, some is bad... what are you considering or interested in? are you asking about stuff you can do yourself or something more heavy-duty like a clinic outside the country? i use colloidal silver 3x/day and avoid polluted food/water, but still smoke cigars.... if not for that i'd be sick and homeless. might end up that way anyway soon due to lack of work coming in...things are pretty scary and no grocery or gas $ even...but physically feeling better than i have since puberty, esp since the damned sex hormones no longer are a source of damnable torment. bobL > treatment > > > Hi there, > > Has anyone out there sought alternative treatment? Thanks!!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 ....sure. some helps a lot, some not so much, some not at all, some is bad... what are you considering or interested in? are you asking about stuff you can do yourself or something more heavy-duty like a clinic outside the country? i use colloidal silver 3x/day and avoid polluted food/water, but still smoke cigars.... if not for that i'd be sick and homeless. might end up that way anyway soon due to lack of work coming in...things are pretty scary and no grocery or gas $ even...but physically feeling better than i have since puberty, esp since the damned sex hormones no longer are a source of damnable torment. bobL > treatment > > > Hi there, > > Has anyone out there sought alternative treatment? Thanks!!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 ....sure. some helps a lot, some not so much, some not at all, some is bad... what are you considering or interested in? are you asking about stuff you can do yourself or something more heavy-duty like a clinic outside the country? i use colloidal silver 3x/day and avoid polluted food/water, but still smoke cigars.... if not for that i'd be sick and homeless. might end up that way anyway soon due to lack of work coming in...things are pretty scary and no grocery or gas $ even...but physically feeling better than i have since puberty, esp since the damned sex hormones no longer are a source of damnable torment. bobL > treatment > > > Hi there, > > Has anyone out there sought alternative treatment? Thanks!!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 Hi Janie, I can help you in this area with more information. Please call me, this way we can cover more " ground " so to speak. 1-866-677-7978 toll free Kind regards, Claudine Lanoix CHT Centre Hyperbare De L'Ile & American Hyperbarics ( Mom to Michel and Mathieu both with CP & low vision - Mathieu also had hydrocephalus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 I tend to agree with you when it comes to treatment (the actual stats are very low as far as clearing the disease) That is why those of us who have only slightly elevated levels of enzymes and little fibrosis are usually told to wait for something better. Since most of us contracted HCV before the blood supply was tested for hep c. It indicates that we have coexisted quite well for years and can continue to do so until there is a less poisonous treatment. Joe In a message dated 2/22/2007 12:52:31 PM Central Standard Time, bobLists@... writes: response to tx at about 50%, then about (50% or less?) of those stay clear for awhile. not sure about the latest figures for newer formulations, but still odds of both getting clear and staying that way for more than a couple years are, i think, about 1:4 at best. then there's the possibility of sustained and possibly permanent damage and sides from the tx drugs. if a biopsy probe happens to hit a cancer tumor cells can escape and instant metastasis occurs. if it doesn't hit it, then the biopsy won't tell that it exists. i've read two personal accounts in the last several months of people who had multiple biopsies, one 3 in the course of a few months, the other 3 the same day, both persons were told results confirmed low to no liver damage, both had need for surgery to gall bladder very shortly afterward and the liver when exposed proved to be in late stage cirrhosis. this tells me that the risk:benefit ratio of biopsy is questionable and generally the reliability and accuracy of it is exaggerated on the good side. <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 I tend to agree with you when it comes to treatment (the actual stats are very low as far as clearing the disease) That is why those of us who have only slightly elevated levels of enzymes and little fibrosis are usually told to wait for something better. Since most of us contracted HCV before the blood supply was tested for hep c. It indicates that we have coexisted quite well for years and can continue to do so until there is a less poisonous treatment. Joe In a message dated 2/22/2007 12:52:31 PM Central Standard Time, bobLists@... writes: response to tx at about 50%, then about (50% or less?) of those stay clear for awhile. not sure about the latest figures for newer formulations, but still odds of both getting clear and staying that way for more than a couple years are, i think, about 1:4 at best. then there's the possibility of sustained and possibly permanent damage and sides from the tx drugs. if a biopsy probe happens to hit a cancer tumor cells can escape and instant metastasis occurs. if it doesn't hit it, then the biopsy won't tell that it exists. i've read two personal accounts in the last several months of people who had multiple biopsies, one 3 in the course of a few months, the other 3 the same day, both persons were told results confirmed low to no liver damage, both had need for surgery to gall bladder very shortly afterward and the liver when exposed proved to be in late stage cirrhosis. this tells me that the risk:benefit ratio of biopsy is questionable and generally the reliability and accuracy of it is exaggerated on the good side. <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 response to tx at about 50%, then about (50% or less?) of those stay clear for awhile. not sure about the latest figures for newer formulations, but still odds of both getting clear and staying that way for more than a couple years are, i think, about 1:4 at best. then there's the possibility of sustained and possibly permanent damage and sides from the tx drugs. if a biopsy probe happens to hit a cancer tumor cells can escape and instant metastasis occurs. if it doesn't hit it, then the biopsy won't tell that it exists. i've read two personal accounts in the last several months of people who had multiple biopsies, one 3 in the course of a few months, the other 3 the same day, both persons were told results confirmed low to no liver damage, both had need for surgery to gall bladder very shortly afterward and the liver when exposed proved to be in late stage cirrhosis. this tells me that the risk:benefit ratio of biopsy is questionable and generally the reliability and accuracy of it is exaggerated on the good side. if using " alternative " treatment modalities it's possibly wiser to just assume liver damage, cirrhosis, and cancer exist and treat for them to at least some significant extent. if going with the conventional usual approach to treatment, then usually one must just dance to the tune of providers...sometimes a doc is found that thinks ethically and independently as well as intelligently, and that's a great find. you might want to query the GP hard and feedback those answers to the Gastro, then re-evaluate your decision. sometimes specialists opinions are worth more, sometimes a GP is lots better...pay good attention to just what you're responding to and why. i could tell a story from close personal experience where multiple high-dollar high-rep specialists were either corrupt (a couple for sure) or couldn't see outside the narrow scope of their specialties to figure out what a family GP pinned correctly right away based on a 5 minute conversation. but i won't take the time, it was a female problem not hep. > Treatment > > > I take issue with the implication that all doctors are out for the > bucks. With health insurance these days, their fees are controlled > by the plans they are connected to as PPOs usually. My gastro > doctor gave me the choice of biopsy or not. He has been to all the > conferences and most doctors push for biopsies. He feels that at > whatever stage you are, having a biopsy isn't going to change how > you will be treated. Also, there are small but significant risks > such as bleeding internally. He also put treatment at my > discretion. Since I am 1a and the possibility for success is 50% I > thought I'd skip it. I was just going to go along " tra-la " but my > GP burst that bubble. She strongly recommended that I take the > treatment. So I'm starting in June after my trip to Italy. I vow > to not have that shadow cloud my enjoyment. I can just eat all I > want and have a weight-loss plan waiting for me when I get back. > > Seriously, I'm nervous about the treatment as I live alone and need > to work. But my bosses are understanding and will give me a lighter > load if I need it. One big help is keeping a positive outlook--you > might get lucky & be the exception to the rule that all side effects > will usually be awful. > > I found a website on Tuesday with testimonials from a number of > individuals that explained their side effects in gruesome detail. > But the underlying message is it's worth it--you felt awful but at > the end, you're proud you did it. You endured. Keep fixed on that > light at the end of the tunnel. > > Try these sites: > http://www.hepatitis-c.de/ourstory.htm > http://www.hepatitis-c.de/linkse.htm > http://www.hepcchallenge.org/ > > > > > > > > - Join or create groups, clubs, forums & amp; > communities. Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 response to tx at about 50%, then about (50% or less?) of those stay clear for awhile. not sure about the latest figures for newer formulations, but still odds of both getting clear and staying that way for more than a couple years are, i think, about 1:4 at best. then there's the possibility of sustained and possibly permanent damage and sides from the tx drugs. if a biopsy probe happens to hit a cancer tumor cells can escape and instant metastasis occurs. if it doesn't hit it, then the biopsy won't tell that it exists. i've read two personal accounts in the last several months of people who had multiple biopsies, one 3 in the course of a few months, the other 3 the same day, both persons were told results confirmed low to no liver damage, both had need for surgery to gall bladder very shortly afterward and the liver when exposed proved to be in late stage cirrhosis. this tells me that the risk:benefit ratio of biopsy is questionable and generally the reliability and accuracy of it is exaggerated on the good side. if using " alternative " treatment modalities it's possibly wiser to just assume liver damage, cirrhosis, and cancer exist and treat for them to at least some significant extent. if going with the conventional usual approach to treatment, then usually one must just dance to the tune of providers...sometimes a doc is found that thinks ethically and independently as well as intelligently, and that's a great find. you might want to query the GP hard and feedback those answers to the Gastro, then re-evaluate your decision. sometimes specialists opinions are worth more, sometimes a GP is lots better...pay good attention to just what you're responding to and why. i could tell a story from close personal experience where multiple high-dollar high-rep specialists were either corrupt (a couple for sure) or couldn't see outside the narrow scope of their specialties to figure out what a family GP pinned correctly right away based on a 5 minute conversation. but i won't take the time, it was a female problem not hep. > Treatment > > > I take issue with the implication that all doctors are out for the > bucks. With health insurance these days, their fees are controlled > by the plans they are connected to as PPOs usually. My gastro > doctor gave me the choice of biopsy or not. He has been to all the > conferences and most doctors push for biopsies. He feels that at > whatever stage you are, having a biopsy isn't going to change how > you will be treated. Also, there are small but significant risks > such as bleeding internally. He also put treatment at my > discretion. Since I am 1a and the possibility for success is 50% I > thought I'd skip it. I was just going to go along " tra-la " but my > GP burst that bubble. She strongly recommended that I take the > treatment. So I'm starting in June after my trip to Italy. I vow > to not have that shadow cloud my enjoyment. I can just eat all I > want and have a weight-loss plan waiting for me when I get back. > > Seriously, I'm nervous about the treatment as I live alone and need > to work. But my bosses are understanding and will give me a lighter > load if I need it. One big help is keeping a positive outlook--you > might get lucky & be the exception to the rule that all side effects > will usually be awful. > > I found a website on Tuesday with testimonials from a number of > individuals that explained their side effects in gruesome detail. > But the underlying message is it's worth it--you felt awful but at > the end, you're proud you did it. You endured. Keep fixed on that > light at the end of the tunnel. > > Try these sites: > http://www.hepatitis-c.de/ourstory.htm > http://www.hepatitis-c.de/linkse.htm > http://www.hepcchallenge.org/ > > > > > > > > - Join or create groups, clubs, forums & amp; > communities. Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 response to tx at about 50%, then about (50% or less?) of those stay clear for awhile. not sure about the latest figures for newer formulations, but still odds of both getting clear and staying that way for more than a couple years are, i think, about 1:4 at best. then there's the possibility of sustained and possibly permanent damage and sides from the tx drugs. if a biopsy probe happens to hit a cancer tumor cells can escape and instant metastasis occurs. if it doesn't hit it, then the biopsy won't tell that it exists. i've read two personal accounts in the last several months of people who had multiple biopsies, one 3 in the course of a few months, the other 3 the same day, both persons were told results confirmed low to no liver damage, both had need for surgery to gall bladder very shortly afterward and the liver when exposed proved to be in late stage cirrhosis. this tells me that the risk:benefit ratio of biopsy is questionable and generally the reliability and accuracy of it is exaggerated on the good side. if using " alternative " treatment modalities it's possibly wiser to just assume liver damage, cirrhosis, and cancer exist and treat for them to at least some significant extent. if going with the conventional usual approach to treatment, then usually one must just dance to the tune of providers...sometimes a doc is found that thinks ethically and independently as well as intelligently, and that's a great find. you might want to query the GP hard and feedback those answers to the Gastro, then re-evaluate your decision. sometimes specialists opinions are worth more, sometimes a GP is lots better...pay good attention to just what you're responding to and why. i could tell a story from close personal experience where multiple high-dollar high-rep specialists were either corrupt (a couple for sure) or couldn't see outside the narrow scope of their specialties to figure out what a family GP pinned correctly right away based on a 5 minute conversation. but i won't take the time, it was a female problem not hep. > Treatment > > > I take issue with the implication that all doctors are out for the > bucks. With health insurance these days, their fees are controlled > by the plans they are connected to as PPOs usually. My gastro > doctor gave me the choice of biopsy or not. He has been to all the > conferences and most doctors push for biopsies. He feels that at > whatever stage you are, having a biopsy isn't going to change how > you will be treated. Also, there are small but significant risks > such as bleeding internally. He also put treatment at my > discretion. Since I am 1a and the possibility for success is 50% I > thought I'd skip it. I was just going to go along " tra-la " but my > GP burst that bubble. She strongly recommended that I take the > treatment. So I'm starting in June after my trip to Italy. I vow > to not have that shadow cloud my enjoyment. I can just eat all I > want and have a weight-loss plan waiting for me when I get back. > > Seriously, I'm nervous about the treatment as I live alone and need > to work. But my bosses are understanding and will give me a lighter > load if I need it. One big help is keeping a positive outlook--you > might get lucky & be the exception to the rule that all side effects > will usually be awful. > > I found a website on Tuesday with testimonials from a number of > individuals that explained their side effects in gruesome detail. > But the underlying message is it's worth it--you felt awful but at > the end, you're proud you did it. You endured. Keep fixed on that > light at the end of the tunnel. > > Try these sites: > http://www.hepatitis-c.de/ourstory.htm > http://www.hepatitis-c.de/linkse.htm > http://www.hepcchallenge.org/ > > > > > > > > - Join or create groups, clubs, forums & amp; > communities. Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 response to tx at about 50%, then about (50% or less?) of those stay clear for awhile. not sure about the latest figures for newer formulations, but still odds of both getting clear and staying that way for more than a couple years are, i think, about 1:4 at best. then there's the possibility of sustained and possibly permanent damage and sides from the tx drugs. if a biopsy probe happens to hit a cancer tumor cells can escape and instant metastasis occurs. if it doesn't hit it, then the biopsy won't tell that it exists. i've read two personal accounts in the last several months of people who had multiple biopsies, one 3 in the course of a few months, the other 3 the same day, both persons were told results confirmed low to no liver damage, both had need for surgery to gall bladder very shortly afterward and the liver when exposed proved to be in late stage cirrhosis. this tells me that the risk:benefit ratio of biopsy is questionable and generally the reliability and accuracy of it is exaggerated on the good side. if using " alternative " treatment modalities it's possibly wiser to just assume liver damage, cirrhosis, and cancer exist and treat for them to at least some significant extent. if going with the conventional usual approach to treatment, then usually one must just dance to the tune of providers...sometimes a doc is found that thinks ethically and independently as well as intelligently, and that's a great find. you might want to query the GP hard and feedback those answers to the Gastro, then re-evaluate your decision. sometimes specialists opinions are worth more, sometimes a GP is lots better...pay good attention to just what you're responding to and why. i could tell a story from close personal experience where multiple high-dollar high-rep specialists were either corrupt (a couple for sure) or couldn't see outside the narrow scope of their specialties to figure out what a family GP pinned correctly right away based on a 5 minute conversation. but i won't take the time, it was a female problem not hep. > Treatment > > > I take issue with the implication that all doctors are out for the > bucks. With health insurance these days, their fees are controlled > by the plans they are connected to as PPOs usually. My gastro > doctor gave me the choice of biopsy or not. He has been to all the > conferences and most doctors push for biopsies. He feels that at > whatever stage you are, having a biopsy isn't going to change how > you will be treated. Also, there are small but significant risks > such as bleeding internally. He also put treatment at my > discretion. Since I am 1a and the possibility for success is 50% I > thought I'd skip it. I was just going to go along " tra-la " but my > GP burst that bubble. She strongly recommended that I take the > treatment. So I'm starting in June after my trip to Italy. I vow > to not have that shadow cloud my enjoyment. I can just eat all I > want and have a weight-loss plan waiting for me when I get back. > > Seriously, I'm nervous about the treatment as I live alone and need > to work. But my bosses are understanding and will give me a lighter > load if I need it. One big help is keeping a positive outlook--you > might get lucky & be the exception to the rule that all side effects > will usually be awful. > > I found a website on Tuesday with testimonials from a number of > individuals that explained their side effects in gruesome detail. > But the underlying message is it's worth it--you felt awful but at > the end, you're proud you did it. You endured. Keep fixed on that > light at the end of the tunnel. > > Try these sites: > http://www.hepatitis-c.de/ourstory.htm > http://www.hepatitis-c.de/linkse.htm > http://www.hepcchallenge.org/ > > > > > > > > - Join or create groups, clubs, forums & amp; > communities. Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 You are lucky its genotyoe 2, I have type 1A. Should be going on tx starting this wednesday. Someone in group should be able to answer your questions about tx. Pat juniper1958 <t_rymer@...> wrote: Hi everyone....I've only posted a couple of times...I was waiting to see how all my tests came out. Found out Wednesday that I will be taking treatments, but only for 6 months. I'm genotype 2b, Stage 1. The doc says this will be a piece of cake, but I've heard so many horrible stories about side effects. Just wanting to know how some of ya'll did and maybe some advice on what I should or should not do concerning nutrition etc. Any help will be appreciated....Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 You are lucky its genotyoe 2, I have type 1A. Should be going on tx starting this wednesday. Someone in group should be able to answer your questions about tx. Pat juniper1958 <t_rymer@...> wrote: Hi everyone....I've only posted a couple of times...I was waiting to see how all my tests came out. Found out Wednesday that I will be taking treatments, but only for 6 months. I'm genotype 2b, Stage 1. The doc says this will be a piece of cake, but I've heard so many horrible stories about side effects. Just wanting to know how some of ya'll did and maybe some advice on what I should or should not do concerning nutrition etc. Any help will be appreciated....Tina Quote Link to comment Share on other sites More sharing options...
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