Re: (unknown)

[Guest guest]

has gone through several periods of pulling hair - at times so

severely that she pulled it out. Her Perkins' staff came up with the

protocol of immediately taking her to the beauty salon for a VERY short

hairdo but made sure that it looked good, too. This has been a very

successful treatment each time it's had to be used.

hits her head when in pain - especially ear, althoough we've seen it

with jaw pain, too. This can get so bad that she'll bang her head on the

floor or wall. Think pain every time!

Martha

[Guest guest]

Kim.

was born without the entire ear structure on the left side and just a

little piece on right side..no inner ear was seen..I don't think its an

infection..Maybe the lack of the actual ear could be the problem...but thank

you..

Dianne

Kim Lauger wrote:

Has she been checked for an ear infection? Often times there can be a

behavior change in our kids instead of fever and crying that you might

typically see. It would be concerning to have her continue to pull her hair

out. Sorry no help. Kim L

> Kim,,

> Em's very near sighted and will be wearing glasses...She does run her fingers

> through but then she starts to pull..She is actually taking hair out...At one

> point she was hitting her head with her fist...She has somewhat stopped that

> and more into the pulling..

> Dianne

>

> Kim Lauger wrote:

> How is Em's vision, I don't recall.

>

> Dylan runs his fingers through his hair on the right side all the time.

> There is always discussion on if he is just stimming and if we should try to

> stop it. My sense is that he does it when he is thinking and is part of how

> he processes info. Yes it gets in the way sometimes, but I think trying to

> stop it would be near impossible and would just be replaced by something

> else.

>

> We have not had the experience with the feeding tube.

>

> Kim L

>

>

>

>> Hello all....I have been noticing that Em is pulling at the right side of her

>> hair with her good hand. She does it alot during the day. She also, shakes

>> her

>> head back and forth and it seems like the eye rolling up is getting more

>> often. I was wondering if this behavior is part of the CHARGE syndrome? She

>> also, pulls, kicks and does everything she can think of to her g-tube when

>> feeding. Sometimes, she will play with plunger when i hand it to her but

>> mostly she is interested in the g-tube. I'm just waiting for her to yank it

>> out and hand it to me. It's a handful at feeding time. I'm pretty sure she

>> knows what " NO " means. During the day she feeds every 3 and half to 4 hours.

>> She is on the pedia sure and doesnt seem like she is having any problems with

>> it. She really doesn't take much by her mouth but when she her g-tube is

>> going

>> it's like she is sucking a bottle. Anyways, she is almost 14 months old and

>> we

>> really have been lucky health wise so far. I worry about upcoming appts. but

>> we

>> live day to day and we are doing good. Does anyone else have these problems

>> with feeds or behavior? If so, i would appreciate some input. As always we

>> wish everyone health and happiness. Take care,

>> Dianne and almost 14 months CHARGER

>>

>> __________________________________________________

>>

[Guest guest]

Kim.

was born without the entire ear structure on the left side and just a

little piece on right side..no inner ear was seen..I don't think its an

infection..Maybe the lack of the actual ear could be the problem...but thank

you..

Dianne

Kim Lauger wrote:

Has she been checked for an ear infection? Often times there can be a

behavior change in our kids instead of fever and crying that you might

typically see. It would be concerning to have her continue to pull her hair

out. Sorry no help. Kim L

> Kim,,

> Em's very near sighted and will be wearing glasses...She does run her fingers

> through but then she starts to pull..She is actually taking hair out...At one

> point she was hitting her head with her fist...She has somewhat stopped that

> and more into the pulling..

> Dianne

>

> Kim Lauger wrote:

> How is Em's vision, I don't recall.

>

> Dylan runs his fingers through his hair on the right side all the time.

> There is always discussion on if he is just stimming and if we should try to

> stop it. My sense is that he does it when he is thinking and is part of how

> he processes info. Yes it gets in the way sometimes, but I think trying to

> stop it would be near impossible and would just be replaced by something

> else.

>

> We have not had the experience with the feeding tube.

>

> Kim L

>

>

>

>> Hello all....I have been noticing that Em is pulling at the right side of her

>> hair with her good hand. She does it alot during the day. She also, shakes

>> her

>> head back and forth and it seems like the eye rolling up is getting more

>> often. I was wondering if this behavior is part of the CHARGE syndrome? She

>> also, pulls, kicks and does everything she can think of to her g-tube when

>> feeding. Sometimes, she will play with plunger when i hand it to her but

>> mostly she is interested in the g-tube. I'm just waiting for her to yank it

>> out and hand it to me. It's a handful at feeding time. I'm pretty sure she

>> knows what " NO " means. During the day she feeds every 3 and half to 4 hours.

>> She is on the pedia sure and doesnt seem like she is having any problems with

>> it. She really doesn't take much by her mouth but when she her g-tube is

>> going

>> it's like she is sucking a bottle. Anyways, she is almost 14 months old and

>> we

>> really have been lucky health wise so far. I worry about upcoming appts. but

>> we

>> live day to day and we are doing good. Does anyone else have these problems

>> with feeds or behavior? If so, i would appreciate some input. As always we

>> wish everyone health and happiness. Take care,

>> Dianne and almost 14 months CHARGER

>>

>> __________________________________________________

>>

[Guest guest]

Kim..she has a mickey button..She doesnt't mess with the actual button it's the

extension connector she grabs,,kicks..and tries to play with...I have tried

different things..as in letting her hold the plunger..giving her toys..etc..She

does it so fast sometimes the whole tube goes flying..It happens alot when i am

pouring the pedia sure in...I have everything ready..etc...She is quick

though...She has just recently found her feet and is amazed with them.. I

guess we just have to be faster than she is...Thank you for your advice. I

appreciate it..Take care

Dianne

Kim Lauger wrote:

Em is 14 mo. It is not likely that there is any behavior so serious that it

would require meds at this point. There are many CHARGE kids who have

behavioral symptoms as they get older, such as the self-injurious behavior

that Debra describes in Zak.

I did find Dylan's obsessive tendencies very young, so it is possible that

she gets focused on the tube and cannot distract from it, rather than simply

being defiant. On the other hand they were certainly not severe enough to

require medication, only an understanding on my part that he could not

change the behavior, so I had to set up the environment accordingly.

With Em it just may be that she finds it all interesting and wants to play

with it, not knowing she could hurt herself. Again it is just finding the

trick that works for her in keeping her hands away. Does she still have a

g-tube or does she have a button? Dylan had his tube for over a year,

before we switched to the button. With the button there is far less to grab

hold of in routine play, although there is still tubing during bolus or drip

feeds.

Kim L

> Debra,

> She has the gravity feed...The doctors havent said anything about meds for her

> behavior..I guess they don't think it's bad enough...Not sure

> Dianne

>

> DW33333333@... wrote:

> In a message dated 7/5/2004 5:37:52 AM Pacific Daylight Time,

> flgurlie2004@... writes:

>

>

>> Does anyone else have these problems with feeds or behavior?

>

> Dianne,

>

> Oh yes, I have had those problems out of Zak far to may

> times........... With the feedings, is she gravity fed or on a pump? We

> found that if Zak

> gets the bulk of his feeding on the pump, we wrap an ace bandage around his

> stomach (not tight) and that keeps him from pulling out the feeding tube.

> As for the behavior, Zak has serious SIB (self injurious behavior) and

> he is on medication for it (several medications). The mixture we have him on

> right now (4 medications) seem to lesson the aggression but nothing stops it

> completely. If you want any suggestions of what I have used to keep Zak from

> doing serious harm to himself, write me directly and I'll help all I can.

>

> Debra

>

>

>

[Guest guest]

Kim..she has a mickey button..She doesnt't mess with the actual button it's the

extension connector she grabs,,kicks..and tries to play with...I have tried

different things..as in letting her hold the plunger..giving her toys..etc..She

does it so fast sometimes the whole tube goes flying..It happens alot when i am

pouring the pedia sure in...I have everything ready..etc...She is quick

though...She has just recently found her feet and is amazed with them.. I

guess we just have to be faster than she is...Thank you for your advice. I

appreciate it..Take care

Dianne

Kim Lauger wrote:

Em is 14 mo. It is not likely that there is any behavior so serious that it

would require meds at this point. There are many CHARGE kids who have

behavioral symptoms as they get older, such as the self-injurious behavior

that Debra describes in Zak.

I did find Dylan's obsessive tendencies very young, so it is possible that

she gets focused on the tube and cannot distract from it, rather than simply

being defiant. On the other hand they were certainly not severe enough to

require medication, only an understanding on my part that he could not

change the behavior, so I had to set up the environment accordingly.

With Em it just may be that she finds it all interesting and wants to play

with it, not knowing she could hurt herself. Again it is just finding the

trick that works for her in keeping her hands away. Does she still have a

g-tube or does she have a button? Dylan had his tube for over a year,

before we switched to the button. With the button there is far less to grab

hold of in routine play, although there is still tubing during bolus or drip

feeds.

Kim L

> Debra,

> She has the gravity feed...The doctors havent said anything about meds for her

> behavior..I guess they don't think it's bad enough...Not sure

> Dianne

>

> DW33333333@... wrote:

> In a message dated 7/5/2004 5:37:52 AM Pacific Daylight Time,

> flgurlie2004@... writes:

>

>

>> Does anyone else have these problems with feeds or behavior?

>

> Dianne,

>

> Oh yes, I have had those problems out of Zak far to may

> times........... With the feedings, is she gravity fed or on a pump? We

> found that if Zak

> gets the bulk of his feeding on the pump, we wrap an ace bandage around his

> stomach (not tight) and that keeps him from pulling out the feeding tube.

> As for the behavior, Zak has serious SIB (self injurious behavior) and

> he is on medication for it (several medications). The mixture we have him on

> right now (4 medications) seem to lesson the aggression but nothing stops it

> completely. If you want any suggestions of what I have used to keep Zak from

> doing serious harm to himself, write me directly and I'll help all I can.

>

> Debra

>

>

>

[Guest guest]

In a message dated 7/5/2004 8:01:52 PM Pacific Daylight Time,

flgurlie2004@... writes:

> mickey button

That is why I always insist on a BARD button. They are almost impossible to

pull or come out, have no balloons to fill or mess with and offer much more in

the way of feeding tubs.

Debra

[Guest guest]

Bradley had the same problem with the eyes and I stil cannot get the glasses

to stay on but in school he will wear them for the 7 or so hours he is there

and that amount has seemed to have helped.The teachers worked very hard on his

keeping the glasses on and the hearing aides. His eye will stray at times but

is no worse and surgery has not been discussed.

ck

[Guest guest]

Bradley had the same problem with the eyes and I stil cannot get the glasses

to stay on but in school he will wear them for the 7 or so hours he is there

and that amount has seemed to have helped.The teachers worked very hard on his

keeping the glasses on and the hearing aides. His eye will stray at times but

is no worse and surgery has not been discussed.

ck

[Guest guest]

Bradley had the same problem with the eyes and I stil cannot get the glasses

to stay on but in school he will wear them for the 7 or so hours he is there

and that amount has seemed to have helped.The teachers worked very hard on his

keeping the glasses on and the hearing aides. His eye will stray at times but

is no worse and surgery has not been discussed.

ck

[Guest guest]

Tonya,

It took me months to get Kennedy to wear her glasses constantly - she first

got them at 12 months. It was just like a light clicked on one day and she

decided to keep them on. Keep on with it, it'll come, especially when she

realizes they help her.

Weir

Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

<http://personal.nbnet.nb.ca/gweir>

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

<http://www.chargesyndrome.ca>

(unknown)

My daughter, , is a charger and needs to wear glasses. She has

strabismus (I think that is the term they use), farsighted, and she has eye

defects in her left eye (dermoid as well as a clouded cornea). Anyway, we

had the hardest time finding glasses since she is so small - we finally

found some over the internet. She is supposed to wear them all the time -

the dx hope that this will help straighten her eyes an.d if it doesn't then

they'll do surgery. For the life of me I cannot get her to wear them!! She

immediately wants to put them in her mouth. This has become a constant

battle - I have a 3 yr old so I can't sit with her all the time putting them

back on. I feel like we're not doing a good job. But I'm doing my best.

I've tried putting socks on her hands but she still gets them off.

Any advice? I'm afraid at her next appt he's gonna want to do surgery b/c

it hasn't gotten better. Does anyone know about the surgery? thanks

Tonya, mom to (8month charg'r)

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

Tonya,

It took me months to get Kennedy to wear her glasses constantly - she first

got them at 12 months. It was just like a light clicked on one day and she

decided to keep them on. Keep on with it, it'll come, especially when she

realizes they help her.

Weir

Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

<http://personal.nbnet.nb.ca/gweir>

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

<http://www.chargesyndrome.ca>

(unknown)

My daughter, , is a charger and needs to wear glasses. She has

strabismus (I think that is the term they use), farsighted, and she has eye

defects in her left eye (dermoid as well as a clouded cornea). Anyway, we

had the hardest time finding glasses since she is so small - we finally

found some over the internet. She is supposed to wear them all the time -

the dx hope that this will help straighten her eyes an.d if it doesn't then

they'll do surgery. For the life of me I cannot get her to wear them!! She

immediately wants to put them in her mouth. This has become a constant

battle - I have a 3 yr old so I can't sit with her all the time putting them

back on. I feel like we're not doing a good job. But I'm doing my best.

I've tried putting socks on her hands but she still gets them off.

Any advice? I'm afraid at her next appt he's gonna want to do surgery b/c

it hasn't gotten better. Does anyone know about the surgery? thanks

Tonya, mom to (8month charg'r)

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

Tonya,

It took me months to get Kennedy to wear her glasses constantly - she first

got them at 12 months. It was just like a light clicked on one day and she

decided to keep them on. Keep on with it, it'll come, especially when she

realizes they help her.

Weir

Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

<http://personal.nbnet.nb.ca/gweir>

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

<http://www.chargesyndrome.ca>

(unknown)

My daughter, , is a charger and needs to wear glasses. She has

strabismus (I think that is the term they use), farsighted, and she has eye

defects in her left eye (dermoid as well as a clouded cornea). Anyway, we

had the hardest time finding glasses since she is so small - we finally

found some over the internet. She is supposed to wear them all the time -

the dx hope that this will help straighten her eyes an.d if it doesn't then

they'll do surgery. For the life of me I cannot get her to wear them!! She

immediately wants to put them in her mouth. This has become a constant

battle - I have a 3 yr old so I can't sit with her all the time putting them

back on. I feel like we're not doing a good job. But I'm doing my best.

I've tried putting socks on her hands but she still gets them off.

Any advice? I'm afraid at her next appt he's gonna want to do surgery b/c

it hasn't gotten better. Does anyone know about the surgery? thanks

Tonya, mom to (8month charg'r)

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

Tonya,

Are 's glasses on a strap to hold them to her head? Also, could you

possibly get Lenscrafters or Pearl Vision or a specialty shop to make her

prescription in a goggle-like glasses? You might want to check with a Surf Shop

or

some shop like that to see if there is a company that makes prescription

goggles.

Does any one else in the family wear glasses of any type? Maybe if your 3

year old could get a pair of sunglasses and take the dark lenses out and wear

them around , she might leave hers alone. Or get a pair of swimming

goggles for him to wear.

I started wearing glasses at 2 years old. Wishing you all the best.

Carolyn

Mother of Tanis 2 CHARGE and Denny 3 months and wife to Chris

[Guest guest]

Tonya,

Are 's glasses on a strap to hold them to her head? Also, could you

possibly get Lenscrafters or Pearl Vision or a specialty shop to make her

prescription in a goggle-like glasses? You might want to check with a Surf Shop

or

some shop like that to see if there is a company that makes prescription

goggles.

Does any one else in the family wear glasses of any type? Maybe if your 3

year old could get a pair of sunglasses and take the dark lenses out and wear

them around , she might leave hers alone. Or get a pair of swimming

goggles for him to wear.

I started wearing glasses at 2 years old. Wishing you all the best.

Carolyn

Mother of Tanis 2 CHARGE and Denny 3 months and wife to Chris

[Guest guest]

Tonya,

Are 's glasses on a strap to hold them to her head? Also, could you

possibly get Lenscrafters or Pearl Vision or a specialty shop to make her

prescription in a goggle-like glasses? You might want to check with a Surf Shop

or

some shop like that to see if there is a company that makes prescription

goggles.

Does any one else in the family wear glasses of any type? Maybe if your 3

year old could get a pair of sunglasses and take the dark lenses out and wear

them around , she might leave hers alone. Or get a pair of swimming

goggles for him to wear.

I started wearing glasses at 2 years old. Wishing you all the best.

Carolyn

Mother of Tanis 2 CHARGE and Denny 3 months and wife to Chris

[Guest guest]

Akiba,

I am so sorry to hear about Rob's Dad. Please tell him he is in my thoughts......

Hugs

nne

Rob's Dad passed last night. He had bone cancer so it was not a total surprise, the chemo kinda did him in, his liver shut down, he only had one kidney, and his heart just....stopped. Rob is taking it pretty well....right now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a gem, too, when Rob said he'd come down as soon as he can, she said not to bother. Nice. I think THAT hurt him even more then his Dad passing...

      

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist!

http://www.askakiba.com

http://yodamamma.blogspot.com/

http://www.natural-salt-lamps.com/Akiba.html

" Never be bullied into silence. Never allow yourself to be made a victim.

Accept no one's definition of your life; define yourself. "

– Harvey Fierstein

-- Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancer

http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments at

www.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

[Guest guest]

Akiba,

I am so sorry to hear about Rob's Dad. Please tell him he is in my thoughts......

Hugs

nne

Rob's Dad passed last night. He had bone cancer so it was not a total surprise, the chemo kinda did him in, his liver shut down, he only had one kidney, and his heart just....stopped. Rob is taking it pretty well....right now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a gem, too, when Rob said he'd come down as soon as he can, she said not to bother. Nice. I think THAT hurt him even more then his Dad passing...

      

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist!

http://www.askakiba.com

http://yodamamma.blogspot.com/

http://www.natural-salt-lamps.com/Akiba.html

" Never be bullied into silence. Never allow yourself to be made a victim.

Accept no one's definition of your life; define yourself. "

– Harvey Fierstein

-- Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancer

http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments at

www.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

[Guest guest]

Akiba,

I am so sorry to hear about Rob's Dad. Please tell him he is in my thoughts......

Hugs

nne

Rob's Dad passed last night. He had bone cancer so it was not a total surprise, the chemo kinda did him in, his liver shut down, he only had one kidney, and his heart just....stopped. Rob is taking it pretty well....right now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a gem, too, when Rob said he'd come down as soon as he can, she said not to bother. Nice. I think THAT hurt him even more then his Dad passing...

      

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist!

http://www.askakiba.com

http://yodamamma.blogspot.com/

http://www.natural-salt-lamps.com/Akiba.html

" Never be bullied into silence. Never allow yourself to be made a victim.

Accept no one's definition of your life; define yourself. "

– Harvey Fierstein

-- Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancer

http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments at

www.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

[Guest guest]

You are all in my thoughts as well.---- nne Svihlik wrote:>Akiba,I am so sorry to hear about Rob's Dad. Please tell him he is in my

thoughts......Hugsnne>>Rob's Dad passed last night. He had bone cancer so it was not a total>surprise, the chemo kinda did him in, his liver shut down, he only had one>kidney, and his heart just....stopped. Rob is taking it pretty well....right>now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a

>gem, too, when Rob said he'd come down as soon as he can, she said not to>bother. Nice. I think THAT hurt him even more then his Dad passing...  >

>Peace and Blessings>~*~ Akiba ~*~>Pragmatic Visionary

> & Eternal Optimist!>http://www.askakiba.com

>http://yodamamma.blogspot.com/

>*http://www.natural-salt-lamps.com/Akiba.html*<http://www.solay-twinflames.com/>

>* " Never be bullied into silence. Never allow yourself to be made a

>victim. *>*Accept no one's definition of your life; define yourself. "

>**– Harvey Fierstein*>>[image: Free Animations for your email - By IncrediMail! Click Here!]<http://www.incredimail.com/index.asp?id=102287>>

>--Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Anxiety Depression and Breast Cancer

http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.html

The Cancer Clubwww.cancerclub.com

[Guest guest]

You are all in my thoughts as well.---- nne Svihlik wrote:>Akiba,I am so sorry to hear about Rob's Dad. Please tell him he is in my

thoughts......Hugsnne>>Rob's Dad passed last night. He had bone cancer so it was not a total>surprise, the chemo kinda did him in, his liver shut down, he only had one>kidney, and his heart just....stopped. Rob is taking it pretty well....right>now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a

>gem, too, when Rob said he'd come down as soon as he can, she said not to>bother. Nice. I think THAT hurt him even more then his Dad passing...  >

>Peace and Blessings>~*~ Akiba ~*~>Pragmatic Visionary

> & Eternal Optimist!>http://www.askakiba.com

>http://yodamamma.blogspot.com/

>*http://www.natural-salt-lamps.com/Akiba.html*<http://www.solay-twinflames.com/>

>* " Never be bullied into silence. Never allow yourself to be made a

>victim. *>*Accept no one's definition of your life; define yourself. "

>**– Harvey Fierstein*>>[image: Free Animations for your email - By IncrediMail! Click Here!]<http://www.incredimail.com/index.asp?id=102287>>

>--Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Anxiety Depression and Breast Cancer

http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.html

The Cancer Clubwww.cancerclub.com

[Guest guest]

You are all in my thoughts as well.---- nne Svihlik wrote:>Akiba,I am so sorry to hear about Rob's Dad. Please tell him he is in my

thoughts......Hugsnne>>Rob's Dad passed last night. He had bone cancer so it was not a total>surprise, the chemo kinda did him in, his liver shut down, he only had one>kidney, and his heart just....stopped. Rob is taking it pretty well....right>now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a

>gem, too, when Rob said he'd come down as soon as he can, she said not to>bother. Nice. I think THAT hurt him even more then his Dad passing...  >

>Peace and Blessings>~*~ Akiba ~*~>Pragmatic Visionary

> & Eternal Optimist!>http://www.askakiba.com

>http://yodamamma.blogspot.com/

>*http://www.natural-salt-lamps.com/Akiba.html*<http://www.solay-twinflames.com/>

>* " Never be bullied into silence. Never allow yourself to be made a

>victim. *>*Accept no one's definition of your life; define yourself. "

>**– Harvey Fierstein*>>[image: Free Animations for your email - By IncrediMail! Click Here!]<http://www.incredimail.com/index.asp?id=102287>>

>--Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Anxiety Depression and Breast Cancer

http://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.html

The Cancer Clubwww.cancerclub.com

[Guest guest]

read and answered and Thank you Hun! Hugs Akiba -- Re: (unknown) Akiba,I sent a reply as soon as you posted but I haven't seen it show up yet. Please let Rob know he is in my thoughts....... Hugs nne On 10/24/07, Smyelin groovy <smyelingroovy> wrote: Oh, Akiba, my heart so goes out to Rob. His mother's comment must have hurt him deeply. My love and sympathies to Rob. And to you and Robbin. HUGS, Challis (unknown) Rob's Dad passed last night. He had bone cancer so it was not a total surprise, the chemo kinda did him in, his liver shut down, he only had one kidney, and his heart just....stopped. Rob is taking it pretty well....right now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a gem, too, when Rob said he'd come down as soon as he can, she said not to bother. Nice. I think THAT hurt him even more then his Dad passing...        Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://www.askakiba .comhttp://yodamamma. blogspot. com/ http://www.natural- salt-lamps. com/Akiba. html "Never be bullied into silence. Never allow yourself to be made a victim.

Accept no one's definition of your life; define yourself."– Harvey Fierstein

-- Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancerhttp://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

[Guest guest]

read and answered and Thank you Hun! Hugs Akiba -- Re: (unknown) Akiba,I sent a reply as soon as you posted but I haven't seen it show up yet. Please let Rob know he is in my thoughts....... Hugs nne On 10/24/07, Smyelin groovy <smyelingroovy> wrote: Oh, Akiba, my heart so goes out to Rob. His mother's comment must have hurt him deeply. My love and sympathies to Rob. And to you and Robbin. HUGS, Challis (unknown) Rob's Dad passed last night. He had bone cancer so it was not a total surprise, the chemo kinda did him in, his liver shut down, he only had one kidney, and his heart just....stopped. Rob is taking it pretty well....right now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a gem, too, when Rob said he'd come down as soon as he can, she said not to bother. Nice. I think THAT hurt him even more then his Dad passing...        Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://www.askakiba .comhttp://yodamamma. blogspot. com/ http://www.natural- salt-lamps. com/Akiba. html "Never be bullied into silence. Never allow yourself to be made a victim.

Accept no one's definition of your life; define yourself."– Harvey Fierstein

-- Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancerhttp://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

[Guest guest]

read and answered and Thank you Hun! Hugs Akiba -- Re: (unknown) Akiba,I sent a reply as soon as you posted but I haven't seen it show up yet. Please let Rob know he is in my thoughts....... Hugs nne On 10/24/07, Smyelin groovy <smyelingroovy> wrote: Oh, Akiba, my heart so goes out to Rob. His mother's comment must have hurt him deeply. My love and sympathies to Rob. And to you and Robbin. HUGS, Challis (unknown) Rob's Dad passed last night. He had bone cancer so it was not a total surprise, the chemo kinda did him in, his liver shut down, he only had one kidney, and his heart just....stopped. Rob is taking it pretty well....right now. I KNOW he is hurting WAY more then he is letting on. Rob's Mom is a gem, too, when Rob said he'd come down as soon as he can, she said not to bother. Nice. I think THAT hurt him even more then his Dad passing...        Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://www.askakiba .comhttp://yodamamma. blogspot. com/ http://www.natural- salt-lamps. com/Akiba. html "Never be bullied into silence. Never allow yourself to be made a victim.

Accept no one's definition of your life; define yourself."– Harvey Fierstein

-- Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancerhttp://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

[Guest guest]

Ohhh what a wonderful thing to know.

HUGS,

Challis

Re: (unknown)



Oh Akiba...both you and Rob surely are in my heart and

my thoughts right now. Wishing and hoping for peace

and a healing heart right now for Rob. My mom sounds

just like Rob's; she would have said the same thing. He

needs to know she is going through alot right now, and

will try and push others away in her pain--she probably

feels all alone right now; my mom tends to wallow in that

and tells people to leave her be when she is going through

a difficult time. big, soft, warm cuddly hugs for Rob!

always, kate