Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 nothing is forever except death,My doctors are always telling me " you do this till something better comes along " .....just do what they ask of you,the next go round may be the charm,our bodies are always changing it's our mental factors that slow down and get stuck in the same place at times..take care of yourself,keep asking questions and know that we are never alone in this life,there's a power greater than our selfs,trust that he is there for you too Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 , Sounds like you went to hell and back. Thankyou for sharing, but I think I will pass. Considering I am not that ill. I am going to try the essential oils. My health, both mental and physical has improved 100% since starting Green Barley and the other herbals I take. I still get tired but not like I used to and I am more even tempered. For anyone who is interested I have been taking MSM for the last few weeks. 99% of my joint and body pain has gone. My skin is renewing itself. It feels new from the inside out and soooo... soft. I think my hair has stopped falling out also. I have lost most of the cellulite in my legs and my flesh has become firmer. MSM stimulates cell growth. I am also taking something called Maca. For those who are having hormone problems (men or women) pmt or perimenopausal or postmenopausal. Hep C does alter hormone production. It stimulates the endocrine system, which shuts down when menstruation takes over the hormones. So therefore when menstruation stops hormones are stimulated again from the endocrine system with the help of MACA. Actually it could be Maca helping my hair stay put. It is helpful for both men and women to have a satisfying sex life. Viagra move over!!!!!!!! _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 That is too bad it is showing no response!! What geno type do you have? what is your viral load?<br>I have 3a and have completed 5 mo of treatment and have only 1 month to go. <br>Don't lose hope....they are coming out with new drugs and others on this board who did not respond to rebetron have had success with the peg treatment. Good luck..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 That is too bad it is showing no response!! What geno type do you have? what is your viral load?<br>I have 3a and have completed 5 mo of treatment and have only 1 month to go. <br>Don't lose hope....they are coming out with new drugs and others on this board who did not respond to rebetron have had success with the peg treatment. Good luck..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 I'm on " peg " it's not close to being as bad as the first interferon<br>with peg I take one shot aweek,usualy on sunday,by monday the worst of the sides have passed,I take vioxx for body pains which helps alot,and something for the depression,it can be very hard to deal with,it would hit me at the oddest times<br>on the regular interferon I had to take 3 shots a weeks,which had severe sides,kinda like having the flu that would not go away,everything just seemed endless<br>I was on regular interferon in 1993,I had severe liver damage,was transplanted in 1997,gave this new liver hep-c,started treatment when peg was approved last spring<br>treatment can be hard,is difficult..a good doctor,some support from people in this same boat helps,a spiritual relationship with a power great than myself,I choose " God " ,and the willingness to take things one day at atime,has made treatment better,easier to except the hard parts of it as ok Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 I'm on " peg " it's not close to being as bad as the first interferon<br>with peg I take one shot aweek,usualy on sunday,by monday the worst of the sides have passed,I take vioxx for body pains which helps alot,and something for the depression,it can be very hard to deal with,it would hit me at the oddest times<br>on the regular interferon I had to take 3 shots a weeks,which had severe sides,kinda like having the flu that would not go away,everything just seemed endless<br>I was on regular interferon in 1993,I had severe liver damage,was transplanted in 1997,gave this new liver hep-c,started treatment when peg was approved last spring<br>treatment can be hard,is difficult..a good doctor,some support from people in this same boat helps,a spiritual relationship with a power great than myself,I choose " God " ,and the willingness to take things one day at atime,has made treatment better,easier to except the hard parts of it as ok Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Treatment affects everyone differently. It really depends on which treatment you are going to be on. I've done them all and the easiest one to handle was the Peg/Riba combo. While my hair did fall out again, it wasn't near as much as before. My appetite was much better on this one too. The mood swings were bad, but if that happens to you ask your Dr about anti-depressants. They will help you get through the treatment, and are not a permanent thing.<br><br>You can find treatment journals on my website that may help you. Just remember, drink TONS of water, no alcohol, eat healthy, exercise even if it doesn't seem like much, and those things will help with the sides. <br><br>Good luck!!<br><br>LeighAnn<br><a href=http://www.geocities.com/1Leighann target=new>http://www.geocities.com/1Leighann</a> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Treatment affects everyone differently. It really depends on which treatment you are going to be on. I've done them all and the easiest one to handle was the Peg/Riba combo. While my hair did fall out again, it wasn't near as much as before. My appetite was much better on this one too. The mood swings were bad, but if that happens to you ask your Dr about anti-depressants. They will help you get through the treatment, and are not a permanent thing.<br><br>You can find treatment journals on my website that may help you. Just remember, drink TONS of water, no alcohol, eat healthy, exercise even if it doesn't seem like much, and those things will help with the sides. <br><br>Good luck!!<br><br>LeighAnn<br><a href=http://www.geocities.com/1Leighann target=new>http://www.geocities.com/1Leighann</a> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 For me, Synthroid never had any noticeable effect. Armour did; after my first dose, I started feeling better. Weight loss is the hardest thing for me. I have gone to a low-carb lifestyle and that keeps any cravings at bay, and I'm not hungry, but I'm still losing about half a pound a month (this is up from 1/4 pound a month on Synthroid and a lowfat diet with severe calorie restriction). kathryn.black@... wrote: I am wondering how quickly after you start treatment do you start to feel better? Has anyone experienced a significant weight loss after treatment? Do you find dieting after treatment ANY easier? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 When I was balanced, I managed to lose 111lb and actually get smaller than I had been in my teens, so yes, provided your thyroid is working ok, weight loss is possible. It is still slower than for people whose thyroids work though, took me quite a while to lose that much. Jan > > > I am wondering how quickly after you start treatment do you start to feel > better? Has anyone experienced a significant weight loss after treatment? > Do you find dieting after treatment ANY easier? > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 This balancing act seems to be what is the Main problem with this illness. And it's not the same for any one person, that is why it's so difficult to find a doctor to do this for you. And then you have the rest of the hormones that change as you age. It's really complex to get it just right. It was great that you were able to do it, Jan. It gives everyone hope that is battling fatigue, illness and weight problems!! tina -- In hypothyroidism , " janjv1311 " <janaina@v...> wrote: > When I was balanced, I managed to lose 111lb and actually get smaller > than I had been in my teens, so yes, provided your thyroid is working > ok, weight loss is possible. It is still slower than for people whose > thyroids work though, took me quite a while to lose that much. > > Jan > > > > > > > > I am wondering how quickly after you start treatment do you start > to feel > > better? Has anyone experienced a significant weight loss after > treatment? > > Do you find dieting after treatment ANY easier? > > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 And I only got balanced through self-medication! I have never had a good doctor. My cousin just trusted I knew what I was doing and wrote the scripts and the test requests for my insurance - well, I am older than her, so I could bully her into doing what I wanted. LOL Jan > > > > > > > > > I am wondering how quickly after you start treatment do you start > > to feel > > > better? Has anyone experienced a significant weight loss after > > treatment? > > > Do you find dieting after treatment ANY easier? > > > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Before deciding on treatment, visit this site. http://hepcsolutions.com/interferons.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Karolyn, I hope your not taken in by Lloyd 's sales pitch....that would be sad and a waste of money. BobK At 01:21 PM 01/31/2004, karolynt47 wrote: >Before deciding on treatment, visit this site. > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/interferons.\ htm > > > >---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 alii, At 03:20 PM 01/31/2004, alii wright wrote: >Bob, I was wondering if you are paid by the drug companies to spread >fear and negativity and belittle anyone who wants to heal >alternatively? That's curious since I was wondering if you were involved in Lloyd 's business venture. Who has been healed by Lloyd s protocol (percentages of patients who have taken his nostrums and cleared)? That's probably a bit much to ask for since his poster child Melody reduced her viral load in half which is totally insignificant...I imagined that she spent about $3,500.00 to do this (based on Lloyd's current prices). I have met many people who have tried these protocols and ended up with nothing but empty wallets and crushed hopes....what are you selling? Why would I have to be paid by anyone in order to be skeptical of dubious claims? In god we trust all others please provide evidence....in Lloyd's case he is the only one who seems to be cured via his protocol...but I imagine he likes spending your money! The simple fact that Lloyd is using Pamela to promote his sales should be enough to make everyone run as fast as they can from this gentleman >Oh and when you use " your " spelled like that it means belonging to >and not you-are which I think you were trying to say, that is >spelled " you're " . That is a problem with using a spell checker...thanks for the correction! regards, BobK >alii > > > > > >Before deciding on treatment, visit this site. > > > > > > ><<http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/inter > ferons.htm>http://hepcsolutions.com/in >terferons.htm > > > > > > > > > > > >---------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Bob, I was wondering if you are paid by the drug companies to spread fear and negativity and belittle anyone who wants to heal alternatively? Oh and when you use " your " spelled like that it means belonging to and not you-are which I think you were trying to say, that is spelled " you're " . alii > >Before deciding on treatment, visit this site. > > > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/in terferons.htm > > > > > > > >---------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 As it stands at this moment in time the only alternative to Pegasys combination therapy is Pegetron combination therapy if one is seeking to remove the virus from the red blood cells of one's body. What other's may want to do with other unproven treatments are entirely their personal concern. When some suggest that a method has " cured " them of the Hepatitis C virus using some other treatment protocol than interferon based medicines, they might want to consider providing evidence to support their claims. That would seem to be a reasonable thing to do when suggesting something or some product has cured one of a disease or condition. To suggest that some receive funds from the pharms is outrageous at best, as most are looking for critical evaluations to assist them with the management of the disease. Fairly simple endeavour for most, but as often common sense is not all that common, the best way to defend your position is to attack the credibility of others by suggesting they are secretly on the take. How sad. andy > > >Before deciding on treatment, visit this site. > > > > > > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/i n > terferons.htm > > > > > > > > > > > >---------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Dear Bob, As a matter of fact I do not even buy my Natcell from Lloyd, I buy it from the Bio company that manufacturers it. I have never bought anything from him. So you can rest assured that I am not benefitting from Lloyd 's business ventures, nor is Lloyd benifitting from me. I believe that being pro-active and positive in healing is very important, I have also told people about yoga and praying and meditation and acupuncture helping me feel better. I have not seen you post any positive suggestions for feeling better. Correct me if I am wrong as I only joined this board a month or so ago. And Bob,I am not selling anything either, I just get sick and tired of watching people give their lives over to be experimented on by the pharmaceutical companies ( who are only in it for the money I think). " ...I imagined that she spent about $3,500.00 to do this (based on Lloyd's current prices). " Well,Bob, I do know lots of people who have had higher reductions in their virul loads, right down to " undectected " and you're right they didn't pay $3,500.00. Their insurance companies only paid ...what ...$45,000.00. But their loads came back higher than before. And as for my friends who rode the interferon rollercoaster, it seems to have cost them a life of pain and misery and being more and more removed from their health and their normal lives. So far, Bob, I am happy to spend my $$ on something that helps me feel better because then I can work more and make more money and my bank account is actually ahead because of my renewed energy so I can't help but see this as a positive thing for me. I have never actually told anyone to do interferon or not to do interferon or to do natcell or not to do natcell or anything. I have merely shared what I am doing and how I feel. I don't send cryptic fear based warnings to people that are trying to deal with a scarey situation. I believe that opinions are like toothbrushes,,,everyone has one so there's no need to share......that said I couldn't ignore your opinions. Best wishes for your recovery,Alii > > > >Before deciding on treatment, visit this site. > > > > > > > > > ><<http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/i nter > > ferons.htm>http://hepcsolutions.com/in > >terferons.htm > > > > > > > > > > > > > > > >---------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Dear Alli, >And Bob,I am not selling anything either, I just get sick and tired >of watching people give their lives over to be experimented on by the >pharmaceutical companies ( who are only in it for the money I think). Funny how your later comments about opinions doesn't apply here! I guess you will have to tell that to all the thousands and thousands of HCV patients who are quite grateful to be " cured " of this disease by taking the evil interferon. > " ...I imagined that she spent about $3,500.00 to do this (based on >Lloyd's current prices). " >Well,Bob, I do know lots of people who have had higher reductions in >their virul loads, right down to " undectected " and you're right they >didn't pay $3,500.00. Their insurance companies only >paid ...what ...$45,000.00. But their loads came back higher than >before. The problem with the natcell claims is the the claimed viral loads are insignificant. Viral loads naturally fluctuate between 5-8 fold....anything in this range is insignificant....pretty well recognized fact. You also to bee forgetting those where the virus has not come back...the responders. Or don't you believe that it is possible to be " cured " of this virus? Your pricing is pretty high I would re-check your source. >And as for my friends who rode the interferon rollercoaster, >it seems to have cost them a life of pain and misery and being more >and more removed from their health and their normal lives. Well my friends seem to think otherwise. >I have merely shared >what I am doing and how I feel. I don't send cryptic fear based >warnings to people that are trying to deal with a scarey situation. If your trying to say I am sending cryptic messages your mistaken. I have no problem telling people straight out that there is no evidence that this (natcell products) will do anything for you other than empty your wallet. If the empty wallet makes you feel good than I am happy for you. natcell products are proteins. Although Lloyd claims they are small peptides with molecular weights of 30,000 daltons he is mistaken. I regularly work with metallothioneins whic are a protein and weight 5-7,000 daltons. A peptide chain of that weight (30.000) is considered a protein and as such it will be digested like any other protein into its amino acid constituents. For a molecular weight of that size it contains about 300 amino acid residues. If one of these natcell pig products made it into your bloodstream your body your immune system would recognize the foreign protein and mount a immune response against the invader. If you believe that these proteins are getting into you bloodstream you need to read up on digestion and the GI tract. The only way to get intact peptides or proteins into the bloodstream is by injection...that also has the problem that pig proteins are not a very good thing to inject into your body. > > >I believe that opinions are like toothbrushes,,,everyone has one so >there's no need to share Funny how you think that should apply to me yet you seem quite free to express your opinions. Duplicitous at best. You really need to read up on what foreign proteins will do in the body and about how proteins are digested. Once you understand these topics you will know why you are getting nothing but amino acids from the natcell products....expensive amino acids at that!! Alii you can spend your money anyway you wish. There are problems with the products you are referring too. If you don't want to recognize or explore what these problems are that is also your prerogative Regards, BobK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Good point Andy, You said- >When some suggest that a method > has " cured " them of the Hepatitis C virus using some other treatment > protocol than interferon based medicines, they might want to > consider providing evidence to support their claims. However, I did not claim to be cured, I am not trying to tell anyone what to do or not to do. I am not selling anything. I have never tried to make someone feel bad or ignorant so that they would not look at possibilities. I have never told others what to do,I don't actually even care about what anyone else does, I only care about how I feel, how my husband feels, how my children feel. You are also right about this Andy - > > ... the best way to defend your position is to attack > the credibility of others by suggesting they are secretly on the > take. How sad. " , seeing as how Bob also asked me ----- > " That's curious since I was wondering if you were involved in Lloyd >'s >business venture. " And once again you are right when you say > " What other's may want to do with other unproven treatments are > entirely their personal concern. " So I guess you do get it, it's about personal concerns. I stand alone without facts and figures and numbers and I can't prove anything and it doesn't matter. alii > > > >Before deciding on treatment, visit this site. > > > > > > > > > > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/i > n > > terferons.htm > > > > > > > > > > > > > > > >---------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 I can provide lab reports going back to 1998, and viral loads from 1993 forward, I could suggest that during some of the periods where things were on the low side that is from some protocol or eating big Mac's every day, but reality may suggest that this is a common occurrence with many with the disease. To try to imply that these variations are anything but the normal course of the disease would be fraudulent on my part...but if anyone would wish to see my double secret protocol, please email me privately and for a small monthly fee I will send you my totally fabulous incredible and proven method of reducing the viral loads and enzyme markers. > > > > >Before deciding on treatment, visit this site. > > > > > > > > > > > > > > > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/i > > n > > > terferons.htm > > > > > > > > > > > > > > > > > > > >---------- > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Dear Bob, I have yet to meet any.... you will have to tell that to all the thousands and thousands of HCV > patients who are quite grateful to be " cured " of this disease by taking the > evil interferon. ( I did not call it evil interferon in case you think I did) And I truly wish some of my hcv fighting friends,ANY of my friends WERE responders. The $45.000 was what my Vancouver Dr. (who Andy knows and respects by the way) told me it cost. You seem to be quite passionate about this issue, and I respect you for that. I recognize that you are trying to educate people but there is more than one way of communicating the same message to people without trying to make them feel stupid for being confused and trying to help themselves. We are all fragile beings that are scared of dying. I am curious about what you Do approve of in regards to how to live with hepC when interferon doesn't work? regards,Alii > Dear Alli, > > >And Bob,I am not selling anything either, I just get sick and tired > >of watching people give their lives over to be experimented on by the > >pharmaceutical companies ( who are only in it for the money I think). > > Funny how your later comments about opinions doesn't apply here! I guess > you will have to tell that to all the thousands and thousands of HCV > patients who are quite grateful to be " cured " of this disease by taking the > evil interferon. > > > > " ...I imagined that she spent about $3,500.00 to do this (based on > >Lloyd's current prices). " > >Well,Bob, I do know lots of people who have had higher reductions in > >their virul loads, right down to " undectected " and you're right they > >didn't pay $3,500.00. Their insurance companies only > >paid ...what ...$45,000.00. But their loads came back higher than > >before. > > The problem with the natcell claims is the the claimed viral loads are > insignificant. Viral loads naturally fluctuate between 5-8 fold....anything > in this range is insignificant....pretty well recognized fact. You also to > bee forgetting those where the virus has not come back...the > responders. Or don't you believe that it is possible to be " cured " of this > virus? Your pricing is pretty high I would re-check your source. > > >And as for my friends who rode the interferon rollercoaster, > >it seems to have cost them a life of pain and misery and being more > >and more removed from their health and their normal lives. > > Well my friends seem to think otherwise. > > >I have merely shared > >what I am doing and how I feel. I don't send cryptic fear based > >warnings to people that are trying to deal with a scarey situation. > > If your trying to say I am sending cryptic messages your mistaken. I have > no problem telling people straight out that there is no evidence that this > (natcell products) will do anything for you other than empty your > wallet. If the empty wallet makes you feel good than I am happy for you. > > natcell products are proteins. Although Lloyd claims they are small > peptides with molecular weights of 30,000 daltons he is mistaken. I > regularly work with metallothioneins whic are a protein and weight 5-7,000 > daltons. A peptide chain of that weight (30.000) is considered a protein > and as such it will be digested like any other protein into its amino acid > constituents. For a molecular weight of that size it contains about 300 > amino acid residues. If one of these natcell pig products made it into > your bloodstream your body your immune system would recognize the foreign > protein and mount a immune response against the invader. If you believe > that these proteins are getting into you bloodstream you need to read up on > digestion and the GI tract. The only way to get intact peptides or > proteins into the bloodstream is by injection...that also has the problem > that pig proteins are not a very good thing to inject into your body. > > > > > > >I believe that opinions are like toothbrushes,,,everyone has one so > >there's no need to share > > Funny how you think that should apply to me yet you seem quite free to > express your opinions. Duplicitous at best. > > You really need to read up on what foreign proteins will do in the body and > about how proteins are digested. Once you understand these topics you will > know why you are getting nothing but amino acids from the natcell > products....expensive amino acids at that!! > > Alii you can spend your money anyway you wish. There are problems with the > products you are referring too. If you don't want to recognize or explore > what these problems are that is also your prerogative > > Regards, > BobK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 HaaaHaaaa Andy, That'll show how stupid everyone else is and how all knowing, clever and witty you are!!,way to go man. You should feel so proud of your mature and helpful way of communicating with the other mere mortals that are also sick and scared. alii > > > > > >Before deciding on treatment, visit this site. > > > > > > > > > > > > > > > > > > > > > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/i > > > n > > > > terferons.htm > > > > > > > > > > > > > > > > > > > > > > > >---------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 No, Bob, not taken in. Just thought the info was interesting. Karolyn > >Before deciding on treatment, visit this site. > > > ><http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/in terferons.htm > > > > > > > >---------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 What part did you think was interesting? BobK At 09:59 AM 02/01/2004, you wrote: >No, Bob, not taken in. Just thought the info was interesting. >Karolyn > > > > >Before deciding on treatment, visit this site. > > > > > > ><<http://hepcsolutions.com/interferons.htm>http://hepcsolutions.com/inter > ferons.htm>http://hepcsolutions.com/in >terferons.htm > > > > > > > > > > > >---------- > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.