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Jan, thank you so much for your sweet post. I think I would have recovered

much faster if I had had some rest and not had to throw that dinner. It went

very very well, a real feast, but I don't know if it was a great idea.

Doc gave me four more days of Augmentin, said ears are in the process of

healing but not healed up yet. I asked if he thinks the 4 more days will be

enough, he said you can't do more than 14 days of Augmentin, your stomach can't

take

it. I think I'd rather take that chance than dance around with this ear

infection not getting resolved. I thought I was getting Kate's flu the day I

went

to my doc, I was soooo tired and actually fell asleep with my head on his desk

before he came in. (no fever though) Turned out, a fair night's sleep and a

three hour nap on New Year's Day were enough to really get me turned around.

Kate's GREAT! I do think the Tamiflu helped. She slept through the night last

night for the first time since the flu hit. We're convinced that it really

was the flu.

EMILY IS FINE!!!!! 'Course, she's acting like a DEMON so that could be

post-Christmas letdown, all the attention the sick Kate was getting, cabin fever

from not being in school, boredom due to sick/nonfun/busy Mommy, or impending

sinus infection. I don't know but she's just impossible right now. But

HEALTHY!!!! I am sooooooooooo happy. (but not about the behavior!)

Happy New Year to you!

(mom to Kate, born 9/19/02, dairy intolerant; and , age 4-1/2,

GERD, dairy intolerant -- currently has polysaccharide antibody def, previously

had transient IgG, IgA, t-cell & other defs)

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  • 2 months later...
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No, we haven’t heard from Jan in a

while. Getting worried about her.

[ ] Jan

Jan was here on Monday. I thought she posted to the

group. Has anyone

heard from her?

Hey Diane, I hear you're really

4'11 " ..........

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Hot Dog Blondes Thanks Terry I got some jokes I've been wanting to send to some blondes

The most thoroughly wasted of all days is that which one has not laughed!Eddie

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hi jan,

thank you for your letter...and yes..i live in ohio...mansfield, which is about 45 minutes to an hour from columbus.......i would love to meet with you one day...or two...lol....i've always wanted to meet someone who had the same horrible disease that i had but with no avail after 16 yrs.....matter of fact...my husband and i are taking the kids to cincinnati this weekend....just to get away before my surgery...going to the mall...ect...staying in a hotel for a night....just to unwind because i've felt so stressed out with this surgery coming up...

and yes....cleveland clinic is where i'm having my E removed....by dr. rice....i've been going there for about 5 yrs now...this will be my 3 surgery in 3 yrs......my last surgery was in sept....but that never even worked...which i wasnt too happy about since that was a rough recovery.....

let me know if you would like to get together some day.....i would love to.....

stay healthy.....and thank you again for you prayers...

karen

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Yea my darling wifes hair always lightens in the sun, the only problem is the sun hasn't been out much and here hair is lighter already. Hmmmm! maybe it was sun in a bottle. :)

We cannot see the future, we cannot change the past, we can only live in the now with an eye towards gaining enough power in the future to wreak revenge on everyone who ever screwed us in the past.Eddie

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Not yours Diane I would never imply that. Like hell I won't lol

Remember, if you haven't got a smile on your face and laughter in your heart......Then you are just an old sour fart.Eddie

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LOL

-----Original Message-----From: Tubs46@... [mailto:Tubs46@...]Sent: Wednesday, March 17, 2004 6:36 AM Subject: Re: [ ] Jan

Yea my darling wifes hair always lightens in the sun, the only problem is the sun hasn't been out much and here hair is lighter already. Hmmmm! maybe it was sun in a bottle. :)

We cannot see the future, we cannot change the past, we can only live in the now with an eye towards gaining enough power in the future to wreak revenge on everyone who ever screwed us in the past.Eddie

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  • 4 weeks later...
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Hi Jan,

I used to have more time to respond to posts. I am very busy looking

after 5 kids right now and feel guilty for not posting as often. I have had

Achalasia for 12 years, and have learned how to cope on a daily basis. If

you have any direct questions, I'll try to respond. It's a great group to

belong to.

All the best,

.

Re: New Member

> I just wanted to say thank you to everyone for making me feel so

> welcome! and for all of the advice that only fellow A sufferers

> could offer. :) thanks,

> Jan

>

>

>

>

>

>

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Hi Jan,

Thanks for your response. The talk about adrenal fatigue has caught my eye

lately. I have been looking up info on it, rather confusing since the symtoms

are so similar to hypo systoms. Also read that people with adrenal fatigue are

often misdiagsed as being hypo. I don't believe that's the case with myself,

because my mother was severly effected by Graves disease.

Interesting enough, just thinking about how I react to stress might be a red

flag for adrenal fatigue. I fly off the handle when aggitated (which could just

be horones). However, I do get physically sick lately when emotionally upset, I

feel nausious, light headed, and physically limp. I have to lay down and nap for

it to go away. The dizzy spells I was referring to have happened twice in the

past few months, each time lasting for a week straight. I do have a stressful

job, the spells might have been caused from continuous stress overload, but I

don't recall exactly what may have been going on before the spells started. I

did buy into the docs Veritgo theory the first time it happened, but since it

happened again, I think it's caused by something else. (whether adrenal or not)

What tests do I need to ask for to determine if I have adrenal fatigue? What

I've read about the condition sounds pretty scary, like wearing an ID bracelet,

etc... Is it really as bad as it sounds, or were they referring to severe

cases?

Oh, and no I don't take any vitamins at all... Where do I get them and what

brands should I be looking for?

Thanks for your help,

RE: Re: where do you go?

Hi !

Well, the TSH is pretty useless anyway. Once you are on medication, it

is good for nothing, there are several articles that state that. Did he

order Free T3 and Free T4, or just T3 and T4? The Frees are the most

accurate tests, but still don't replace a doctor who treats by symptoms.

Odds are, such a doctor will *not* be an endocrinologist. You'd have

better luck with an internist, an ND, or an OD. My doctor happens to be

an endo and she is good, but she is the 37th endo I've seen, no kidding.

For many of us, me for instance, my Total T3 and Total T4 have to be

*above* the normal range for the Free T3 and Free T4 to be in the upper

third of the normal range. Also, very few feel well just with a T4

medication, like Levoxyl - most need a combo of a T4 medication with a

T3 medication, or to take Armour thyroid, since it contains all the

thyroid hormone.

Now, let's address the dizzy spells and the feeling like you are gonna

puke. Those sound like hypoadrenal/adrenal fatigue symptoms. The adrenal

glands are involved with the thyroid and the pituitary in an axis of

hormone production. When one of them is out of balance, like with

hypothyroidism, it makes the adrenals more likely to overproduce

cortisol, and eventually to become exhausted and produce less cortisol,

DHEA, and even sex hormones in extreme cases. It would also be

beneficial to you to find a doctor who would test and check for symptoms

of adrenal fatigue. In the meantime, are you taking vitamins? They are

very important for hypothyroidism, and larger dosages of Bs and C (2-5g

a day) are also important with adrenal fatigue.

Jan

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this is adrenal

Gracia

> Hi Jan,

>

> I don't believe that's the case with myself, because my mother was severly

effected by Graves disease.

>

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  • 2 weeks later...
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Hi ,

Sorry it took me so long to answer, my computer is broken.

The most accurate tests for adrenal fatigue would be saliva tests, but

still, like in thyroid disease, a doctor experienced in the condition to

diagnose through symptoms is much better. It is not scary, it is really

common with hypothyroidism. At least 40% of hypoT people have it. When

compared to the hypothyroidism, it is a walk in the park.

As for vitamins, most brands are fine, but you should make sure they

have no soy-based fillers (might say " lecithin " instead of soy, or even

" phytoestrogens " or " isoflavones " - all these are soy too), so you might

have better luck with a health store brand instead of a drugstore one.

Some people, like me, also don't take vitamins that have iodine in them.

Look for a stress formula, antioxidant formula, or similar, that will

have over 150% of the daily recommended amounts for most vitamins and

minerals, since hypo people have difficulty processing vitamins. I take:

1 Optimum Nutrition multi (I buy whatever brand is cheaper provided it

has much more than the recommended amounts, no iodine no soy, so I

change between health store brands and Centrum Silver. I haven't found

the perfect multi, so I like to change because some have more minerals,

some have more Bs, so I figure I will never be more than 50 days low in

whatever the one I am taking is deficient in. LOL)

1 Selenium + Vitamin E (this I get at the compounding pharmacy)

1 Omega 3

1 Flax Seed Oil (EFAs are also very important)

4-10 500mg Optimum Nutrition Vitamin C (it is a pain to take all those,

but it is cheaper than buying 1g)

Also, with adrenal fatigue, it is very important to be fast asleep by

11pm-1am, so if you regularly go to bed late, this is the first change

to make.

Jan

Re: Jan

Hi Jan,

Thanks for your response. The talk about adrenal fatigue has caught my

eye lately. I have been looking up info on it, rather confusing since

the symtoms are so similar to hypo systoms. Also read that people with

adrenal fatigue are often misdiagsed as being hypo. I don't believe

that's the case with myself, because my mother was severly effected by

Graves disease.

Interesting enough, just thinking about how I react to stress might be

a red flag for adrenal fatigue. I fly off the handle when aggitated

(which could just be horones). However, I do get physically sick lately

when emotionally upset, I feel nausious, light headed, and physically

limp. I have to lay down and nap for it to go away. The dizzy spells I

was referring to have happened twice in the past few months, each time

lasting for a week straight. I do have a stressful job, the spells

might have been caused from continuous stress overload, but I don't

recall exactly what may have been going on before the spells started. I

did buy into the docs Veritgo theory the first time it happened, but

since it happened again, I think it's caused by something else. (whether

adrenal or not)

What tests do I need to ask for to determine if I have adrenal

fatigue? What I've read about the condition sounds pretty scary, like

wearing an ID bracelet, etc... Is it really as bad as it sounds, or

were they referring to severe cases?

Oh, and no I don't take any vitamins at all... Where do I get them

and what brands should I be looking for?

Thanks for your help,

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Thanks for your help Jan! I will try them :)

Hugs,

Re: Jan

Hi Jan,

Thanks for your response. The talk about adrenal fatigue has caught my

eye lately. I have been looking up info on it, rather confusing since

the symtoms are so similar to hypo systoms. Also read that people with

adrenal fatigue are often misdiagsed as being hypo. I don't believe

that's the case with myself, because my mother was severly effected by

Graves disease.

Interesting enough, just thinking about how I react to stress might be

a red flag for adrenal fatigue. I fly off the handle when aggitated

(which could just be horones). However, I do get physically sick lately

when emotionally upset, I feel nausious, light headed, and physically

limp. I have to lay down and nap for it to go away. The dizzy spells I

was referring to have happened twice in the past few months, each time

lasting for a week straight. I do have a stressful job, the spells

might have been caused from continuous stress overload, but I don't

recall exactly what may have been going on before the spells started. I

did buy into the docs Veritgo theory the first time it happened, but

since it happened again, I think it's caused by something else. (whether

adrenal or not)

What tests do I need to ask for to determine if I have adrenal

fatigue? What I've read about the condition sounds pretty scary, like

wearing an ID bracelet, etc... Is it really as bad as it sounds, or

were they referring to severe cases?

Oh, and no I don't take any vitamins at all... Where do I get them

and what brands should I be looking for?

Thanks for your help,

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In a message dated 6/19/2004 4:24:12 PM Eastern Daylight Time, cindiscandles@... writes:

here's praying that they figure you out, girl!!! Cindi

Thanks, Cindi-

I'll drink to that!

Jan in Northern KY

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HAHAHAHA - don't choke! Cindi

-- Re: Jan

In a message dated 6/19/2004 4:24:12 PM Eastern Daylight Time, cindiscandles@... writes:

here's praying that they figure you out, girl!!! Cindi

Thanks, Cindi-

I'll drink to that!

Jan in Northern KY

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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In a message dated 6/26/2004 8:12:22 PM Eastern Daylight Time, susan@... writes:

Hi Jan,

What stage are you at now? On a scale of 1 to 10. If I had to rate what I managed to keep in versus what I threw back up, I'd say about 1/2 and rate myself a 5. I'm just curious.

.

,

I feel very fortunate to say that since the 2nd of my two lap fundoplication surgeries last May of "03, I have not had to regurgitate. In fact, the little bit I do eat sits happily and securely in my esophagus for hours it seems until the weight of it ( I guess) seems to push it down eventually.

After I eat I get a horrible feeling of pressure and pain in my chest.

I don't feel like I can drink much to get the food to go down and drinking fluids does not help much.

I feel that I can eat 1 very small "meal" a day, with a little snacking in between, depending on the type of food. Soup goes down about the best. I stay away from all fresh vegs and fruit , bread and dry meat.

But all the soup I care to stuff in my throat!

Hugs,

Jan in NKY

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Hi Jan,

What stage are you at now? On a scale of 1 to 10. If I had to rate what I managed to keep in versus what I threw back up, I'd say about 1/2 and rate myself a 5. I'm just curious.

.

Re: Re: Repeat surgery - what do they do?

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  • 4 weeks later...
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In a message dated 7/21/2004 9:28:20 PM Eastern Daylight Time, dgs24@... writes:

Ok Jan..How did you get that little crying smiley face in your post????Deb NJ

Aha, Deb

You likea the little suns?

It is just one of my little emoticons on AOL that you can "customize" your email with.

Cute, huh?

Jan in NKY

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In a message dated 7/21/2004 10:01:46 PM Eastern Daylight Time, cindiscandles@... writes:

Keep a bunch of popsicles in the freeezer for after surgery! I'm telling you.....they helped me a lot with the spasms! Cindi

Cindi-

Will do.

Anything to help with spasms!

Jan in NKY

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  • 2 weeks later...
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Jan,

I will also be thinking of you on Thursday !! You have waited so long and had such a bad time you deserve a break now !

Please let us know as soon as you can how things are with you - we will be praying for your speedy recovery so just know there are a large gang of us thinking positive thoughts for you.

Hugs,

Joan

Johannesburg

South Africa

Jan

Just wanted to wish you luck on your surgery.I will probably be a month or so after you.How long will you have to stay at TCC?Let me know all you can about it.Even the minor stuff.I am really nervous about all of it.Is this your 2nd surgery? What test did they do when you went in July? Thanks so much!!!! Sherry from Ohio

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  • 3 weeks later...

Thanks for the good wishes,Cindi.

This subacute stepdown unit I'm being cared for in is kind of like a building

with several other uses. On the first floor is TCC Mellen Center for research

into MS. They have a reading library/resourch room with a online computer. The

dietitition showed it to me last week after I told her how depressed I was here.

It kind of gets on your nerves, laying in bed so much. There are a few hallways

to walk up and down, but not much.

I also was wanting to read a little bit about what implications the removal of

my spleen has, long term.

They gave me a pnumonia vaccination already.

I am really hoping to go home on Thursday, if Dr. Rice gives his okay tomorrow!

Already I am dreaming about what I want to eat when I can get rid of this tube

feeding business.

Baby steps!, I have got to learn PATIENCE!

Jan from NKY, still at TCC.

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Sherry,

I remembered that someone said they were going to be coming to CC on the 17,

but, couldnt remember who. Once I get home I'll be able to convelense at home,

and I will be spending lots of time on my computer. If there is any question I

can answer for you about CC, let me know. It sure seems like you have to wait a

long time before your next visit? or did you prefer it that way?

Jan from NKY

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In a message dated 8/28/2004 2:18:41 PM Eastern Daylight Time, jpearse@... writes:

Hi Jan, saw your post to Penny - How are you doing? You are so often in my thoughts. I take it you are home now?

Big Hugs,

Joan

Joan,

I AM finally home!

I was released from the CC on Thursday morning, and my hubby drove me the 5 hr drive home. I am SO HAPPY to be home. I am not able to eat or drink anything still, and am on a feeding tube to bypass my esoph and stomach so it can heal.

The feeding tube is a pain, but I will do whatever I have to do to get well.

I go back to TCC on Sept 20, and I hope at that time, dr. Rice will let me transition to liquid, and soft and reg. food.

Thanks for your prayers and thoughts, Now to just battle a little depression-

But, at least I'm home where I can really rest!

Hugs back!,

Jan from Northern KY

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In a message dated 8/29/2004 2:02:40 PM Eastern Daylight Time, jpearse@... writes:

What are you using for tube feeds ? The whole business is such an irritation

Joan,

I am using a formula called Ultracal with fiber. It is supposed to be lactose free, and I'm not feeling too bad with it. It is a big pain in the neck, though. As you say, an "irritation".

I was so happy to get home from the hospital, now, I feel so "different" from everyone in my family and miss not eating for so long.

I really hope this month of Sept. doesnt go too slow. I am anxious to return to see the doctor, better, so that I can taper to regular food and drink.

I think I've got to call my doctor aboout a new prescription for amytryptaline(Elavil).

I just feel so very out of it, you know?

Jan from Northern KY

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