Re: I am so frustrated

April 6, 2001

>

The concern is that her fibroid

> is so large that they may damage the uterus during the

> myomectomy and have to remove the uterus.

Perhaps you and your wife should seek a second opinion with an RE

(Reproductive Endocrinologist). An RE is a specialist in infertility

whose goal is to preserve the uterus and fertility. I had a 13.7cm

fibroid removed through a myomectomy in Oct. I am not interested in

having any more children, but my surgeon is an RE. He believes that

no fibroid is too big to remove by myomectomy.

Best of luck to you.

April 6, 2001

Ruth Ann,

Actually, I am looking for a few Docs. I'm trying to

weigh my options and to find the best Doc. out there.

I have been on the " wait and see what happens list "

and now wish that I would have reacted sooner! My

monthly is like a blood bath and lots of clotting but

I am not anemic. My current Doc. did not put me on the

" wait and see list " another one did. Previous Doc.

Told to me to wait four months to see if I would

conceive, ironically, I did, and unfortunately it

ended in a miscarriage at 5 1/2 weeks. This previous

Gyno said that he would not contribute the fibroids to

my miscarriage, more like a chromosome defect since it

was so early. It has been a year since the miscarriage

and I have not conceived. Went to another Gyno had an

ultra sound and Gyno says NO problem, but, the nurse

that did the ultra sound said it looked like the

fibroids were pushing into the endometrium lining and

that might be my problem.(So far the Ultra Sound Nurse

has been right, the infertility specialist has

confirmed her assumption) Since the Gyno said she

" discussed " my case with her colleges and decided that

there wasn't a problem and that I needed to " wait and

See " HA! I finally decided to go to an infertility

specialist and he is the one who suggested the

myomectomy. He also mentioned a number of other

options, however, myomectomy is the best for me. Also

had a hysteroscopy done. I'm upset because I have

called several times to get info and my call has not

been returned. I'm not questioning his ability just

the " bedside manner " (I have been told that this

particular Doc is an excellent micro surgeon!)and I

want to get another opinion just to see if we are all

on the same page!! Don't want anyone cutting on me

until I know all the facts! Obviously, the fibroids

are causing a problem, my tubes are open and fine,

just haven't conceived since last year! However, I was

also told that I have a cyst on my right ovary but

that they are common and shouldn't be causing a

problem. I do have a second opinion on the 9th and

another on the 2 of May. (all three Docs are

infertility specialist) I'll make my decision sometime

in May. I'm also exploring FAS. The Docs that I am

working with right now are with Baylor and

Presbytarian. If you would like more info let me, be

glad to help. Best of luck, Sky

--- " M. Ramon "

wrote:

> SKY,

>

> Hi! Thank you for your reply. It is nice to know

> there is someone else

> close by whom I can share my experience, thoughts,

> feelings, and fears with.

> I am glad to find a fellow Texan and what's more we

> both live in the Dallas

> Area. I actualy live in Mansfield which is just

> South of Arlington. You

> mentioned your doc was in . Is that where

> you are? You also

> mentioned that your doc was a fertility specialist

> but you are looking for

> another in this area. Do you not feel comfortable

> with or trusting of this

> doc because he/she mentioned the options of UAE and

> Albo? Who is he or she?

> The more I hear and learn about UF, the luckier I

> feel that I was able to

> start my family early, before I developed UFs. I

> have been doing some

> research on the web regarding UFs and have come

> across some sites regarding

> UF's and fertility. I am afraid I didn't pay as

> much attention to them as I

> have had me children all ready. But I will try to

> find them again and let

> you know about them when I do. Who knows maybe

> there will be an answer in

> one of them for you. I wish you all the best. Keep

> in touch and I will do

> same. Take care.

>

> Ruth Ann

>

> Re: I am so frustrated

>

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> also

> > 33 and live in the Dallas area. My Doc has

> mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want

> to

> > have kids. My Doc has also mentioned Albo, once

> again

> > not an option for me. This Doc is in ,

> Tx.

> > If you are interested let me know, and I can email

> the

> > infor to you. Best of Luck. SKY

> > > >

> __________________________________________________

> > > >

April 6, 2001

and Brent:

I am posting a link to the SCVIR website (they have a listing of doctors

that perform UAE around the country, maybe you can find one near you to

consult with).

http://www.scvir.org/patient/pci/index.htm

Good luck in your search.

At 08:05 PM 4/5/01 -0700, you wrote:

>Hi Sky,

>

>I read your post and it put a smile on my face. My

>wife and I are in Louisiana. Do you mean that there

>is a physician in the Texas are that performs UAE? I

>am 36 and my wife is 42 and this week has not been a

>good one since we found out about her large fibroid

>growing inside of her uterus.

>

>Any information would be so appreciated.

>

>Thanks,

>

> and Brent

>--- sky allgood wrote:

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> > also

> > 33 and live in the Dallas area. My Doc has mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want to

> > have kids. My Doc has also mentioned Albo, once

> > again

> > not an option for me. This Doc is in , Tx.

> > If you are interested let me know, and I can email

> > the

> > infor to you. Best of Luck. SKY

> > --- " M. Ramon "

> > wrote:

> > > Hi,

> > > My name is Ruth Ann. I am new to the group. This

> > > is my first time posting

> > > anything. I live in the Dallas/Fort Worth area. I

> > > have aprx. a 10 to 12

> > > week size uterus with a 3x4cm size hemoragic

> > fibroid

> > > (last months

> > > measurments) located at the top of my uterus.

> > > Although it is relatively

> > > small by some standards it is growing rapidly and

> > > the ct I had done last

> > > week showed it had increased in size considerably

> > > in just one month. Like

> > > many of you, my fellow fibroid sufferers, I am

> > > experiencing sever pain and

> > > extremly heavy bleeding and I am animic because of

> > > the abnormal internal, as

> > > well as the unusual menstral bleeding. The

> > > fustration and the stress from it

> > > all is draining. My quality of life has continued

> > > to spiral down hill as

> > > the pain and bleeding continue to increase. I need

> > > your help. I have so

> > > many questions that I know you brave and

> > abundantly

> > > strong women can answer.

> > > First of all, let me applaude your courage and

> > > commitment in helping

> > > others. It isn't easy going on line and revealing

> > > so much of a personal

> > > nature. Thank you from the bottom of my heart for

> > > having the fortitude.

> > > Just knowing I am not alone is a tremendouse help!

> > > My problem is this: I

> > > am not being successful in finding an IR in my

> > area

> > > who does UAE's or albo.

> > > Does any one out there know of anyone in the

> > Dallas/

> > > Fort Worth metroplex

> > > area of Texas or even San , Texas who is

> > > doing them? My gyn wants

> > > to do a hyst. In fact I have it scheduled for

> > June

> > > 11th. I am only 33 and

> > > have resevations about having a hyst done at this

> > > time. Fertility is not an

> > > issue as I have all ready been blessed with four

> > > beautiful and thankfuly

> > > healthy children. I do not plan on having any

> > more.

> > > But, I would like to

> > > find a good gyn in the area who's knee-jerk

> > reaction

> > > " treatment " for

> > > fibroids isn't to have a hyst done. I understand

> > > that if you leave the

> > > overaries and just remove the uterus that you wont

> > > go into menapaus. Have

> > > you ladies found this to be true? Have you been

> > > told by your gyn's that

> > > they were going to leave your overies in and woken

> > > up to find that they took

> > > them anyways? I've heard of this being done and

> > > wondered if there was a

> > > high occurance. I read some of your postings and

> > > some of you ladies have

> > > experienced menapause even with leaving your

> > ovaries

> > > in. Is this correct?

> > > I believe most of you were close to the usual age

> > > for menapause. I was

> > > wondering if there was anyone in there 30's or so

> > > who have had this

> > > experience. I know it is a personal choice and

> > one

> > > I should talk to my gyn

> > > about, but to you who have had UAE's or other

> > > treatments done, is it worth

> > > the time and fustration trying to find somone to

> > > help me or should I resign

> > > myself to having a hyst done and just get it over

> > > with? Would a myo help or

> > > will it only buy me a little time and I'll end up

> > > needing a hyst anyways?

> > > My gyn says they usually reserve myo's for those

> > > interested in having

> > > children. As stated above I am done having my

> > > family. What do you

> > > experienced ladies think?

> > >

> > > Thank you in advance for all of your time and

> > care.

> > >

> > > Sincerely,

> > > Ruth Ann - a woman who just wants her life back.

> > >

> > > Re: I am so frustrated

> > >

> > > > Hello,

> > > > My Doc is a Fertility Specialist and even

> > demanded

> > > > that I sign a waiver like this for a

> > Hysteroscopy.

> > > He

> > > > knows that I am wanting to have kids and that's

> > > the

> > > > reason I am seeing him. Actually, I have asked

> > > for

> > > > info twice with no results, like location of my

> > > > fibroids and size, how many etc. Can't seem to

> > get

> > > the

> > > > info that I need. He actually told me to ask the

> > > Nurse

> > > > these Q's and he would get back to me or we

> > would

> > > have

> > > > to set up another appointment. ( I had already

> > > waited

> > > > an 1 and a 1/2 to see him) Can't believe he had

> > > the

> > > > audacity to tell me that! I do have a second

> > > opinion

> > > > on the 9th. Do you have any suggestions or know

> > > any

> > > > Docs in the Dallas, Tx area? Thanks, Sky

> > > > --- ninaney@... wrote:

> > > > > Stick with the doc in Tor. I had a nurse

> > demand

> > > I

> > > > > sign a waiver before surgery that I would okay

> > > for a

> > > > > hysterectomy if they opened me up and there

> > was

> > > a

> > > > > problem. Luckily my doc was there and told the

> > > nurse

> > > > > I was having a myo and she had no right to

> > > demand I

> > > > > sign any waiver especially since I had been

> > > there

> > > > > the day before and hand a pre-op with my

> > > > > gyn/fertility specialist. So go with the doc

> > in

> > > Tor.

> > > > > If your doc is just a surgen(the one at home)

> > > for

> > > > > some reason there quicker to just take

> > > everything

> > > > > out than try to save things.

> > > > >

> > > >

> > __________________________________________________

> > > >

April 6, 2001

and Brent:

I am posting a link to the SCVIR website (they have a listing of doctors

that perform UAE around the country, maybe you can find one near you to

consult with).

http://www.scvir.org/patient/pci/index.htm

Good luck in your search.

At 08:05 PM 4/5/01 -0700, you wrote:

>Hi Sky,

>

>I read your post and it put a smile on my face. My

>wife and I are in Louisiana. Do you mean that there

>is a physician in the Texas are that performs UAE? I

>am 36 and my wife is 42 and this week has not been a

>good one since we found out about her large fibroid

>growing inside of her uterus.

>

>Any information would be so appreciated.

>

>Thanks,

>

> and Brent

>--- sky allgood wrote:

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> > also

> > 33 and live in the Dallas area. My Doc has mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want to

> > have kids. My Doc has also mentioned Albo, once

> > again

> > not an option for me. This Doc is in , Tx.

> > If you are interested let me know, and I can email

> > the

> > infor to you. Best of Luck. SKY

> > --- " M. Ramon "

> > wrote:

> > > Hi,

> > > My name is Ruth Ann. I am new to the group. This

> > > is my first time posting

> > > anything. I live in the Dallas/Fort Worth area. I

> > > have aprx. a 10 to 12

> > > week size uterus with a 3x4cm size hemoragic

> > fibroid

> > > (last months

> > > measurments) located at the top of my uterus.

> > > Although it is relatively

> > > small by some standards it is growing rapidly and

> > > the ct I had done last

> > > week showed it had increased in size considerably

> > > in just one month. Like

> > > many of you, my fellow fibroid sufferers, I am

> > > experiencing sever pain and

> > > extremly heavy bleeding and I am animic because of

> > > the abnormal internal, as

> > > well as the unusual menstral bleeding. The

> > > fustration and the stress from it

> > > all is draining. My quality of life has continued

> > > to spiral down hill as

> > > the pain and bleeding continue to increase. I need

> > > your help. I have so

> > > many questions that I know you brave and

> > abundantly

> > > strong women can answer.

> > > First of all, let me applaude your courage and

> > > commitment in helping

> > > others. It isn't easy going on line and revealing

> > > so much of a personal

> > > nature. Thank you from the bottom of my heart for

> > > having the fortitude.

> > > Just knowing I am not alone is a tremendouse help!

> > > My problem is this: I

> > > am not being successful in finding an IR in my

> > area

> > > who does UAE's or albo.

> > > Does any one out there know of anyone in the

> > Dallas/

> > > Fort Worth metroplex

> > > area of Texas or even San , Texas who is

> > > doing them? My gyn wants

> > > to do a hyst. In fact I have it scheduled for

> > June

> > > 11th. I am only 33 and

> > > have resevations about having a hyst done at this

> > > time. Fertility is not an

> > > issue as I have all ready been blessed with four

> > > beautiful and thankfuly

> > > healthy children. I do not plan on having any

> > more.

> > > But, I would like to

> > > find a good gyn in the area who's knee-jerk

> > reaction

> > > " treatment " for

> > > fibroids isn't to have a hyst done. I understand

> > > that if you leave the

> > > overaries and just remove the uterus that you wont

> > > go into menapaus. Have

> > > you ladies found this to be true? Have you been

> > > told by your gyn's that

> > > they were going to leave your overies in and woken

> > > up to find that they took

> > > them anyways? I've heard of this being done and

> > > wondered if there was a

> > > high occurance. I read some of your postings and

> > > some of you ladies have

> > > experienced menapause even with leaving your

> > ovaries

> > > in. Is this correct?

> > > I believe most of you were close to the usual age

> > > for menapause. I was

> > > wondering if there was anyone in there 30's or so

> > > who have had this

> > > experience. I know it is a personal choice and

> > one

> > > I should talk to my gyn

> > > about, but to you who have had UAE's or other

> > > treatments done, is it worth

> > > the time and fustration trying to find somone to

> > > help me or should I resign

> > > myself to having a hyst done and just get it over

> > > with? Would a myo help or

> > > will it only buy me a little time and I'll end up

> > > needing a hyst anyways?

> > > My gyn says they usually reserve myo's for those

> > > interested in having

> > > children. As stated above I am done having my

> > > family. What do you

> > > experienced ladies think?

> > >

> > > Thank you in advance for all of your time and

> > care.

> > >

> > > Sincerely,

> > > Ruth Ann - a woman who just wants her life back.

> > >

> > > Re: I am so frustrated

> > >

> > > > Hello,

> > > > My Doc is a Fertility Specialist and even

> > demanded

> > > > that I sign a waiver like this for a

> > Hysteroscopy.

> > > He

> > > > knows that I am wanting to have kids and that's

> > > the

> > > > reason I am seeing him. Actually, I have asked

> > > for

> > > > info twice with no results, like location of my

> > > > fibroids and size, how many etc. Can't seem to

> > get

> > > the

> > > > info that I need. He actually told me to ask the

> > > Nurse

> > > > these Q's and he would get back to me or we

> > would

> > > have

> > > > to set up another appointment. ( I had already

> > > waited

> > > > an 1 and a 1/2 to see him) Can't believe he had

> > > the

> > > > audacity to tell me that! I do have a second

> > > opinion

> > > > on the 9th. Do you have any suggestions or know

> > > any

> > > > Docs in the Dallas, Tx area? Thanks, Sky

> > > > --- ninaney@... wrote:

> > > > > Stick with the doc in Tor. I had a nurse

> > demand

> > > I

> > > > > sign a waiver before surgery that I would okay

> > > for a

> > > > > hysterectomy if they opened me up and there

> > was

> > > a

> > > > > problem. Luckily my doc was there and told the

> > > nurse

> > > > > I was having a myo and she had no right to

> > > demand I

> > > > > sign any waiver especially since I had been

> > > there

> > > > > the day before and hand a pre-op with my

> > > > > gyn/fertility specialist. So go with the doc

> > in

> > > Tor.

> > > > > If your doc is just a surgen(the one at home)

> > > for

> > > > > some reason there quicker to just take

> > > everything

> > > > > out than try to save things.

> > > > >

> > > >

> > __________________________________________________

> > > >

April 6, 2001

and Brent:

I am posting a link to the SCVIR website (they have a listing of doctors

that perform UAE around the country, maybe you can find one near you to

consult with).

http://www.scvir.org/patient/pci/index.htm

Good luck in your search.

At 08:05 PM 4/5/01 -0700, you wrote:

>Hi Sky,

>

>I read your post and it put a smile on my face. My

>wife and I are in Louisiana. Do you mean that there

>is a physician in the Texas are that performs UAE? I

>am 36 and my wife is 42 and this week has not been a

>good one since we found out about her large fibroid

>growing inside of her uterus.

>

>Any information would be so appreciated.

>

>Thanks,

>

> and Brent

>--- sky allgood wrote:

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> > also

> > 33 and live in the Dallas area. My Doc has mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want to

> > have kids. My Doc has also mentioned Albo, once

> > again

> > not an option for me. This Doc is in , Tx.

> > If you are interested let me know, and I can email

> > the

> > infor to you. Best of Luck. SKY

> > --- " M. Ramon "

> > wrote:

> > > Hi,

> > > My name is Ruth Ann. I am new to the group. This

> > > is my first time posting

> > > anything. I live in the Dallas/Fort Worth area. I

> > > have aprx. a 10 to 12

> > > week size uterus with a 3x4cm size hemoragic

> > fibroid

> > > (last months

> > > measurments) located at the top of my uterus.

> > > Although it is relatively

> > > small by some standards it is growing rapidly and

> > > the ct I had done last

> > > week showed it had increased in size considerably

> > > in just one month. Like

> > > many of you, my fellow fibroid sufferers, I am

> > > experiencing sever pain and

> > > extremly heavy bleeding and I am animic because of

> > > the abnormal internal, as

> > > well as the unusual menstral bleeding. The

> > > fustration and the stress from it

> > > all is draining. My quality of life has continued

> > > to spiral down hill as

> > > the pain and bleeding continue to increase. I need

> > > your help. I have so

> > > many questions that I know you brave and

> > abundantly

> > > strong women can answer.

> > > First of all, let me applaude your courage and

> > > commitment in helping

> > > others. It isn't easy going on line and revealing

> > > so much of a personal

> > > nature. Thank you from the bottom of my heart for

> > > having the fortitude.

> > > Just knowing I am not alone is a tremendouse help!

> > > My problem is this: I

> > > am not being successful in finding an IR in my

> > area

> > > who does UAE's or albo.

> > > Does any one out there know of anyone in the

> > Dallas/

> > > Fort Worth metroplex

> > > area of Texas or even San , Texas who is

> > > doing them? My gyn wants

> > > to do a hyst. In fact I have it scheduled for

> > June

> > > 11th. I am only 33 and

> > > have resevations about having a hyst done at this

> > > time. Fertility is not an

> > > issue as I have all ready been blessed with four

> > > beautiful and thankfuly

> > > healthy children. I do not plan on having any

> > more.

> > > But, I would like to

> > > find a good gyn in the area who's knee-jerk

> > reaction

> > > " treatment " for

> > > fibroids isn't to have a hyst done. I understand

> > > that if you leave the

> > > overaries and just remove the uterus that you wont

> > > go into menapaus. Have

> > > you ladies found this to be true? Have you been

> > > told by your gyn's that

> > > they were going to leave your overies in and woken

> > > up to find that they took

> > > them anyways? I've heard of this being done and

> > > wondered if there was a

> > > high occurance. I read some of your postings and

> > > some of you ladies have

> > > experienced menapause even with leaving your

> > ovaries

> > > in. Is this correct?

> > > I believe most of you were close to the usual age

> > > for menapause. I was

> > > wondering if there was anyone in there 30's or so

> > > who have had this

> > > experience. I know it is a personal choice and

> > one

> > > I should talk to my gyn

> > > about, but to you who have had UAE's or other

> > > treatments done, is it worth

> > > the time and fustration trying to find somone to

> > > help me or should I resign

> > > myself to having a hyst done and just get it over

> > > with? Would a myo help or

> > > will it only buy me a little time and I'll end up

> > > needing a hyst anyways?

> > > My gyn says they usually reserve myo's for those

> > > interested in having

> > > children. As stated above I am done having my

> > > family. What do you

> > > experienced ladies think?

> > >

> > > Thank you in advance for all of your time and

> > care.

> > >

> > > Sincerely,

> > > Ruth Ann - a woman who just wants her life back.

> > >

> > > Re: I am so frustrated

> > >

> > > > Hello,

> > > > My Doc is a Fertility Specialist and even

> > demanded

> > > > that I sign a waiver like this for a

> > Hysteroscopy.

> > > He

> > > > knows that I am wanting to have kids and that's

> > > the

> > > > reason I am seeing him. Actually, I have asked

> > > for

> > > > info twice with no results, like location of my

> > > > fibroids and size, how many etc. Can't seem to

> > get

> > > the

> > > > info that I need. He actually told me to ask the

> > > Nurse

> > > > these Q's and he would get back to me or we

> > would

> > > have

> > > > to set up another appointment. ( I had already

> > > waited

> > > > an 1 and a 1/2 to see him) Can't believe he had

> > > the

> > > > audacity to tell me that! I do have a second

> > > opinion

> > > > on the 9th. Do you have any suggestions or know

> > > any

> > > > Docs in the Dallas, Tx area? Thanks, Sky

> > > > --- ninaney@... wrote:

> > > > > Stick with the doc in Tor. I had a nurse

> > demand

> > > I

> > > > > sign a waiver before surgery that I would okay

> > > for a

> > > > > hysterectomy if they opened me up and there

> > was

> > > a

> > > > > problem. Luckily my doc was there and told the

> > > nurse

> > > > > I was having a myo and she had no right to

> > > demand I

> > > > > sign any waiver especially since I had been

> > > there

> > > > > the day before and hand a pre-op with my

> > > > > gyn/fertility specialist. So go with the doc

> > in

> > > Tor.

> > > > > If your doc is just a surgen(the one at home)

> > > for

> > > > > some reason there quicker to just take

> > > everything

> > > > > out than try to save things.

> > > > >

> > > >

> > __________________________________________________

> > > >

April 6, 2001

Hi and Brent,

you asked where I had the procedure done. I live in

upstate New York and had the procedure performed at

Albany Medical Center. The physican was Dr. Siskin.

I can not say enough about the the quality of care I

received from the doctors and nurses. I have a bit of

hospital phobia and felt that they were respectful of

that. I realize from your other posts that you live

in Texas and therefore are unlikely to come to New

York. Still, if I could simply say that it is of the

utmost importance that you shop doctors. Go with the

team that makes you feel comfortable with their

expertise, responsive to your concerns and respectful

of you as people. I felt that the Albany Med. team

delivered on all fronts. I too hope to conceive one

day had many large multiple fibroids that were

predominantly intramural. I still chose UFE honestly

because of the lack of invasiveness, short recovery

time,low rate of recurrence of fibroids and my own

comfort with the staff. I also had a consult with a

reproductive endocrinologist and left angry and

anxious. His office and staff felt cold and

impersonal. I have no regrets. We did determine

during the procedure that the uterine arteries were

the primary blood supply for the fibroids. That was

especially good news given our desire for children.

All the Best, Celeste--- b romero

wrote:

> Hi Sky,

>

> I read your post and it put a smile on my face. My

> wife and I are in Louisiana. Do you mean that there

> is a physician in the Texas are that performs UAE?

> I

> am 36 and my wife is 42 and this week has not been a

> good one since we found out about her large fibroid

> growing inside of her uterus.

>

> Any information would be so appreciated.

>

> Thanks,

>

> and Brent

> --- sky allgood wrote:

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> > also

> > 33 and live in the Dallas area. My Doc has

> mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want

> to

> > have kids. My Doc has also mentioned Albo, once

> > again

> > not an option for me. This Doc is in ,

> Tx.

> > If you are interested let me know, and I can email

> > the

> > infor to you. Best of Luck. SKY

> > --- " M. Ramon "

> > wrote:

> > > Hi,

> > > My name is Ruth Ann. I am new to the group.

> This

> > > is my first time posting

> > > anything. I live in the Dallas/Fort Worth area.

> I

> > > have aprx. a 10 to 12

> > > week size uterus with a 3x4cm size hemoragic

> > fibroid

> > > (last months

> > > measurments) located at the top of my uterus.

> > > Although it is relatively

> > > small by some standards it is growing rapidly

> and

> > > the ct I had done last

> > > week showed it had increased in size

> considerably

> > > in just one month. Like

> > > many of you, my fellow fibroid sufferers, I am

> > > experiencing sever pain and

> > > extremly heavy bleeding and I am animic because

> of

> > > the abnormal internal, as

> > > well as the unusual menstral bleeding. The

> > > fustration and the stress from it

> > > all is draining. My quality of life has

> continued

> > > to spiral down hill as

> > > the pain and bleeding continue to increase. I

> need

> > > your help. I have so

> > > many questions that I know you brave and

> > abundantly

> > > strong women can answer.

> > > First of all, let me applaude your courage and

> > > commitment in helping

> > > others. It isn't easy going on line and

> revealing

> > > so much of a personal

> > > nature. Thank you from the bottom of my heart

> for

> > > having the fortitude.

> > > Just knowing I am not alone is a tremendouse

> help!

> > > My problem is this: I

> > > am not being successful in finding an IR in my

> > area

> > > who does UAE's or albo.

> > > Does any one out there know of anyone in the

> > Dallas/

> > > Fort Worth metroplex

> > > area of Texas or even San , Texas who is

> > > doing them? My gyn wants

> > > to do a hyst. In fact I have it scheduled for

> > June

> > > 11th. I am only 33 and

> > > have resevations about having a hyst done at

> this

> > > time. Fertility is not an

> > > issue as I have all ready been blessed with four

> > > beautiful and thankfuly

> > > healthy children. I do not plan on having any

> > more.

> > > But, I would like to

> > > find a good gyn in the area who's knee-jerk

> > reaction

> > > " treatment " for

> > > fibroids isn't to have a hyst done. I

> understand

> > > that if you leave the

> > > overaries and just remove the uterus that you

> wont

> > > go into menapaus. Have

> > > you ladies found this to be true? Have you been

> > > told by your gyn's that

> > > they were going to leave your overies in and

> woken

> > > up to find that they took

> > > them anyways? I've heard of this being done and

> > > wondered if there was a

> > > high occurance. I read some of your postings

> and

> > > some of you ladies have

> > > experienced menapause even with leaving your

> > ovaries

> > > in. Is this correct?

> > > I believe most of you were close to the usual

> age

> > > for menapause. I was

> > > wondering if there was anyone in there 30's or

> so

> > > who have had this

> > > experience. I know it is a personal choice and

> > one

> > > I should talk to my gyn

> > > about, but to you who have had UAE's or other

> > > treatments done, is it worth

> > > the time and fustration trying to find somone to

> > > help me or should I resign

> > > myself to having a hyst done and just get it

> over

> > > with? Would a myo help or

> > > will it only buy me a little time and I'll end

> up

> > > needing a hyst anyways?

> > > My gyn says they usually reserve myo's for those

> > > interested in having

> > > children. As stated above I am done having my

> > > family. What do you

> > > experienced ladies think?

> > >

> > > Thank you in advance for all of your time and

> > care.

> > >

> > > Sincerely,

> > > Ruth Ann

__________________________________________________

April 6, 2001

Hi and Brent,

you asked where I had the procedure done. I live in

upstate New York and had the procedure performed at

Albany Medical Center. The physican was Dr. Siskin.

I can not say enough about the the quality of care I

received from the doctors and nurses. I have a bit of

hospital phobia and felt that they were respectful of

that. I realize from your other posts that you live

in Texas and therefore are unlikely to come to New

York. Still, if I could simply say that it is of the

utmost importance that you shop doctors. Go with the

team that makes you feel comfortable with their

expertise, responsive to your concerns and respectful

of you as people. I felt that the Albany Med. team

delivered on all fronts. I too hope to conceive one

day had many large multiple fibroids that were

predominantly intramural. I still chose UFE honestly

because of the lack of invasiveness, short recovery

time,low rate of recurrence of fibroids and my own

comfort with the staff. I also had a consult with a

reproductive endocrinologist and left angry and

anxious. His office and staff felt cold and

impersonal. I have no regrets. We did determine

during the procedure that the uterine arteries were

the primary blood supply for the fibroids. That was

especially good news given our desire for children.

All the Best, Celeste--- b romero

wrote:

> Hi Sky,

>

> I read your post and it put a smile on my face. My

> wife and I are in Louisiana. Do you mean that there

> is a physician in the Texas are that performs UAE?

> I

> am 36 and my wife is 42 and this week has not been a

> good one since we found out about her large fibroid

> growing inside of her uterus.

>

> Any information would be so appreciated.

>

> Thanks,

>

> and Brent

> --- sky allgood wrote:

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> > also

> > 33 and live in the Dallas area. My Doc has

> mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want

> to

> > have kids. My Doc has also mentioned Albo, once

> > again

> > not an option for me. This Doc is in ,

> Tx.

> > If you are interested let me know, and I can email

> > the

> > infor to you. Best of Luck. SKY

> > --- " M. Ramon "

> > wrote:

> > > Hi,

> > > My name is Ruth Ann. I am new to the group.

> This

> > > is my first time posting

> > > anything. I live in the Dallas/Fort Worth area.

> I

> > > have aprx. a 10 to 12

> > > week size uterus with a 3x4cm size hemoragic

> > fibroid

> > > (last months

> > > measurments) located at the top of my uterus.

> > > Although it is relatively

> > > small by some standards it is growing rapidly

> and

> > > the ct I had done last

> > > week showed it had increased in size

> considerably

> > > in just one month. Like

> > > many of you, my fellow fibroid sufferers, I am

> > > experiencing sever pain and

> > > extremly heavy bleeding and I am animic because

> of

> > > the abnormal internal, as

> > > well as the unusual menstral bleeding. The

> > > fustration and the stress from it

> > > all is draining. My quality of life has

> continued

> > > to spiral down hill as

> > > the pain and bleeding continue to increase. I

> need

> > > your help. I have so

> > > many questions that I know you brave and

> > abundantly

> > > strong women can answer.

> > > First of all, let me applaude your courage and

> > > commitment in helping

> > > others. It isn't easy going on line and

> revealing

> > > so much of a personal

> > > nature. Thank you from the bottom of my heart

> for

> > > having the fortitude.

> > > Just knowing I am not alone is a tremendouse

> help!

> > > My problem is this: I

> > > am not being successful in finding an IR in my

> > area

> > > who does UAE's or albo.

> > > Does any one out there know of anyone in the

> > Dallas/

> > > Fort Worth metroplex

> > > area of Texas or even San , Texas who is

> > > doing them? My gyn wants

> > > to do a hyst. In fact I have it scheduled for

> > June

> > > 11th. I am only 33 and

> > > have resevations about having a hyst done at

> this

> > > time. Fertility is not an

> > > issue as I have all ready been blessed with four

> > > beautiful and thankfuly

> > > healthy children. I do not plan on having any

> > more.

> > > But, I would like to

> > > find a good gyn in the area who's knee-jerk

> > reaction

> > > " treatment " for

> > > fibroids isn't to have a hyst done. I

> understand

> > > that if you leave the

> > > overaries and just remove the uterus that you

> wont

> > > go into menapaus. Have

> > > you ladies found this to be true? Have you been

> > > told by your gyn's that

> > > they were going to leave your overies in and

> woken

> > > up to find that they took

> > > them anyways? I've heard of this being done and

> > > wondered if there was a

> > > high occurance. I read some of your postings

> and

> > > some of you ladies have

> > > experienced menapause even with leaving your

> > ovaries

> > > in. Is this correct?

> > > I believe most of you were close to the usual

> age

> > > for menapause. I was

> > > wondering if there was anyone in there 30's or

> so

> > > who have had this

> > > experience. I know it is a personal choice and

> > one

> > > I should talk to my gyn

> > > about, but to you who have had UAE's or other

> > > treatments done, is it worth

> > > the time and fustration trying to find somone to

> > > help me or should I resign

> > > myself to having a hyst done and just get it

> over

> > > with? Would a myo help or

> > > will it only buy me a little time and I'll end

> up

> > > needing a hyst anyways?

> > > My gyn says they usually reserve myo's for those

> > > interested in having

> > > children. As stated above I am done having my

> > > family. What do you

> > > experienced ladies think?

> > >

> > > Thank you in advance for all of your time and

> > care.

> > >

> > > Sincerely,

> > > Ruth Ann

__________________________________________________

April 6, 2001

Hi and Brent,

you asked where I had the procedure done. I live in

upstate New York and had the procedure performed at

Albany Medical Center. The physican was Dr. Siskin.

I can not say enough about the the quality of care I

received from the doctors and nurses. I have a bit of

hospital phobia and felt that they were respectful of

that. I realize from your other posts that you live

in Texas and therefore are unlikely to come to New

York. Still, if I could simply say that it is of the

utmost importance that you shop doctors. Go with the

team that makes you feel comfortable with their

expertise, responsive to your concerns and respectful

of you as people. I felt that the Albany Med. team

delivered on all fronts. I too hope to conceive one

day had many large multiple fibroids that were

predominantly intramural. I still chose UFE honestly

because of the lack of invasiveness, short recovery

time,low rate of recurrence of fibroids and my own

comfort with the staff. I also had a consult with a

reproductive endocrinologist and left angry and

anxious. His office and staff felt cold and

impersonal. I have no regrets. We did determine

during the procedure that the uterine arteries were

the primary blood supply for the fibroids. That was

especially good news given our desire for children.

All the Best, Celeste--- b romero

wrote:

> Hi Sky,

>

> I read your post and it put a smile on my face. My

> wife and I are in Louisiana. Do you mean that there

> is a physician in the Texas are that performs UAE?

> I

> am 36 and my wife is 42 and this week has not been a

> good one since we found out about her large fibroid

> growing inside of her uterus.

>

> Any information would be so appreciated.

>

> Thanks,

>

> and Brent

> --- sky allgood wrote:

> > Ruth Ann,

> > Hi,

> > I am also new to the group. My name is Sky, I'm

> > also

> > 33 and live in the Dallas area. My Doc has

> mentioned

> > UAE and offered it as an option, however, that

> > procedure is not an option for me because I want

> to

> > have kids. My Doc has also mentioned Albo, once

> > again

> > not an option for me. This Doc is in ,

> Tx.

> > If you are interested let me know, and I can email

> > the

> > infor to you. Best of Luck. SKY

> > --- " M. Ramon "

> > wrote:

> > > Hi,

> > > My name is Ruth Ann. I am new to the group.

> This

> > > is my first time posting

> > > anything. I live in the Dallas/Fort Worth area.

> I

> > > have aprx. a 10 to 12

> > > week size uterus with a 3x4cm size hemoragic

> > fibroid

> > > (last months

> > > measurments) located at the top of my uterus.

> > > Although it is relatively

> > > small by some standards it is growing rapidly

> and

> > > the ct I had done last

> > > week showed it had increased in size

> considerably

> > > in just one month. Like

> > > many of you, my fellow fibroid sufferers, I am

> > > experiencing sever pain and

> > > extremly heavy bleeding and I am animic because

> of

> > > the abnormal internal, as

> > > well as the unusual menstral bleeding. The

> > > fustration and the stress from it

> > > all is draining. My quality of life has

> continued

> > > to spiral down hill as

> > > the pain and bleeding continue to increase. I

> need

> > > your help. I have so

> > > many questions that I know you brave and

> > abundantly

> > > strong women can answer.

> > > First of all, let me applaude your courage and

> > > commitment in helping

> > > others. It isn't easy going on line and

> revealing

> > > so much of a personal

> > > nature. Thank you from the bottom of my heart

> for

> > > having the fortitude.

> > > Just knowing I am not alone is a tremendouse

> help!

> > > My problem is this: I

> > > am not being successful in finding an IR in my

> > area

> > > who does UAE's or albo.

> > > Does any one out there know of anyone in the

> > Dallas/

> > > Fort Worth metroplex

> > > area of Texas or even San , Texas who is

> > > doing them? My gyn wants

> > > to do a hyst. In fact I have it scheduled for

> > June

> > > 11th. I am only 33 and

> > > have resevations about having a hyst done at

> this

> > > time. Fertility is not an

> > > issue as I have all ready been blessed with four

> > > beautiful and thankfuly

> > > healthy children. I do not plan on having any

> > more.

> > > But, I would like to

> > > find a good gyn in the area who's knee-jerk

> > reaction

> > > " treatment " for

> > > fibroids isn't to have a hyst done. I

> understand

> > > that if you leave the

> > > overaries and just remove the uterus that you

> wont

> > > go into menapaus. Have

> > > you ladies found this to be true? Have you been

> > > told by your gyn's that

> > > they were going to leave your overies in and

> woken

> > > up to find that they took

> > > them anyways? I've heard of this being done and

> > > wondered if there was a

> > > high occurance. I read some of your postings

> and

> > > some of you ladies have

> > > experienced menapause even with leaving your

> > ovaries

> > > in. Is this correct?

> > > I believe most of you were close to the usual

> age

> > > for menapause. I was

> > > wondering if there was anyone in there 30's or

> so

> > > who have had this

> > > experience. I know it is a personal choice and

> > one

> > > I should talk to my gyn

> > > about, but to you who have had UAE's or other

> > > treatments done, is it worth

> > > the time and fustration trying to find somone to

> > > help me or should I resign

> > > myself to having a hyst done and just get it

> over

> > > with? Would a myo help or

> > > will it only buy me a little time and I'll end

> up

> > > needing a hyst anyways?

> > > My gyn says they usually reserve myo's for those

> > > interested in having

> > > children. As stated above I am done having my

> > > family. What do you

> > > experienced ladies think?

> > >

> > > Thank you in advance for all of your time and

> > care.

> > >

> > > Sincerely,

> > > Ruth Ann

__________________________________________________

April 6, 2001

Hi and Brent-

I was just browsing through the posts and I saw your messages. I would

recommend you go to a reproductive endocrinologist and get his opinion. Is

your wife's fibroid causing symptoms? Some doctors recommend trying to get

pregnant before seeking treatment because of possible damage to the uterus.

I know it seems scary now but keep in mind that these things grow slowly and

are very common. There is a lot of info out there. See several doctors.

By the way, my husband and I experienced infertility for 6 years. We

currently have two children (one boy and one girl) who entered our lives at

birth through adoption. I wouldn't have it any other way. Best of luck to

you.

Amy

April 7, 2001

Dear Ruth Ann

I am new to the group also, i have been experince pain for a long time.my

cycle just

ended i was in severe pain i am also 33 years old, i just had my 3rd

ultrasound and

my cyst has grown in size my symptons are chills with severe abdominal pain .

my

doctor has talked to me about a HST, I really have not got much help with

this. i am

going to a new ob i would like to try some medication first. I dont think i

am quite

ready for a hst. the stories i have heard and i know other woman who have had

a hst

and has not been a good turn out. I just thought talking to others would help

me understand, what symptoms do you have? and what medication do you take ?if

you have some answers please respond back to me . I too am blessed with 3

children

and dont plan on any more children .

Sincerly

Tammy

April 7, 2001

Dear Ruth Ann

I am new to the group also, i have been experince pain for a long time.my

cycle just

ended i was in severe pain i am also 33 years old, i just had my 3rd

ultrasound and

my cyst has grown in size my symptons are chills with severe abdominal pain .

my

doctor has talked to me about a HST, I really have not got much help with

this. i am

going to a new ob i would like to try some medication first. I dont think i

am quite

ready for a hst. the stories i have heard and i know other woman who have had

a hst

and has not been a good turn out. I just thought talking to others would help

me understand, what symptoms do you have? and what medication do you take ?if

you have some answers please respond back to me . I too am blessed with 3

children

and dont plan on any more children .

Sincerly

Tammy

April 7, 2001

Dear Ruth Ann

I am new to the group also, i have been experince pain for a long time.my

cycle just

ended i was in severe pain i am also 33 years old, i just had my 3rd

ultrasound and

my cyst has grown in size my symptons are chills with severe abdominal pain .

my

doctor has talked to me about a HST, I really have not got much help with

this. i am

going to a new ob i would like to try some medication first. I dont think i

am quite

ready for a hst. the stories i have heard and i know other woman who have had

a hst

and has not been a good turn out. I just thought talking to others would help

me understand, what symptoms do you have? and what medication do you take ?if

you have some answers please respond back to me . I too am blessed with 3

children

and dont plan on any more children .

Sincerly

Tammy

April 8, 2001

You should be able to obtain a copy of your x-rays or ultra sound. It's your

right to have a copy of your medical files. I have all 77 pages of my fibroid

experience. From the time I went into emergency to the report the doctor

wrote after surgery. I made sure my family doctor received a copy. So there

would be no question of my health history and my discussions with the doctor

for future care. Have you had either. I just had a follow up ultrasound a few

months. Turned out to be a cyst on my ovary. But it also showed two very

small fibroids in my uterine wall. It's your right to know how many and the

location.

April 8, 2001