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Hi Terry,

I live in Fort Worth Texas but was born in California. I left California in 1976. Everybody, including me, were doing everything new drugs and we all were so crazy. We were no longer "human beings" just a bunch of lost souls. One night I was kidnapped by my friends after I had passed out. They decided I needed to go with them to get "clean" and relocate to Dennison Texas. I woke up the next day in a Van heading to Texas. I really believe God allowed this to happen. When I got clean, I called and went to live with my Dad and Step mother just outside Dallas.

I became a professional in the Insurance Industry. Then in 1999 I was diagnosed with Chronic HCV. I knew I got it from doing drugs back in 1976. I did 8 months on the infusion therapy but I failed to respond. I just applied for the Peg-Intron Therapy Study at one of Dallas's hospital HALT-C Trial Study. I found the link from CDC/Hepatitis site. They have a list of each location/State where the HALT-C study trials are being done. This Program is absolutely free to the patient.

Sorry I went on and on but I really do not have anyone to talk about my HCV disease situation.

Darlene White

Terry Long wrote:

Hi Darlene Wecome to the group, I am Terry & I live just out side of Phoenix Az. Where are you from. Terry Darlene White <dcw915@...> wrote:

Hello everyone I am a newby in this group. Regarding physicians. I am treating with a gastrointologist who specializes in treating Hepatitis Liver cases. Your primary physician most likely needs to refer you to this kind of specialist. He knew exactly how to treat you. Darlene debbie henning wrote:

Hi Maxine I agree It is our body and we should have a choice as to who is to be our dr or not I also have has about 5 different ones and still have not been completely happy ( is it me ) so now Im trying my sisters I hope this is the one Debbie MAXINE BEGONJA <bestweb20@...> wrote:

Debbie,

Don't worry about changing doctors. I am on my fourth and I think this is it. The first one had a factory.....all he wanted were the office visits he was going to get. The second one had told me that I had no scarring, everything was great, but that I SHOULD take the treatment. Never explained what stage I was in etc. The we moved from NY to Orlando,FL, found the third gastro, too busy, couldn't get thru to the office, nasty, rude.

I took 's advice - look for a caring one.....well I think I've found him.

It's your health and body. If you don't feel comfortable with the doctor, change them as often as you want until you feel comfortable with the right one.

Hope all works out for you.

Best wishes,

Maxine Begonja

>From: debbie henning

>Reply- > >Subject: Re: [ ] New to the group w/ questions >Date: Sun, 28 Jul 2002 07:49:59 -0700 (PDT) > > > thanks Diane. I will let the group know how my drs appt. went I see him august 1 > diane214@... wrote: Hi Debbie, > If you don't feel comfortable with you Dr. then by all means you >should at least get another oppinion and go from there. I just changed >my Dr. that I have been with for years. When I got real sick it was like >he showed no compassion. He was never that way before. Or maybe he was >and I didn't see thru him..... I still remember you when I think of the >loss of my close friend. I hope you are doing ok Debbie. I will pray for >you and your loss........ Good hearing from you!!!! ;o I am here if you >need to talk. > > Angel Hugs, > Diane > >May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity > > > > >

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Hello Darlene:

My name is and I'm rather new to the group also. I have found everyone to be kind, fun, informational and supportive. I too am from California, Southern Cali -- Orange County to be exact. There were a lot of us that played hard and some of us got caught and some others didn't.

I came to Texas in 1990 to Arlington with my family and then moved to Austin in 1992. I love it here in Austin...it's more laid back than Dallas and the live music is wonderful.

I was diagnosed recently with Hep C (April). So far my liver enzymes are normal and my abdominal ultrasound was normal too. There are no apparent signs of liver damage. Everyone here has encouraged me to do a liver biopsy, which the doc says is optional at this point, and I probably will in a few months.

I'm sure you'll find the some good support here that I have.

Welcome.

Darlene White <dcw915@...> wrote:

Hi Terry, I live in Fort Worth Texas but was born in California. I left California in 1976. Everybody, including me, were doing everything new drugs and we all were so crazy. We were no longer "human beings" just a bunch of lost souls. One night I was kidnapped by my friends after I had passed out. They decided I needed to go with them to get "clean" and relocate to Dennison Texas. I woke up the next day in a Van heading to Texas. I really believe God allowed this to happen. When I got clean, I called and went to live with my Dad and Step mother just outside Dallas. I became a professional in the Insurance Industry. Then in 1999 I was diagnosed with Chronic HCV. I knew I got it from doing drugs back in 1976. I did 8 months on the infusion therapy but I failed to respond. I just applied for the Peg-Intron Therapy Study at one of Dallas's hospital HALT-C Trial Study. I found the link from CDC/Hepatitis site. They have a list of each location/State where the HALT-C study trials are being done. This Program is absolutely free to the patient. Sorry I went on and on but I really do not have anyone to talk about my HCV disease situation. Darlene White Terry Long wrote:

Hi Darlene Wecome to the group, I am Terry & I live just out side of Phoenix Az. Where are you from. Terry Darlene White <dcw915@...> wrote:

Hello everyone I am a newby in this group. Regarding physicians. I am treating with a gastrointologist who specializes in treating Hepatitis Liver cases. Your primary physician most likely needs to refer you to this kind of specialist. He knew exactly how to treat you. Darlene debbie henning wrote:

Hi Maxine I agree It is our body and we should have a choice as to who is to be our dr or not I also have has about 5 different ones and still have not been completely happy ( is it me ) so now Im trying my sisters I hope this is the one Debbie MAXINE BEGONJA <bestweb20@...> wrote:

Debbie,

Don't worry about changing doctors. I am on my fourth and I think this is it. The first one had a factory.....all he wanted were the office visits he was going to get. The second one had told me that I had no scarring, everything was great, but that I SHOULD take the treatment. Never explained what stage I was in etc. The we moved from NY to Orlando,FL, found the third gastro, too busy, couldn't get thru to the office, nasty, rude.

I took 's advice - look for a caring one.....well I think I've found him.

It's your health and body. If you don't feel comfortable with the doctor, change them as often as you want until you feel comfortable with the right one.

Hope all works out for you.

Best wishes,

Maxine Begonja

>From: debbie henning

>Reply- > >Subject: Re: [ ] New to the group w/ questions >Date: Sun, 28 Jul 2002 07:49:59 -0700 (PDT) > > > thanks Diane. I will let the group know how my drs appt. went I see him august 1 > diane214@... wrote: Hi Debbie, > If you don't feel comfortable with you Dr. then by all means you >should at least get another oppinion and go from there. I just changed >my Dr. that I have been with for years. When I got real sick it was like >he showed no compassion. He was never that way before. Or maybe he was >and I didn't see thru him..... I still remember you when I think of the >loss of my close friend. I hope you are doing ok Debbie. I will pray for >you and your loss........ Good hearing from you!!!! ;o I am here if you >need to talk. > > Angel Hugs, > Diane > >May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity > > > > >

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Hello

I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

I STILL to this day "maintain" normal liver functions . I kept putting off my biopsy thinking everything was okay. Then my primary doctor setup a liver biopsy because my HCV liver enzemes had been high for 2 yrs.

My liver was found to be swollen and covered with scar tissue (fibrosis) but had not reached my portal which was still open. Soon after the biospy findings, I was started on the infusion therapy treament for 10 months which failed to kill all the HCV in my liver. Now I am waiting on the Peg-Intron Therapy treatment.

Darlene

M B wrote:

Hello Darlene: My name is and I'm rather new to the group also. I have found everyone to be kind, fun, informational and supportive. I too am from California, Southern Cali -- Orange County to be exact. There were a lot of us that played hard and some of us got caught and some others didn't.

I came to Texas in 1990 to Arlington with my family and then moved to Austin in 1992. I love it here in Austin...it's more laid back than Dallas and the live music is wonderful. I was diagnosed recently with Hep C (April). So far my liver enzymes are normal and my abdominal ultrasound was normal too. There are no apparent signs of liver damage. Everyone here has encouraged me to do a liver biopsy, which the doc says is optional at this point, and I probably will in a few months. I'm sure you'll find the some good support here that I have. Welcome. Darlene White <dcw915@...> wrote:

Hi Terry, I live in Fort Worth Texas but was born in California. I left California in 1976. Everybody, including me, were doing everything new drugs and we all were so crazy. We were no longer "human beings" just a bunch of lost souls. One night I was kidnapped by my friends after I had passed out. They decided I needed to go with them to get "clean" and relocate to Dennison Texas. I woke up the next day in a Van heading to Texas. I really believe God allowed this to happen. When I got clean, I called and went to live with my Dad and Step mother just outside Dallas. I became a professional in the Insurance Industry. Then in 1999 I was diagnosed with Chronic HCV. I knew I got it from doing drugs back in 1976. I did 8 months on the infusion therapy but I failed to respond. I just applied for the Peg-Intron Therapy Study at one of Dallas's hospital HALT-C Trial Study. I found the link from CDC/Hepatitis site. They have a list of each location/State where the HALT-C study trials are being done. This Program is absolutely free to the patient. Sorry I went on and on but I really do not have anyone to talk about my HCV disease situation. Darlene White

Terry Long wrote:

Hi Darlene Wecome to the group, I am Terry & I live just out side of Phoenix Az. Where are you from. Terry Darlene White <dcw915@...> wrote:

Hello everyone I am a newby in this group. Regarding physicians. I am treating with a gastrointologist who specializes in treating Hepatitis Liver cases. Your primary physician most likely needs to refer you to this kind of specialist. He knew exactly how to treat you. Darlene debbie henning wrote:

Hi Maxine I agree It is our body and we should have a choice as to who is to be our dr or not I also have has about 5 different ones and still have not been completely happy ( is it me ) so now Im trying my sisters I hope this is the one Debbie MAXINE BEGONJA <bestweb20@...> wrote:

Debbie,

Don't worry about changing doctors. I am on my fourth and I think this is it. The first one had a factory.....all he wanted were the office visits he was going to get. The second one had told me that I had no scarring, everything was great, but that I SHOULD take the treatment. Never explained what stage I was in etc. The we moved from NY to Orlando,FL, found the third gastro, too busy, couldn't get thru to the office, nasty, rude.

I took 's advice - look for a caring one.....well I think I've found him.

It's your health and body. If you don't feel comfortable with the doctor, change them as often as you want until you feel comfortable with the right one.

Hope all works out for you.

Best wishes,

Maxine Begonja

>From: debbie henning

>Reply- > >Subject: Re: [ ] New to the group w/ questions >Date: Sun, 28 Jul 2002 07:49:59 -0700 (PDT) > > > thanks Diane. I will let the group know how my drs appt. went I see him august 1 > diane214@... wrote: Hi Debbie, > If you don't feel comfortable with you Dr. then by all means you >should at least get another oppinion and go from there. I just changed >my Dr. that I have been with for years. When I got real sick it was like >he showed no compassion. He was never that way before. Or maybe he was >and I didn't see thru him..... I still remember you when I think of the >loss of my close friend. I hope you are doing ok Debbie. I will pray for >you and your loss........ Good hearing from you!!!! ;o I am here if you >need to talk. > > Angel Hugs, > Diane > >May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity > > > > >

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Hello Jan

I am originally for South California, city of Oceanside.

Jannewilms43@... wrote:

Darlene...Welcome..I am Jan from Louisiana...Where are you from??

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I don't know about the infusion therapy. Can you tell

me about it?

Sharon

--- Darlene White <dcw915@...> wrote:

>

> Hello

> I urgently request you have a liver biopsy to

> actually see if any damage is going on to catch it

> early for better recovery..

> I STILL to this day " maintain " normal liver

> functions . I kept putting off my biopsy thinking

> everything was okay. Then my primary doctor setup a

> liver biopsy because my HCV liver enzemes had been

> high for 2 yrs.

> My liver was found to be swollen and covered with

> scar tissue (fibrosis) but had not reached my portal

> which was still open. Soon after the biospy

> findings, I was started on the infusion therapy

> treament for 10 months which failed to kill all the

> HCV in my liver. Now I am waiting on the Peg-Intron

> Therapy treatment.

> Darlene

> M B wrote:

> Hello Darlene:

> My name is and I'm rather new to the group

> also. I have found everyone to be kind, fun,

> informational and supportive. I too am from

> California, Southern Cali -- Orange County to be

> exact. There were a lot of us that played hard and

> some of us got caught and some others didn't.

> I came to Texas in 1990 to Arlington with my family

> and then moved to Austin in 1992. I love it here in

> Austin...it's more laid back than Dallas and the

> live music is wonderful.

> I was diagnosed recently with Hep C (April). So far

> my liver enzymes are normal and my abdominal

> ultrasound was normal too. There are no apparent

> signs of liver damage. Everyone here has encouraged

> me to do a liver biopsy, which the doc says is

> optional at this point, and I probably will in a few

> months.

> I'm sure you'll find the some good support here that

> I have.

> Welcome.

>

> Darlene White <dcw915@...> wrote:

>

> Hi Terry,

> I live in Fort Worth Texas but was born in

> California. I left California in 1976. Everybody,

> including me, were doing everything new drugs and we

> all were so crazy. We were no longer " human beings "

> just a bunch of lost souls. One night I was

> kidnapped by my friends after I had passed out.

> They decided I needed to go with them to get " clean "

> and relocate to Dennison Texas. I woke up the next

> day in a Van heading to Texas. I really believe God

> allowed this to happen. When I got clean, I called

> and went to live with my Dad and Step mother just

> outside Dallas.

> I became a professional in the Insurance Industry.

> Then in 1999 I was diagnosed with Chronic HCV. I

> knew I got it from doing drugs back in 1976. I did

> 8 months on the infusion therapy but I failed to

> respond. I just applied for the Peg-Intron Therapy

> Study at one of Dallas's hospital HALT-C Trial

> Study. I found the link from CDC/Hepatitis site.

> They have a list of each location/State where the

> HALT-C study trials are being done. This Program is

> absolutely free to the patient.

> Sorry I went on and on but I really do not have

> anyone to talk about my HCV disease situation.

> Darlene White

>

> Terry Long

> wrote:

> Hi Darlene

> Wecome to the group, I am Terry & I live just

> out side of Phoenix Az. Where are you from.

> Terry

> Darlene White <dcw915@...> wrote:

> Hello everyone

> I am a newby in this group. Regarding physicians.

> I am treating with a gastrointologist who

> specializes in treating Hepatitis Liver cases. Your

> primary physician most likely needs to refer you to

> this kind of specialist. He knew exactly how to

> treat you.

> Darlene

> debbie henning wrote:

> Hi Maxine I agree It is our body and we should have

> a choice as to who is to be our dr or not I also

> have has about 5 different ones and still have not

> been completely happy ( is it me ) so now Im trying

> my sisters I hope this is the one Debbie

> MAXINE BEGONJA <bestweb20@...> wrote:

> Debbie,

>

> Don't worry about changing doctors. I am on my

> fourth and I think this is it. The first one had a

> factory.....all he wanted were the office visits he

> was going to get. The second one had told me that I

> had no scarring, everything was great, but that I

> SHOULD take the treatment. Never explained what

> stage I was in etc. The we moved from NY to

> Orlando,FL, found the third gastro, too busy,

> couldn't get thru to the office, nasty, rude.

>

> I took 's advice - look for a caring

> one.....well I think I've found him.

>

> It's your health and body. If you don't feel

> comfortable with the doctor, change them as often as

> you want until you feel comfortable with the right

> one.

>

> Hope all works out for you.

>

> Best wishes,

>

> Maxine Begonja

>

>

> >From: debbie henning >Reply-To:

> >To:

> >Subject: Re:

> [ ] New to the group w/ questions

> >Date: Sun, 28 Jul 2002 07:49:59 -0700 (PDT) > > >

> thanks Diane. I will let the group know how my drs

> appt. went I see him august 1 > diane214@...

> wrote: Hi Debbie, > If you don't feel comfortable

> with you Dr. then by all means you >should at least

> get another oppinion and go from there. I just

> changed >my Dr. that I have been with for years.

> When I got real sick it was like >he showed no

> compassion. He was never that way before. Or maybe

> he was >and I didn't see thru him..... I still

> remember you when I think of the >loss of my close

> friend. I hope you are doing ok Debbie. I will pray

> for >you and your loss........ Good hearing from

> you!!!! ;o I am here if you >need to talk. > > Angel

> Hugs, > Diane > >May Rainbow Dreams Color Your World

> With Love, Hope, Peace & Unity > > > > >

> Groups Sponsor Click here to find your contact

> lenses! >

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Darlene:

Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable.

I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol.

I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before.

Keep in touch,

Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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Dear , The fear and delay of having your liver biopsy done will determine your percentage of recovery, if any. Get it done ASAP. This is a fatal disease just like Cancer if you catch it early you have a higher change of recovery. I delayed my liver biopsy for 2 years. My delay allowed the HCV to reach a fibrosis stage 3 before my treatment was started. The infusion therapy was not able to kill the HCV in my liver/body. The infusion therapy is the first therapy treatment "protocol" your physician will do. The infusion therapy is a 26-48-52 weeks treatment which consist of the following: A monthly supply the medications will be mailed to you. You will receive a twisting measurable injection interferon pen that lasts 2-4 weeks. You will also receive a supply of Ribavirin pills which is an anti-viral agent that enhances the success to kill the HCV. You will be required to give monthly blood tests to monitor the treatment. By 6 months, if your HCV level is still high, they will discontinue the treatment because the treatment failed. If your HCV level is at the proper low ranch, the treatment will be continued up to 52 weeks. In reality, the treatment is trying to kill the HCV without killing the patient. This is the same treatment Naomi Judd had to go through. They caught the Active HCV in it's first stage which the infusion treatment was able to kill the HCV. If the HCV does not return in 6 months you are considered cured.

In Jan 2001 the Peg-Intron infusion therapy was approved to use in the USA. The clinical studies showed it to be 75% more effective in killing the HCV in patients that failed to respond to the infusion therapy. This treatment is my only hope at this time. From what I have read about the Peg-Intron therapy which about the same protocol but now the interferon has an agent that keeps the interferon longer in the body. This allows the interferon more time to kill more HCV. The treatment plan is: One injection a week given under the skin only. Rebetron pills will replace the other pills. You will be required to take these pills daily. HCV is a fatal disease with no definite cure. Once your liver reaches the the Cirrhosis stage it progresses to Cancer of the Liver. The only treatment available at this time is a liver transplant. You can read details information at http://hepatitis-central/hcv/treatment.html

I hope this letter brings the reality that the HCV is a Very Serious Fatal Disease that needs to be treated asap just like cancer.

Darlene

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Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day.

Terry

M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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Thanks for the info. I am on the peg-intron. I had

not heard of it as infusion therapy. Thanks so much

for the info.

Sharon

--- Darlene <dcw915@...> wrote:

>

> Dear ,

> The fear and delay of having your liver biopsy done

> will determine your percentage of recovery, if any.

> Get it done ASAP. This is a fatal disease just like

> Cancer if you catch it early you have a higher

> change of recovery. I delayed my liver biopsy for 2

> years. My delay allowed the HCV to reach a fibrosis

> stage 3 before my treatment was started. The

> infusion therapy was not able to kill the HCV in my

> liver/body.

> The infusion therapy is the first therapy treatment

> " protocol " your physician will do. The infusion

> therapy is a 26-48-52 weeks treatment which consist

> of the following: A monthly supply the medications

> will be mailed to you. You will receive a twisting

> measurable injection interferon pen that lasts 2-4

> weeks. You will also receive a supply of Ribavirin

> pills which is an anti-viral agent that enhances the

> success to kill the HCV. You will be required to

> give monthly blood tests to monitor the treatment.

> By 6 months, if your HCV level is still high, they

> will discontinue the treatment because the treatment

> failed. If your HCV level is at the proper low

> ranch, the treatment will be continued up to 52

> weeks. In reality, the treatment is trying to kill

> the HCV without killing the patient.

> This is the same treatment Naomi Judd had to go

> through. They caught the Active HCV in it's first

> stage which the infusion treatment was able to kill

> the HCV. If the HCV does not return in 6 months

> you are considered cured.

> In Jan 2001 the Peg-Intron infusion therapy was

> approved to use in the USA. The clinical studies

> showed it to be 75% more effective in killing the

> HCV in patients that failed to respond to the

> infusion therapy. This treatment is my only hope at

> this time. From what I have read about the

> Peg-Intron therapy which about the same protocol but

> now the interferon has an agent that keeps the

> interferon longer in the body. This allows the

> interferon more time to kill more HCV. The treatment

> plan is: One injection a week given under the skin

> only. Rebetron pills will replace the other pills.

> You will be required to take these pills daily. HCV

> is a fatal disease with no definite cure. Once your

> liver reaches the the Cirrhosis stage it progresses

> to Cancer of the Liver. The only treatment available

> at this time is a liver transplant.

> You can read details information at

> http://hepatitis-central/hcv/treatment.html

> I hope this letter brings the reality that the HCV

> is a Very Serious Fatal Disease that needs to be

> treated asap just like cancer.

> Darlene

>

>

>

> ---------------------------------

>

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, it's kind of ironic that many of the people who ostracize hcv victims are the ones who were doing the same things, but just got lucky enough not to get bitten! I talked to my dr about the stigma of having it and about the confidentiality. He told me I would be surprised who is being treated. It is not the "dregs of society" (my words), but normal upstanding citizens with families and good jobs and just happened to do a little drug experimentation in college or whatever. Many didn't even use drugs, but got it from other means, either transfusions,or sometimes unknown. I had taken the alcohol cure to my drug addictions, but luckily was 5 years clean and sober by the time I found out I had hcv. I think that God was working there, because who knows how much worse off I would have been if I had been still drinking those last 5 years. Well I'm droning on pretty good here too... By the way, while I would still recommend the biopsy for peace of mind, the ultrasound is not without value, it would certainly have show an enlargement of your liver which, I believe, is one of the first signs of damage. Mine was mildly inflamed (enlarged). -dz-

M B wrote:

Hello Darlene: My name is and I'm rather new to the group also. I have found everyone to be kind, fun, informational and supportive. I too am from California, Southern Cali -- Orange County to be exact. There were a lot of us that played hard and some of us got caught and some others didn't.

I came to Texas in 1990 to Arlington with my family and then moved to Austin in 1992. I love it here in Austin...it's more laid back than Dallas and the live music is wonderful. I was diagnosed recently with Hep C (April). So far my liver enzymes are normal and my abdominal ultrasound was normal too. There are no apparent signs of liver damage. Everyone here has encouraged me to do a liver biopsy, which the doc says is optional at this point, and I probably will in a few months. I'm sure you'll find the some good support here that I have. Welcome.

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,

I had a liver biopsy way back in '67 when I was hospitalized for "serum hepatitis."

It was rather unpleasant, so I wasn't looking forward to it when I had my biopsy last Fall. But it was like night and day, not nearly as unpleasant as the first time. A day to rest and recuperate and that was it.

By all means, get it done. It's the best diagnostic tool there is.

Best wishes,

Re: [ ] New to the group w/ questions

Dear , The fear and delay of having your liver biopsy done will determine your percentage of recovery, if any. Get it done ASAP. This is a fatal disease just like Cancer if you catch it early you have a higher change of recovery. I delayed my liver biopsy for 2 years. My delay allowed the HCV to reach a fibrosis stage 3 before my treatment was started. The infusion therapy was not able to kill the HCV in my liver/body. The infusion therapy is the first therapy treatment "protocol" your physician will do. The infusion therapy is a 26-48-52 weeks treatment which consist of the following: A monthly supply the medications will be mailed to you. You will receive a twisting measurable injection interferon pen that lasts 2-4 weeks. You will also receive a supply of Ribavirin pills which is an anti-viral agent that enhances the success to kill the HCV. You will be required to give monthly blood tests to monitor the treatment. By 6 months, if your HCV level is still high, they will discontinue the treatment because the treatment failed. If your HCV level is at the proper low ranch, the treatment will be continued up to 52 weeks. In reality, the treatment is trying to kill the HCV without killing the patient. This is the same treatment Naomi Judd had to go through. They caught the Active HCV in it's first stage which the infusion treatment was able to kill the HCV. If the HCV does not return in 6 months you are considered cured. In Jan 2001 the Peg-Intron infusion therapy was approved to use in the USA. The clinical studies showed it to be 75% more effective in killing the HCV in patients that failed to respond to the infusion therapy. This treatment is my only hope at this time. From what I have read about the Peg-Intron therapy which about the same protocol but now the interferon has an agent that keeps the interferon longer in the body. This allows the interferon more time to kill more HCV. The treatment plan is: One injection a week given under the skin only. Rebetron pills will replace the other pills. You will be required to take these pills daily. HCV is a fatal disease with no definite cure. Once your liver reaches the the Cirrhosis stage it progresses to Cancer of the Liver. The only treatment available at this time is a liver transplant. You can read details information at http://hepatitis-central/hcv/treatment.html I hope this letter brings the reality that the HCV is a Very Serious Fatal Disease that needs to be treated asap just like cancer. Darlene

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Darlene,

Thanks for the great medical info.

Re: [ ] New to the group w/ questions

Dear , The fear and delay of having your liver biopsy done will determine your percentage of recovery, if any. Get it done ASAP. This is a fatal disease just like Cancer if you catch it early you have a higher change of recovery. I delayed my liver biopsy for 2 years. My delay allowed the HCV to reach a fibrosis stage 3 before my treatment was started. The infusion therapy was not able to kill the HCV in my liver/body. The infusion therapy is the first therapy treatment "protocol" your physician will do. The infusion therapy is a 26-48-52 weeks treatment which consist of the following: A monthly supply the medications will be mailed to you. You will receive a twisting measurable injection interferon pen that lasts 2-4 weeks. You will also receive a supply of Ribavirin pills which is an anti-viral agent that enhances the success to kill the HCV. You will be required to give monthly blood tests to monitor the treatment. By 6 months, if your HCV level is still high, they will discontinue the treatment because the treatment failed. If your HCV level is at the proper low ranch, the treatment will be continued up to 52 weeks. In reality, the treatment is trying to kill the HCV without killing the patient. This is the same treatment Naomi Judd had to go through. They caught the Active HCV in it's first stage which the infusion treatment was able to kill the HCV. If the HCV does not return in 6 months you are considered cured. In Jan 2001 the Peg-Intron infusion therapy was approved to use in the USA. The clinical studies showed it to be 75% more effective in killing the HCV in patients that failed to respond to the infusion therapy. This treatment is my only hope at this time. From what I have read about the Peg-Intron therapy which about the same protocol but now the interferon has an agent that keeps the interferon longer in the body. This allows the interferon more time to kill more HCV. The treatment plan is: One injection a week given under the skin only. Rebetron pills will replace the other pills. You will be required to take these pills daily. HCV is a fatal disease with no definite cure. Once your liver reaches the the Cirrhosis stage it progresses to Cancer of the Liver. The only treatment available at this time is a liver transplant. You can read details information at http://hepatitis-central/hcv/treatment.html I hope this letter brings the reality that the HCV is a Very Serious Fatal Disease that needs to be treated asap just like cancer. Darlene

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Hey guys,

Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results?

Thanks in advance,

Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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Darlene:

Your concern is touching and you're right, I have been feeling like I can put this off because there is no apparent immediate danger. So, all of ya'll (a word I learned here in TX, lol) have convinced me that the liver biopsy is the thing to do. I do need to wait for a couple of months until my mental health medication on my new dose has had a chance to stabilize. I have been going through a bout of depression in the last couple of months. I know that part of this is because of finding out about the Hep C, but it is something I just have to deal with from time to time. If I am in active depression, the doctor says that they cannot treat me anyway. My mental health has to be stable for them to do any treatment. So, I'll just have to wait for a little while to get the biopsy and then we can go from there.

Thank you for sharing your story and the information. It really has been helpful to know that putting this off for a long length of time could be really harmful to my chances of treatment success.

Hanging In There,

Darlene <dcw915@...> wrote:

Dear , The fear and delay of having your liver biopsy done will determine your percentage of recovery, if any. Get it done ASAP. This is a fatal disease just like Cancer if you catch it early you have a higher change of recovery. I delayed my liver biopsy for 2 years. My delay allowed the HCV to reach a fibrosis stage 3 before my treatment was started. The infusion therapy was not able to kill the HCV in my liver/body. The infusion therapy is the first therapy treatment "protocol" your physician will do. The infusion therapy is a 26-48-52 weeks treatment which consist of the following: A monthly supply the medications will be mailed to you. You will receive a twisting measurable injection interferon pen that lasts 2-4 weeks. You will also receive a supply of Ribavirin pills which is an anti-viral agent that enhances the success to kill the HCV. You will be required to give monthly blood tests to monitor the treatment. By 6 months, if your HCV level is still high, they will discontinue the treatment because the treatment failed. If your HCV level is at the proper low ranch, the treatment will be continued up to 52 weeks. In reality, the treatment is trying to kill the HCV without killing the patient. This is the same treatment Naomi Judd had to go through. They caught the Active HCV in it's first stage which the infusion treatment was able to kill the HCV. If the HCV does not return in 6 months you are considered cured. In Jan 2001 the Peg-Intron infusion therapy was approved to use in the USA. The clinical studies showed it to be 75% more effective in killing the HCV in patients that failed to respond to the infusion therapy. This treatment is my only hope at this time. From what I have read about the Peg-Intron therapy which about the same protocol but now the interferon has an agent that keeps the interferon longer in the body. This allows the interferon more time to kill more HCV. The treatment plan is: One injection a week given under the skin only. Rebetron pills will replace the other pills. You will be required to take these pills daily. HCV is a fatal disease with no definite cure. Once your liver reaches the the Cirrhosis stage it progresses to Cancer of the Liver. The only treatment available at this time is a liver transplant. You can read details information at http://hepatitis-central/hcv/treatment.html I hope this letter brings the reality that the HCV is a Very Serious Fatal Disease that needs to be treated asap just like cancer. Darlene

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They gave me a short acting general anesthetic. So I

was out but just for the procedure. I know many times

they don't put you out. It was really easy the way I

did it. The hardest part for me was laying on my side

for a couple of hours afterwards. I don't sit idle

very well. If I ever need another one I will bring a

book.The first hour I slept on and off. The second

hour I watched the clock. Some drs. make you stay 4

hours. I had more trouble with worrying about the

procedure and the results. I'd do it again tomorrow if

it would help me, it was really no big deal.

Sharon

--- M B <bestofmarys57@...> wrote:

>

> Hey guys,

> Do they put you to sleep or are you awake? About

> how long does it take? How soon do you get to know

> the results?

> Thanks in advance,

> Darlene <dcw915@...> wrote:

> You feel sore on your right upper side. They take it

> just below your right rib cage. You really don't

> feel like driving that day or any active projects.

> Take the day off.

> Darlene

> Terry Long

> wrote:

> Darlene, a biopsy is fairly painless. You do have

> to take easy for the rest of the day. They don't

> want you driving the rest of the day.

> Terry

> M B <bestofmarys57@...> wrote:

> Darlene:

> Thank you for the encouragement. I am waiting to

> stabilize on some medication before I proceed but

> with each encouragement it is helping me to get over

> the fear of having the biopsy. One fear is the

> biopsy itself but I think the greater fear is what

> do you do when you find out the results of the

> biopsy. I'm grateful I have this group. It will

> make whatever comes up next be more manageable.

> I love Oceanside where you used to live. It is one

> of my favorite communities in the San Diego area. I

> miss those ocean breezes, especially in 98 degree

> weather, lol.

> I hope your new treatment comes through for you soon

> and that it works better for you than the other type

> therapy. I have not heard of that type of therapy

> before.

> Keep in touch,

> Darlene White <dcw915@...> wrote:

> Hello

> I urgently request you have a liver biopsy to

> actually see if any damage is going on to catch it

> early for better recovery..

>

>

>

> ---------------------------------

>

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They don't put you to sleep. I guess you need to remain concious for the procedure, but I don't remember it. they gave me 2 meds, one for pain and one that would make me forget what happened, some valium like drug. I got the results immediately. The procedure didn't take too long, but they keep you for a few hours to make sure that you don't start bleeding. I had some discomfort for the rest of that day and was not quite up to par the next, but close. -dz-

M B wrote:

Hey guys, Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results? Thanks in advance, Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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you are awake. They numb you & you don't feel very much. The biopsy it self take's less then 30 minutes. But they have some things they have to do before hand & they want to watch you a few hours afterwards. I checked in at 6:00 that morning & didn't leave till 1:30 that afternoon.

Terry

M B <bestofmarys57@...> wrote:

Hey guys, Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results? Thanks in advance, Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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Hi

Regarding the liver Biopsy procedure, you are put to sleep. The results takes 2-3 days at the most.

Darlene

M B wrote:

Hey guys, Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results? Thanks in advance, Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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Hi

Regarding the liver Biopsy procedure, you are put to sleep. The results takes 2-3 days at the most.

Darlene

M B wrote:

Hey guys, Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results? Thanks in advance, Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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mary they do NOT put you to sleep. Ive had 2 biopsys and I was await.It does not hurt you just feel alittle pressure thats it ...Deb(giglebut)

Darlene <dcw915@...> wrote:

Hi Regarding the liver Biopsy procedure, you are put to sleep. The results takes 2-3 days at the most. Darlene M B wrote:

Hey guys, Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results? Thanks in advance, Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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My heart goes out to you..YOu are not alone we are here for you whenever you need to talk...It doesn't matter what you need or want to talk about we are here for you..If there is any of us you'd like to e-mail personally feel free to do so..I am always on line usually...

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Well I have just been in a VERY aggrevated mood today..Worst one in a while..Hopefully it too shall pass!!

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So you see , it depends on your dr. but it's

pretty easy awake or asleep.

Sharon

--- M B <bestofmarys57@...> wrote:

>

> Hey guys,

> Do they put you to sleep or are you awake? About

> how long does it take? How soon do you get to know

> the results?

> Thanks in advance,

> Darlene <dcw915@...> wrote:

> You feel sore on your right upper side. They take it

> just below your right rib cage. You really don't

> feel like driving that day or any active projects.

> Take the day off.

> Darlene

> Terry Long

> wrote:

> Darlene, a biopsy is fairly painless. You do have

> to take easy for the rest of the day. They don't

> want you driving the rest of the day.

> Terry

> M B <bestofmarys57@...> wrote:

> Darlene:

> Thank you for the encouragement. I am waiting to

> stabilize on some medication before I proceed but

> with each encouragement it is helping me to get over

> the fear of having the biopsy. One fear is the

> biopsy itself but I think the greater fear is what

> do you do when you find out the results of the

> biopsy. I'm grateful I have this group. It will

> make whatever comes up next be more manageable.

> I love Oceanside where you used to live. It is one

> of my favorite communities in the San Diego area. I

> miss those ocean breezes, especially in 98 degree

> weather, lol.

> I hope your new treatment comes through for you soon

> and that it works better for you than the other type

> therapy. I have not heard of that type of therapy

> before.

> Keep in touch,

> Darlene White <dcw915@...> wrote:

> Hello

> I urgently request you have a liver biopsy to

> actually see if any damage is going on to catch it

> early for better recovery..

>

>

>

> ---------------------------------

>

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Good Afternoon

I still have serve fatigue and depression from the treatment. I was going through menpause right before I started the treatment. I was a crazy women on menopause. I had panic attacks, fear, fatigue, the sweats. My doctor forgot about my menopause symptoms when they started the treatment. So my doctor believed my depression and fatigue was from the treatment. He did treat my depression and fatigue etc. while I continued with the treatment. After the treatment ended, the depression, fatigue, and mental confusion remains to this day and is being treated.

I read; A patient who has depression and the HCV treatment is needed, they recommend that the patient's depression be stable and not suicidal. The HCV will increase the depression symptoms but as long as a doctor has your depression under control throughout the treatment, they can start the HCV treatment. They can always suspend the treatment if other problems arise. I had to have a blood transfusion 3 months into the treatment because my CBC dropped from 12 to 9. I was off the treatment for 2 weeks and then treatment was resumed. This is so funny what happend to me. When I was going through the third month of treatment.

I started getting weak and dizzy when I stood up, my joints pain was worse and the fatigue was severe. I had to buy a cane just to walk at work and home. I slept the whole day on the weekends. I went for my monthly blood test. My doctor called me a few days later. He asked if I had been feeling weak ect. I stated yes and that I had to use a cane. He said it was because my red blood count dropped from 12 to 9 and that I did not have enough red blood cells to support my body functions. This never crossed my mind when it should have Duh!!!

I heard is HCV negative post 3 months. This is absolutely wonderful news to hear. Darlene

M B wrote:

Darlene: Your concern is touching and you're right, I have been feeling like I can put this off because there is no apparent immediate danger. So, all of ya'll (a word I learned here in TX, lol) have convinced me that the liver biopsy is the thing to do. I do need to wait for a couple of months until my mental health medication on my new dose has had a chance to stabilize. I have been going through a bout of depression in the last couple of months. I know that part of this is because of finding out about the Hep C, but it is something I just have to deal with from time to time. If I am in active depression, the doctor says that they cannot treat me anyway. My mental health has to be stable for them to do any treatment. So, I'll just have to wait for a little while to get the biopsy and then we can go from there. Thank you for sharing your story and the information. It really has been helpful to know that putting this off for a long length of time could be really harmful to my chances of treatment success. Hanging In There, Darlene <dcw915@...> wrote:

Dear , The fear and delay of having your liver biopsy done will determine your percentage of recovery, if any. Get it done ASAP. This is a fatal disease just like Cancer if you catch it early you have a higher change of recovery. I delayed my liver biopsy for 2 years. My delay allowed the HCV to reach a fibrosis stage 3 before my treatment was started. The infusion therapy was not able to kill the HCV in my liver/body. The infusion therapy is the first therapy treatment "protocol" your physician will do. The infusion therapy is a 26-48-52 weeks treatment which consist of the following: A monthly supply the medications will be mailed to you. You will receive a twisting measurable injection interferon pen that lasts 2-4 weeks. You will also receive a supply of Ribavirin pills which is an anti-viral agent that enhances the success to kill the HCV. You will be required to give monthly blood tests to monitor the treatment. By 6 months, if your HCV level is still high, they will discontinue the treatment because the treatment failed. If your HCV level is at the proper low ranch, the treatment will be continued up to 52 weeks. In reality, the treatment is trying to kill the HCV without killing the patient. This is the same treatment Naomi Judd had to go through. They caught the Active HCV in it's first stage which the infusion treatment was able to kill the HCV. If the HCV does not return in 6 months you are considered cured. In Jan 2001 the Peg-Intron infusion therapy was approved to use in the USA. The clinical studies showed it to be 75% more effective in killing the HCV in patients that failed to respond to the infusion therapy. This treatment is my only hope at this time. From what I have read about the Peg-Intron therapy which about the same protocol but now the interferon has an agent that keeps the interferon longer in the body. This allows the interferon more time to kill more HCV. The treatment plan is: One injection a week given under the skin only. Rebetron pills will replace the other pills. You will be required to take these pills daily. HCV is a fatal disease with no definite cure. Once your liver reaches the the Cirrhosis stage it progresses to Cancer of the Liver. The only treatment available at this time is a liver transplant. You can read details information at http://hepatitis-central/hcv/treatment.html I hope this letter brings the reality that the HCV is a Very Serious Fatal Disease that needs to be treated asap just like cancer. Darlene

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Hello Debbie

It is really the Doctor's choice to choose a local or put you to sleep. My doctor asked me what I wanted. I elected to be put to sleep because I did not want to watch. The cost is less expensive with a local procedure. My doctor told me the reason they keep you in the hsp for 6 hrs post procedure, they want to be sure there is no internal bleeding from the procedure. Darlene

debbie henning wrote:

mary they do NOT put you to sleep. Ive had 2 biopsys and I was await.It does not hurt you just feel alittle pressure thats it ...Deb(giglebut) Darlene <dcw915@...> wrote:

Hi Regarding the liver Biopsy procedure, you are put to sleep. The results takes 2-3 days at the most. Darlene M B wrote:

Hey guys, Do they put you to sleep or are you awake? About how long does it take? How soon do you get to know the results? Thanks in advance, Darlene <dcw915@...> wrote:

You feel sore on your right upper side. They take it just below your right rib cage. You really don't feel like driving that day or any active projects. Take the day off. Darlene Terry Long wrote:

Darlene, a biopsy is fairly painless. You do have to take easy for the rest of the day. They don't want you driving the rest of the day. Terry M B <bestofmarys57@...> wrote:

Darlene: Thank you for the encouragement. I am waiting to stabilize on some medication before I proceed but with each encouragement it is helping me to get over the fear of having the biopsy. One fear is the biopsy itself but I think the greater fear is what do you do when you find out the results of the biopsy. I'm grateful I have this group. It will make whatever comes up next be more manageable. I love Oceanside where you used to live. It is one of my favorite communities in the San Diego area. I miss those ocean breezes, especially in 98 degree weather, lol. I hope your new treatment comes through for you soon and that it works better for you than the other type therapy. I have not heard of that type of therapy before. Keep in touch, Darlene White <dcw915@...> wrote:

Hello I urgently request you have a liver biopsy to actually see if any damage is going on to catch it early for better recovery..

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