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---

Oooo Jan you said it! I am soo glad to have BfL. Now that somethings

are straighented out for me, it is a bit easier to focus on working

really hard and having fun with this program. I do love this board.

Although I can be obnoxiously over the top sometimes, everyone still

lufts ya! My brain likes to do roadblocks too, I just crash through

at this time in my life. Gotta do what ya gotta do. You are very well

spoken. I mean I like your views!

Kathi (who's just another name)

In , jeahere <no_reply@y...>

wrote:

>

> Kathi,

> Glad you liked the reference. It's how I view with living with a

> brain that puts up roadblocks to success. But you're right.

Everyone

> has " elephants " . Sometimes they're internal (mood disorders, eating

> disorders, etc.) and sometimes they're external (loved ones and

pets

> dying, financial worries, etc.).That's the thing that's great about

> this board is that everyone can " out " their problems. That, and we

> all feel lucky that we've got BFL to give us a framework for at

least

> one of our problems ;-)

> Jan

>

>

> > > Hey Kathi,

> > > I just wanted to say that I salute you. Life is a journey and

for

> > > those of us who deal with mood disorders it's kind of like

doing

> > the

> > > journey while " Pushing an elephant up the stairs " *

> > > Jan

> > >

> > > *The Great Beyond - R.E.M.

> > > http://www.angelfire.com/ny5/lyricness/lyrics/thegreatbeyond.htm

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Question~ If you know enough to not vaccinate, then why are you agreeing to

an induction?

LOL, I knew I'd get shit for this ....

because my baby is at risk for staying inside. I have high blood pressure and

gestational diabetes. He has too much fluid. His non stress tests have sucked

for the last 3 weeks. That and the fluid is what sent us to the Perinatologist

last week.

I realize Pitocin has chemicals. It also has mercury, but I will not take the

risk of a still birth based on my medical history. That's unfair to me, the

daddy and the baby. I will likely end up with cervidil (will NOT get cytotec)

..... I am doing RRL tea, and starting Evening Primrose Oil tomorrow. My oldest

came 37 weeks, my water broke on it's own, he wasn't even close to being ready,

I was 0 high and tottally closed when my water broke ... his delivery was a

nightmare from hell, but he nursed well, his lungs were fine. We're not

delivering until we're sure this little guys lungs are ready. I am secure in

our decision based on the fact that he will be better off growing outside than

inside.

They already know that I will labor for as long as needed not to even try to

push me for a c-section. My doula is totally supportive of our decision to go

with the specialists recommendations. She has experience helping mom's being

induced, so I am pretty sure I can do this without the epidural (I DO NOT want

another lumbar puncture - last one for a discogram left me with a 4 day loss in

time due to spinal headache)

I wanted very much for this to be as natural as possible, but God obviously has

other plans. I'm still hoping to go into labor on my own in the next 2 weeks

(which would put me somewhat early) This is a far cry from what I really

wanted. I wanted to labor at home ... but with high blood pressure, that's just

not safe, I am practical if nothing else.

I really appreciate the concern, I can only do what I feel is safest for my son

and for me. The diabetes doesn't concern me near as much as the blood pressure.

I asked for the induction based on the specialists recommendations. I actually

am pushing to be in there for the amnio a week before they want to do it. I'd

rather be safe than sorry.

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~

Now that you've explained more, I understand :-) I'm sorry you aren't

getting the labor/birth you originally wanted, I know from experience how

badly that sucks ;-) Good luck!

Jan

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I was induced with my last baby. It was also due to high blood pressure.

I received prostaglandin gel in the hospital (I was already dilated to 3 cms

before labor started so that helped things along tremendously!!)

The gel got me to 5 cms and then the doctor broke my water. I never needed

pitocin and never had any pain medication.

My doula was great!! All told, the labor was my easiest one. She was born

in one contraction, two pushes, and I had no episiotomy. (I did need two

stitches afterward, because I had a compound presentation -- her hand came

out along side of her head.)

She was also my biggest baby, despite being born a week early, at 8lbs 3ozs.

Good luck with your upcoming birth!!

Re: Jan

> Question~ If you know enough to not vaccinate, then why are you agreeing

to

> an induction?

>

> LOL, I knew I'd get shit for this ....

>

> because my baby is at risk for staying inside. I have high blood pressure

and gestational diabetes. He has too much fluid. His non stress tests have

sucked for the last 3 weeks. That and the fluid is what sent us to the

Perinatologist last week.

>

> I realize Pitocin has chemicals. It also has mercury, but I will not take

the risk of a still birth based on my medical history. That's unfair to me,

the daddy and the baby. I will likely end up with cervidil (will NOT get

cytotec) .... I am doing RRL tea, and starting Evening Primrose Oil

tomorrow. My oldest came 37 weeks, my water broke on it's own, he wasn't

even close to being ready, I was 0 high and tottally closed when my water

broke ... his delivery was a nightmare from hell, but he nursed well, his

lungs were fine. We're not delivering until we're sure this little guys

lungs are ready. I am secure in our decision based on the fact that he will

be better off growing outside than inside.

>

> They already know that I will labor for as long as needed not to even try

to push me for a c-section. My doula is totally supportive of our decision

to go with the specialists recommendations. She has experience helping mom's

being induced, so I am pretty sure I can do this without the epidural (I DO

NOT want another lumbar puncture - last one for a discogram left me with a 4

day loss in time due to spinal headache)

>

> I wanted very much for this to be as natural as possible, but God

obviously has other plans. I'm still hoping to go into labor on my own in

the next 2 weeks (which would put me somewhat early) This is a far cry from

what I really wanted. I wanted to labor at home ... but with high blood

pressure, that's just not safe, I am practical if nothing else.

>

> I really appreciate the concern, I can only do what I feel is safest for

my son and for me. The diabetes doesn't concern me near as much as the

blood pressure. I asked for the induction based on the specialists

recommendations. I actually am pushing to be in there for the amnio a week

before they want to do it. I'd rather be safe than sorry.

>

>

>

>

>

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,

It's the prostaglandins in Omega 3 which will induce the delivery when the

body thinks its the right time. It should also reduce the pain.

If you up the EPO you should definately up the Omega 3.

Re: Jan

> Question~ If you know enough to not vaccinate, then why are you agreeing

to

> an induction?

>

> LOL, I knew I'd get shit for this ....

>

> because my baby is at risk for staying inside. I have high blood pressure

and gestational diabetes. He has too much fluid. His non stress tests have

sucked for the last 3 weeks. That and the fluid is what sent us to the

Perinatologist last week.

>

> I realize Pitocin has chemicals. It also has mercury, but I will not take

the risk of a still birth based on my medical history. That's unfair to me,

the daddy and the baby. I will likely end up with cervidil (will NOT get

cytotec) .... I am doing RRL tea, and starting Evening Primrose Oil

tomorrow. My oldest came 37 weeks, my water broke on it's own, he wasn't

even close to being ready, I was 0 high and tottally closed when my water

broke ... his delivery was a nightmare from hell, but he nursed well, his

lungs were fine. We're not delivering until we're sure this little guys

lungs are ready. I am secure in our decision based on the fact that he will

be better off growing outside than inside.

>

> They already know that I will labor for as long as needed not to even try

to push me for a c-section. My doula is totally supportive of our decision

to go with the specialists recommendations. She has experience helping mom's

being induced, so I am pretty sure I can do this without the epidural (I DO

NOT want another lumbar puncture - last one for a discogram left me with a 4

day loss in time due to spinal headache)

>

> I wanted very much for this to be as natural as possible, but God

obviously has other plans. I'm still hoping to go into labor on my own in

the next 2 weeks (which would put me somewhat early) This is a far cry from

what I really wanted. I wanted to labor at home ... but with high blood

pressure, that's just not safe, I am practical if nothing else.

>

> I really appreciate the concern, I can only do what I feel is safest for

my son and for me. The diabetes doesn't concern me near as much as the

blood pressure. I asked for the induction based on the specialists

recommendations. I actually am pushing to be in there for the amnio a week

before they want to do it. I'd rather be safe than sorry.

>

>

>

>

>

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Hi Jan. It sounds like you live in Canada. I do and I wonder if you

have ever come up against the workers Compensation here. I have DDD, 3

bulding disks and stenosis in 2 areas of the back ,..the moderate stensis is

in the lumber area as are the buldges.I have 2 old wedge compression

fractures above the lumber area which add to the pain when everyhting flares

up. I had no pain until that faitful night last May at work. I did a

twisting ,pulling weight thing at work , and then my whole back went to

" Hell in a handbasket " I have been on diaudid which works sometimes but,

not all the time plus elavil and an antianxity. Now after 11 months of

going downhill as far as my abilities go ,Comp has closed my claim and I

have about 20 days left to appeal. I have connected with the Injured Workers

Assosiation to get some help with the appeal. I find the added stress makes

the pain worse. I begun physio again after a few months rest from it while

they did Xrays, An MRI,CAT Scan and 2 epidural needles and facet joint

injections.etc. Today was my second day back and I am some sore.I have 2

more date to get 2 more epidurals done in Halifax.I like to get info on pain

medications and any info at all how to fight Comensation fro taking my

benefits plus medical assistance. Jackie

>From: " Cunningham " <mermaid@...>

>Reply-spinaldisorderssupport

><spinaldisorderssupport >

>Subject: Jan

>Date: Fri, 4 Apr 2003 21:55:23 -0800

>

>I agree that NOTHING really helps when your back gets into a flare up. I

>am

>still struggling with neurontin and everybody I know hates the drug and is

>struggling too so you are fortunate. I am up to 100 mgs twivce a day and am

>tolerating it and have not lost my cognitive factors, my headaches have

>gone

>and my eye pain has abated but they are trying to get me up to 300 mgs

>thrice daily, it helps with neuropathic pain ONLY but does nothing for my

>back pain or arthritis. It is usually given for neuropathic pain. I found

>ultram useless, fentanyl patch is better if you can tolerate it but

>expensive and morphine is the gold standard as any good pain management

>person knows. One does not get addicted if one has real pain, yes one can

>get physically addicted, but once the pain goes, which it probably will

>not,

>you would just titre down and stop taking the morphine,. I stopped the

>fentanyl and had to wait three weeks to clear my system and had taken it

>for

>a year. NO withdrawal but rush in of extreme pain which made me throw up it

>was so intense. Morphine liquid has saved my quality of life. I bless the

>doctors for helping me or I could not get out of bed, Hope you can get

>better relief, if you need pain relief articles for your doctor, let me

>know

>, I have tons of them, Peace love and blessings, TORI

>

_________________________________________________________________

Help STOP SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

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Hi Jan. It sounds like you live in Canada. I do and I wonder if you

have ever come up against the workers Compensation here. I have DDD, 3

bulding disks and stenosis in 2 areas of the back ,..the moderate stensis is

in the lumber area as are the buldges.I have 2 old wedge compression

fractures above the lumber area which add to the pain when everyhting flares

up. I had no pain until that faitful night last May at work. I did a

twisting ,pulling weight thing at work , and then my whole back went to

" Hell in a handbasket " I have been on diaudid which works sometimes but,

not all the time plus elavil and an antianxity. Now after 11 months of

going downhill as far as my abilities go ,Comp has closed my claim and I

have about 20 days left to appeal. I have connected with the Injured Workers

Assosiation to get some help with the appeal. I find the added stress makes

the pain worse. I begun physio again after a few months rest from it while

they did Xrays, An MRI,CAT Scan and 2 epidural needles and facet joint

injections.etc. Today was my second day back and I am some sore.I have 2

more date to get 2 more epidurals done in Halifax.I like to get info on pain

medications and any info at all how to fight Comensation fro taking my

benefits plus medical assistance. Jackie

>From: " Cunningham " <mermaid@...>

>Reply-spinaldisorderssupport

><spinaldisorderssupport >

>Subject: Jan

>Date: Fri, 4 Apr 2003 21:55:23 -0800

>

>I agree that NOTHING really helps when your back gets into a flare up. I

>am

>still struggling with neurontin and everybody I know hates the drug and is

>struggling too so you are fortunate. I am up to 100 mgs twivce a day and am

>tolerating it and have not lost my cognitive factors, my headaches have

>gone

>and my eye pain has abated but they are trying to get me up to 300 mgs

>thrice daily, it helps with neuropathic pain ONLY but does nothing for my

>back pain or arthritis. It is usually given for neuropathic pain. I found

>ultram useless, fentanyl patch is better if you can tolerate it but

>expensive and morphine is the gold standard as any good pain management

>person knows. One does not get addicted if one has real pain, yes one can

>get physically addicted, but once the pain goes, which it probably will

>not,

>you would just titre down and stop taking the morphine,. I stopped the

>fentanyl and had to wait three weeks to clear my system and had taken it

>for

>a year. NO withdrawal but rush in of extreme pain which made me throw up it

>was so intense. Morphine liquid has saved my quality of life. I bless the

>doctors for helping me or I could not get out of bed, Hope you can get

>better relief, if you need pain relief articles for your doctor, let me

>know

>, I have tons of them, Peace love and blessings, TORI

>

_________________________________________________________________

Help STOP SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

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Jan,

Could you just e-mail me daily, perhaps half a dozen of you need to

e-mail me daily, to remind me that if I'm feeling better it is not a

message from God to clean out a closet. I was up at 6 this morning

and feelin' great - as my posts might have indicated.. ;+> Well,

the plane crashed rather spectacularily at about 11:30am and is now

in smoldering ruins. I slept most of the afternoon. I've noticed

that I have new hardened veins on the back of my right hand so we're

off to the walk in clinic in the morning since the first round of

antibiotics apparently did not take care of the Phlebitis. I

haven't even showered yet, which in my book is fairly closely

related to disgusting, although I'll make it before bed time.

I'm really sorry the procedure set off more pain for you. I was

hoping it would be a cake walk and that the week would be mostly

about fun for you. If they do have to do a butt surgery on you, you

might think about having the incision done in a heart shape - kinda

a Lolita thing. It would look stunning on the beaches since you are

in Florida!

I know what you mean about not being able to stretch or exercise.

My daily routine has included 15-20 min of stretching every day and

I miss stretching! I find myself reaching over my head to stretch

every once in a while and then pull my arms back to the body in

horror of screwing up the healing back.

I hope back to school on Monday goes well for you. You work into

June in Florida, don't you? In Minnesota, school doesn't begin

until after Labor Day, and winds up the week after Memorial Day so

we have a glorious full 3 months off in the summer - except for some

of us who will have had a full 9 months off...

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Jan,

Could you just e-mail me daily, perhaps half a dozen of you need to

e-mail me daily, to remind me that if I'm feeling better it is not a

message from God to clean out a closet. I was up at 6 this morning

and feelin' great - as my posts might have indicated.. ;+> Well,

the plane crashed rather spectacularily at about 11:30am and is now

in smoldering ruins. I slept most of the afternoon. I've noticed

that I have new hardened veins on the back of my right hand so we're

off to the walk in clinic in the morning since the first round of

antibiotics apparently did not take care of the Phlebitis. I

haven't even showered yet, which in my book is fairly closely

related to disgusting, although I'll make it before bed time.

I'm really sorry the procedure set off more pain for you. I was

hoping it would be a cake walk and that the week would be mostly

about fun for you. If they do have to do a butt surgery on you, you

might think about having the incision done in a heart shape - kinda

a Lolita thing. It would look stunning on the beaches since you are

in Florida!

I know what you mean about not being able to stretch or exercise.

My daily routine has included 15-20 min of stretching every day and

I miss stretching! I find myself reaching over my head to stretch

every once in a while and then pull my arms back to the body in

horror of screwing up the healing back.

I hope back to school on Monday goes well for you. You work into

June in Florida, don't you? In Minnesota, school doesn't begin

until after Labor Day, and winds up the week after Memorial Day so

we have a glorious full 3 months off in the summer - except for some

of us who will have had a full 9 months off...

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> Thanks for the suggestion of the heart incision! There is actually two

incisions, one on each side of the butt crack. I was thinking of some

creative tatoo over those incisions!! Any suggestions?!? ;-)

> Jan

Wait, doesn't it already look like =-) or if you eat a lot of pie

then it's: =---)

joe

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> Thanks for the suggestion of the heart incision! There is actually two

incisions, one on each side of the butt crack. I was thinking of some

creative tatoo over those incisions!! Any suggestions?!? ;-)

> Jan

Wait, doesn't it already look like =-) or if you eat a lot of pie

then it's: =---)

joe

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Jan,

Just wanted to let you know that you and your hubby will be in my prayers. I hope his surgery and recovery are uneventful and that the surgery provides him relief of his back pain. Please do try to rest yourself as you can, also.

W

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Thanks Jan. There are a lot of animal lovers on here so I knew you guys would understand.

I read your post about your toes have you tried to get a picture of them so you don't forget what they look like while you recuperate? LOL just an idea.

the

WV hillbilly

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Jan my heart goes out to you. My sister had to put her dog to sleep Friday and I know how you are feeling.

the

WV hillbilly

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Hi Carol......glad you bx was straightforward, Ill write later.....gosh Ive

got some stories to tell as well but a little reluctant to post them as some

of them even I dont believe could have happened. Even one where I

downtrouwed. Have a good day.

Love Jan

>

>

>

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Re: [ ] Jan

Hi Carol......glad you bx was straightforward, Ill write later.....gosh Ive

got some stories to tell as well but a little reluctant to post them as some

of them even I dont believe could have happened. Even one where I

downtrouwed. Have a good day. Love Jan

>

>

>

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Jan Sometimes I think your English is different from the English we speak

here is the States

Patty

Re: [ ] Jan

Hi Carol......glad you bx was straightforward, Ill write later.....gosh Ive

got some stories to tell as well but a little reluctant to post them as some

of them even I dont believe could have happened. Even one where I

downtrouwed. Have a good day. Love Jan

>

>

>

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Hatches were/are the openings/doors accessing the cargo hold on the deck of ships. To "batten down the hatches" meant to close the door & make it more waterproof so that when the waves washed over the deck the water wouldn't run into the hold & sink the ship.

CoraLynn

ne TN

What the heck does "batten down the hatches" mean anyway?

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Hi Jan, That is interesting. I hope the article shows up in the US

newspapers. I wonder if people with auto-immune diseases automatically

have this protein in high numbers. I use to handle stress pretty well,

but, now I can't at all. They should look into that too. Wonder what

type of blood work they do for this? -NH

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Rick

Thanks very much for taking the time to update us. Over the years, we have

come to care for Jan very much, and enjoy reading your stories about her

life.

There is no shortage of prayers being sent to heaven for Jan, and we will

continue our prayers for her, you and the rest of your family.

Sharon H.

Mom to , (11, DS) and , (8)

South Carolina

re: Jan

> Here is the latest update. We are in a very long adventure and the

> updates may get far between. Jan (30) is undergoing a bone marrow

> transplant in hopes of beating her AML (leukemia). The following was

> written for my sister, but I'm copying you all.

>

> Rick ..... dad to Jan (30 ... AML .. and also ds)

> >>>>>>>>>>>

> We are at day 4 of the BMT (bone marrow transplant). Day 0 was

> Wednesday when we took this very healthy young woman into the hospital.

> The BMT unit at Yale is small (only five beds max) and has a very tight

> and dedicated staff. She got checked in and they decided not to put the

>

> 'line' into her chest because of the meds she'd had the night before.(a

> good sign).

>

> Day 1 was easy. She'd had the first chemo and did a quarter mile on the

>

> treadmill. They have a treadmill in the area for the patients who are

> medically able to use it. The unit is very friendly. Patients are

> allowed to wear street clothes.

>

> Day 2 was much harder. She'd had nausea from the meds and felt awful.

>

> Day 3 (yesterday) was great! I visited alone without Mandy. We did a

> mile on the treadmill. We watched " Cats and Dogs " together. It is an

> interesting animated movie and the quality of the animation is amazing.

> The story was fun as well. The cats didn't manage to take over the

> world and dogs remained man's best friend.

>

> Day 4, both of us went. Jan did a mile and a half (about 45 minutes) on

>

> the treadmill. She was perky and happy, putting up with things

> including hurting where the line was placed.

>

> It isn't going to stay this bright. They have to reduce her immune

> system to ZERO and kill all her bone marrow. That will be done by early

>

> next week. The transplant is scheduled for Thursday and will be pretty

> simple. Then comes the wait for it to take hold and the worry about

> host/graft interactions.

>

> Jan went into this as strong as we could make her. The California trip

> was good for that. The walks on the treadmill help keep that up. She

> is going into this in remission (something we had worried about) but we

> will have to see how the whole picture plays out. In the best of all

> worlds, she will survive and be cured. At the the other end, we will

> have tortured her and she won't survive. It's scary, but we're all

> giving it the best shot.

>

> This will be a very long thing. It will be weeks before we know if the

> BMT works. It will be months before we understand the host/graft issues

> .. and perhaps years or never before those are settled.

>

> I'm headed back to CA and work next week .. on call for when I'm needed.

>

> For those of you with younger children, please don't take Jan's problems

> too personally. Leukemia in children is very scary, but it is much more

> curable than if it occurs later, as it did with Jan. Still, nothing is

> certain.

>

> Rick

>

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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Rick,

May I ask about your son, tho BM donor. How is he doing thru all of this? Has

his marrow been collected? How does that work?

Di

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In a message dated 8/14/03 5:27:35 PM Central Daylight Time,

writes:

> Jan has felt really lousy through this last round of chemo (now over)

> and is now feeling lousy because of the preservative used with the

> transplant (which has now happened). She got 7.06 million of her

> brother's t-cells today. Hopefully tomorrow she will start feeling

> better.

>

> Still Jan is herself. She told her Mom that she wanted a funeral for

> the leukemia. Yesterday, even though she felt bad, they had it. They

> wished it well in leukemia heaven.

>

> You needn't ask whether she understands what is going on.

>

> Rick ... dad to Jan (30 ... with ds and maybe not AML)

>

> p.s. The future is still very questionable, but we've made it this far.

I'm here cheering on those T cells. Go cells Go.

Karyn

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In a message dated 8/14/03 6:27:48 PM Eastern Daylight Time,

writes:

> Still Jan is herself. She told her Mom that she wanted a funeral for

> the leukemia. Yesterday, even though she felt bad, they had it. They

> wished it well in leukemia heaven.

What an awesome plan. When I was working on a pediatric oncology unit we used

to encourage children to do visualizations of medication going through the

bloodstream and destroying tumor cells. Her idea is similar, but it is her own!

My best to you and especially to Jan.

nancy

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Hi Jan:

No, I am glad you gave me an answer. I appreciate it.

Cliff feels better today. He called the food we had," The Seafood from hell.... Hahahah... He doesn't like all seafood, only scallops, and very little fish, if it is coated (fried). I'm sure he will not eat anymore fried foods.

Again, thanks for the post. Where do you live, I have a feeling in another country. Is it Australia?

Again , thanks for replying. Hope you have a good day-night. How many hours difference in time?

Love, Gaynel

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In a message dated 8/16/2003 3:56:44 PM Eastern Standard Time,

SassyKay418@... writes:

> Yesterday, he had his post-op appointment with his

> Cardio and Bri tried to talk him into letting him run earlier!!! The answer

>

> was a firm NO. At least I wasn't the bad-guy this time!!!

>

Hey Sandi,

Sounds like is doing VERY WELL! Glad the doc was able to convince

him to tone it down until he is past the danger zone for injuring his

breastbone area.

--Martha

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