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I love to hear that, " you get as long as you want " ! Like most of us, the

doctors seemed in such a rush when I was first diagnosed. The doctor told me

what was wrong and said, what do you want ATDs or RAI? And he expected me to

make a decision right then and there without any research into either of them.

Without even knowing anything about graves. I've always been a book person, and

my instinct with anything is to run out and read a book about it or spend hours

in the library looking for information. My husband has always kind of made fun

of me for it... when I was pregnant I had a whole library on my nightstand! :)

But now I'm grateful to be so because I think you have to be to manage something

like Graves.

Re: Question

> This doctor has been OK, but she does mention RAI

> everytime I see her. Am I wrong or is this a little rushed? I don't

> feel anywhere near ready to stop the medication in 2 months. I'm

> still working on dietary and lifestyle changes and to achieve some

> kind of feeling of balance. Does that make sense?

> Thanks for any thoughts you might have on this.

Kristi,

I'd say you are being rushed! Your body and mind need time and your

instincts know it. Follow those gut reactions, they can tell you

alot.

If your doc is not willing to give you the time you need to find

balance, then maybe you should look for another. SOme people take ATD's

for years and years. You get as long as you want! :)

Val

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Guest guest

I love to hear that, " you get as long as you want " ! Like most of us, the

doctors seemed in such a rush when I was first diagnosed. The doctor told me

what was wrong and said, what do you want ATDs or RAI? And he expected me to

make a decision right then and there without any research into either of them.

Without even knowing anything about graves. I've always been a book person, and

my instinct with anything is to run out and read a book about it or spend hours

in the library looking for information. My husband has always kind of made fun

of me for it... when I was pregnant I had a whole library on my nightstand! :)

But now I'm grateful to be so because I think you have to be to manage something

like Graves.

Re: Question

> This doctor has been OK, but she does mention RAI

> everytime I see her. Am I wrong or is this a little rushed? I don't

> feel anywhere near ready to stop the medication in 2 months. I'm

> still working on dietary and lifestyle changes and to achieve some

> kind of feeling of balance. Does that make sense?

> Thanks for any thoughts you might have on this.

Kristi,

I'd say you are being rushed! Your body and mind need time and your

instincts know it. Follow those gut reactions, they can tell you

alot.

If your doc is not willing to give you the time you need to find

balance, then maybe you should look for another. SOme people take ATD's

for years and years. You get as long as you want! :)

Val

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Guest guest

I love to hear that, " you get as long as you want " ! Like most of us, the

doctors seemed in such a rush when I was first diagnosed. The doctor told me

what was wrong and said, what do you want ATDs or RAI? And he expected me to

make a decision right then and there without any research into either of them.

Without even knowing anything about graves. I've always been a book person, and

my instinct with anything is to run out and read a book about it or spend hours

in the library looking for information. My husband has always kind of made fun

of me for it... when I was pregnant I had a whole library on my nightstand! :)

But now I'm grateful to be so because I think you have to be to manage something

like Graves.

Re: Question

> This doctor has been OK, but she does mention RAI

> everytime I see her. Am I wrong or is this a little rushed? I don't

> feel anywhere near ready to stop the medication in 2 months. I'm

> still working on dietary and lifestyle changes and to achieve some

> kind of feeling of balance. Does that make sense?

> Thanks for any thoughts you might have on this.

Kristi,

I'd say you are being rushed! Your body and mind need time and your

instincts know it. Follow those gut reactions, they can tell you

alot.

If your doc is not willing to give you the time you need to find

balance, then maybe you should look for another. SOme people take ATD's

for years and years. You get as long as you want! :)

Val

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  • 1 month later...
Guest guest

I know it has been suggested a few times and I have tried it and it

works.......use the socks with the grippy treads on the bottom. Also, I know a

few have doubled the socks but I prefer the grippy bottoms.

Hope that helps! Good to hear from you and Congratulations!

Sincerely,

& Breanna

dkfreed4 wrote: It's been a very long time since I've

posted on this list, and a lot

has happened since then. :) We had another baby back in April, and

he was born with one clubfoot. He was seen at the Nemours Clinic in

Orlando and had a total of 5 sets of casts, beginning at 8 days old.

He had a tenotomy before his final set of casts as usual. His casts

came off about a week ago now, and we've been fighting to keep his

foot in the dbb ever since. We took his shoes to a local orthotist

and he put something in the back of the shoe to keep his foot in, but

it's not working either. I remember a long time ago, when

(our 2 yo who had bilateral clubfeet) was just in the dbb

that one of the other children was having a hard time keeping his

foot in the brace. Any suggestions?

Thanks,

Kim

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Guest guest

I know it has been suggested a few times and I have tried it and it

works.......use the socks with the grippy treads on the bottom. Also, I know a

few have doubled the socks but I prefer the grippy bottoms.

Hope that helps! Good to hear from you and Congratulations!

Sincerely,

& Breanna

dkfreed4 wrote: It's been a very long time since I've

posted on this list, and a lot

has happened since then. :) We had another baby back in April, and

he was born with one clubfoot. He was seen at the Nemours Clinic in

Orlando and had a total of 5 sets of casts, beginning at 8 days old.

He had a tenotomy before his final set of casts as usual. His casts

came off about a week ago now, and we've been fighting to keep his

foot in the dbb ever since. We took his shoes to a local orthotist

and he put something in the back of the shoe to keep his foot in, but

it's not working either. I remember a long time ago, when

(our 2 yo who had bilateral clubfeet) was just in the dbb

that one of the other children was having a hard time keeping his

foot in the brace. Any suggestions?

Thanks,

Kim

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Guest guest

I know it has been suggested a few times and I have tried it and it

works.......use the socks with the grippy treads on the bottom. Also, I know a

few have doubled the socks but I prefer the grippy bottoms.

Hope that helps! Good to hear from you and Congratulations!

Sincerely,

& Breanna

dkfreed4 wrote: It's been a very long time since I've

posted on this list, and a lot

has happened since then. :) We had another baby back in April, and

he was born with one clubfoot. He was seen at the Nemours Clinic in

Orlando and had a total of 5 sets of casts, beginning at 8 days old.

He had a tenotomy before his final set of casts as usual. His casts

came off about a week ago now, and we've been fighting to keep his

foot in the dbb ever since. We took his shoes to a local orthotist

and he put something in the back of the shoe to keep his foot in, but

it's not working either. I remember a long time ago, when

(our 2 yo who had bilateral clubfeet) was just in the dbb

that one of the other children was having a hard time keeping his

foot in the brace. Any suggestions?

Thanks,

Kim

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Guest guest

Kim,

Are you sure you have a good fit with the shoes. I wonder if they are too

big? What size did they start you in?

Amy &

Re: Question

>

> I know it has been suggested a few times and I have tried it and it

works.......use the socks with the grippy treads on the bottom. Also, I

know a few have doubled the socks but I prefer the grippy bottoms.

>Hope that helps! Good to hear from you and Congratulations!

>Sincerely,

> & Breanna

> dkfreed4 wrote: It's been a very long time since I've

posted on this list, and a lot

>has happened since then. :) We had another baby back in April, and

>he was born with one clubfoot. He was seen at the Nemours Clinic in

>Orlando and had a total of 5 sets of casts, beginning at 8 days old.

>He had a tenotomy before his final set of casts as usual. His casts

>came off about a week ago now, and we've been fighting to keep his

>foot in the dbb ever since. We took his shoes to a local orthotist

>and he put something in the back of the shoe to keep his foot in, but

>it's not working either. I remember a long time ago, when

> (our 2 yo who had bilateral clubfeet) was just in the dbb

>that one of the other children was having a hard time keeping his

>foot in the brace. Any suggestions?

>

>Thanks,

>Kim

>

>

>

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Guest guest

Kim,

Are you sure you have a good fit with the shoes. I wonder if they are too

big? What size did they start you in?

Amy &

Re: Question

>

> I know it has been suggested a few times and I have tried it and it

works.......use the socks with the grippy treads on the bottom. Also, I

know a few have doubled the socks but I prefer the grippy bottoms.

>Hope that helps! Good to hear from you and Congratulations!

>Sincerely,

> & Breanna

> dkfreed4 wrote: It's been a very long time since I've

posted on this list, and a lot

>has happened since then. :) We had another baby back in April, and

>he was born with one clubfoot. He was seen at the Nemours Clinic in

>Orlando and had a total of 5 sets of casts, beginning at 8 days old.

>He had a tenotomy before his final set of casts as usual. His casts

>came off about a week ago now, and we've been fighting to keep his

>foot in the dbb ever since. We took his shoes to a local orthotist

>and he put something in the back of the shoe to keep his foot in, but

>it's not working either. I remember a long time ago, when

> (our 2 yo who had bilateral clubfeet) was just in the dbb

>that one of the other children was having a hard time keeping his

>foot in the brace. Any suggestions?

>

>Thanks,

>Kim

>

>

>

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Guest guest

He's in a 000...the orthotist said that was the smallest they had. When I get

his foot in the shoe to begin with, his toes come to the end of the fringe. The

buckle is on the last hole, and we tie the shoe as tight as we can. We're

having a problem with his ex-clubfoot...the other foot doesn't have this

problem, but it is a little bigger. We even tried just putting the shoe on

without the brace, but he still gets out of it.

Kim and

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Guest guest

He's in a 000...the orthotist said that was the smallest they had. When I get

his foot in the shoe to begin with, his toes come to the end of the fringe. The

buckle is on the last hole, and we tie the shoe as tight as we can. We're

having a problem with his ex-clubfoot...the other foot doesn't have this

problem, but it is a little bigger. We even tried just putting the shoe on

without the brace, but he still gets out of it.

Kim and

________________________________________________________________

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Guest guest

He's in a 000...the orthotist said that was the smallest they had. When I get

his foot in the shoe to begin with, his toes come to the end of the fringe. The

buckle is on the last hole, and we tie the shoe as tight as we can. We're

having a problem with his ex-clubfoot...the other foot doesn't have this

problem, but it is a little bigger. We even tried just putting the shoe on

without the brace, but he still gets out of it.

Kim and

________________________________________________________________

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Juno offers FREE or PREMIUM Internet access for less!

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Amy,

I must have given birth to Houdini! The buckle on his shoe was so tight I could

barely get my fingertip in there at all, and he still got out of it! I'm going

to try to call Dr. Ponseti's office this afternoon and see what he says.

Kim

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Guest guest

Amy,

I must have given birth to Houdini! The buckle on his shoe was so tight I could

barely get my fingertip in there at all, and he still got out of it! I'm going

to try to call Dr. Ponseti's office this afternoon and see what he says.

Kim

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Guest guest

Kim,

I'm afraid your little guy has exhausted all of my resources! I think it's a

great idea to call Dr. Ponseti.

Amy

Re: Question

>Amy,

>

>I must have given birth to Houdini! The buckle on his shoe was so tight I

could barely get my fingertip in there at all, and he still got out of it!

I'm going to try to call Dr. Ponseti's office this afternoon and see what he

says.

>

>Kim

>

>

>

>

>________________________________________________________________

>GET INTERNET ACCESS FROM JUNO!

>Juno offers FREE or PREMIUM Internet access for less!

>Join Juno today! For your FREE software, visit:

>http://dl.www.juno.com/get/web/.

>

>

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Guest guest

Amy,

I called Dr. Ponseti yesterday afternoon, and he believes that the problem is

that the brace was not wide enough. His shoulders are about 7 inches wide, but

between the backs of the shoes was only 5. My husband is out looking for an

allen (?) wrench small enough right now. I also talked to last night and

she suggested that we lace his shoes upside down and tie them at his toes

instead of his ankle. I'll let you know how it goes!

Kim

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Guest guest

Amy,

I called Dr. Ponseti yesterday afternoon, and he believes that the problem is

that the brace was not wide enough. His shoulders are about 7 inches wide, but

between the backs of the shoes was only 5. My husband is out looking for an

allen (?) wrench small enough right now. I also talked to last night and

she suggested that we lace his shoes upside down and tie them at his toes

instead of his ankle. I'll let you know how it goes!

Kim

________________________________________________________________

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Guest guest

Try some decaf tea or decaf coffee or maybe some Crystal light?

Anything caffiene free AND sugar free. Splenda is good, I think it

still has a bit of an after taste though.

Lori!

> Hi everyone,

> Well, first of all I went to the OB yesterday, and US I was put

at 10 weeks so my edd is now January 1,2003. But, I have another

minor issue, for some reason water makes me nauseous right now. Does

anyone have any other idea's for beverages? Also, how is Splenda?

>

> Thanks,

>

>

>

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Guest guest

Try some decaf tea or decaf coffee or maybe some Crystal light?

Anything caffiene free AND sugar free. Splenda is good, I think it

still has a bit of an after taste though.

Lori!

> Hi everyone,

> Well, first of all I went to the OB yesterday, and US I was put

at 10 weeks so my edd is now January 1,2003. But, I have another

minor issue, for some reason water makes me nauseous right now. Does

anyone have any other idea's for beverages? Also, how is Splenda?

>

> Thanks,

>

>

>

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Guest guest

You might consider squeezing a little lemon into your water; when I was

pg, anything citrusy would remedy that feeling. Lori's suggestion of

decaf tea is also good; maybe some Celestial Seasonings peach tea or

lemon tea?

Kris

Dubin wrote:

>Hi everyone,

> Well, first of all I went to the OB yesterday, and US I was put at 10 weeks so

my edd is now January 1,2003. But, I have another minor issue, for some reason

water makes me nauseous right now. Does anyone have any other idea's for

beverages? Also, how is Splenda?

>

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Guest guest

You might consider squeezing a little lemon into your water; when I was

pg, anything citrusy would remedy that feeling. Lori's suggestion of

decaf tea is also good; maybe some Celestial Seasonings peach tea or

lemon tea?

Kris

Dubin wrote:

>Hi everyone,

> Well, first of all I went to the OB yesterday, and US I was put at 10 weeks so

my edd is now January 1,2003. But, I have another minor issue, for some reason

water makes me nauseous right now. Does anyone have any other idea's for

beverages? Also, how is Splenda?

>

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  • 3 weeks later...
Guest guest

I had that, too. It was a sign that my pelvis was loosening up

considerably and it was pinching the leg nerve badly. It was NOT fun!! I

limped all the time, especially after having been seated for a while.

I'm trying to remember now what the OB called it... I thought it was

sciatica, but he said no, that it was actually this other thing (dangit,

can't remember now what he called it...) (if I think of it, I'll post it).

Kris

Merry_Shaw@... wrote:

>hi everyone -

>

>I have a question. I am in my 37th week and I am getting these horrible

>shooting pains down my left hip and they go all the way down my leg. I am

>assuming that " thumper " here is just hitting a nerve. Has anyone else

>experienced this and what did you do?

>

>Thanks,

>Merry

>

>

>

>

>

>Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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Guest guest

I had that, too. It was a sign that my pelvis was loosening up

considerably and it was pinching the leg nerve badly. It was NOT fun!! I

limped all the time, especially after having been seated for a while.

I'm trying to remember now what the OB called it... I thought it was

sciatica, but he said no, that it was actually this other thing (dangit,

can't remember now what he called it...) (if I think of it, I'll post it).

Kris

Merry_Shaw@... wrote:

>hi everyone -

>

>I have a question. I am in my 37th week and I am getting these horrible

>shooting pains down my left hip and they go all the way down my leg. I am

>assuming that " thumper " here is just hitting a nerve. Has anyone else

>experienced this and what did you do?

>

>Thanks,

>Merry

>

>

>

>

>

>Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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Guest guest

Yep - it sounds like what you had. I notice it more when I get up from my

desk to walk around or rush to the bathroom. Yowza! Everyone looks at me

like I am losing it because I look like a goofball when the pain hits. :P

Thanks,

Merry

Re: Question

I had that, too. It was a sign that my pelvis was loosening up

considerably and it was pinching the leg nerve badly. It was NOT fun!! I

limped all the time, especially after having been seated for a while.

I'm trying to remember now what the OB called it... I thought it was

sciatica, but he said no, that it was actually this other thing (dangit,

can't remember now what he called it...) (if I think of it, I'll post it).

Kris

Merry_Shaw@... wrote:

>hi everyone -

>

>I have a question. I am in my 37th week and I am getting these horrible

>shooting pains down my left hip and they go all the way down my leg. I am

>assuming that " thumper " here is just hitting a nerve. Has anyone else

>experienced this and what did you do?

>

>Thanks,

>Merry

>

>

>

>

>

>Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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Guest guest

Yep - it sounds like what you had. I notice it more when I get up from my

desk to walk around or rush to the bathroom. Yowza! Everyone looks at me

like I am losing it because I look like a goofball when the pain hits. :P

Thanks,

Merry

Re: Question

I had that, too. It was a sign that my pelvis was loosening up

considerably and it was pinching the leg nerve badly. It was NOT fun!! I

limped all the time, especially after having been seated for a while.

I'm trying to remember now what the OB called it... I thought it was

sciatica, but he said no, that it was actually this other thing (dangit,

can't remember now what he called it...) (if I think of it, I'll post it).

Kris

Merry_Shaw@... wrote:

>hi everyone -

>

>I have a question. I am in my 37th week and I am getting these horrible

>shooting pains down my left hip and they go all the way down my leg. I am

>assuming that " thumper " here is just hitting a nerve. Has anyone else

>experienced this and what did you do?

>

>Thanks,

>Merry

>

>

>

>

>

>Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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Guest guest

YES! That's exactly what happened to me. I would be sitting somewhere

and get up to do something, and I'd almost collapse from the pain in my

hip/leg! URRR I wish I could remember what that was... durnit. Anyway,

sounds like you've got whatever-it-is too. It did eventually subside a

few days after delivery.

K

Merry_Shaw@... wrote:

>Yep - it sounds like what you had. I notice it more when I get up from my

>desk to walk around or rush to the bathroom. Yowza! Everyone looks at me

>like I am losing it because I look like a goofball when the pain hits. :P

>

>

>Thanks,

>Merry

>

> Re: Question

>

>

>I had that, too. It was a sign that my pelvis was loosening up

>considerably and it was pinching the leg nerve badly. It was NOT fun!! I

>limped all the time, especially after having been seated for a while.

>I'm trying to remember now what the OB called it... I thought it was

>sciatica, but he said no, that it was actually this other thing (dangit,

>can't remember now what he called it...) (if I think of it, I'll post it).

>Kris

>

>Merry_Shaw@... wrote:

>

>>hi everyone -

>>

>>I have a question. I am in my 37th week and I am getting these horrible

>>shooting pains down my left hip and they go all the way down my leg. I am

>>assuming that " thumper " here is just hitting a nerve. Has anyone else

>>experienced this and what did you do?

>>

>>Thanks,

>>Merry

>>

>>

>>

>>

>>

>>Children are a blessing, and a gift from the Lord. -Psalm 127:3

>>

>>

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