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Re: Help - Heart just started beating VERY slowly and IRREGULARLY

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Yeah. I don't think I can do much more than 10 mcg T3 at the moment. I got a slight feel ofpressure/tightness now at midnight, 3 hours after my second and last T3 dose for today.But it's been a better day today than yesterday. Do you recon 3 days between each HC raise is enough?Maybe I take enough HC, but just not enough Iron?

HC does work that fast but I suspect your body can tolerate the 10mcg T3

and just not much more due ot the low ferritin.

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Yeah. I don't think I can do much more than 10 mcg T3 at the moment. I got a slight feel ofpressure/tightness now at midnight, 3 hours after my second and last T3 dose for today.But it's been a better day today than yesterday. Do you recon 3 days between each HC raise is enough?Maybe I take enough HC, but just not enough Iron?

HC does work that fast but I suspect your body can tolerate the 10mcg T3

and just not much more due ot the low ferritin.

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Yeah. I don't think I can do much more than 10 mcg T3 at the moment. I got a slight feel ofpressure/tightness now at midnight, 3 hours after my second and last T3 dose for today.But it's been a better day today than yesterday. Do you recon 3 days between each HC raise is enough?Maybe I take enough HC, but just not enough Iron?

HC does work that fast but I suspect your body can tolerate the 10mcg T3

and just not much more due ot the low ferritin.

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Nick, are you saying that if you take your thyroid meds (T3 or T4 when we can do it) sublingually, the iron deficiency is no longer a problem?

Thanks,

>I apologize for all the messages I've written. But what else can I do. I feel it's life or death here. I appreciate your reply, Nick. (And Valirie, and the others who wrote their experiences with tightness in the chest!)I'm doing my best to catch up but have been busy. It may feel life anddeath, that's the adrenaline still. Hopefully things will settle downsoon>>Can I take synthetic T3 under my tongue? Wow. I only thought this was possible>with dessicated thyroid?Yep, the Grossman even tastes nice, don't know about yours. That getsrid of all the iron issues.Nick

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Nick, are you saying that if you take your thyroid meds (T3 or T4 when we can do it) sublingually, the iron deficiency is no longer a problem?

Thanks,

>I apologize for all the messages I've written. But what else can I do. I feel it's life or death here. I appreciate your reply, Nick. (And Valirie, and the others who wrote their experiences with tightness in the chest!)I'm doing my best to catch up but have been busy. It may feel life anddeath, that's the adrenaline still. Hopefully things will settle downsoon>>Can I take synthetic T3 under my tongue? Wow. I only thought this was possible>with dessicated thyroid?Yep, the Grossman even tastes nice, don't know about yours. That getsrid of all the iron issues.Nick

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Nick, are you saying that if you take your thyroid meds (T3 or T4 when we can do it) sublingually, the iron deficiency is no longer a problem?

Thanks,

>I apologize for all the messages I've written. But what else can I do. I feel it's life or death here. I appreciate your reply, Nick. (And Valirie, and the others who wrote their experiences with tightness in the chest!)I'm doing my best to catch up but have been busy. It may feel life anddeath, that's the adrenaline still. Hopefully things will settle downsoon>>Can I take synthetic T3 under my tongue? Wow. I only thought this was possible>with dessicated thyroid?Yep, the Grossman even tastes nice, don't know about yours. That getsrid of all the iron issues.Nick

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" Nick, are you saying that if you take your thyroid meds (T3 or T4 when

we can do it) sublingually, the iron deficiency is no longer a problem? "

No that is not what he is saying. He is sayign that taking the T3

sublingually it will be absorbed in the mouth so ther ewill nto be

absorbtion issues with takign iron concurerently.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

http://groups.yahoo.com/group/HypoPets/

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" Nick, are you saying that if you take your thyroid meds (T3 or T4 when

we can do it) sublingually, the iron deficiency is no longer a problem? "

No that is not what he is saying. He is sayign that taking the T3

sublingually it will be absorbed in the mouth so ther ewill nto be

absorbtion issues with takign iron concurerently.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

http://groups.yahoo.com/group/HypoPets/

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Thanks for the clarification, Valarie! I saw a message just a moment ago where you explained that to someone else too. Good to know.

So my next concern is this -- my doc wants to decrease my thyroid meds (was Synthroid, now Erfa). I totally agree, except that I see that "decrease" should now be "drop temporarily and switch to T3 only." Are there any clinical studies or medical documentation that I can take to him so he can support me in this rather than fight me?

He also noted on my labs that my adrenal were fine because my ACTH plasma was normal. I don't think this is the case, plus I have a lot of adrenal fatigue symptoms.

Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am, so there's a timing issue but I don't know how it might affect the result.... Doc notes said "OK with normal ACTH.

ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said "Adrenal OK"

My TSh was <0.006 (0.450 - 4.50) Doc notes said "Inactive Thyroid - need to decrease thyroid dose, taking too much."

What do you make of this?'

Thanks,

Subject: Re: Re: Help - Heart just started beating VERY slowly and IRREGULARLYTo: RT3_T3 Date: Sunday, December 20, 2009, 6:50 PM

"Nick, are you saying that if you take your thyroid meds (T3 or T4 when we can do it) sublingually, the iron deficiency is no longer a problem?"No that is not what he is saying. He is sayign that taking the T3 sublingually it will be absorbed in the mouth so ther ewill nto be absorbtion issues with takign iron concurerently.-- Artistic Grooming- Hurricane WVhttp://www.stopthet hyroidmadness. com/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://health. groups.yahoo. com/group/ RT3_T3/http://groups. yahoo.com/

group/HypoPets/

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Thanks for the clarification, Valarie! I saw a message just a moment ago where you explained that to someone else too. Good to know.

So my next concern is this -- my doc wants to decrease my thyroid meds (was Synthroid, now Erfa). I totally agree, except that I see that "decrease" should now be "drop temporarily and switch to T3 only." Are there any clinical studies or medical documentation that I can take to him so he can support me in this rather than fight me?

He also noted on my labs that my adrenal were fine because my ACTH plasma was normal. I don't think this is the case, plus I have a lot of adrenal fatigue symptoms.

Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am, so there's a timing issue but I don't know how it might affect the result.... Doc notes said "OK with normal ACTH.

ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said "Adrenal OK"

My TSh was <0.006 (0.450 - 4.50) Doc notes said "Inactive Thyroid - need to decrease thyroid dose, taking too much."

What do you make of this?'

Thanks,

Subject: Re: Re: Help - Heart just started beating VERY slowly and IRREGULARLYTo: RT3_T3 Date: Sunday, December 20, 2009, 6:50 PM

"Nick, are you saying that if you take your thyroid meds (T3 or T4 when we can do it) sublingually, the iron deficiency is no longer a problem?"No that is not what he is saying. He is sayign that taking the T3 sublingually it will be absorbed in the mouth so ther ewill nto be absorbtion issues with takign iron concurerently.-- Artistic Grooming- Hurricane WVhttp://www.stopthet hyroidmadness. com/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://health. groups.yahoo. com/group/ RT3_T3/http://groups. yahoo.com/

group/HypoPets/

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Thanks for the clarification, Valarie! I saw a message just a moment ago where you explained that to someone else too. Good to know.

So my next concern is this -- my doc wants to decrease my thyroid meds (was Synthroid, now Erfa). I totally agree, except that I see that "decrease" should now be "drop temporarily and switch to T3 only." Are there any clinical studies or medical documentation that I can take to him so he can support me in this rather than fight me?

He also noted on my labs that my adrenal were fine because my ACTH plasma was normal. I don't think this is the case, plus I have a lot of adrenal fatigue symptoms.

Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am, so there's a timing issue but I don't know how it might affect the result.... Doc notes said "OK with normal ACTH.

ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said "Adrenal OK"

My TSh was <0.006 (0.450 - 4.50) Doc notes said "Inactive Thyroid - need to decrease thyroid dose, taking too much."

What do you make of this?'

Thanks,

Subject: Re: Re: Help - Heart just started beating VERY slowly and IRREGULARLYTo: RT3_T3 Date: Sunday, December 20, 2009, 6:50 PM

"Nick, are you saying that if you take your thyroid meds (T3 or T4 when we can do it) sublingually, the iron deficiency is no longer a problem?"No that is not what he is saying. He is sayign that taking the T3 sublingually it will be absorbed in the mouth so ther ewill nto be absorbtion issues with takign iron concurerently.-- Artistic Grooming- Hurricane WVhttp://www.stopthet hyroidmadness. com/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://health. groups.yahoo. com/group/ RT3_T3/http://groups. yahoo.com/

group/HypoPets/

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" Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am,

so there's a timing issue but I don't know how it might affect the

result.... Doc notes said " OK with normal ACTH.

ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said " Adrenal OK " "

I disagree here. By noon your Cortisl shoudl be lower than AM by almost

half so using that as a GUESSTIMATE, it shoudl stil be around 10, yours

is WAY too low for noon time. Couple that wiht low coritlls your ACTH

shoudl be HIGH screaming for more cortisol and it si not, it is LOW this

points ot secondary adrenal insufficiency which means your pituitary si

the problem more than your adnrelas. I woudl want to see further testign

such as an ACTH Stim test wioth labs like these. They ar NOT normal.

" My TSh was <0.006 (0.450 - 4.50) Doc notes said " Inactive Thyroid -

need to decrease thyroid dose, taking too much. " "

In voew of the lack of ACTH from your pitutary and ALSO lwo TSH, this

doubly calls for more pituitary hormone testing. TSH is a pituitary

hormone, if the pit is underfunctioning the TSH can be low as it is

simply not able to make enough . When it si this low there are several

things that can cause it, ONE: too much thyroid(your doc's assumption)

TWO: Low pituitary function (Which I htink is quite possible) THREE: Due

to low ferritin or low cortiosl you r body simply cannto tolerate or

utilize thyroid : properly so it is shutting down the call for it which

is what TSH does. FOUR : ANY combination of the above! So you really

need further testing to sort this out and I woudl start wiht pit testing

and ferritin.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

http://groups.yahoo.com/group/HypoPets/

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" Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am,

so there's a timing issue but I don't know how it might affect the

result.... Doc notes said " OK with normal ACTH.

ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said " Adrenal OK " "

I disagree here. By noon your Cortisl shoudl be lower than AM by almost

half so using that as a GUESSTIMATE, it shoudl stil be around 10, yours

is WAY too low for noon time. Couple that wiht low coritlls your ACTH

shoudl be HIGH screaming for more cortisol and it si not, it is LOW this

points ot secondary adrenal insufficiency which means your pituitary si

the problem more than your adnrelas. I woudl want to see further testign

such as an ACTH Stim test wioth labs like these. They ar NOT normal.

" My TSh was <0.006 (0.450 - 4.50) Doc notes said " Inactive Thyroid -

need to decrease thyroid dose, taking too much. " "

In voew of the lack of ACTH from your pitutary and ALSO lwo TSH, this

doubly calls for more pituitary hormone testing. TSH is a pituitary

hormone, if the pit is underfunctioning the TSH can be low as it is

simply not able to make enough . When it si this low there are several

things that can cause it, ONE: too much thyroid(your doc's assumption)

TWO: Low pituitary function (Which I htink is quite possible) THREE: Due

to low ferritin or low cortiosl you r body simply cannto tolerate or

utilize thyroid : properly so it is shutting down the call for it which

is what TSH does. FOUR : ANY combination of the above! So you really

need further testing to sort this out and I woudl start wiht pit testing

and ferritin.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

http://groups.yahoo.com/group/HypoPets/

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,I am taking those 10 mcg T3 now. Got a little pressure on my chest last night, about 3 hour after I took my eveningdose of 5 mcg T3.Does it matter when I take these two doses of T3? The last few days I've been takingthe first 5 mcg dose out of the two, around 1 or 2 pm. And the second dose around 9 pm.Is this ok? And is it ok to change when you take your T3 every day? Or is it a MUST totake it the same time every day?I am sitting here with this ticklish feeling in my heart. Sometime like I got before the atrial fibrillation in January 2008. The fibrillation in itself was the most amazingly ticklish and horrible feeling EVER - But the ticklish feeling before it started was also scary.I have something like that now - Just a constant ticklish feeling. Can it be something in my lungs? Maybe it's not the heart? One

naturemedicine practitioner said I can have Paratuberculosis. I know that's something entirely different than anything that has to dowith the endocrine, though.Just wondering about how stict people have to be taking their thyoid meds at the sametimes every day.Years ago, I was taking them all over the place. I never woke up at the same time, so Ialways took my T4/T3 at different times every day. Wonder if that made an impact on myoverall health and sent me where I am today...T.

HC does work that fast but I suspect your body can tolerate the 10mcg T3

and just not much more due ot the low ferritin.

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,I am taking those 10 mcg T3 now. Got a little pressure on my chest last night, about 3 hour after I took my eveningdose of 5 mcg T3.Does it matter when I take these two doses of T3? The last few days I've been takingthe first 5 mcg dose out of the two, around 1 or 2 pm. And the second dose around 9 pm.Is this ok? And is it ok to change when you take your T3 every day? Or is it a MUST totake it the same time every day?I am sitting here with this ticklish feeling in my heart. Sometime like I got before the atrial fibrillation in January 2008. The fibrillation in itself was the most amazingly ticklish and horrible feeling EVER - But the ticklish feeling before it started was also scary.I have something like that now - Just a constant ticklish feeling. Can it be something in my lungs? Maybe it's not the heart? One

naturemedicine practitioner said I can have Paratuberculosis. I know that's something entirely different than anything that has to dowith the endocrine, though.Just wondering about how stict people have to be taking their thyoid meds at the sametimes every day.Years ago, I was taking them all over the place. I never woke up at the same time, so Ialways took my T4/T3 at different times every day. Wonder if that made an impact on myoverall health and sent me where I am today...T.

HC does work that fast but I suspect your body can tolerate the 10mcg T3

and just not much more due ot the low ferritin.

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,I am taking those 10 mcg T3 now. Got a little pressure on my chest last night, about 3 hour after I took my eveningdose of 5 mcg T3.Does it matter when I take these two doses of T3? The last few days I've been takingthe first 5 mcg dose out of the two, around 1 or 2 pm. And the second dose around 9 pm.Is this ok? And is it ok to change when you take your T3 every day? Or is it a MUST totake it the same time every day?I am sitting here with this ticklish feeling in my heart. Sometime like I got before the atrial fibrillation in January 2008. The fibrillation in itself was the most amazingly ticklish and horrible feeling EVER - But the ticklish feeling before it started was also scary.I have something like that now - Just a constant ticklish feeling. Can it be something in my lungs? Maybe it's not the heart? One

naturemedicine practitioner said I can have Paratuberculosis. I know that's something entirely different than anything that has to dowith the endocrine, though.Just wondering about how stict people have to be taking their thyoid meds at the sametimes every day.Years ago, I was taking them all over the place. I never woke up at the same time, so Ialways took my T4/T3 at different times every day. Wonder if that made an impact on myoverall health and sent me where I am today...T.

HC does work that fast but I suspect your body can tolerate the 10mcg T3

and just not much more due ot the low ferritin.

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I have that tickling-feeling again now.. In my heart.. Like I am just waiting to get some kind of fibrillation..So the scary part is: I have on idea why I got that fibrillation (of some sort) last January.Too much T3 circulation in the blood because of low cortisol? My FT3 was high at that time.Can a person get fibrillation from having too HIGH cortisol? I am taking 27.5 mg HC daily.Maybe my body simply cannot tolerate this much cortisol?I am just scared about all this, and especially now when I feel this feeling in my heart forthe first time since January last year when I got that (atrial/ventricular?) fibrillation.I was stressed like crazy last January (from May 2007 and more and more up thru 2007, and into January/February 2008, when I cut off T3-meds - After this, the main stress feelingwent

away!Cortisol readings in serum, urine AND in saliva were normal all through 2008. I did havesymptoms of low cortisol in 2008 though - shaking when angry, in arguments etc. and VERY easily stressed - is that a low cortisol symptom? to get easily stressed? to stress for no reason? It wasn't until this summer my saliva proved to show low cortisol.The question is... What do I do now? Nobody and I do mean nobody understand what'shappening to my body. It's SO incredibly scary to sit and KNOW something is wrong, Ican feel it SO well, and especially with the heart it's really scary... :( - And I have no ideawhat to do with it!I am on 10 mcg T3 daily now. Can it be a chance this is too low right now?Should I skip taking my second dose of 5 mcg T3 today, leaving the total for today at 5 mcg?

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I have that tickling-feeling again now.. In my heart.. Like I am just waiting to get some kind of fibrillation..So the scary part is: I have on idea why I got that fibrillation (of some sort) last January.Too much T3 circulation in the blood because of low cortisol? My FT3 was high at that time.Can a person get fibrillation from having too HIGH cortisol? I am taking 27.5 mg HC daily.Maybe my body simply cannot tolerate this much cortisol?I am just scared about all this, and especially now when I feel this feeling in my heart forthe first time since January last year when I got that (atrial/ventricular?) fibrillation.I was stressed like crazy last January (from May 2007 and more and more up thru 2007, and into January/February 2008, when I cut off T3-meds - After this, the main stress feelingwent

away!Cortisol readings in serum, urine AND in saliva were normal all through 2008. I did havesymptoms of low cortisol in 2008 though - shaking when angry, in arguments etc. and VERY easily stressed - is that a low cortisol symptom? to get easily stressed? to stress for no reason? It wasn't until this summer my saliva proved to show low cortisol.The question is... What do I do now? Nobody and I do mean nobody understand what'shappening to my body. It's SO incredibly scary to sit and KNOW something is wrong, Ican feel it SO well, and especially with the heart it's really scary... :( - And I have no ideawhat to do with it!I am on 10 mcg T3 daily now. Can it be a chance this is too low right now?Should I skip taking my second dose of 5 mcg T3 today, leaving the total for today at 5 mcg?

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I have that tickling-feeling again now.. In my heart.. Like I am just waiting to get some kind of fibrillation..So the scary part is: I have on idea why I got that fibrillation (of some sort) last January.Too much T3 circulation in the blood because of low cortisol? My FT3 was high at that time.Can a person get fibrillation from having too HIGH cortisol? I am taking 27.5 mg HC daily.Maybe my body simply cannot tolerate this much cortisol?I am just scared about all this, and especially now when I feel this feeling in my heart forthe first time since January last year when I got that (atrial/ventricular?) fibrillation.I was stressed like crazy last January (from May 2007 and more and more up thru 2007, and into January/February 2008, when I cut off T3-meds - After this, the main stress feelingwent

away!Cortisol readings in serum, urine AND in saliva were normal all through 2008. I did havesymptoms of low cortisol in 2008 though - shaking when angry, in arguments etc. and VERY easily stressed - is that a low cortisol symptom? to get easily stressed? to stress for no reason? It wasn't until this summer my saliva proved to show low cortisol.The question is... What do I do now? Nobody and I do mean nobody understand what'shappening to my body. It's SO incredibly scary to sit and KNOW something is wrong, Ican feel it SO well, and especially with the heart it's really scary... :( - And I have no ideawhat to do with it!I am on 10 mcg T3 daily now. Can it be a chance this is too low right now?Should I skip taking my second dose of 5 mcg T3 today, leaving the total for today at 5 mcg?

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So the ACTH Plasma is different from the ACTH Stim? Should I still do the saliva testing for adrenal fatigue?

I think I'm just starting to understand why I've been feeling so terrible for so long.

I did have ferritin tested - it had increased from 8 to 32 in about six weeks (range 10-291). The doc said he wants me at around 80, so I still have a ways to go. Just learned about taking Vitamin C with meals to help improve ferritin.

Someone mentioned a potential hypopituitary problem recently. I have had weird night sweats in my chest and head area for more than 20 years that seem to have started soon after I had a car accident. I sweat through my pillow and wake with my hair drenched. Not menopausal, and certainly wasn't menopausal at age 25.

So... here's the hard question - if my doc thinks these things are ok, where do I go to get the right tests/treatment, and do you recommend any specific tests? I personally added the RT3 and ACTH and a lot of other stuff to the lab slip - he was only testing Cortisol a.m.

If I can take some sort of documentation and tell him I want certain labs for a specific reason, he might do them for me. But I'm basically inferring that I know more than he does about this stuff -- awkward. I think he's one of the better docs in the Atlanta area, so not sure where to turn from there.

Any suggestions? Any good docs to recommend?

Thanks so much, Valarie! I'm starting to have some hope.

LIsa

Subject: Re: Re: Help - Heart just started beating VERY slowly and IRREGULARLYTo: RT3_T3 Date: Monday, December 21, 2009, 5:05 AM

"Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am, so there's a timing issue but I don't know how it might affect the result.... Doc notes said "OK with normal ACTH.ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said "Adrenal OK""I disagree here. By noon your Cortisl shoudl be lower than AM by almost half so using that as a GUESSTIMATE, it shoudl stil be around 10, yours is WAY too low for noon time. Couple that wiht low coritlls your ACTH shoudl be HIGH screaming for more cortisol and it si not, it is LOW this points ot secondary adrenal insufficiency which means your pituitary si the problem more than your adnrelas. I woudl want to see further testign such as an ACTH Stim test wioth labs like these. They ar NOT normal."My TSh was <0.006 (0.450 - 4.50) Doc notes said "Inactive Thyroid - need to decrease thyroid dose, taking too much.""In voew of the lack of ACTH

from your pitutary and ALSO lwo TSH, this doubly calls for more pituitary hormone testing. TSH is a pituitary hormone, if the pit is underfunctioning the TSH can be low as it is simply not able to make enough . When it si this low there are several things that can cause it, ONE: too much thyroid(your doc's assumption) TWO: Low pituitary function (Which I htink is quite possible) THREE: Due to low ferritin or low cortiosl you r body simply cannto tolerate or utilize thyroid : properly so it is shutting down the call for it which is what TSH does. FOUR : ANY combination of the above! So you really need further testing to sort this out and I woudl start wiht pit testing and ferritin.-- Artistic Grooming- Hurricane WVhttp://www.stopthet hyroidmadness. com/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://health. groups.yahoo. com/group/ RT3_T3/http://groups. yahoo.com/ group/HypoPets/

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So the ACTH Plasma is different from the ACTH Stim? Should I still do the saliva testing for adrenal fatigue?

I think I'm just starting to understand why I've been feeling so terrible for so long.

I did have ferritin tested - it had increased from 8 to 32 in about six weeks (range 10-291). The doc said he wants me at around 80, so I still have a ways to go. Just learned about taking Vitamin C with meals to help improve ferritin.

Someone mentioned a potential hypopituitary problem recently. I have had weird night sweats in my chest and head area for more than 20 years that seem to have started soon after I had a car accident. I sweat through my pillow and wake with my hair drenched. Not menopausal, and certainly wasn't menopausal at age 25.

So... here's the hard question - if my doc thinks these things are ok, where do I go to get the right tests/treatment, and do you recommend any specific tests? I personally added the RT3 and ACTH and a lot of other stuff to the lab slip - he was only testing Cortisol a.m.

If I can take some sort of documentation and tell him I want certain labs for a specific reason, he might do them for me. But I'm basically inferring that I know more than he does about this stuff -- awkward. I think he's one of the better docs in the Atlanta area, so not sure where to turn from there.

Any suggestions? Any good docs to recommend?

Thanks so much, Valarie! I'm starting to have some hope.

LIsa

Subject: Re: Re: Help - Heart just started beating VERY slowly and IRREGULARLYTo: RT3_T3 Date: Monday, December 21, 2009, 5:05 AM

"Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am, so there's a timing issue but I don't know how it might affect the result.... Doc notes said "OK with normal ACTH.ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said "Adrenal OK""I disagree here. By noon your Cortisl shoudl be lower than AM by almost half so using that as a GUESSTIMATE, it shoudl stil be around 10, yours is WAY too low for noon time. Couple that wiht low coritlls your ACTH shoudl be HIGH screaming for more cortisol and it si not, it is LOW this points ot secondary adrenal insufficiency which means your pituitary si the problem more than your adnrelas. I woudl want to see further testign such as an ACTH Stim test wioth labs like these. They ar NOT normal."My TSh was <0.006 (0.450 - 4.50) Doc notes said "Inactive Thyroid - need to decrease thyroid dose, taking too much.""In voew of the lack of ACTH

from your pitutary and ALSO lwo TSH, this doubly calls for more pituitary hormone testing. TSH is a pituitary hormone, if the pit is underfunctioning the TSH can be low as it is simply not able to make enough . When it si this low there are several things that can cause it, ONE: too much thyroid(your doc's assumption) TWO: Low pituitary function (Which I htink is quite possible) THREE: Due to low ferritin or low cortiosl you r body simply cannto tolerate or utilize thyroid : properly so it is shutting down the call for it which is what TSH does. FOUR : ANY combination of the above! So you really need further testing to sort this out and I woudl start wiht pit testing and ferritin.-- Artistic Grooming- Hurricane WVhttp://www.stopthet hyroidmadness. com/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://health. groups.yahoo. com/group/ RT3_T3/http://groups. yahoo.com/ group/HypoPets/

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So the ACTH Plasma is different from the ACTH Stim? Should I still do the saliva testing for adrenal fatigue?

I think I'm just starting to understand why I've been feeling so terrible for so long.

I did have ferritin tested - it had increased from 8 to 32 in about six weeks (range 10-291). The doc said he wants me at around 80, so I still have a ways to go. Just learned about taking Vitamin C with meals to help improve ferritin.

Someone mentioned a potential hypopituitary problem recently. I have had weird night sweats in my chest and head area for more than 20 years that seem to have started soon after I had a car accident. I sweat through my pillow and wake with my hair drenched. Not menopausal, and certainly wasn't menopausal at age 25.

So... here's the hard question - if my doc thinks these things are ok, where do I go to get the right tests/treatment, and do you recommend any specific tests? I personally added the RT3 and ACTH and a lot of other stuff to the lab slip - he was only testing Cortisol a.m.

If I can take some sort of documentation and tell him I want certain labs for a specific reason, he might do them for me. But I'm basically inferring that I know more than he does about this stuff -- awkward. I think he's one of the better docs in the Atlanta area, so not sure where to turn from there.

Any suggestions? Any good docs to recommend?

Thanks so much, Valarie! I'm starting to have some hope.

LIsa

Subject: Re: Re: Help - Heart just started beating VERY slowly and IRREGULARLYTo: RT3_T3 Date: Monday, December 21, 2009, 5:05 AM

"Cortisol AM - 4.7 (6.2 - 19.4) -- I had my labs run at around 11:30 am, so there's a timing issue but I don't know how it might affect the result.... Doc notes said "OK with normal ACTH.ACTH, Plasma - 13.4 (7.2 - 63.3) Doc notes said "Adrenal OK""I disagree here. By noon your Cortisl shoudl be lower than AM by almost half so using that as a GUESSTIMATE, it shoudl stil be around 10, yours is WAY too low for noon time. Couple that wiht low coritlls your ACTH shoudl be HIGH screaming for more cortisol and it si not, it is LOW this points ot secondary adrenal insufficiency which means your pituitary si the problem more than your adnrelas. I woudl want to see further testign such as an ACTH Stim test wioth labs like these. They ar NOT normal."My TSh was <0.006 (0.450 - 4.50) Doc notes said "Inactive Thyroid - need to decrease thyroid dose, taking too much.""In voew of the lack of ACTH

from your pitutary and ALSO lwo TSH, this doubly calls for more pituitary hormone testing. TSH is a pituitary hormone, if the pit is underfunctioning the TSH can be low as it is simply not able to make enough . When it si this low there are several things that can cause it, ONE: too much thyroid(your doc's assumption) TWO: Low pituitary function (Which I htink is quite possible) THREE: Due to low ferritin or low cortiosl you r body simply cannto tolerate or utilize thyroid : properly so it is shutting down the call for it which is what TSH does. FOUR : ANY combination of the above! So you really need further testing to sort this out and I woudl start wiht pit testing and ferritin.-- Artistic Grooming- Hurricane WVhttp://www.stopthet hyroidmadness. com/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://health. groups.yahoo. com/group/ RT3_T3/http://groups. yahoo.com/ group/HypoPets/

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Could 10 mcg T3 in anyw ay be too much while on 27.5 mg HC daily, and 75 mg iron daily?I want to take my second 5 mcg T3 dose now. I am not very warm, nor do I have a very high pulse...

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Could 10 mcg T3 in anyw ay be too much while on 27.5 mg HC daily, and 75 mg iron daily?I want to take my second 5 mcg T3 dose now. I am not very warm, nor do I have a very high pulse...

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